europso patient survey
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EUROPSO patient survey
First top-line results
September 19th 2002
Survey Demographics
Survey response rate
Country Mailed Replies Response rate (%)
Belgium 2000 864 43,2
Czech Rep 1000 437 43,7
Finland 14000 5594 40
France 7500 2551 34
Germany 9000 3753 41,7
Italy 11000 2605 23,7
Netherlands 6000 2582 43
Total 50500 18386 36,4%
1.7
7
17.821.5
25.2
17.7
8.4
0
10
20
30
40
10--19 20--30 31--40 41--50 51--60 61--70 70+
Age ranges
Per
cen
tag
e re
spo
nse
(%
)Response rate by age group
Vlaanderen
56
44
0
20
40
60
80
100
Male Female
Per
cen
tag
e re
spo
nse
(%
)Race and gender
99% caucasian
Vlaanderen
2
13
26
1317
84
2
0
10
20
30
40
31-50 51-60 61-70 71-80 81-90 91-100 101-120
121+
Weight (kg)
Per
cen
tag
e re
spo
nse
(%
)Weight of respondents
Vlaanderen
Psoriasis
97
3
0
20
40
60
80
100
Yes No
Per
cen
tag
e re
spo
nse
(%
)Respondents with psoriasis
556 respondents had psoriasis
Vlaanderen
10
33
25
1310
52 1
0
10
20
30
40
0--9 10--19 20--30 31--40 41--50 51--60 61--70 70+
Leeftijd
Per
cen
tag
e re
spo
ns
(%)
Leeftijd van Diagnose
Op welke leeftijd werd voor de eerste maal psoriasis waargenomen?
Gemiddelde leeftijd Europa 30.5 jaren (n=17990)
15
2825
1512
41 0
0
10
20
30
40
0--9 10--19 20--30 31--40 41--50 51--60 61--70 70+
Aantal jaren met psoriasis
Per
cen
tag
e re
spo
ns
(%)
Duur van Psoriasis
Hoeveel jaren duurt de psoriasis op dit moment?
90
11 10 11 6 5
0
20
40
60
80
100
Plaque
Gut
tate
Inve
rse
Local
ised
pust
ular
Eryth
roder
mic
Gen
eral
ised
pust
ularP
erce
nta
ge
resp
on
se (
%)
Type of psoriasis
cf: US study,Krueger et al 2001: 88% psoriasis vulgarisVlaanderen
95
77
64
24
1220 18
6
0
20
40
60
80
100
Scalin
g
Itchin
g
Eryth
ema
Fatig
ue
Swel
ling
Burnin
g
Bleed
ing
Oth
er
Per
cen
tag
e re
spo
nse
(%
)Psoriasis symptoms
cf: US study,Krueger et al 2001: 94% scaling, 79% itching, erythema 71%, burning 21%, bleeding 29%, fatigue 19% Vlaanderen
8176
6658
5343 43 45
3932
1928
23 2317
0
20
40
60
80
100
Scalp
Elbow
sLeg
s
Knees
Arms
Nails
Back
Lower
bac
k
Torso
Hands
Feet
Face
Anal a
rea
Gen
itals
Arm p
its
Per
cen
tag
e re
spo
nse
(%
)Sites affected
Vlaanderen
9
34
41
14
0
10
20
30
40
50
60
<1% Mild (1-2%) Moderate (3-10%)
Severe (>10%)
Per
cen
tag
e re
spo
nse
(%
)Severity
Body surface covered
cf: US study,Krueger et al 2001: 39% severeVlaanderen
6 7 83 1 1 1 1 4
71
0
20
40
60
80
Depre
ssio
n
Obe
sity
CVD
Diabet
es
Shingle
s
Uveiti
s
Fibro
mya
lgia
Crohn's
Oth
er a
utoim
mune
None
Per
cen
tag
e re
spo
nse
(%
)Co-morbidities
Have you been diagnosed with any of the following?
Most co-morbidities appear age-related: obesity, diabetes, CVD.Those not obviously appearing to be age-related are autoimmune, Crohn’s, lupus Vlaanderen
917 14
1 3 3 1 3
62
0
20
40
60
80
Depre
ssio
n
Obesi
tyCVD
Diabet
es
Shingle
s
Fibro
mya
lgia
Crohn's
Other
auto
imm
une
None
Per
cen
tag
e re
spo
nse
(%
)Co-morbidities
Severe Patients
Vlaanderen
Psoriatic arthritis
4652
0
20
40
60
80
100
Yes No
Per
cen
tag
e re
spo
nse
(%
)Joint pain/stiffness
Have you developed persistent joint pain or stiffness lasting more than 3 months?
Vlaanderen
5949 46 46
33
0
20
40
60
80
100K
nee
s,sh
ou
lder
s o
rh
ips
Join
ts o
ffi
ng
ers
Join
ts o
fw
rist
s/el
bo
ws/
ankl
es
Nec
k o
r b
ack
Join
ts o
f to
es
Per
cen
tag
e re
spo
nse
(%
)Joint pain/stiffness
If yes, where?
Vlaanderen
29
66
4
0
20
40
60
80
100
Yes No No answer
Per
cen
tag
e re
spo
nse
(%
)Psoriatic arthritis
Have you been diagnosed with psoriatic arthritis by a physician?
cf: US study,Krueger et al 2001: 31% diagnosed with PsAVlaanderen
Impact of psoriasis
5.3
1.2 1.32.6
0.40369
121518
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
t
Mea
n P
DI
sco
rePsoriasis Disability Index (PDI)
Total mean PDI = 10.8 (max score 48)
Vlaanderen
10,814,3
11,1 12,8
18,4
8,811,4
0
6
12
18
24
30
36
42
48
B Cz Fi D I NL F
Mea
n P
DI
sco
rePDI per country:Mean PDI score
Max score = 48
5.79.9
11.8 11.6 10.4 11.9
7.1
0
6
12
18
24
30
36
42
48
16--19 20--30 31--40 41--50 51--60 61--70 70+
Mea
n P
DI
sco
rePDI per age group:
Mean PDI scoreMax score = 48
Vlaanderen
4,5
1,1 1 1,90,4
0369
121518
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
t
Mea
n P
DI
sco
re
Total mean PDI = 8.9
Psoriasis Disability Index (PDI):Mild psoriasis
PDI max score per category = 18 + 9 + 6 + 12 + 3
24,8
11,817,2 15,5 12,7
010203040506070
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
tPer
ecen
tag
e P
DI
sco
re
Overall PDI % score in mild psoriasis = 18.5%
Psoriasis Disability Index (PDI):Mild psoriasis
6,6
1,9 1,63,2
0,70369
121518
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
t
Mea
n P
DI
sco
re
Total mean PDI = 14
Psoriasis Disability Index (PDI):Moderate psoriasis
PDI max score per category = 18 + 9 + 6 + 12 + 3
36,9
2126,8 26,8 23,7
010203040506070
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
tPer
ecen
tag
e P
DI
sco
rePsoriasis Disability Index (PDI):
Moderate psoriasisOverall PDI % score in moderate psoriasis = 29.2%
9,4
3,1 2,35,1
1,1
0369
121518
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
t
Mea
n P
DI
sco
re
Total mean PDI = 21
Psoriasis Disability Index (PDI):Severe psoriasis
PDI max score per category = 18 + 9 + 6 + 12 + 3
52,3
34,4 38 42,335,3
010203040506070
Daily
act
iviti
es
Wor
k/sc
hool act
iviti
es
Perso
nal r
elat
ionsh
ips
Leisu
re
Treat
men
tPer
ecen
tag
e P
DI
sco
rePsoriasis Disability Index (PDI):
Severe psoriasisOverall PDI % score in severe psoriasis = 43.8%
Impact of psoriasis
PDI – individual questions
126
13
24
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)How much have you neglected your home’s outdoor and indoor work due to your psoriasis?Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
41
25
50
71
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis affected your choice of clothes (e.g. colour or type)? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
22
10
27
53
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Have you had to change or wash your clothes more often due to psoriasis? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
1310
1610
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis caused you problems at the hairdressers or barbers? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
26
19
32
43
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis resulted in you having to take more baths than usual? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
52
5
15
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)How much has your psoriasis made you take time off work or school or from carrying on your daily activities? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
17
6
21
37
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)How much has your psoriasis prevented you from doing things at work or school or altered the way you carry out your daily activities? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
41
4
14
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)
Has your career been affected by your psoriasis? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
19
8
24
36
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)
Has your psoriasis resulted in sexual difficulties? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
105
12
21
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis created problems with your partners or any of your close friends or relatives? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
20
12
23
41
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis stopped you from going out socially or to any special events? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
38
26
48
61
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis had a negative effect on exercising or going in for sports events, competing? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
41
410
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Have you been unable to use or stopped from using the gym, locker room, swimming pool or dressing room in a store due to your psoriasis Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
106
1319
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)Has your psoriasis resulted in you smoking or drinking alcohol more than you would do normally? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
83
11
20
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)To what extent has your psoriasis or its treatment made your home messy or untidy? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
34
16
29
43
0
10
20
30
40
50
60
70
Overall Mild Moderate Severe
Per
ecen
tag
e re
spo
nse
(%
)How much did any physical discomfort due to psoriasis cause you to lose sleep or sleep badly? Percentage responding “Very much/A lot”
PDI Individual questions
Vlaanderen
Overall impact (scale 1 to 10)
8
11
15
1211
910 10
3
6
0
5
10
15
20
25
1 2 3 4 5 6 7 8 9 10
Per
cen
tag
e re
spo
nse
(%
)Overall impact
How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
Mean score = 4.86 Vlaanderen
11
1920
13
10
75
6
1
4
0
5
10
15
20
25
1 2 3 4 5 6 7 8 9 10
Per
cen
tag
e re
spo
nse
(%
)Overall impact:
Mild psoriasisHow much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
Mean score = 3.99 Vlaanderen
67
1213 13
9
14
11
45
0
5
10
15
20
25
1 2 3 4 5 6 7 8 9 10
Per
cen
tag
e re
spo
nse
(%
)Overall impact:
Moderate psoriasisHow much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
Mean score = 5.31 Vlaanderen
31
6 6
10
17
10
19
4
17
0
5
10
15
20
25
1 2 3 4 5 6 7 8 9 10
Per
cen
tag
e re
spo
nse
(%
)Overall impact:Severe psoriasis
How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
Mean score = 6.71 Vlaanderen
29
43
24
0
10
20
30
40
50
60
70
Not too much (1-3) A problem (4-7) Significant problem(8-10)
Per
cen
tag
e re
spo
nse
(%
)Overall impact
How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?
41 40
1521
53
23
10
36
51
0
10
20
30
40
50
60
70
Niet veel (1-3) Een probleem (4-7) Significant probleem(8-10)
Per
cen
tag
e re
spo
ns
(%)
Milde PSO Matige PSO Ernstige PSO
Impact van PsoriasisHoeveel vormt psoriasis/psoriatic arthritis een probleem op een schaal van 1 tot 10 (1=geen problem, 10=zeer groot problem)?
Psoriasis treatment
70
99
16
33
56
76
53
0
20
40
60
80
100C
on
sult
edG
P
Co
nsu
lted
Der
m
Co
nsu
lted
Rh
eum
Inte
rnet
Info
rmat
ion
fro
m o
rgs
Rea
d i
nfo
in
bo
oks
/mag
s
Sp
oke
n w
ith
frie
nd
s,fa
mil
y,
Per
cen
tag
e re
spo
nse
(%
)Action as a result of psoriasis
Which of the following have you done concerning your psoriasis/psoriatic arthritis?
Vlaanderen
10
37
32
13
4 5
0
10
20
30
40
50
None 1 2 3 4 5+
Per
cen
tag
e re
spo
nse
(%
)Consultations
How many doctors have you seen about your psoriasis/psoriatic arthritis in the last 2 years?
Mean score = 1.8 Vlaanderen
35
53
5 8
22
0
20
40
60
80
100
GP
Derm
atol
ogist
Rheum
atol
ogist
Oth
er
No-one
Per
cen
tag
e re
spo
nse
(%
)Current healthcare professional
Who are you currently seeing for your psoriasis/psoriatic arthritis?
Vlaanderen
32
18
3341
0
20
40
60
80
100
GP
Derm
atol
ogist
Rheum
atol
ogist
No-one
??
Per
cen
tag
e re
spo
nse
(%
)Current healthcare professional:
Psoriatic arthritisWho are you currently seeing for your psoriatic arthritis?
Vlaanderen
4451
73
1626
81
0
20
40
60
80
100
Inte
rnet
Family
doc
tor
Derm
atol
ogist
Rheum
atol
ogist
Libra
ry
Org
new
slet
ter
Per
cen
tag
e re
spo
nse
(%
)Information sources:
psoriasisWhere would you prefer to get information on your condition?
Vlaanderen
11 14 1119
7
74
0
20
40
60
80
100
Inte
rnet
Family
doc
tor
Derm
atol
ogist
Rheum
atol
ogist
Libra
ry
Org
new
slet
ter
Per
cen
tag
e re
spo
nse
(%
)Information sources:
Psoriatic arthritisWhere would you prefer to get information on your condition?
Vlaanderen
Psoriasis Treatments
93 91 89
70
85 88
66
2733
50
10 10
0
20
40
60
80
100
Alternativetherapy
Prescriptiontreatment
Phototherapy Climato
Per
cen
tag
e re
spo
nse
(%
)
Heard of Tried Using
Psoriasis treatments
Vlaanderen
30
1322
13
28
4252
61
0
20
40
60
80
100
OTC
Acupunc
ture
Dieta
ry
Relax
atio
n
Herbs
Baths
Tanni
ng bed
Sunlig
ht
Per
cen
tag
e re
spo
nse
(%
)Psoriasis treatment: Ever tried
Alternative therapies
Vlaanderen
58
3
24
10
20
40
60
80
100
PUVA Re-PUVA UVB Re-UVB
Per
cen
tag
e re
spo
nse
(%
)Psoriasis treatment: Ever tried
Photo therapies: all patients
Vlaanderen
6863
39
189 9 9
4 2 2 5 10
20
40
60
80
Calci
potrien
e
Topic
al s
tero
ids
Coal ta
r
Acitre
tin
Fumar
ates
MTX
CsAG
old
Antimal
aria
ls
Sulfasa
lazin
e
Etretin
ate
Infli
xim
ab
Per
cen
tag
e re
spo
nse
(%
)Psoriasis treatment: Ever triedPrescription medicines: all patients
Vlaanderen
7 5 3
17
0
20
40
60
80
Dead S
ea
Balneo
phototh
erap
y
Balneo
-PUVA
other
sPer
cen
tag
e re
spo
nse
(%
)Psoriasis treatment: Ever tried
Others: all patients
Vlaanderen
Psoriasis Treatment:
Satisfaction:
45
63
50
3331
2529
36
17
6
17
22
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Acitretin: satisfaction
(n = 98 ) Vlaanderen
1519
32
27
49
55
44 44
21 21 21 22
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Calcipotriene: satisfaction
(n = 374) Vlaanderen
37 3640
24
4947 47
63
9 9 9 10
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Coal tar: satisfaction
(n = 216) Vlaanderen
34
13
47
35
24
38
16
25
3638 37
35
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Ciclosporine: satisfaction
(n = 50) Vlaanderen
35
27
46
40
22
36
21 20
3336
21
30
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Fumarates: satisfaction
(n = 51) Vlaanderen
64 71 69
14
29
8
3 2
100
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Gold: satisfaction
(n = 22) Vlaanderen
3538
30
50
35
23
30
42
29
3840
8
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Methotrexate: satisfaction
(n = 49) Vlaanderen
2022
2024
53
48
5559
22 23 22
14
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
Topical steroids: satisfaction
(n = 351) Vlaanderen
1719
12
2324
29
3840
4648 48
33
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
PUVA: satisfaction
(n = 324) Vlaanderen
15
6
15
20
47
39
5153
32
42
30
23
0
10
20
30
40
50
60
Overall Mild Moderate Severe
Pe
rce
nta
ge
re
sp
on
se
(%
)
Low Moderate High
UVB: satisfaction
(n = 131) Vlaanderen
Psoriasis Treatment:
Patient satisfaction
12
40 43
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied are you with how your doctor listens to your needs and concerns?
(n=529) Vlaanderen
18
4233
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied are you with the information your doctor gives you on the disease?
(n=522) Vlaanderen
9
36
47
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied are you with your doctor overall?
(n=516) Vlaanderen
18
51
23
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied have you been concerning the treatment for your psoriasis?
(n=507) Vlaanderen
15
49
25
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: mild
How satisfied have you been concerning the treatment for your psoriasis?
(n=191) Vlaanderen
20
54
21
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: moderate
How satisfied have you been concerning the treatment for your psoriasis?
(n=228) Vlaanderen
23
53
17
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: severe
How satisfied have you been concerning the treatment for your psoriasis?
(n=78) Vlaanderen
29
46
25
0
20
40
60
80
100
Low Moderate High
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
How satisfied have you been concerning the treatment for your psoriatic arthritis?
(n=157) Vlaanderen
28 2719 16
0
20
40
60
80
100
Timeconsuming
Ineffective Side effects Expensive
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction
What bothers you most about psoriasis treatment?
(n=497) Vlaanderen
3223
18 14
0
20
40
60
80
100
Timeconsuming
Ineffective Side effects Expensive
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: mild
What bothers you most about psoriasis treatment?
(n=167) Vlaanderen
30 29
14 17
0
20
40
60
80
100
Timeconsuming
Ineffective Side effects Expensive
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: moderate
What bothers you most about psoriasis treatment?
(n=207) Vlaanderen
15
32 28
17
0
20
40
60
80
100
Timeconsuming
Ineffective Side effects Expensive
Per
cen
tag
e re
spo
nse
(%
)Patient satisfaction: severe
What bothers you most about psoriasis treatment?
(n=72) Vlaanderen
Patient Associations
12
40
18
611 14
0
20
40
60
80
Doctor
Med
ia
Friends
/rela
tives
Inte
rnet
Oth
er
Don't re
mem
ber
Per
cen
tag
e re
spo
nse
(%
)Patient associations
How did you become aware of your patient association?
(n=572) Vlaanderen
13
27
40
23
15
24
14
0
10
20
30
40
50
60
B Cz Fi D I NL F
Per
cen
tag
e re
spo
nse
(%
)
How did you become aware of your patient association?
Doctor
43
14 15
3025 23
34
0
10
20
30
40
50
60
B Cz Fi D I NL F
Per
cen
tag
e re
spo
nse
(%
)
How did you become aware of your patient association?
Media
18
32
22
15
24
13 12
0
10
20
30
40
50
60
B Cz Fi D I NL F
Per
cen
tag
e re
spo
nse
(%
)
How did you become aware of your patient association?
Friends/relatives
52 2 3
23
7 7
0
10
20
30
40
50
60
B Cz Fi D I NL F
Per
cen
tag
e re
spo
nse
(%
)
How did you become aware of your patient association?
Internet
59
14 12 11
0
20
40
60
80
Educate andoffer programs
Provide apolitical voice
Raise moneyfor research
Educate thegeneral public
Per
cen
tag
e re
spo
nse
(%
)Patient associations
Which of the following is most important?
(n=551) Vlaanderen
43 44
4 1
9
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)How important are the following services?
Newsletters
(n=572) Vlaanderen
18
33
115
32
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Website
(n=572)
How important are the following services?
Vlaanderen
19
41
18
4
19
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Local/regional meetings
(n=572)
How important are the following services?
Vlaanderen
38
46
71
9
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Booklets
(n=572)
How important are the following services?
Vlaanderen
27
35
15
4
19
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Support groups
(n=572)
How important are the following services?
Vlaanderen
34 36
93
19
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Support of psoriasis research towards a cure
(n=572)
How important are the following services?
Vlaanderen
76
15
18
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Availability of national staff to assist with issues
(n=572)
How important are the following services?
Vlaanderen
67
20
2 1
11
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Advocacy with govt, health authorities, insurance co, pharmaceutical industry
(n=572)
How important are the following services?
Vlaanderen
50
33
81
8
0
20
40
60
80
Very Somewhat Not toomuch
Not at all Don't know
Per
cen
tag
e re
spo
nse
(%
)
Increasing general public awareness of the disease
(n=572)
How important are the following services?
Vlaanderen
3826 30
9
2416
0
20
40
60
80E
du
cati
on
alp
rog
ram
s ab
ou
tp
sori
asis
Pu
bli
caw
aren
ess
acti
viti
es
Reg
ion
al s
elf-
hel
p g
rou
ps
Fu
nd
-rai
sin
gev
ents
Tel
eph
on
eco
nta
cts
wit
ho
ther
su
ffer
ers
Tel
eco
nfe
ren
cesPer
cen
tag
e re
spo
nse
(%
)Patient associations
If offered, which of the following would you be most likely to participate in or attend?
(n=424)
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