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Web-based PhenX Protocols using Reseach Electronic Data Capture (REDCap)

Carol M. HamiltonHelen Pan, Nathan Gaddis

April 28, 2014

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Web-based Protocols using REDCap

• REDCap Consortium and Application

• Web-based PhenX Protocols in REDCap

• Go, no-go for further development

• If “go” – then prioritization of PhenX measures/protocols for REDCap

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REDCap Consortium and Application

• The REDCap Consortium is composed of 998 active institutional partners from Clinical & Translational Science Awards (CTSA), General Clinical Research Center (GCRC), Research Centers in Minority Institutions (RCMI) and other institutions in 79 countries.

• Research Electronic Data Capture (REDCap) is an online tool to collect and manage data.

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Pilot

• Pilot: Top 10 (use frequency) PhenX measures; 15 protocols

• Web-based PhenX Protocols in REDCap

• http://23.21.236.206/redcap/• Username: guestgue

• Password: goRilla82gGgoRilla82oRilla82

• My Projects – REDCap PhenX Demo

• “Data Collection Instruments” in left panel

• “Select record”, “Save and Continue”

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Summary

• Web-based protocols enable online data collection, suggested by PhenX RISING (and others)

• Advantages

– Relatively easy development and implementation in REDCap

– Promotes use of PhenX measures among the REDCap consortium

• Disadvantages

– Users need access to REDCap

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Discussion

• Do we move forward with additional measures?

• If so, which ones?

• By most popular?

• By Mode of Collection – total 339– Self-administered Questionnaires (149)– Interview Administered Questionnaires (153)– Bioassay (28)– Clinical Examination (21)– Physical Measurement (33)– Medical Records Abstraction (7)– Secondary Data Analysis (6)

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15 PhenX protocolsFrom top 10 measures

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Follow-up question appears with skip-logic when “Yes” was selected for the 1st question

Save and go to next Form/Protocol

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Can specify multiple answers accepted

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Can specify multiple answers NOT accepted

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--- Protocol Text

--- Protocol Image

--- record 3 measurements and calculate average

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Follow-up questions only appear when “yes” is selected for previous question