ultimate goal quality of life among pwhas and affected people

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Ultimate Goal Quality of life among PW HAs and affected people

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Page 1: Ultimate Goal Quality of life among PWHAs and affected people

Ultimate Goal

Quality of life among PWH As and affected people

Page 2: Ultimate Goal Quality of life among PWHAs and affected people

Areas of Implementation Community

Empowerment

Empowering the Gro ups of PWHAsCare of

the DyingImproving Institutional Health Care

Home-based CareHuman right is a cross-

cutting theme.

Page 3: Ultimate Goal Quality of life among PWHAs and affected people

Community EmpowermentMethodology: People Research

and Development (PR&D)

1. Sustainable development of community

Purposes:

2. Improvement of health & well-being for individuals, family, and community

… to promote supporti ve environment for PW

HAs and their affected families

Page 4: Ultimate Goal Quality of life among PWHAs and affected people

Communit

y poten

tial

NATURAL RESOURCES

MAN

Man

agem

ent Lear

nin

g

Development

Framework of Community

Empowerment

KNOWLEDGE

& WISDOM

Page 5: Ultimate Goal Quality of life among PWHAs and affected people

ECI TeamSub-

district

Sub-distric

t Sub-distric

tSub-

districtSub-

district

Sub-distric

t

13-15 villages / sub-district

Total = 68 villages

ECI Target Areas : 6 sites

Page 6: Ultimate Goal Quality of life among PWHAs and affected people

Process of PR&D

2. Training the ‘community research coordinators’

1. Finding ‘community research coordinators’

Select 3-5 volunteers for each village (by village participants)

3. Collecting community data (history, wisdom, man & natural resources)4. Learning from the ‘best practice’ of other communities5. Analyzing community potential and identifying options 6. Develop the development master plan for each sub-district7. Implementing the plan

Page 7: Ultimate Goal Quality of life among PWHAs and affected people

Areas of development initiated and implemented

by communities

Page 8: Ultimate Goal Quality of life among PWHAs and affected people

Natural agriculture - organic farming

Safety food & Safety environmentCommunity healthReducing cost

Bio-fertilizer Production

Purposes

Page 9: Ultimate Goal Quality of life among PWHAs and affected people

Bio-fertilizer Project

• Back to the Nature• More simple way of life• Using local her

bal instead of chemical substance.

Healthy food & environment for all

Page 10: Ultimate Goal Quality of life among PWHAs and affected people

Supported by Sub-district Administration Organization, one sub-district has publicly declared that within the year 2005 their sub-district must be a “chemical - free farming” zone.

More than 50 villages in 6 sub-districts have implemented the ‘bio-fertilizer project’ supported by ECI team.

Basing on the lesson learned from ECI project, the implementation of the bio-fertilizer project has been expanded to other villages and sub-districts. It has been accepted and supported by Sub-district Administration Organization.

The 13 community leaders trained by ECI have become to be important resource in the region.

The well-trained leaders have been invited to share knowledge via the local radio program every month.

Page 11: Ultimate Goal Quality of life among PWHAs and affected people

Community Health Care

Traditional T hai Massage

Herbal Medicine Community Heal

th Volunteers

Page 12: Ultimate Goal Quality of life among PWHAs and affected people

Twenty one women in 3 sub-districts were trained in Thai Massage. They use their skill with their family members and neighbors. Eight of them have become the trainers and expanded the training to other sub-districts.

Learning forums on herbal medicine, healthy food, and care for the sick have been conducted in 6 sub-districts. PR&D was applied and the content of process is about health and illness, including HIV/AIDS.

The 11- day training program was provided as requested by the communities. ECI paid for the trainer, the trainees took care of their own expenses (food and travel).

Page 13: Ultimate Goal Quality of life among PWHAs and affected people

Empowering the Groups of PWHAs1. Training for OI treatment

and care2. Training for ARV

3. Training for home-based care and counseling 4. Learning forum on ‘human rights’ 5 . Participating in c

ounseling and care pppppppp ppp p p p p s at AIDS clinic of ppp ppppppppp

Page 14: Ultimate Goal Quality of life among PWHAs and affected people

Care Of the Dying

1. Learning forum on ‘preparing for terminal life’ and ‘care of the dying’2. Training program on ‘counseling for the dying’ 3. Developing the guidelines of COD - 4. Try out the guidelines by PWHA

s and caregivers 5. Publication and distribution of the guidelines6. Putting the COD into the national plan of AIDS care (2002-2007)

Page 15: Ultimate Goal Quality of life among PWHAs and affected people

Improving Institutional Health Care1. Developing the Protocol of

‘Opportunistic Infection Treatment and Care’2. Developing the guideline of UP for Training and monitoring UP practice3. Improving quality of care among health personnel4. Improving practice concerning ‘patient rights’ 5. Establishing the ‘comm pppppp pppppppppp’ ppp ppppppp pp pppppp pppp onnel, PWHAs, communi ty leaders , and h ppppppppppp.

Page 16: Ultimate Goal Quality of life among PWHAs and affected people

Improving Home-based Care

1. Synthesis body of knowledge and lesson learned2. Training ‘community volunteers’ for home-based care3. Home visit for the sick (not only AIDS)4. Home visit for people who firstly receive ARV 5. Establish home care model by

the collaborative team comprising of community healt h volunteers, health personnel, and PWHAs.

Page 17: Ultimate Goal Quality of life among PWHAs and affected people

Lesson Learned as Reported by ECI ParticipantsJune 28-29, 2002

Page 18: Ultimate Goal Quality of life among PWHAs and affected people

PR&PR&DD

Knowing self

Active

Learning

Self-relian

ceSelf-

confidence

Solidarity

NetwNetwork & ork & friendfriend

ss

New way of thinkin

g

Holistic

health

Page 19: Ultimate Goal Quality of life among PWHAs and affected people

Basic Components of Community Health

Care

Healthy Food

Healthy Work/

environment

Traditional

Care

Hospital

Community

Government

Page 20: Ultimate Goal Quality of life among PWHAs and affected people

They have learned through PR&D that HIV/AIDS could not be separated from other issues in the community.People living with HIV are not problems, but parts of solution for their community.Community empowerment is the mean to achieve quality of life - where one lives with sufficient basic needs and dignity.ppp ppppppp ppppp pp pppp p ppp

out any solution is obstacle fo r community to care for PWHA

.

Page 21: Ultimate Goal Quality of life among PWHAs and affected people

Human Rights Enhanced by ECI

Right to human developmentRight to dignity and non-discriminationRight to a standard of living adequate for the health and well-being of oneself and family, including food, clothing, housing, medical care, and social services.

Right to health and well-being

Page 22: Ultimate Goal Quality of life among PWHAs and affected people

Facilitators

Learners

Supporters

Community forums

Encourage thinking & learningExperts & Trainers

Financial support at the beginningHow to work with communityHow to work with team organizationsHow to encourage

learning processHow to change ways of thinking

Roles of ECI

Page 23: Ultimate Goal Quality of life among PWHAs and affected people

Impacts Community

Health Care Team

On going activities initiated &

implemented by community

Community leaders - human resource development

Bio-fertilizer project & animal feeding factorials with financial support of the government via the policy of Sub-district Administration Organization

Set up rice mill in the village

healthy food, healthy environment, healthy work, herbal medicine, and traditional care

Groups of Thai massagers

Page 24: Ultimate Goal Quality of life among PWHAs and affected people

Impacts

Community leaders

Network of community-based careHealth

personnel

p ppppp pp PWHAs

Network of natural agricultureECI

teamBank for

Agriculture and agricultural

cooperatives

Sub-district Administration Organization (SAO)

Community healers

Page 25: Ultimate Goal Quality of life among PWHAs and affected people

Impacts

Health care system

Care for the dying patients

Counseling - preparing for the end of life

Improved quality of care

UPARVOI

Human rights

Well-trained health personnel

Nursing Care

Page 26: Ultimate Goal Quality of life among PWHAs and affected people

1. Organize National forum to share results and

lesson learned

Future Plans of ECI Thailand

2 . Submit executive sum mary of the result and

lesson learned to policy maker3. Expand the ECI model to other provinces or countries 4 . Propose to funding age

ncy to be a research training center for HIV/A IDS and community health5. Register to be a foundation for community health

Page 27: Ultimate Goal Quality of life among PWHAs and affected people

Thank You