what do patients really want out of adherence technology?
TRANSCRIPT
What Do Patients Really Want Out Of Adherence Technology?
PAASJune 25, 2015
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► Background: Inspire and 2014 Patient and Caregiver Survey
► Survey Insights
• Patient Interests in and Willingness to Use e-Health Tools
• Patient Recommendations for Effective Adherence Technologies
• Ways to Optimize Technology Platforms and e-Health Solutions
► Q & A
Agenda
5 minutes
25 minutes
10 minutes
Background: Inspire and 2014 Patient and Caregiver Survey
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Inspire Background
Social network for PTs and CGs:
•~630,000 members •200+ communities
•~110 advocacy org. partners
‘Born’ in 2005
Live in 2006
Member growth through:
•Organic search
•Advocacy groups
•Miscellaneous
Goal was to connect patients & caregivers
with one another
AND connect them directly with pharma
(clinical trials)
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Purpose: To bring the perspectives of e-patients to life on a large scale
Launch: After several months of planning and design, Inspire began sending survey invitation emails to its members on December 11, 2014.
Fielding: In order to reach the ~490,000 members who have opted to receive such communications, invitations had to be sent evenly through December 23rd.
Closing: The survey was officially closed on January 8, 2015.
Impact: During the month in which the survey was available, 13,633 Inspire members completed the assessment.
Annual Survey Background
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Inspire members (and survey respondents) are primarily patients and caregivers with the inclusion of some ‘health advocates’
Respondents are primarily from the U.S. but do represent 100 countries and 6 continents
Average age of survey respondents was 53.6
Gender split was largely (~75%) female and only ~25% male
Using ICD-9/10 codes as a guide for categorization, the top-5 most common health areas represented by survey respondents were:
Oncology (5,557 respondents) Autoimmune (3,793 respondents) Metabolic (2,881 respondents) Neurological (2,625 respondents) Respiratory (2,214 respondents)
Annual Survey Respondent Overview
Survey Insights: Patient Interests in and Willingness to Use e-Health Tools
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Patients reported turning to a number of (primarily) online sources to obtain information about and better understand their health conditions
Seeking Medical Information
NoneOther
VideosIn-person patient support groups
Support and advocacy groupsNurses
Other patientsFriends and family
Materials provided by the doctor’s officeBooks or magazines
Online support communitiesMedical/scientific articles
Online search engines (e.g., Google, Bing)Condition-specific websites or blogs
0% 10%20%30%40%50%60%70%80%90%
1%3%
11%12%
22%24%
27%31%
38%42%
49%51%
76%78%
Sources of information used for health conditions
% of Responses
Condition-specific websites or blogs was also reported
to be the most helpful source of
information used to better understand
patients’ health conditions
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Although patients widely use online tools to help them better understand their health conditions, mobile apps are not as strongly sought after solutions
Incidence of Mobile App Usage
9%
8%
12%
72%
Frequency of mobile app usage for healthcare
Always Frequently Sometimes Never
While mobile app usage is more common among younger patients than older ones, this is still a largely untapped frontier in healthcare
Key drivers limiting use of mobile apps for healthcare:
1) Lack of ownership of a smartphone (finances), and
2) Privacy concerns
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Patients who use smartphone apps to manage their conditions do so to:
How Mobile Apps are Used
- Help prepare for doctor’s visits…………………….. - Search for information online………………………. - Set up dosing reminders……………………………….- Take notes at MD’s office………………………………- Take photos of symptoms…………………………….. - Other……………………………………………………………….
Women use their smartphone more frequently across each of these options than men
59%56%55%35%30%5%
‘Respiratory’ patients are most likely to use a smartphone to “Prep for MD appts”, “Search for
information online” and “Take notes at physician's office”
Autoimmune patients are most likely to use a smartphone to “Take photos of symptoms”
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Of the 72% of survey respondents who have never used a smartphone for their health conditions, less than half felt that, in theory, this type of tool would be helpful in managing their health conditions
Limitations to Mobile App Usage
‘Autoimmune’ and ‘Neurological’ patients are most likely to be
receptive to using smartphone apps
Across patient age groups, the idea of using a smartphone app to help
patients decreases in prevalence as younger respondents were almost
twice as likely to answer affirmatively than those 65+
Women think that a smartphone app would be a helpful tool more than
men
Survey Insights: Patient Recommendations for Effective Adherence Technologies
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While they are open to a variety of tools/materials to use with their physicians, patients most widely preferred electronic/online materials
Suggested Tools for Improved Healthcare
0%
20%
40%
60%
80%
100%
59% 57%47% 42% 40%
Recommended tools to help patients during doctor’s visits
% Responses
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Even among this 'engaged' population of patients and caregivers who have turned to the internet in search of information and support for their condition(s), technology-based solutions are not always what's desired
Adherence Tool Considerations
“I look for patient-driven information and research rather than info coming from
pharma companies.”
The need for trust
“I'm old school I like everything on paper in front of me. I never go on line
everyone’s cancer is treated differently if I would go on line I would have myself
dead and buried I stay off”
“Big Pharma is evil. Period.”
“Have you ever been to a Drs apt lately?? Aside from your fifteen minute meeting
with a dr who. Please tell me who. What dr gives out helpful advice to better your
health??”
In physician communication research conducted several years ago in the Type II
Diabetes market, it was found that physicians were trying to ‘empower’ their
patients to be adherent to treatment…
Client Case Study: “An arm and a leg”
…However, they were focusing on the complications associated with T2D…
…Everything from Increased Medication Burden to Neuropathy to Loss of Limbs to Stroke and Death were mentioned by MDs
to their ‘at-risk’ patients…
…Although these are the realities of T2D, scare tactics are not necessarily the best
motivator
Survey Insights: Ways to Optimize Technology Platforms and e-Health
Solutions
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Currently in a pilot test with a Top-10 pharma client, Inspire is exploring targeted messaging – providing MLR-approved emails to community members after they post an appropriate message on Inspire
Targeted Messaging
Very InterestedSomewhat Interested
Somewhat Uninterested
Not at all InterestedNeutral
23% 27% 23% 8% 20%
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While these patients use a variety of social media outlets personally, they typically do not turn to these same sources for their health conditions
Social Media Usage
Blogs
Google+
Other h
ealth-fo
cuse
d socia
l netw
orks
Pintere
st
YouTubeOth
er
None of the Above
0%
20%
40%
60%
80%
100%
23%
65%
25%
11%19%
0%
25%14%
40%
4%13%
21% 25%18%
1% 2%
28%
4% 2%
14%4%
33%
Personal Use Medical Use
Q & A