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October, 2004Curriculum Vitae

BARBARA ANN KOENIG

Address

Office:701A Welch Road, Suite 1105Palo Alto, CA 94304(650) 725-6103Fax (650) 725-6131EMAIL: [email protected]

Education

B.S. in Nursing (with distinction), University of Minnesota, Minneapolis, 1974.

B.A. in History (magna cum laude), University of Minnesota, Minneapolis, 1976.

Ph.D. in Medical Anthropology, University of California, San Francisco and Berkeley,1988. Dissertation Title: "The Technological Imperative in Medical Practice: AnAnthropological Study of Therapeutic Plasma Exchange."

Fellows Seminar in Biomedical Ethics (with Albert R. Jonsen), University of California,San Francisco, 1978-80.

Professional Employment

1974-75 Staff Nurse in Pediatrics, University of Minnesota Hospitals, Minneapolis.

1975-76 Staff Nurse in Pediatrics, University of California Hospitals, San Francisco.

1981-85 Research Associate, Institute for Health Policy Studies/Division of Medical Ethics,Department of Medicine, University of California, San Francisco.

1986-88 Adjunct Lecturer, Division of Medical Ethics, Department of Medicine, University ofCalifornia, San Francisco.

1988-89 Training Coordinator, AIDS Professional Education Project, Department of Psychiatry,University of California, San Francisco.

1988-93 Assistant Adjunct Professor, Medical Anthropology Program/Division of MedicalAnthropology, Department of Epidemiology and Biostatistics, University of California, SanFrancisco.

1989-91 Coordinator for Western Programs in Research and Education, The HastingsCenter, Briarcliff Manor, NY.

1993-99 Senior Research Scholar, Center for Biomedical Ethics, School of Medicine, StanfordUniversity, Stanford, CA.

Barbara A. Koenig, Ph.D.

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1993-2002 Executive Director, Center for Biomedical Ethics, School of Medicine, StanfordUniversity, Stanford, CA.

1995-2002 Co-Director, Program in Genomics, Ethics, and Society, Stanford University, Stanford,CA.

1999-2000 Associate Professor (Acting), Department of Medicine, Stanford University, Stanford,CA.

2000-2003 Associate Professor, Department of Medicine, Stanford University, Stanford, CA.

2003- Associate Professor, Department of Neurology & Neurological Sciences, StanfordUniversity, Stanford, CA.

Principal Fields of Interest

• Anthropology of Health and Illness• Biomedical Ethics• Social and Cultural Analysis of Science, Technology and Biomedicine

Honors 1995 Elected Fellow, The Hastings Center. 1995 Elected Fellow, The Society for Applied Anthropology. 1998 Individual Residency, Rockefeller Foundation Bellagio Study Center. “Culture and Biomedical Ethics: Examining the Practices of Managed Death.” 1999 Elizabeth Sterling Soule Lectureship, University of Washington, May 27. 1999-01 Soros Faculty Scholar, Open Society Institute, Project on Death in America. 2001 Cowan Lecturer, University of Utah, Salt Lake City, UT, November 8. 2002 The Florence Schorske Wald Lecturer, University of Minnesota, Minneapolis, April 18. 2002-03 Fellow, Stanford Humanities Center.

Grant Awards and Funded Projects 1988-92 Learning to Care: Internal Medicine Residents' Attitudes toward AIDS. State of

California AIDS Research Program, Research Grant Award R88-SF-158, approximately$180,000. (Co-Principal Investigator with M. Cooke, M.D. and Project Director)

1989 The Ethics and Economics of Death. California Council for the Humanities, Conference

Grant Award, G8907-HCI-025, $12,033. (Project Director) 1989-90 Internal Medicine Residents' Attitudes toward AIDS (supplemental funding). AIDS

Clinical Research Center, University of California, San Francisco, $12,000. (PrincipalInvestigator)


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1992-93 Cultural Pluralism and Ethical Decision-Making in AIDS Care: A Pilot Study of theEffect of Race and Ethnicity on Clinical Ethics Decisions. AIDS Clinical ResearchCenter, University of California, San Francisco, $13,500. (Principal Investigator)

1992-93 "Biotechnology in Society" Lecture Series. (Co-Director with Adele Clarke, Ph.D.)

Awards from:• University of California Biotechnology Research and Education Program, $10,000.• GTE Foundation Lectureships, $5,000.• Genentech, Inc., $5,000.

1992-94 Impact of Diversity on Ethical Decision-Making in AIDS Care. American Foundation

for AIDS Research, Research Grant 1772, $49,379. (Principal Investigator) 1992-95 Cultural Pluralism and Ethical Decision-Making. National Institutes of Health/NINR,

R01 NR 029060, $447,547. (with Anne J. Davis, Ph.D.; Project Director and Co-PrincipalInvestigator through 6/94, then Principal Investigator; Score 105, Percentile 0.9%)

1993-95 Cultural Diversity and Bioethics in North America: A Review and Critique of

Current Issues. Greenwall Foundation Presidential Grant Award, $33,064. (PrincipalInvestigator)

1994-95 Cultural Diversity and Ethical Decision-Making in AIDS Care for Women: A Pilot

Study of the Effect of Race and Ethnicity on Clinical Ethics Decisions. AIDS ClinicalResearch Center, University of California, San Francisco, $12,688. (PrincipalInvestigator)

1994-96 Stanford Center for Biomedical Ethics "Core Support". The Greenwall Foundation,

$200,000. (Project Director) 1995-98 Dying in an African-American Community: An Ethnographic Study of Death Across

the Life Cycle. Open Society Institute, Project on Death in America, $149,987. (PrincipalInvestigator)

1995-98 Cultural Diversity and Ethical Decisions in AIDS Care for Women. State of California

AIDS Research Program, Research Grant Award, R95-ST-188, $100,005. (PrincipalInvestigator)

1995-98 Stanford Program in Genomics, Ethics and Society. Initial Funding from the

SmithKline Beecham Corporation, $950,000 and the Beckman Foundation, $70,000. (Co-Director with Thomas Raffin, M.D., Henry Greely J.D.)

1996-97 Ethical Issues in Health Promotion and Disease Prevention. California Wellness

Foundation, in collaboration with The Hastings Center, $33,949. (Stanford PrincipalInvestigator)

1996-97 Culture, End-of-Life Care, and Bioethics: What Differences Make A Difference?

Conference Grant, Robert Wood Johnson Foundation, $26,365. (Principal Investigator) 1997-98 Social/Ethical Impact of Presymptomatic Testing for BRCA1/2.

• Kaiser Foundation Research Institute $33,970 (Co-Principal Investigator with KayJohnston, M.D.)

• Walter & Elise Haas Foundation $20,000 (Principal Investigator) 1997-99 Presymptomatic Genetic Testing for Breast Cancer: A Pilot Study of Social and

Ethical Issues Confronting High-Risk Families. National Cancer Institute, CA-95-003, $17,400. (Principal Investigator)


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1997-02 Miriam and Peter Haas Fund for Stanford University Biomedical Ethics Center

Research, $500,000. (Co-Principal Investigator) 1998-99 Speaking About Death: Culture, Language, and Communication in End-of-Life

Care. Robert Wood Johnson Foundation, “Last Acts Campaign,” $43,362 (PrincipalInvestigator)

1999-00 Stanford Center for Biomedical Ethics Filmmaker-in-Residence Program. The

Greenwall Foundation, $100,000. (Principal Investigator) 1999-00 Direct-to-Consumer Advertising of Tamoxifen: A Pilot Study. The Greenwall

Foundation (Presidential Award), $25,000. (Principal Investigator)

1999-01 Dilemmas in Commercializing Human Genome and Biotechnology Products:Developing a Case-based Business Ethics Curriculum for Industry. Office ofBiological and Environmental Research, Department of Energy, $140,000. (PrincipalInvestigator)

1999-02 The Genetic and Environmental Influences on Adolescent Tobacco Use: PGESConsultation to SRI International. State of California, TRDRP, 1PT2002, $15,081.(Principal Investigator)

2000-02 A Case-based Ethics Curriculum for the Biotech Industry. NIH, R25 HG02082-01,

$144,718. (Principal Investigator) 2000-05 Promoting Effective Communications and Decision Making for Diverse

Populations. NIH/AHRQ, 1PO1 HS10856, $234,527. (Stanford Site PrincipalInvestigator, E. Washington, UCSF, Principal Investigator)

2000-03 The Ethics of Identifying Race in the New Genetics. NIH/NRSA, 5F32 HG00221-

02, $127,899. (Research Mentor) 2001-04 Ethical Challenges in Neuroimaging, Greenwall Foundation, $150,000. (Co-

Investigator). 2001-02 Neuroethics: Mapping the Field, Dana Foundation, Conference Grant Award,

$105,000. (Principal Investigator). 2002-03 Neuroethics: Mapping the Field, NIH (NINDS, NIMH, NIDA), Conference Grant Award,

R13 NS044670, $40,000. (Principal Investigator). 2002-05 Education in Genetics Ethics (EDGE), NIH, $124,179. (Stanford Site Principal

Investigator, M. Rothstein, University of Louisville, Principal Investigator). 2002-05 Genetics of Nicotine Addiction-Examining Ethics and Policy. NIH/NIDA,

1R01DA14577, $750,000. (Principal Investigator; Score 148, Percentile 6.5%). 2002-03 Observing Death, Examining Bioethics. (Stanford Humanities Center Fellowship

Project), Greenwall Foundation Presidential Award, $25,000. (Principal Investigator). 2003-2005 Ethical Dimensions of Neuroscience Research. Stanford Bio-X Interdisciplinary

Initiatives, $146,822. (Co-Principal Investigator). 2003-04 Race and Ethnicity in the Context of Human Genetic Variation: Examining Social


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and Scientific Consequences. Affymetrix, Inc., $20,000. 2003-05 Mellon Foundation Graduate Research Seminar Award. Stanford University, $10,000.

each year (with $10,000 each year cofunding from Center for the Comparative Study ofRace and Ethnicity).

2004-09 Center for Integration of Ethics and Genetic Research. NIH/NHGRI (DOE

co-funding), 1P50 G003389-01, $402,067 direct costs year 1. (Co-Investigator).

Fellowships and Student Awards 1977-78 National Institute of Health Training Grant in Medical Anthropology, University of

California, Berkeley, Predoctoral Fellowship (GM1224). 1978-81 National Research Service Award, U.S. Public Health Service, Individual Predoctoral

Fellowship (1F31NU05093). 1980 Wenner-Gren Foundation Research Grant for Anthropological Research, for doctoral dissertation (4066). 1981 Dissertation Research Funds Award, Graduate Division, University of California, San Francisco.

Memberships in Professional Organizations

• American Anthropological Association• American Society for Bioethics and Humanities• Hastings Center• Society for Applied Anthropology• Society for Medical Anthropology• Society for the Social Study of Science

Professional Licensure

Registered Nurse, State of California, RN253113 (“inactive” status as of 7/1/04)

Major Professional Activities

National Offices, Committees, etc.1991-93 Appointed Member, American Anthropological Association Task Force on AIDS.

1991-93 Founding Co-Chair, Bioethics and Anthropology Interest Group, Society for MedicalAnthropology.

1996-98 Elected to Executive Board, American Association of Bioethics.

1996-99 Appointed to Advisory Committee on Research on Women’s Health, NationalInstitutes of Health.

1997-00 Elected to Executive Board (Secretary/Treasurer), Society for Medical Anthropology,


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American Anthropological Association.

1999-02 Appointed Member, Secretary’s Advisory Committee on Genetic Testing, U.S.Department of Health and Human Services.

2000-02 Co-Chair, Secretary’s Advisory Committee on Genetic Testing Working Groups on

Informed Consent/IRB and Non-Medical Genetic Testing.

Research/Policy/Consultation1989-90 Member, Hastings Center Multi-Disciplinary Project Group, "Ethical Issues in the

Nursing Home."

1991 Invited Participant, The Role of Anthropology in the AIDS Epidemic in the UnitedStates. Centers for Disease Control, Atlanta, GA, Oct. 16-17, 1991.

1993 Dartmouth Invitational Conference, "The Future of Advance Directives Research,"funded by AHCPR, the Greenwall Foundation and the Walter and Elise Haas Fund (JoanTeno and Joanne Lynn, Co-P.I.s)

1993-95 Member, Hastings Center Multi-Disciplinary Project Group, "TechnologyAssessment: Uses, Context and Interpretation," funded by AHCPR (Daniel Callahan, P.I.)

1993-95 Member, "Humanizing Bioethics" Project Group, an interdisciplinary project funded bythe Humanities and Social Science Research Council of Canada (Barry Hoffmaster, P.I.)

1994-95 Consultant, Qualitative Data Analysis for SUPPORT Project, funded by the RobertWood Johnson Foundation.

1995- National Advisory Committee, "Program of Research on End-of-Life," Center for Ethicsin Health Care, Oregon Health Sciences University.

1996-98 Informed Consent Working Group, National Cancer Institute Six-Site CooperativeFamilial Breast Cancer Registry (Northern California Cancer Center/Stanford, Universityof Utah, Memorial Sloan Kettering, Fox Chase Cancer Center, and Centers in Ontario,Canada and Australia). Committee chaired by Mary Daly.

1996 External Review Committee, Program in Medical Ethics, Department of SocialMedicine, Harvard Medical School.

1995-96 Consultant to Educational Film, “Grave Words: Tools for Discussing End of LifeChoices.” (A video to educate medical students and house officers.) Maren Monsen,M.D., Director.

1995-98 Consultant, "Family Decision Making for Incapacitated Patients" project, Oregon HealthSciences University, (Virginia Tilden, P.I.), funded by the NINR/NIH R01 NR03526.

1997-98 Consultant, “Death and Dying in America,” KALW Radio Project, JoAnn Mar, funded byCalifornia Council for the Humanities.

1997-98 Consultant, “Insights into Hastened Death” project, University of Washington, Seattle,funded by The Greenwall Foundation and the Walter & Elise Haas Fund (RobertPearlman, P.I.).

1997-01 Adjunct Investigator, Northern California Cancer Center, Union City, CA.

1997-99 Advisory Board, Education for Physicians in End-of-Life Care, Institute of Ethics,


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American Medical Association

1997-99 Convener and Co-Chair, Diversity Resource Committee for The Robert Wood JohnsonFoundation “Last Acts” campaign to improve end-of life care.

2000- Consultant, Program of Research on Ethics and End-of-Life Care, Oregon HealthServices University Center for Ethics in Health Care, Portland, OR.

2000- External Review Committee, Ph.D. Program in Bioethics, Case Western ReserveUniversity.

2000-2002 Human Subjects Review Committee, Northern California Cancer Center, Union City,CA.

2001 Consultant, Committee on Care of Children Who Die and Their Families, Institute ofMedicine, National Academy of Sciences, Washington, DC.

2001 Consultant, development of “Bioethics Faculty Scholars Program,” The GreenwallFoundation, New York, NY.

2001 Workshop Participant, Integrative Workshop on EOL Research. US Dept. of Healthand Human Services, Rockville, MD, October 22-23, 2001.

2002 Workshop Participant, Research Ethics in End of Life Care. NIH, Rockville, MD,September 12, 13, 2002.

Professional ServiceEditorial Boards:

1993-98 Editorial Board, Medical Anthropology Quarterly.

1999-02 Editorial Board, American Journal of Bioethics

1996- Editorial Advisory Board, Science, Technology, and Human Values.

2000- Editorial Board, Medical Anthropology

2005- Consultant Editor, Nursing Ethics

Manuscript Reviewer:Journal of the American Medical Association; Journal of Health Politics, Policy, and Law;Social Science and Medicine; Medical Anthropological Quarterly; Western Journal ofMedicine; Culture, Medicine, and Psychiatry; University of Hawaii Press; TheoreticalMedicine and Bioethics; British Medical Journal, Nature Reviews Genetics.

Grant Reviewer:National Science Foundation; National Institutes of Health; Humanities and SocialScience Research Council of Canada; Manitoba Health Research Council; GenomeCanada; Rockefeller Foundation; Meyer Memorial Trust; University of CaliforniaBiotechnology Research and Education Program; The Greenwall Foundation; U.S.Veteran’s Administration.

University Service

Stanford University (1993-present)


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1993- Member, “Ethics in Society” Program Steering Committee.

1993-99 Member, Ethics Committee, Lucille Salter Packard Children's Hospital at Stanford.

1993-94 Member, Technology Assessment Steering Council, Stanford University Medical Center.

1997- Faculty Associate, Center for the Comparative Study of Race and Ethnicity.

2000- Associate, Center for Primary Care and Outcomes Research (PCOR) and the Center forHealth Policy (CHP).

2001- Member, Review Committee for Health Services Research Interdisciplinary GraduateProgram.

2001- Member, Medical Advisory Committee and Safety Monitoring Board, General ClinicalResearch Center.

2002- Interviewer, Medical School Candidate Admissions.

2002- Member, Executive Committee, The Research Institute of Comparative Studies in Raceand Ethnicity (RICSRE).

2002- Cultural Advisory Committee, Lucile Packard Children’s Hospital and UCSF School ofNursing in support of study “Latino and Chinese Families in Pediatric Palliative Care.”

2002- Advisory Board, Women’s Health@Stanford

2002-03 Chair, Search Committee for Associate/Full Professor (Teaching) of Biomedical Ethics,School of Medicine

2003- Member, Advisory Committee, Stanford University Center on Ethics (representingSchool fo Medicine Dean)

2003-04 Faculty Convenor, Mellon Foundation Graduate Research Workshop (jointly sponsoredwith the Research Institute for the Comparative Study of Race and Ethnicity): "RacialTaxonomies and DNA: Revisioning Race in the Context of Human Genetic VariationResearch."

2003- Cancer Clinical Trials Scientific Review Committee, Stanford University

2004 Faculty Advisory Board, Institute for Research on Women and Gender, StanfordUniversity

University of California, San Francisco (1988-present)1988-89 School of Nursing Committee on AIDS.

1988-90 Member, Ethics Committee, University of California, San Francisco Hospitals.

1988-93 Member, Bioengineering Faculty Group, University of California, Berkeley and SanFrancisco campuses.

1992-93 Member, Executive Committee, Medical Anthropology Program.

2002-03 Member, Search Committee, Department of OB/GYN, Reproductive Ethics FacultySearch.


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Public Service

1986-90 Member, Clinical Ethics Committee and Consultant in Ethics, Laguna Honda Hospital,San Francisco, CA. Helped found ethics committee and developed initial policies for a1000 bed public long term care facility.

1986-89 Member, Ethics Committee of California Nurses' Association. Authored policies on use ofanencephalic infants as organ donors and the nurse's role in assisted suicide.

1987-95 Member, On Lok Senior Health Services Ethics Committee, San Francisco, CA.Chairperson 1989-90; Vice-Chair 1992-95. Developed ethics policy manual usednationally in On Lok "PACE" replication sites.

1991 "Controversies in Ethics," lecture for University of California Community Health Talks,Oct. 24.

1992 Summer Mentor for San Francisco Public School Student through UCSFScience/Education Partnership Program.

1993 "Working with Culturally Diverse Families," presentation at Shriner's Hospital for CrippledChildren, San Francisco, CA, March 24.

1993 Consultant to "Ethics Task Force," California Association of Homes for the Aged, astatewide, non-profit organization representing more than 400 charitable providers ofhealth care, housing and supportive services to seniors.

1993-95 Member, Curriculum Development Committee, "Winding Your Way through DNA,"(educational materials for high school students).

1993-95 Member, Advisory Committee, San Mateo County, CA, Biotechnology Education Project(for high school teachers).

1996 Testimony for the State of California “Senate Select Committee on Genetics and PublicPolicy,” Sacramento, Oct. 24.

1997- Ethics Advisory Board, Affymetrix Corporation.

1997 Lecture on genetic testing for undergraduate biotechnology course, Santa ClaraUniversity, Mar. 11.

1997 Member, Advisory Committee, “Leadership Alliances in the Biological Sciences,” StanfordHuman Genome Education Program (for high school teachers).

1998-99 Advisory Board, “The End of Life” Radio Project. Station KALW, San Francisco.

1999 Panelist, The Freedom Forum, Pacific Coast Center, “Stories of the Century: A quick lookat the past and a longer look at the future.” San Francisco, CA, August 10.

1999 Consultant, PBS, “The Gene Files,” San Francisco, CA.

2001 Panelist, “After the Human Genome,” John S. Knight Fellowship Program for ProfessionalJournalists, Stanford, CA, July 7.

2001 "Genetics and Ethics" lectures to 3 Freshman Biology Classes, Lick-Wilmerding High


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School, San Francisco, CA, December 17.

Consultation to print and broadcast media on various issues, ranging from human cloning to genetictesting: New York Times, Los Angeles Times, Washington Post, Sacramento Bee, San FranciscoChronicle, San Francisco Examiner, Business Week, San Jose Mercury News, The Scientist, The NewRepublic, La Monde, ABC Nightline, KPIX Channel 5, KQED, KLIV/CNN San Jose, Seattle PublicTelevision, National Public Radio, etc.

Teaching

Formal Scheduled Classes - Stanford University:"Preparation for Clinical Medicine" (MED 208C) Ethics Modules, Spring 1993, 1995, 1997.

"Literature and Medicine" (MED 214), (with Audrey Shafer, M.D.), Winter 1994, 1995, 1996, 1997.

“Ethnicity and Medicine” (MED 224), Guest Lecturer, Spring 1997.

“Anthropology of Death and Dying” (ANTHRO 145B/245B), Spring 1999, Spring 2000.

“Introduction to Cultural Anthropology” (CASA 1), Guest Lecture entitled “The Role of MedicalAnthropology in National Health Policy,” Winter 2000; Guest Lecture entitled “Anthropology of Medicine:What Does a Medical Anthropologist Do?” Spring 2001.

“Anthropology and Bioethics” (ANTHRO 174/274), Spring 2001, Winter 2004

“Visions of Mortality” (Introduction to the Humanities I-HUM 46), Fall 2001, Fall 2002, Fall 2003

“Social Class, Race/Ethnicity and Health” (SOC 141A), Guest Lecture entitled “The Meanings of ‘Race’ inthe New Genomics,” Winter 2002.

“Responsible Conduct of Research” (MED 255), Course Co-Director, Winter 2002

“Molecular Epidemiology (HRP 228), Guest Lecture entitled “Ethical Issues in Epidemiological Research,”Spring 2002.

“Methodology in Ethics: Translating Theory into Practice” (Ethics and Society/Philosophy 77), Spring2004

“Race & Genetics” (Guest Lecture). Introduction to Comparative Studies in Race and Ethnicity (CSRE196C), Spring, 2004, April 7.

Formal Scheduled Classes - University of California, San Francisco:"Social and Ethical Issues in Biomedical Innovation" (BIOENGINEERING 260), Spring 1988, 1989, 1990,1992.

“Topics in Science, Technology and Society: Group Study” (ANTHRO 248), (with Adele Clarke, Ph.D.),Fall 1992.

“Introduction to Health Politics, Policy, and Policy Analysis” (HMS 247), Guest Lecturer, Fall 1992.

“Introduction to Medical Anthropology” (ANTHRO 205B), Guest Lecturer, Winter 1992.

"Biotechnology in Society" (graduate seminar), (SOC/ANTHRO 249), (with Adele Clarke, Ph.D.), Winter1993.


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"Social Studies of Science and Technology" (SOC/ANTHRO 282), (with Adele Clarke, Ph.D.), Spring1994.

“End-of-Life-Care Across Practice Settings” (NURSING 249), Guest Lecturer, Spring 2001; Spring 2002.

Core Curriculum for Medical Students: "Cancer Block," Culture Core, Developed lecture and small groupexercise: "Culture, 'Race' and Ethnicity in Cancer: What Differences Make a Difference?" Winter 2002.

Medical Center/Clinical Teaching:Numerous presentations (on use of biomedical technology, health care reform, pain control, culturaldiversity, advance directives, physician assisted suicide, etc.) for hospital nursing service departments,chaplaincy, and staff training programs.

Grand Rounds Presentations:"Physician Responsibility and the Fear of AIDS," UCSF Medical Ethics Grand Rounds, Apr. 16, 1986.

"What is a Terminal Patient? Anthropological and Ethical Perspectives," UCSF Medical Ethics GrandRounds, Dec. 17, 1987.

"Cultural Pluralism and Ethical Decision-Making: A Comparative Study of Patients Facing Life-Threatening Cancer," Stanford University Medical Center, Apr. 1, 1993.

“The Meaning of ‘Race’ in the New Genomic Medicine.” Pulmonary and Critical Care Medicine Rounds,Stanford University Medical Center, Oct. 5, 2001.

“When is a Patient Dying?” VA Hospital Pulmonary and Critical Care Medicine Grand Rounds, VeteransAffairs Palo Alto Health Care System, Feb. 6, 2002.

“Ethical Dimensions of the Neurosciences: Envisioning a New Field.” Neurology and NeurologicalSciences Grand Rounds, Stanford University Medical Center, Dec. 13, 2002.

Students and Fellows Supervised

Stanford Undergraduate Student Research/Mentoring (chronological):Renee Boynton (Princeton, 1995) Research Mentor, Minority Summer Research Exchange Program atStanford.

Julie Carter (Human Biology Honors Thesis, 1994) "Ethical Decision-Making Processes: An Analysis ofChinese Cancer Patients and Their Families." Paper received the WHR Rivers Prize, Society for MedicalAnthropology, "Best Undergraduate Medical Anthropology Paper".

Susan Stefanac (Human Biology Honors Thesis, 1995-96) "The Process of Disclosure of Diagnosis andPrognosis to Pediatric Oncology Patients."

Connie Kim (Human Biology 1995-96) Supervised internship on cultural diversity and medical decisionmaking.

Aarthi Belani (Honors Thesis Advisor, Stanford Ethics in Society Program, 2000-2001) “Patients, Pills,and the Poor: The Health Rights Impact of the WTO Agreement on Trade-related Aspects of IntellectualProperty Rights.”

Herbrina Sanders (Undergraduate Advisor, Human Biology, 2001-02).


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Lynn M. Yee (Undergraduate Advisor, Human Biology, 2001-03).

Charu Gupta (Humanities Center Undergraduate Research Fellow; Undergraduate Honors ThesisAdvisor, CASA, 2002-03) “The Etiology and Health Impact of Second-Generation South Asian AmericanWomen’s Bodily Fragmentation and Multiplicity of Identies.””

Catherine Barnard (Ethics in Society Honors Thesis Advisor 2002-04) "Autonomy and DiseasePrevention in Community-Based Genetic Screening: A Case Study."

Christopher McCall Bruner (Ethics in Society Honors Thesis Advisor 2003-04) "Just IntellectualProperty Arrangements Between Economically Unequal Nations."

Kimberly Taub (Undergraduate Advisor, Human Biology, 2003-05)

Ph.D. Students (alphabetical):Theresa Drought (UCSF, Nursing) Qualifying Examination Committee, Dissertation Committee, "TheDiscourse of Advance Care Planning: End-of-life Decision-making in a Multicultural Population of Cancerand AIDS Patients.”

David Eaton (UCB/UCSF, Medical Anthropology) Ph.D. Qualifying Examination Committee.

Patricia Flynn (UCSF, Sociology) Advisor, Dissertation Research on "Institutional Ethics Committees."

Linda Hogle (UCB/UCSF, Medical Anthropology) Qualifying Examination Committee, DissertationCommittee, "Procuring Human Biological Materials in Post-War, Post-Unification Germany."

Anne Hughes (UCSF, Nursing) Research Mentor for NIH Individual Pre-doctoral Fellowship Award(NRSA).

Sandra Hyde (UCB/UCSF, Medical Anthropology) Academic Advisor, Ph.D. Qualifying ExaminationCommittee.

Marjory Lazarus (UCB/UCSF, Medical Anthropology) Academic Advisor.

Zhen Lin (Stanford, Bioinformatics) Chair, Dissertation Defense on “Analyzing Disclosure Risk of PublicBiomedical Databases.” March 15, 2004.

Ingrid Oakley-Girvan (Stanford, Epidemiology) Chair, Dissertation Defense on “Correlates of ProstateCancer Incidence and Survival.” March 28, 2002

Traci Powell (Stanford, Genetics) Dissertation Committee, "The Efficacy of Genetic Testing andCounseling for Familial Breast Cancer Showing Linkage to the BRCA1-2 Genes."

Meryl Rappaport (UCSF, Sociology) Third Area Exam Advisor/Reader, "Sociological Dimensions ofHigh-Tech Home Care."

Medical Student Research:Eugene Hern (UCSF/UCB Joint Medical Program) Supervised Master's thesis, "Value Conflicts in CrossCultural Medicine: The Role of the Family in Medical Decisions--Chinese Patients and WesternPractitioners."

Lee Sanders (funded by Stanford Medical Scholars Program Award) "Examination of the EthicsConsultation Process."

Pauline Terebuh (funded by Stanford Medical Scholars Program Award) "Patients' Trust in Physiciansand End of Life Decisions: A Comparison of African American and White Patients in Long Term Care."


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Stephen Weiss (UCSF) Supervised individual Medical Ethics Clerkship.

Post-Doctoral Research Fellows (funded) chronological:Jan Gates-Williams, Ph.D. (NIH Minority Supplement Award and Stanford School of Medicine Dean’sFellowship) "Cultural Pluralism and Ethical Decision-Making" (1994-95).

Susan Kelly, Ph.D. (National Center for Human Genome Research) "Prenatal Diagnosis Using FetalCells from Maternal Blood" (1995-97).

LaVera Crawley, M.D. (Stanford University) “Cultural Diversity and End-of-Life Care Research Programs”(1997-98).

Brad Davidson, Ph.D. (Robert Wood Johnson Foundation Last Acts Project) "Speaking About Death:Culture, Language, and Communication in End-of-Life Care" (1998-99).

Maren Monsen, M.D. (Greenwall Foundation) “Filmmaker-in-Residence” (1999-00).

Sandra Lee, Ph.D. (National Human Genome Research Institute) “The Ethics of Identifying Race in theNew Genetics” (2000-03)

In addition, the Stanford Program in Genomics, Ethics, and Society funds visiting fellows at the juniorand senior level, as well as Stanford faculty fellows. The following individuals have been supportedthough this multi-disciplinary fellowship program, co-directed by Barbara Koenig:

1995-96 -- Diane Beeson, Ph.D. (Medical Sociology), Monica Casper, Ph.D. (Medical Sociology),Deborah Gordon, Ph.D. (Medical Anthropology).1996-97 -- Sara Tobin, Ph.D. (Molecular Biology), Jonathan Kaplan, Ph.D. (Philosophy), HowardKlepper, Ph.D., J.D. (Philosophy/Law), Alan Stockdale, Ph.D. (Anthropology).1997-98 -- Anne Moyer, Ph.D. (Social Psychology); R. Alta Charo, J.D. (Law); Marie Hirtle, J.D.(Law), Rachel Cohen, Ph.D. (Philosophy), Timothy Caulfield, J.D. (Law), Margaret Eaton, J.D.(Law).1998-99 -- Margaret Eaton, J.D. (Law); Robert Yamashita, Ph.D. (Sociology); Gwen Anderson,RN, Ph.D. (Nursing).1999-00 -- Patricia Benner, RN, Ph.D. (Nursing); Jeffrey R. Botkin, M.D., MPH (Genetics);Lorraine Caron, Ph.D. (Bioethics); Norbert Paul, Ph.D. (Philosophy of Medicine).2000-01 -- Lorraine Caron, Ph.D. (Bioethics); Sandra Soo-Jin Lee, Ph.D. (Anthropology).

Major Conferences/Meetings Organized

"AIDS and the Medical Humanities." National Meeting of the Society for Health and Human Values.Funded by California Council for the Humanities, San Francisco, CA, Apr. 1986 (125 registrants; editedconference proceedings with Eric Juengst; first national humanities conference devoted to HIV/AIDS).

"AIDS: New Challenges in Nursing Education." Week-long Summer Institute held at University ofCalifornia, San Francisco. Funded by HRSA. July, 1988 (50 registrants).

"The Ethics and Economics of Death." Co-sponsored by California Medical Association, CaliforniaNurses' Association, The Hastings Center and University of California. Funded by California Council forthe Humanities. San Francisco, CA, Nov. 1989 (775 registrants).

"Biotechnology in Society." Ten-week lecture and seminar series. Funded by The GTE Foundation,Genentech, Inc. and University of California Biotechnology Research and Education Program. WinterQuarter, 1993 (average attendance 75).


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"Cultural Diversity and End-of-Life Issues." Day-long conference for health care providers, organizedwith Stanford Geriatric Education Center. Major funding by the Veterans Administration and regionalhospices. Stanford University, Mar. 31, 1995 (382 registrants).

"Genetic Testing for Breast Cancer: The Science, The Ethics, The Future." Day-long conference topresent the “white paper” findings of the Working Group of the Stanford Program in Genomics, Ethics,and Society, with commentary by leading experts. Held in conjunction with the World Congress of theInternational Association of Bioethics, with major funding by the SmithKline Beecham Corporation. SanFrancisco, CA, Nov. 23, 1996 (approximately 350 attendees).

“Culture, End-of-Life Care, and Bioethics: What Differences Make A Difference?” Two dayinvitational conference. Supported by the Robert Wood Johnson Foundation, the Greenwall Foundation,and the Pettus Crowe Foundation. Held at the Hastings Center, Briarcliff Manor NY, Sep. 16-17, 1996.

“Genetic Testing and Alzheimer Disease: Has the Time Come?” Stanford, CA, October 25, 1997(approximately 250 attendees).

“Health Promotion and Disease Prevention: Ethical and Social Dilemmas.” Funded by the CaliforniaWellness Foundation. Los Angeles, CA, Dec. 11, San Francisco, CA, Dec.-12, 1997 (repeated at theHarvard School of Public Health, 1998).

“Individual Genetic Variation: Implications of the Coming Transformation of Medicine.” Stanford,CA, October 17, 1998. (approximately 250 attendees).

“Neuroethics: Mapping the Field.” San Francisco, CA, May 13-14, 2002. Conference Proceedings at:http://www.dana.org/books/press/neuroethics/

“Race and Ethnicity in the Context of Human Genetic Variation: Examining Social and ScientificConsequences.” Interdisciplinary Faculty Workshop, Stanford Humanities Center, June 9-10, 2003 (withJoanna Mountain).

Papers Presented at Professional Meetings (complete listing)

"Role-Strain in Pediatric Nurses: A Study of the Conflicts in Caring for Dying Children." KroeberAnthropological Society Annual Meeting, Berkeley, CA, 1977.

"Ethics and Objectivity in Studying Ourselves." Prepared for "To Intervene or Not: Nursing, AMicrocosm for Addressing Anthropological Issues of Objectivity in Fieldwork" symposium, organized byBarbara Koenig and Charlotte Weaver. American Anthropological Association Annual Meeting, LosAngeles, CA, 1978.

"The Medical Anthropologist in a University Teaching Hospital: Ethics and Etiquette of Fieldwork."Southwestern Anthropological Association Annual Meeting, San Francisco, CA, 1978.

"The Cultural Meaning of Discovery: An Ethnography of Innovation in Clinical Medicine." AmericanAnthropological Association Annual Meeting, Los Angeles, CA, 1981.

"Anthropology and the Assessment of New Medical Technologies: The Case of TherapeuticPlasma Exchange." Society for Applied Anthropology Annual Meeting, Edinburgh, Scotland, 1981.

"The Technologic Imperative in Medical Practice" (invited paper). American AnthropologicalAssociation Annual Meeting, Denver, CO, 1984.

"Physician Response to a New, Lethal, and Presumably Infectious Disease: AIDS and Medical


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Residents in San Francisco" (with M. Cooke). Society for Health and Human Values National Meeting,San Francisco, CA, 1986.

"Ethical Issues in the Care of HIV-Infected Patients." American Thoracic Society Scientific Sessions,Cincinnati, OH, 1989.

"Examining Orthodoxies: The Role of Anthropology in Bioethics" (with M. Margaret Clark). AmericanAnthropological Association Annual Meeting, Washington, DC, 1989.

"Balancing Fear and Responsibility: Professional Ethics in AIDS Care" (with M. Cooke, N. Beery,and S. Folkman). American Anthropological Association Annual Meeting, Chicago, IL, 1991.

“Learning to Care: Responses of Physicians in Training to AIDS” (poster presentation with N. Beeryand M. Cooke). American Anthropological Association Annual Meeting, San Francisco, CA, 1992.

"Cultural Pluralism and Ethical Decision-Making: Meanings of Autonomy to Patients and FamiliesFacing Life-Threatening Cancer" (with C. Orona and A. Davis). American Anthropological AssociationAnnual Meeting, San Francisco, CA, 1992.

"Internal Medicine Residents and AIDS 'Risk Groups:' The Social Construction of Risk, Benefit,and Blame" (with M. Cooke, N. Beery, and S. Folkman). Southwestern Anthropological AssociationAnnual Meeting, Berkeley, CA, 1992.

"Telling the Truth About Cancer: The Ambiguity of Prognosis for Culturally Diverse Patients" (withD. Barnes, A. Mirande, and A. Davis). Society for Applied Anthropology Annual Meeting, San Antonio,TX, 1993.

"Predicting AIDS and Genetic Illness: The Consequences of and Adaptations to Discrimination"(panel discussant). American Public Health Association Annual Meeting, San Francisco, CA, Oct. 26,1993.

"Anthropology, Advocacy, and Professional Responsibility" (panel discussant). AmericanAnthropological Association Annual Meeting, Washington, DC, Nov. 1993.

"Cross-Cultural Issues in End-of-Life Decision-Making." Paper presented for "Multiculturalism andMedicine" symposium, organized by Nancy Jecker. American Philosophical Association Pacific Division,Los Angeles, CA, Apr. 1, 1994.

"Approaching Research Questions in Medical Ethics from Multiple Disciplines" (panel discussant).Society of General Internal Medicine, Washington, DC, Apr. 27, 1994.

"Treatment of HIV/AIDS Patients from Diverse Cultural Backgrounds." American Thoracic SocietyScientific Sessions, Boston, MA, May 23, 1994.

"Ethical Issues in Health Care Reform: The Challenge of Cultural Diversity" (with Patricia Marshall).American Anthropological Association Annual Meetings, Atlanta, GA, Dec. 1, 1994.

"Bioethics and the Politics of Race and Ethnicity: Respecting (or Constructing) Difference?" (withPatricia Marshall). Paper prepared for "Cultural Diversity and Bioethics" symposium, organized by KarenHeller and Barbara A. Koenig. American Anthropological Association Annual Meeting, Atlanta, GA, Dec.2, 1994.

"The Human Genome Diversity Project and Anthropology: Promises and Challenges for theDiscipline." Special event organized for the program committee; panelists included Margaret Lock, EricJuengst, Henry Greely, Allan Swedlund and Kenneth Weiss). American Anthropological AssociationAnnual Meeting, Atlanta, GA, Dec. 3, 1994.


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“Ethical Decision-Making Dilemmas and End-of-Life Care: Issues Confronting African-Americans”(with Jan Gates-Williams and Lisa Moore). American Anthropological Association Annual Meeting,Washington, DC., Nov. 17, 1995.

“Genetic Testing for Breast and Ovarian Cancer: Anthropological Perspectives on a ‘Noninvasive’Technology” (with Nancy Press). American Anthropological Association Annual Meeting, Washington,DC, Nov. 15, 1995.

“Graphing Uncertainty: The Presentation and Representation of Individualized Risk for BreastCancer” (with Nancy Press). American Anthropological Association Annual Meeting, San Francisco,CA, Nov. 21, 1996.

“Genetic Testing and Alzheimer Disease.” Panel, Society for Health and Human Values/AmericanAssociation of Bioethics Annual Meeting, Baltimore, MD, Nov. 1997.

“The Specter of Cloning a New Human Being from a Single Adult Cell: Views from Across theDiscipline of Anthropology.” Invitational Panel (at the request of the program chair). AmericanAnthropological Association Annual Meeting, Washington, DC, Nov. 1997.

“Challenges to “Choice” in Dying: The Limits of Rational Choice Theory in Decisions about Life’sEnd.” Paper prepared for “Forms of Rationality: Moral and Practical Reasoning in Biomedicine andBeyond,” symposium organized by Patricia Marshall, Cheryl Mattingly, & Barbara Koenig. AmericanAnthropological Association Annual Meeting, Washington, DC, Nov. 1997.

“The Presentation and Representation of Individualized Risk in Genetic Testing for BreastCancer.” Invitational Panel. American Society for Bioethics and Humanities, Houston, TX, Nov. 1998.

“Deploying “Race,” “Ethnicity,” and “Culture” in the New Molecular Medicine” (with PatriciaMarshall). Paper prepared for “Performing Race and Ethnicity in the Crisis of the Medical Moment,”symposium organized by Linda Hunt. American Anthropological Association Annual Meeting, Chicago,IL, Nov. 1999.

“Medical Anthropologists ‘Doing’ Policy: A Report from the Genetic Trenches” (with Nancy Press). Society for Medical Anthropology Spring Meeting, San Francisco, CA, March 23, 2000.

“The Embodied Experience of Genetic Risk: Where Biomedical Knowledge Meets Bodies.” (Paperwith Jennifer Fishman, Anne Moyer, and Kathreen Johnston; Organized session with Antoinette Guerra).Society for Medical Anthropology Spring Meeting, San Francisco, CA, March 23, 2000.

“Bioethicists, Biotech Corporations, and Conflicts of Interest.” American Society of Bioethics andHumanities, Salt Lake City, UT, October 29, 2000.

“Can Guidelines Be Created for Limiting Treatments in Older Persons Who Have SeriouslyDiminished Quality of Life?” (with Theresa Drought). National Institutes of Health, IntegrativeConference on End-of-life Research: Focus on Older Populations, Bethesda, MD, October 22, 2001.

Behavioral Genetics & Public Policy (Panel). American Society of Bioethics and Humanities, Montreal,Canada, October 24, 2003

A Critical Anthropology of Human Genetic Variation Research: Examining Scientific Practice;Refining Theories of Difference (session organized with Sandra Lee). American AnthropologicalAssociation Annual Meeting, Chicago, IL, November, 2003.


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Invited Lectures and Presentations (1988 - Present)

"Ethical Issues in Pediatric AIDS." Third Annual Nursing Ethics Conference, Children's Hospital, LosAngeles, CA, Mar. 4, 1988.

"Moral Problems in Organ Procurement." Lauren Norton Lectureship, Cabrillo College, Aptos, CA,Mar. 18, 1988.

"California's Active Euthanasia Initiative." Network of Aging Providers, Mountain View, CA, Apr. 20,1988.

"The Role of Ethics Committees in Guiding Treatment Decisions." Special Geriatric Grand Rounds,Laguna Honda Hospital, San Francisco, CA, May 7, 1988.

"The Nurse's Responsibility to Care." Ethics and AIDS Conference, California Nurses' Association, LosAngeles, CA, May 18, l988 and San Jose, CA, Jun. 3, 1988.

"Ethics and AIDS." Featured Speaker, AIDS/ARC Update, San Francisco, CA, Jul. 16, 1988.

"The Social Meaning of AIDS: Implications for Teaching" (with Virginia Olesen). Lecture at "AIDS:New Challenges in Nursing Education," University of California, San Francisco, Jul. 20, 1988.

"Is New Medical Technology Coercive?" GTE Foundation Lectureship, University of California, Davis,Oct. 26, 1988.

"Why Is It So Hard to Say 'No' to Medical Technology." GTE Foundation Lectureship, City College ofSan Francisco, Mar. 8, 1989.

"The Technological Imperative." Fourth Annual Nursing Ethics Conference, Children's Hospital, LosAngeles, CA, Mar. 10, 1989.

"Social Science and Bioethics: The Relevance of Ethnographic Studies of Nursing Homes." TheHastings Center, Briarcliff Manor, NY, Nov. 3, 1989.

"Ethics and Aging." Keynote lecture, California Geriatric Education Center Yearly Symposium, SanFrancisco, CA, Mar. 8, 1990.

"Technology and the Nursing Home Environment." The Hastings Center, Briarcliff Manor, NY, Mar.15, 1990.

"Choice and Reproductive Technologies: The Role of Ethnographic Research." Lecture,Conference on Bioethics in Eastern Europe, Dubrovnik, Yugoslavia, Sep. 6, 1990.

"Ethics in Health Care Policy." Plenary lecture, 11th Annual National Clinical Nurse SpecialistsConference, San Francisco, CA, Feb. 27, 1992.

"Cultural Issues in Talking About Advance Directives." Lecture at "Choices and Conversations: ThePSDA's First Year," Pasadena, CA, Jan. 9, 1993.

"The Economics of Health Care: Its Impact on Ethical Practice." Keynote address, San FranciscoBay Area Bioethics Council for Long-Term Care Conference, Fremont, CA, Jan. 20, 1993.

"The Social Context in Biomedical Innovation." Invited Seminar, Institute for the Study of SocialChange, University of California, Berkeley, Feb. 26, 1993.


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"The Impact of Personal Attitudes Upon Delivery of Care to HIV Infected Individuals." AnnenbergCenter for The Health Sciences, Rancho Mirage, CA, Apr. 22, 1993

"Ethical Concerns and Implications of Health Care Reform." American College of Dentists AnnualMeeting, "Expanding Our Vision: Becoming More Effective in a World of Health Care Reform," SanFrancisco, CA, Nov. 5, 1993.

"Cultural Diversity and Ethics Committees: What Are The Issues?" Keynote address at the KaiserPermanente Ethics Symposium, Berkeley, CA, Nov. 6, 1993.

"The Ethical Challenge of Biomedical Innovation." Student Pugwash USA, National Conference,Stanford, CA, Jan. 28, 1994.

"Structure and Function of an Ethics Committee in a Community-Based Agency." American Societyon Aging, San Francisco, CA, Mar. 21, 1994.

"Ethical Issues in Health Care Reform." Queen of the Valley Hospital, Napa Valley Medical Center,Napa, CA, Jun. 3, 1994.

"Cultural Diversity in Decision-Making About Care at the End of Life." Medical Grand Rounds, AltaBates Hospital, Berkeley, CA, Aug. 16, 1994.

“Who is at Risk and What are the Consequences of Knowing?” Panelist on Ethical Issues, BreastCancer 1994: An Interactive Symposium, University of California, San Francisco, Sep. 25, 1994.

"Ethical Decision-Making at the End of Life: Respecting Cultural Differences in Caring for CancerPatients." American Society for Radiation Therapy, San Francisco, CA, Oct. 3, 1994.

"Bioengineering Ethics." Ethics in Science Symposium, University of California, San Francisco andBerkeley, Bioengineering Graduate Group, San Francisco, CA, Nov. 12, 1994.

"What Differences Do 'Differences' Make?" Ethics Committees and the Elderly Conference, AmericanSociety of Law, Medicine and Ethics, Marina del Rey, CA, Dec. 8, 1994.

"The Place of Ethnicity in the Current Paradigm for Ethical Decision Making at the End-of-Life."Cultural Diversity and End-of-Life-Issues Conference, Stanford, CA, Mar. 31, 1995

"What is the Relevance of Cultural Diversity for Ethical Decision Making?" American Academy ofPediatrics Bioethics Conference, Long Beach, CA, Jun. 17, 1995.

“Genetic Testing: Expectations, Implications and Options.” Panelist on Ethical Dilemmas, BeckmanPublic Policy Symposium, Stanford, CA, Oct. 10, 1995.

“Predictive Genetic Testing for Breast Cancer: Social and Ethical Issues Facing High RiskFamilies.” Center for Biomedical Ethics, University of Minnesota, Minneapolis, MN, Dec. 5, 1995.

“Cultural Considerations in Care for the Dying in a Changing World.” Annual PostgraduateConvention, Loma Linda University School of Medicine, Loma Linda, CA, Mar. 4, 1996.

“The International Traffic in Organs: Commentary.” Commerce in Organs: Culture, Politics, andBioethics of the Global Market, University of California, Berkeley, Apr. 26, 1996.

“Ethical Conflicts in Managed Care.” Moderator at Stanford Medical Alumni Spring Symposium,Stanford, CA, May 4, 1996.

“The Challenges of Bioethics Research: A Report From the Field.” Keynote address at the Third


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Annual Ethics Research Symposium, Center for Ethics in Health Care, Oregon Health SciencesUniversity, Portland, OR, May 22, 1996.

“Understanding Cultural Difference in Caring for Patients.” Keynote address for the Wisconsin EthicsCommittee Network conference, Broadening our Perspectives: Providing Health Care in an EthnicallyDiverse Community. Madison, WI, September 27, 1996.

“Ethical, Legal, and Social Considerations of BRCA1-2 Genetic Susceptibility Testing.” AmericanCollege of Surgeons Annual Meeting, San Francisco, CA Oct. 5, 1996.

“Ethical Dimensions of Testing for Mutations in BRCA1-2.” Northern California Cancer Center,Union City, CA, March 17, 1997.

“Cross-Cultural Issues in End-of-Life Care.” Medical Education for Care Near the End of Life NationalConsensus Conference. Washington, D.C., May 16, 1997.

“The Diagnosis and Prediction of Marfan Syndrome: Ethical, Legal, and Social Issues.” NationalMarfan Foundation Annual Meeting, Stanford, CA July 11, 1997.

“Culture and Biomedical Ethics: Examining the Practices of Managed Death.” AnthropologyDepartment Colloquium, Stanford University, October 13, 1997.

“Legal, Social, and Ethical Implications of Widespread Availability of Genetic Testing.” PanelModerator, Family Caregiver Alliance Anniversary Conference, San Francisco, CA, Oct. 20, 1997.

“The Promise of Molecular Medicine in Preventing Disease: Examining the Burden of GeneticRisk.” Health Promotion and Disease Prevention: Ethical and Social Dilemmas. Los Angeles, CA, Dec.11, 1997 and San Francisco, CA, Dec. 12, 1997.

“Cloning Humans: Is it Inevitable and Can We Prepare for It?” and “Cultural Diversity and DecisionMaking about Care at the End of Life.” St. Francis Medical Center Annual Bioethics Conference,Honolulu, HI, Feb. 12-13, 1998.

“Observing Death, Examining Bioethics.” Workshop on Ethics, Medicine and Social Science,Department of Social Medicine, Harvard Medical School, March 12, 1998.

“Does ‘Race’ Have Meaning in the New Genetic Medicine?” The Stanford Program in Genomics,Ethics, and Society, Palo Alto, CA, Oct. 17, 1998.

"Genetic Testing for Breast Cancer: Examining the Cultural Geographics of Risk, Hope, andControl." The Stanford Program in Genomics, Ethics, and Society, Palo Alto, CA, Feb. 2, 1999.

“Genomic Anthropology: Examining the New Molecular Medicine.” Department of AnthropologicalSciences at Stanford University, Palo Alto, CA, Feb. 19, 1999.

“Cultural Compromises in Oncology.” Ethics Rounds, Dana-Farber Cancer Institute, Boston, MA,March 22, 1999.

“New Directions in Breast Cancer.” Decision Making Panel, Northern California Cancer Center, San Francisco,CA, March 24, 1999.

“Thinking About ‘Culture’ in Bioethics.” Fellows Seminar, Clinical Center, National Institutes of Health, Bethesda,MD, June 16, 1999.

“Health Care Access & The Health of the Public” and “Trust and the Doctor/Patient Relationship.” Bioethicsin the Urban Context: A National Symposium, New York Academy of Medicine, New York, NY, Dec. 2-3, 1999.


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“How to Think About Cultural Difference in Bioethics.” Keynote Address, Two-Day Conference onMulticultural Considerations in the Practice of Clinical Nursing Ethics, Yale-New Haven Hospital, NewHaven, CT, April 27-28, 2000

“Conceptualizing Empirical Research in Bioethics.” Toward Higher Levels of Analysis: Progress andPromise in Research on Social and Cultural Dimensions of Health Conference, National Institutes ofHealth, Bethesda, MD, June 27, 2000

“Teaching About Culture in the Realm of Biomedicine.” Stanford Faculty Development Program, Endof Life Unit with LaVera Crawley, M.D., September 13, 2000

“Identifying ‘RACE’ in Health Disparities Research: Implications of the Genomic Prism.” Racial andEthnic Disparities in Health Conference, Inaugural Conference for Yale Journal of Health Policy, Law, andEthics, New Haven, CT, February 9-10, 2000.

“Developing a Case-Based Ethics Curriculum for the Biotech Industry.” A Decade of ELSIResearch, Bethesda, MD, January 16-18, 2001

“Integrating Genomics Technologies in Healthcare: Practice and Policy Challenges.” BanburyCenter, Cold Spring Harbor, NY, February 25-28, 2001.

“Crossing Over Jordan: African Americans and Care at the End of Life.” Speaker, Duke Institute onCare at the End of Life Symposium with LaVera Crawley, M.D., Duke Divinity School, Durham, NC, May24, 2001.

“Bioethicists and Biotech Companies.” BIO Biotechnology Industry Organization, 2001 InternationalBiotechnology Convention and Exhibition, San Diego, CA, June 24-27, 2001.

“Will ‘Race’ Matter in the New Genomic Medicine?” Department of Medicine Grand Rounds,University of California, Irvine, July 31, 2001.

“Beyond the Beginning: The Future of Genomics.” National Human Genome Research Institute(NHGRI), Airlie House, Warrenton, VA, December 12–14, 2001.

“Human Genetics, Environment, and Communities of Color: Ethical and Social Implications.”West Harlem Environmental Action (WE ACT) national conference, New York, NY, February 4, 2002.

“Will ‘Race’ Matter in the New Genomic Medicine?” Milton S. Hershey Medical Center, PennsylvaniaState University, Hershey, PA, Feb. 11, 2002.

“Genomics, Race, and Health Disparities Research.” Ethics Grand Rounds, University of Texas,Southwestern Medical Center, Dallas, March 12, 2002.

“Setting A Research Agenda for Health and the Humanities.” End of Life Care Workgroup Conference,Agency for Healthcare Research and Quality (AHRQ) and the National Endowment for the Humanities(NEH), Potomac, Maryland, March 14-15, 2002.

Biomedical Ethics Symposium, Guest Faculty, Providence Health System Alaska, Alaska NativeMedical Center, Anchorage, April 12-13, 2002.

"’Race’ Matters in Genomic Medicine.” Affymetrix Corporation, Sunnyvale, CA, May 30, 2002.

"Beyond the Beginning: Bioethics, Health Policy, and the Human Genome Project." Keynote lecturefor the conference: Empirical Bioethics in Cultural Contexts: Genetic Confidentiality, Ownership, andPublic Participation. Sophia University, Tokyo, Japan, January 30 – 31, 2003.


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"Forum on Genes, Genomes, and Society." The Genome of Homo Sapiens (50th AnniversaryCelebration of DNA). Cold Spring Harbor Laboratory, NY, May 30, 2003.

“Observing Death, Examining Bioethics: Challenging ‘Choice’ in End-of-Life Care.” Project onDeath in America Faculty Scholars Retreat, Lake Tahoe, CA, July 22, 2003.

“The Nature of Professional Responsibility in Neuroscience.” Stanford Graduate NeuroscienceScience Journal Club, October 21, 2003.

“Revisiting ‘Race’: Examining Social and Scientific Consequences.” Northern California CancerCenter, December 8, 2003.

“‘Race,’ Genetics, and the Media.” Knight Journalism Fellowship Seminar, Stanford University, March3, 2004.

"Racial Profiling" in Human Genetics Research: Are Social Harms Avoidable? Cleveland ClinicFoundation, Cleveland, OH, March 23, 2004.

"Racial Profiling" in Human Genetics Research: Are Social Harms Avoidable? Mayo ClinicFoundation, Rochester, MN, April 19, 2004.

Genetics & Nicotine Addiction: "Proactive" Neuroethics. Stanford Neuroscience Institute AnnualRetreat, Asilomar, CA, May 4, 2004.

Cultural Dimensions of End-of-Life Care. Stanford Neurology Residency Teaching Program, May 5,2004.

Revisioning “Race” in the Context of Human Genetic Variation Research. Faculty ResearchSeminar for “Social Lab” Stanford Dept of Psychology, May 10th, 2004.

Genetics in Crime, Race and Behaviour. “The Genetic Age” Symposium, The Royal Institution ofGreat Britain, London, England, June 2,3, 2004.

“Individualizing Medicine by Race, Culture and Ethnicity: Promise or Peril.” Bioethics GrandRounds, Univerisity of California, Los Angeles, CA, June 8, 2004.

"The Genetics of Nicotine Addiction: Ethical and Policy Implications" Center for Genetics andSociety. University of California, Los Angeles, June 8, 2004.

“Nicotine Addiction: A ‘Disease of the Brain?’ A Problem for Neuroethics?” The Plastic BrainSymposium, presented by Nederlandse Organisatie voor Wetenschappelijk Onderzoek, Utrecht, TheNetherlands, June 25, 2004.

Publications

Abstracts:Cooke M, Koenig BA. “House Staff Attitudes Towards the Acquired Immunodeficiency Syndrome.”Proceedings of the Third International Conference on AIDS, 1987.

Cooke M, Koenig BA, Beery NA, Folkman S. “Which Physicians Will Provide AIDS Care?” (abstractaccepted for oral presentation) Sixth International Conference on AIDS, San Francisco, CA, Jun. 1990.

Koenig BA, Cooke M, Beery NA, Folkman S. “Balancing Fear and Responsibility: Professional Ethics in


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AIDS Care.” (abstract accepted for oral presentation) Seventh International Conference on AIDS,Florence, Italy, Jun. 1991.

Barnes DM, Davis AJ, Koenig BA. “Informed Consent in a Multi-Cultural Population: An Ethnography ofCancer Patients.” (abstract accepted for oral presentation) Eighth Annual WIN Assembly, Phoenix,Arizona, Apr. 1994.

Wick JG, Spencer NW, Myers K, Koenig BA, Crothers KA, Raffin TA. “Should Health Care be Rationedto Smokers.” Society for Research on Nicotine and Tobacco 2nd European Conference, London,England, Nov 1999.

Caron L, Koenig BA, Fishman J, Raffin TA. “Genetic Research on Smoking: Foreseeable Applicationsand Policy Issues.” Fifth Annual Investigator Meeting, Tobacco-Related Disease Research Program, SanDiego, California, Dec. 2000.

Caron L, Raffin TA, Fishman JR, Koenig, BA. “Genetic Research on Smoking: Foreseeable Applicationsand Policy Issues.” A Decade of ELSI Research, Bethesda, MD, Jan 2001, printed in The Journal of Law,Medicine & Ethics, Special Supplement to Volume 29:2 (Summer 2001).

Lee SSJ, Mountain J, Koenig BA. “Variation and the Category of “Race” in SNP’s Research.” A Decadeof ELSI Research, Bethesda, MD, Jan. 2001, printed in The Journal of Law, Medicine & Ethics, SpecialSupplement to Volume 29:2 (Summer 2001).

Eaton M, Brady D, Koenig BA. “Developing a Case-based Curriculum for the Biotechnology Industry. ADecade of ELSI Research, Bethesda, MD, Jan 2001, printed in The Journal of Law, Medicine & Ethics,Special Supplement to Volume 29:2 (Summer 2001).

Tobin SL, Boughton A, Caron L, Koenig BA. Getting the Word Out On the Human Genome Project: AMultimedia Course for Physicians. A Decade of ELSI Research, Bethesda, MD, Jan 2001, printed in TheJournal of Law, Medicine & Ethics, Special Supplement to Volume 29:2 (Summer 2001).

Journal Articles (*indicates peer reviewed journal):* Jonsen AR, Cooke M, Koenig BA. AIDS and Ethics. Issues in Science and Technology. 1986; 2:56-65.Reprinted in Kaposi's Sarcoma: A Text and Atlas. G.J. Gottlieb and A.B. Ackerman, editors. Philadelphia:Lea and Febiger, 1988.

Koenig BA. Should Anencephalic Infants Be Used as Organ Donors? California Nurse. 1988; 84(2):8-9.

Koenig BA. The Ethics of Fear: Nursing in the AIDS Epidemic. California Nursing Review. 1988;10(3):42-45.

Muller JH, Koenig BA. When is a Patient 'Dying'? California Nurse. 1988; 84(5):4-5.

* Orona CJ, Koenig BA, Davis AJ. Cultural Aspects of Nondisclosure. Cambridge Quarterly of HealthcareEthics. 1994; 3(3):338-346.

* Teno J and Squam Lake Conference Participants (Koenig BA). Advance Care Planning: Priorities forEthical and Empirical Research. Hastings Center Report Special Supplement. 1994; 24:S32-S36.

* Koenig BA, Hogle LF. Organ Transplantation (Re)Examined? Medical Anthropology Quarterly. 1995;9(3):393-397.

* Koenig BA, Gates-Williams J. Understanding Cultural Difference in Caring for Dying Patients. WesternJournal of Medicine special issue, "Caring for Patients at the End of Life," C. Cassel and G.S. Omenn,editors. 1995; 163:244-249.


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* Davis AJ, Koenig BA. A Question of Policy: Bioethics in a Multicultural Society. Nursing Policy Forum.1996; 2(1):6-11.

Strassberg A, Koenig BA, Shafer A. When Death is Not Good-bye: The River Styx Runs Upstream.Stanford Medical Student Clinical Journal. 1996; 1(2):17-19.

* Drought, TS, Koenig BA, Raffin TA. Advance Directives: Changing Our Expectations (Editorial). Chest, 1996; 110:589-591.

* Koenig BA. Guest editor of Medical Anthropology Quarterly special issue, “Biomedical Technology:Reconfiguring Nature and Culture.” 1996;10(4).

* Casper, MJ, Koenig BA. “Reconfiguring Nature and Culture: Intersections of Medical Anthropology andTechnoscience Studies.” Medical Anthropology Quarterly. 1996; 10(4): 523-536.

* Koenig BA. The Power (and Limits) of Proximity. Hastings Center Report. (Special Issue: In Search ofthe Good Society: The Work of Daniel Callahan.) 1996; 26(6): 30-32.

Koenig BA. Taking Account of Culture in End-of-Life Decision Making: An Elderly Korean Immigrant withMassive Cerebral Hemorrhage and Coma (Case Commentary). Kaiser Ethics Rounds. 1997; 6(1):2-3.

* Young EWD, Marcus F, Drought T, Koenig BA, et al. “Physician Aid-in-Dying - Report of a NorthernCalifornia Consensus Development Conference: The Challenges of Guideline and Policy Formation.” The Western Journal of Medicine. 1997; 166(6):381-388.

Crawley L, Koenig BA. Empathy is Essential for Physician “Matching” Issue. “AMA Ethics Forum.” American Medical News. 1997, 40(28):34.

* Kelly SE, Marshall PA, Sanders LM, Raffin TA, Koenig BA. Understanding the Practice of EthicsConsultation: Results of an Ethnographic Multi-Site Study. Journal of Clinical Ethics. 1997; 8(2) 136-149.

* Strassberg A, Koenig BA, Shafer A. “Medicine and the Arts: Commentary on The River Styx RunsUpstream.” Academic Medicine, 1997, 72(12): 1082. Reprinted in Ten Years of Medicine and the Arts:100 Selections from Academic Medicine 1991-2001. L.R. Dittrich, editor. Washington, DC: Association ofAmerican Medical Colleges, 2001: 169.

* Hern HE, Jr., Koenig BA, Moore, LJ, Marshall, PA. The Difference that Culture Can Make in End-of-Life Decision Making. Cambridge Quarterly of Healthcare Ethics. (“What Differences Make aDifference?” Special issue edited by Erik Parens). 1998; 7(1): 27-40.

* Ip M, Gilligan T, Koenig BA, Raffin TA. Ethical Decision-Making in Critical Care in Hong Kong, CriticalCare Medicine, 1998, 26(3): 447-451.

* Koenig BA, Greely HT, McConnell LM, Silverberg HL, Raffin, TA. Genetic Testing for BRCA1 andBRCA2: Recommendations of the Stanford Program in Genomics, Ethics, and Society. Journal ofWomen’s Health, 1998, 7(5): 531-545.

* McConnell LM, Koenig BA, Greely HT, Raffin TA, et al. Genetic testing and Alzheimer disease: has thetime come? Alzheimer Disease Working Group of the Stanford Program in Genomics, Ethics & Society. Nature Medicine, 1998, 4(7):757-759.

* Ersek M, Kagawa-Singer M, Barnes D, Blackhall L, Koenig BA. Multicultural Considerations in the Useof Advance Directives, Oncology Nursing Forum, 1998, 4(10): 1683-1690.

* Barnes DM, Davis, AJ, Moran T, Portillo C, Koenig BA. Informed Consent in a Multi-cultural CancerPatient Population: Implications for Nursing Practice. Nursing Ethics, 1998, 5(5): 412-423.


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* Callahan D, Koenig B, Minkler M. Promoting Health and Preventing Disease: Ethical Demands andSocial Challenges, Int’l Quarterly of Community Health Education, 1998-1999. 18(2) 163-180.

* McConnell LM, Koenig BA, Greely HT, Raffin TA. Guest editors of Genetic Testing special issue,“Genetic testing and Alzheimer disease: has the time come?” 1999, 3(1).

* McConnell LM, Koenig BA, Greely HT, Raffin TA, and the members of the Alzheimer Disease WorkingGroup. Genetic Testing and Alzheimer Disease: recommendations of the Stanford Program in Genomics,Ethics, and Society. Genetic Testing, 1999;3(1):3-12.

* Koenig, BA, Silverberg, H. Understanding Probabilistic Risk in Predisposition Genetic Testing forAlzheimer Disease, Genetic Testing, 1999, 3(1):55-63.

* Lynn J, Arkes H, Stevens M, Cohn F, Koenig BA, Fox E, Dawson N, Phillips, R.S., Hamel, M.B., TsevatJ. Rethinking Fundamental Assumptions: SUPPORT’s Implications for Future Reform. Supplement tothe Journal of the American Geriatrics Society, 2000, 48(5):S214-221.

* Press N, Fishman JR, Koenig BA. Collective Fear, Individualized Risk: The Social and Cultural Contextof Genetic Screening for Breast Cancer. Nursing Ethics, 2000, 7(3):237-249.

* Daly MB, Offit K, Li FP, Glendon G, Yaker A, West DW, Koenig BA, McCredie M, Venne V, NayfieldSG, Seminara D. Participation in the Cooperative Family Registry for Breast Cancer Studies (CFRBCS):Issues of Informed Consent. Journal of the National Cancer Institute, 2000, 92(6):452-6.

* Ruhnke GW, Wilson SR, Akamatsu T, Kinoue T, Takashima Y, Goldstein MK, Koenig BA, HornbergerJC, Raffin TA. Ethical Decision-Making and Patient Autonomy: A Comparison of Physicians and Patientsin Japan and the United States. Chest, 2000, 118: 1172-1182.

* Marshall PA, Koenig BA. Bioéthiques et Anthropologie: Situer le <<Bien>> dans la Pratique Médicale[Intersections of Bioethics and Anthropology: Locating the “Good” in Medical Practice]. Anthropologie etSociétés, 2000, 24(2):35-55. (www.erudit.org/revue/as/)

* Koenig BA. Multidisciplinary Rounds: The Challenge of Providing Culturally-Competent Cancer Care.Cancer Practice, 2001. 9(2):62-65.

* Lee SSJ, Mountain J, Koenig BA. The Meanings of “Race” in the New Genomics: Implications forHealth Disparities Research. Yale Journal of Health Policy, Law, and Ethics, 2001. 1(1):33-75. To bereprinted in The Social Medicine Reader, 2nd edition, edited by G. Henderson, et al. Duke UniversityPress (2005).

Koenig BA. Why Not Grant Primacy to the Family? (Commentary) American Journal of Bioethics, 2001.1(3):33-34.

* Crawley LM, Marshall PA, Lo B, Koenig BA. Strategies for Culturally Effective End-of-Life Care. Annals of Internal Medicine, 2002. 136(9):673-679.

* Drought TS, Koenig BA. “Choice” in End-of-Life Decision Making: Researching a Fact or a Fiction? TheGerontologist, 2002. 42(Special Issue III),114-128.

* Koenig BA, Back AL, Crawley LM Qualitative Methods in End of Life Research: Recommendations toEnhance the Protection of Human Subjects. Journal of Pain and Symptom Management, 2003.25(4):S43 -S52.

Koenig BA. Dead Donors and the “Shortage” of Human Organs: Are We Missing the Point?(Commentary) American Journal of Bioethics, 2003. 3(1):28-29.


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* Illes J, Fan E, Koenig BA, Raffin TA, Kann D, Atlas SW Self-referred, Whole Body RadiologicScreening: Current Status and Implications for Health Care Consumers, Radiology, 2003. 228:346-351.

* Swan GE, Hudmon KS, Jack LM, Hemberger K, Carmelli D, Khroyan TV, Ring HZ, Hops H, AndrewsJA, Tildesley E, McBride D, Benowitz N, Webster C, Wilhelmsen KC, Feiler HS, Koenig BA, Caron L,Illes J, Cheng LS. Environmental and genetic determinants of tobacco use: A multidisciplinary,longitudinal family-based design. Cancer Epidemiology Biomarkers & Prevention, 2003 12(10):994-1005.

* Sankar P, Cho MK, Condit CM, Hunt LM, Koenig BA, Marshall P, Lee SSJ, Spicer P. GeneticResearch and Health Disparities. Journal of the American Medical Association, 2004. 291(24):2985-2989.

* Marshall, PA and Koenig, BA Accounting for Culture in a Globalized Bioethics. Journal of Law,Medicine, and Ethics, 2004. 32 (2):252-266 (special issue, “Looking Ahead in Bioethics,” edited byJeffrey Kahn & Anna Mastroianni).

* Illes J, Kann D, Karetsky K, Letourneau P, Raffin T, Schraedley-Desmond P, Koenig BA, Atlas. Advertising, patient decision-making, and self-referral to ct and mri imaging. Archives of Internal Medicine(IN PRESS 2004)

* Caron L, Karkazis K, Swan G, Raffin TA, Koenig BA. Nicotine Addiction through a NeurogenomicPrism: Ethics, Public Health, and Smoking. Nicotine and Tobacco Research (IN PRESS 2004)

* Pearlman RA, Hsu C, Starks H., Back AL, Gordon JR, Bharucha AJ, Koenig BA, Battin MP. MotivatingFactors for the Pursuit of Physician-Assisted Suicide: Patient and Family Voices. Archives of GeneralInternal Medicine (IN PRESS 2004).

Book Chapters:Koenig BA. Ethical and Legal Issues in the AIDS Epidemic. In Nursing Care of the Person withAIDS/ARC. A. Lewis, editor. Rockville, MD: Aspen Publications, 1988: 287-305.

Koenig BA. The Technological Imperative in Medical Practice: The Social Creation of a RoutineTreatment. In Biomedicine Examined. M. Lock and D. Gordon, editors. Boston: Kluwer, 1988: 465-496.

Muller JH, Koenig BA. On the Boundary of Life and Death: The Definition of Dying by Medical Residents.In Biomedicine Examined. M. Lock and D. Gordon, editors. Boston: Kluwer, 1988: 351-374.

Koenig BA, Cooke M. Physician Response to a New, Lethal, and Presumably Infectious Disease:Medical Residents and the AIDS Epidemic in San Francisco. In The Meaning of AIDS: Implications forMedical Science, Clinical Practice, and Public Health Policy. E.T. Juengst and B.A. Koenig, editors. NewYork: Praeger, 1989: 72-85.

Koenig BA. Cultural Diversity in Decision-Making About Care at the End of Life. In Summary ofCommittee Views and Workshop Examining the Feasibility of an Institute of Medicine Study of Dying,Decision-Making, and Appropriate Care. M.J. Fields, editor. Washington, DC: Institute ofMedicine/Division of Health Care Services, 1994.

Kayser-Jones J, Koenig BA. Ethical Issues. In Qualitative Methods in Aging Research. J.F. Gubrium andA. Sankar, editors. Thousand Oaks, CA: Sage Publications, 1994: 15-32.

Marshall PA, Koenig BA. Bioethics in Anthropology: Perspectives on Culture, Medicine and Morality. InMedical Anthropology: Contemporary Theory and Method, revised edition. C.F. Sargent and T.M.Johnson, editors. Westport, CT: Praeger, 1996: 349-373.


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Koenig BA. Cultural Diversity in Decision-Making About Care at the End of Life. Approaching Death:Improving Care at the End of Life (Institute of Medicine). M.J. Field and C.K. Cassel, editors. Washington, DC: NAS, 1997: 363-382.

Marshall PA, Koenig BA, Barnes DB, Davis, AJ. Multiculturalism, Bioethics, and End-of-Life Care: CaseNarratives of Latino Cancer Patients. In Health Care Ethics: Issues for the 21st Century. D. Thomasmaand J. Monagle, editors. Gaithersburg, Maryland: Aspen Publishers, 1998: 421-431.

Kelly SE, Koenig BA. ‘Rescue’ Technologies Following High Dose Chemotherapy for Breast Cancer:How Social Context Shapes the Assessment of Innovative, Aggressive, and Potentially Life-SavingMedical Technologies. In Getting Doctors to Listen: Ethics and Outcomes Data in Context. P.J. Boyle,editor. The Hastings Center’s Studies in Ethics Series: Washington, DC: Georgetown University Press,1998: 126-152.

Marshall PA, Koenig BA, Grifhorst P, Van Ewijk M. Ethical Issues in Immigrant Health Care and ClinicalResearch. In Handbook on Immigrant Health. S. Loue, editor. New York, NY: Plenum Publishing, 1998:203-226.

Fishman JR, Wick JG, Koenig BA. The Use of “Sex” and “Gender” to Define and CharacterizeMeaningful Differences Between Men and Women. In An Agenda for Research on Women’s Health forthe 21st Century: The Report of the Task Force, Volume 2, Office of Research on Women’s Health,Rockville, MD: 1999, 2-20.

Koenig BA, Stockdale AS, The Promise of Molecular Medicine in Preventing Disease: Examining theBurden of Genetic Risk. In Health Promotion and Disease Prevention: Ethical and Social Dilemmas, D.Callahan, editor. Washington, DC: Georgetown University Press, 2000, 116-137.

Marshall PA, Koenig BA. Ethnographic Methods. In Methods in Medical Ethics, J. Sugarman & D. P.Sulmasy, eds., Washington, DC: Georgetown University Press, 2001, 169-191.

Crawley LM, Marshall PA, Koenig BA. Respecting Cultural Differences at the End of Life. In Physician’sGuide to End-of-Life Care. Snyder L., Quill T.E., (eds), for the ACP-ASIM End-of-Life Care ConsensusPanel. Philadelphia: American College of Physicians, 2001, 35-55.

Strassberg A, Koenig BA, Shafer A. Medicine and the Arts: Commentary on The River Styx RunsUpstream. In Ten Years of Medicine and the Arts: 100 Selections from Academic Medicine 1991-2001.L.R. Dittrich, editor. Washington, DC: Association of American Medical Colleges, 2001: 169.

Shafazand S, Crawley LM, Raffin TA, Koenig BA. Withholding and Withdrawing Treatment: The Doctor-Patient Relationship and the Changing Goals of Care.” In Principles and Practice of Palliative Care andSupportive Oncology (2nd edition), A. M. Berger, R.K. Portenoy, T. Quill, eds. Philadelphia: LippincottWilliams & Wilkins, 2002, 880-890.

Koenig BA, Davies E. Cultural Dimensions of Care At Life's End for Children and Their Families. Commissioned for the Institute of Medicine, When Children Die: Improving Palliative and End-of-Life Carefor Children and their Families. M.J. Field, R.E. Behrman, eds. Washington, DC: National Academy ofSciences, 2003, 509-552, http://books.nap.edu/html/children_die/AppD.pdf

Lee SSJ, Koenig BA. Racial Profiling of DNA Samples: Will it Affect Scientific Knowledge about HumanGenetic Variation? In Populations and Genetics: Legal and Socio-Ethical Perspectives, B.M. Knoppers,ed. Leiden/Boston: Martinus Nijhoff, 2003, 231-244.

Koenig BA, Beyond the Beginning: Bioethics, Health Policy, and the Human Genome Project. Conference Proceedings: Empirical Bioethics in Cultural Contexts: Genetic Confidentiality, Ownership,and Public Participation. Tokyo: The Japan Foundation/Sophia University, 2003.


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Marshall PA, Koenig BA. Anthropology of Bioethics. In Encyclopedia of Bioethics (3rd edition), S. Post,ed. New York: Macmillan, 2004.

Koenig BA, Marshall PA. Death: Cultural Perspectives. In Encyclopedia of Bioethics (3rd edition), S.Post, ed. New York: Macmillan, 2004.

Lee SSJ, Mountain J, Koenig BA. The Meanings of “Race” in the New Genomics: Implications for HealthDisparities Research. IN The Social Medicine Reader Volume II: Health, Difference andInequality. Henderson GE, Estroff SE, Churchill LR, King NMP, Oberlander J, and Strauss RP, eds. Duke University Press (IN PRESS 2005).

Opinion/Editorial (lay audience):Koenig BA. Babies in Death and Life: Ethical Issues Linger in Loma Linda after Infant Dies (op/ed). SanJose Mercury News. Dec. 27, 1987.

Koenig BA. Gene Tests: What You Know Can Hurt You (op/ed). New York Times. April 6, 1996.

Koenig BA. Holding the Line: Testing for Mutations in the Breast Cancer Gene (op/ed). Stanford Report.June 12, 1996.

Koenig BA, Tobin S. Should Cloning be Banned? (op/ed). San Francisco Chronicle. March 21, 1997.

Koenig BA. When the Miracles Run Out: In America, Care for Dying Patients Fails to Measure Up(op/ed). San Jose Mercury News. Aug. 7, 2001.

Koenig BA. DNA Birthday Obscures Rush (op/ed). Oakland Tribune. April 15, 2003.

Koenig BA. [Proposition] 54’s Impact on Health (op/ed). Stanford Daily. October 7, 2003.

Letters:Uhlman WR...Koenig BA, et al. Planning the Genome Institute’s Future. Science 299:1515, 2003.

Books:Juengst ET, Koenig BA. The Meaning of AIDS: Implications for Medical Science, Clinical Practice, andPublic Health Policy. New York: Praeger Publications, 1989.

Books in Progress:Marshall PA, Koenig BA. Anthropology and Bioethics. (under contract, Rutgers University Press).

Koenig BA. Observing Death; Examining Bioethics.

Manuscripts Submitted, Under Review or In Revision:

Koenig, BA (and members of the Stanford University Interdisciplinary Working Group). Race andEthnicity in the Context of Human Genetic Variation: Examining Social and Scientific Consequences. (tentative title) In Process.

Karkazis K , Sperber N, Koenig BA. Nicotine addiction: a “disease of the brain”? Consequences forneuroethics? IN Neuroethics: Defining the Issues in Research, Practice and Policy. J. Illes, ed. OxfordUniversity Press (under contract, 2005).

Starks H, Back AL, Koenig BA, Pearman RA, Hsu C, Gordon JR, Bharucha AJ. Effects on FamilyMembers of Participating in a Hastened Death. In Process.

Koenig BA, Taub K. Technologies to Forestall Sudden Cardiac Death: Ethical Consequences for Care


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Near the End of Life. In Process.

Crawley LM, Johnson K, Koenig BA. Models of Trust in Health Care Research: Implications for AfricanAmerican Patients. In Process.

barbara ann koenig address€¦ · barbara a. koenig, ph.d. - 3 - 1992-93 cultural pluralism and...

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