social networking tools for health

+

Social Networking Tools

Using Facebook, Ning, and More for Health

+Agenda

10:30 - Speaker introductions

10:40 – Facebook for public health

11:20 - Ning as a social networking platform.

11:50 - Ning for public health.

12:20 - General Q&A

12:30 - Lunch

+William Brown III

Doctoral Candidate in Public Health, UC Berkeley

Manager eCommunications: Health Research for Action

Researcher: Public Health Institute, Oakland Psychology Dept., University of Utah

Contact info: [email protected] http://facebook.com/

healthresearchforaction

+Courtenay Stewart

Community Advocate, Ning.com

Board Member, Kids with Dreams

Contact Info [email protected]

Ask Us! http://help.ning.com http://creators.ning.com Twitter: @ningadvocacy

+Manny Hernandez

Living with LADA (type 1.5 diabetes) since 2002

Founder: TuDiabetes,org and EsTuDiabetes.org

President: Diabetes Hands Foundation

Author: Ning For Dummies

Contact: Email: [email protected] Twitter: @askmanny Blog: www.askmanny.com

+Twitter hashtag

Use #SNT4Health to live-tweet during the workshop and share any afterthoughts.

+Facebook for Public Health

Review Social Media trends, concepts, and Public Health opportunities

Highlight Health uses of Social Networking

Discuss how to build and maintain a social media presence

Share free online tools that can be used for health advocacy

+Social Media

+Social Networks

+Social Media and Public Health Interventions

Why use Social Media? Convenient Reach large demographics Cost effective Time efficient Confidential & Safe (w/privacy settings) Youth friendly!

+Social Media and Public Health Populations

Paraplegic, Quadriplegic; Diabetes; Cancer; HIV, Youth, Pregnancy

Internet Gap Race, Able, Chronically Ill, SES, etc.

Significantly more likely to find information helpful

User generated


Hyper-targeting at massive scale Demographic and psychographic targeting

Public Health Research Cyber-ethnographic/anthropologic, Questionnaire,

Observation, Analysis

Facebook over 200 million users

GrowthAge

13-17

18-24

25-34

35+

Pew Research Center (2009). Social Media and Young Adults: Sept. 12, 2009, from http://www.pewinternet.org/Reports/2010/Social-Media-and-Young-Adults/Part-3/2-Adults-and-social-networks.aspx?r=1

+Facebook People

Identify your population Assess audience or population Access Evaluate a need

+Facebook Tools

Identify helpful tools Make use of social

information sharing Minimal restrictions

Online communication tools

+Facebook Presence

Stand out, be appealing Engage your audience in a meaningful way Update status consistently but sparingly

3-4 per week

+Facebook Users

Pay attention to your users Likes/Trends Issues/Problems

Groups/Pages


Designate point person

Setup what you can maintain


Potential impact of eHealth Large scale and targeted health delivery Promote health education and literacy Reach more people Potential for better and faster health outcomes Cost effective Decrease disparities (Cellular technologies)

But… Needs more evaluation Technology gaps and barriers

+Ning: a social networking platform

Create a social network for anything Getting started Tools for your network See it live

+Ning: getting started

+Voilà!

+Tools for your network

Forum Open the conversation

Latest Activity See what’s happening

Groups Organize your members

Feature Turn members into contributors

+Tools for your network

Ning Apps and widgets

+community.wegohealth.com

+Community.wegohealth.com

+worldkidneyday.org

+Ning for public health

+Ning for patients (users, members)

You can connect with others like you.

… people you didn’t know before (difference with Facebook)

You become empowered with new information.

You can educate others (even your med team!)

http://flickr.com/photos/madfox/29367611/

+Ning for providers (administrators)

New way to engage with constituents/patients: Blogs, forums, videos

Foster and solidify offline connections: Events, groups

Increased outreach possibilities: Sharing mechanisms Export member data

+Community Management

Listen: to your members, on Social Media.

Reward: feature member content, feature members. Reward power users.

Engage: keep content fresh, give members reasons to return.

Offline: the social network can feed from the offline experience and create opportunities for face-to-face collaboration. (TIP) read http://amysampleward.org and follow

@AmyRSWard Building Stronger Online Communities w/o Losing your Sanity

+Member Management

(TIP) Moderated membership: An additional anti-SPAM

measure Helps you keep your

network centered on core topic

Allows you to know your members better through Registration Questions

Featuring members

+Content Management

Content: (TIP) Featuring member-

generated content What member-generated

content belongs in your network?

+Develop Guidelines

You will need them in times of crisis.

… and enforce them!

TuDiabetes values (examples): Community Support Diversity & respect

http://www.flickr.com/photos/furnari/3484546075/

+Network development, outreach

Through your members: Invitations, badges, embeddable content

Through network RSS feeds TwitterFeed feeding Twitter, FB page

Through bloggers

Through Twitter: (TIP) Hootsuite let’s you schedule tweets!

Through existing offline efforts

+Managing your network, growth

There’s no auto-pilot

Recruit helpers: from among your members!

“Economies of scale” and self-policing help

Administrators Up to a few 100 members, 1 admin suffices Harder to keep up for one person past 1,000 members

Outreach: about 1-5 hours per week

+TuDiabetes

http://www.tudiabetes.org

Launched in March 2007

Mid-April 2009 (monthly stats): 14,200+ members 130,000 monthly visits

(50% are from returning visitors)

675,000 monthly pageviews

5+ minutes average session (9:04 for returning visitors)

Lots to be learned from info in Google Analytics

+Word in your Hand: video from member submissions

July 2007: Member published blog entry with word describing feeling about diabetes.

Oct. 2007: Through the forum, we collected 120+ photos.

Nov. 2007: We created a video (music also contributed by a member) for World Diabetes Day 2007.

+TuAnalyze

Ning App to be launched late April 2010

Collaboration between Diabetes Hands Foundation & Children’s Hospital Boston

Mechanism for TuDiabetes members to: Enter, track; and Optionally share their Hemoglobin A1c data

Trending potential: Healthier behaviors Regional A1c averages

+TuAnalyze Ning App

+Data stored in Indivo PCHR

+Ning App to enter, track, share A1c

+A1c data Sharing Settings

+Mapping aggregate A1c data

+California Convergence

http://CaliforniaConvergence.ning.com

Coordinated by the Partnership for the Public's Health (PHI project)

45 organizations “working together to improve food and physical activity environments”

Mid-April 2009: Nearly 600 members (100+ new

members since start of 2010) Policy streams communication hub Conference to encourage site use

+Public Health Policy meets Ning

Each button on the home page links to a Group page

Slideshows to share photos from events

Live blogging as events unfold

+Questions???

+Thank you!!

Enjoy lunch!

social networking tools for health

Health & Medicine