barbara ann koenig address education cv october2008.pdf · 1998 individual residency, rockefeller...

11/2008 Curriculum Vitae

BARBARA ANN KOENIG Address

Mayo Clinic 200 First Street SW Rochester, MN 55905 (507) 538-1168 [email protected]

Education B.S. in Nursing (with distinction), University of Minnesota, Minneapolis, 1974. B.A. in History (magna cum laude), University of Minnesota, Minneapolis, 1976. Ph.D. in Medical Anthropology, University of California, San Francisco and Berkeley,

1988. Dissertation Title: "The Technological Imperative in Medical Practice: An Anthropological Study of Therapeutic Plasma Exchange."

Fellows Seminar in Biomedical Ethics (with Albert R. Jonsen), University of California,

San Francisco, 1978-80. Professional Employment 1974-75 Staff Nurse in Pediatrics, University of Minnesota Hospitals, Minneapolis. 1975-76 Staff Nurse in Pediatrics, University of California Hospitals, San Francisco. 1981-85 Research Associate, Institute for Health Policy Studies/Division of Medical Ethics,

Department of Medicine, University of California, San Francisco. 1986-88 Adjunct Lecturer, Division of Medical Ethics, Department of Medicine, University of

California, San Francisco. 1988-89 Training Coordinator, AIDS Professional Education Project, Department of Psychiatry,

University of California, San Francisco. 1988-93 Assistant Adjunct Professor, Medical Anthropology Program/Division of Medical

Anthropology, Department of Epidemiology and Biostatistics, University of California, San Francisco.

1989-91 Coordinator for Western Programs in Research and Education, The Hastings

Center, Briarcliff Manor, NY. 1993-99 Senior Research Scholar, Center for Biomedical Ethics, School of Medicine, Stanford

University, Stanford, CA. 1993-2002 Executive Director, Center for Biomedical Ethics, School of Medicine, Stanford

University, Stanford, CA. 1995-2002 Co-Director, Program in Genomics, Ethics, and Society, Stanford University, Stanford,

Barbara A. Koenig, Ph.D., C.V.

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CA. 1999-2000 Associate Professor (Acting), Department of Medicine, Stanford University, Stanford,

CA. 2000-2003 Associate Professor, Department of Medicine, Stanford University, Stanford, CA. 2003-2005 Associate Professor, Department of Neurology & Neurological Sciences, Stanford

University, Stanford, CA. 2005- Consultant, Departments of Medicine & Psychiatry, Mayo Clinic, Rochester, MN 2005- Professor of Medicine, Mayo College of Medicine, Rochester, MN 2005- Faculty Associate, Center for Bioethics, University of Minnesota, Minneapolis 2006- Co-Director, Program in Professionalism and Bioethics, Mayo Clinic, Rochester, MN Principal Fields of Interest

• Anthropology of Health and Illness • Biomedical Ethics • Social and Cultural Analysis of Science, Technology and Biomedicine

Honors 1995 Elected Fellow, The Hastings Center. 1995 Elected Fellow, The Society for Applied Anthropology. 1998 Individual Residency, Rockefeller Foundation Bellagio Study Center. “Culture and Biomedical Ethics: Examining the Practices of Managed Death.” 1999 Elizabeth Sterling Soule Lectureship, University of Washington, May 27. 1999-01 Soros Faculty Scholar, Open Society Institute, Project on Death in America. 2001 Cowan Lectureship, University of Utah, Salt Lake City, UT, November 8. 2002 Florence Schorske Wald Lectureship, University of Minnesota, Minneapolis, April 18. 2002-03 Fellow, Stanford Humanities Center. 2008 M. Margaret Clark Lectureship, University of California, San Francisco, September 11. Grant Awards and Funded Projects (complete list) 1988-92 Learning to Care: Internal Medicine Residents' Attitudes toward AIDS. State of

California AIDS Research Program, Research Grant Award R88-SF-158, approximately $180,000. (Co-Principal Investigator with M. Cooke, M.D. and Project Director)

1989 The Ethics and Economics of Death. California Council for the Humanities, Conference Grant Award, G8907-HCI-025, $12,033. (Project Director) 1989-90 Internal Medicine Residents' Attitudes toward AIDS (supplemental funding). AIDS

Clinical Research Center, University of California, San Francisco, $12,000. (Principal


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Investigator) 1992-93 Cultural Pluralism and Ethical Decision-Making in AIDS Care: A Pilot Study of the

Effect of Race and Ethnicity on Clinical Ethics Decisions. AIDS Clinical Research Center, University of California, San Francisco, $13,500. (Principal Investigator)

1992-93 "Biotechnology in Society" Lecture Series. (Co-Director with Adele Clarke, Ph.D.)

Awards from: • University of California Biotechnology Research and Education Program, $10,000. • GTE Foundation Lectureships, $5,000. • Genentech, Inc., $5,000.

1992-94 Impact of Diversity on Ethical Decision-Making in AIDS Care. American Foundation

for AIDS Research, Research Grant 1772, $49,379. (Principal Investigator) 1992-95 Cultural Pluralism and Ethical Decision-Making. National Institutes of Health/NINR,

R01 NR 029060, $447,547. (with Anne J. Davis, Ph.D.; Project Director and Co-Principal Investigator through 6/94, then Principal Investigator; Score 105, Percentile 0.9%)

1993-95 Cultural Diversity and Bioethics in North America: A Review and Critique of

Current Issues. Greenwall Foundation Presidential Grant Award, $33,064. (Principal Investigator)

1994-95 Cultural Diversity and Ethical Decision-Making in AIDS Care for Women: A Pilot

Study of the Effect of Race and Ethnicity on Clinical Ethics Decisions. AIDS Clinical Research Center, University of California, San Francisco, $12,688. (Principal Investigator)

1994-96 Stanford Center for Biomedical Ethics "Core Support". The Greenwall Foundation,

$200,000. (Project Director) 1995-98 Dying in an African-American Community: An Ethnographic Study of Death Across

the Life Cycle. Open Society Institute, Project on Death in America, $149,987. (Principal Investigator)

1995-98 Cultural Diversity and Ethical Decisions in AIDS Care for Women. State of California

AIDS Research Program, Research Grant Award, R95-ST-188, $100,005. (Principal Investigator)

1995-98 Stanford Program in Genomics, Ethics and Society. Initial Funding from the

SmithKline Beecham Corporation, $950,000 and the Beckman Foundation, $70,000. (Co-Director with Thomas Raffin, M.D., Henry Greely J.D.)

1996-97 Ethical Issues in Health Promotion and Disease Prevention. California Wellness

Foundation, in collaboration with The Hastings Center, $33,949. (Stanford Principal Investigator)

1996-97 Culture, End-of-Life Care, and Bioethics: What Differences Make A Difference?

Conference Grant, Robert Wood Johnson Foundation, $26,365. (Principal Investigator) 1997-98 Social/Ethical Impact of Presymptomatic Testing for BRCA1/2.

• Kaiser Foundation Research Institute $33,970 (Co-Principal Investigator with Kay Johnston, M.D.)

• Walter & Elise Haas Foundation $20,000 (Principal Investigator) 1997-99 Presymptomatic Genetic Testing for Breast Cancer: A Pilot Study of Social and


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Ethical Issues Confronting High-Risk Families. National Cancer Institute, CA-95-003, $17,400. (Principal Investigator)

1997-02 Miriam and Peter Haas Fund for Stanford University Biomedical Ethics Center

Research, $500,000. (Co-Principal Investigator) 1998-99 Speaking About Death: Culture, Language, and Communication in End-of-Life

Care. Robert Wood Johnson Foundation, “Last Acts Campaign,” $43,362 (Principal Investigator)

1999-00 Stanford Center for Biomedical Ethics Filmmaker-in-Residence Program. The

Greenwall Foundation, $100,000. (Principal Investigator) 1999-00 Direct-to-Consumer Advertising of Tamoxifen: A Pilot Study. The Greenwall

Foundation (Presidential Award), $25,000. (Principal Investigator) 1999-01 Dilemmas in Commercializing Human Genome and Biotechnology Products:

Developing a Case-based Business Ethics Curriculum for Industry. Office of Biological and Environmental Research, Department of Energy, $140,000. (Principal Investigator)

1999-02 The Genetic and Environmental Influences on Adolescent Tobacco Use: PGES

Consultation to SRI International. State of California, TRDRP, 1PT2002, $15,081. (Principal Investigator)

2000-02 A Case-based Ethics Curriculum for the Biotech Industry. NIH, R25 HG02082-01,

$144,718. (Principal Investigator) 2000-05 Promoting Effective Communications and Decision Making for Diverse

Populations. NIH/AHRQ, 1PO1 HS10856, $234,527. (Stanford Site Principal Investigator, E. Washington, UCSF, Principal Investigator)

2000-03 The Ethics of Identifying Race in the New Genetics. NIH/NRSA, 5F32 HG00221-

02, $127,899. (Research Mentor) 2001-04 Ethical Challenges in Neuroimaging, Greenwall Foundation, $150,000. (Co-

Investigator). 2001-02 Neuroethics: Mapping the Field, Dana Foundation, Conference Grant Award,

$105,000. (Principal Investigator). 2002-03 Neuroethics: Mapping the Field, NIH (NINDS, NIMH, NIDA), Conference Grant Award,

R13 NS044670, $40,000. (Principal Investigator). 2002-05 Education in Genetics Ethics (EDGE), NIH, $124,179. (Stanford Site Principal

Investigator & Co Investigator, M. Rothstein, University of Louisville, Principal Investigator).

2002-08 Genetics of Nicotine Addiction-Examining Ethics and Policy. NIH/NIDA,

1R01DA14577, $750,000. (Principal Investigator; Score 148, Percentile 6.5%). 2002-03 Observing Death, Examining Bioethics. (Stanford Humanities Center Fellowship

Project), Greenwall Foundation Presidential Award, $25,000. (Principal Investigator). 2003-2005 Ethical Dimensions of Neuroscience Research. Stanford Bio-X Interdisciplinary


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Initiatives, $146,822. (Co-Principal Investigator). 2003-04 Race and Ethnicity in the Context of Human Genetic Variation: Examining Social

and Scientific Consequences. Affymetrix, Inc., $20,000. 2003-05 Mellon Foundation Graduate Research Seminar Award. Stanford University, $10,000.

each year (with $10,000 each year cofunding from Center for the Comparative Study of Race and Ethnicity).

2004-05 Stanford Center for Integration of Ethics and Genetic Research. NIH/NHGRI (DOE

co-funding), 1P50 G003389-01, $402,067 direct costs year 1. (Co-Investigator). 2006-11 Mayo Clinic Center for Clinical and Translational Research. NIH, 1UL1RR024150-01,

$534,817 (ethics portion). Koenig is Co-Investigator & Director of the CTSA Ethics Resource.

2006-11 Ethical, Legal, Social and Policy Challenges in DNA Biobanking, Mayo Foundation,

approx. $127,500 annually. Koenig is Principal Investigator. 2006-07 Ruebhausen Visiting Professorship Award (Zach Hall, Ph.D. “Stem Cell Research: At

the Intersection of Science, Politics, Law, and Culture.”) Greenwall Foundation. $25,000. Joint Project with the University of Minnesota Center for Biomedical Ethics.

2007-11 Law & Ethics of Drug Addiction Genetic Research (LEDGER). NIDA $307,968 (sub-

contract to University of Texas). Koenig is Co-Investigator and Mayo PI. 2007-09 DNA as Unique Identifier: Privacy, Trust and the Future of Personalized Medicine.

The Greenwall Foundation, $117,000. Koenig is Principal Investigator. 2007-11 EMR Phenotypes and Community Engaged Genomic Associations NIH U01 HG004599-01, $2,309,251. Koenig is Co-Investigator 2007-09 Proof-of-Principle Trial of Communication to Patients Receiving Predictive Genetic Risk Assessment. Navigenics, Inc. $278,879, Mayo Eisenberg Genomics Education

Program, approx. $60,000. Koenig is Co-Principal Investigator. Fellowships and Student Awards 1977-78 National Institute of Health Training Grant in Medical Anthropology, University of

California, Berkeley, Predoctoral Fellowship (GM1224). 1978-81 National Research Service Award, U.S. Public Health Service, Individual Predoctoral

Fellowship (1F31NU05093). 1980 Wenner-Gren Foundation Research Grant for Anthropological Research, for doctoral dissertation (4066). 1981 Dissertation Research Funds Award, Graduate Division, University of California, San Francisco. Memberships in Professional Organizations

• American Anthropological Association • American Association for the Advancement of Science • American Society for Bioethics and Humanities


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• Hastings Center • Society for Applied Anthropology • Society for Medical Anthropology • Society for the Social Study of Science • American Society of Human Genetics

Professional Licensure Registered Nurse, State of California, RN253113 Major Professional Activities National Offices, Committees, etc. (chronological order) 1991-93 Appointed Member, American Anthropological Association Task Force on AIDS. 1991-93 Founding Co-Chair, Bioethics and Anthropology Interest Group, Society for Medical

Anthropology. 1996-98 Elected to Executive Board, American Association of Bioethics. 1996-99 Appointed to Advisory Committee on Research on Women’s Health, National

Institutes of Health. 1997-00 Elected to Executive Board (Secretary/Treasurer), Society for Medical Anthropology,

American Anthropological Association. 1999-02 Appointed Member, Secretary’s Advisory Committee on Genetic Testing, U.S.

Department of Health and Human Services. 2000-02 Co-Chair, Secretary’s Advisory Committee on Genetic Testing Working Groups on

Informed Consent/IRB and Non-Medical Genetic Testing. 2005- Appointed Member, Ethics Subcommittee, Advisory to the Director, Centers for Disease

Control and Prevention. 2006-2008 Chair, Working Group on Genomics in Public Health Practice. 2006- Elected to Committee on Public Policy, American Anthropological Association. 2006- Appointed Member, National Advisory Board, Stanford Humanities Center, Stanford

University. Research/Policy/Consultation 1989-90 Member, Hastings Center Multi-Disciplinary Project Group, "Ethical Issues in the

Nursing Home." 1991 Invited Participant, The Role of Anthropology in the AIDS Epidemic in the United

States. Centers for Disease Control, Atlanta, GA, Oct. 16-17, 1991. 1993 Dartmouth Invitational Conference, "The Future of Advance Directives Research,"

funded by AHCPR, the Greenwall Foundation and the Walter and Elise Haas Fund (Joan Teno and Joanne Lynn, Co-PIs)

1993-95 Member, Hastings Center Multi-Disciplinary Project Group, "Technology

Assessment: Uses, Context and Interpretation," funded by AHCPR (Daniel Callahan, PI)


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1993-95 Member, "Humanizing Bioethics" Project Group, an interdisciplinary project funded by

the Humanities and Social Science Research Council of Canada (Barry Hoffmaster, PI) 1994-95 Consultant, Qualitative Data Analysis for SUPPORT Project, funded by the Robert

Wood Johnson Foundation. 1995- National Advisory Committee, "Program of Research on End-of-Life," Center for Ethics

in Health Care, Oregon Health Sciences University. 1996-98 Informed Consent Working Group, National Cancer Institute Six-Site Cooperative

Familial Breast Cancer Registry (Northern California Cancer Center/Stanford, University of Utah, Memorial Sloan Kettering, Fox Chase Cancer Center, and Centers in Ontario, Canada and Australia). Committee chaired by Mary Daly.

1996 External Review Committee, Program in Medical Ethics, Department of Social

Medicine, Harvard Medical School. 1995-96 Consultant to Educational Film, “Grave Words: Tools for Discussing End of Life

Choices.” (A video to educate medical students and house officers.) Maren Monsen, M.D., Director.

1995-98 Consultant, "Family Decision Making for Incapacitated Patients" project, Oregon Health

Sciences University, (Virginia Tilden, PI), funded by the NINR/NIH R01 NR03526. 1997-98 Consultant, “Death and Dying in America,” KALW Radio Project, JoAnn Mar, funded by

California Council for the Humanities. 1997-98 Consultant, “Insights into Hastened Death” project, University of Washington, Seattle,

funded by The Greenwall Foundation and the Walter & Elise Haas Fund (Robert Pearlman, PI).

1997-01 Adjunct Investigator, Northern California Cancer Center, Union City, CA. 1997-99 Advisory Board, Education for Physicians in End-of-Life Care, Institute of Ethics,

American Medical Association 1997-99 Convener and Co-Chair, Diversity Resource Committee for The Robert Wood Johnson

Foundation “Last Acts” campaign to improve end-of life care. 2000- Consultant, Program of Research on Ethics and End-of-Life Care, Oregon Health

Services University Center for Ethics in Health Care, Portland, OR. 2000- External Review Committee, Ph.D. Program in Bioethics, Case Western Reserve

University. 2000-2002 Human Subjects Review Committee, Northern California Cancer Center, Union City,

CA. 2001 Consultant, Committee on Care of Children Who Die and Their Families, Institute of

Medicine, National Academy of Sciences, Washington, DC. 2001 Consultant, development of “Bioethics Faculty Scholars Program,” The Greenwall

Foundation, New York, NY. 2001 Workshop Participant, Integrative Workshop on EOL Research. US Dept. of Health


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and Human Services, Rockville, MD, October 22-23, 2001. 2002 Workshop Participant, Research Ethics in End of Life Care. NIH, Rockville, MD,

September 12, 13, 2002. 2002-07 Program Advisory Committee for the joint University of British Columbia-Dalhousie

“Ethics of Health Research and Health Policy” Training Program, funded by the Canadian Institutes for Health Research.

2005-07 Consultant, Managing Incidental Findings in Human Subjects Research. Consortium on

Law and Values in Health, Environment & the Life Sciences. University of Minnesota, Minneapolis, MN.

2005- Advisory Committee for the Center for Genetic Research, Ethics, and Law (CGREAL),

Case Western University, Cleveland, OH. 2006- Cradling Our Future DSMB Member, In-home Prevention of Substance Abuse Risk in

Native Teen Families (R01DA019042, John Walkup, MD, Johns Hopkins, PI) 2006- Consultant, The New Genetics: Electronic Tools for Educational Innovation, Stanford

University Center for Biomedical Ethics, Sara L. Tobin, Ph.D., PI 2008- Panelist on Tissue Repositories for Secretary’s Advisory Committee on Human

Research Protections (SACHRP) Arlington, VA, June 15, 16, 2008. 2008- eMERGE Steering Committee Member for the National Human Genome Research

Institute (NHGRI) 2008- Workshop Participant for NHGRI Workshop on Ethical, Legal, and Social Issues in

Natural Selection in Humans. Rockville, MD, October 28, 2008. 2008- Workshop Participant for the National Academy of Sciences (NAS) on Collecting,

Storing, and Protecting Data Containing Biological Measures. Washington, DC, November 17, 18, 2008.

Professional Service Editorial Boards: 1993-98 Editorial Board, Medical Anthropology Quarterly. 1999-02 Editorial Board, American Journal of Bioethics 1996- Editorial Advisory Board, Science, Technology, and Human Values. 2000- Editorial Board, Medical Anthropology 2005- Consultant Editor, Nursing Ethics Manuscript Reviewer: Journal of the American Medical Association; Journal of Health Politics, Policy, and Law;

Social Science and Medicine; Medical Anthropological Quarterly; Western Journal of Medicine; Culture, Medicine, and Psychiatry; University of Hawaii Press; Theoretical Medicine and Bioethics; British Medical Journal; Nature Reviews Genetics; Current Anthropology; MIT Press; Public Library of Science; Journal of the American Geriatrics Society; American Journal of Human Genetics

Grant Reviewer:


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National Science Foundation; National Institutes of Health (service on special emphasis “end of life” study section 1999, ELSI study section 2005); Humanities and Social Science Research Council of Canada; Manitoba Health Research Council; Genome Canada; Rockefeller Foundation; Meyer Memorial Trust; University of California Biotechnology Research and Education Program; The Greenwall Foundation; U.S. Veteran’s Administration.

University Service University of California, San Francisco (1988-2005) 1988-89 School of Nursing Committee on AIDS. 1988-90 Member, Ethics Committee, University of California, San Francisco Hospitals. 1988-93 Member, Bioengineering Faculty Group, University of California, Berkeley and San

Francisco campuses. 1992-93 Member, Executive Committee, Medical Anthropology Program. 2002-03 Member, Search Committee, Department of OB/GYN, Reproductive Ethics Faculty

Search. 2008 Member, Discovery Science Task Force

Stanford University (1993-2005) 1993-05 Member, “Ethics in Society” Program Steering Committee. 1993-99 Member, Ethics Committee, Lucille Salter Packard Children's Hospital at Stanford. 1993-94 Member, Technology Assessment Steering Council, Stanford University Medical Center. 1997-05 Faculty Associate, Center for the Comparative Study of Race and Ethnicity. 2000-05 Associate, Center for Primary Care and Outcomes Research (PCOR) and the Center for

Health Policy (CHP). 2001 Member, Review Committee for Health Services Research Interdisciplinary Graduate

Program. 2001-04 Member, Medical Advisory Committee and Safety Monitoring Board, General Clinical

Research Center. 2002 Interviewer, Medical School Candidate Admissions. 2002-05 Member, Executive Committee, The Research Institute of Comparative Studies in Race

and Ethnicity (RICSRE). 2002- Cultural Advisory Committee, Lucile Packard Children’s Hospital and UCSF School of

Nursing in support of study “Latino and Chinese Families in Pediatric Palliative Care.” 2002-05 Advisory Board, Women’s Health@Stanford 2002-03 Chair, Search Committee for Associate/Full Professor (Teaching) of Biomedical Ethics,

School of Medicine


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2003-05 Member, Advisory Committee, Stanford University Center on Ethics (representing School of Medicine Dean)

2003-04 Faculty Convenor, Mellon Foundation Graduate Research Workshop (jointly sponsored

with the Research Institute for the Comparative Study of Race and Ethnicity): "Racial Taxonomies and DNA: Revisioning Race in the Context of Human Genetic Variation Research."

2003-05 Spinal Muscular Atrophy Hydroxyurea Clinical Trial, Data Safety Monitoring Board,

Ching Wang, PI. 2004-05 Faculty Advisory Board, Institute for Research on Women and Gender, Stanford

University Mayo Clinic (2005-present) 2005- Member, Research Resources Review Panel (RRRP) 2005- Member, General Internal Medicine Research Committee 2005- Member, Genomics of Addiction Working Group (GOA) 2005-2007 Member, Genomics/Proteomics Oversight Committee 2005- Member, Humanities in Medicine Committee 2006- Member, Genomics Education Steering Committee (GESC) 2005- Member, Mayo Clinical Ethics Council 2005- Member, Ethics Education Subcommittee 2006- Member, Committee on the Ethical Conduct of Research 2007 Member, Ethics Pandemic Flu Workgroup 2006- Member, Mayo Center for Individualized Medicine, Internal Steering Committee 2007- Member, Biospecimen Trust Oversight Group (BTOG) 2006 Member, Palliative Care Group Taskforce 2006 Member, End-of-Life Care Stakeholders 2008 Member, Mayo Clinic Human Embryonic Stem Cell Research Oversight Subcommittee 2008 Member, Mayo Clinic Center for Innovation Inspiration & Ideation Team 2008 Member, CTSA Postdoctoral Programs Committee 2008 Member, Discovery Science Task Force Public Service 1986-90 Member, Clinical Ethics Committee and Consultant in Ethics, Laguna Honda Hospital,

San Francisco, CA. Helped found ethics committee and developed initial policies for a


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1000 bed public long term care facility. 1986-89 Member, Ethics Committee of California Nurses' Association. Authored policies on use of

anencephalic infants as organ donors and the nurse's role in assisted suicide. 1987-95 Member, On Lok Senior Health Services Ethics Committee, San Francisco, CA.

Chairperson 1989-90; Vice-Chair 1992-95. Developed ethics policy manual used nationally in On Lok "PACE" replication sites.

1991 "Controversies in Ethics," lecture for University of California Community Health Talks,

Oct. 24. 1992 Summer Mentor for San Francisco Public School Student through UCSF

Science/Education Partnership Program. 1993 "Working with Culturally Diverse Families," presentation at Shriner's Hospital for Crippled

Children, San Francisco, CA, March 24. 1993 Consultant to "Ethics Task Force," California Association of Homes for the Aged, a

statewide, non-profit organization representing more than 400 charitable providers of health care, housing and supportive services to seniors.

1993-95 Member, Curriculum Development Committee, "Winding Your Way through DNA,"

(educational materials for high school students). 1993-95 Member, Advisory Committee, San Mateo County, CA, Biotechnology Education Project

(for high school teachers). 1996 Testimony for the State of California “Senate Select Committee on Genetics and Public

Policy,” Sacramento, Oct. 24. 1997- Ethics Advisory Board, Affymetrix Corporation. 1997 Lecture on genetic testing for undergraduate biotechnology course, Santa Clara

University, Mar. 11. 1997 Member, Advisory Committee, “Leadership Alliances in the Biological Sciences,” Stanford

Human Genome Education Program (for high school teachers). 1998-99 Advisory Board, “The End of Life” Radio Project. Station KALW, San Francisco. 1999 Panelist, The Freedom Forum, Pacific Coast Center, “Stories of the Century: A quick look

at the past and a longer look at the future.” San Francisco, CA, August 10. 1999 Consultant, PBS, “The Gene Files,” San Francisco, CA. 2001 Panelist, “After the Human Genome,” John S. Knight Fellowship Program for Professional

Journalists, Stanford, CA, July 7. 2001 "Genetics and Ethics" lectures to 3 Freshman Biology Classes, Lick-Wilmerding High

School, San Francisco, CA, December 17. 2006 Discussant for the play "A Number" by Caryl Churchill, Rochester Repertory Theatre,

Rochester, MN, March 24. 2006 Member, Minnesota Pandemic Flu Ethics Assessment Workgroup; Resource Allocation


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Panel, Minneapolis, MN 2007 Speaker, First Unitarian Society, “Technology, (Im)mortality, and the Rhetoric of Choice”, May 13, 2007, Minneapolis, MN. 2007 Mentor, U of M School of Nursing, Speed Mentoring Event 2008 Mentor, U of M School of Nursing, Speed Mentoring Event

Consultation to print and broadcast media on various issues, ranging from human cloning to genetic testing: New York Times, Los Angeles Times, Washington Post, Sacramento Bee, San Francisco Chronicle, San Francisco Examiner, Business Week, San Jose Mercury News, The Scientist, The New Republic, La Monde, ABC Nightline, KPIX Channel 5, KQED, KLIV/CNN San Jose, Seattle Public Television, National Public Radio, etc. Teaching Formal Scheduled Classes - University of California, San Francisco: "Social and Ethical Issues in Biomedical Innovation" (BIOENGINEERING 260), Spring 1988, 1989, 1990, 1992. “Topics in Science, Technology and Society: Group Study” (ANTHRO 248), (with Adele Clarke, Ph.D.), Fall 1992. “Introduction to Health Politics, Policy, and Policy Analysis” (HMS 247), Guest Lecturer, Fall 1992. “Introduction to Medical Anthropology” (ANTHRO 205B), Guest Lecturer, Winter 1992. "Biotechnology in Society" (graduate seminar), (SOC/ANTHRO 249), (with Adele Clarke, Ph.D.), Winter 1993. "Social Studies of Science and Technology" (SOC/ANTHRO 282), (with Adele Clarke, Ph.D.), Spring 1994. “End-of-Life-Care Across Practice Settings” (NURSING 249), Guest Lecturer, Spring 2001; Spring 2002. Core Curriculum for Medical Students: "Cancer Block," Culture Core, Developed lecture and small group exercise: "Culture, 'Race' and Ethnicity in Cancer: What Differences Make a Difference?" Winter 2002. Formal Scheduled Classes - Stanford University: "Preparation for Clinical Medicine" (MED 208C) Ethics Modules, Spring 1993, 1995, 1997. "Literature and Medicine" (MED 214), (with Audrey Shafer, M.D.), Winter 1994, 1995, 1996, 1997. “Ethnicity and Medicine” (MED 224), Guest Lecturer, Spring 1997. “Anthropology of Death and Dying” (ANTHRO 145B/245B), Spring 1999, Spring 2000. “Introduction to Cultural Anthropology” (CASA 1), Guest Lecture entitled “The Role of Medical Anthropology in National Health Policy,” Winter 2000; Guest Lecture entitled “Anthropology of Medicine: What Does a Medical Anthropologist Do?” Spring 2001. “Anthropology and Bioethics” (ANTHRO 174/274), Spring 2001, Winter 2004 “Visions of Mortality” (Introduction to the Humanities I-HUM 46), Fall 2001, Fall 2002, Fall 2003, Fall 2004


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“Social Class, Race/Ethnicity and Health” (SOC 141A), Guest Lecture entitled “The Meanings of ‘Race’ in the New Genomics,” Winter 2002. “Responsible Conduct of Research” (MED 255), Course Co-Director, Winter 2002 “Molecular Epidemiology (HRP 228), Guest Lecture entitled “Ethical Issues in Epidemiological Research,” Spring 2002. “Methodology in Ethics: Translating Theory into Practice” (Ethics and Society/Philosophy 77), Spring 2004 “Race & Genetics” (Guest Lectures). Introduction to Comparative Studies in Race and Ethnicity (CSRE 196C), Spring, 2004, April 7; Winter, 2006, January 12. “Culture: Exactly What is it?” (Guest Lecture). Cultural Aspects of End-of-Life Care (MED 12SI), Winter, 2005, January 24. Formal Scheduled Classes – Mayo College of Medicine/Mayo Graduate School: “Bioethics I: Foundations in Bioethics”, small group facilitator, Mayo Medical School, 2006. “Disruptions of Development” Mayo Medical School Year 1, guest Lecture, 2006, 2007, 2008. “Responsible Conduct of Research” (Core 6000), Summer 2006, 2007, 2008. “Qualitative Research Design, Methods and Analysis” (CTSC5810) with Roberto Abadie, Fall 2007. “Qualitative Research Design, Methods and Analysis” (CTSC5810) with Kristina Tiedje, Fall 2008. Grand Rounds Presentations: "Physician Responsibility and the Fear of AIDS," UCSF Medical Ethics Grand Rounds, Apr. 16, 1986. "What is a Terminal Patient? Anthropological and Ethical Perspectives," UCSF Medical Ethics Grand Rounds, Dec. 17, 1987. "Cultural Pluralism and Ethical Decision-Making: A Comparative Study of Patients Facing Life-Threatening Cancer," Stanford University Medical Center, Apr. 1, 1993. “The Meaning of ‘Race’ in the New Genomic Medicine.” Pulmonary and Critical Care Medicine Rounds, Stanford University Medical Center, Oct. 5, 2001. “When is a Patient Dying?” VA Hospital Pulmonary and Critical Care Medicine Grand Rounds, Veterans Affairs Palo Alto Health Care System, Feb. 6, 2002. “Ethical Dimensions of the Neurosciences: Envisioning a New Field.” Neurology and Neurological Sciences Grand Rounds, Stanford University Medical Center, Dec. 13, 2002. “Ethical, Legal, and Social Implications of Clinical Pharmacogenomics in Psychiatry.” Pharmacogenomics Case Conference, Mayo Clinic, Rochester, October 5, 2005. “Creating a Bioethics Research Program at Mayo: Challenges and Opportunities.” Department of Development Grand Rounds, Mayo College of Medicine, February 6, 2006. Genomics of Addiction Journal Club, Mayo College of Medicine, February 13, 2006.


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“Ethical Implications of Race-based Drug Design,” Mayo Clinic General Internal Medicine Grand Rounds, April 18, 2006. “Creating a Bioethics Research Program at Mayo: Challenges and Opportunities.” Chaplaincy Grand Rounds, Mayo College of Medicine, May 18, 2006. “American Indian Views on DNA Biobanking and Genetic Research,” (with Kathleen Heaney), Mayo College of Medicine Pharmacogenomic Rounds, July 5, 2006. “Qualitative Methods in Health Research,” Mayo College of Medicine General Internal Medicine Rounds, September 8, 2006. “Technology, (Im)mortality, and the Rhetoric of Choice,” Grand Rounds, Luther Middlefort Hospital (Mayo Health System), May 31, 2007, Eau Claire, WI. “A Deliberative Public Consultation about Bio-banking in Olmsted County” (with Roberto Abadie) Pharmacogenomics Grand Rounds, Mayo College of Medicine, Rochester MN, June 6, 2007. “Deliberative Democracy & DNA Biobanking in Olmsted County: Exploring a Novel Tool for Community Engagement” (with Roberto Abadie) Health Sciences Research Seminar, Mayo College of Medicine, Rochester MN, July 23, 2007. "An anthropologist on planet Mayo (with apologies to Oliver Sacks)" Mayo Medical Grand Rounds, Rochester, MN, April 23, 2008 “Emerging Genomic Information of Uncertain Clinical Utility: A strategy for Clinicians” Department of Pediatric and Adolescent Medicine Friday Morning Pediatric Conference, Rochester, MN, September 5, 2008. “Predictive Genomic Risk Assessment: Imagining the Future of Personalized Medicine” Margaret Clark Lecture, Medical Grand Rounds, University of California San Francisco, CA, September 11, 2008. Students and Fellows Supervised Stanford Undergraduate Student Research/Mentoring (chronological): Renee Boynton (Princeton, 1995) Research Mentor, Minority Summer Research Exchange Program at Stanford. Julie Carter (Human Biology Honors Thesis, 1994) "Ethical Decision-Making Processes: An Analysis of Chinese Cancer Patients and Their Families." Paper received the WHR Rivers Prize, Society for Medical Anthropology, "Best Undergraduate Medical Anthropology Paper". Susan Stefanac (Human Biology Honors Thesis, 1995-96) "The Process of Disclosure of Diagnosis and Prognosis to Pediatric Oncology Patients." Connie Kim (Human Biology 1995-96) Supervised internship on cultural diversity and medical decision making. Aarthi Belani (Honors Thesis Advisor, Stanford Ethics in Society Program, 2000-2001) “Patients, Pills, and the Poor: The Health Rights Impact of the WTO Agreement on Trade-related Aspects of Intellectual Property Rights.” Herbrina Sanders (Undergraduate Advisor, Human Biology, 2001-02). Lynn M. Yee (Undergraduate Advisor, Human Biology, 2001-03).


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Charu Gupta (Humanities Center Undergraduate Research Fellow; Undergraduate Honors Thesis Advisor, CASA, 2002-03) “The Etiology and Health Impact of Second-Generation South Asian American Women’s Bodily Fragmentation and Multiplicity of Identies.”” Catherine Barnard (Ethics in Society Honors Thesis Advisor 2002-04) "Autonomy and Disease Prevention in Community-Based Genetic Screening: A Case Study." Christopher McCall Bruner (Ethics in Society Honors Thesis Advisor 2003-04) "Just Intellectual Property Arrangements Between Economically Unequal Nations." Kimberly Taub (Undergraduate Advisor, Human Biology, 2003-05) Abigail McDaniel (Human Biology Honors Thesis Advisor 2003-05) Kenneth Gundle (Human Biology Honors Thesis Advisor 2004-05) Ph.D. Students (alphabetical): Theresa Drought (UCSF, Nursing) Qualifying Examination Committee, Dissertation Committee, "The Discourse of Advance Care Planning: End-of-life Decision-making in a Multicultural Population of Cancer and AIDS Patients.” David Eaton (UCB/UCSF, Medical Anthropology) Ph.D. Qualifying Examination Committee. Patricia Flynn (UCSF, Sociology) Advisor, Dissertation Research on "Institutional Ethics Committees." Linda Hogle (UCB/UCSF, Medical Anthropology) Qualifying Examination Committee, Dissertation Committee, "Procuring Human Biological Materials in Post-War, Post-Unification Germany." Anne Hughes (UCSF, Nursing) Research Mentor for NIH Individual Pre-doctoral Fellowship Award (NRSA). Ph.D. Qualifying Examination Committee. Dissertation Defense on experiences of the urban poor with advanced disease, titled "Can you give me Respect?”. Sandra Hyde (UCB/UCSF, Medical Anthropology) Academic Advisor, Ph.D. Qualifying Examination Committee. Marjory Lazarus (UCB/UCSF, Medical Anthropology) Academic Advisor. Zhen Lin (Stanford, Bioinformatics) Chair, Dissertation Defense on “Analyzing Disclosure Risk of Public Biomedical Databases.” March 15, 2004. Ingrid Oakley-Girvan (Stanford, Epidemiology) Chair, Dissertation Defense on “Correlates of Prostate Cancer Incidence and Survival.” March 28, 2002 Traci Powell (Stanford, Genetics) Dissertation Committee, "The Efficacy of Genetic Testing and Counseling for Familial Breast Cancer Showing Linkage to the BRCA1-2 Genes." Meryl Rappaport (UCSF, Sociology) Third Area Exam Advisor/Reader, "Sociological Dimensions of High-Tech Home Care." Medical Student Research: Eugene Hern (UCSF/UCB Joint Medical Program) Supervised Master's thesis, "Value Conflicts in Cross Cultural Medicine: The Role of the Family in Medical Decisions--Chinese Patients and Western Practitioners." Lee Sanders (funded by Stanford Medical Scholars Program Award) "Examination of the Ethics


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Consultation Process." Pauline Terebuh (funded by Stanford Medical Scholars Program Award) "Patients' Trust in Physicians and End of Life Decisions: A Comparison of African American and White Patients in Long Term Care." Stephen Weiss (UCSF) Supervised individual Medical Ethics Clerkship. Post-Doctoral Research Fellows and Physician Fellows (funded) chronological: Karen Heller, Ph.D. (NIH/NINR) “Cultural Pluralism and Ethical Decision-Making” (1992-94). Jan Gates-Williams, Ph.D. (NIH Minority Supplement Award and Stanford School of Medicine Dean’s Fellowship) "Cultural Pluralism and Ethical Decision-Making" (1994-95). Susan Kelly, Ph.D. (National Center for Human Genome Research NRSA) "Prenatal Diagnosis Using Fetal Cells from Maternal Blood" (1995-97). LaVera Crawley, M.D. (Open Society Institute and State of Calif. AIDS Research Program) “Cultural Diversity and End-of-Life Care Research Programs” (1997-98). Brad Davidson, Ph.D. (Robert Wood Johnson Foundation Last Acts Project) "Speaking About Death: Culture, Language, and Communication in End-of-Life Care" (1998-99). Maren Monsen, M.D. (Greenwall Foundation) “Filmmaker-in-Residence” (1999-00). Sandra Lee, Ph.D. (National Human Genome Research Institute) “The Ethics of Identifying Race in the New Genetics” (2000-03). Katrina Karkazis, Ph.D. (National Institute on Drug Abuse) “The Genetics of Nicotine Addiction: Examining Ethics & Policy” (2003-04). Molly Dingel, Ph.D. (National Institute on Drug Abuse) “The Genetics of Nicotine Addiction: Examining Ethics & Policy” (2005-07). Kathleen Heaney, M.D. (Mayo Addiction Psychiatry Fellow Research mentor for project) “American Indian Views on DNA Biobanking.” (2005-06). Nathan Goldstein, M.D. (Assistant Professor & Co-Director, Integrated Geriatrics/Palliative Care, Brookdale Department of Geriatrics and Adult Development, Mount Sinai Medical Center, New York Mentor for NIH/K23 Award on Ethical Dimensions of Physician Management of Implantable Defibrillators. (2006-10). Roberto Abadie, Ph.D. (Mayo Center for Individualized Medicine) “Ethical Issues in DNA Biobanking” (2006-08). Irene Yeh, M.D. (Mayo Internal Medicine Resident) Cultural Issues in End-of-Life Care. (2006-07). David Rosenman, M.D. (Mayo Division of General Internal Medicine) Mentor for DOM Career Development Award “Time for the Scholarly Physician” (2007-). Jon Tilburt, M.D. (National Center for Research Resources KL2 Award) “Patient, Clinician, and Minority Community Views of Translational Genomics” (2007-). Kristina Tiedje, Ph.D. (Navigenics) “Proof-of-Principle Trial of Communication to Patients Receiving Predictive Genetic Risk Assessment” (2008-). Leah Eisenberg, JD (National Human Genome Research Institute) “EMR Phenotypes and Community


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Engaged Genomic Associations” (2008-). Joan Henriksen Hellyer, Ph.D. (National Human Genome Research Institute) “EMR Phenotypes and Community Engaged Genomic Associations” (2007-). Joel Wu, JD (Mayo Center for Individualized Medicine) “Ethical Issues in DNA Biobanking” (2008-). Ann Marie Dose, R.N., Ph.D. (Mayo Rochester Department of Nursing) Career Development in End of Life Care Research. (2008-) In addition, the Stanford Program in Genomics, Ethics, and Society funded visiting fellows at the junior and senior level, as well as Stanford faculty fellows. The following individuals were supported though this multi-disciplinary fellowship program, co-directed by Barbara Koenig: 1995-96 -- Diane Beeson, Ph.D. (Medical Sociology), Monica Casper, Ph.D. (Medical Sociology),

Deborah Gordon, Ph.D. (Medical Anthropology). 1996-97 -- Sara Tobin, Ph.D. (Molecular Biology), Jonathan Kaplan, Ph.D. (Philosophy), Howard

Klepper, Ph.D., J.D. (Philosophy/Law), Alan Stockdale, Ph.D. (Anthropology). 1997-98 -- Anne Moyer, Ph.D. (Social Psychology); R. Alta Charo, J.D. (Law); Marie Hirtle, J.D.

(Law), Rachel Cohen, Ph.D. (Philosophy), Timothy Caulfield, J.D. (Law), Margaret Eaton, J.D. (Law).

1998-99 -- Margaret Eaton, J.D. (Law); Robert Yamashita, Ph.D. (Sociology); Gwen Anderson, RN, Ph.D. (Nursing).

1999-00 -- Patricia Benner, RN, Ph.D. (Nursing); Jeffrey R. Botkin, M.D., MPH (Genetics); Lorraine Caron, Ph.D. (Bioethics); Norbert Paul, Ph.D. (Philosophy of Medicine).

2000-01 -- Lorraine Caron, Ph.D. (Bioethics); Sandra Soo-Jin Lee, Ph.D. (Anthropology). Major Conferences/Meetings Organized "AIDS and the Medical Humanities." National Meeting of the Society for Health and Human Values. Funded by California Council for the Humanities, San Francisco, CA, Apr. 1986 (125 registrants; edited conference proceedings with Eric Juengst; first national humanities conference devoted to HIV/AIDS). "AIDS: New Challenges in Nursing Education." Week-long Summer Institute held at University of California, San Francisco. Funded by HRSA. July, 1988 (50 registrants). "The Ethics and Economics of Death." Co-sponsored by California Medical Association, California Nurses' Association, The Hastings Center and University of California. Funded by California Council for the Humanities. San Francisco, CA, Nov. 1989 (775 registrants). "Biotechnology in Society." Ten-week lecture and seminar series. Funded by The GTE Foundation, Genentech, Inc. and University of California Biotechnology Research and Education Program. Winter Quarter, 1993 (average attendance 75). "Cultural Diversity and End-of-Life Issues." Day-long conference for health care providers, organized with Stanford Geriatric Education Center. Major funding by the Veterans Administration and regional hospices. Stanford University, Mar. 31, 1995 (382 registrants). "Genetic Testing for Breast Cancer: The Science, The Ethics, The Future." Day-long conference to present the “white paper” findings of the Working Group of the Stanford Program in Genomics, Ethics, and Society, with commentary by leading experts. Held in conjunction with the World Congress of the International Association of Bioethics, with major funding by the SmithKline Beecham Corporation. San Francisco, CA, Nov. 23, 1996 (approximately 350 attendees). “Culture, End-of-Life Care, and Bioethics: What Differences Make A Difference?” Two day invitational conference. Supported by the Robert Wood Johnson Foundation, the Greenwall Foundation,


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and the Pettus Crowe Foundation. Held at the Hastings Center, Briarcliff Manor NY, Sep. 16-17, 1996. “Genetic Testing and Alzheimer Disease: Has the Time Come?” Stanford, CA, October 25, 1997 (approximately 250 attendees). “Health Promotion and Disease Prevention: Ethical and Social Dilemmas.” Funded by the California Wellness Foundation. Los Angeles, CA, Dec. 11, San Francisco, CA, Dec.-12, 1997 (repeated at the Harvard School of Public Health, 1998). “Individual Genetic Variation: Implications of the Coming Transformation of Medicine.” Stanford, CA, October 17, 1998. (approximately 250 attendees). “Neuroethics: Mapping the Field.” San Francisco, CA, May 13-14, 2002. Conference Proceedings at: http://www.dana.org/books/press/neuroethics/ “Race and Ethnicity in the Context of Human Genetic Variation: Examining Social and Scientific Consequences.” Interdisciplinary Faculty Workshop, Stanford Humanities Center, June 9-10, 2003 (with Joanna Mountain). “Colorblind Racism? The Politics of Controlling Racial and Ethnic Data.” Impacts on Health, Education, Justice. Stanford, CA, October 2,&3, 2003 (with the Stanford Center for the Comparative Study of Race and Ethnicity). (approximately 350 attendees). "Ethical Issues in Transplant Medicine," Mayo Clinic College of Medicine, Feb. 2007, Member, Planning Committee. “Professionalism at Academic Medical Centers: Challenges and Opportunities,” Mayo College of Medicine, Oct. 2007, Member, Planning Committee. Papers Presented at Professional Meetings (complete listing) "Role-Strain in Pediatric Nurses: A Study of the Conflicts in Caring for Dying Children." Kroeber Anthropological Society Annual Meeting, Berkeley, CA, 1977. "Ethics and Objectivity in Studying Ourselves." Prepared for "To Intervene or Not: Nursing, A Microcosm for Addressing Anthropological Issues of Objectivity in Fieldwork" symposium, organized by Barbara Koenig and Charlotte Weaver. American Anthropological Association Annual Meeting, Los Angeles, CA, 1978. "The Medical Anthropologist in a University Teaching Hospital: Ethics and Etiquette of Fieldwork." Southwestern Anthropological Association Annual Meeting, San Francisco, CA, 1978. "The Cultural Meaning of Discovery: An Ethnography of Innovation in Clinical Medicine." American Anthropological Association Annual Meeting, Los Angeles, CA, 1981. "Anthropology and the Assessment of New Medical Technologies: The Case of Therapeutic Plasma Exchange." Society for Applied Anthropology Annual Meeting, Edinburgh, Scotland, 1981. "The Technologic Imperative in Medical Practice" (invited paper). American Anthropological Association Annual Meeting, Denver, CO, 1984. "Physician Response to a New, Lethal, and Presumably Infectious Disease: AIDS and Medical Residents in San Francisco" (with M. Cooke). Society for Health and Human Values National Meeting, San Francisco, CA, 1986.


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"Ethical Issues in the Care of HIV-Infected Patients." American Thoracic Society Scientific Sessions, Cincinnati, OH, 1989. "Examining Orthodoxies: The Role of Anthropology in Bioethics" (with M. Margaret Clark). American Anthropological Association Annual Meeting, Washington, DC, 1989. "Balancing Fear and Responsibility: Professional Ethics in AIDS Care" (with M. Cooke, N. Beery, and S. Folkman). American Anthropological Association Annual Meeting, Chicago, IL, 1991. “Learning to Care: Responses of Physicians in Training to AIDS” (poster presentation with N. Beery and M. Cooke). American Anthropological Association Annual Meeting, San Francisco, CA, 1992. "Cultural Pluralism and Ethical Decision-Making: Meanings of Autonomy to Patients and Families Facing Life-Threatening Cancer" (with C. Orona and A. Davis). American Anthropological Association Annual Meeting, San Francisco, CA, 1992. "Internal Medicine Residents and AIDS 'Risk Groups:' The Social Construction of Risk, Benefit, and Blame" (with M. Cooke, N. Beery, and S. Folkman). Southwestern Anthropological Association Annual Meeting, Berkeley, CA, 1992. "Telling the Truth About Cancer: The Ambiguity of Prognosis for Culturally Diverse Patients" (with D. Barnes, A. Mirande, and A. Davis). Society for Applied Anthropology Annual Meeting, San Antonio, TX, 1993. "Predicting AIDS and Genetic Illness: The Consequences of and Adaptations to Discrimination" (panel discussant). American Public Health Association Annual Meeting, San Francisco, CA, Oct. 26, 1993. "Anthropology, Advocacy, and Professional Responsibility" (panel discussant). American Anthropological Association Annual Meeting, Washington, DC, Nov. 1993. "Cross-Cultural Issues in End-of-Life Decision-Making." Paper presented for "Multiculturalism and Medicine" symposium, organized by Nancy Jecker. American Philosophical Association Pacific Division, Los Angeles, CA, Apr. 1, 1994. "Approaching Research Questions in Medical Ethics from Multiple Disciplines" (panel discussant). Society of General Internal Medicine, Washington, DC, Apr. 27, 1994. "Treatment of HIV/AIDS Patients from Diverse Cultural Backgrounds." American Thoracic Society Scientific Sessions, Boston, MA, May 23, 1994. "Ethical Issues in Health Care Reform: The Challenge of Cultural Diversity" (with Patricia Marshall). American Anthropological Association Annual Meetings, Atlanta, GA, Dec. 1, 1994. "Bioethics and the Politics of Race and Ethnicity: Respecting (or Constructing) Difference?" (with Patricia Marshall). Paper prepared for "Cultural Diversity and Bioethics" symposium, organized by Karen Heller and Barbara A. Koenig. American Anthropological Association Annual Meeting, Atlanta, GA, Dec. 2, 1994. "The Human Genome Diversity Project and Anthropology: Promises and Challenges for the Discipline." Special event organized for the program committee; panelists included Margaret Lock, Eric Juengst, Henry Greely, Allan Swedlund and Kenneth Weiss). American Anthropological Association Annual Meeting, Atlanta, GA, Dec. 3, 1994. “Ethical Decision-Making Dilemmas and End-of-Life Care: Issues Confronting African-Americans”


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(with Jan Gates-Williams and Lisa Moore). American Anthropological Association Annual Meeting, Washington, DC., Nov. 17, 1995. “Genetic Testing for Breast and Ovarian Cancer: Anthropological Perspectives on a ‘Noninvasive’ Technology” (with Nancy Press). American Anthropological Association Annual Meeting, Washington, DC, Nov. 15, 1995. “Graphing Uncertainty: The Presentation and Representation of Individualized Risk for Breast Cancer” (with Nancy Press). American Anthropological Association Annual Meeting, San Francisco, CA, Nov. 21, 1996. “Genetic Testing and Alzheimer Disease.” Panel, Society for Health and Human Values/American Association of Bioethics Annual Meeting, Baltimore, MD, Nov. 1997. “The Specter of Cloning a New Human Being from a Single Adult Cell: Views from Across the Discipline of Anthropology.” Invitational Panel (at the request of the program chair). American Anthropological Association Annual Meeting, Washington, DC, Nov. 1997. “Challenges to “Choice” in Dying: The Limits of Rational Choice Theory in Decisions about Life’s End.” Paper prepared for “Forms of Rationality: Moral and Practical Reasoning in Biomedicine and Beyond,” symposium organized by Patricia Marshall, Cheryl Mattingly, & Barbara Koenig. American Anthropological Association Annual Meeting, Washington, DC, Nov. 1997. “The Presentation and Representation of Individualized Risk in Genetic Testing for Breast Cancer.” Invitational Panel. American Society for Bioethics and Humanities, Houston, TX, Nov. 1998. “Deploying “Race,” “Ethnicity,” and “Culture” in the New Molecular Medicine” (with Patricia Marshall). Paper prepared for “Performing Race and Ethnicity in the Crisis of the Medical Moment,” symposium organized by Linda Hunt. American Anthropological Association Annual Meeting, Chicago, IL, Nov. 1999. “Medical Anthropologists ‘Doing’ Policy: A Report from the Genetic Trenches” (with Nancy Press). Society for Medical Anthropology Spring Meeting, San Francisco, CA, March 23, 2000. “The Embodied Experience of Genetic Risk: Where Biomedical Knowledge Meets Bodies.” (Paper with Jennifer Fishman, Anne Moyer, and Kathreen Johnston; Organized session with Antoinette Guerra). Society for Medical Anthropology Spring Meeting, San Francisco, CA, March 23, 2000. “Bioethicists, Biotech Corporations, and Conflicts of Interest.” American Society of Bioethics and Humanities, Salt Lake City, UT, October 29, 2000. “Can Guidelines Be Created for Limiting Treatments in Older Persons Who Have Seriously Diminished Quality of Life?” (with Theresa Drought). National Institutes of Health, Integrative Conference on End-of-life Research: Focus on Older Populations, Bethesda, MD, October 22, 2001. “Behavioral Genetics & Public Policy” (Panel). American Society of Bioethics and Humanities, Montreal, Canada, October 24, 2003 “A Critical Anthropology of Human Genetic Variation Research: Examining Scientific Practice; Refining Theories of Difference” (session organized with Sandra Lee). American Anthropological Association Annual Meeting, Chicago, IL, November, 2003. “The Genetic Age: Regulation, Standards, and Public Confidence.” American Association for the Advancement of Science, Washington, DC, Feb. 18, 2005. “The ‘Geneticization’ of Addiction: Forecasting Ethical Challenges and Public Policy Options”


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(with Katrina Karkazis and Nina Sperber). Society for Applied Anthropology Annual Meeting, Santa Fe, NM, April, 2005. “Compliance, Resistance, and Social Realities: How Does Medical Anthropology Inform Ethically Responsible Research?” (Discussant for AAA Invited Session) American Anthropological Association Annual Meeting, Washington, DC, December 2, 2005. “Addicted to Smoking: Brain Disease? Genetic Mishap? Social Failure?”. Paper prepared for “Genetics, Neurobiology, and Nicotine Addiction: Scientific Opportunities & Public Policy Challenges”, symposium organized by Barbara Koenig. American Association for the Advancement of Science Meeting, St. Louis, February 17, 2006. “Life on the Edge: Bioethical Vistas and Policy Panoramas of Health, Treatment, and Research.” Discussant, Society for Applied Anthropology, Vancouver, BC, April 1, 2006. “Creating DNA Biobanks to Support Alcohol Research.” Paper prepared for “Genomics Approaches to Alcohol Addiction: Scientific Opportunities, Ethical Challenges”, session organized by Marilyn Coors. Research Society on Alcoholism, Baltimore, MD, June 27, 2006. “Is Public Health Genetics an Oxymoron?: The Challenges of Integrating Disparate Fields." (Paper with Molly J. Dingel, Ashley Hicks, Marguerite Strobel). Accepted for presentation at the American Sociological Association Annual Meeting, New York, NY, August 11-14, 2007. “Identifiability in Genomic Research: Considerations of Privacy, Autonomy, and Social Identity.” (Panel) American Society for Bioethics and Humanities Annual Meeting, Washington D.C., October 17, 2007. “Public Health Ethics Collaborations at the Centers for Disease Control and Prevention (CDC).” (Panel) Thomas G. Hooyman, Bruce Jennings, Barbara Koenig, Janice R. Devier, and Drue H. Barrett. Session at American Society for Bioethics and Humanities Annual Meeting, Washington D.C., October 19, 2007. “DNA as Unique Identifier: Privacy, Trust, and the Future of Genomic Biorepositories.” (Panel) Georgia Wiesner, Barbara A. Koenig, Amy L. McGuire, Lynn G. Dressler, Russ B. Altman, Jay L. Lander. Invited, Social Issues Session (Plenary) at the American Society for Human Genetics Annual Meeting, San Diego, California, October 24, 2007. Creating an “Ethics Incubator” for Translational Research at Mayo Clinic Ethical, Legal and Social Implications of Genomics (ELSI) Conference, Cleveland, OH, May 2, 2008 “Future Directions for Public Health Emergency Planning: Broader Moral Perspecctives” (Panel) Barbara A. Koenig, Nuala P. Kenny, Joan Liaschenko, and Debra A. DeBruin. Session at American Society for Bioethics and Humanities Annual Meeting, Cleveland, Ohio, October 24, 2008. “Views and Visions of Personalized Genomics: A Cultural Approach” (with Kristina Tiedje) American Society for Bioethics and Humanities Annual Meeting, Cleveland, Ohio, October 24, 2008. “Direct-to-Consumer Genomics Companies: Anthropologists in New Territory” Barbara A. Koenig, Jennifer Fishman, Henry Greely, Joanna Mountain, Kristina Tiedje. Session at American Anthropological Association Annual Meeting, San Francisco, California, November 21, 2008. Invited Lectures and Presentations (1988 - Present) "Ethical Issues in Pediatric AIDS." Third Annual Nursing Ethics Conference, Children's Hospital, Los Angeles, CA, Mar. 4, 1988.


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"Moral Problems in Organ Procurement." Lauren Norton Lectureship, Cabrillo College, Aptos, CA, Mar. 18, 1988. "California's Active Euthanasia Initiative." Network of Aging Providers, Mountain View, CA, Apr. 20, 1988. "The Role of Ethics Committees in Guiding Treatment Decisions." Special Geriatric Grand Rounds, Laguna Honda Hospital, San Francisco, CA, May 7, 1988. "The Nurse's Responsibility to Care." Ethics and AIDS Conference, California Nurses' Association, Los Angeles, CA, May 18, l988 and San Jose, CA, Jun. 3, 1988. "Ethics and AIDS." Featured Speaker, AIDS/ARC Update, San Francisco, CA, Jul. 16, 1988. "The Social Meaning of AIDS: Implications for Teaching" (with Virginia Olesen). Lecture at "AIDS: New Challenges in Nursing Education," University of California, San Francisco, Jul. 20, 1988. "Is New Medical Technology Coercive?" GTE Foundation Lectureship, University of California, Davis, Oct. 26, 1988. "Why Is It So Hard to Say 'No' to Medical Technology." GTE Foundation Lectureship, City College of San Francisco, Mar. 8, 1989. "The Technological Imperative." Fourth Annual Nursing Ethics Conference, Children's Hospital, Los Angeles, CA, Mar. 10, 1989. "Social Science and Bioethics: The Relevance of Ethnographic Studies of Nursing Homes." The Hastings Center, Briarcliff Manor, NY, Nov. 3, 1989. "Ethics and Aging." Keynote lecture, California Geriatric Education Center Yearly Symposium, San Francisco, CA, Mar. 8, 1990. "Technology and the Nursing Home Environment." The Hastings Center, Briarcliff Manor, NY, Mar. 15, 1990. "Choice and Reproductive Technologies: The Role of Ethnographic Research." Lecture, Conference on Bioethics in Eastern Europe, Dubrovnik, Yugoslavia, Sep. 6, 1990. "Ethics in Health Care Policy." Plenary lecture, 11th Annual National Clinical Nurse Specialists Conference, San Francisco, CA, Feb. 27, 1992. "Cultural Issues in Talking About Advance Directives." Lecture at "Choices and Conversations: The PSDA's First Year," Pasadena, CA, Jan. 9, 1993. "The Economics of Health Care: Its Impact on Ethical Practice." Keynote address, San Francisco Bay Area Bioethics Council for Long-Term Care Conference, Fremont, CA, Jan. 20, 1993. "The Social Context in Biomedical Innovation." Invited Seminar, Institute for the Study of Social Change, University of California, Berkeley, Feb. 26, 1993. "The Impact of Personal Attitudes Upon Delivery of Care to HIV Infected Individuals." Annenberg Center for The Health Sciences, Rancho Mirage, CA, Apr. 22, 1993 "Ethical Concerns and Implications of Health Care Reform." American College of Dentists Annual Meeting, "Expanding Our Vision: Becoming More Effective in a World of Health Care Reform," San Francisco, CA, Nov. 5, 1993.


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"Cultural Diversity and Ethics Committees: What Are The Issues?" Keynote address at the Kaiser Permanente Ethics Symposium, Berkeley, CA, Nov. 6, 1993. "The Ethical Challenge of Biomedical Innovation." Student Pugwash USA, National Conference, Stanford, CA, Jan. 28, 1994. "Structure and Function of an Ethics Committee in a Community-Based Agency." American Society on Aging, San Francisco, CA, Mar. 21, 1994. "Ethical Issues in Health Care Reform." Queen of the Valley Hospital, Napa Valley Medical Center, Napa, CA, Jun. 3, 1994. "Cultural Diversity in Decision-Making About Care at the End of Life." Medical Grand Rounds, Alta Bates Hospital, Berkeley, CA, Aug. 16, 1994. “Who is at Risk and What are the Consequences of Knowing?” Panelist on Ethical Issues, Breast Cancer 1994: An Interactive Symposium, University of California, San Francisco, Sep. 25, 1994. "Ethical Decision-Making at the End of Life: Respecting Cultural Differences in Caring for Cancer Patients." American Society for Radiation Therapy, San Francisco, CA, Oct. 3, 1994. "Bioengineering Ethics." Ethics in Science Symposium, University of California, San Francisco and Berkeley, Bioengineering Graduate Group, San Francisco, CA, Nov. 12, 1994. "What Differences Do 'Differences' Make?" Ethics Committees and the Elderly Conference, American Society of Law, Medicine and Ethics, Marina del Rey, CA, Dec. 8, 1994. "The Place of Ethnicity in the Current Paradigm for Ethical Decision Making at the End-of-Life." Cultural Diversity and End-of-Life-Issues Conference, Stanford, CA, Mar. 31, 1995 "What is the Relevance of Cultural Diversity for Ethical Decision Making?" American Academy of Pediatrics Bioethics Conference, Long Beach, CA, Jun. 17, 1995. “Genetic Testing: Expectations, Implications and Options.” Panelist on Ethical Dilemmas, Beckman Public Policy Symposium, Stanford, CA, Oct. 10, 1995. “Predictive Genetic Testing for Breast Cancer: Social and Ethical Issues Facing High Risk Families.” Center for Biomedical Ethics, University of Minnesota, Minneapolis, MN, Dec. 5, 1995. “Cultural Considerations in Care for the Dying in a Changing World.” Annual Postgraduate Convention, Loma Linda University School of Medicine, Loma Linda, CA, Mar. 4, 1996. “The International Traffic in Organs: Commentary.” Commerce in Organs: Culture, Politics, and Bioethics of the Global Market, University of California, Berkeley, Apr. 26, 1996. “Ethical Conflicts in Managed Care.” Moderator at Stanford Medical Alumni Spring Symposium, Stanford, CA, May 4, 1996. “The Challenges of Bioethics Research: A Report From the Field.” Keynote address at the Third Annual Ethics Research Symposium, Center for Ethics in Health Care, Oregon Health Sciences University, Portland, OR, May 22, 1996. “Understanding Cultural Difference in Caring for Patients.” Keynote address for the Wisconsin Ethics Committee Network conference, Broadening our Perspectives: Providing Health Care in an Ethnically Diverse Community. Madison, WI, September 27, 1996.


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“Ethical, Legal, and Social Considerations of BRCA1-2 Genetic Susceptibility Testing.” American College of Surgeons Annual Meeting, San Francisco, CA Oct. 5, 1996. “Ethical Dimensions of Testing for Mutations in BRCA1-2.” Northern California Cancer Center, Union City, CA, March 17, 1997. “Cross-Cultural Issues in End-of-Life Care.” Medical Education for Care Near the End of Life National Consensus Conference. Washington, D.C., May 16, 1997. “The Diagnosis and Prediction of Marfan Syndrome: Ethical, Legal, and Social Issues.” National Marfan Foundation Annual Meeting, Stanford, CA July 11, 1997. “Culture and Biomedical Ethics: Examining the Practices of Managed Death.” Anthropology Department Colloquium, Stanford University, October 13, 1997. “Legal, Social, and Ethical Implications of Widespread Availability of Genetic Testing.” Panel Moderator, Family Caregiver Alliance Anniversary Conference, San Francisco, CA, Oct. 20, 1997. “The Promise of Molecular Medicine in Preventing Disease: Examining the Burden of Genetic Risk.” Health Promotion and Disease Prevention: Ethical and Social Dilemmas. Los Angeles, CA, Dec. 11, 1997 and San Francisco, CA, Dec. 12, 1997. “Cloning Humans: Is it Inevitable and Can We Prepare for It?” and “Cultural Diversity and Decision Making about Care at the End of Life.” St. Francis Medical Center Annual Bioethics Conference, Honolulu, HI, Feb. 12-13, 1998. “Observing Death, Examining Bioethics.” Workshop on Ethics, Medicine and Social Science, Department of Social Medicine, Harvard Medical School, March 12, 1998. “Does ‘Race’ Have Meaning in the New Genetic Medicine?” The Stanford Program in Genomics, Ethics, and Society, Palo Alto, CA, Oct. 17, 1998. "Genetic Testing for Breast Cancer: Examining the Cultural Geographics of Risk, Hope, and Control." The Stanford Program in Genomics, Ethics, and Society, Palo Alto, CA, Feb. 2, 1999. “Genomic Anthropology: Examining the New Molecular Medicine.” Department of Anthropological Sciences at Stanford University, Palo Alto, CA, Feb. 19, 1999. “Cultural Compromises in Oncology.” Ethics Rounds, Dana-Farber Cancer Institute, Boston, MA, March 22, 1999. “New Directions in Breast Cancer.” Decision Making Panel, Northern California Cancer Center, San Francisco, CA, March 24, 1999. “Thinking About ‘Culture’ in Bioethics.” Fellows Seminar, Clinical Center, National Institutes of Health, Bethesda, MD, June 16, 1999. “Health Care Access & The Health of the Public” and “Trust and the Doctor/Patient Relationship.” Bioethics in the Urban Context: A National Symposium, New York Academy of Medicine, New York, NY, Dec. 2-3, 1999. “How to Think About Cultural Difference in Bioethics.” Keynote Address, Two-Day Conference on Multicultural Considerations in the Practice of Clinical Nursing Ethics, Yale-New Haven Hospital, New Haven, CT, April 27-28, 2000 “Conceptualizing Empirical Research in Bioethics.” Toward Higher Levels of Analysis: Progress and


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Promise in Research on Social and Cultural Dimensions of Health Conference, National Institutes of Health, Bethesda, MD, June 27, 2000 “Teaching About Culture in the Realm of Biomedicine.” Stanford Faculty Development Program, End of Life Unit with LaVera Crawley, M.D., September 13, 2000 “Identifying ‘RACE’ in Health Disparities Research: Implications of the Genomic Prism.” Racial and Ethnic Disparities in Health Conference, Inaugural Conference for Yale Journal of Health Policy, Law, and Ethics, New Haven, CT, February 9-10, 2000. “Developing a Case-Based Ethics Curriculum for the Biotech Industry.” A Decade of ELSI Research, Bethesda, MD, January 16-18, 2001 “Integrating Genomics Technologies in Healthcare: Practice and Policy Challenges.” Banbury Center, Cold Spring Harbor, NY, February 25-28, 2001. “Crossing Over Jordan: African Americans and Care at the End of Life.” Speaker, Duke Institute on Care at the End of Life Symposium with LaVera Crawley, M.D., Duke Divinity School, Durham, NC, May 24, 2001. “Bioethicists and Biotech Companies.” BIO Biotechnology Industry Organization, 2001 International Biotechnology Convention and Exhibition, San Diego, CA, June 24-27, 2001. “Will ‘Race’ Matter in the New Genomic Medicine?” Department of Medicine Grand Rounds, University of California, Irvine, July 31, 2001. “Beyond the Beginning: The Future of Genomics.” National Human Genome Research Institute (NHGRI), Airlie House, Warrenton, VA, December 12–14, 2001. “Human Genetics, Environment, and Communities of Color: Ethical and Social Implications.” West Harlem Environmental Action (WE ACT) national conference, New York, NY, February 4, 2002. “Will ‘Race’ Matter in the New Genomic Medicine?” Milton S. Hershey Medical Center, Pennsylvania State University, Hershey, PA, Feb. 11, 2002. “Genomics, Race, and Health Disparities Research.” Ethics Grand Rounds, University of Texas, Southwestern Medical Center, Dallas, March 12, 2002. “Setting A Research Agenda for Health and the Humanities.” End of Life Care Workgroup Conference, Agency for Healthcare Research and Quality (AHRQ) and the National Endowment for the Humanities (NEH), Potomac, Maryland, March 14-15, 2002. Biomedical Ethics Symposium, Guest Faculty, Providence Health System Alaska, Alaska Native Medical Center, Anchorage, April 12-13, 2002. “Race’ Matters in Genomic Medicine.” Affymetrix Corporation, Sunnyvale, CA, May 30, 2002. "Beyond the Beginning: Bioethics, Health Policy, and the Human Genome Project." Keynote lecture for the conference: Empirical Bioethics in Cultural Contexts: Genetic Confidentiality, Ownership, and Public Participation. Sophia University, Tokyo, Japan, January 30 – 31, 2003. "Forum on Genes, Genomes, and Society." The Genome of Homo Sapiens (50th Anniversary Celebration of DNA). Cold Spring Harbor Laboratory, NY, May 30, 2003. “Observing Death, Examining Bioethics: Challenging ‘Choice’ in End-of-Life Care.” Project on Death in America Faculty Scholars Retreat, Lake Tahoe, CA, July 22, 2003.


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“The Nature of Professional Responsibility in Neuroscience.” Stanford Graduate Neuroscience Science Journal Club, October 21, 2003. “Revisiting ‘Race’: Examining Social and Scientific Consequences.” Northern California Cancer Center, December 8, 2003. “Race, Genetics, and the Media.” Knight Journalism Fellowship Seminar, Stanford University, March 3, 2004. "Racial Profiling" in Human Genetics Research: Are Social Harms Avoidable? Cleveland Clinic Foundation, Cleveland, OH, March 23, 2004. "Racial Profiling" in Human Genetics Research: Are Social Harms Avoidable? Mayo Clinic Foundation, Rochester, MN, April 19, 2004. Genetics & Nicotine Addiction: "Proactive" Neuroethics. Stanford Neuroscience Institute Annual Retreat, Asilomar, CA, May 4, 2004. Cultural Dimensions of End-of-Life Care. Stanford Neurology Residency Teaching Program, May 5, 2004. Revisioning “Race” in the Context of Human Genetic Variation Research. Faculty Research Seminar for “Social Lab” Stanford Dept of Psychology, May 10th, 2004. Genetics in Crime, Race and Behaviour. “The Genetic Age” Symposium, The Royal Institution of Great Britain, London, England, June 2,3, 2004. “Individualizing Medicine by Race, Culture and Ethnicity: Promise or Peril.” Bioethics Grand Rounds, University of California, Los Angeles, CA, June 8, 2004. "The Genetics of Nicotine Addiction: Ethical and Policy Implications" Center for Genetics and Society. University of California, Los Angeles, June 8, 2004. “Nicotine Addiction: A ‘Disease of the Brain?’ A Problem for Neuroethics?” The Plastic Brain Symposium, presented by Nederlandse Organisatie voor Wetenschappelijk Onderzoek, Utrecht, The Netherlands, June 25, 2004. “Genetics Research and Health Disparities: The Elusive Search for a ‘Magic Pill’.” University of California, San Francisco, Feb. 1, 2005. “Addiction: A Disease of the Brain? A Problem for Neuroethics?” University of Nevada, Reno, Feb. 10, 2005. “Technology, (Im)mortality, and the Rhetoric of ‘Choice’” Conference keynote, The Social and Cultural Implications of New Biomedical Technologies, University of Missouri, March 10, 2005. “Predicting Behavior: New Frontiers in Genetics and Neuroscience and their Implications for Civil Liberties.” American Civil Liberties Union, New York, NY, May 20, 2005. “Genetics of Nicotine Addiction: Examining Ethics & Policy.” NIDA Genetics Consortium Meeting, Bethesda, MD, June 7, 2005. “Categories of “Difference” in Human Genetics Research: Developing Strategies to Minimize Social Harms.” Canadian Institute of Health Research -- Bioethics Training Retreat, Nova Scotia, Canada, June, 2005.


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Commentator, Deinard Memorial Lecture on Law and Medicine, “The Science of Human Identification: From the Laboratory to the Courtroom (and Back).” University of Minnesota, January 31, 2006. “Predicting Risk: How Certain Must We Be? Who Should Decide?” The American Gastroenterological Association’s Digestive Disease Week, Los Angeles Convention Center, Los Angeles, CA, May 23, 2006. “Ethical and Legal Challenges Raised by Psychiatric Genomics” (with David Mrazek), Psychiatric Genomics Conference, Mayo College of Medicine, Rochester, MN, August 10th, 2006. “Future Implications of Genetic Testing in Psychiatry” (with David Mrazek) Psychiatric Genomics Conference, Mayo College of Medicine, Rochester, MN, August 11, 2006. “Ethical, Legal, and Social Issues in DNA Biobanking.” University of Minnesota Joint Degree Program in Law, Health & the Live Sciences Proseminar. November 1, 2006. "American Indian Views on DNA Biobanking and Genetic Research" (with Kathleen Heaney) Native American Interest Group, Mayo College of Medicine, Rochester, MN, November 6, 2006 and Nursing Genomics Group, Mayo College of Medicine, November 8, 2006. “Ethical, Legal, and Social Issues in Pharmacogenomics” Mayo Clinic course in Psychiatric Pharmacogenomics, Poipu Beach, Kauai, Hawaii, February 2, 2007. “Brain Death and Transplantation: Remaking the Boundary between Life & Death” Transplant Ethics Conference, Mayo College of Medicine, Rochester, MN, February 7, 2007. “Ethical, Legal, & Social Concerns When Collecting Biospecimen Data Linked to Individual Identifiers” Ninth Conference on Health Survey Research Methods, Atlanta, Georgia, March 4, 2007. “Addicted to Smoking: Brain Disease? Genetic Mishap? Social Failure?” Center for Bioethics Seminar Series, University of Minnesota, Minneapolis, Minnesota, March 9, 2007. “Revisiting Race in the Clinic” Race in the Age Genomic of Medicine: The Science and its Applications, University of Cincinnati, Cincinnati, Ohio, April 12, 2007. “Ethical Issues in Designing DNA Biobanks Linked to Medical Record Data” Clinical Research Appreciation Month, Mayo College of Medicine, Rochester MN, August 28, 2007. “Ethical & Social Issues in Designing DNA Biobanks Linked to EMR Data” Columbia University, Epidemiology Seminar, November 9, 2007. “Ethical & Social Issues in Addiction Genetics Research: An Update.” NIDA Genetics Consortium, National Institute on Drug Abuse, NIH, Bethesda, MD, Nov. 27, 2007. “Ethical, Legal, and Social Issues in Pharmacogenomics” Mayo Clinic course in Psychiatric Pharmacogenomics, Poipu Beach, Kauai, Hawaii, March 3, 2008. “The Development of Genetic Databases” Mayo Clinic course in Psychiatric Pharmacogenomics, Poipu Beach, Kauai, Hawaii, March 3, 2008. "The Mayo Biobanking Project" (with Janet Olson) Genetic Epidemiology and Risk Assessment (GERA) Program, Mayo Clinic, Rochester MN, March 12, 2008.


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"Direct-to-Consumer Predictive Genomic Risk Assessment: Is there a Role for Empirical Bioethics Research?" Center for Bioethics, Case Western Reserve University, Cleveland, OH, April 11, 2008. “Emerging Genomic Information of Uncertain Clinical Utility: A strategy for Clinicians” Medical Genetics Research Forum, Rochester, MN, July 18, 2008. “Predictive Genomic Risk Assessment: Imagining the Future of Personalized Medicine” Mayo Clinic Libraries Annual All Sites Retreat, Rochester, MN, September 9, 2008. “Emerging Genomic Information of Uncertain Clinical Utility: A strategy for Clinicians” Department of Obstetrics and Gynecology Grand Rounds, Rochester, MN, November 3, 2008. Publications Abstracts and Posters: Cooke M, Koenig BA. “House Staff Attitudes Towards the Acquired Immunodeficiency Syndrome.” Proceedings of the Third International Conference on AIDS, 1987. Cooke M, Koenig BA, Beery NA, Folkman S. “Which Physicians Will Provide AIDS Care?” (abstract accepted for oral presentation) Sixth International Conference on AIDS, San Francisco, CA, Jun. 1990. Koenig BA, Cooke M, Beery NA, Folkman S. “Balancing Fear and Responsibility: Professional Ethics in AIDS Care.” (abstract accepted for oral presentation) Seventh International Conference on AIDS, Florence, Italy, Jun. 1991. Barnes DM, Davis AJ, Koenig BA. “Informed Consent in a Multi-Cultural Population: An Ethnography of Cancer Patients.” (abstract accepted for oral presentation) Eighth Annual WIN Assembly, Phoenix, Arizona, Apr. 1994. Wick JG, Spencer NW, Myers K, Koenig BA, Crothers KA, Raffin TA. “Should Health Care be Rationed to Smokers.” Society for Research on Nicotine and Tobacco 2nd European Conference, London, England, Nov 1999. Caron L, Koenig BA, Fishman J, Raffin TA. “Genetic Research on Smoking: Foreseeable Applications and Policy Issues.” Fifth Annual Investigator Meeting, Tobacco-Related Disease Research Program, San Diego, California, Dec. 2000. Caron L, Raffin TA, Fishman JR, Koenig, BA. “Genetic Research on Smoking: Foreseeable Applications and Policy Issues.” A Decade of ELSI Research, Bethesda, MD, Jan 2001, printed in The Journal of Law, Medicine & Ethics, Special Supplement to Volume 29:2 (Summer 2001), 55. Lee SSJ, Mountain J, Koenig BA. “Variation and the Category of “Race” in SNP’s Research.” A Decade of ELSI Research, Bethesda, MD, Jan. 2001, printed in The Journal of Law, Medicine & Ethics, Special Supplement to Volume 29:2 (Summer 2001), 61. Eaton M, Brady D, Koenig BA. “Developing a Case-based Curriculum for the Biotechnology Industry. A Decade of ELSI Research, Bethesda, MD, Jan 2001, printed in The Journal of Law, Medicine & Ethics, Special Supplement to Volume 29:2 (Summer 2001), 8. Tobin SL, Boughton A, Caron L, Koenig BA. Getting the Word Out On the Human Genome Project: A Multimedia Course for Physicians. A Decade of ELSI Research, Bethesda, MD, Jan 2001, printed in The Journal of Law, Medicine & Ethics, Special Supplement to Volume 29:2 (Summer 2001), 21. Koenig, BA. “Creating DNA Biobanks to Support Alcohol Research.” Part of the session: Approaches to Alcohol Addiction: Scientific Opportunities, Ethical Challenges. Research Society on Alcoholism,


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Baltimore, MD, June 2006, printed in Alcoholism: Clinical & Experimental Research, Special Supplement to Volume 30:6 (June 2006). Dingel MJ, Hicks AD, Koenig BA. “Experts’ Ethical Concerns About a Genetic Screen for Nicotine Addiction.” [Poster, Published Abstract] American Society of Human Genetics, New Orleans LA, October 10, 2006. Dingel MJ, Hicks AD, Strobel ME, and Koenig BA. “Integrating Genomics into Public Health Practice: Views of Stakeholders in Tobacco Control” [Poster, Published Abstract]. American Society of Human Genetics Annual Meeting, San Diego, CA, October 23-27, 2007. Walmsley H, Abadie R, ODoherty K, Hartell D, Burgess M, Koenig B. “What interests and values should guide biobanking? Lessons from two experiments in deliberative public consultation.” [Poster, Published Abstract]. American Society of Human Genetics Annual Meeting, San Diego, CA, October 23-27, 2007. Journal Articles (*indicates peer reviewed journal): * Jonsen AR, Cooke M, Koenig BA. AIDS and Ethics. Issues in Science and Technology. 1986; 2:56-65. Reprinted in Kaposi's Sarcoma: A Text and Atlas. G.J. Gottlieb and A.B. Ackerman, editors. Philadelphia: Lea and Febiger, 1988. Koenig BA. Should Anencephalic Infants Be Used as Organ Donors? California Nurse. 1988; 84(2):8-9. Koenig BA. The Ethics of Fear: Nursing in the AIDS Epidemic. California Nursing Review. 1988; 10(3):42-45. Muller JH, Koenig BA. When is a Patient 'Dying'? California Nurse. 1988; 84(5):4-5. * Orona CJ, Koenig BA, Davis AJ. Cultural Aspects of Nondisclosure. Cambridge Quarterly of Healthcare Ethics. 1994; 3(3):338-346. * Teno J and Squam Lake Conference Participants (Koenig BA). Advance Care Planning: Priorities for Ethical and Empirical Research. Hastings Center Report Special Supplement. 1994; 24:S32-S36. * Koenig BA, Hogle LF. Organ Transplantation (Re)Examined? Medical Anthropology Quarterly. 1995; 9(3):393-397. * Koenig BA, Gates-Williams J. Understanding Cultural Difference in Caring for Dying Patients. Western Journal of Medicine special issue, "Caring for Patients at the End of Life," C. Cassel and G.S. Omenn, editors. 1995; 163:244-249. * Davis AJ, Koenig BA. A Question of Policy: Bioethics in a Multicultural Society. Nursing Policy Forum. 1996; 2(1):6-11. Strassberg A, Koenig BA, Shafer A. When Death is Not Good-bye: The River Styx Runs Upstream. Stanford Medical Student Clinical Journal. 1996; 1(2):17-19. * Drought, TS, Koenig BA, Raffin TA. Advance Directives: Changing Our Expectations (Editorial). Chest, 1996; 110:589-591. * Koenig BA. Guest editor of Medical Anthropology Quarterly special issue, “Biomedical Technology: Reconfiguring Nature and Culture.” 1996;10(4). * Casper, MJ, Koenig BA. “Reconfiguring Nature and Culture: Intersections of Medical Anthropology and Technoscience Studies.” Medical Anthropology Quarterly. 1996; 10(4): 523-536. * Koenig BA. The Power (and Limits) of Proximity. Hastings Center Report. (Special Issue: In Search of


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the Good Society: The Work of Daniel Callahan.) 1996; 26(6): 30-32. Koenig BA. Taking Account of Culture in End-of-Life Decision Making: An Elderly Korean Immigrant with Massive Cerebral Hemorrhage and Coma (Case Commentary). Kaiser Ethics Rounds. 1997; 6(1):2-3. * Young EWD, Marcus F, Drought T, Koenig BA, et al. “Physician Aid-in-Dying - Report of a Northern California Consensus Development Conference: The Challenges of Guideline and Policy Formation.” The Western Journal of Medicine. 1997; 166(6):381-388. Crawley L, Koenig BA. Empathy is Essential for Physician “Matching” Issue. “AMA Ethics Forum.” American Medical News. 1997, 40(28):34. * Kelly SE, Marshall PA, Sanders LM, Raffin TA, Koenig BA. Understanding the Practice of Ethics Consultation: Results of an Ethnographic Multi-Site Study. Journal of Clinical Ethics. 1997; 8(2) 136-149. * Strassberg A, Koenig BA, Shafer A. “Medicine and the Arts: Commentary on The River Styx Runs Upstream.” Academic Medicine, 1997, 72(12): 1082. Reprinted in Ten Years of Medicine and the Arts: 100 Selections from Academic Medicine 1991-2001. L.R. Dittrich, editor. Washington, DC: Association of American Medical Colleges, 2001: 169. * Hern HE, Jr., Koenig BA, Moore, LJ, Marshall, PA. The Difference that Culture Can Make in End-of-Life Decision Making. Cambridge Quarterly of Healthcare Ethics. (“What Differences Make a Difference?” Special issue edited by Erik Parens). 1998; 7(1): 27-40. * Ip M, Gilligan T, Koenig BA, Raffin TA. Ethical Decision-Making in Critical Care in Hong Kong, Critical Care Medicine, 1998, 26(3): 447-451. * Koenig BA, Greely HT, McConnell LM, et al. Genetic Testing for BRCA1 and BRCA2: Recommendations of the Stanford Program in Genomics, Ethics, and Society. Journal of Women’s Health, 1998, 7(5): 531-545. * McConnell LM, Koenig BA, Greely HT, et al. Genetic testing and Alzheimer disease: has the time come? Alzheimer Disease Working Group of the Stanford Program in Genomics, Ethics & Society. Nature Medicine, 1998, 4(7):757-759. * Ersek M, Kagawa-Singer M, Barnes D, Blackhall L, Koenig BA. Multicultural Considerations in the Use of Advance Directives, Oncology Nursing Forum, 1998, 4(10): 1683-1690. * Barnes DM, Davis, AJ, Moran T, Portillo C, Koenig BA. Informed Consent in a Multi-cultural Cancer Patient Population: Implications for Nursing Practice. Nursing Ethics, 1998, 5(5): 412-423. * Callahan D, Koenig B, Minkler M. Promoting Health and Preventing Disease: Ethical Demands and Social Challenges, Int’l Quarterly of Community Health Education, 1998-1999. 18(2) 163-180. * McConnell LM, Koenig BA, Greely HT, Raffin TA. Guest editors of Genetic Testing special issue, “Genetic testing and Alzheimer disease: has the time come?” 1999, 3(1). * McConnell LM, Koenig BA, Greely HT, and the members of the Alzheimer Disease Working Group. Genetic Testing and Alzheimer Disease: recommendations of the Stanford Program in Genomics, Ethics, and Society. Genetic Testing, 1999;3(1):3-12. * Koenig, BA, Silverberg, H. Understanding Probabilistic Risk in Predisposition Genetic Testing for Alzheimer Disease, Genetic Testing, 1999, 3(1):55-63. * Lynn J, Arkes H, Stevens M, Cohn F, Koenig BA, Fox E, Dawson N, Phillips, R.S., Hamel, M.B., Tsevat J. Rethinking Fundamental Assumptions: SUPPORT’s Implications for Future Reform. Supplement to


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the Journal of the American Geriatrics Society, 2000, 48(5):S214-221. * Press N, Fishman JR, Koenig BA. Collective Fear, Individualized Risk: The Social and Cultural Context of Genetic Screening for Breast Cancer. Nursing Ethics, 2000, 7(3):237-249. * Daly MB, Offit K, Li FP, Glendon G, Yaker A, West DW, Koenig BA, McCredie M, Venne V, Nayfield SG, Seminara D. Participation in the Cooperative Family Registry for Breast Cancer Studies (CFRBCS): Issues of Informed Consent. Journal of the National Cancer Institute, 2000, 92(6):452-6. * Ruhnke GW, Wilson SR, Akamatsu T, Kinoue T, Takashima Y, Goldstein MK, Koenig BA, Hornberger JC, Raffin TA. Ethical Decision-Making and Patient Autonomy: A Comparison of Physicians and Patients in Japan and the United States. Chest, 2000, 118: 1172-1182. * Marshall PA, Koenig BA. Bioéthiques et Anthropologie: Situer le <<Bien>> dans la Pratique Médicale [Intersections of Bioethics and Anthropology: Locating the “Good” in Medical Practice]. Anthropologie et Sociétés, 2000, 24(2):35-55. (www.erudit.org/revue/as/) * Koenig BA. Multidisciplinary Rounds: The Challenge of Providing Culturally-Competent Cancer Care. Cancer Practice, 2001. 9(2):62-65. * Lee SSJ, Mountain J, Koenig BA. The Meanings of “Race” in the New Genomics: Implications for Health Disparities Research. Yale Journal of Health Policy, Law, and Ethics, 2001. 1(1):33-75. Koenig BA. Why Not Grant Primacy to the Family? (Commentary) American Journal of Bioethics, 2001. 1(3):33-34. * Crawley LM, Marshall PA, Lo B, Koenig BA. Strategies for Culturally Effective End-of-Life Care. Annals of Internal Medicine, 2002. 136(9):673-679. * Drought TS, Koenig BA. “Choice” in End-of-Life Decision Making: Researching a Fact or a Fiction? The Gerontologist, 2002. 42(Special Issue III),114-128. Koenig BA, Greely H, Schacter DL, Winslade WJ, Mobley W. Brain Science and Social Policy. Cerebrum. 2002; 4(3):59-62. * Koenig BA, Back AL, Crawley LM Qualitative Methods in End of Life Research: Recommendations to Enhance the Protection of Human Subjects. Journal of Pain and Symptom Management, 2003. 25(4):S43 -S52. Koenig BA. Dead Donors and the “Shortage” of Human Organs: Are We Missing the Point? (Commentary) American Journal of Bioethics, 2003. 3(1):28-29. * Illes J, Fan E, Koenig BA, Raffin TA, Kann D, Atlas SW Self-referred, Whole Body Radiologic Screening: Current Status and Implications for Health Care Consumers, Radiology, 2003. 228:346-351. * Swan GE, Hudmon KS, Jack LM, Hemberger K, Carmelli D, Khroyan TV, Ring HZ, Hops H, Andrews JA, Tildesley E, McBride D, Benowitz N, Webster C, Wilhelmsen KC, Feiler HS, Koenig BA, Caron L, Illes J, Cheng LS. Environmental and Genetic Determinants of Tobacco Use: A Multidisciplinary, Longitudinal Family-based Design. Cancer Epidemiology Biomarkers & Prevention, 2003 12(10):994-1005. * Sankar P, Cho MK, Condit CM, Hunt LM, Koenig BA, Marshall P, Lee SSJ, Spicer P. Genetic Research and Health Disparities. Journal of the American Medical Association, 2004. 291(24):2985-2989. * Marshall, PA and Koenig, BA Accounting for Culture in a Globalized Bioethics. Journal of Law,


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Medicine, and Ethics, 2004. 32 (2):252-266 (special issue, “Looking Ahead in Bioethics,” edited by Jeffrey Kahn & Anna Mastroianni). * Illes J, Kann D, Karetsky K, Letourneau P, Raffin TA, Schraedley-Desmond P, Koenig BA, Atlas SW. Advertising, Patient Decision-making, and Self-referral to CT and MR Imaging. Archives of Internal Medicine, 2004; 164:2406-2408. * Pearlman RA, Hsu C, Starks H, Back AL, Gordon JR, Bharucha A, Koenig BA, Battin MP. Motivations for Physician-assisted Suicide: Patient and Family Voices. Journal of General Internal Medicine, 2005; 20(3): 234-39. * Caron L, Karkazis K, Swan G, Raffin TA, Koenig BA. Nicotine Addiction through a Neurogenomic Prism: Ethics, Public Health, and Smoking. Nicotine and Tobacco Research, 2005; 7(2): 181-197. Mueller PS, Koenig BA. Systematic Review of Ethics Consultation: A Route to Curriculum Development in Post-graduate Medical Education. American Journal of Bioethics 2006; 6(4):21-3. * Starks H, Back AL, Koenig BA, Pearlman RA, Hsu C, Gordon JR, Bharucha A. "Family Member Involvement in Hastened Death." Death Studies 2007; 31, 105-130. * Mueller PS, Montori VM, Bassler D, Koenig BA, Guyatt GH. Ethical Issues in Stopping Randomized Trials Early Because of Apparent Benefit. Annals of Internal Medicine, 2007;146:878-881. * Mrazek M, Koenig B, Skime M, Snyder K, Hook C, Black J 3rd, Mrazek D. Assessing attitudes about genetic testing as a component of continuing medical education. Academic Psychiatry 2007: 31:447-51. *Wolf, SM. Lawrenz, FP, Nelson, CA, Kahn, JP, Koenig, BA, et al. Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations, Journal of Law, Medicine and Ethics, 2008; 36:219-48. *Lee J, Soo-Jin S, Mountain J, Koenig BA, et al. The Ethics of Characterizing Difference: Guiding Principles on Using Racial Categories in Human Genetics. Genome Biology 2008: 9:404. *Griffin MD, Koenig BA, Schears RM. Introduction: Topics in Transplant Ethics. Transplantation Reviews, 2008, 22 (3): 151-153 (Co-editor, special issue on ethical dimensions of organ transplantation). *Tilburt JC, Mueller PS, Ottenberg AL, Poland GA, Koenig BA. Facing the Challenge of Influenza in Healthcare Settings: The Ethical Rationale for Mandatory Seasonal Influenza Vaccination and its Implications for Future Pandemics. Vaccine 2008; 26S: D27-D30. Book Chapters: Koenig BA. Ethical and Legal Issues in the AIDS Epidemic. In Nursing Care of the Person with AIDS/ARC. A. Lewis, editor. Rockville, MD: Aspen Publications, 1988: 287-305. Koenig BA. The Technological Imperative in Medical Practice: The Social Creation of a Routine Treatment. In Biomedicine Examined. M. Lock and D. Gordon, editors. Boston: Kluwer, 1988: 465-496. Muller JH, Koenig BA. On the Boundary of Life and Death: The Definition of Dying by Medical Residents. In Biomedicine Examined. M. Lock and D. Gordon, editors. Boston: Kluwer, 1988: 351-374. Koenig BA, Cooke M. Physician Response to a New, Lethal, and Presumably Infectious Disease: Medical Residents and the AIDS Epidemic in San Francisco. In The Meaning of AIDS: Implications for Medical Science, Clinical Practice, and Public Health Policy. E.T. Juengst and B.A. Koenig, editors. New York: Praeger, 1989: 72-85. Koenig BA. Cultural Diversity in Decision-Making About Care at the End of Life. In Summary of


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Committee Views and Workshop Examining the Feasibility of an Institute of Medicine Study of Dying, Decision-Making, and Appropriate Care. M.J. Fields, editor. Washington, DC: Institute of Medicine/Division of Health Care Services, 1994. Kayser-Jones J, Koenig BA. Ethical Issues. In Qualitative Methods in Aging Research. J.F. Gubrium and A. Sankar, editors. Thousand Oaks, CA: Sage Publications, 1994: 15-32. Marshall PA, Koenig BA. Bioethics in Anthropology: Perspectives on Culture, Medicine and Morality. In Medical Anthropology: Contemporary Theory and Method, revised edition. C.F. Sargent and T.M. Johnson, editors. Westport, CT: Praeger, 1996: 349-373. Koenig BA. Cultural Diversity in Decision-Making About Care at the End of Life. Approaching Death: Improving Care at the End of Life (Institute of Medicine). M.J. Field and C.K. Cassel, editors. Washington, DC: NAS, 1997: 363-382. http://darwin.nap.edu/html/approaching/appe.html Marshall PA, Koenig BA, Barnes DB, Davis, AJ. Multiculturalism, Bioethics, and End-of-Life Care: Case Narratives of Latino Cancer Patients. In Health Care Ethics: Issues for the 21st Century. D. Thomasma and J. Monagle, editors. Gaithersburg, Maryland: Aspen Publishers, 1998: 421-431. Kelly SE, Koenig BA. ‘Rescue’ Technologies Following High Dose Chemotherapy for Breast Cancer: How Social Context Shapes the Assessment of Innovative, Aggressive, and Potentially Life-Saving Medical Technologies. In Getting Doctors to Listen: Ethics and Outcomes Data in Context. P.J. Boyle, editor. The Hastings Center’s Studies in Ethics Series: Washington, DC: Georgetown University Press, 1998: 126-152. Marshall PA, Koenig BA, Grifhorst P, Van Ewijk M. Ethical Issues in Immigrant Health Care and Clinical Research. In Handbook on Immigrant Health. S. Loue, editor. New York, NY: Plenum Publishing, 1998: 203-226. Fishman JR, Wick JG, Koenig BA. The Use of “Sex” and “Gender” to Define and Characterize Meaningful Differences Between Men and Women. In An Agenda for Research on Women’s Health for the 21st Century: The Report of the Task Force, Volume 2, Office of Research on Women’s Health, Rockville, MD: 1999, 2-20. Koenig BA, Stockdale AS, The Promise of Molecular Medicine in Preventing Disease: Examining the Burden of Genetic Risk. In Health Promotion and Disease Prevention: Ethical and Social Dilemmas, D. Callahan, editor. Washington, DC: Georgetown University Press, 2000, 116-137. Marshall PA, Koenig BA. Ethnographic Methods. In Methods in Medical Ethics, J. Sugarman & D. P. Sulmasy, eds., Washington, DC: Georgetown University Press, 2001, 169-191. Crawley LM, Marshall PA, Koenig BA. Respecting Cultural Differences at the End of Life. In Physician’s Guide to End-of-Life Care. Snyder L., Quill T.E., (eds), for the ACP-ASIM End-of-Life Care Consensus Panel. Philadelphia: American College of Physicians, 2001, 35-55. Strassberg A, Koenig BA, Shafer A. Medicine and the Arts: Commentary on The River Styx Runs Upstream. In Ten Years of Medicine and the Arts: 100 Selections from Academic Medicine 1991-2001. L.R. Dittrich, editor. Washington, DC: Association of American Medical Colleges, 2001: 169. Shafazand S, Crawley LM, Raffin TA, Koenig BA. Withholding and Withdrawing Treatment: The Doctor-Patient Relationship and the Changing Goals of Care.” In Principles and Practice of Palliative Care and Supportive Oncology (2nd edition), A. M. Berger, R.K. Portenoy, T. Quill, eds. Philadelphia: Lippincott Williams & Wilkins, 2002, 880-890. Koenig BA, Davies E. Cultural Dimensions of Care At Life's End for Children and Their Families.


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Commissioned for the Institute of Medicine, When Children Die: Improving Palliative and End-of-Life Care for Children and their Families. M.J. Field, R.E. Behrman, eds. Washington, DC: National Academy of Sciences, 2003, 509-552, http://books.nap.edu/html/children_die/AppD.pdf Lee SSJ, Koenig BA. Racial Profiling of DNA Samples: Will it Affect Scientific Knowledge about Human Genetic Variation? In Populations and Genetics: Legal and Socio-Ethical Perspectives, B.M. Knoppers, ed. Leiden/Boston: Martinus Nijhoff, 2003, 231-244. Koenig BA, Beyond the Beginning: Bioethics, Health Policy, and the Human Genome Project. Conference Proceedings: Empirical Bioethics in Cultural Contexts: Genetic Confidentiality, Ownership, and Public Participation. Tokyo: The Japan Foundation/Sophia University, 2003. (Published in both English and Japanese) Marshall PA, Koenig BA. Anthropology of Bioethics. In Encyclopedia of Bioethics (3rd edition), S. Post, ed. New York: Macmillan, 2004, 215-222. Koenig BA, Marshall PA. Death: Cultural Perspectives. In Encyclopedia of Bioethics (3rd edition), S. Post, ed. New York: Macmillan, 2004, 546-558. Lee SSJ, Mountain J, Koenig BA. The Meanings of “Race” in the New Genomics: Implications for Health Disparities Research. IN The Social Medicine Reader Volume II: Health, Difference and Inequality. Henderson GE, Estroff SE, Churchill LR, King NMP, Oberlander J, and Strauss RP, eds. Duke University Press 2005. Dingel M, Koenig BA. Tracking Race in Addiction Research. In Revisiting Race in a Genomic Age, Koenig BA, Lee SSJ, Richardson S. (eds), Rutgers University Press; 172-197 (2008). Koenig, BA. Views on Policy--What Can Anthropology Contribute to the Terri Schiavo Debate? In Nancy Lamar and Bartholomew Dean, Anthropology Reader. Kendall/Hunt Publishing, (In Press). Gundle K, Dingel M, Koenig BA. Tobacco Industry Research on the Genetics of Nicotine Addiction. NCI Monograph (In Press 2008) Opinion/Editorial (lay audience): Koenig BA. Babies in Death and Life: Ethical Issues Linger in Loma Linda after Infant Dies (op/ed). San Jose Mercury News. Dec. 27, 1987. Koenig BA. Gene Tests: What You Know Can Hurt You (op/ed). New York Times. April 6, 1996 Koenig BA. Holding the Line: Testing for Mutations in the Breast Cancer Gene (op/ed). Stanford Report. June 12, 1996. Koenig BA, Tobin S. Should Cloning be Banned? (op/ed). San Francisco Chronicle. March 21, 1997. Koenig BA. When the Miracles Run Out: In America, Care for Dying Patients Fails to Measure Up (op/ed). San Jose Mercury News. Aug. 7, 2001. Koenig BA. DNA Birthday Obscures Rush (op/ed). Oakland Tribune. April 15, 2003. Koenig BA. [Proposition] 54’s Impact on Health (op/ed). Stanford Daily. October 7, 2003. Koenig BA. What Can Anthropology Contribute to the Terri Schiavo Debate? Anthropology News, May, 2005. Hicks AD, Henriksen-Hellyer JM, Koenig BA. Involving the Public in Planning for the Genomics Revolution: An Experiment in Deliberative Democracy, Bioethics Examiner, 2008, Volume 11, Issue 2.


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Letters: Uhlman WR...Koenig BA, et al. Planning the Genome Institute’s Future. Science 299:1515, 2003. Books: Juengst ET, Koenig BA. The Meaning of AIDS: Implications for Medical Science, Clinical Practice, and Public Health Policy. New York: Praeger Publications, 1989. Koenig BA, Lee SSJ, Richardson S. (eds) Revisiting Race in a Genomic Age. Studies in Medical Anthropology, Edited by Alan Harwood, Rutgers University Press (2008). Books in Progress: Marshall PA, Koenig BA. Anthropology and Bioethics. (under contract, Rutgers University Press). Koenig BA. Observing Death; Examining Bioethics. Manuscripts Submitted, Under Review or In Revision: Koenig BA, Taub K. Technologies to Forestall Sudden Cardiac Death: Ethical Consequences for Care Near the End of Life. (In Process for Milbank Memorial Fund Quarterly). Davidson B, Koenig BA. Speaking Around Death: Examining the Limits of "Good" Communication in End-of-Life Care. (In Process for Journal of Palliative Medicine). Abadie R, Heaney K, Koenig BA. “You could wipe out an entire culture”: Native American Perspectives on DNA Biobanking. (In Process for Social Science and Medicine). Yeh I, Koenig B. Cross-Cultural Issues at the End of Life. (In Process for UptoDate). McDaniel A, Dingel MJ, Robinson M, Koenig BA. Addicted to Nicotine: Assessing Lay Views. (In Process for Qualitative Health Research). Koenig BA, Dingel MJ, and members of the Genetics of Nicotine Addiction Advisory Board. “Tobacco Control Policy: Where does Genetics Fit?” (In Process for Nature Reviews Genetics). Koenig BA, “Genomic Biorepositories: Invited Health Policy Column”. (In Process for Hastings Center Report). Manolio TA….Koenig BA….Collins FS. Applying Genomic Technologies to Population Studies: Research Frontiers for the National Human Genome Research Institute. (Under review). Karkazis K, Dingel MJ, Sperber N, Koenig BA. Nicotine Addiction: A ”Disease of the Brain” (Submitted to Perspectives in Biology and Medicine). Orme NM, Fletcher JG, Pitot H, Koenig BA, et al. Incidental findings in Radiology Research: Are we Benefiting or Harming the Patient by Disclosing Incidental Research Findings? Journal of the American Medical Association (Submitted to JAMA).

barbara ann koenig address education cv october2008.pdf · 1998 individual residency, rockefeller...

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