list of support meetings & phone/email support usa and · pdf filelist of support meetings &...

ListofSupportMeetings&phone/emailsupport

USAandCanada

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USA ALLSTATES

THEMULTIPLESYSTEMATROPHY(MSA)COALITION(formerlytheShy-Drager/MSASupportGroup)9935-DReaRoad#212Charlotte,NC28277USAwww.MultipleSystemAtrophy.orgTollfree:1-866-737-4999or1-866-737-5999UnitedtoDefeatMULTIPLESYTEMATROPHY

TheMultipleSystemAtrophy(MSA)CoalitionTMisa501(c)3charitableorganization(EIN:74-2926378)devotedtoafourpillarmission:SupportingpatientsandcaregiversaffectedbymultiplesystematrophyEducatingpatients,caregiversandhealthcareprofessionalsFinancingandencouragingmeaningfulresearchtowardidentifyingacauseandfindingacureforMSAAdvocatingforissuesimportanttotheMSAcommunity,includingcreatinggreaterawareness

Information:WeoffertwotollfreesupportlinesstaffedbyformerMSAcaregivers.Contact: VeraJames(CAUSA) 1-866-737-5999 vjames@msacoalition.org JudyBiedenharnRN(OHUSA)1-866-737-4999 jbiedenharn@msacoalition.orgMeetingTime(s):WehostanannualconferenceforMSApatientsandfamiliesinadifferentUScityeachyear,usuallySeptemberorOctobertimeframe.Pleasewatchforannouncementsonourwebsitewww.MultipleSystemAtrophy.orgDVDsofpastconferencesareavailabletoorderOthercontacts: CarolLanger(MAUSA) clanger@msacoalition.org DonCrouse(NCUSA) dcrouse@msacoalition.org PamBower(NSCANADA) pbower@msacoalition.org

LarryKellerman(IAUSA)lkellerman@msacoalition.orgPhilFortier(MIUSA)pfortier@msacoalition.orgTomLooney(NCUSA)tlooney@msacoalition.orgCynthiaRoemer(NJUSA)croemer@msacoalition.org

ListofSupportMeetings&phone/emailsupport

USAandCanada

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Note: Every effort is made to ensure meeting times & dates are accurate, however we do suggest that you contact the facilitator first before attending a meeting for the first time. ALABAMA

CHICKASAWInformation:NoMeetingPhoneSupportOnlyContact:JanieceNaberMartindale251-300-1196 janiecenjim@gmail.com

ARKANSAS

LITTLEROCKInformation:ForanyoneaffectedbyPSP,CBDorMSALocation:AlzheimersArkansas201MarkhamCenterDrive,LittleRock,AR72205(askfrontdeskforroomdetails,501-224-0021MeetingTime:4thThursdayofeverymonthsfrom1:00pm-2:30pmFacilitator:RandiHaley870-703-6417randirhaley@yahoo.com

ARIZONA

TEMPEInformation:NoMeetingPhoneSupportOnlyContact: JeanSuico 480-839-3794 Suicoaz@aol.com

GILBERTInformation:NoMeetingContact:TandyKing Facebook:www.facebook.com/kingchtata

ListofSupportMeetings&phone/emailsupport

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CALIFORNIABakersfieldInformation:AnyoneaffectedbyPSP,CBD,MSALocation:Dennysrestaurant,BanquetRoom,8710RosedaleHighway,Bakersfield,CAMeetingTime:1stWednesdayofeverymonthfrom1:00pm-3:00pmFacilitator:CathyNichols661-829-5552catman17rln@aol.comBURLINGAME

Information:NoMeetingPhoneSupportOnlyContact: CandyWelsh 650-218-5858 cortez1us@yahoo.com

FOUNTAINVALLEY

Information:ForfamilymembersandcaregiversdealingwithAtypicalPD+DisordersLocation: OrangecoastMemorialMedicalCenter,ClassroomC,9920TalbertAve FountainValley,CA92708Facilitator: JustinAquines 714-907-0074 atypicalpdgroup@gmail.comFREMONTInformation:Non-profitforMSACureMSAKathyShihMemorialFoundationP.O.Box15088Fremont,CA94539USAwww.curemsa.org

Contact:LilyShih(ExecutiveDirector) 510-226-0453 lily@curemsa.orgFREMONTInformation:NoMeetingPhoneSupportOnlyContact: SandyBierman 510-656-6897 sandybierman@yahoo.com LilyShih 510-226-0453 liyshih1@comcast.netGOLETAInformation:NoMeetingPhoneSupportOnlyafter11amESTContact: GeorgeRelles 805-683-4829 grelles@cox.net

ListofSupportMeetings&phone/emailsupport

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IRVINEInformation:Forpatients,caregiversandfamiliesaffectedbyParkinsons,PSP,CBD,MSAandOtheratypicalParkinsoniandisorders.Location:AtriaWoodbridgeAssistedLiving,1Witherspoon,Irvine,CA92604MeetingTime:EveryTuesday10:30am-12:00pmLocation:LakeviewSeniorCenter,20LakeRoad,Irvine,CA92604Meetingtime:3rdWednesdayofeverymonthfrom10:30am-12:00pmFacilitator:DonPerdue949-552-0465djperdue@cox.net

LIVERMOREInformation:NoMeetingPhoneSupportOnlyContact:CarolDutcher 925-998-3656 califalck@gmail.com

LOSANGELESUCLAinformation:Forpatients,families&friendsaffectedbyPSP,CBD,MSAandotherDisodersLocation:RonaldReaganUCLAMedicalCenter757WestwoodPlaza.LosAngeles,CARoom3102(roommayvarypleasecallahead)toRSVPcontactdwest@mednet.ucla.eduorcall310-206-2154MeetingTime:1stFridayofeverymonthfrom2:00pm-4:00pmFacilitator:LorettaMazorraRN,NP,MN,MAanlom@sbcglobal.net

MODESTO

Information:NoMeetingContact: JaneicePartridge elipartridge@att.netNORTHERN/SANMATEOInformation:Neurodegenerativemovementdisordergroup(MSAPSP,CBD,etc.)caregivers

only.Contactfacilitatorformoreinfo.Location: Mimi'sCafe,2208BridgepointeParkway,SanMateo,CA94404MeetingTime(s):Everysixweeks(callore-mailforschedule)from5:00pm-7:00pmFacilitator: RobinRiddle650-814-0848robin.riddle@brainsupportnetwork.org

SACAMENTOInformation:ForpatientsandcaregiverdealingwithPSP,CBD,MSAandParkinsonsLocation:ShrinersHospitalontheUCDavisMedicalCenterCampus,7thFloorBoardRoom,2425StocktonBlvd,Sacramento,CAMeetingTime4thWednesdayofeverymonth7:00pm-9:00pmFacilitator:KristenKrueger916-205-6456ftdkristenkrueger@gmail.com

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SANDIEGOInformation:Forpatients/caregiversdealingwithAtypicalParkinsonianDisorderslikeMSA,PSP,

CBD,OPCA,SND,SDSLocation: ParkinsonsAssociation,8555AeroDrive,Suite308,SanDiego,CAMeetingTime(s):3rdThursdayofeverymonthfrom1:00pm-3:00pmFacilitator: Kathryn Krug kkrug@parkinsonassociation.org

SANDIEGO

Information:ForONLYcaregiversdealingwithAtypicalParkinsonDisorders (MSA,PSP,CBD,OPCA)Location: HolyAngelsByzantineCatholicChurch,2235GalahadRoad,SanDiego,CA92123MeetingTime(s):EveryothermonthonthefirstWednesdayfrom11:00am-1:00pmFacilitator:BethRossellebeth.rosselle@gmail.com, 760) 814-8426

SANTABARBARAInformation:NoMeetingPhoneSupportOnly

Contact: SuzanneGrimmesey-Kirk805-692-4010 suzkirk@co.santa-barbara.ca.us

COLORADO

DENVER/ENGLEWOODInformation:Neurodegenerativemovementdisordergroup(MSA,PSP,CBD)Location: JohnsonAdultDayCenter,3444SouthEmersonSt.,Englewood,CO80113

MeetingTime(s):2ndFridayofeachmonthfrom10:00am-12:00pmforPatients/Caregivers4thFridayofeachmonthfrom10:00am-12:00pmforCaregiversonly

Facilitator: HelennFranzgrote 303-789-9900 jhfranzgrote@comcast.net

JOHNSTOWN/LOVELANDInformation:MSA,PSP,CBDLocation: NorthernColoradoRehabilitationHospital4401UnionStreet Johnstown/Loveland,CO80528MeetingTime:1stFridayofeachmonthfrom1:00pm-3:00pm(NoDec/Janmeeting)Facilitator: RuthFletcher-Carter970-532-2681 chantillylace3@usa.net

ListofSupportMeetings&phone/emailsupport

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FLORIDA

Central/OrlandoAreaInformation:Forpatients/caregivers/familiesaffectedbyPSP,CBD,MSAandrelateddiseasesLocations&Meetingtimes:Onceamonth(contactfacilitatorformoreinformation)Facilitator:JimPierce407-756-0184or407-880-3694jim.pierce@gmail.com

PORTORANGEInformation:NoMeetingPhoneSupportOnlyContact: JimGrant 386-334-2691 jimboindc@yahoo.com

SOUTHEAST/DEERFIELDBEACH

Information:Forpatients/caregivers/familiesaffectedbyMSA,PSP,CBDandrelateddiseasesLocation: NorthBrowardMedicalCenter,201E.SampleRoad,DeerfieldBeach,FL33064,1st

Floor,Classrooms7&8(fordirectionsonly:954-941-8300)MeetingTime(s):ContactFacilitatorformoreinfoFacilitator: PaulFreeman 305-970-0805 freemanph@aol.comSOUTHWEST/NAPLESInformation:Forpatients/caregivers/familiesaffectedbyMSA,PSP,CBDandrelateddiseasesLocation: ManorCareatLelyPalms,6135RattlesnakeHammockRoad,Naples,FL34113MeetingTime(s):2ndSaturdayofeachmonthfrom2:00pm-3:30pmFacilitator: CindyMacDonald 239-353-3960/239-404-4429hotrdh@hotmail.com

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GEORGIA

ATLANTAInformation:ForcarepartnersonlyofthoselivingwithAtypicalParkinsonisms,PSP,CBDLocation:EmoryBrainHealthCenter.12ExecutiveParkDr.Room331CAtlantic,GAMeetingTime(s):2ndSaturdayofeachmonth(exceptMay)from10:00am11:30amFacilitator: LynnRoss 404-712-7091 slross@emory.eduELLIJAY

Contact:PaulaDavis 706-669-1978 jimandpaula@ellijay.com

HAWAIIHonoluluInformation:ForanyonedealingwithPSP,CBD,MSAorAtypicalParkinsonsLocation:WaikikiBanyan201OhuaAve,Honolulu,HI96815MeetingTimes:2ndSaturdayofeachmonthfrom10:00am-11:30amFacilitatior:OzzieBoyle206-793-8648ozzieboyle@gmail.comILLINOIS

ORLANDPARKInformation:NoMeetingPhoneSupportOnlyContact: Arthur(Ed)Wall 708-478-1236 aepwall@gmail.com

CHICAGOAREAInformation:MSASupportMeetingforPatients/Caregivers

Meetinginformation:Quarterlymeetings.TimeandplaceannouncedonFacebookNECentralUSAPageorContactFacilitator.Facilitator:JohnStandley 815-403-2221 johnstandley@Verizon.net

NORTHWESTERNAREAInformation:ForthosewithPDandothermovementdisordersLocation:NorthwesternMemorialHospital251EastHuron,FeinbergPavilion,3rdFloorRoomA(freeparkingatHuron/St.Clair)MeetingTime:4thThursdayofeverymonthfrom1:00-2:00pmFacilitator:PamelaPalmentera312-503-4397ppalment@nmff.org

ListofSupportMeetings&phone/emailsupport

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INDIANAINDIANAPOLIS

Information:NoMeetingPhoneSupportOnlyContact: GaryHuddleston 317-501-4899 garylovesjoyce@yahoo.comKOKOMOInformation:ForMSAPatients/caregiversContact:RenateSharp765-453