connection action hope - national psoriasis foundation · connection action hope. dear supporter,...

2013 ANNUAL REPORT July 1, 2012 - June 30, 2013

CONNECTION ACTION HOPE

Dear Supporter,

A lot has changed since Beverly Foster’s husband placed an ad in a Portland, Ore. paper hoping to find people she could talk with about her severe psoriasis. Within a week, Beverly received more than 100 phone calls. She began organizing meetings, and in 1967, she led the formation of the Psoriasis Society of Oregon.

Today, we’re the National Psoriasis Foundation and we serve more than 2 million people every year who are affected by psoriasis and psoriatic arthritis.

We now have offices in Portland and Washington, D.C., and a growing research program that has invested $10 million to date in grants and fellowships that have led to discoveries about the genetic origins of psoriatic diseases and the link between psoriasis and other serious health conditions, like cardiovascular disease.

We have 80,000 advocates working to increase funding for research, improve access to care and reduce out-of-pocket medical expenses. Our staff and volunteers helped more than 3,500 people in fiscal year 2013 receive support and information about treatments and insurance. Our websites received 4.3 million visits in 2013.

One thing hasn’t changed, however: Our focus on helping people with psoriasis and psoriatic arthritis live better lives.

In this report, you’ll learn how our Psoriasis One to One Mentor program has helped people struggling with psoriasis and psoriatic arthritis form connections that can change lives. You’ll read how one family was driven to act after a son’s diagnosis and created an event that raises funds for psoriatic disease research – and lets kids have fun, too. You’ll also discover how hope for a cure for psoriasis got one prominent scientist to dedicate her career to psoriatic disease research.

Your generous contributions make all these programs, and others, possible. Thanks to your support, the Foundation collected $7.5 million in revenue in fiscal year 2013, including nearly $1.4 million in individual contributions. With your help, we can achieve our mission of finding a cure for psoriasis and psoriatic arthritis and to eliminate their devastating effects.

Sincerely,

Randy Beranek Daniel Farrington

EDITORIAL STAFF

Catie Coman Vice President of Marketing and Communications Tamara Miller Editor/Writer

Tina Rouhoff

Creative Services Manager

Robin Coleman Graphic Designer

Kara AndersonWriter

Randy Beranek President and CEO

Dan FarringtonChair, Board of Trustees

President and CEO Chair, Board of Trustees

National Psoriasis Foundation is the largest psoriasis and psoriatic

arthritis patient advocacy organization and not-for-profit funder of psoriatic

disease research worldwide. We help more than 2 million people annually

through educational programs and services. Our mission is to find a cure for

psoriasis and psoriatic arthritis and to eliminate their devastating effects

through research, advocacy and education.

THE FOUNDATION’S STRATEGIC PRIORITIES INCLUDE

The Foundation has a five-

point action plan to find better

treatments and a cure:

Æ Fund the startup of promising new and innovative studies through our Discovery and Translational Grants.

Æ Increase the number of scientists doing psoriatic disease research through our Medical Dermatology Fellowship program.

Æ Provide scientists with DNA samples through the National Psoriasis Victor Henschel BioBank, aiding their search for specific genes that cause psoriasis and psoriatic arthritis.

Æ Work with federal policymakers to increase government investment in psoriatic disease research.

Æ Promote patient involvement in research studies and clinical trials, vital to bringing safe and effective treatments to market.

ADVOCACY

The Foundation’s advocacy

priorities are focused on

strategies that promote

federal research efforts and

ensure individuals living with

psoriatic diseases have fair and

affordable access to needed

treatments. The 2013 advocacy

agenda includes:

Æ Growing and supporting federal investment in psoriasis and psoriatic arthritis research.

Æ Advancing the psoriasis and psoriatic arthritis public health efforts at the Centers for Disease Control and Prevention.

Æ Reducing out-of-pocket expenses for treatments.

Æ Ensuring affordable access to new treatments.

The Foundation focuses on

educating patients and health

care providers on how to best

manage psoriasis and psoriatic

arthritis and improve overall

health. Among our efforts:

Æ Creating the CONNECT kit, a resource for health care professionals that provides current treatment guidelines, research opportunities and materials to help them educate their patients.

Æ Establishing the Psoriasis One to One Mentor program that matches the newly diagnosed with someone experienced with living with psoriasis or psoriatic arthritis and trained to help.

RESEARCHEDUCATION

FOUNDATION HIGHLIGHTS

4.3 MILLION

Visits topsoriasis.org and

TalkPsoriasis.org

19,821

225,000

80,000

3,500

49%

19

6,6404,000

165,000

$1,265,0

00

7,121

Increase in visitors to psoriasis.org and TalkPsoriasis.org

from 2012

Facebook fans

Number of research grants and fellowships awarded by the

Psoriasis Foundation

Estimated number of readers of the Psoriasis Advance

Number of times the National

Psoriasis Foundation was referenced in news stories, helping raise the profile of psoriatic diseases around

the world

Number of people who received support and

information through the Psoriasis One to One Mentor program, and through direct

responses to questions about health access, treatment, insurance

and other issues

Twitter followers49% increase

from 2012

Number of Psoriasis Foundation

webinar viewers linking in to learn more about

their disease and treatment options

Number of e-newsletter subscribers

Amount raised through the Walk to

Cure Psoriasis Number of NPF advocates working to

increase funding for research, improve access to

care and new treatments, and reduce out-of-pocket

medical expenses

27% increase from 2012

2 • NATIONAL PSORIASIS FOUNDATION

FY2013 ANNUAL REPORT • 3

NATIONAL SPONSORS

TOP 20 WALK TEAMSLaub Weiss TeamCaptain: Carol Laub

Henschels VictorsCaptain: Ali Henschel

Pop’s Team Captain: Neal Henschel

Bender’s HelpersCaptains: Janice & Dean Bender

Team Janssen Captain: Arlene Bitmansour

Itchin’ to WalkCaptain: Mark Oberman

Rick’s TeamCaptain: Rick Seiden

Team Beth Geduld Renovation RoomCaptains: Beth & David Geduld

UCSF Psoriasis Treatment CenterCaptain: Margareth Jose

Refermat Smack DownCaptains: Allison & Mike Refermat

Sam’s TeamCaptain: Sam Lichten

Team JanssenCaptain: Priscilla Tavener

Center for Derm LaserCaptain: Crystal Holscher

Pso Like UCaptain: Nancy Henschel

Kimble TeamCaptain: Eric Kimble

hannah bananaCaptain: Carrie Falkner

Cardine/HSBC TeamCaptain: Corey Cardine

TEAM SAMCaptain: Sam Weinbaum

Team AlyssaCaptain: Alyssa Krafsur

Fifty is Nifty TeamCaptain: Nancy Warren

UPenn DermatologyCaptain: Lara Wine Lee

April AbernethyEmily AbramenkoMichael AbundoDidi AdelsonSandra AffourtitThomas AgostonAbby AlconcherJamie ArehartNicholas ArmstrongLarry BahrMargaret BakTereasa BakerCaryn BellusDean BenderJanice BenderLeah BirdArlene BitmansourDanny BlodgettSamantha BlonienTanisha BrandySebrina Brooks

Bernadette ClausenQuinlan Costa-MalcolmSean CurzanMary CyrusVickie DowlingThomas DvorakTerri EggemanJill EllnerLaurie EngelDante FalascoCarrie FalknerHannah FalknerAnn FederElana FineRonald FrabackSusan FreemanCarlye FullerNatali GaltStephanie GearhartBeth and David GeduldJoel Gelfand

Jennifer GibbsVilla GorillasDon GormanRon GrauCindy HafenstineJeremy HallAli HenschelAndy HenschelNancy HenschelLori-Ann HolbrookMeyer HornBrittany HuntJeffrey JacobGlenn JacobsApple JannottaSue JaquaPatricia JohnsonMargareth JoseKellie KaplonMicaela KeePatrick Keehan

Krista KelloggCheryl KestenbaumEric KimbleMatthew KiselicaChristopher KoenigSara KofmanAndrea KorogiAlyssa KrafsurKristine KrippnerMia KrumermanBrian LaFoyLiza LarkyMike & Carol LaubDanielle LaVillaDeirdre LearyMark LebwohlEthan LevinWilson LiaoSam LichtenJason & Rachel LichtenStephanie Lichten

Colin LindquistMark LoveallWilliam LyonsIvonne MacEwenPeter MarinkovichKathryn MarkhamLori MartinStephanie MaschekAlivia MastersMarcie MatthewsMark McCuneAlan MenterMatt MercierFrank MoranoCarleigh MorbaChristine MorrisKelly MorrisKatie MorseRuth MurphyRuth MutchLori NewmanCristin NicholsonApolonia Noble

Sally NorbyLori NoriegaRobert NormanMark ObermanKayla OlliverRonald OringerKirby OrtegoCarol OstrowLillian PaganoTommy PastoreJackie PearceMadelyn Petrow-Cohen

Julia PoetainDean PollackJody QuinnNancy RarigMike RefermatAllison RefermatLee ReidJeff RobertsGwenita RobinsonCathy Rose

Beata RydzikCaryn SandmanLaura ScadutoMichael ScannonKimberly SchenkRick SeidenNicky SeymourKelly ShaughnessySherry ShutterElmer SongDolores SpearsSamantha SpearsHeather SpurlockPriscilla TavenerDerrick ThompsonTara TingleChristina TomJesica VilettMariz ViveroQue VuNancy WarrenSam WeinbaumAli Weiss

Stefan WeissAnn WelshTeresa WiksellAmber WilliamsScott WilsonLara Wine LeeDenise WituszynskiJamie WongRodney WrightPaul YamauchiTimothy Yuen

PRESENTING SPONSOR

PLATNUM SPONSOR

Lists reflect fiscal year 2013(July 1, 2012- June 30, 2013)

TOP LOCAL SPONSORS

Altman Dermatology AssociatesAventura Mall

Capital One N.A.Center for Clinical Studies

Drinker Biddle & ReathGenentech

LeoLisa & Jeffrey Henschel Foundation

PhotoMedex, Inc.Renucell

Rite Care PharmacyStanford

The Barbara and Neal Henschel Foundation

PARTNER SPONSORS ADDITIONAL SPONSORS

CONNECTION

Profile � Terri Eggemann


on to become mentors themselves.

“She serves as a motivator -- knowing the challenges she has, and that I’m not the only one,” said Karen Dudley, a nurse from Concord, Va., who said working with Eggemann has been “tremendous.”

Fox, too, has thought about becoming a mentor, especially after recently meeting Eggemann in person.

“I can’t talk with my girlfriends or husband the same way as I can with someone who has it,” Fox said. “She just gets it … Being understood helps me feel in control.”

Through periodic phone calls and emails, Eggemann said she has found what she was looking for — a way to help others with psoriasis feel less alone.

And as one of the earliest graduates of the One to One Mentor program, she is thrilled to have seen the program evolve to include a network that can provide help for all kinds of specific situations, from the pros and cons of phototherapy, to managing psoriasis during pregnancy.

Dudley said the program offers the support that family members and friends may want to give, but can’t because they just don’t understand what it’s like to live with psoriasis.

“So many people live in such social isolation,” Eggemann said. “This

program is important because it gives people a chance to connect. I wouldn’t wish this disease on anybody, but it has given me the opportunity to meet some amazing people.”

“So many people live in such social isolation. This program is important because it gives

people a chance to connect.”

-Terri Eggemann

Loneliness. Isolation. Anxiety.

For those newly diagnosed with psoriasis and psoriatic arthritis, these are symptoms friends and loved ones often don’t see.

Terri Eggemann remembers. Learning she had psoriasis in 2008 left her feeling lost.

“I tried to talk to people about it and they would change the subject,” Eggemann said. “I needed to connect.”

Eggemann, a nurse in Valrico, Fla., turned to the National Psoriasis Foundation (NPF), and through its annual conference, learned about the programs that support people living with psoriasis and psoriatic arthritis.

“I was so impressed,” she said. “I wanted to know that much. I wanted to be involved, and eventually, I wanted to give something back.”

By the next year, she had found a way to do just that by becoming a mentor through the Psoriasis One to One Mentor program, which provides a “match” for those newly diagnosed or otherwise needing support.

For the past four years, Eggemann has been a listening ear and an understanding voice on the other end of the phone or through email.

“She’s like a friend who gets it,” said Alexandra Fox, of Arlington, Va., who was paired with Eggemann early on. “The first year after my diagnosis I was not happy. I was having trouble with my medication and needed to connect with someone … I think the first time we talked for two hours. She was a lifeline.”

That kind of personal bond is a cornerstone of the program, Eggemann said:

“I can say, ‘I know exactly where you are, and I know exactly how you feel,’” she said. “I enjoy the connection, and I learn from them, too.”

In fact, some of Eggemann’s mentees have gone

Ph

oto by Brian

Blan

co


ACTION

Profile � The Lichten Family

“It means so much to have random

people coming out and supporting you and the

(millions of) people who have psoriasis.”

- Sam LichtenThe Lichten Family, from left to right: Sam, Rachel, Sophie, Jason and Jake


When Sam Lichten was diagnosed with psoriasis seven years ago at the age of 5, his parents felt driven to do something big to support their oldest son.

New runners, they decided to start with what they loved: They reached out to the National Psoriasis Foundation (NPF) with the idea to start a race.

Over the past two years, their Team NPF event — 5K to Cure Psoriasis in Columbus, Ohio — has raised more than $35,000, and a whole lot of awareness in Sam’s community.

And the parents who wanted to make a difference — Rachel and Jason Lichten — have worked with the NPF to create a family-centered event that has inspired hundreds to don orange and black shirts as part of a race to find a cure.

The event, held each year in October, has a Halloween theme, and in addition to the 1K walk and 5K run, offers a family festival and trick-or-treating for kids in costume, or in the case of Sam’s football team, in uniform.

“As parents of a child who has psoriasis, we didn’t want him to be at an event largely made up of adults,” Rachel said. “We wanted to create a kid-friendly atmosphere.”

That’s one of Sam’s favorite parts, in addition to the fall treats, the cool incentive prizes like hats and T-shirts, and his job sounding the air horn at the start of the race.

The event helps to connect those with psoriasis to local resources and the NPF, but having a festival feel also helps community members not affected by psoriasis to learn about it.

“What makes our event unique is that people are coming out not just because of their connection to psoriasis,” Rachel said.

Sam said that’s his mom’s favorite thing: When a person they have never met signs up.

It’s important to Sam, too.

“It’s a great feeling,” Sam said. “It means so much to have random people coming out and supporting you and the (millions of) people who have psoriasis.”

Now in its third year, the Lichtens hope to raise $25,000, and of course, continue to educate and connect with even more of their neighbors.

The family’s commitment to raising awareness has helped Sam’s confidence, too. When his baby-sitter asked him about the plaques on his knees, instead of turning to his mom, he was able to tell his sitter that they were psoriasis.

“His baby-sitter responded, ‘Oh, that’s what you do the race for!’” Rachel said.

The Lichtens said supporting their son and helping others with psoriasis and psoriatic arthritis drives them to expand every year on their successful partnership with the NPF, and they encourage others to get involved however they can.

“We started the run to build momentum, and the event has grown,” Jason said. “It doesn’t have to be a 5K. Do the things you love to do, and build from there.”

For the Lichten family, that’s making a 5K Halloween run for a cure an annual family tradition.

Ph

oto by Jeffry Kon

czal


Nicole Ward’s journey into psoriatic disease research has been a wide and winding one, but it began when she was very young.

That’s because her father, Blane, has psoriasis.

Still, Nicole didn’t set out to study psoriasis and psoriatic arthritis. Her Ph.D. is in neuroscience and all of her fellowship training was spent studying the biology of the human vascular system.

In the end, though, psoriasis has become the perfect crossroads for a curious scientist like Ward to study

HOPE

both the nervous and vascular systems, as well as the role inflammation plays in the body and how one organ system, like the skin, can affect other organ systems.

“It’s a phenomenal opportunity for me as a basic scientist to try and understand the basic mechanisms that drive the disease,” she said. “It has personal meaning to me, obviously, because my dad has the disease.”

Nicole has received four $50,000 National Psoriasis Foundation (NPF) Discovery Grants since 2009. Those grants have helped her collect data to win three National Institutes of Health research grants worth more than $3 million total. Her studies so far

Profile � Nicole Ward


Those conversations have inspired her to look for more holistic strategies to improve psoriasis severity or reduce the risk of developing related conditions like cardiovascular disease.

“I think the NPF, in particular, does a fantastic job of bringing basic scientists into a room with patients and opens up that conversation,” she said. “I would love it if psoriasis patients would come to the lab and see what we do. It would help them understand what we do and it would help (the scientists) at a higher level understand the importance of what we are doing.”

Blane, who has mild plaque psoriasis, said he’s learned a lot more about his disease since his daughter began studying it so intently. He is most surprised, however, by how much contact Nicole has with patients.

“Her energy is infectious,” he said. “I’m proud of who she is as well as what she does. I did not expect her to get so excited about psoriasis.”

And it’s that connection – the scientist to the patient – that really motivates Nicole to do what she does.

“I want to change more than just science,” she said.

focus on the role psoriasis plays in cardiovascular inflammation and how the nervous system and psoriasis flare-ups are connected.

Nicole recently traveled to Capitol

Hill with two patients to lobby U.S.

legislators about the importance of psoriatic disease research. She

was struck by the stories the patients

shared about how psoriasis and psoriatic arthritis

affect their lives and the lives of their children.

Photo courtesy of the Ward family

Nicole Ward with her father, Blane. Research Investments Yield Big Returns

Since 2009, Nicole Ward has received four $50,000 National Psoriasis Foundation grants to examine the link between psoriasis and cardiovascular disease. Here’s how those investments are paying off so far:

Æ Ward received a $1.8 million grant from the National Institutes of Health (NIH) in 2012 to further her study of the link between psoriasis and cardiovascular disease, including if treating psoriasis reduces the cardiovascular disease risk.

Æ She is using a $1.9 million NIH grant also received in 2012 to continue to investigate the role a key protein in the immune system called interleukin-17C plays in the development of psoriasis.

Æ Ward also received a $500,000 NIH grant in 2013 to examine how the nervous system affects psoriasis.

“I think the NPF, in particular, does a fantastic job of bringing basic scientists into a room with patients.” - Researcher Nicole Ward


We are deeply grateful to you, our donors, whose support enables us to continually renew and expand our commitment to the mission to find a cure for psoriasis and psoriatic arthritis.

In the fiscal year ending June 30, 2013, we received revenue of $7.5 million in gifts, pledges and other support.

Our focus remains on finding a cure for psoriasis and psoriatic arthritis. During the fiscal year we awarded seven new research grants and continued the funding on second-year translational grants for a combined total of $950,000, and funded 13 Medical Dermatology Fellowships totaling $520,000. We continue to build the BioBank to further the study of psoriasis genetics.

In its seventh year, our Walk to Cure Psoriasis program raised $1,265,000. We are thankful to the many individuals and corporate sponsors who are helping to make this program increasingly successful.

During this fiscal year we committed more than $6.1 million, or 80 cents of every dollar spent, to programs which advance the mission of the Foundation. The NPF is fiscally sound with $7.4 million in assets. We are proud of our efforts toward the accomplishment of our mission this year, and we remain dedicated to our role as stewards of the funds entrusted to us.

Thank you for your generosity.

Sincerely,

Chip Newton

Revenue, gains and other support

TREASURER’S LETTER STATEMENT OF ACTIVITIES YEAR ENDED JUNE 30, 2013

$1,556,559 Net special events revenue $1,396,152Individual contributions $3,433,251Corporate contributions and sponsorships

$20,000Foundation contributions $200,218Legacies and bequests $880,328 Fees, advertising and other

Total revenue, gains and other support

$7,486,508

Increase (decrease) in net assets

($191,637)

Expenses

$2,070,774 Research $856,709 Advocacy and government relations

$945,123Patient services

$1,722,024 Public education

$525,989 Professional education

$1,127,600 Fundraising

$429,926 Management and general

Total expenses

$7,678,145

Research27%

Management & General

6%

Advocacy & Government Relations

11%

Fundraising15%

PublicEducation22%

Professional Education & Patient Services

19%


A complete copy of our audited financial statements is available on our website at www.psoriasis.org.

STATEMENT OF FINANCIAL POSITION

VOLUNTEER BOARD OF TRUSTEES

VOLUNTEER MEDICAL BOARD

Assets Liabilities

Other12%

Individual & Foundation Contributions

19%

Corporate Contributions & Sponsorships

46%

Walk to Cure Psoriasis &

Special Events

21%

Legacies & Bequests

2%

$5,897,176 Investments, cash & cash equivalents $1,042,609 Pledges receivable-net $263,976 Other assets $180,491 Accounts receivable

$9,000 Legacies and bequests receivable

Total assets

$7,393,252

$445,424Accounts payable and accrued liabilities

$53,675 Deferred revenue Total Liabilities

$499,099

Net Assets

$5,064,501Unrestricted

$1,829,652 Temporarily restricted

Total Net Assets

$6,894,153

Total liabilities and net assets

$7,393,252


Daniel FarringtonChairBethesda, Md.

Krista KelloggChair-ElectMiami

Mark S. LillieVice-ChairWheaton, Ill.

Eric W. KimbleSecretarySudbury, Mass.

Chip NewtonTreasurerSt. Petersburg, Fla.

Mark Lebwohl, M.D.ChairNew York

Lakshi M. Aldredge, M.S.N., R.N., A.N.P.-B.C.Portland, Ore.

April Armstrong, M.D., M.P.H.Denver

Jerry Bagel, M.D.East Windsor, N.J.

Andrew Blauvelt, M.D.Portland, Ore.

Erin Boh, M.D., Ph.D.New Orleans

Kristina Callis Duffin, M.D.Salt Lake City

Jeffrey Crowley, M.D.Los Angeles

Lawrence Eichenfield, M.D.San Diego

Alice Gottlieb, M.D., Ph.D.Boston

Sylvia Hsu, M.D.Houston

Elaine Husni, M.D., M.P.H.Cleveland, Ohio

Abby Jacobson, M.S., P.A.-CLancaster, Pa.

Arthur Kavanaugh, M.D.La Jolla, Calif.

Gerald G. Krueger, M.D.Salt Lake City

John Y.M. Koo, M.D.San Francisco, Calif.

Ronald Prussick, M.D.North Bethesda, Md.

Abrar Qureshi, M.D., M.P.H.Boston

Christopher Ritchlin, M.D.Rochester, N.Y.

Linda Stein Gold, M.D.West Bloomfield, Mich.

Stephen Stone, M.D.Springfield, Ill.

Abby S. Van Voorhees, M.D.Philadelphia

Jeffrey Weinberg, M.D.New York

Stefan Weiss, M.D.Boca Raton, Fla.

Jashin Wu, M.D.Los Angeles

Paul Yamauchi, M.D., Ph.D.Los Angeles

Steve BishkoffOakhurst, N.J.

Colby Evans, M.D.Austin, Texas

Kathleen L. GallantMcMurray, Penn.

Lawrence Green, M.D.Rockville, Md.

Holly Fields KrafsurEl Paso, Texas

Sarah Kurts, P.A.-C Denver

Michael LaubNew York

Mark G. Lebwohl, M.D.New York

Carol OstrowNew York

Pete ReddingReno, Nev. and Scottsdale, Ariz

Terri TheisenAtlanta

ex officioRichard SeidenImmediate Past ChairLos Angeles

THANK YOU TO OUR2012-2013 CORPORATE PARTNERS AND SPONSORSThank you to the corporations and organizations that donated their time, funds and support

to the National Psoriasis Foundation. Corporate partners are critical to the success of the

Foundation and our goal of improving the lives of those coping with psoriasis and psoriatic

arthritis and ultimately, finding a cure for these diseases.

$500,000 - $999,999

$250,000-$499,999

$100,000-$249,999

$50,000-$99,999

$25,000-$49,999

$10,000-$24,999

Beiersdorf, Inc.

Alva-Amco Pharmacal Companies, Inc.

Daavlin National Biologic Corp.

Wisconsin PharmacalPhotoMedex, Inc.

Additional Partners

Bristol Myers-Squibb, Curatio CME Institute, Dermatology Nurses Association, Elorac, Health Monitor, Insight Pharmaceuticals, Mushatts, NACCME and UV BioTek

$1 MILLION +


FY2013 CONTRIBUTIONS FROM GENEROUS SUPPORTERS

$75,000 OR MORE $50,000 TO $74,999The Edward A. & Catherine L. Lozick Foundation Michael Graff and Carol Ostrow

Michael and Carol Laub

A. Marilyn Sime, Ph.D., R.N.

$10,000 TO $24,999

Virginia and Andrew Adelson

Robert and Lauren Fales

Daniel and Rebecca Farrington

Jodi and Bill Felton

Millie Fleskes

Irwin and Joan Geduld

Donald and Lesley Grilli

Al G. Hill, Jr.

Norma K. Hunt

Johnson & Johnson Family of Companies

Virginia Morris Kincaid Charitable Trust

Mark and Celine Lillie

Florence Petrlik

Mindy and Jesse Rogers

Mr. and Mrs. Edward W. Rose III

Richard and Ellen Seiden

Terri Theisen

Warburg Pincus Foundation

Dale and Karen White

Carol A. Yermal

Laura Zaimi

Named to honor the founder of the National Psoriasis Foundation

Named to honor the first chairman of the Board of Trustees

$25,000 TO $49,999Neal and Barbara Henschel and Family

Edward Lewis and Achara Pinpanna

Victoria W. Sack

Alan and Bari Shaffran

Sun Capital Partners Foundation, Inc.

The Webb Foundation

CHAMPIONSSupporters with ongoing commitments

$250,000 - $499,999

Edward Lewis and Achara Pinpanna

$50,000 - $99,999

Bill and Jodi Felton

Dale and Karen White

$25,000 - $49,999

Randy Beranek


LIFETIME CONTRIBUTIONSLongtime donors making tremendous investments in the work of the Psoriasis Foundation.

$1.5 MILLION + (TO DATE)

Edward A. and Catherine L. Lozick

$1 MILLION - $1.49 MILLION (TO DATE)

Neal and Barbara Henschel and Family

$850,000 - $999,999 (TO DATE)

Michael and Carol Laub

BEVERLY FOSTER HALPRIN SOCIETY

RICHARD COFFMAN CIRCLE

MULTI-YEAR PLEDGES

$10,000 - $24,999

Bill Cardamon and Alicia Wright

Benjamin and Janice Isenberg

Krista Kellogg

Eric W. Kimble

DONORS


About Skin Dermatology

Acorn Hill Foundation Inc.

Adobe Systems Incorporated

AFSCME Librarians Guild Local 2626

Peter and Eva Agoston

Allianz Life Insurance Company of North America

Nancy and Don Alpert

American Century Investments

American International Group

Mari Amstutz

David W. Andrews

Kevin Anello

Anika Global Corp

Anonymous (9)

Frank Armstrong, D.O.

Ashland Foundation

Gregg Auerbach

Josephine and David Bahn

Sanford L. Batkin

Bay Dermatology & Cosmetic Surgery, P.A.

Joe and Nelda Beaud

Bellaire Dermatology Associates

Dean and Janice Bender and Family

Jeffrey Biegelsen

The Biegelsen Foundation, Inc.

Steven and Tracy Bishkoff

Arlene D. Bitmansour, Ph.D.

Andy and Molly Blauvelt

Richard K. Bowman

BPM Northwest, Inc.

Barbara Bradfield

David H. Brockway

Marian C. Burke

Stacey Butler

California Academy of Sciences

Jeffrey P. Callen, M.D.

David A. Caperelli

Bill Cardamon and Alicia Wright

M. Webb Carr

Michael and Carey Cavaliere

Center for Dermatology & Laser Surgery

Jereann H. Chaney

Brad and Judy Chase

Chase Family Philanthropic Fund

Chevron

Michael Cisewski

Mary R. Clarbour

Patricia and Irwin Cohen

Charles E. Cole

Cole Family Charitable Foundation

Colorado Dermatologic Society

Alan Concha

The James Cook Family

Kim and Rob Coretz

Coretz Family Foundation

Curtis Thompson MD & Associates

Scott L. Darling, D.O., P.C.

Ronn and Nicole Davids

Dawes Fretzin Dermatology Group

Dermatology & Aesthetics of Wicker Park

Dermatology & Skin Surgery Center

Dermatology Specialists, Inc.

Deschutes Brewery, Inc.

Philip J. Deutch

Hung T. Do

Paul Dodwell

Amit Doshi

Donald J. Doyle

John and Wendy Dyer

Eastside Dermatology, Inc. P.S.

Sharon Eberle

Jill Dlabal Ellner, D.D.S.

Encore Dermatology

Fahringer Foundation

Carrie and Steven Falkner

Marguerite M. Fallon, D.M.D.

Ann Feder-Pomerantz

Brenda Fellman

Mark and Tara Flint

Ted Floor

Florida Westcoast Skin and Cancer Center

Foley & Lardner LLP

Form Analysis, LLC

Kathleen L. Gallant

Norman B. Gaylis, M.D.

GE Foundation

$1,000 TO $4,999

Dr. David and Mrs. Beth Geduld

Leslie Gibin

Susan A. Giblin

Rita Gibson

Brad P. Glick, D.O.

Gold & Rosenblatt, LLC

Henry L. Goldberg, Esq.

Gail Goldman, M.D.

Arlene & Arnold Goldstein Family Foundation

Sherry Goldstein

Glen and Rosa Golish

Google

Alice Bendix Gottlieb, M.D., Ph.D.

Ronald Grau

Lawrence Green, M.D. and Allison Green

Nancy and William Hall

Jon Halpern

Tiffani K. Hamilton, M.D.

Steven N. Hecht

Margaret Hiler

Robert J. Hiler Family Foundation

Ralph and Brenda Hoffman

Anonymous

Jerry Bagel, M.D.

Randy Beranek

Stan Burnstein

Corey M. Cardine

Russell, Judith, Cecily and Edward Carson

Vicki and Bob Chapman

Jeffrey Crowley, M.D. and Sarah Crowley

Robert and Maureen Decherd

Dermatology Nurses Association

Jennifer and John Eagle

Colby C. Evans, M.D.

The Roy Gene & Pamela Evans Foundation

Dr. Steven Feldman and Leora Henkin

Fisher Brothers Foundation

C. Michael Garver

International Psoriasis Council

Eric W. Kimble

Leon Kircik, M.D.

Kirkland & Ellis Foundation

$5,000 TO $9,999

BENEFACTORS

Krafsur Family

Gerald G. Krueger, M.D.

Mark G. Lebwohl, M.D.

Leo Liebowitz

The Liebowitz Foundation

Benjamin Lockshin, M.D.

Robert and Valerie McLean

Menter Dermatology Research Institute LLC

Microsoft

Mark Oberman and Judith Eisenberg

Steven Rand and Nancy Wender

Carolyn and Karl Rathjen

Mike and Hulda Refermat

Phoebe Rich, M.D.

Marc & Carolyn Rowan Family Foundation

Sheldon and Barbara Stein

Texas Dermatology Associates

Debbie and John Tolleson

Total Life Care Pharmacy

Stephen K. Tyring, M.D., Ph.D.

Murli Varadachari

Walton Family Foundation

Michael and Melissa Weinbaum & The Attilio & Beverly Petrocelli Foundation

Fred and Joan Weisman

Mark and Blanche Wine

GUARANTORS


Steve Sanders and Leslie Holsinger, Ph.D.

Home Box Office, Inc.

HPG, LLC

Francis and Julie Hubach

Jim and Peggy Hudson

Mrs. Needham Hurst

Instinet Group, LLC


Ernest Isenstadt

Mary R. Jensen

Jensen Family Foundation

Michael and Barbie John

Eric and Francie Johnson

Michael J. Jungen

Edward P. Kalaha

Martin and Danielle Karp

Michael Kassan

The Katz Family Foundation

Jacquelyn C. Keaveney

Krista Kellogg

Peter C. Kelly II

J.W. & Mildred A. Kisling Charitable Foundation

Kohl’s

Michael Kraley

Kristine and Ron Krippner

Kathy Kronick

Priscilla and Richard Kurz

“Lab Rat”

Kathleen M. LaCroix

Sara Lee and Barry Larner

Craig and Sharon Larson

Las Olas Chemist, Inc.

Gillian Laub

Andrew and Lori Laub

Judy S. Lee

Wilson J. Liao, M.D.

Mei Liao

Dennis M. Litos

Randy Luongo

William M. Lyons

Thomas G. MacCracken

Charles H. MacDonald

Jeffrey Manocherian

Mark and Jaclyn Marinovich

Laurie and Tom Markham

Matrix Networks

Emanual Maverakis, M.D.

Ed and Lois McCluskey Foundation

Penny E. McConnell

Brian and Leticia McMaster

McMaster Family Foundation

Stewart McMillan

Joe Mecklenburg

Merry Clinic LLC

Metroplex Clinical Research Center

Midwest Medical Specialists, P.A.

Andrew and Anne Miller

David and Sheila Mitchell

Scott Morgan

Dan Mosedale

Emil Neroda (dec.)

Chip Newton and Liz Smith

Edith J. Oberman

Oregon Medical Research Center, P.C.

R. Scott Ornstein

Pacific Marketing & Publishing

William R. Padnos

Etahn Cohen & Amy Paller Cohen

Palo Alto Medical Foundation

Robert J. Pariser, M.D.

Michael D. Parker

Philanthropic Ventures Foundations Grants

Lucy Phillips

Pine Tree Foundation

Dean Pollack

Polyclinic

Paul R. Pomerantz

Robert B. Posnick, M.D.

The Pritzker Pucker Family Foundation

Providence Health System

Prudential Foundation

Qualcomm Incorporated

Bruce and Mary Rabiner

Rady’s Pediatric & Adolescent Dermatology/ UCSD

Jody Ralston

Peter and Lorelei Redding

Terry Riley

Christopher Ritchlin, M.D.

Rogerio F. Rojas

Susan S. Roper, M.D.

Andrew Rosengarten

Matthew Ross

Rotary Club of New Tampa Evening, Inc.

RX Biotech Specialty Pharmacy, Inc.

Marc and Frances Samit

Sidney and Elizabeth Savelle

Pat and Pete Schenkel

Larry and Regina Schick

Kenneth and Lisa Schnitzer

Pamela B. Schultz

Robert and Ethel Sexton

Kara Shah, M.D.

Patrick Shannon, M.D.

Cynthia A. Sheen

Sue and Robert Shoenberg

Benjamin W. Silverman

SkinMedica

Skyhill Properties

Howard L. Sofen, M.D.

Tracy F. Stein

Linda Stein Gold, M.D.

Stout Industries Charitable Foundation

Elizabeth and William Struve

Jack and Alice Styza

Robert and Carol Summers

Supersymmetry, Inc.

Surgical Pathology Laboratories, PA

Therapeutics Clinical Research

Andres Tobon, D.O.

Cheryl J. Tracey

Trotta Associates

Toni and James Turner

University of South Florida Dermatology

Abby S. Van Voorhees, M.D.

K. Dawn Vincent, M.D.

Walgreens Specialty Pharmacy

Wallack Mgmt. Co., Inc.

Nancy Warren

Washington State Dermatology Association

Dawn and Steven Watts

Allison and Scott Weiss

Stefan C. Weiss, M.D.

Roger K. West

Donna Whalen

William and Barbara Whittaker

John S. Wilson

Windsor Dermatology

Seth and Deb Wohlberg

Women’s Dermatologic Society

Johnnie Woodson, M.D.

Edward Wright

XBiotech USA Inc.

Joseph and Sylvia Yasgur

Melodie Smith Young, A.R.N.P.

Rolland Fritz Zeck

Zurich North America


Elizabeth A. Abel, M.D.

William Abramovits, M.D.

Donald J. Adler, D.O.

Andrew F. Alexis, M.D., M.P.H.

Laila Almeida, M.D.

Kenneth S. Alpern, M.D.

David J. Altman, M.D., Ph.D.

Lawrence L. Anderson, M.D.

Nancy J. Anderson, M.D.

Humberto C. Antunes

April W. Armstrong, M.D.

Frank Armstrong, D.O.

Jerry Bagel, M.D.

Diane R. Baker, M.D.

Rodney S.W. Basler, M.D.

Eric W. Baum, M.D.

Vincent Peter Beltrani, Jr., M.D.

Paul R. Bergstresser, M.D.

Brian Berman, M.D., Ph.D.

J. Raymond Bernat, M.D.

Michael Bernhardt, M.D.

Neal Bhatia, M.D.

Joseph B. Bikowski, M.D.

Charles Birbara, M.D.

Andrew Blauvelt, M.D.

David Blum, M.D.

Erin E. Boh, M.D., Ph.D.

Mary Ruth Buchness, M.D.

Michael Bukhalo, M.D.

Jeffrey P. Callen, M.D.

Kristina Callis Duffin, M.D.

Charles Camisa, M.D.

Patrick Carney, M.D.

Daniel Carrasco, M.D.

Tamella B. Cassis, M.D.

Medical professionals who demonstrate their commitment to patients through generous membership contributions.

Ralph L. Bogle, Jr.

Richard C. Gardner

Vivian D. Holder

Mariel D. Houlihan

Helen E. Laing

Seymour and Rebecca Lutto, in memory of their son, Lawrence Lutto

Remembering those whose estate gifts were received in fiscal 2013.

Sandra Allison

Jack and Patricia Allweiss

Alexis M. Anderson

Anonymous (15)

Dot Aumann

Elsa Aybar

Corky Balzac

Kathi Barber, in memory of Tim Barber

Cathleen A. Becker

George and Mary Bell

James P. Bennett, Ph.D.

Jeffrey B. Berman

Richard I. Besser

Frank M. Beveridge

Mary Kay Boylan

Robert L. Brooks

Richard Brotherston

LaVerne Beall Burhans

Mary Beth Burrows

Laurie Anne Carlson

James Carolan

Howard and Lori Chang

Helene and Jerry Cotter

Enid L. Crook

Robert L. Crooks and Sami J. Tucker

Paul Dodwell

Lucille Doree

Karen M. Durbak

Jackie Eber

Richard L. Elmendorf


Michael C. Finn, M.D.

Bruce and Susan Foat

Ruth I. Foerster

Carole and Marvin Frankel

Avette L. Gaiser

Kathleen L. Gallant

Robert and Cynthia Galletly

Rich W. Good

Donald and Lesley Grilli

Dr. Jerald and Mrs. Roberta Grotstein

Bill and Mary Ann Grove, Jr.

Louise K. Hawke

Mary Beth Hedrick

Carol W. Henshaw

Jim Hergert

Lynn Hodges

Amy J. Holstein, D.V.M.


Charles H. Jacobs

Betty Johnson

David W. Kapor

Diane and John Kazibut

Mara C. Kelly

Eric W. Kimble

William and Frances Klein

Sara Lee and Barr Larner

Brian J. Larson

Patricia A. Laurie

Edward D. Lewis

Carl Wayne Littlejohn

Scott S. Lochridge

Kerry K. Lohr

Charles Campbell Magee

Mark and Jaclyn Marinovich

Craig and Irene McCall

Rebecca and John McCann

Sharon E. McCrae

Glennis McNeal

Kenneth A. Meersand

Linda V. Miller

Diane E. Moore

Marcy A. Morris

Mary L. Mullarkey

Chip Newton and Liz Smith

Robert J. Osterman

Ed and Laura Owens

Diane N. Paul

Harold and Harriet Phillips

Eileen Prouty

Diane Robinson

Sherri A. Rosen

Marie D. Roser

Irvin J. Roth

Barbara and Paul Sanders

Pamela B. Schultz

Raymond Schwartz

Michael F. Score

Harold and Edna Seemann

Richard and Ellen Seiden

A. Marilyn Sime, Ph.D., R.N.

Timothy Jay Smith

Martha W. Snuffer

Dr. Judith A. Snyder

Lisa Spiekermann

Steven Brad Stacey

Nell V. Steele

Jo Ann Steggerda

Brenda M. Tolley

Clivia Torres-Lacend

Cheryl K. Turay

Ruby B. Van Rooyen

Kenneth and Mary J. Voertman

Jana R. and Stephen Wessels

Roger K. West

Margaret J. Whittle

Kevin Timothy Wilson

Gregory J. Winslow

Winnie Wong

Martha Wood

Robert P. Woodward

Charles and Marsha Woolley

Gloria Wren

Edward Wright

Evelyn Zafran

Susan K. Zeller

Gail M. Zimmerman

Members who have named the National Psoriasis Foundation as beneficiary in their will, trust, insurance policy, retirement fund, charitable gift annuity or other estate plans.

Victoria and Thomas Maguda

Edwin F. Marek

Alexander T. Molloy

Harry Paulick

BEQUESTS

LEGACY SOCIETY

PRESIDENT’S COUNCIL


Jennifer Clay Cather, M.D.

Robert L. Chappell, M.D.

David Clemons, M.D.

Missy M. Clifton, M.D.

Russell W. Cohen, M.D.

Steven R. Cohen, M.D., M.P.H.

Kevin D. Cooper, M.D.

Raymond L. Cornelison, Jr., M.D.

David J. Coynik, M.D.

Jeffrey J. Crowley, M.D.

Theodore Daly, M.D.

James Q. Del Rosso, D.O.

N. Fred Eaglstein, D.O.

Joseph S. Eastern, M.D.

Lawrence Eichenfield, M.D.

Craig A. Elmets, M.D.

John A. Erianne, M.D.

Colby C. Evans, M.D.

Lydia Evans, M.D.

John H. Exner, M.D.

Steven R. Feldman, M.D., Ph.D.

Neil A. Fenske, M.D.

Adolfo Fernandez- Obregon, M.D.

David Fiorentino, M.D., Ph.D.

David Fivenson, M.D.

Mona Foad, M.D.

Michael Ford, M.D.

Joseph Francis Fowler, Jr., M.D.

Ellen H. Frankel, M.D.

Steven A. Franks, M.D.

Scott Fretzin, M.D.

Glenn H. Fuchs, M.D.

Honor Fullerton Stone, M.D.

Loren Scott Funt, M.D.

Bernard A. Gasch, M.D.

Joel M. Gelfand, M.D.

Paul Getz, M.D.

Brad P. Glick, D.O.

Bernard S. Goffe, M.D.

Michael H. Gold, M.D.

David J. Goldberg, M.D.

Michael T. Goldfarb, M.D.

Harry M. Goldin, M.D.

Roger S. Golomb, M.D.

Kenneth B. Gordon, M.D.

Alice Bendix Gottlieb, M.D., Ph.D.

Jennifer W. Gould, M.D.

Richard D. Granstein, M.D.

Lawrence J. Green, M.D.

Harry L. Greenberg, M.D.

Joseph Greenberg, M.D.

Robert G. Greenberg, M.D.

Scott T. Guenthner, M.D.

Cynthia Guzzo, M.D.

Charles L. G. Halasz, M.D.

Tiffani K. Hamilton, M.D.

John G. Hancox, M.D.

Aubrey Chad Hartmann, M.D.

Mara A. Haseltine, M.D.

Sarah A. Haydel, M.D.

Stephen E. Helms, M.D.

David R. Hensley, M.D.

Warren R. Heymann, M.D.

Julie A. Hodge, M.D.

Deirdre Hooper, M.D.

Luciann L. Hruza, M.D.

Charles Hudson, M.D.

Davide Iacobelli, M.D.

Francis W. Iacobellis, M.D.

J. Mark Jackson, M.D.

Robert L. Jackson, M.D.

Sarah C. Jackson, M.D.

Peter J. Jenkin, M.D.

Joseph L. Jorizzo, M.D.

Robert E. Kalb, M.D.

Susan E. Katz, M.D.

Leon Kircik, M.D.

John Y. M. Koo, M.D.

Neil Korman, M.D., Ph.D.

Craig A. Kraffert, M.D.

James M. Krell, M.D.

Indira Rao Krishnarao, M.D.

Gerald G. Krueger, M.D.

William V. Krug, M.D.

Sarah A. Kurts, PA-C

Michael A. Kurzman, M.D.

Richard Langley, M.D.

Stanton S. Lebouitz, M.D.

Mark G. Lebwohl, M.D.

Craig L. Leonardi, M.D.

Giulio A. Leone, M.D.

Jacob Levitt, M.D.

Clive M. Liu, M.D.

Benjamin Lockshin, M.D.

Frederick A. Lupton III, M.D.

William Lynch, M.D.

Farah K. Malick, M.D.

Linda Susan Marcus, M.D.

Barbara M. Mathes, M.D.

Robert T. Matheson, M.D.

Elizabeth I. McBurney, M.D.

Thomas S. McCormick, Ph.D.

Patrick S.J. McElgunn, M.D.

Philip J. Mease, M.D.

Alan M. Menter, M.D.

Jami Lyn Miller, M.D.

Richard A. Miller, D.O.

Andrew Mitchell, M.D.

Craig Mohney, M.D.

Angela Yen Moore, M.D.

Warwick L. Morison, M.D.

Mount Sinai Department of Dermatology

George J. Murakawa, M.D., Ph.D.

John C. Murray, M.D.

NeoStrata Company, Inc.

Mark S. Nestor, M.D., Ph.D.

David S. Nieves, M.D.

Robert A. Norman, D.O., M.P.H.

Martin M. Okun, M.D.

Amy S. Paller, M.D.

Robert J. Pariser, M.D.

Jeffrey D. Pittis, M.D.

Justin Platzer, M.D.

Jeffrey C. Poole, M.D.

Robert B. Posnick, M.D.

Steven A. Proper, M.D., M.P.H.

Ronald B. Prussick, M.D.

Abrar A. Qureshi, M.D.

John Karl Randall, M.D.

Oliver M. Reed, M.D.

Kathleen Remlinger, M.D.

Phoebe Rich, M.D.

Jennifer M. Ridge, M.D.

Darrell Rigel, M.D.

Christopher Ritchlin, M.D.

Douglas N. Robins, M.D.

Susan S. Roper, M.D.

Marti J. Rothe, M.D.

Beata L. Rydzik, M.D.

Neil Sadick, M.D.

Hans M. Sander, M.D.

Michael A. Scannon, M.D.

David C. Semler, M.D.

Kerry Shafran, M.D.

Kara Shah, M.D.

Patrick Shannon, M.D.

Jerome L. Shupack, M.D.

David N. Silvers, M.D.

Robert A. Snyder, M.D.

Jeffrey M. Sobell, M.D.

Howard L. Sofen, M.D.

Jennifer Soung, M.D.

Linda Stein Gold, M.D.

Lawrence M. Stokar, M.D.

Stephen P. Stone, M.D.

Timothy Jon Storer, M.D.

Bruce E. Strober, M.D., Ph.D.

Emil A. Tanghetti, M.D.

Artthapol Tanphaichitr, M.D.

Amy Forman Taub, M.D.

Craig F. Teller, M.D.

Ira H. Thorla, Jr., M.D.

Cynthia Tie, M.D.

Andres Tobon, D.O.

Ruth K. Treiber, M.D. & Eric S. Treiber, M.D.

James E. Turner, M.D., Ph.D.

Stephen K. Tyring, M.D., Ph.D.

Eugene J. Van Scott, M.D.

Abby S. Van Voorhees, M.D.

Panos Vasiloudes, M.D., Ph.D.

Allison Vidimos, M.D.

K. Dawn Vincent, M.D.

Paul Wallace, M.D.

Robert R. Walther, M.D.

Guy Webster, M.D., Ph.D.

Jeffrey M. Weinberg, M.D.

Gerald D. Weinstein, M.D.

Jonathan S. Weiss, M.D.

Stefan Weiss, M.D.

Schield M. Wikas, D.O.

Johnnie Woodson, M.D.

Paul S. Yamauchi, M.D., Ph.D.

Eva Youshock, M.D.

Joseph J. Zaladonis, Jr., M.D.

Isaac Zamora, M.D.

Michael Zanolli, M.D.


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