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Newsletter 17. Spring 2011

FSH-MD SUPPORT GROUPSupport Group of the year 2010-2011

.........Hello and Welcome to our spring edition.as you have probably noticed there is achange to the title of my column as this is indeed thefinal word from me.It’s with deep regret that I’m stepping down from myrole as Chair of the FSH-MD Support Group UKI’ve enjoyed being part of an exciting journey as thegroup has moved forward reaching out to as manypeople as possible. I hope that in the short time I’vebeen chair I have made a small difference. I knowthat the best part for me has been meeting ourmembers and sharing their experiences of livingwith FSH MD. Louise and I have had great fun organising the GetTogethers though at times we often wondered if wehad set our aims too high, but thanks to the supportof our members, guest speakers and everyone whofreely gave of their time to attend we seemed to pullit off.As some of you may know I’ve not been well of lateand I’m due to go into hospital for surgery. Thiscombined with other issues have made Louise and Idecide to stand down. We will keenly watch theprogress of the group as it strives forwardcontinuing to offer Support- Information -Encouragement to those with FSH-MD, theirfamilies, carers and friends.

Warmest Regards

Karen & Louise ContentsPage 1 Message from the Chair

Page 2 Wheelchair love affair by Neil Withers

Page 3 Pilates helps Gilbert Brookes

Page 4 Surgery for droopy eyes by Karen Bayliss

Page 5 London to Paris Cycle Challenge.by Pete Jones

Page 6 & 7 Bungalow Diaries pt2 by Sheila Hawkins

Page 7 Fundraising CD by Lil Levy, Rapper

Page 8 Roxburgh UK. by Les Sutton

Andy Findlay has kindly agreed to Chair the JuneGet-Together (see above)

Anyone who is interested in taking on therole of Chair please contact the group

secretary for further information:+Traceyanne-fsh@hotmail.com

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How I fell in love (with my wheels)

So, there I was, sitting in the airport again, the secondtime in less than a year and after the disaster whichwas my Christmas break to Tenerife, a trip that almostcost me my pride, my sanity and my girlfriend. A tripthat showed me in no uncertain terms that I wasn'tcoping with disabled life and a trip where when I wasasked ‘do you love yourself? by my partner, myresponse was ‘love? I don't even like myself’. The nextfew months were the most challenging and liberatingof my life.The flight was a relatively uneventful affair, a niceroomy seat on the plane was a great help. Also I hadasked when booking if the seat next to my girlfriendand me could be left empty ‘if possible’, and on theway out we got lucky. Is it just me, but once yourealise you can’t get to the toilet that its all you canthink of, most definitely a FSH’ism.When my partner and I touched down in Cairo, the skywas orange from an earlier sandstorm. “Why didn’t Ipick somewhere a little more FSHD friendly?” I askedmyself quietly. I took a deep breath, I had done myhomework, booking with a specialist agent, dotting thei’s and crossing the t’s as I went - all I had to do wasrelax and enjoy. This wasn't going to be a repeat of sixmonth earlier.We were met at the airport by our attendantMohammed and what I can only loosely claim to bemy adapted transport, a minivan minus it’s back seatsand with two homemade metal ramps. There is noconcept of Health and Safety, I was asked to apply mywheelchair brake and hold onto a seat and, suddenly Ifelt very religious.Soon we were on our way again. Cairians have lead intheir blood and in this twin city of 24 million peoplethe car is king. Driving is chaotic, bewildering anddangerous for all but the local population. Imagine thisif you will, 3 painted lanes of travel, 6 looselydefinable streams of traffic with lorries undertakingdonkeys and camels at full speed along the hardshoulder then dodging back into the flow before thenext water melon seller pitched at the side of the road.I picked the closest luxury hotel I could find to thePyramids and I wasn't disappointed when we finallyarrived. Dismounting from the minivan in heavytraffic is scary, the car horns are a constant noise, dayand night, but over the days you learn to filter it out. Inthe first few hours I was thinking ‘oh my god I’ve onlyjust got here and I’m gonna die!!!’On arrival at the hotel I had my first experience ofwhat was to be an everyday occurrence. There is whatour guide called Tourist Police everywhere, usually inmobs of 3 or 4, mostly asleep, wearing white, withtheir guns tucked down the back of their belts. As far

as I can tell their only purpose is to take money offpeople - think ‘the tax man’ but with guns. The onesthat are awake will jump in front of the the van andswear blind you can’t park where you want, then whatensues is pure theatre, which all ends in money beingpressed in to the TP’s hand and the guides carrying onas normal.I thought, what a joy to finally be there, one problemthe previous inhabitant of our disabled suite wasrefusing to leave and they offered us a regular room.My stress levels went through the roof, but me beingme, I dug in my heels and all was sorted in a hour ortwo and we were set for dinner, cocktails and a earlynight, ready for the pyramids the next day.Next morning the previous days sandstorm had clearedand as I marvelled at the pyramids whilst sipping myfirst coffee of the day. I suddenly thought about whatlay ahead, the terrain of the city and of the desertwould have been inconceivable without mywheelchair, and this is why I hadn't dreamt of visitingsuch a place before. I felt incredibly lifted; almosttearful with joy...........What followed will stay with me forever and wasa very personal voyage of discovery, a story of findingmyself again and seeing the world and its inhabitantsfor what they really are. I know Egypt and especiallyCairo are having some tough times right now, but theyare the most wonderful vibrant and helpful people Ihave ever met and I hope they find their way forwardthe same as they helped me find mine.

Neil Withers

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Pilates by Gilbert Brooks

Two friends of mine had been trained in dance andsuggested that Pilates may help improve my movement withregards to FSH. They told me Pilates was used in dance tobuild overall stability and strength.I have no qualifications to be telling anyone about Pilates,other than I have been shown some exercises by a lady whowas a physiotherapist and taught Pilates and I do somePilates exercises. I must confess that my disciplinesometimes leaves something to be desired with my exerciseregime.So I have no certified qualifications, but I am a qualifieduser and have to say that the difference Pilates makes to mystability is very noticeable. When I was still very mobile, butgoing through the tripping over nothing stage, the exercisereduced the number of trips I took and I felt that I waswalking more balanced, more stable and more confidently.Given all this, I can’t understand why I don’t consistently dothe exercises. I used to do about 20 minutes, 3 times a weekbefore I went to work. I was cycling 13 Km to work in thosedays, otherwise I may well have been doing more.Currently, I don’t trip so much and couldn’t understand whyuntil the more experienced Traceyanne told me that it isbecause I am walking more slowly. That makes sense, butnot being so bright, I never twigged it. Now, I am doing theexercises 2 or 3 times a week, but for about 40 minutes to anhour, sometimes less, but generally 40 to 60 minutes. I amnot so mobile nowadays and walking has become a definitedislike, although I still do it. The difference the Pilatesmakes is not so outstandingly noticeable. Now I have tothink whether it is making a difference and if I stop andthink, then the answer is yes. I get less aches and pains,particularly in my back. If I stop doing the Pilates, forwhatever reason, then I start to get niggles in my lower back,which turn into big aches until I get going again with theexercises.So in summary so far, Pilates is 100% worthwhile.

There are 2 forms of Pilates, those with equipment and thosesimply on a mat, with no equipment. I went to see a ladyinstructor about 3 times and she showed me some Pilatesmat exercises she thought would help me. The fact that shewas a trained physiotherapist helped in choosing suitableexercises, at least in my opinion.Here’s some of the basics she told me. The exercises are tostrengthen the core muscles and of those muscles, she toldme to concentrate on the ones you would use to stopyourself wetting yourself when you want a wee. I believethese are the most important one, not because I don’t want towee myself, but because she told me. Tighten these muscleswhen doing the difficult part of an exercise then relax them alittle when doing the less strenuous part, e.g. when doing asit up, to whatever extent you can, when raising your headand shoulders then tense the core muscles and whenlowering relax them a little. Just one session of exercisestensing and relaxing these muscles usually gets rid of anyback ache that I have.The breathing has to be controlled too. Breathe out as youdo the strenuous part and in as you relax or are at rest. This

explanation is a little simplified, but I will put in somelinks to exercises later and you can pick up a betterunderstanding from them.The tensing of the core muscles and the breathing, fillingyour lungs to press into your back, can be done almostanytime, e.g. washing up, ironing, waiting at the bus stopor anywhere.Concentration is a big part of Pilates, it is very necessaryto be thinking about all parts of the exercise, breathing andcontrol, so that you do it correctly and in a controlled way.There has to be control of movement from yourself, notthe exercise taking over what is being done. Myself,having poor concentration, I find this difficult, but knowthat the better my concentration, the more effective theexercises are.I was not able to do the full movement of some exercises,so did what I could, trying not to overdo it and so losecontrol of the movement.I preferred to do the exercises at home, but in hindsightgoing to classes may have been even more effective, inlessons an instructor would keep me on the straight andnarrow when my discipline wanes and the exercisesbecome sloppy. People prefer different approaches, i justprefer to do them myself. Most health/sports centres havePilates classes, I am sure there will be some close to mostplaces if classes are preferred to home exercise. Doing theexercises at home helped me in the battle to keep FSHDat bay, a battle slowly being lost, but any victory isbeneficial physically and morally. Pilates is also beneficialto my moral. I feel better within myself if I do theexercises and have noticed I seem to get more things donein a day, if I do the exercises in the morning. Not always,sometimes I can overdo the exercises and run out of steamlater in the day, but 90% of the time my days seem fullerafter exercising.So pick out the exercises that suit you and try some thatyou don’t want to do and see how it goes.If you search the internet you will find plenty of sites toget you started. Below are a few to set you on your way,there are not a lot, but digging on the internet should findmore.DON’T FORGET !!! WE CAN’T ALWAYS DO FULLEXERCISE MOVEMENT. DO WHAT YOU CAN.

http://www.videojug.com/film/pilates-the-essentialshttp://www.videojug.com/film/pilates-how-to-achieve-great-abdominalshttp://www.videojug.com/film/pilates-how-to-strengthen-your-backhttp://www.videojug.com/film/pilates-how-to-prevent-and-relieve-lower-backachehttp://www.youtube.com/watch?v=XXyYBCniBL4http://www.youtube.com/watch?v=JA6QEvmaFeQ

Someone from our LOGOdoing Pilates?

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Droopy Eyes with FSH-MD.Karen Bayliss's experience.

Ever since I was diagnosed with fsh-md I’ve had problemswith my eyes mainly dry eye caused by my eyes beingpartially open when sleeping and more recently droopyeyelids. I suppose as with most symptoms of fsh-md itslowly crept up on me. I’d always had one eye whichseemed lower than the other but given that I’ve one armstronger than the other and the same with my legs I justaccepted that it was all part of having FSH-MD I’d practically plucked away all my eyebrows because forsome reason they always looked like two hairy caterpillarssitting on my eyelids rather than being on my brows wherethey belonged.

Before surgery

My optician pointed out at my routine eye check that mydroopy eyelids had become worse since my last check up.When he lifted my eye lids at the sides I realised that myworld had indeed become a lot darker almost like wearing apeaked cap that protects your eyes from the sun but in thiscase it was making my world much darker when I wasindoors and my field of vision from the side was alsoaffected, a bit worrying as I’m still driving.At my next appointment with my neuromuscular consultantI mentioned my droopy eyelids and asked if anything couldbe done, he referred me to a consultant plastic surgeon atthe Queen Elizabeth Hospital, Birmingham.On my first appointment I had photographs taken and aftera thorough examination of my eyes and a history of my fshand how this affected my face it was decided a brow liftwould be the answer.I wasn’t keen on the idea of a general anesthetic so myconsultant said he would do it as a day patient under alocal.On November 1st I arrived at the hospital for my operationa bit nervous, not about the actual surgery but more how Iwould manage transferring from the bed to trolley and backagain.....the usual worries when you’re unable to do thesethings unaided.My surgeon was brilliant he explained that he would makethe whole of my forehead numb and that I shouldn’t feelanything at all. Everyone in the theatre was really helpfuland reassuring I suppose they were used to their patientsbeing asleep during surgery not fully awake like me.

A cold compress was placed across my eyes to help keepthem closed, and to the strain of some very laid back jazzmusic my operation commenced.I had two slices of skin each the size of an orange segmentremoved from above each eye on my brow bone then the

muscle above my brow was lifted and attached to tissueunder my fore head the cuts were then stitched backtogether so that my eyebrows were once again on my browbone I was in theatre around two hours. The time seemed tofly by and next thing I knew it was all over and I was sittingup in recovery. About half an hour later I was back on theward where I finally had the opportunity to get my mirrorand have a look at what had been done.......

After surgery

.......Apart from looking like I’d done ten rounds in theboxing ring I was really pleased with the result and I noticedhow bright everything now appeared.

Over the next few days the bruising came out, I did have alot of swelling around my eyes and forehead my daughterremarked that I looked like a cross between HermanMunster and a Klingon........lolIt was quite painful for the first week and I took therecommended pain relief, but gradually over the weeks thepain lessened and the swelling went down. I’ve not had anypermanent numbness to any part of my forehead which ispossible when undergoing this type of surgery.

I went back to the outpatient’s eye clinic to have the stitchesremoved ten days later and my surgeon was pleased withthe result. My next appointment was in December where itwas decided that I may have further surgery on my eyelid toget rid of the last of the loose skin as the lids are stillslightly hooded, but the final decision won’t be made tillApril when I return for a check up.

I’m really pleased with the result and glad that I had it done.

For the first time in years I actually have eyebrows in theright place and they’re not drawn on with an eyebrowpencil.

Your Email AddressesPlease let us know if you change youremail address or if you prefer us to sendfuture newsletters and updates by email.It keeps our costs down and is mucheasier for us to keep in contact with youEmail fshgroup@hotmail.com

Your Email AddressesPlease let us know if you change youremail address or if you prefer us to sendfuture newsletters and updates by email.It keeps our costs down and is mucheasier for us to keep in contact with youEmail fshgroup@hotmail.com

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Donations & Fundraising

We’re very grateful to receive donations from mem-bers, often in memory of loved ones, or from fundrais-ing events.You can now specify if you would prefer to donate toour research fund or to the group in general to helpwith running costs and organizing of events.All donations can now be sent to us direct. Please in-clude your name and address so that we can acknowl-edge your donation. Cheques should be made payableand sent to:FSH-MD Support group UKFSH Support group UKThe Treasurer10 Stoneyhurst Court, Shelton Lock. Derby DE24 9JZ

Dates for your Diary........April 5th-7thNaidex, NEC Birmingham

www.naidex.co.ukJune

11th FSH-MD Support Group UK.Summer Get Together (see info/booking pack for more de-tails)9th & 10th South West Disability Show,West Point Exeter – www.southwestdisabilityshow.co.uk

July1st & 2nd Motability Road Show,East of England Showground, Peterboroughwww.mobilityroadshow.co.uk10th DisabilityAwarenessDaywww.disabilityawarenessday.org.uk

September14th-15th Naidex Scotland, SECC Glasgowwww.naidex.co.uk/NaidexScotland

October1st MDC Scottish Conference,Beardmore Hotel, Glasgowwww.muscular-dystrophy.org15th MDC National Conference,East Midlands Conference Centre, Nottinghamwww.muscular-dystrophy.org

Pete’s New Year Challenge to cyclefrom London to Paris

Some of you may know me from previous FSHSupport Group Get Togethers where I’ve demonstratedthe passive exercise cycle range from Medicotech Ltd.For those of you I’ve not met let me introduce myself.My name is Pete Jones and I’m 26 years old. I liveand work in Milton Keynes.

I am taking part in a charity Cycle Ride from Londonto Paris in June to raise much needed funds to furnishand equip the new West Midlands NeuromuscularCentre.

Through my work I have seen the problemsencountered by people with a neuromuscular conditionand in particular Muscular Dystrophy. Equally I knowthe importance that regular physiotherapy andcontinued care and support can make to the quality oflife, helping to maintain mobility and independence foras long as possible.

I have set up a blog and a “just giving page” as a wayof raising awareness of my challenge and the impact ofliving with Muscular DystrophyIf you would like to sponsor me visithttp://www.justgiving.com/petejones1984www.justgiving.com/petejones1984

Follow my blog athttp://pete-j.tumblr.com/

Thank You for Your Support

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Bungalow Diaries 2We’re renovating a run down bungalow quite close towhere we live, so that as I get less mobile we canmove in a more planned and considered way, ratherthan realising I can’t climb the stairs to the bathroomand having to move very quickly.

By autumn 2010 we had decided how we wanted toarrange the house and started to plan the details. Oneof the things we wanted to do was to widen the doorways so if I end up using a wheelchair it will be easyto get around. Widening the doorways is messy, dis-ruptive and best done early on, so that was OK. Whatwas more complicated was finding wider doors whichare not that easily available for the domestic setting.And if there’s a wheelchair it’s a good idea to fit akick-plate at the bottom (to prevent damage and ) inwhich case panelled doors aren’t really suitable. In theend we chose some doors from a company which sup-plies doors to offices and shopping centres. The com-pany will supply and fit the doors, handles and frames,so we had to choose what we wanted, to get theframes, long before we were thinking about style anddecorations.

We needed new windows and external doors andwanted to put a French window in the kitchen so wentto a local company we had used before. We were par-ticularly keen that the front and back doors didn’t havesills that had to be stepped, or tripped, over and theirsurveyor was very helpful with this. What seemed totake much longer to work out was how I wanted eachdoor to open – right or left hand – and then to get itwritten down accurately. This will be important whenwe first move in as there isn’t yet level access so therewill be small steps into the property, which I’ll be ableto manage if I can hold onto the door frame rather thantrap my hand in the hinge. Eventually we’ll have theoutside re-paved with level access but we’d like to de-lay that until all the messy work is done rather than getcement or paint on the nice new paving.

We got some quotes for plumbing – one to install adisabled bathroom and one for central heating – but

then decided we’d rather have the same plumber in-stall both, so that if there is any leak or problem it’sclear who’s responsible. However, disabled adapta-tions don’t attract VAT, whereas installing heatingdoes, so we need to treat this as two separate jobs,with separate bills, even if the one plumber does thework all at once. Further information re VAT and dis-abled adaptations is available fromhttp://www.hmrc.gov.uk/vat/sectors/builders/disabled.htmThe bathroom will be a wet-room with a walk inshower, non-slip Altro flooring, and a higher toilet, aswell as an ordinary sink, radiator/towel rail etc.

The plan was that Paul, my husband, would do theinitial building work, laying foundations for the inter-nal walls, in December. So then came the coldestDecember on record which meant that it was impossi-ble to use cement (because it won’t set below freez-ing). Day after day we watched the weather forecastand day after day we could do nothing. If this was aTV property programme this would be the lead up tothe advert break! Finally, just before Christmas Paulwas able to lay some internal foundations, coveredthem with insulation (old duvets etc), and they hadset by 28th December. The Building Inspector cameround on December 29th and approved them, and wefound a bricklayer who worked on New Year’s Eveand New Year’s Day to build the internal walls. For-tunately it just about stayed warm enough for thewalls to ‘go off’ with a little help from electric heat-ers which kept the chill off the room.

One of my concerns was the relatively small kitchenand I wanted some help to maximise the space so Iwent to B+Q as they advertised kitchen planningservices. This proved quite useful, along with a saleon cupboard fronts and a 0% finance deal also on of-fer. However, what they couldn’t do was show meon-line what it would look like if we changed the col-our of a worktop or tiles – obviously only somethingthe upmarket kitchen designers can do. We decidedon a finish to match the internal doors but what wasmuch harder was working out where we wanted sock-ets and light switches, how high they needed to beabove the floor etc, where the boiler would be, how t

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Editorial note.

All published articles reflect the views and opinions ofthe contributors and not the FSH-SG committee.

The committee welcomes contributions (in Wordformat) and photographs separately (in jpeg format)which should be submitted as soon as they areavailable.

For guidance a full column takes ~ 350 words, lesswth photos. Photos are welcome as they add interest.

The next newsletter is the Autumn edition planned forSeptember.

fit a radiator in the kitchen. The B+Q kitchen designercame up with various suggestions about how we re-solved some of these issues but we felt we had tomake our decisions from a range of opinions ratherthan follow the advice of any one particular trade.fThe electrician was able to start on 10th January andall seemed well, except that we then discovered thatthe kitchen floor wasn’t level (a fall of 20 mm across2.5 metres), so had to check where he was measuringthe socket heights! He also installed a TV aerial wehadn’t asked for, but we decided it was probablywhere we’d like the TV so left it there. At the sametime the windows and external doors were fitted whichmade the place look much better, but the problemswith the uneven floors also caused problems in fittingthe back door. Eventually these were resolved but cre-ated another job - levelling the kitchen floor beforeinstalling flooring or the kitchen.

At the end of January the plasterer started.Plastering’s a funny thing in that it’s messy and smellyand then suddenly it dries out and the place looks somuch better. Except that in this case it did seem to beexceptionally messy and it took a while for the wholehouse to dry out without heating. And after plasteringcame the plumbers – a father and son team recom-mended by a neighbour. They obviously knew whatthey were doing, including managing customer choice!The plumber gave me the sanitary ware catalogueopen at a certain page and said, ‘most people like thiskind of bathroom sink’, with the implication that wewould too! Later on we had to choose some taps andtiles and he seemed surprised by how quickly we didit. However, by this time we were on a roll and wereso used to making these decisions it seemed very easyand certainly couldn’t be bothered to take the cata-logue away for the weekend as the next day we wentoff to choose lino and carpets.

At this point things really started to happen – plumb-ing, electrics, decorating meant that it quite quicklychanged from a building site to something that lookedlike a potential home. Nevertheless, as the TV pro-grammes say, it’s all in the finish….

One of our younger members is raising funds for oursupport group by donating 25% of the proceeds of herrecently released cd . Fifteen year old Frey Levy, aka'Lil' Levy' is a rapper and recently released a 25 trackalbum of her own songs about her life. Freya wasrecently diagnosed with fsh, three other members ofher family also have the condition. You can listen tosome of the tracks on her Facebook page, if youwould like to purchase your own copy emailFreyalevy@hotmail.com

http://www.facebook.com/pages/Lil-

Levy/185251268174301

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01926 888987www.roxburghuk.commail@roxburghuk.

Changed my life for the better!CaninePartners

For those of you who haven't met Jet, he is my CaninePartner and assists me with day to day tasks, such aspicking up dropped items like keys, pens and the mail.He is also trained to pull off pieces of clothing, like coats, shirts, trousers and socks and will alsounload the washing machine, open and shut doors andretrieve items, particularly important ones like myphone in an emergency.

In the previous newsletter there was an article of howJet retrieved my phone, covered me with a blanket andkept me conscious following a potentially lifethreatening accident. He was acknowledged for hisheroism and outstanding loyalty (Jet that is, not me).Jet has changed my life for the better in so many waysand has increased my independence and removedmany of the risks faced by me on a daily basis as aperson who experiences FSH. The most common riskfor me is over stretching to reach for an item, be it onthe floor or a kitchen top, with the ultimate outcome offalling out of my chair.

Who can Canine Partners Help?

Who can benefit from a Canine Partner? The answer isanyone who has a disability and is over the age of 18years old, the range of partners who have benefitedfrom having a canine partner is wide. As of 2010 therehave been approximately 300 partnerships throughoutEngland, Wales and Scotland, with at least 130 ofthose still active, with 40 new partnerships per yearbeing made.If you can answer "Yes" to the following questions,there's a good chance that one of our dogs might bewhat you're looking for:

� Do you have a physical disability?� Do you like dogs, or believe you will like dogs

when you get to know what dog-ownership isall about?� Would you be able to give a dog a good off-

lead walk every day, somewhere safe and awayfrom roads? (This normally involves at least a2 mile walk, so electric wheelchairs or scooters

tend to make this easier than self-propellingwheelchairs. Or perhaps you are able to self-propel for 2 miles - not easy on a muddyday).� Would you enjoy playing with a dog?

Grooming a dog? Training a dog? Taking adog most places with you, by your side?� Do you think that if you took responsibility

for a Canine Partner, you could become moreindependent? Would life be better?� Would you enjoy the companionship that a

dog brings?� Do you have somewhere safe and enclosed

where the dog could toilet, which you couldeasily access from the house?� Are you 18 years old or coming up to your

18th birthday over the next few months?

Canine partners cost in the region of £20,000 to trainand partner up but this is of course not the cost tothose wanting a partner. Partners pay a £1Fee as partof a custodian agreement and the canine partnerremains the property of Canine Partners throughoutits working life. Costs of having a partner, includingfood and insurance, are paid by the partner and it hasbeen known for Local Authorities to authorise theuse of Direct Payments to help cover such costs.As a registered charity Canine Partner receives nogovernment funding and is wholly dependent onpublic donations and legacies.

The Charity aims to train dogs to meet the needs ofpeople with even the most complex disabilitiesincluding members of HM Armed Forces.

Please visit their website athttp://www.caninepartners.org.uk/Index.htm andconsider adopting a puppy or making a donation to aenable them to improve the quality of disabledpeople lives, including a number of FSH MDmembers already.

If you are interested in making an application youcan complete and application form on-line athttp://www.caninepartners.org.uk/application_form