outcomes of children with hearing loss: an early …...melody harrison mary pat moeller pat roush...
TRANSCRIPT
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M E L O D Y H A R R I S O N
M A R Y PAT M O E L L E R
PAT R O U S H
S U P P O R T E D B Y N I D C D R 0 1 D C 0 0 9 5 6 0
EHDI: Partnering for Progress 2011
Outcomes of Children with Hearing Loss: A Study of Children
with Mild to Severe Hearing Loss
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Background
Most outcome studies focus on children who are deaf Reduced body of literature concerning children with
mild to severe HL Sample sizes are small or mix D/HH children Lack of control of amplification histories/audibility Few studies attempted a population sample Varied measurement strategies; earlier generation technologies
Need to understand sources of individual difference in outcomes
2
EHDI: Partnering for Progress 2011
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Domains of study
Child and Family
Outcomes
Background characteristics
of child/family
Hearing & Speech
Perception
Speech Production
Language Skills
Academic Abilities
Psychosocial and
Behavioral
Interventions (clinical,
educational, audiological)
3
EHDI: Partnering for Progress 2011
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Participants
EHDI: Partnering for Progress 2011
4
Centers HH NH
Boys Town 117 40
Iowa 85 48
North Carolina 104 24
Total 306 112
• Ages 6 months – 6; 11 •English spoken in the home •No major secondary disabilities •Permanent Mild to Severe Hearing Loss • PTA of 25-75 dB HL (500, 1k, 2k, 4 kHz)
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Speech and Language Outcomes: Birth to Three
Standardized measures Vocabulary
MBCDI
Receptive/Expressive Language
Mullen Scales
Newer, nonstandard measures Infant Vocal Interview
Open and Closed Set Test
5
EHDI: Partnering for Progress 2011
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Expressive Vocabulary at Age Two - MBCDI 6
Mean 90.83 (12.74)
EHDI: Partnering for Progress 2011
38.3% < 84
n = 60
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1 & 2 years: Mullen Scales--Receptive
7
EHDI: Partnering for Progress 2011
X = 43.3 (9.7) n = 28
X = 44.1 (15.3) n = 61
35.7% 34.4%
BEPTA r= -.425** BESII r=.453**
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PROVISION OF VOCAL EXAMPLES AND PAIRED COMPARISONS
To avoid use of technical terms
To ensure that parent and clinician “on same page”
To calibrate examiners
USES STANDARD INTERVIEW FORMAT AND PP SLIDES WITH AUDIO FILES
Vocal Development Landmarks Interview
EHDI: Partnering for Progress 2011
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Item 1-4 (pre-canonical)
Breathing in
Breathing out
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Item 2-3 (canonical)
ba
mbwea
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Longitudinal Data: Vocal Interview 11
0
10
20
30
40
50
60
70
80
90
100
precanonical canonical word total score
Per
cen
t Sco
re
Subtest
6 months (n=13)
12 months (n = 38)
18 months (n = 33)
**
** **
Paired samples t tests: ps < .001
EHDI: Partnering for Progress 2011
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A M EA S U R E O F P E R C E P T I O N - P R O D U C T I O N
A P P R O P R I AT E F O R ~ 1 8 M O N T H S – 2 Y EA R S +
D E V E LO P E D BY E R T M E R , M I L L E R & Q U E S E N B E R RY, 2 0 0 4
1 0 I T E M S , R EA L I S T I C P I C T U R E S
P R O M P T E D P R O D U C T I O N F O L LO W E D BY P I C T U R E
I D E N T I F I C AT I O N
Open & Closed Set Test (O & C)
KEYS
EHDI: Partnering for Progress 2011
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Open and Closed Set Test (Perception-Production)
Mom: And “keys”….Child: /tis/…Mom: uhhuh, where are they? Child: /tis/ + point. Mom: very good
EHDI: Partnering for Progress 2011
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Two-year olds: O&C 14
*Between groups: ps < .05 Mann Whitney U
O&C phonology
Aided SII/ BEPTA
.349* -.326*
MBCDI-WS .737**
Mullens Ex .747**
Mullens Rec .735** **ps< .013 Spearman’s Rho
0
10
20
30
40
50
60
70
80
90
100
phoneme word acceptability word ID
Per
cen
t Cor
rect
Subtest
NH (n = 28)
HH (n = 66)
EHDI: Partnering for Progress 2011
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Questions
What are general descriptive characteristics of this HOH population?
How do subject-specific variables (site, gender, income, parents education, severity of hearing loss) affect timely diagnosis and follow-up Ages of ID, HL confirmation, HA fit, entry into EI?
What are the reasons for delays between identification and confirmation? Between confirmation and hearing aid fit?
How are these HOH kids meeting the national 1-3-6 goals when moving through the EHDI process?
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Distribution of better ear PTA
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Ages of confirmation of hearing loss and age of hearing aid fitting 169 who did not pass NHS (median)
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Ages of confirmation of hearing loss, hearing aid fitting and difference by site
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Ages of confirmation of hearing loss, hearing aid fit and difference (169 who did not pass NHS): Effect of Mother’s education
p =.0442
p =.0197
NS
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Ages of confirmation of hearing loss, hearing aid fitting and difference (169 who did not pass NHS): Effect of father’s education
NS
NS
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Age of confirmation of HL for each level of mothers education: 7 month difference between highest and lowest levels of education
Age of hearing loss confirmed
Biological Mother's Education Mean SE High School or less 11.40 17.64 Vocational school/some college 8.20 12.11 College 4.68 6.08 Graduate School 3.96 6.50
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Age of confirmation of HL for each level of mothers education: 7 month difference between highest and lowest levels of education
Age of hearing loss confirmed
Biological Mother's Education Mean SE High School or less 11.40 17.64 Vocational school/some college 8.20 12.11 College 4.68 6.08 Graduate School 3.96 6.50
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Are we meeting EHDI goals? (% subjects and ranges in months)
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Age hearing loss confirmed by age of first diagnostic test
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Age HA fitting by age HL confirmed
n=163 who had both Age of Fit and Age HL Confirmed. 100 were confirmed by 3 mos (61.3%) 27 were confirmed from 3.5-6 mos (16.5%) 36 were confirmed at 7+ mos. (22.1%) Of 127 who were confirmed from 0-6 mos, 100 (78.7%) were fit by 6 mos.
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Mean time between HL confirmation and HA fit by age of confirmation
But MEDIAN time between confirmation and fit is 1 month for all age groups
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% into EI before 6 months by age of confirmation
Other reasons for EI?
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Subjects who did not fail NHS (includes delayed onset HL)
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Characteristics of Hearing Aid Fitting
What is the quality of hearing aid fitting for children in the study?
Audibility How much of long-term speech spectrum is audible
Fit-to target How close fittings are to stated to prescriptive formula
EHDI: Partnering for Progress 2011
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Characteristics of Hearing Aid Fitting
What factors limit the quality of hearing aid fitting?
Age
Do we have accurate thresholds on which to base the hearing aid fitting?
Verification method
Real-ear verification, measured or average RECD
Knowledge/skills of audiologist doing the hearing aid fitting
Consistency of use
Parent report/data-logging
EHDI: Partnering for Progress 2011
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Challenges in evaluating hearing aid fitting
Only evaluating hearing aid when children are in clinic If hearing loss progressed following last study visit, no knowledge
of when that happened
Many study subjects now using frequency lowering devices Created challenging in attempting to use SII as measure of
audibility
EHDI: Partnering for Progress 2011
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Early Services
Partnering for Progress 2011
32
Service Provider Surveys Once each year child enrolled in study Online response entry Completion of survey rewarded
Based on 86 unique professional responses Iowa Kansas Missouri Nebraska North Carolina Virginia
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Educational Level
Partnering for Progress 2011
33
22% 1%
76%
1% Highest Degree Earned
Bachelor's Doctorate Master's Other (Ed.S.)
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Professional Identification of Service Providers
Partnering for Progress 2011
34
E I Specialist
14% EC-SP
Teacher 6%
SLP 32%
TOD-HH 47%
Audiologist 1%
E I Specialist EC-SP Teacher SLP TOD-HH Audiologist
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Certification in Employment Area
Partnering for Progress 2011
35
No 2%
No Answer 2%
Yes 96%
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Years Providing Early Services
Partnering for Progress 2011
36
0 to 5 6 to 10 11 to 15 16 to 20 21 to 25 26 to 36
36
14 9 8 6
14
Years in Early Intervention
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Location of Early Service Provision
Partnering for Progress 2011
37
76%
10%
5% 6% 3%
Home Child Care Environments Center-Based E I Settings Therapist's Office Other Settings
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Caseloads Reported
Partnering for Progress 2011
38
1 to 15 49%
16 to 30 30%
31 to 45 13%
46-60 8%
1 to 15
16 to 30
31 to 45
46-60
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Children with Mild to Severe Hearing Loss on Caseloads
Partnering for Progress 2011
39
0
10
20
30
40
50
60
70
80
90
Total Caseload Mild-Severe Profound
1 to 15
16 to 30
31 to 45
46-60
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How Much Intervention? 40
0
50
100
150
200
250
300
IA NE NC
Min
utes
Location
Intervention Minutes per Month 4 x/month most common in NC Multiple providers more common in NE and IA
Sessions per month range from .5 to 6
Partnering for Progress 2011
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Indicate your Level of Comfort Related to ……
Partnering for Progress 2011
41
Assessing Speech development Language development Appropriate communciation approach
Developmental Strategies Incorporating Language into daily routines Play based language development Vocabulary development Developing oral language
Establishing Parent-Professional Partnerships Promoting early literay Carryover of language activities at home Carryover of speech activities at home
Managing Hearing Aids and FM o Inserting earlmolds o Ling 6 Sounds Test o Troubleshooting instruments o Using FM effectively
None Very Little Moderate Expert Not Applicable PNA
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Professionals’ Report of “Comfort Level”
Partnering for Progress 2011
42
0
5
10
15
20
25
30
35
40
45
50
None Very Little
Moderate Expert
Not Applicable Prefer NA
Assessment
Speech
Language
Communication Approach
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Partnering for Progress 2011 43
Articulation at 3, 5, & 7 years: GFTA
43.9% 29.2% 30.0% >85
SII=.79 PTA=46.0 <85 SII = .68 PTA = 52.5
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Supporting Communication Development
Partnering for Progress 2011
44
0
10
20
30
40
50
60
70
None Very Little Moderate Expert Not Applicable
PNA
Language in Daily Routines
Vocabulary Development
Oral Skills
Play Based Language Dev
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Managing Hearing Aids and FM
Partnering for Progress 2011
45
0
5
10
15
20
25
30
35
40
45
50
None Very Little
Moderate Expert
Not Applicable PNA
Hearing Aid and FM Support
Earmold Insertion Listening Checks
Using Ling 6
Troubleshooting
Effective FM Use
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Creating Parent-Professional Partnerships
Partnering for Progress 2011
46
Promoting Early Literacy
Carryover Speech Goals
Carryover Language Goals 0
10
20
30
40
50
60
None Very Little Moderate Expert
Not Applicable
PNA
Promoting Early Literacy
Carryover Speech Goals
Carryover Language Goals
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Frequency of Communication with Child’s Audiologist
Partnering for Progress l 2011
47
26%
22%
7%
7%
30%
4% 4%
Monthly Weekly 6-8 Times per Year 12-24 Times per Month
Daily/Anytime 2-3 Times per Week 4 Times per Year
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OCHL Team Members
University of Iowa J. Bruce Tomblin, Ph.D. (Co-PI) Marlea O’Brien, Program Coordinator Rick Arenas (IT) John Knutson, Ph.D. Sandie Bass-Ringdahl, Ph.D. Ruth Bentler, Ph.D. Lenore Holte, Ph.D. Elizabeth Walker, Ph.D., CCC-A/SLP Connie Ferguson, M.S., CCC-SLP Marcia St. Clair, SLP Examiner Wendy Fick (data entry) Amanda Murray, M.A. Jacob Oleson, Ph.D. (biostatistics) Jane Pendergast, Ph.D. (biostatics)
BTNRH Mary Pat Moeller, Ph.D. (Co-PI) Patricia Stelmachowicz, Ph.D. Ryan McCreery, Ph.D. Meredith Spratford, Au.D. Lauren Berry, M.S., CCC-SLP Emilie Sweet, M.S., CCC-SLP Mark VanDam, Ph.D. (LENA) Sophie Ambrose, Ph.D. (LENA)
University of North Carolina-Chapel Hill Melody Harrison, Ph.D. Patricia A. Roush, Au.D. Shana Jacobs, Au.D. M. Thomas Page, M.S., CCC-SLP
48
EHDI: Partnering for Progress 2011
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Thanks 49
EHDI: Partnering for Progress 2011
Any questions?
And thanks to so many parents,
schools and professionals!!