thalassemia & sickle cell prevention, control and research...
TRANSCRIPT
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Indian Red Cross Society is one of the leading organization in Gujarat in providing Humanitarian and Health Services. Thalassemia Prevention Programme is one of the major project among other various Health Programmes that have been implemented by State Branch.
INDIAN RED CROSS SOCIETY
Gujarat State Branch
GUJARAT STATE FERTILIZERS & CHEMICALS LIMITED JAMNAGAR
Thalassemia & Sickle Cell Prevention, Control and Research Programme
Supported by
Screened 1700 Students under Thalassemia Prevention Programme In Jamnagar District
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As per estimate there are more than 10000 Thalassemia children in Gujarat and each
year nearly 1000 Thalassemia children being added in it. Thalassemia Major is one of the
disease which is incurable and has no medicine is available to cure it. This disease is
genetically driven for children from their parents, if both of them are Thalassemia Minor.
Thalassemia Major Children hardly lives for 10 to 15 years and they require frequent Blood
transfusion, Since there is no medicine or treatment available to save the affected persons, it is
found very significant to prevent it from inheriting this disease from their parents by avoiding
marriages between two Thalassemia Minors.
Indian Red Cross Society has started Thalassemia Prevention Programme from Sept. 2004 in
which various Universities, Colleges and Schools of Gujarat have been covered. Till date we
have screened more than 22 Lac students where in we found 4% to 5% Thalassemia Minor in
each community. To make Thalassemia Prevention Programme more successful we get the
support from Government of Gujarat as well as from private sectors.
Thalassemia & Sickle Cell Prevention Programme of School going students of standard 6th to 12th of
Jamnagar District supported by
GSFC - Jamnagar
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In order to scale up the Thalassemia and Sickle Cell Screening Programme of
Red Cross Gujarat State Branch, a project proposal was submitted to GSFC Sikka Unit,
Jamngar for funding under CSR – Programme. Subsequently at the initial stage, the
GSFC Sikka Unit – Jamnanar had sanctioned to screen 3400 school going students
studying in standard 6th to 12th of Sikka, Jamngar District with a total approved fund of
Rs. 4,25,000/-.
The team of IRCS has made pre-counselling of Thalassemia Prevention Programme in
Govt. Madhyamik and Prathmik Schools of Sikka , Jamnagar District where in the
Sarpanch, August people of village, Principal, teachers, students & other village people
remained present. Gujarat Red Cross had thereafter prepared tentative planning for the
screening programme. The details there of are given below :
Sr. No.
Camp Date
Name of the School Name & Contact Persons
Village Class Nos. of Student
1 27-6-16 8:00am
Kana Chhikari Madhyamik Shala
Khanderi Vijaybhai 9974376736
Kana Chhikari
9 & 10 29
4 27-6-16 8:00am
DCC School Mehravan Bamrotiya 8530694636
Sikka 9 94
5 27-6-16 8:00am
DCC School Mehravan Bamrotiya 8530694636
Sikka 11 140
2 28-06-16
12:30 pm
Moti Khavdi Madhyamik Shala
Nakum Manjulaben 9974959821
Moti Khavdi
9 10
3 28-06-16 8:00am
Dhruv Madhyamik Shala
Hemangiben Dholakiya 9327580861 0288 2344666
Sikka 9 35
6 28-06-16 1:00pm
SDCCL Public School R.V. Raman 9099038063
Sikka 11 &12 50
Total 358
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The Inaugural Programme of GSFC Supported Thalassemia Screening Programme was held on 17 June 2016, GSFC Primary School, Jamngar.
The Programme was inaugurated Jointly by Shri R. J. Mankadiya, IAS,Collector- Jamngar, Dr. Bathvar Saheb, CDHO-Jamngar, Shri D. K. Gandhi, Vice President- GSFC, Jamnagar, Shri H. M. Mankodi, HRM,GSFC – Jamnagar, Shri Farooqi Saheb, IRO, GSFC-Jamnagar, Dr. Prakashbhai Parmar. General Secretary – Indian Red Cross Society Gujarat State Branch, Shri Bipinbhai Zaveri, Chairman, Shri Natraj Vithlani, Secretary, Smt. Niranjanaben Vithlani, Thalassemia Project Incharge from Jamnagar Red Cross, Minuben Rajput Principal, GSFC Primary School- Jamnagar and other dignitaries representing GSFC and Red Cross.
Dr. Prakashbhai Parmar , in his inaugural address highlighted more on Red Cross’s efforts in Screening and other interventions in reducing the Thalassemic Births in the State and stated that Red Cross Gujarat state branch is number one in the country for screening the maximum number of people for Thalassemia. He also appreciated the Officials of GSFC for supporting for such a noble cause with a significant Financial Grant to cover the Govt. Primary School students studying in 6th to 8th std. of Sikka, Jamngar.
Shri D. K. Gandhi - Vice President- GSFC, Jamnagar in his key note address emphasized more on the need for Corporate like GSFC for supporting such meaning Programmes. He appreciated Red Cross Team for their commendable contribution for reducing the backlog of Thalassemic Screening in the state.
As against 3400 students, intialy Guarat Red Cross has screened 1700 school going students.
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Camp Date College Name
NO
RM
AL
SIC
KLE
TR
AIT
IDA
othe
r he
mog
lobi
nopa
thy
MIN
OR
REP
EAT
TOTA
L
27/06/2016 KANA CHIKARI SARKARI
MADHYAMIK SHALA, LALPUR 27 0 0 0 2 0 29
27/06/2016
SARKARI MADHYAMIK SHALA, MOTI KHAVADI,
SIKKA 9 0 0 0 3 0 12
27/06/2016 SHREE D.C.C TECHNICAL
HIGH SCHOOL, SIKKA 116 2 1 0 5 0 124
28/06/2016 S.D.C.C.L. PUBLIC SCHOOL,
DIGVIIJAY GRAM, SIKKA 92 0 2 0 9 0 103
28/06/2016 SHRI DHRUVRAJ
HIGHSCHOOL, SIKKA 107 0 0 2 2 0 111
15/07/2016 G.S.F.C PRIMARY SCHOOL,
JAMNAGAR 176 5 0 1 3 0 185
18/07/2016 SHRI D.C.C TALUKA SHALA,
SIKKA 29 0 0 0 2 0 31
18/07/2016 D.C.C HINDI PRIMARY
SCHOOL, SIKKA 55 0 0 0 1 0 56
18/07/2016 D.C.C.KANYA SHALA, SIKKA 20 0 1 0 0 0 21
18/07/2016 SHRI MUNGANI PRATHMIK
KUMAR SHALA, SIKKA 49 0 0 2 7 0 58
19/07/2016 SHRI GAGVA VADI PRATHMIK
SHALA, MOTI KHAVDI 37 0 1 0 2 0 40
19/07/2016 SHRI POWER HOUSE
PRATHMIK SHALA, 8 0 0 0 1 0 9
19/07/2016 SHRI POWER HOUSE
PRATHMIK SHALA, 28 0 0 0 5 0 33
19/07/2016 SHRI PORT TALUKA SHALA,
SIKKA 52 0 0 1 3 1 57
19/07/2016 SHRI MUNGANI PRATHMIK
KANYA SHALA, SIKKA 48 1 0 0 3 0 52
19/07/2016 SHRI MUNGANI PRATHMIK
KANYA SHALA, SIKKA 2 0 0 0 0 0 2
19/07/2016 RAMNAGAR PRATHMIK
SHALA, SIKKA 47 0 1 1 0 0 49
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Camp Date College Name
NO
RM
AL
SIC
KLE
TR
AIT
IDA
othe
r he
mog
lobi
nopa
thy
MIN
OR
REP
EAT
TOTA
L
20/07/2016 SHRI KANYA SHALA-1
,(MORNING),SIKKA 43 0 0 0 2 0 45
20/07/2016 SHRI SARMAT BHUNGA
PRATHMIK SHALA, SIKKA 78 0 0 0 4 0 82
20/07/2016 SHRI SARMAT BHUNGA
PRATHMIK SHALA, SIKKA 1 0 0 0 0 0 1
20/07/2016 SHRI KANYA VIDHYALAY-1,
(AFTERNOON) SIKKA 74 0 0 0 1 0 75
20/07/2016 SHRI KANYA VIDHYALAY-2,
SIKKA 45 0 0 0 3 1 49
21/07/2016
MOTI KHAVDI KUMAR PRATHMIK SHALA, MOTI
KHAVDI 90 0 0 0 3 0 93
21/07/2016 SHRI GAGVA PRATHMIK
SHALA, JAMNAGAR 70 0 0 0 3 0 73
21/07/2016 NANI KHAVDI PRATHMIK
SHALA, NANI KHAVDI 76 1 0 1 8 0 86
21/07/2016 MOTI KHAVDI KANYA SHALA, MOTI KHAVDI 114 0 1 0 2 0 117
22/07/2016 SHRI SIKKA MADHYAMIK
SHALA 100 1 0 3 6 0 110
TOTAL 1593 10 7 11 80 2 1703
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Normal Iron
defi/Opinion Res
Other hemoglobin
sickle cell trait
Thalassemia Minor Total
1593 7 11 10 80 1703
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Action Plan for follow up Thalassemia Minor : Thalassemia Mionor individuals are being instructed not to marry another Thalassemia Minor. In other words the partner should be normal. Thalassemia is a Genetic disorder. Hence the patient is also advised to get his other family members also screened for Thalassemia.
Treatment and Guidance for Sickle Cell anaemia : Sickle cell anemia is also a hereditary disease. Every person in tribal area should be screened for sickle cell as early as possible, so that treatment can be given at proper time to improve the life style and increase longevity. While counselling the patient the counseller advises the patient to follow the following instructions :-
1. Take folic acid (5mg) tablet every day to increase blood Production capacity. 2. Painkiller (Non steroidal analgesics) on the advise of the clinicians. 3. Proper antibiotics or anti malarial drugs in case of required. 4. In case of severe dehydration parental Isotonic glucose saline should be
administered. 5. Drink 10 to 15 glasses of water every day. 6. Hard manual work is prohibited. 7. Advised to have follow up every 2-3 months by a doctor
Iron Deficiency : Anaemic patients are being provided Iron and Folic Acid tablets for three months course through Govt. Hospitals/PHC/CHC/ The said patients are being screened by Gujarat Red Cross “free of cost” as soon as the course gets over.
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