list of support meetings & phone/email support usa and canada

ListofSupportMeetings&phone/emailsupport

USAandCanada

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[email protected]

USA ALLSTATES

THEMULTIPLESYSTEMATROPHY(MSA)COALITION(formerlytheShy-Drager/MSASupportGroup)9935-DReaRoad#212Charlotte,NC28277USAwww.MultipleSystemAtrophy.orgTollfree:1-866-737-4999or1-866-737-5999“UnitedtoDefeatMULTIPLESYTEMATROPHY”

TheMultipleSystemAtrophy(MSA)CoalitionTMisa501(c)3charitableorganization(EIN:74-2926378)devotedtoafourpillarmission:•Supportingpatientsandcaregiversaffectedbymultiplesystematrophy•Educatingpatients,caregiversandhealthcareprofessionals•FinancingandencouragingmeaningfulresearchtowardidentifyingacauseandfindingacureforMSA•AdvocatingforissuesimportanttotheMSAcommunity,includingcreatinggreaterawareness

Information:WeoffertwotollfreesupportlinesstaffedbyformerMSAcaregivers.Contact: VeraJames(CAUSA) 1-866-737-5999 [email protected] JudyBiedenharnRN(OHUSA)1-866-737-4999 [email protected](s):WehostanannualconferenceforMSApatientsandfamiliesinadifferentUScityeachyear,usuallySeptemberorOctobertimeframe.Pleasewatchforannouncementsonourwebsitewww.MultipleSystemAtrophy.orgDVD’sofpastconferencesareavailabletoorderOthercontacts: CarolLanger(MAUSA) [email protected] DonCrouse(NCUSA) [email protected] PamBower(NSCANADA) [email protected]

LarryKellerman(IAUSA)[email protected](MIUSA)[email protected](NCUSA)[email protected](NJUSA)[email protected]


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[email protected]

Note: Every effort is made to ensure meeting times & dates are accurate, however we do suggest that you contact the facilitator first before attending a meeting for the first time. ALABAMA

CHICKASAWInformation:NoMeetingPhoneSupportOnlyContact:JanieceNaberMartindale251-300-1196 [email protected]

ARKANSAS

LITTLEROCKInformation:ForanyoneaffectedbyPSP,CBDorMSALocation:Alzheimer’sArkansas201MarkhamCenterDrive,LittleRock,AR72205(askfrontdeskforroomdetails,501-224-0021MeetingTime:4thThursdayofeverymonthsfrom1:00pm-2:30pmFacilitator:[email protected]

ARIZONA

TEMPEInformation:NoMeetingPhoneSupportOnlyContact: JeanSuico 480-839-3794 [email protected]

GILBERTInformation:NoMeetingContact:TandyKing Facebook:www.facebook.com/kingchtata


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[email protected]

CALIFORNIABakersfieldInformation:AnyoneaffectedbyPSP,CBD,MSALocation:Denny’srestaurant,BanquetRoom,8710RosedaleHighway,Bakersfield,CAMeetingTime:1stWednesdayofeverymonthfrom1:00pm-3:00pmFacilitator:[email protected]

Information:NoMeetingPhoneSupportOnlyContact: CandyWelsh 650-218-5858 [email protected]

FOUNTAINVALLEY

Information:ForfamilymembersandcaregiversdealingwithAtypicalPD+DisordersLocation: OrangecoastMemorialMedicalCenter,ClassroomC,9920TalbertAve FountainValley,CA92708Facilitator: JustinAquines 714-907-0074 [email protected]:Non-profitforMSACureMSA–KathyShihMemorialFoundationP.O.Box15088Fremont,CA94539USAwww.curemsa.org

Contact:LilyShih(ExecutiveDirector) 510-226-0453 [email protected]:NoMeetingPhoneSupportOnlyContact: SandyBierman 510-656-6897 [email protected] LilyShih 510-226-0453 [email protected]:NoMeetingPhoneSupportOnlyafter11amESTContact: GeorgeRelles 805-683-4829 [email protected]


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[email protected]

IRVINEInformation:Forpatients,caregiversandfamiliesaffectedbyParkinson’s,PSP,CBD,MSAandOtheratypicalParkinsoniandisorders.Location:AtriaWoodbridgeAssistedLiving,1Witherspoon,Irvine,CA92604MeetingTime:EveryTuesday10:30am-12:00pmLocation:LakeviewSeniorCenter,20LakeRoad,Irvine,CA92604Meetingtime:3rdWednesdayofeverymonthfrom10:30am-12:00pmFacilitator:[email protected]

LIVERMOREInformation:NoMeetingPhoneSupportOnlyContact:CarolDutcher 925-998-3656 [email protected]

LOSANGELESUCLAinformation:Forpatients,families&friendsaffectedbyPSP,CBD,MSAandotherDisodersLocation:RonaldReaganUCLAMedicalCenter757WestwoodPlaza.LosAngeles,CARoom3102(roommayvarypleasecallahead)[email protected]:1stFridayofeverymonthfrom2:00pm-4:00pmFacilitator:LorettaMazorraRN,NP,MN,[email protected]

MODESTO

Information:NoMeetingContact: JaneicePartridge [email protected]/SANMATEOInformation:Neurodegenerativemovementdisordergroup(MSAPSP,CBD,etc.)–caregivers

only.Contactfacilitatorformoreinfo.Location: Mimi'sCafe,2208BridgepointeParkway,SanMateo,CA94404MeetingTime(s):Everysixweeks(callore-mailforschedule)from5:00pm-7:00pmFacilitator: [email protected]

SACAMENTOInformation:ForpatientsandcaregiverdealingwithPSP,CBD,MSAandParkinson’sLocation:Shriner’sHospitalontheUCDavisMedicalCenterCampus,7thFloorBoardRoom,2425StocktonBlvd,Sacramento,CAMeetingTime4thWednesdayofeverymonth7:00pm-9:00pmFacilitator:[email protected]


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[email protected]

SANDIEGOInformation:Forpatients/caregiversdealingwithAtypicalParkinsonianDisorderslikeMSA,PSP,

CBD,OPCA,SND,SDSLocation: Parkinson’sAssociation,8555AeroDrive,Suite308,SanDiego,CAMeetingTime(s):3rdThursdayofeverymonthfrom1:00pm-3:00pmFacilitator: Kathryn Krug [email protected]

SANDIEGO

Information:ForONLYcaregiversdealingwithAtypicalParkinsonDisorders (MSA,PSP,CBD,OPCA)Location: HolyAngelsByzantineCatholicChurch,2235GalahadRoad,SanDiego,CA92123MeetingTime(s):EveryothermonthonthefirstWednesdayfrom11:00am-1:00pmFacilitator:[email protected], 760) 814-8426

SANTABARBARAInformation:NoMeetingPhoneSupportOnly

Contact: SuzanneGrimmesey-Kirk805-692-4010 [email protected]

COLORADO

DENVER/ENGLEWOODInformation:Neurodegenerativemovementdisordergroup(MSA,PSP,CBD)Location: JohnsonAdultDayCenter,3444SouthEmersonSt.,Englewood,CO80113

MeetingTime(s):2ndFridayofeachmonthfrom10:00am-12:00pmforPatients/Caregivers4thFridayofeachmonthfrom10:00am-12:00pmforCaregiversonly

Facilitator: HelennFranzgrote 303-789-9900 [email protected]

JOHNSTOWN/LOVELANDInformation:MSA,PSP,CBDLocation: NorthernColoradoRehabilitationHospital4401UnionStreet Johnstown/Loveland,CO80528MeetingTime:1stFridayofeachmonthfrom1:00pm-3:00pm(NoDec/Janmeeting)Facilitator: RuthFletcher-Carter970-532-2681 [email protected]


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[email protected]

FLORIDA

Central/OrlandoAreaInformation:Forpatients/caregivers/familiesaffectedbyPSP,CBD,MSAandrelateddiseasesLocations&Meetingtimes:Onceamonth(contactfacilitatorformoreinformation)Facilitator:[email protected]

PORTORANGEInformation:NoMeetingPhoneSupportOnlyContact: JimGrant 386-334-2691 [email protected]

SOUTHEAST/DEERFIELDBEACH

Information:Forpatients/caregivers/familiesaffectedbyMSA,PSP,CBDandrelateddiseasesLocation: NorthBrowardMedicalCenter,201E.SampleRoad,DeerfieldBeach,FL33064,1st

Floor,Classrooms7&8(fordirectionsonly:954-941-8300)MeetingTime(s):ContactFacilitatorformoreinfoFacilitator: PaulFreeman 305-970-0805 [email protected]/NAPLESInformation:Forpatients/caregivers/familiesaffectedbyMSA,PSP,CBDandrelateddiseasesLocation: ManorCareatLelyPalms,6135RattlesnakeHammockRoad,Naples,FL34113MeetingTime(s):2ndSaturdayofeachmonthfrom2:00pm-3:30pmFacilitator: CindyMacDonald 239-353-3960/[email protected]


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[email protected]

GEORGIA

ATLANTAInformation:ForcarepartnersonlyofthoselivingwithAtypicalParkinsonism’s,PSP,CBDLocation:EmoryBrainHealthCenter.12ExecutiveParkDr.Room331CAtlantic,GAMeetingTime(s):2ndSaturdayofeachmonth(exceptMay)from10:00am–11:30amFacilitator: LynnRoss 404-712-7091 [email protected]

Contact:PaulaDavis 706-669-1978 [email protected]

HAWAIIHonoluluInformation:ForanyonedealingwithPSP,CBD,MSAorAtypicalParkinson’sLocation:WaikikiBanyan201OhuaAve,Honolulu,HI96815MeetingTimes:2ndSaturdayofeachmonthfrom10:00am-11:30amFacilitatior:[email protected]

ORLANDPARKInformation:NoMeetingPhoneSupportOnlyContact: Arthur(Ed)Wall 708-478-1236 [email protected]

CHICAGOAREAInformation:MSASupportMeetingforPatients/Caregivers

Meetinginformation:Quarterlymeetings.TimeandplaceannouncedonFacebookNECentralUSAPageorContactFacilitator.Facilitator:JohnStandley 815-403-2221 [email protected]

NORTHWESTERNAREAInformation:ForthosewithPDandothermovementdisordersLocation:NorthwesternMemorialHospital251EastHuron,FeinbergPavilion,3rdFloorRoomA(freeparkingatHuron/St.Clair)MeetingTime:4thThursdayofeverymonthfrom1:00-2:00pmFacilitator:[email protected]


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[email protected]

INDIANAINDIANAPOLIS

Information:NoMeetingPhoneSupportOnlyContact: GaryHuddleston 317-501-4899 [email protected]:ForMSAPatients/caregiversContact:[email protected] [email protected] FrancieHutton765-453-9020 [email protected]

WARSAWInformation:NoMeetingPhoneSupportOnlyContact:TerryShepherd 574-267-1566 [email protected]

IOWA

WESTERNIOWAAREAInformation:NoMeetingPhoneSupportOnlyContact: KerynPaul 402-813-7315 [email protected]

KENTUCKY

LOUISVILLEInformation:AtypicalParkinsonianDisorders(MSA,PSP,CBD)Location:ParkisnonCenter,315TowneparkCircle,Suite100MeetingTime:2ndTuesdayofeverymonth6:30pmFacilitator: DanHeins 502-216-4563 [email protected]


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[email protected]

LOUISANA

NEWORLEANSInformation:Patients/families/caregiverswithPSP/CBD/MSA&relateddiseasesLocation: LittleFarmsUnitedChurchofChrist,135SauveRoad,RiverRidge,LA70123MeetingTime(s):3rdThursdayofeachmonthfrom7:00pm-8:00pmFacilitator: ShielaGrose 504-737-2614 [email protected]:NoMeetingContact:GloriaChaney [email protected]

MAINE

FALMOUTHInformation:Forpatients/caregiversdealingwithAtypicalParkinsonianDisorderslikePSP,CBD,MSA,OPCA,SND,SDSLocation: MaineParkinson’sI&RCenter,5BucknamRoad,Falmouth,MEMeetingTime(s):OneSundayperquarterfrom1:00pm-3:00pm.ContactFacilitatorforinfo.Facilitator: BarbiJohnson [email protected]

MARYLAND

ANNEARUNDELCOUNTYInformation:Forpatients/caregiversaffectedbyPSP,CBD&otherneurodegenerativediseasesLocation: KrisLeighAssistedLivingFacility,831RitchieHighway,SevernaPark,MDMeetingTime(s):3rdSaturdayofeverymonthfrom1:00pm–3:00pmFacilitator:[email protected]

BALTIMOREInformation:ForcaregiversaffectbyNeurodegenerativediseasesLocation:JohnsHopkinsatGreenspringstation,10753FallsRoad,PavillionII,CaféConferenceRoom,Lutherville,MD21093MeetingTime1stThursdayofeverymonthfrom10:00am-12:00pmFacilitator: BeckyDunlop,RN 410-955-8795 [email protected]


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[email protected]

BELAIRInformation:ForcaregiveraffectedbyMSA,PSP,CBD&otherneurodegenerativediseasesLocation: WilliamMcFaulActivitiesCenter525WestMcPhailRoad,BelAir,MD21014MeetingTimes:4thThursdayofeverymonthfrom2pm-4pmFacilitatior:BaileyVernon,RN [email protected]:forcaregiversaffectedbyParkinson’sPSP,CBD,MSAandotherNeurodiseasesLocation:EasternShoreSmileSolutions29267EricksonDr.Easton,MD21601MeetingTime:3rdWednesdayofeverymonthfrom3:30pm-5:00pmFacilitator:[email protected]:NoMeetingPhoneSupportOnlyContact:ShirleySnyder 410-259-1354 [email protected]

PRINCEFREDERICK

Information:NoMeetingPhoneSupportOnlyContact: JamesTaylor 410-535-0780 [email protected]

MASSACHUSETTSBOSTON

Information:ForMSAPatients/CaregiversLocation: BostonUniversityMedicalCenter;88EastNewtonStreet,2ndfloor,ConfRmC,Boston,MAMeetingTime:quarterlyFacilitator: MelissaDiggin 339-927-5468 [email protected]:CarolLanger 617-93603053 [email protected]

GARDNERInformation:ForMSApatients/caregiversLocation: HeywoodHospitalinGardner,MAMeetingTime:lastWednesdayofeachmonthat2PMFacilitator: MarybethKumph978-630-643CarlBillington 987-632-9682


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[email protected]

MICHIGAN

DETROITInformation:NonProfitforMSA

DefeatMSAJosephGFortierFoundation29924JeffersonAveSt.ClairShores,MI48080USAjgf.foundation.msa@gmail.comwww.movingtodayformsa.orgwww.facebook.com/JGFFoundationForMSAWemovetoday,inserviceoftomorrow!

Contact:PhilipMFortier(Co-Director)586246-1475(cell/vm)[email protected]

ALMAInformation:Forpatients,caregivers,andfamiliesdealingwithPSP,CBD,MSAandotheratypicalParkinsoniandisordersLocation:MasonicPathways,1200WarwickDrive,Alma,Michigan,DiogConferenceCenter(belowchapel)MeetingTime(s):4thWednesdayofeverymonthFacilitators:RobbieandKeithVirgo 989-681-6321 [email protected]

DELTON

Information:Forpatients,caregiversandfamilieswithPSP,CBD,MSAandotheratypicalparkinsonian

location:1137FloriaDrive,Delton,MI49046(parkinchurchparkinglot)MeetingTime:2ndSaturdayofeachmonthfrom2:00pm-3:30pmbeginningApril12,2014Facilitator:[email protected]


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[email protected]

MINNESOTAMINNEAPOLI

Information:ForpatientsandfamiliesdealingwithPSP,CBD,MSA

Location:Struther'sParkinson'sCenter6701CountryClubDrive,GoldenValley,MN55427

MeetingTime:2ndWednesdayofeverymonthfrom1:00pm-2:30pm Facilitator:JoanHlas952-993-6650 MONTANA

KALISPELLInformation:NoMeetingPhoneSupportOnlyContact: GaryCuthbertson 406-257-4392 [email protected]

NEBRASKA

OMAHAInformation:NoMeetingPhoneSupportOnlyContact: KerynPaul 402-813-7315 [email protected]

LINCOLNInformation:ForcaregiverandfamiliesdealingwithPSP,CBD,MSAandothersAtypicalPD Location:5901N.27thStreet,Lincoln,NE MeetingTime:4thTuesdayofeverymonthfrom6:30pm-8:30pm(beginningJan28,2014) Facilitator:[email protected]

LASVEGASInformation:NoMeetingPhoneSupportOnlyContact: MartyKoppel 702-914-8041 pleaseleavemessageifnoanswer


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[email protected]

NEWHAMPSHIRE

CONCORDInformation:NoMeetingContact:GayleGardner [email protected]

NEWJERSEY

TRI-STATEAREAInformation:Nonprofitsupportgroupcoveringthetri-stateareaMSANJP.O.Box773Howell,NJ07731www.msanj.orgContact: CynthiaRoemer [email protected]

CAPEMAYInformation:ForcaregiverdealingwithAtypicalParkinson+disordersLocation: CapeRegionalMedicalCenter,2StoneHarborBlvd,CapeMayCourtHouse,NewJersey(exit10offtheGardenStateParkway,MaruchiRoom(firstfloorofmedicalcenter)MeetingTime:1stTuesdayofeverymonth1:00pm-3:00pmFacilitator: BonnieKratzer 609-463-4043 [email protected](5minutesfromPhillyand30fromTrenton)Information:NoMeetingPhoneSupportOnlyContact:RachelZambrano 856-316-6742 [email protected]

SUMMIT

INFORMATION:ForanyoneaffectedbyMSA

Location:OverlookMedicalCenter,ConferenceRoom#1,99BeauvoirAveSummit,NJ07901

MeetingTime:2ndSaturdayofeverymonth,11:00am-1:30pm

Facilitator:[email protected]


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[email protected]

NEWMEXICO

ALBUQUERQUE Information:Forpatients,caregiversandfamiliesaffectedbyPSP,CBD,MSAandAtypicalPD Location:TheFlyingStar10700CorralesRoad,Albuquerque,NM MeetingTime:1stWednesdayofeachmonthfrom6:30pm-8:00pmuntilSept. Note:StartingSeptmeetingwillchangetothefirstTuesdayofeachmonthatsametimeFacilitator:RoxiPadrid312-485-9342

NEWYORK


BUFFALOInformation:NoMeetingPhoneSupportOnlyContact: MaureenConley 716-627-7344 [email protected]

NEWYORKCITYMETROAREAInformation:Forpatients/caregiversdealingwithAtypicalParkinsonianDisorderslikePSP,CBD,MSA,OPCA,SND,SDSLocation: NorthShoreUniversityHospital,TowerConferenceRooms,FirstFloor,300

CommunityDrive,Manhasset,NY11030MeetingTime(s):3rdSaturdayQuarterlyfrom1:30pm-3:30pmFacilitators:KaraHolisher 516-932-1696 [email protected]

HarrietFeiner 718-224-4654 [email protected]


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[email protected]

SYRACUSE/CHITTENANGOInformation:ForAnyonewithParkinsonorSDS/MSALocation: JimMarshallFarmFoundationsFacilityNorthChittenango Directionstothefarmcanbefoundathttp://www.jmffinc.org/servicesMeetingtimes:4thTuesdayofeachmonthfrom12:30PM-2:30PMContact: WayneHamilton 315-687-9014

NORTHCAROLINA

CHARLOTTEInformation:NoMeetingPhoneSupportOnlyContact: RobertLee 704-552-9198 [email protected]:NoMeetingPhoneSupportOnlyContact:JoeTurner 919-971-3512 [email protected] MelissaTurner 919-741-9668 [email protected]:NoMeetingPhoneSupportOnlyContact:[email protected]

OHIO

BEREAInformation:Forpatients/families/friends/caregiversaffectedbyPSP,CBD,MSA,Shy-Drager+LewyBodiesLocation: SouthwestGeneralHospital,18697BagleyRoad,MiddleburgHeights,OH,Room

15C(basementlevel)MeetingTime(s):2ndSundayofeachmonthfrom1:00pm-3:00pmDirections/Parking:HospitaliseasyaccessedfromI-480,I-71andtheOhioTurnpike-freeparkingreargarageofhospital.Facilitator: DavePotter440-263-5330davepotter7@gmail.comPatBeekman440-234-0007

CINCINNATIInformation:NoMeetingPhoneSupportOnlyContact:KathyGriffin 513-208-6621 [email protected]


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[email protected]

FAIRFIELDInformation:Forpatients/families/friendsaffectedbyMSA,PSP,CBD&ParkinsonLocation:TheFairfieldLaneLibrary1485CorydaleDrive,Fairfield,OH45014MeetingTime(s):4thThursdayfrom6:00pm–7:30pmFacilitator:[email protected]@yahoo.com

KETTERINGInformation:ForMSApatients/caregiversMeetingTime(s):AgettogetherisarrangedinthisareaacoupletimesayearContact:SusanCervone 937-369-9531 [email protected]

WESTERVILLEInformation:ForMSAcaregiversMeetingTime(s):OccasionalmeetingsarenowbeingheldContact:CathyRapenport 614-403-1440 [email protected]

OKLAHOMA

GROVEInformation:NoMeetingPhoneSupportOnlyContact: PaulNandico 918-786-4949

OREGONPORTLAND

Information:ForMSAPatients/CaregiversLocation: MarquisCareCenter,319NERussetST,Portland,ORMeetingTime:3rdSaturdayofeachmonth10amtonoonFacilitator: VickiBlacken 503-651-3633 [email protected]

PORTLAND

Information:Forfamilies&caregiversofpeoplewithPSP&CBDalsowelcomesMSALocations:OHSURiversidebuildingRoom12181 3303SWBondSt.Portland,OR97239


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[email protected]

MeetingTime:1stThursdayofeachmonthat5:30pmFacilitator:[email protected]

BENDInformation:NoMeetingPhoneSupportOnlyContact: NenaClose 541-419-6408(cell) 541-383-0302(work)[email protected]

EUGENE

Information:PD+disorders(PSP,CBD,MSA,LewyBody)andtheircarepartners.

Location:Parkinson'sResourcesofOregon-LaneCountyatEugeneMindworks

Meeting:the2ndWednesday,1:30-3:00(Usuallyeveryothermonth)

Facilitator:Gordon&[email protected]

PleasecontactGordon&Loriaboutthenextmeeting

PENNSYLVANIA


N.VERSAILLESInformation:NoMeetingPhoneSupportOnlyContact: CaroleBarber 412-678-8948 [email protected]


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[email protected]

PHILADELPHIAInformation:NoMeetingContact:LizMartin [email protected]

PHILADELPHIAInformation:ForpersonswithmovementdisordersLocation: PennsylvaniaHospitalMovementDisorderCenter,330S.9thStreet,2ndfloorconferenceroom.Philadelphia,PA19107MeetingTime:3thSaturdayofeachmonthfrom1:00pmto2pmFacilitator: ChristinSalemno 215-829-2347 [email protected]

YORKInformation:NoMeetingPhoneSupportOnly

Contact:ThomasFitzgerald 717-840-3830

Youngwood

Information:forpersonswithmovementdisorders

Location:HoneysuckleHaven621South5thStreet,Youngwood,PA

MeetingTime:3rdThursdayofeachmonthfrom6-8pm


PUERTORICO

Information:NoMeetingContact:AlexisBrewer [email protected]

RHODEISLAND

CRANSTONInformation:NoMeetingContact:JanGillis [email protected]


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[email protected]

SOUTHDAKOTA

SIOUXFALLSInformation:NoMeetingPhoneSupportOnlyContact:DawnKoenig 605-759-6740 [email protected]

TENNESSEE

TULLAHOMAInformation:NoMeetingPhoneSupportOnlyContact: MarilynMorris 913-455-3108 [email protected]

FAIRFIELDGLADEInformation:PD&MovementBriandisorderSupportGroup(PD,MSA,ET,PSP,CBD)

Location: ChristLuthernChurchFellowshipHall481SneadDr.FairfieldGlade,TNMeetingTime:1stTuesdayofeachmonthat2:30pmFacilitator: Gary&SallyDixner 931-484-0193

TEXAS

HOUSTONInformation:Forpatients/familieswithPSP,CBD,MSA,LBDLocation: MemorialHermannSWHospital,Houston,TX,LearningCenterB,Professional

BuildingIIMeetingTime(s):3rdSaturdayofeachmonth(exceptJulyandDecember)at1:00pmFacilitator: KarenKennemer 281-358-2282 [email protected]

DALLASInformation:ForPSP/CBD/MSApatientsandcaregiversLocation: TexasHealthResourcesUniversity(THRU)building,Room111MeetingTime(s):3rdSaturdayofthemonth(exceptAugust)from10:00am-11:30amFacilitator: KathrynMacDonell 214-908-4793 [email protected]


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[email protected]

SEYMOURInformation:Forpatients&caregiversaffectedbyMSA,PSP,CBD&AtypicalPD+Location: BaylorCountryExtensionBuilding500N.MainStreetSeymour,TX76380MeetingTime:3rdMondayofeachmonthfrom4:00pm-5:30pmFacilitator: SisHammack 940-889-6638 [email protected]:NoMeetingPhoneSupportOnlyContact: SharonSutton 210-296-4619 [email protected] CandiceValenta 210-912-4530 [email protected]

VERMONT

BURLINGTONInformation:ForcaregiversofParkinson'swithmildcognitiveimpairmentandParkinson'sPlussyndromesLocation: Varies;contactfacilitatorforinfoMeetingTime(s):Varies;contactfacilitatorforinfoFacilitator: JaniceClements 802-862-7464 [email protected]

VIRGINIA

AMISSVILLEInformation:WillmeetwithpeopleiftheywanttotraveltoAmissvilleorwillmeetatother’shomeifaccessibleandcanarrangeatimeanddatetohaveameetingContact: BillWerre 540-937-6092 [email protected]:Patients&carepartnersaffectedbyParkinson,PSP,CBD,MSA&otherPD+Location:TheVirginian,B1AssemblyRoom,9229ArlingtonBlvd,Fairfax,VA22031Meetingtime:EveryWednesdayat5:00pm,Carepartnersgroupsledbycarepartnerandpatientsgroupledbyaspeechlanguagepathologist.Facilitator:[email protected]


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[email protected]

VIRGINIABEACHInformation:NoMeetingPhoneSupportOnlyContact:James(Jim)Alvaro757-430-2237 [email protected]

WASHINGTON

SPOKANEInformation:Forpatients/caregiverswithPSP/CBDbutsupportsotherneurodegenerativediseasesLocation: ContactfacilitatorforinfoMeetingTime(s):ContactfacilitatorforinfoFacilitator: MaryAnneMemminger 509-921-6645 JimBarron 509-332-6053 [email protected]:ForPatients/CaregiverswithMSALocation:SwedishCherryHill,MotherJosephConferenceRoom55017thAve,Seattle,WAMeetingTime:4thMondayofeachmonthat11:00amFacilitator:SuzannaL.EllerMA 206-320-2084. [email protected] Social worker Swedish Neuroscience Institute

WESTVIRGINIA

BECKLEYInformation:Forpatients,caregivers,andfamiliesdealingwithPSP,CBD,MSAandotheratypicalParkinsoniandisordersLocation: OfficesofDr.RhondaGuy,424StanafordRoad,Beckley,WestVirginiaMeetingTime(s):3rdSaturdayofeverymonthfrom1:00pm-3:00pmFacilitator: JeanJohnson 304-573-3284 [email protected]


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[email protected]

MARTINSBURGInformation:NoMeetingPhoneSupportOnlyContact:ShelliHannonKuhn 717-830-6199 [email protected]

WYOMING

JOHNSTOWN/LOVELAND(COLORADO)Information:Neurodegenerativedisorder(MSA,PSP,CBD)Location:NorthernColoradoRehabilitationHospital,4401UnionStreet,Johnstown/Loveland,CO80528MeetingTime:1stFridayofeachmonthfrom1:00pm-3:00pmFacilitators:[email protected]

CANADA

ALLPROVINCES

Information:NoMeeting–EmailandWebsiteforMSAinformationonlyMultipleSystemAtrophyAwarenessWebsite:www.MSAawareness.org“Spreadingawarenessworldwide”Contact: PamBower [email protected]@accesscable.net

ALBERTA

FORTMCMURRAYInformation:NoMeetingPhoneSupportOnly-ContactforthenorthernregionofAlbertaContact:IrisKirschner 780-792-7732 [email protected]


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[email protected]

BRITISHCOLUMBIA

SIDNEYInformation:NoMeetingPhoneSupportOnlyContact:AnnJeffrey 250-656-9799 [email protected]

CALGARY,AB

Information:Forpatients,caregiverandfamilieswithPSP,CBD,MSAandotherAtypicalPD

Location:ServusCreditUnion-CreeksideBranch12662SymonsValleyRDNW,Calgary,AB

Meetingtime:3rdSaturdayofeverymonthfrom12:00pm-2:00pm


NOVASCOTIA

HALIFAXInformation:NoMeeting–EmailandWebsiteforMSAinformationonlyContact:PamBower [email protected]@accesscable.netWebsite:www.MSAawareness.org

ONTARIO

HAMILTONInformation:NoMeetingPhoneSupportOnlyContact:BonnieLlewellyn 905-979-8254 [email protected]

BURLINGTONInformation:Forpatients,caregivers,andfamiliesdealingwithPSP/CBD/MSAandotheratypical


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[email protected]

ParkinsoniandisordersLocation:ApplebyPlaceRetirementResidence,500ApplebyLine,Burlington,ONMeetingTime(s):1stThursdayofeverymonthfrom6:30pm-8:30pm(beginningOctober3,2013)Facilitator:KimberleyAdrovez 905-296-1095 [email protected]

KINGSTONInformation:ForpatientsandfamiliesaffectedbyPSP,CBDandMSALocation: Legion560(FiresideRoom),734MontrealStreet,Kingston,ON(freeparkingandhandicapaccessible)MeetingTime(s):1stThursdayofeverymonthfrom6:00pm-8:00pmbeginningAugust1,2013Facilitator:MJOverby 613-531-2685 [email protected]

TORONTOInformation:ForcarepartnersofPSP/CBD/MSApatients;hostedbyParkinsonSocietyofCentral&NorthernOntarioLocation:4211YongeStreet,Suite321,Toronto,ONMeetingTime(s):3rdWednesdayofeverymonthfrom6:15pm–8:00pmFacilitator:RobertTerSteege 416-227-3372/[email protected]

Surrey,BC

Information:ForanyoneaffectedbyPSP,CBD,MSA

Location:Elimvillage,OasisBuilding,FamilyRoom,9008158thStreet,SurreyBC

MeetingTime:4thFridayofeverymonthfrom10:00am-11:00am

Facilitator:BobBrett604-930-8150bandmbrett@[email protected]


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[email protected]

WINNIPEG,MB

Information:Forpatients,caregiversandfamilyaffectedbyPSP,CBD,MSA&otherPDdisorders

Location:BronxParkCommunityCentre-TheMeetingRoom720HendersonHighway,Winnipeg,MB

MeetingTime:LastTuesdayofeverymonthfrom6:30pm-8:00pm


Regional facebook pages for the USA/Canada

New England states USA (ME-NH-VT-CT-RI-MA) http://www.facebook.com/groups/MSANewEngland/

Middle Atlantic states USA (NY-NJ-PA) http://www.facebook.com/groups/MSAMidAtl/

Northeast Central states USA (IN-IL-MI-WI-OH) http://www.facebook.com/groups/MSANECentralUS/

Northwest Central states (IA-KS-MN-MO-ND-SD-NE) http://www.facebook.com/groups/MSANWCentralUS/

South Atlantic states USA (DE-DC-FL-GA-MD-NC-SC-VA-WV) http://www.facebook.com/groups/MSASOATL/

Southeast Central states USA(AL-KY-MS-TN) http://www.facebook.com/groups/MSASECentralUS/


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[email protected]

Southwest Central states USA (TX-OK-LA-AR) http://www.facebook.com/groups/MSASWCentral/

Mountain states USA (AZ-CO-ID-NM-MT-UT-NV-WY) http://www.facebook.com/groups/MSAMountainUS/

Pacific states USA (CA-OR-WA-HI-AK) http://www.facebook.com/groups/MSAPacificUS/

Canada

https://www.facebook.com/groups/MSACanada/

Monthly Online Discussion webinars

Online Discussion webinars - For MSA caregivers

When:1st Monday of each month

Time: 8:00 pm - 9:00 pm EST

Location: https://www2.gotomeeting.com/register/977578139

Online Discussion webinars - For MSA Patient

When:3rd Monday of each month

Time: 8:00 pm - 9:00 pm EST

Location: https://www2.gotomeeting.com/register/759482131

shydrager online support group for MSA


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[email protected]

Founded by Vanderbilt University Autonomic Dysfunction Center staff and currently hosted at http://groups.yahoo.com/group/shydrager

list of support meetings & phone/email support usa and canada

Documents