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  • ListofSupportMeetings&phone/emailsupport

    USAandCanada

    Page1of27

    [email protected]

    USA ALLSTATES

    THEMULTIPLESYSTEMATROPHY(MSA)COALITION(formerlytheShy-Drager/MSASupportGroup)9935-DReaRoad#212Charlotte,NC28277USAwww.MultipleSystemAtrophy.orgTollfree:1-866-737-4999or1-866-737-5999UnitedtoDefeatMULTIPLESYTEMATROPHY

    TheMultipleSystemAtrophy(MSA)CoalitionTMisa501(c)3charitableorganization(EIN:74-2926378)devotedtoafourpillarmission:SupportingpatientsandcaregiversaffectedbymultiplesystematrophyEducatingpatients,caregiversandhealthcareprofessionalsFinancingandencouragingmeaningfulresearchtowardidentifyingacauseandfindingacureforMSAAdvocatingforissuesimportanttotheMSAcommunity,includingcreatinggreaterawareness

    Information:WeoffertwotollfreesupportlinesstaffedbyformerMSAcaregivers.Contact: VeraJames(CAUSA) 1-866-737-5999 [email protected] JudyBiedenharnRN(OHUSA)1-866-737-4999 [email protected](s):WehostanannualconferenceforMSApatientsandfamiliesinadifferentUScityeachyear,usuallySeptemberorOctobertimeframe.Pleasewatchforannouncementsonourwebsitewww.MultipleSystemAtrophy.orgDVDsofpastconferencesareavailabletoorderOthercontacts: CarolLanger(MAUSA) [email protected] DonCrouse(NCUSA) [email protected] PamBower(NSCANADA) [email protected]

    LarryKellerman(IAUSA)[email protected](MIUSA)[email protected](NCUSA)[email protected](NJUSA)[email protected]

  • ListofSupportMeetings&phone/emailsupport

    USAandCanada

    Page2of27

    [email protected]

    Note: Every effort is made to ensure meeting times & dates are accurate, however we do suggest that you contact the facilitator first before attending a meeting for the first time. ALABAMA

    CHICKASAWInformation:NoMeetingPhoneSupportOnlyContact:JanieceNaberMartindale251-300-1196 [email protected]

    ARKANSAS

    LITTLEROCKInformation:ForanyoneaffectedbyPSP,CBDorMSALocation:AlzheimersArkansas201MarkhamCenterDrive,LittleRock,AR72205(askfrontdeskforroomdetails,501-224-0021MeetingTime:4thThursdayofeverymonthsfrom1:00pm-2:30pmFacilitator:[email protected]

    ARIZONA

    TEMPEInformation:NoMeetingPhoneSupportOnlyContact: JeanSuico 480-839-3794 [email protected]

    GILBERTInformation:NoMeetingContact:TandyKing Facebook:www.facebook.com/kingchtata

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    USAandCanada

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    [email protected]

    CALIFORNIABakersfieldInformation:AnyoneaffectedbyPSP,CBD,MSALocation:Dennysrestaurant,BanquetRoom,8710RosedaleHighway,Bakersfield,CAMeetingTime:1stWednesdayofeverymonthfrom1:00pm-3:00pmFacilitator:[email protected]

    Information:NoMeetingPhoneSupportOnlyContact: CandyWelsh 650-218-5858 [email protected]

    FOUNTAINVALLEY

    Information:ForfamilymembersandcaregiversdealingwithAtypicalPD+DisordersLocation: OrangecoastMemorialMedicalCenter,ClassroomC,9920TalbertAve FountainValley,CA92708Facilitator: JustinAquines 714-907-0074 [email protected]:Non-profitforMSACureMSAKathyShihMemorialFoundationP.O.Box15088Fremont,CA94539USAwww.curemsa.org

    Contact:LilyShih(ExecutiveDirector) 510-226-0453 [email protected]:NoMeetingPhoneSupportOnlyContact: SandyBierman 510-656-6897 [email protected] LilyShih 510-226-0453 [email protected]:NoMeetingPhoneSupportOnlyafter11amESTContact: GeorgeRelles 805-683-4829 [email protected]

  • ListofSupportMeetings&phone/emailsupport

    USAandCanada

    Page4of27

    [email protected]

    IRVINEInformation:Forpatients,caregiversandfamiliesaffectedbyParkinsons,PSP,CBD,MSAandOtheratypicalParkinsoniandisorders.Location:AtriaWoodbridgeAssistedLiving,1Witherspoon,Irvine,CA92604MeetingTime:EveryTuesday10:30am-12:00pmLocation:LakeviewSeniorCenter,20LakeRoad,Irvine,CA92604Meetingtime:3rdWednesdayofeverymonthfrom10:30am-12:00pmFacilitator:[email protected]

    LIVERMOREInformation:NoMeetingPhoneSupportOnlyContact:CarolDutcher 925-998-3656 [email protected]

    LOSANGELESUCLAinformation:Forpatients,families&friendsaffectedbyPSP,CBD,MSAandotherDisodersLocation:RonaldReaganUCLAMedicalCenter757WestwoodPlaza.LosAngeles,CARoom3102(roommayvarypleasecallahead)[email protected]:1stFridayofeverymonthfrom2:00pm-4:00pmFacilitator:LorettaMazorraRN,NP,MN,[email protected]

    MODESTO

    Information:NoMeetingContact: JaneicePartridge [email protected]/SANMATEOInformation:Neurodegenerativemovementdisordergroup(MSAPSP,CBD,etc.)caregivers

    only.Contactfacilitatorformoreinfo.Location: Mimi'sCafe,2208BridgepointeParkway,SanMateo,CA94404MeetingTime(s):Everysixweeks(callore-mailforschedule)from5:00pm-7:00pmFacilitator: [email protected]

    SACAMENTOInformation:ForpatientsandcaregiverdealingwithPSP,CBD,MSAandParkinsonsLocation:ShrinersHospitalontheUCDavisMedicalCenterCampus,7thFloorBoardRoom,2425StocktonBlvd,Sacramento,CAMeetingTime4thWednesdayofeverymonth7:00pm-9:00pmFacilitator:[email protected]

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    USAandCanada

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    [email protected]

    SANDIEGOInformation:Forpatients/caregiversdealingwithAtypicalParkinsonianDisorderslikeMSA,PSP,

    CBD,OPCA,SND,SDSLocation: ParkinsonsAssociation,8555AeroDrive,Suite308,SanDiego,CAMeetingTime(s):3rdThursdayofeverymonthfrom1:00pm-3:00pmFacilitator: Kathryn Krug [email protected]

    SANDIEGO

    Information:ForONLYcaregiversdealingwithAtypicalParkinsonDisorders (MSA,PSP,CBD,OPCA)Location: HolyAngelsByzantineCatholicChurch,2235GalahadRoad,SanDiego,CA92123MeetingTime(s):EveryothermonthonthefirstWednesdayfrom11:00am-1:00pmFacilitator:[email protected], 760) 814-8426

    SANTABARBARAInformation:NoMeetingPhoneSupportOnly

    Contact: SuzanneGrimmesey-Kirk805-692-4010 [email protected]

    COLORADO

    DENVER/ENGLEWOODInformation:Neurodegenerativemovementdisordergroup(MSA,PSP,CBD)Location: JohnsonAdultDayCenter,3444SouthEmersonSt.,Englewood,CO80113

    MeetingTime(s):2ndFridayofeachmonthfrom10:00am-12:00pmforPatients/Caregivers4thFridayofeachmonthfrom10:00am-12:00pmforCaregiversonly

    Facilitator: HelennFranzgrote 303-789-9900 [email protected]

    JOHNSTOWN/LOVELANDInformation:MSA,PSP,CBDLocation: NorthernColoradoRehabilitationHospital4401UnionStreet Johnstown/Loveland,CO80528MeetingTime:1stFridayofeachmonthfrom1:00pm-3:00pm(NoDec/Janmeeting)Facilitator: RuthFletcher-Carter970-532-2681 [email protected]

  • ListofSupportMeetings&phone/emailsupport

    USAandCanada

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    [email protected]

    FLORIDA

    Central/OrlandoAreaInformation:Forpatients/caregivers/familiesaffectedbyPSP,CBD,MSAandrelateddiseasesLocations&Meetingtimes:Onceamonth(contactfacilitatorformoreinformation)Facilitator:[email protected]

    PORTORANGEInformation:NoMeetingPhoneSupportOnlyContact: JimGrant 386-334-2691 [email protected]

    SOUTHEAST/DEERFIELDBEACH

    Information:Forpatients/caregivers/familiesaffectedbyMSA,PSP,CBDandrelateddiseasesLocation: NorthBrowardMedicalCenter,201E.SampleRoad,DeerfieldBeach,FL33064,1st

    Floor,Classrooms7&8(fordirectionsonly:954-941-8300)MeetingTime(s):ContactFacilitatorformoreinfoFacilitator: PaulFreeman 305-970-0805 [email protected]/NAPLESInformation:Forpatients/caregivers/familiesaffectedbyMSA,PSP,CBDandrelateddiseasesLocation: ManorCareatLelyPalms,6135RattlesnakeHammockRoad,Naples,FL34113MeetingTime(s):2ndSaturdayofeachmonthfrom2:00pm-3:30pmFacilitator: CindyMacDonald 239-353-3960/[email protected]

  • ListofSupportMeetings&phone/emailsupport

    USAandCanada

    Page7of27

    [email protected]

    GEORGIA

    ATLANTAInformation:ForcarepartnersonlyofthoselivingwithAtypicalParkinsonisms,PSP,CBDLocation:EmoryBrainHealthCenter.12ExecutiveParkDr.Room331CAtlantic,GAMeetingTime(s):2ndSaturdayofeachmonth(exceptMay)from10:00am11:30amFacilitator: LynnRoss 404-712-7091 [email protected]

    Contact:PaulaDavis 706-669-1978 [email protected]

    HAWAIIHonoluluInformation:ForanyonedealingwithPSP,CBD,MSAorAtypicalParkinsonsLocation:WaikikiBanyan201OhuaAve,Honolulu,HI96815MeetingTimes:2ndSaturdayofeachmonthfrom10:00am-11:30amFacilitatior:[email protected]

    ORLANDPARKInformation:NoMeetingPhoneSupportOnlyContact: Arthur(Ed)Wall 708-478-1236 [email protected]

    CHICAGOAREAInformation:MSASupportMeetingforPatients/Caregivers

    Meetinginformation:Quarterlymeetings.TimeandplaceannouncedonFacebookNECentralUSAPageorContactFacilitator.Facilitator:JohnStandley 815-403-2221 [email protected]

    NORTHWESTERNAREAInformation:ForthosewithPDandothermovementdisordersLocation:NorthwesternMemorialHospital251EastHuron,FeinbergPavilion,3rdFloorRoomA(freeparkingatHuron/St.Clair)MeetingTime:4thThursdayofeverymonthfrom1:00-2:00pmFacilitator:[email protected]

  • ListofSupportMeetings&phone/emailsupport

    USAandCanada

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    [email protected]

    INDIANAINDIANAPOLIS

    Information:NoMeetingPhoneSupportOnlyContact: GaryHuddleston 317-501-4899 [email protected]:ForMSAPatients/caregiversContact:RenateSharp765-453


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