20150923 mindtrek kaikkonen

14.9.2015 1

Possibilities of Open Health and Well-Being Data 23.9.2015

Risto Kaikkonen / THL

14.9.2015 2 Risto Kaikkonen / THL

14.9.2015 Risto Kaikkonen / THL 5

Key figures 2014 Budget: 111M€ Personel: 1100

25.9.2015 THL / Risto Kaikkonen 6

Finnish Health and Welfare registers at THL with personal ID (linkage) Cancers (from 1953) Cognenital anomalities (from 1963) Special medication (from 1964) Hospital discharges (from 1967) Mass screenings (from 1968) Abortions and sterilization (from 1977) Endoprostheses (from 1980) Visual impairments (from 1983) Institutionalised care at social institutions (1994-)

Tuberculosis, STIs (from 1958) Births (from 1987) Infectious diseases (from 1989) Dental implants (from 1994) Outpatient visits in public healthcare (from 1998) Outpatient visits to primary care, (Avohilmo2011) Social assistance (from 1985) Children taken custody (from 1991)

Finnish Health Surveys at THL with personal ID (linkage) Health Behaviour and Health among the Finnish Adult Population (AVTK, from 1978) FINRISK Study (from 1972) Mini-Finland (1978-1980), Health 2000 (2000-2001), Health 2011 (2011-2012) Migrant Health and Wellbeing Study (Maamu, 2010-2012) Child and Youth Health Monitoring (LATE, 2007-2009)

Health Behaviour and Health among the Finnish Retirement-Age Population (EVTK, from 1985) Regional Health and Wellbeing Study (ATH, 2013-2015, 2016-) Survey on work and wellbeing among people of foreign origin (UTH, 2014-2015) THL Biobank (from 2014) National infectious disease register culture collection (from 1995)

Information resources from eHealth-related interventions eHealth Usability and experienced benefits: physician survey (2010-) Intensity of use of the National patient data per data and user type (pilot 2015, project commencing) Citizen’s use and experiences of eHealth services (2014).

eHealth and eWelfare in Finland: survey of health care organisations’ availability status and trends in health care ICT (2003-) Register-based monitoring eHealth benefits: case national eHealth services for citizens (2015-)

Examples of information resources in Finland’s National Digital Health Data. Mostly “owned” by THL.

Entrepreneurs, think tanks, citizens, journalists, etc.

Policy makers at municipals, government, and providers

THL

Professional researchers run analyses on proprietary data, inert choice of topics, strong confidentiality

A limited selection of open aggregate datasets with less information and limited validity

Periodic reports that are largely disconnected from current decision-making agenda

The existing reality: closed system of data collection, analysis & dissemination

Possibilities of our existing Open Health and Well-being data?

SotkaNet, Terveytemme (our Health) and other relevant THL Open Data resourses

• https://www.thl.fi/fi/tilastot/tilastotietokannat/avoin-data • Sotkanet REST-API (interface for open data) • CC4.0 • Terveytemme.fi: also excel, XML data from indicators • Fineli open data: Fineli Food Composition Database • Many registers: eg. Register of Infectious Diseases


https://www.thl.fi/fi/tilastot/tilastotietokannat/avoin-data

Policy makers at municipals, government, and providers

THL

Interconnected virtual data warehouse, open interfaces and automated analyses, strong confidentiality

Ability to run custom analyses supports policy advocacy (issue selling) and journalism.

Custom analyses help bring informed views to public discourse and decision-making

Think tanks data journalists, citizens, etc.

Agile creation of analyses to support current agenda & decision processes.

Open interfaces create entrepreneurial opportunities that provide citizens with new services.

The potential future: Open and interactive system of information use

Our challenges for you • Application etc. Comparison of physical excercise, community, nutrition and

other relevant health behaviour to achieve health benefits and further examples to do even better. Visual layout but also features from eg. games.

• Application that helps areal and municipal decision making: counting the costs and benefits (to health) eg. building bicycle path taken account the effect of lowering the level of car usage and moreover the benefit for the public health.

• Application that makes areal/municipal comparisons easy to follow with key figures. Moreover it helps to find similarities in different areas/municipalities.

• Atlas and visual chart/trend application that helps to use Register of Infectious Diseases on areal level

• READ MORE http://openfinlandchallenge.fi/haaste/terveyden-ja-hyvinvoinnin-haasteet/


http://openfinlandchallenge.fi/haaste/terveyden-ja-hyvinvoinnin-haasteet/


We need new inititiatives to tackle our challenges

• Open Finland Challenge / Food and Wellness http://openfinlandchallenge.fi/haaste/terveyden-ja-hyvinvoinnin-haasteet/ Deadline 9th November

• Ultra hack / Smart City – Civic tech https://ultrahack.org/challenges/smart-city-civic-tech/ programming event 6th – 8th November in Helsinki.




https://ultrahack.org/challenges/smart-city-civic-tech/

THL Datapolitics [of pity?]

• THL launches datapolitical statements in January 2016 1. We make our valuable data visible METADATA 2. Relevance, at time, and customer tailored reporting systems

are developed. We collect only relevant data and data is recorded only once

3. Open Science and Open data is the foundation of our work 4. We make easier to achieve datasets with high

TIETOSUOJA: one stop shop 5. We develope the digitalization of the data life cycle Horisontal approach: we collaborate • Main issues: open METAdata from datasets


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Thank You for the attention

Risto Kaikkonen / THL

Risto Kaikkonen Head of Unit Information Resource Services Unit Department of Information Services The National Institute for Health and Welfare PO Box 30, 00271 Helsinki, FINLAND Phone. +358 29 524 8176 gsm. +358 40 759 4520 [email protected]

20150923 mindtrek kaikkonen

Healthcare