NJ Statewide Family Centered HIV Care NetworkNJ Statewide Family Centered HIV Care Network

Funded by Part D of the Ryan White Care Act through the Health Resources and

Services Administration since 1988

Presented by Ellen Dufficy, April 28, 2014

Family Centered Care ServiceFamily Centered Care Service

Part D - Goals:

Enhance service delivery to the target population: infants, children, adolescents, women, and their family members

Provide state-of-the-art medical care in conjunction with comprehensive medical case management

Target pregnant women for HIV counseling and testing, and when appropriate, provide subsequent treatment plans to foster healthy birthing outcomes and thus reduce the rate of perinatal transmission

Facilitate access to clinical trials

Family Centered Care Service Continued Family Centered Care Service Continued

Educate clients with the “Prevention for Positives” messages

Maintain consumer involvement in the strategic planning process, and enhance their ability to serve as peer mentors

Maintain a culturally competent environment to promote engagement and maintenance in care for minority clients

Provide all adolescents with a service plan to assure successful transition to adulthood

Engage in activities that continually assess the needs of the clients, measure levels of satisfaction, and evaluate the quality of care

Statewide LocationsStatewide Locations

1. FXB Center, UMDNJ Newark

2. Newark Beth Israel, Newark

3. Jersey City Medical Center

4. St. Joseph’s Hospital, Paterson

5. Robert Wood Johnson, New Brunswick

6. Jersey Shore University Medical Center, Neptune

7. Cooper University Hospital, Camden Encompasses the entire State

Medical ServicesMedical Services

HIV specialty careNutrition counselingHepatitis and TB screeningDental careClinical trials Inpatient careTreatment adherenceImmunizationsCo-located mother/child clinicsOb/Gyn and Prenatal ServicesMental Health

Medical Case Management ServicesMedical Case Management Services

Coordination of services Permanency planning Crisis intervention Disclosure counseling Logistical support Support groups Family planning Outreach Long term maintenance in

care

Clients Served in Year 2013Clients Served in Year 2013

More than 55 Pregnant HIV+ women

More than 1500 women

More than 590 HIV+ perinatally infected individuals

More than 450 HIV+ adolescents

Racial and Ethnic CompositionRacial and Ethnic Composition

White, Non-Hispanic 8% Black, Non-Hispanic 68% Hispanic/Latino 22% Asian <1%More than one race <1%

Race/Ethnicity Percent

Rates of vertical transmission have been on a decline since 1993, primarily due to the administration of AZT to pregnant women.

A Standard of Care was implemented in NJ in 2002 with the intent to provide HIV counseling and voluntary rapid or expedited testing of women who present in labor with an unknown serostatus.

A Standard of Care was implemented in NJ to require HIV testing in the first trimester and a repeat HIV testing in the third trimester.

Perinatal Transmission in NJPerinatal Transmission in NJ

Perinatal Transmission in NJPerinatal Transmission in NJ

Part D Network Staff in NJPart D Network Staff in NJ

Available to provide medical case management and/or medical care to pregnant HIV+ women

Available to provide guidance to other providers on appropriate care and treatment of exposed neonate, including information on ART and breastfeeding.

Provides follow-up care for more than 88% of all exposed neonates born in NJ.

Network Contact InformationNetwork Contact Information Ellen Dufficy, Project Director : 609-777-7795 Cooper Hospital, Camden: 877-496-7023

Susan Burrows-Clark The FXB Center, Newark: 973-972-4150

Peter Oates Jersey City Medical Center: 201-915-2000 Ext. 3002

Evelyn Lomax Jersey Shore Medical Center, Neptune: 732-776-4271

Carleen Brewer Newark Beth Israel Hospital: 973-926-4982

Kristen Ehlers Robert Wood Johnson, New Brunswick: 732-235-7894

Roseann Marone St Joseph’s Hospital, Paterson: 973-754-4701

Linda Smith