atsi professionals booklet
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Cancer Education Program 2011
Who are the ATSI Professionals? Aboriginal Health Workers Aboriginal Interpreters Aboriginal Liaison Officers Aboriginal Health Promotion Officers Healthy Lifestyle Officers Family Support Workers Oral Health Strong Women Workers Tobacco Workers Chronic Disease Coordinators
Recall Support Officers
Cancer Education Learning Goals What is cancer? How to prevent cancer. Learn how to detect cancer early. Learn more about cancer screening. Workshop with other ATSI Professionals. Explore barriers to treatment. Learn about cancer treatments; Surgery Chemotherapy Radiotherapy
Learn about Supportive care, Palliative Care and PEPA. Share survivor stories.
Day one at Barbara James House accommodation for cancer patients and their families.
Jill Naylor from the Cancer Council NT talks about how cells can change into cancer.
What are cells?The beach is made of millions of tiny grains of sand like our bodies are made of millions of cells. Sometimes these tiny cells get sick and start to grow very quickly. They start taking over good cells and like a weed, they can start spreading all over the body.
Phone 13 11 20
Phone 13 11 20
Phone 13 11 20
After the Cancer Council NT presentation, we break into small talking groups to discuss the barriers to cancer treatment.
Margaret OBrien from Danila Dilba summarises her small group discussion with everyone.
Boyan Yunupingu talks about barriers to cancer treatment for remote Indigenous patients.
Cath Hampton a Chronic Disease Coordinator from Miwatj talks about barriers for remote cancer patients.
Cath Hampton from Miwatj
Barriers to cancer treatment Remoteness No Escort Not enough Specialists Cultural training for non-Indigenous Different priorities between cultures Cultural safety Confusing health messages Dont know about support services Scary environment Language barriers Dont want to tell family Shame or scared Confidentiality in small community Feel normal Im not sick! Loss of control Not enough time to break down concepts
Good news stories Alan Walker Cancer Care Centre in Darwin means patients get treatment closer to home. Barbara James House culturally safe accommodation for cancer patients and their carers. Not everyone dies of cancer, finding cancer early is important to survival. Mens and Women Checks are important. Now we know about the Cancer Council NT and the Nurses that can support cancer patients in Darwin. Cancer Council NT Cancer Nurses Jill or Marg on (08) 8927 4888 during the week or 13 11 20 after hours.
Bernie Shields sums up the day
Boyan Yunupingu reflects on what was learnt yesterday.
Doctor Phil Carson talks about surgery to cut out cancer.
Doctor Carson shows a Mammogram image of a womans breast, showing a cancer tumour. Women aged 50 and over should have a mammogram every two years. For an appointment or to find your nearest service call the friendly staff at Breastscreen NT.
BreastScreen NT 13 20 50.
Doctor Carson shows a male with a breast cancer tumour. This tumour started off small inside the body and could have been removed by surgery. This cancer tumour became so big that it came out of the body through the skin. Finding cancer early is important to survival. Why didnt this man come to the clinic earlier?
Cancer is like a treeCancer starts small like a seed and can grow anywhere in the body. Some cancer grows fast like a Carpentaria Palm, Soap tree or Grevillia. These are called aggressive cancers. Others grow slow like a Cycad. Sometimes you can see a cancer tumour but like a tree, the tumour may send down roots. When we do surgery and cut out the cancer we need to make sure we cut out all the roots or the cancer will grow again.
Sometimes the cancer tumour is like a tree and sends off seeds that can travel and spread throughout the body. Surgery cuts out the cancer but chemotherapy and radiation make sure all the cancer roots and seeds are destroyed.
Dr Phils Tree
The Alan Walker Cancer Care Centre in Darwin gives Chemotherapy and Radiotherapy treatments to cancer patients from across the Northern Territory. The good news is that most patients can be treated in the Northern Territory, treatments dont take all day and the staff at the cancer centre are very friendly and caring.
Alan Walker Cancer Care Centre (08) 8944 8220
Resources in languageElizabeth Presley an Aboriginal Liaison Officer from the Alice Springs Hospital introduces Waiting, Going to Hospital, Coming Home Strong DVD and flipbook which helps ATSI Professionals get patients ready to go into to wn for surgery. The Looking from a new perspective to create a bright future DVD, asks nonIndigenous staff to consider the challenges for remote people with English as a second language. In this DVD all the Doctors and Nurses are Indigenous and speak in language to the non-Indigenous patient who becomes quite distressed until the Interpreter arrives.
Available in languageAnindilyakwa Burrada Murrinh-Patha Djambarrpuyngu Arrente Walpiri
To order a DVD contact the Elective Surgery Project Officer on (08) 8999 2950.
Pitjantjatjara Gurindji Waramungu Kriol English
Resources in languageA Cancer Journey DVD is available in five regional languages including; Yolngu-Matha Murrinh-Patha Walpiri Pitjantjatjatjara Kriol Watch this DVD in language to help you understand the cancer journey for a patient and their family. Show the Cancer Journey DVD to cancer patients and their family.
What is our good news story? Mens and Womens Health Checks are important. Know your body and if something changes go to the clinic. Most cancer patients can be treated in Darwin. The Cancer Council can go to specialist appointments with cancer patients in Darwin.
Cancer Council NTCancer Nurses Jill or Marg on (08) 8927 4888 during the week or 13 11 20 after hours.
Call the Cancer Council in Darwin on (08) 8927 4888 and ask a Nurse to come to your Specialist appointment. They will help you to get the right story.
Territory Palliative CareThe Palliative Care team can help patients, their carers and families to finish up in the right way.
Territory Palliative CareTop End 8922 6761 8922 8888 After hours Central 8951 6762 8951 7777After hours
Call Aboriginal Education Officer Cindy Paardekooper on 8922 7679 for more information.
Glen Gurruwiwi works for Miwatj as a Tobacco Worker, an important job as smoking is a leading cause of cancer.
After lunch the women settle down for a Survivorship Session sharing their cancer stories and asking questions of the Cancer Council Nurses.
Marrapalawuy Marika from Yirrkala tells her cancer survival story and how her family were very strong for her. She was happy to see Doctor Carson that morning, as he performed surgery on her many years ago.
There is no shame in talking about cancer. Sharing these stories makes us all stronger.
The Cancer Journey can be a long and difficult one but remembering your family will keep you strong. The Cancer Council are there to help patients and their families get the full story and make good decisions. The Cancer Council nurses can come to specialist appointments with you in Darwin.
Cancer Council NT (08) 8927 4888
Karen Duxfield from Katherine West Health Board battled cancer ten years ago and this experience inspired her to become an Aboriginal Health Worker.
Karen grew up speaking English as a first language but still found the cancer journey very stressful. She had to travel to Adelaide, leaving her family behind and worrying about her children. Karen found communicating with the Doctors and Nurses very difficult as they didnt seem to listen or understand. At one point she was mistakenly placed in a Childrens Ward! Karen survived cancer and found a new strength and determination. She became an Aboriginal Health Worker so nobody in her community would have to go through what she did. Sharing survivor stories makes us all stronger!
Our good news storyBernie sums up the day, reminding everyone that there are many services out there to support patients, their carers and families. The Cancer Journey can be a difficult one but Marrapalawuy and Karen show that you can survive and come back even stronger. The Alan Walker Cancer Care Centre in Darwin works hard to provide a culturally safe place for Aboriginal patients to receive lifesaving Radiotherapy and Chemotherapy treatments closer to home.
Alan Walker Cancer Care CentreThe AWCCC is on the grounds of the Royal Darwin Hospital. The friendly staff are dedicated to providing the best cancer treatment in a safe and comfortable location.Phone 8944 8220 or visit www.ntro.com.au
The friendly team at the Alan Walker Cancer Care Centre
Giam Kar, the Manager of the Alan Walker Cancer Care Centre, shows the ATSI Professionals around the Chemotherapy suite.
When having radiotherapy it is important to stay very still so the radiation only goes to the cancer and not to other nearby body parts, like eyes or tongue. Bonnie Godyn shows everyone how to make a mask.
Brave Theresa Haidle a Katherine ALO agrees to help make the face mask.
Bonnie wets the plastic which makes it soft while Giam helps get Theresa comfortable. Marrapalawuy keeps a close eye on the action.
The wet warm mask is stretched over the face and fixed to the table so the patient stays still. Lets hope Theresa doesnt get an itch!
Ellen Gapany from the Aboriginal Interpreter Service feels the plastic as it cools. Oscar Garawirrtja a Tobacco Worker looks on.
The soft cold gloves help the plastic to cool quicker and