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LUPUS UK Charity No'a. 1051610 & SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31ST DECEMBER 2011 hil lierho pkins LLP Chartered Accountants and Tax Advisers

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Page 1: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUPUS UKCharity No'a. 1051610& SC039682

TRUSTEES' REPORT AND FiNANCiAL STATEMENTSFOR THE YEAR ENDED 31STDECEMBER 2011

hil lierho pkins LLP

Chartered Accountants and Tax Advisers

Page 2: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUPUS UK

INDEX

CONTENTS

2-7 Trustees' Report

8-9 Auditors' Report

10 Statement of Financial Activities

11 Balance Sheet

12-17 Notes to the Financial Statements

Page 3: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

REFERENCE AND ADMINISTRATION DETAILS OF THE CHARITY, IT'STRUSTEES AND ADVISERS FOR THE YEAR ENDED 31STDECEMBER 2011

CHARITY REGISTRATION NUAIIBERS; 1051610& SC039682

ADDRESS St James HouseEastern RoadRornfordEssex RM1 3NH

TRUSTEES:(throughout the year)

Ms J Dunnage (Chairperson)Mrs Y Norton (Vice Chairperson)Mr J Hirst (Secretary)Mrs T Stemp (Treasurer)Mrs J RoberlsMr D Price (Resigned 18.09.11)Miss J RobinsonMs K Allan

DIRECTOR:

AUDITORS:

Mr C J Maker

Messrs Hillier Hopkins LLP64 Clarendon RoadWaffordHerffordshireWD17 1DA

BANKERS: Bare(aye Sank picRomford Business CentreRomfordEssex RM1 1RF

Page 4: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUPUS UK

REPORT OF THE TRUSTEESFOR THE YEAR ENDED 31 DECEMBER 2011

The Trustees present the annual report and the audited accounts of the Charity for the year ended 31stDecember 2011. The financial statements have been prepared in accordance with the accountingpolicies set out on page 11 and comply with the Charity's constitution and applicable law,

THE CHARITY

LLIPUS UK is the National Charity for all people affected by lupus in England, Wales, Scotland andNorthern Ireland. Its objectives are to;

~ educate and support patients with lupus (in all its forms) and their carers, and to encouragethose with the disease to be involved in managing their illness

~ raise public awareness about lupus, particularly within the medical professionfund researrh into lupus, its causes, consequences and treatment

~ grant pump-priming funding for specialist lupus nurses within the NHS.

Vision

Our vision is that with earlier diagnosis and better treatments, mast people with lupus will be able fo livetheir lives without the large physical, emotional and economic burden that this illness has often caused inthe past.

The original Charity, British SLE Aid Group (founded in 1978) became LUPUS UK from 1st January 1996with the new constitution approved on 14th October 1995. The constitution has been amendedperiodically since then, most notably on 11 May 2008 to incorporate warding so that the Charity couldregister with the Office of the Scottish Charity Regulator.

Trustees

The Trustees of the Charity wha served during the year ended 31st December 2011 are shown on page1. Trustees are elected by National Council by rotation and serve a period of three years at which pointthey are either re-elected ar retire The National Council invites naminatians for two Member Trustees

Yvonne Norton was re-elected Vice-Chair/Trustee, Tina Stemp was re-elected Treasurer/Trustee andJan Roberts was re-elected as a Cauncil Trustee, the appointments taking effect on the 1st January2012. David Price, a Council Trustee, stood down due to ill health, 18 September 2011

Opportunities for training are circulated to the Trustees All of the Trustees have been involved directly in

the work af the Charity before their election. To ensure best practice the Trustees have worked throughthe NOVO publication 'The Good Trustee Guide' and new Trustees are also encouraged to read theCharity Commission publication 'The Essential Trustee'.Management

The daily management of LUPUS UK is under the control of the Director (see page 1) who is responsiblefar staff and the running of National Office, and reports to the Trustees.

OBJECTIVES, ACTIVITIES AND PERFORIVIANCE

Systemic Lupus Erythernatosus (SLE) is an auto-immune condition where the immune system does notwork properly, instead of giving protection to the body it can attack any part of the body. Presently thereis no known cure The diversity and intensity of symptoms and damage to organs can make it a verydifficult and potentially disabling disease to live with. Most patients need life-long medication, which in

turn can lead to potential problems.

Page 5: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUPUS UK

REPORT OF THE TRUSTEESFOR THE YEAR ENDED31s DECEMBER 2011

Lupus can sometimes affect one system of the body more intensely than others. If the kidneys areaffected it is usually referred to as lupus nephritis. If the skin and hair are affected it usually referred to asdiscoid lupus. Other terms may be used by clinicians to define particular aspects of the disease. In

general terms SLE is referred to as lupus.

The purpose of the Charity is to support and help people living with lupus and to advance the education ofthe public and particularly the medical profession in all aspects of the disease. There are a number of

key ways in which the Charily does this, including its telephone help-line, Group meetings in various partsof the country and information in a number of formats. LUPUS UK supports medical research into thecauses and consequences of lupus and improved medication and funds specialist Lupus Ivurses within

the NMS on a pump-prime basis.

The Trustees would like to record their Ihanks to those members who commit their time and energy to therunning of ils local Groups, particularly the Chairs. Some Groups have had to reduce their activities for

various reasons while others are beginning to establish themselves; we welcome offers of help from

those willing to work with and support the Charity in this way

The main focus of the charity during the year was to provide information targeted to help newly-diagnosed

lupus patients, by producing a DVD and a booklet. An additional member of staff has been employed to

concentrate on social media and create our racebook pages and Twitter activity: this is already showing

dividends by bringing more people into touch with the charity and showing a significant increase in new

members joining online.

Once again our London Marathon runners excelled themselves along with participants in numerous other

runs end events In support of LUPUS UK people climbed mountains, cycled, ran and parachuted out ofplanes. We are indebted to everyone who showed their commitment and support of the Charity by

participating in a wide range of activities to raise lupus awareness and funding for the Charity's Grants

programme.

Lupus Awareness Month in October focuses many members and supporters on a variety of ways to

publicise lupus and the charity. Awareness and fundraising go together in many ways. Lunch4Lupus and

Go that Extra Mile once again proved very popular with members, friends and family; wonderful

fundraising and excellent awareness with everyone taking part and having a great time.

During 2011 the Trustees approved Grants totalling EI79,478. At the end of 2011 the Charity's

commitment to fund Grants was E947, 143 with the total charge for the year being E179,478 (see Grant

Making Policy on page 4.

LUPUS UK continues to review and update its range of information and the LUPUS UK website*k. . kt p k ~ thtt tt . Athh» * *P pt Pt \ tt . t

navigation and extended range of lupus goods available. The Eclipse website continues to provide

information for those with light sensitivity issues, www. ecfi sedu usuk. o uk.

LUPUS UK continues to keep in regular contact with lupus specialists and lupus nurses and has aspecialist website for medical professionals www. medical lu usuk. or .uk . The Charity is grateful for theadvice and help of its Scientific and Medical Advisory Panel on a number of matters and the support of

many medical professionals. Recognising the importance of lupus awareness within both the medical

profession and the wider public, one of the Charity's aims is to provide literature and information to all

people with lupus via lupus and rheumatology clinics. In order to improve awareness the Charity is

represented at various conferences, exhibitions and seminars countrywide by the Staff, Trustees and

Group members this gives us valuable introductions to health professionals.

Page 6: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUPUS UK

REPORT OF THE TRUSTEESFOR THE YEAR ENDED 31 DECEMBER 2011

During the year, LUPUS UK was invited by the European Medicines Agency and NICE (National Institutefor Clinical Excellence) to give the patient perspective at appraisals for a potential new treatment forlupus, Belimumab The EMA approved use of the drug throughout Europe, as has the FDA in the USA.NICE will announce its decision during 2012. If this drug is licensed it will be the first time thai a drug hasbeen speciTically licensed for use in lupus: all other treatments are licensed for other diseases and used'off label'.

LUPUS UK continues to work closely with the UK Juvenile SLE Study Group; a collaboration between asignificant number of paediatric hospitals around the UK, looking into the incidence, causes and treatmentof this illness as it affects children and young people, This is an area of cantinued growing importanceand over 300 children with lupus are now enrolled on its various research projects which will give furtherinformation about how children and young people are affected by lupus, and also give some indication anthe best treatment and standards of care.

LUPUS UK has over one hundred Contacts, mainly members who have lupus themselves, or otherswhose partner has lupus and are Carem, who offer telephone help-line advice to enquirers. Our Contaclsare available lo anyone who has, or thinks they may have lupus, and can offer support and generaladvice. The leaflet 'Listening Ear' is available from LUPUS UK National Office and is sent to all enquirersand distributed through rheumatology and lupus clinics in order to make people aware of the service.LUPUS UK provides training in listening skills and supports its Contacts in this valuable work.

In order to recognise excellent care of lupus patients and productive research into the illness, the charitygives its Centres of Excellence award: so far this has been received by the following hospitals: QueenElizabeth/City, Birmingham, Manchester Royal Infirmary and Alder Hey Children' s, Liverpool. Each site isvisited annually to ensure that standards are maintained or improved.

I UPUS UK is prudently run and Research and other Grants are only approved by the Trustees if fundsare already held. Once the commitment has been announced the funding is placed in a reserve. Likemost other charities LUPUS LIK has been affected by the current economic climate and the Trusteeshave taken account of this with regard to future budgets and will ensure that the Charity tailors itscommitments ta its resources.

Risk management

The Trustees drew up a Risk Map during the year, which is used to examine the major strategic, businessand operational risks that the Charity faces and confirm that regular reports are produced so that anynecessary steps can be taken to review and lessen these risks.

Grant Making Policy

The Charity invites applications for the funding of research projects and specialist lupus nurses.Applications far research funding are reviewed against specific criteria and research objectives by thePeer Review Panel In comparison with some other organisations, LUPUS UK currently does not havesufficient funding available for large-scale trials; it will therefore look to support applications that focus onthe following.

~ smaller pilot studies, which will lead to applications to major funders for large-scale research trials~ enabling grants for basic science support, which would enable larger projects by providing

essential data for large grant applications~ medical meetings that would facilitate irnprovernents to the understanding of the causes,

prevention and treatment of lupus and its research.

Page 7: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUPUS UK

REPORT OF THE TRUSTEESFOR THE YEAR ENDED 31 DECEMBER 20'(1

Advice is provided by external referees where necessary. The Trustees then consider the Peer Review

Panefs recommendations in awarding research funding. LUPUS UK is a partner of the National Institute

for Health Research.

The Charity funds specialist nurses within the NHS on the understanding that these posts will becomepermanently funded by the particular Hospital at the end of the 3 year period.

Further details are available from the Charity's Grants Manager

FINANCIAL REVIEW OF ACCOUNTS

The state of the Charity's affairs at 31st December 2011, with comparative information for the previous

year, is shown in the accompanying financial statements.

Total funds received during the year were E868,048 against E837,327 in the previous year. Voluntary

income (Donations received, Membership and GIII Aid) was down by E28,670 on the previous year.Investment income (interest and Dividends) was down E2,400, due to the low level of interest rates.Activities for generating funds (Fundraising) were up by E59,284 on the previous year and income from

charitable activities (Sales) was up by E2,507

The costs of generating funds were up (see notes 3 and 4), The costs of generating Voluntary Income

and Fundraising costs were up by E12,214 with Charitable Activities - Support and Administration (seenote 5) costs were up by f24, 357. Grants costs affributable for the year were down by E481,802, to the

sum of f179,478.

Overall there is a surplus of income over expenditure of E232,543 for the year before including losses on

investments, The value of the investments at 31st December 2011 stood at E186,812 and a loss of

E6,845 has been accounted for (see note 9). The financial markets have been turbulent but we would

anticipate the value to rise in the coming years as the investments are of a long term nature.

Reserves policy

The Charity's reserves at 31st December 2011 were E533,350 (2010: E307,652). LUPUS UK needsreserves to maintain its current activities and provide funding committed for longer term projects to

progress them to completion, as well as enabling the Trustees to meet their day to day responsibilities

and ensure that the Charity can continue to operate as a going concern. The Trustees have considered

their policy in respect of the level of their reserves and aim to retain a minimum sum in the region of oneyear's expenditure, which will be held on deposit at the best available rate.

Investment management

The Investment Porffolio is controlled by Rathbones Investment Management Ltd, of London and

quarterly valuations are forwarded together with various reports.

Our investments decreased in value by E6,845 (see note 9), during the year under review.

Dividends received for the year were E5, 178 and interest received for the year of E5,739 (see note 2).

PUBLIC BENEFIT

The Trustees confirm that they have referred to the guidance contained in the Charity Commission's

general guidance on public benefit when rewewing the charity's aims and objectives and in planning

future activities. The Charity works closely with the medical profession to raise awareness of the illness

Page 8: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUPUS UK

REPORT OF THE TRUSTEESFOR THE YEAR ENDED 31 DECEMBER 2011

ta all patients and does not charge for supplying information and advice to the public. Membership of theCharity is open to all who are interested in supporting its work, whether they have lupus or not.

VOLUNTESR INVOLVEMENT

The National Council of LUPUS UK is made up of a representative from each of the Regional Groups:these are managed by a volunteer committee of individuals, who are mostly lupus patients. In total,

around 400 people with lupus and a smaller number of other supporters conduct the affairs af the Charityat local and national levels across the usual range of the Charity's educational, social and fund-raising

activities.

LUPUS UK has a nationwide network of telephone Cantacts who offer a listening ear to many people wha

may be seeking diagnosis for lupus, or who are lupus patients and need support at difficult times. TheCharity provides training and support for those who commit to this valuable wark. The Trustees recagnisethe commitment and dedication of our many volunteers and are very grateful to all who take on thesevarious rales.

DONATIONS

The Charity is most appreciative of the many people, companies, trusts and other organisations who have

made valued donations in support of people with lupus during the year.

Tina StampHonorary Treasurer and Authorised Trustee

12' M 12212

Jane DunnageChair

t3 May 201+

Page 9: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUPUS UK

STATEMENT OF TRUSTEES' RESPONSIBILITIES IN RELATION TO THE FINANCIAL

STATEMENTS AS AT 31ST DECEMBER 2011

The Trustees are responsible for preparing the Annual Report and financial statements in accordance

with applicable laws and United Kingdom Aocounting Standards (United Kingdom generally accepted

accounting practice).

Law applicable to chariities in England & Wales requires the Trustees to prepare financial

statements for each financial year, which give a true and fair view of the charity's financial

activities during the year and of ils financial position at the end of the year. In preparing

these financial statements, the trustees are required to:

select suitable accounting policies and then apply them consistently;

observe methods and principles in the Charities SORP;

make judgements and estimates that are reasonable and prudent,

state whether applicable UK accounting standards and statements of recornrnended

practice have been followed, subject to any material departures disclosed and explained

in the financial statements; and

prepared the financial statements on the going concern basis unless it is

inappropriate lo presume that the charity will continue in operation.

The trustees are responsible for keeping accounting records which disclose with reasonable accuracy the

financial position of the charity and which enable them to ascertain tha financial position of the charity and

which enable them to ensure that the financial statements comply with the Charities Act 1993.They are

also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the

prevention and detection of fraud and other irregularities.

Treasurer

Date I34wm sort

Page 10: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

INDEPENDENT AUDITOR'S REPORT TO THE 'TRUSTEES OF LUPUS UK FOR THEYEAR ENDED 31 DECEMBER 2011

Independent Auditor's Report to the trustees of Lupvs UK

We have audited the financial statemenls of Lupus UK for the year ended 31 December 201 1 which comprise theStatement of Financial Activities, the Balance Sheet and the related notes. The financial reporting frameworkthai has been apptied in their preparation is applicable law and United Kingdom Accounting Standards (UnitedKingdom Generally Accepted Accounting Practica) .

This report is made solely to the charity's trustees, as a body, in accordance with regulations made under section154 of the Charities Act 2011, section 44(1)(c) of the Charities and Trustee Investment (Scotland) Act 2005 andregulatiori 10 of the Charities Accounts (Scotland) Regulations 2006 (ss amended). Our audit work has beenundertaken so that we might state lo the charity's trustees those matters we are required to state to them in anauditor's report and for no other purpose. To the fullest extent permitted by law, we do not accept or assumeresponsibility to anyone other than the charity snd the charity's trustees as a body, for our audit worik for thisreport, or for the opinions we have formed.

Respective responsibilities of trustees and auditor

As explained more fully in the Trustees' Responsibilities Statement set ovt on page 7, the trustees areresponsible for the preparation of financial statements which give s trve and fair view.

We have been appointed as auditor vnder section 144 of the Charities Act 2011 and section 44(1)(c) of theCharities and Trustee Investment (Scotland) Act 2005 and report in accordance with regulations made undersection 154 of that Act. Our responsibility is lo audit and express an opinion on the financial statements inaccordance with applicable law and International Standards on Auditing (UK and Ireland). Those standardsrequire us to comply with the Auditing Practices Board's (APB) Ethical Standards for Auditors.

Scope of the audit of the financial statements

An audit involves obtaining evidence about the amounts and disclosures in the financial statements sufficient togive reasonable assurance that the financial statements are free from material misstatement, whether caused byfraud or error. This includes an assessment of: whether the accounting policies are appropriate to the charity'scircumstances and have been consistently applied and adequately disclosed; ihe reasonableness of significantacrxrunting estimates made by the trustees; and the overall presentation of the financial statements. In addition,we read all the financial and non-financial information in the Trustees' Annual Report to identify materialinconsistencies with the audited financial statements, If we become aware of any apparent materialmisstatements or inconsistencies we consider the implications for our reporL

Opinion on financial statements

In our opinion the financial statements:

give a true and fair view of the state of the charity's affairs as at 31 December 2011, and of its incomingresources and application of resources, for lhe year then ended;

have been properly prepared in accordance with United Kingdom Generafiy Acoepted Accounting Practice;

have been prepared in accordance with the requirements of the Chanties Act 2011, the Charities andTrustee investment (Scotland) Act 2005 and regulation 8 of the Charities Accounts (Scotland) Regulations2005 (as amended).

Page 11: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

INDEPENDENT AUDITOR'S REPORT TO THE TRUSTEES OF LUPUS UK FOR THEYEAR ENDED 31 DECEMBER 2011

taatters on which we are required to repok by exception

We have nothing to report in respect of the following matters where the Charities Act 2011 and Charily Accounts(Scotland) Regulations 2006 (as amended) require us to report to you if, in our opinion:

~ the information given in the Trustees' Annual Report is inconsistent in any material respect with the financial

statements; or

~ sufficient accounting records have not been kept; or

~ the financial slatemenls are not in agreement with the accounting records and returns; or

~ we have nol received all the information and explanations we require for our audit.

Hillier Hopkins LLP (Statutory Auditor)Chartered AccountantsStatutory Auditor

64 Clarendon RoadWaffordHerlfordshireWD17 1DA

Date: 28 May 2012

Page 12: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUPUS UK

STATEMENT OF FINANCIAL ACTIVITIESFOR THE YEAR ENDED 31ST DECEMBER 2011

I/NRESTRICTED RESTRICTED TOTAL

Eunos Euxos Euuns 20105 6 5

INCONIING RESOURCESIncommg resouraes from generatedfundsVoluntary incomeActivities for generating fundsInvestment Income

486,844339,1 27

2 10,917

4es, e44339,127

10,917

515,514279,843

13,317

Incaming resources from charitableactivities 31,160 31,160 28 653

TOTAL INCOMING RESOURCES 868 048 868,048 837,327

RESOURCES EXPENDEDCost of generating fundsCosts of generalmg voluntaryincomeFundraising costsCharitable activitiesGovernance casts

3 57 7814 137,0565 436,7376 3,931

57,781137,056436,737

3,931

48,268134 355894, 182

3 435

TOTAL RESOURCES USED

Net incoming (outgoing) resourcesbefore other recognised gains and losses

Other recognised gains & lossesGam/(loss) on investmentsRealised and unrealised gains/(losses) on investment assets

635,505

232,543

9 (6,845)

635,505 1,080,240

232,543 (242,913)

(6,845) 21,554

Net incoming recourses/(resources expended)Fund balances 01 January 2011

225,698296,697

225,698 (221,359)10,955 307,652 529,011

Fund balances 31 December 2011 14 522,395 10,955 533,350 307,652

10

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LUPVS UK

BALANCE SHEET AS AT 31ST DECEMBER 2011

UNRESTRICTED RESTRICTED TOTAL

FUNDs FUNDE FUNDs 2010Note 6 2 6

FIXED ASSETS

INVESTMENTS

8 9,471

9 186,812

196,283

9,471 4, 129

186,812 193,657

196,283 197,786

CURRENT ASSETSStackDslitorsCash at bank and in hand

Cash at bank and in handheld by Regional Groups

10 35,35711 13,111

1,181,565

64,734

35,35713,111

10,955 1,192,520

30,69620,833

1,146,360

61,103

1,294,767 10,955 1,305,722 1,256,992

CREDITORS: AMOUNTS FALLINGDVE WITHIN ONE YEAR

NET CURRENT ASSETS

NET ASSETSCREDITORS: AMOUNTS

FALLING DUE AFTERMORE THAN ONE YEAR

12 430,457 430,457 533,799

13 538,198 538,198 615,327

522,395 10,955 533,350 307,652

864,310 10,955 875,265 725, 193

1,060,593 10,955 1,071,546 922,979

REPRESENTED BY:

FIIND BALANCES 14 522,395 10,955 533,350 307,652

The nates on pages 12 to 17 form part of these financial statements

These financial statements were approved by the Trustees on ryth May 2012

E;-SSAuthorised Trustee

11

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LUPUS UK

NOTES TO THE FINANCIAL STATEMENTS AS AT 31STDECEMBER 2011

1 ACCOIUNTING POLICIES

1.1 Basis of preparation oF the fina~cist statements

The finanaal statements sre prepared on the sccruals basis and under thehistorical cost convention with the exception of investmenls, which are included

at market value The financial statements have been prepared in accordance with

the Statement of Recommended Practice, Accounting Standards and Reporting

by Charities (SORP 2005) issued March 2005, and applicable accounting

standards and the Charities Act 1993.

1.2 Incoming Resources

Voluntary income and donations ere included in incoming resources when they

are receivable, except when the donors specify that they must be used in future

accounkng periods or donors conditions have not been fulfilled, then the income

is deferred The mcome and fundraising ventures are shown gross, with the

associated costs included in fundraising costs Grants are treated as income

irrespecuve oF the source of the grant.

1.3 Resources Expended

Resources expended are induded m the statement of Financial Activities on an

accruals basis, incluswe of the disallowable portion of VAT.

Expenditure which is directly attributable to specific activities, has been mciuded

in these cost categones Where costs are attributable to more than one activity,

they have been apportioned across the cost categories on a basis consistentwith the use of these resources

Grants payable are charged in the year when the conditions akaching to the

grant is fulfilled. Grants offered subject to conditions which have not been met

at the year end are noted as a commitment, but not accrued as expenditure

1 4 StockStock is valued at the lower of cost and net reaksatile value.

1 5 Tangibte Fixed AssetsDepreciation is provided on all tangible fixed assets at rates calculated to wnte

otf each asset over its expected useful ecconomic life as follows:

Furniture, fittings 5 equipment 33 3'/o straight line basis.

1.6 InvestmentsInvestments are stated at market value ai the balance sheet date The statement

of financial ackvikes includes the net gains and losses arising on revaluations

and disposals throughout the year

12

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LUPUS UK

NOTES TO THE FINANCIAL STATEIIIIENTS AS AT 31ST DECEMBER 2011CONTINUED

Fund accounting

General funds are unrestncted, are available tor use at the discretion of theTrustees in furtherance of the general objecsves of the charity and which have not

been designated for other purposes.

Designated funds comprise unrestricted funds that have been set aside by the

Trustees for a particular purpose.

Restricted funds are those which may only be used for spsosic purposes as laid

down by the donor, Expenditure which meets these cnteria is charged to the fund,

together with an equitable allocation of management and support casts.

1.8

2

TaxabonThs charity's surpluses are derived from, and are applied towards, the maintenance

of charitable aotivities and as such are not subject to taxation.2011 2010

E E

INVESTMENT INCOMEListed investmsnt income 5,178 5 765Bank interest 5,739 7,552

0 9 13.3

2011 2010F 8

COST DF VOLUNTARY INCOME

Travel

Conferences and venues

Courses

16,10736,492

5,182

12,56630,793

4,909. 8 0,208

2011E

2D1D

7

FUNDRAISING COSTSCost af goads soicl

Fundrsislng costs.Staff salaries and nahonal insurance (note 7)(30%9)Fundraising and publicity costsPrinting, stationery and postage (30%)

44,56659,87912,249

42, 16357,206

9,134»,~ 9 3.33

20 362 25 852

CHARITABLE ACTIVITIES

Support Costs

Rent, rates and insuranceStaff salanas and national insurance (note 7) (70%)Printing, stationery and postage (70%)TelephoneLight 8 Heathlational Office Overheads

DepreciationProfessional fees"News 8 Views" magazine

2011E58.341

103,98628,581

2, 1401,785

16.7635,3172,061

38,285

2010E61,29998,37921,3(2

2,7791,6229,3732,511

987

Research and Welfare Grants (Details below)

257,259179,478

232 902661,280

3823 89,

13

Page 16: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

~LUP UK

NOTES TO THE FINANCIAL STATEMENTS AS AT 31STDECEMBER 2011CONTINUED

Research and Welfare Grants

Birmingham (Specialist Nurse)Sister S Brown, RNHRD, Bath (New)Sister S Brown, RNHRD, Bath (Old)Dr Niichael Beresford (University of Liverpool)Dr Liz Lightstone, Hammersmith HospitalCNS Lupus Nurse SheffieldProf D lsenberg UCL-S LICCDr C Tower Cent Manchester Uni Hospital NHS TrustLupus Nurse Norwich 8 Norfolk HospitalDr E Bali Musgrave Park Hospital, BelfastLupus Nurse East of ScotlandDr M Beresford, Inst Child Care, LiverpoolOr Y loannou UCLH, SLE Patients with APSOr Y loannou UCLH Psediatric Spec NurseDr D Cunninghame Graham H/smith ImpenaiDr N Erb Lupus Nurse Russegs Hall HospitalDr M Beresford, Inst of Child Health -ApoptosisProf H Moseley, Ninewells Hospital, DundeeDr E Jury, LICH London 7-CellsProf C Gordon Birmingham SLICC Research NurseDr F Hall Addenbrooke's Specialist Lupus NurseDr M Field West Scotland Lupus NurseProf M Ehrenstein. UCH, Epigenic ChangesProf D Isenberg UCH Patient reported outcomeProf A Rahman, LICH CVD nsk in SLESister S Brown (Lupus Nurse Network Group)Welfare GrantsPaid during 2011Opening commitments at 1 Januaty 2011Commitment at 31 December 2D11TOTAL CHARGE FOR 2011

Paid 2011

26 75110 71919,539

15,99110 000

17,0334,500

12,861

58,87626,55626,924

13,02615,21423,529

28, 12517,2375,8341,259

850

1 Year59,649

27,316

10,87818,546

10,00019,44414,600

51,937

13,85030,80519,94024,68440,38513,500

20,28547,05721,617

8 6195 833

FutureCommitment

6

27, 508

5,000

29,200

89,976100,0DD

13,85061,610

22,812

25,35870,58586,468

5,833

334 824 408,945 538,198(1,102,489)

947, 143

6 GOVERNANCE COSTSAudit Fee

2011

3,931

20186

3,435

7 ENIPLOYEESStaff Costs'Wages and salariesSocial sacunty costs

20116

136,09812,453

2010

128,71111,831

148,551 140,542

The average number of employees,by function, was. No. No.

FundraisingSupport

None of the Trustees received any remuneration for their servicesNo employee earned over 560,000 in either year.Expenses incurred by the Trustees for travel, accomodation snd subsistencetotalled 610,626 (201 0 69,242) were reimbursed by the chanty.

14

Page 17: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LIUPLIS UK

NOTES TO THE FINANCIAL STATEMENTS AS AT 31ST DECEMBER 2011CONTINUED

8 FIXED ASSETS

Cost1st January 2011AdditionsDnpos ala31st December 2011

Depreciation1st January 2011Charge for the yearDisposals31st December 2011

Net Book Amount

31st December 2011

31st December 2010

Mice Furniture

and EquipmentE55,80510,659~5.83545,629

51,6765,317

~25.8336,158

9,471

4, 129

INVESTMENTSBalance brought forward

Unreakaed gain r(losel

2011

193,657~6,86

2010E

172,10321,554

55 2 3,65

Investments held as follows:

Securities listed on UK Stock ExchangeUK Authorised Unit TrustsCashUK Fixed interestOverseas Equities

130,006

42719,21037,169

132,781

43220,23240,212

186 8 183 6

MATERIAL INVESTMENTS

Old Mutual Fund Managers axed interestRathbone Unit Trust Management fixed interest

BG Group PLCCroda International PLCMarlrn Currie Pamtic TrustCenlnca PLCNS Global Rate income FundLinilever PLCFindlay ParkEdinburgh Dragon Trust

2011

98221101216777

85929388951794439765

2010

10,05010,17210,36816,48312,0129,849

investments am held in a managed fund administered by Rathbone Investment

Managers Limited.

10 STOCKSGoods for resale

2011 2010E E

3~ 35 358 6

15

Page 18: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LUP SU

NOTES TO THE FINANCIAL STATEMENTS AS AT 31STDECEMBER 2011CONTINUED

2011E

2010E

11 DEBTDRS DUE W/THIN ONE YEARDebtors and prepayments 3, .833

12 CREDITORS: AMOUNTS FALLING DUEWITHIN ONE YEAROther creditors and accrualsResearch Grants (Note 5)

2011f

21,512408,945

2010f46,637

487, 1623. 533

13 CREDITORS: AMOUNTS FALLING DVEAFTER MORE THAN ONE YEARResearch Grants (Note 5) 30 I 3»

14 MOVEMENT IN FUNDSAt Incoming Outgoing Gains and At

01/01/2011 Resources Resources Losses 31/12/2011f E f f

Restricted Funds.Helen Rayner 10,955

I ~

10,955

10 955

Vnrestricted Funds:General Funds

Total Funds

296,697 868,048 (635,505) (6,845) 522,395

0!8,088 . 0 ~ 53, I

Unrestrmted funds compnse those funds which the Trustees are free to use

in accordance with the chantable objects.

Purposes of restricted funds:The Helen Rayner memodial fund is to be used to supporl trainmg days for GPs.

15 ANALYSIS OF NET ASSET BY FUND AT 31ST DECEMBER 2011

Tangible fixed assetsInvestmentsStockDebtors and prepaymentsCash at bank and in hand

Credkors due withm one yearCreditors due after one yearNET ASSETS

Unrestricted RestrictedFunds Funds

9 471186,81235 35713 111

1,246, 299 10,955(430 457)

~53852 II,

TotalFunds

9,471186,81235,35713,1'I1

1,257,254(430,457)~53. I533,350

16

Page 19: lierho pkins - LUPUS UK...LUPUS UK Charity No'a. 1051610& SC039682 TRUSTEES' REPORT AND FiNANCiAL STATEMENTS FOR THE YEAR ENDED 31STDECEMBER 2011 hil lierho pkins LLP Chartered Accountants

LIILPUS IK

NOTES TO THE FINANCIAL STATEMENTS AS AT 31ST DECENIBER 2011CONTINUED

18 OPERATING LEASE COMMITMENTS

At 31st December 2011 the shanty had annual commitments under non-canceilabieoperating leases as follows:

2011Land andBuildings

2

2010Land andBuildings

2Expiry Date:Within one year 37,950 37,950

17