s52: unmet challenges in clinical research informatics

8/9/2019 S52: Unmet Challenges in Clinical Research Informatics

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UnmetChallengesResearch

InformaticsFacilitated

Discussion

of

Hands

On

Practitioners

BobDiLaura

ClevelandClinicalandTranslational

ScienceCollaborative

AMIANow!SpringConference

May2527,2010

Phoenix,AZ


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WillWeEverKeepUp?

LeotLeydesdorffshowedthatknowledge

increasedfrom1933to2001byafactorof

approximately27milliontimes. Alittle

mathematicalanalysis

shows

that

this

representsadoublingofknowledgeitself

aboutevery2.75years.

Source:http://www.xenodochy.org/gs/hmod.html

Source:HunterL,CohenKB.BiomedicalLanguage

Processing:What'sBeyondPubMed?MolecularCell,21(5);

3March

2006,

589

594.


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WhoLearnsfromPublications?

Over10yearsofexperienceinseveral

superiorways

to

teach

biomedical

,

healthcareprofessionals.Specific

andshortenthelearningcurveforsuchwork.

Source:Trainin health rofessionalsinbioinformatics.Ex eriencesandlessonslearned.Lo ezCam osG,Lo ez

AlonsoV,MartinSanchezF.MethodsofInformationinMedicine.2010;49(3):299304.


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Format

for

This Discussion


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InformaticsField FarandWide

BiomedicalInformatics MedicalInformatics Biostatistics

Clinical

Informatics HealthInformatics ComputerScience

Mathematics

Clinical

ImagingInformatics

HealthInformatics

Technology Physics

Patholo? PublicInformatics Neuroinformatics MolecularSystems

RadiologyBiochemistry

Car iacIn ormatics

TranslationalBioinformatics

BiologyScience


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Terms&Definitions CRI

biomedicalinformaticsconcernedwiththedevelopment,application,andevaluationoftheories,methods,andsystemstooptimizethedesignandconductofclinicalresearchandtheanalysis,interpretation,anddisseminationo thein ormation enerated.

Source:ClinicalResearchInformatics:Challenges,OpportunitiesandDefinitionforanEmergingDomain,byEmbiPand

Payne

P.

J

Am

Med

Inform

Assoc.

2009;16:316

327.

DOI

10.1197/jamia.M3005.


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InformaticsSpectrum

Source:ClinicalResearchInformatics:Challenges,OpportunitiesandDefinitionforanEmergingDomain,byEmbiPand

PayneP.JAmMedInformAssoc.2009;16:316327.DOI10.1197/jamia.M3005.


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HowWeDoinSoFar?


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BiomedicalInformaticsCompetenciesAcquireprofessionalperspective:Summarizeandexplainthehistoryandvaluesofthedisciplineanditsrelationshiptorelatedfieldswhiledemonstratinganabilitytoread,interpret,

andcritiquethecoreliterature

, , ,problemintermsofdata,informationandknowledgecomponents

Producesolutions:Usetheproblemanalysistoidentifyandunderstandthespaceofpossiblesolutionsandgeneratedesignsthatcaptureessentialaspectsofsolutionsandtheir

components

Articulatetherationale:Defendthespecificsolutionanditsadvantageovercompetingoptions

Im lement,evaluate,andrefine:Demonstrateanabilitytocarryoutthesolution,toassessitsvalidity,anditerativelyimproveitsdesign

Innovate:Createnewtheories,typologies,frameworks,representations,methods,andprocessestoaddressbiomedicalandinformaticsproblemsdiversedisciplines

Disseminateanddiscuss:Communicateeffectivelytoaudiencesinmultipledisciplinesinpersuasivewrittenandoralform

Source:AMIAAcademicForumsubcommitteeonBMICompetencies,2010.


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BMI

Competencies

DRAFT

https://www.amia.org/files/shared/e_Competencies_

_Definition_and_Competencies.pdf

Tocomment

on

the

document:

http://www.surveymonkey.com/s/2JHGQWF


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AMIANow!CRI2010Survey


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OurSurvey ResponseCloud

Source:

http://www.tagcrowd.com/


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Survey AnotherCloudView

Source:http://www.wordle.net/


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Survey FinalView

Source:http://www.wordle.net/


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Survey TopFutureChallenges

1. Funding,staffandinfrastructureresourcesforCRI

2. EMR

research

integration

of

workflow

&

data3. Standardizationofdata,protocols,processes&HIE


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HowWeDoinSoFar?


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CTSAPgmGoals&KeyFunctions

Source:

http://www.ctsaweb.org/index.cfm?fuseaction=quicklink.showSGC


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The

800

lb

Gorilla

(patient

HIT)

Source:http://www.healthypeople.gov


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PatientHITfromONC

Source:http://healthit.hhs.gov


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ThemesfortheFutureofBMI

1. Buildouttheenterpriseresearchinfrastructure

2. Researchprocessdesign,portals&workflowmgt

3. Data

storage,

access

and

security4. Systemintegration&researchinfo/dataexchange

5. EHRCRconnections(technical,policy,legal)

6. Knowledge

management. ngo ng ra n ngan e uca on us o eepup

8. More/better/fastercommunication,collaborations

. ,

10. Informaticsleadership


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HowWeDoinSoFar?


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InformaticsCareerPaths

Academic

Scientist Technolo ist


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Metrics&Evaluation

Howdoweknowwhatwe aredoing?

How

do

we define

value or

goals? Whatdoesour datasay?

Howdowe targetorquantifyimprovement?

*

If ignorance is bliss, why aren't more people happy?Thomas Jefferson

Source: Brandenburger A, Nalebuff B. 1996. Co-Opetition: A revolution mindset that combines competition and cooperation.


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BMIMetricsProcessandPlan

Strategic goals Areas of im ortance

Key performance indicators Metrics plan

Reporting and improvements

Ongoing metrics adjustments

Areinvestigators

Source:DraftTwoYearStrategicInformationTechnologyPlan.

Dr.DixieBaker CTO HealthSolutions SAIC March2009.

satisfied

with

informaticssupport

theyreceive?


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HowWeDoinSoFar?


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ThankYou

pec a t a n sto au arr s orconceptualdevelopmentoftheClinicalResearchInformaticstrackin

AMIANow!

as

well

as

this

session

This presentation was made possible by the Case Western Reserve

National Center for Research Resources (NCRR), a component of theNational Institutes of Health and NIH roadmap for Medical Research.

s52: unmet challenges in clinical research informatics

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