EUROPSO patient survey

First top-line results

September 19th 2002

Survey Demographics

Survey response rate

Country Mailed Replies Response rate (%)

Belgium 2000 864 43,2

Czech Rep 1000 437 43,7

Finland 14000 5594 40

France 7500 2551 34

Germany 9000 3753 41,7

Italy 11000 2605 23,7

Netherlands 6000 2582 43

Total 50500 18386 36,4%

1.7

7

17.821.5

25.2

17.7

8.4

0

10

20

30

40

10--19 20--30 31--40 41--50 51--60 61--70 70+

Age ranges

Per

cen

tag

e re

spo

nse

(%

)Response rate by age group

Vlaanderen

56

44

0

20

40

60

80

100

Male Female

Per

cen

tag

e re

spo

nse

(%

)Race and gender

99% caucasian

Vlaanderen

2

13

26

1317

84

2

0

10

20

30

40

31-50 51-60 61-70 71-80 81-90 91-100 101-120

121+

Weight (kg)

Per

cen

tag

e re

spo

nse

(%

)Weight of respondents

Vlaanderen

Psoriasis

97

3

0

20

40

60

80

100

Yes No

Per

cen

tag

e re

spo

nse

(%

)Respondents with psoriasis

556 respondents had psoriasis

Vlaanderen

10

33

25

1310

52 1

0

10

20

30

40

0--9 10--19 20--30 31--40 41--50 51--60 61--70 70+

Leeftijd

Per

cen

tag

e re

spo

ns

(%)

Leeftijd van Diagnose

Op welke leeftijd werd voor de eerste maal psoriasis waargenomen?

Gemiddelde leeftijd Europa 30.5 jaren (n=17990)

15

2825

1512

41 0

0

10

20

30

40

0--9 10--19 20--30 31--40 41--50 51--60 61--70 70+

Aantal jaren met psoriasis

Per

cen

tag

e re

spo

ns

(%)

Duur van Psoriasis

Hoeveel jaren duurt de psoriasis op dit moment?

90

11 10 11 6 5

0

20

40

60

80

100

Plaque

Gut

tate

Inve

rse

Local

ised

pust

ular

Eryth

roder

mic

Gen

eral

ised

pust

ularP

erce

nta

ge

resp

on

se (

%)

Type of psoriasis

cf: US study,Krueger et al 2001: 88% psoriasis vulgarisVlaanderen

95

77

64

24

1220 18

6

0

20

40

60

80

100

Scalin

g

Itchin

g

Eryth

ema

Fatig

ue

Swel

ling

Burnin

g

Bleed

ing

Oth

er

Per

cen

tag

e re

spo

nse

(%

)Psoriasis symptoms

cf: US study,Krueger et al 2001: 94% scaling, 79% itching, erythema 71%, burning 21%, bleeding 29%, fatigue 19% Vlaanderen

8176

6658

5343 43 45

3932

1928

23 2317

0

20

40

60

80

100

Scalp

Elbow

sLeg

s

Knees

Arms

Nails

Back

Lower

bac

k

Torso

Hands

Feet

Face

Anal a

rea

Gen

itals

Arm p

its

Per

cen

tag

e re

spo

nse

(%

)Sites affected

Vlaanderen

9

34

41

14

0

10

20

30

40

50

60

<1% Mild (1-2%) Moderate (3-10%)

Severe (>10%)

Per

cen

tag

e re

spo

nse

(%

)Severity

Body surface covered

cf: US study,Krueger et al 2001: 39% severeVlaanderen

6 7 83 1 1 1 1 4

71

0

20

40

60

80

Depre

ssio

n

Obe

sity

CVD

Diabet

es

Shingle

s

Uveiti

s

Fibro

mya

lgia

Crohn's

Oth

er a

utoim

mune

None

Per

cen

tag

e re

spo

nse

(%

)Co-morbidities

Have you been diagnosed with any of the following?

Most co-morbidities appear age-related: obesity, diabetes, CVD.Those not obviously appearing to be age-related are autoimmune, Crohn’s, lupus Vlaanderen

917 14

1 3 3 1 3

62

0

20

40

60

80

Depre

ssio

n

Obesi

tyCVD

Diabet

es

Shingle

s

Fibro

mya

lgia

Crohn's

Other

auto

imm

une

None

Per

cen

tag

e re

spo

nse

(%

)Co-morbidities

Severe Patients

Vlaanderen

Psoriatic arthritis

4652

0

20

40

60

80

100

Yes No

Per

cen

tag

e re

spo

nse

(%

)Joint pain/stiffness

Have you developed persistent joint pain or stiffness lasting more than 3 months?

Vlaanderen

5949 46 46

33

0

20

40

60

80

100K

nee

s,sh

ou

lder

s o

rh

ips

Join

ts o

ffi

ng

ers

Join

ts o

fw

rist

s/el

bo

ws/

ankl

es

Nec

k o

r b

ack

Join

ts o

f to

es

Per

cen

tag

e re

spo

nse

(%

)Joint pain/stiffness

If yes, where?

Vlaanderen

29

66

4

0

20

40

60

80

100

Yes No No answer

Per

cen

tag

e re

spo

nse

(%

)Psoriatic arthritis

Have you been diagnosed with psoriatic arthritis by a physician?

cf: US study,Krueger et al 2001: 31% diagnosed with PsAVlaanderen

Impact of psoriasis

5.3

1.2 1.32.6

0.40369

121518

Daily

act

iviti

es

Wor

k/sc

hool act

iviti

es

Perso

nal r

elat

ionsh

ips

Leisu

re

Treat

men

t

Mea

n P

DI

sco

rePsoriasis Disability Index (PDI)

Total mean PDI = 10.8 (max score 48)

Vlaanderen

10,814,3

11,1 12,8

18,4

8,811,4

0

6

12

18

24

30

36

42

48

B Cz Fi D I NL F

Mea

n P

DI

sco

rePDI per country:Mean PDI score

Max score = 48

5.79.9

11.8 11.6 10.4 11.9

7.1

0

6

12

18

24

30

36

42

48

16--19 20--30 31--40 41--50 51--60 61--70 70+

Mea

n P

DI

sco

rePDI per age group:

Mean PDI scoreMax score = 48

Vlaanderen

4,5

1,1 1 1,90,4

0369

121518

Daily

act

iviti

es

Wor

k/sc

hool act

iviti

es

Perso

nal r

elat

ionsh

ips

Leisu

re

Treat

men

t

Mea

n P

DI

sco

re

Total mean PDI = 8.9

Psoriasis Disability Index (PDI):Mild psoriasis

PDI max score per category = 18 + 9 + 6 + 12 + 3

24,8

11,817,2 15,5 12,7

010203040506070

Daily

act

iviti

es

Wor

k/sc

hool act

iviti

es

Perso

nal r

elat

ionsh

ips

Leisu

re

Treat

men

tPer

ecen

tag

e P

DI

sco

re

Overall PDI % score in mild psoriasis = 18.5%

Psoriasis Disability Index (PDI):Mild psoriasis

6,6

1,9 1,63,2

0,70369

121518

Daily

act

iviti

es

Wor

k/sc

hool act

iviti

es

Perso

nal r

elat

ionsh

ips

Leisu

re

Treat

men

t

Mea

n P

DI

sco

re

Total mean PDI = 14

Psoriasis Disability Index (PDI):Moderate psoriasis

PDI max score per category = 18 + 9 + 6 + 12 + 3

36,9

2126,8 26,8 23,7

010203040506070

Daily

act

iviti

es

Wor

k/sc

hool act

iviti

es

Perso

nal r

elat

ionsh

ips

Leisu

re

Treat

men

tPer

ecen

tag

e P

DI

sco

rePsoriasis Disability Index (PDI):

Moderate psoriasisOverall PDI % score in moderate psoriasis = 29.2%

9,4

3,1 2,35,1

1,1

0369

121518

Daily

act

iviti

es

Wor

k/sc

hool act

iviti

es

Perso

nal r

elat

ionsh

ips

Leisu

re

Treat

men

t

Mea

n P

DI

sco

re

Total mean PDI = 21

Psoriasis Disability Index (PDI):Severe psoriasis

PDI max score per category = 18 + 9 + 6 + 12 + 3

52,3

34,4 38 42,335,3

010203040506070

Daily

act

iviti

es

Wor

k/sc

hool act

iviti

es

Perso

nal r

elat

ionsh

ips

Leisu

re

Treat

men

tPer

ecen

tag

e P

DI

sco

rePsoriasis Disability Index (PDI):

Severe psoriasisOverall PDI % score in severe psoriasis = 43.8%

Impact of psoriasis

PDI – individual questions

126

13

24

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)How much have you neglected your home’s outdoor and indoor work due to your psoriasis?Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

41

25

50

71

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)Has your psoriasis affected your choice of clothes (e.g. colour or type)? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

22

10

27

53

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)Have you had to change or wash your clothes more often due to psoriasis? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

1310

1610

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)Has your psoriasis caused you problems at the hairdressers or barbers? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

26

19

32

43

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)Has your psoriasis resulted in you having to take more baths than usual? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

52

5

15

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)How much has your psoriasis made you take time off work or school or from carrying on your daily activities? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

17

6

21

37

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)How much has your psoriasis prevented you from doing things at work or school or altered the way you carry out your daily activities? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

41

4

14

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)

Has your career been affected by your psoriasis? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

19

8

24

36

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)

Has your psoriasis resulted in sexual difficulties? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

105

12

21

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)Has your psoriasis created problems with your partners or any of your close friends or relatives? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

20

12

23

41

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)Has your psoriasis stopped you from going out socially or to any special events? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

38

26

48

61

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)Has your psoriasis had a negative effect on exercising or going in for sports events, competing? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

41

410

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)Have you been unable to use or stopped from using the gym, locker room, swimming pool or dressing room in a store due to your psoriasis Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

106

1319

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)Has your psoriasis resulted in you smoking or drinking alcohol more than you would do normally? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

83

11

20

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)To what extent has your psoriasis or its treatment made your home messy or untidy? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

34

16

29

43

0

10

20

30

40

50

60

70

Overall Mild Moderate Severe

Per

ecen

tag

e re

spo

nse

(%

)How much did any physical discomfort due to psoriasis cause you to lose sleep or sleep badly? Percentage responding “Very much/A lot”

PDI Individual questions

Vlaanderen

Overall impact (scale 1 to 10)

8

11

15

1211

910 10

3

6

0

5

10

15

20

25

1 2 3 4 5 6 7 8 9 10

Per

cen

tag

e re

spo

nse

(%

)Overall impact

How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?

Mean score = 4.86 Vlaanderen

11

1920

13

10

75

6

1

4

0

5

10

15

20

25

1 2 3 4 5 6 7 8 9 10

Per

cen

tag

e re

spo

nse

(%

)Overall impact:

Mild psoriasisHow much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?

Mean score = 3.99 Vlaanderen

67

1213 13

9

14

11

45

0

5

10

15

20

25

1 2 3 4 5 6 7 8 9 10

Per

cen

tag

e re

spo

nse

(%

)Overall impact:

Moderate psoriasisHow much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?

Mean score = 5.31 Vlaanderen

31

6 6

10

17

10

19

4

17

0

5

10

15

20

25

1 2 3 4 5 6 7 8 9 10

Per

cen

tag

e re

spo

nse

(%

)Overall impact:Severe psoriasis

How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?

Mean score = 6.71 Vlaanderen

29

43

24

0

10

20

30

40

50

60

70

Not too much (1-3) A problem (4-7) Significant problem(8-10)

Per

cen

tag

e re

spo

nse

(%

)Overall impact

How much of a problem is your psoriasis/psoriatic arthritis on a scale of 1 to 10 (1=no problem, 10=large problem)?

41 40

1521

53

23

10

36

51

0

10

20

30

40

50

60

70

Niet veel (1-3) Een probleem (4-7) Significant probleem(8-10)

Per

cen

tag

e re

spo

ns

(%)

Milde PSO Matige PSO Ernstige PSO

Impact van PsoriasisHoeveel vormt psoriasis/psoriatic arthritis een probleem op een schaal van 1 tot 10 (1=geen problem, 10=zeer groot problem)?

Psoriasis treatment

70

99

16

33

56

76

53

0

20

40

60

80

100C

on

sult

edG

P

Co

nsu

lted

Der

m

Co

nsu

lted

Rh

eum

Inte

rnet

Info

rmat

ion

fro

m o

rgs

Rea

d i

nfo

in

bo

oks

/mag

s

Sp

oke

n w

ith

frie

nd

s,fa

mil

y,

Per

cen

tag

e re

spo

nse

(%

)Action as a result of psoriasis

Which of the following have you done concerning your psoriasis/psoriatic arthritis?

Vlaanderen

10

37

32

13

4 5

0

10

20

30

40

50

None 1 2 3 4 5+

Per

cen

tag

e re

spo

nse

(%

)Consultations

How many doctors have you seen about your psoriasis/psoriatic arthritis in the last 2 years?

Mean score = 1.8 Vlaanderen

35

53

5 8

22

0

20

40

60

80

100

GP

Derm

atol

ogist

Rheum

atol

ogist

Oth

er

No-one

Per

cen

tag

e re

spo

nse

(%

)Current healthcare professional

Who are you currently seeing for your psoriasis/psoriatic arthritis?

Vlaanderen

32

18

3341

0

20

40

60

80

100

GP

Derm

atol

ogist

Rheum

atol

ogist

No-one

??

Per

cen

tag

e re

spo

nse

(%

)Current healthcare professional:

Psoriatic arthritisWho are you currently seeing for your psoriatic arthritis?

Vlaanderen

4451

73

1626

81

0

20

40

60

80

100

Inte

rnet

Family

doc

tor

Derm

atol

ogist

Rheum

atol

ogist

Libra

ry

Org

new

slet

ter

Per

cen

tag

e re

spo

nse

(%

)Information sources:

psoriasisWhere would you prefer to get information on your condition?

Vlaanderen

11 14 1119

7

74

0

20

40

60

80

100

Inte

rnet

Family

doc

tor

Derm

atol

ogist

Rheum

atol

ogist

Libra

ry

Org

new

slet

ter

Per

cen

tag

e re

spo

nse

(%

)Information sources:

Psoriatic arthritisWhere would you prefer to get information on your condition?

Vlaanderen

Psoriasis Treatments

93 91 89

70

85 88

66

2733

50

10 10

0

20

40

60

80

100

Alternativetherapy

Prescriptiontreatment

Phototherapy Climato

Per

cen

tag

e re

spo

nse

(%

)

Heard of Tried Using

Psoriasis treatments

Vlaanderen

30

1322

13

28

4252

61

0

20

40

60

80

100

OTC

Acupunc

ture

Dieta

ry

Relax

atio

n

Herbs

Baths

Tanni

ng bed

Sunlig

ht

Per

cen

tag

e re

spo

nse

(%

)Psoriasis treatment: Ever tried

Alternative therapies

Vlaanderen

58

3

24

10

20

40

60

80

100

PUVA Re-PUVA UVB Re-UVB

Per

cen

tag

e re

spo

nse

(%

)Psoriasis treatment: Ever tried

Photo therapies: all patients

Vlaanderen

6863

39

189 9 9

4 2 2 5 10

20

40

60

80

Calci

potrien

e

Topic

al s

tero

ids

Coal ta

r

Acitre

tin

Fumar

ates

MTX

CsAG

old

Antimal

aria

ls

Sulfasa

lazin

e

Etretin

ate

Infli

xim

ab

Per

cen

tag

e re

spo

nse

(%

)Psoriasis treatment: Ever triedPrescription medicines: all patients

Vlaanderen

7 5 3

17

0

20

40

60

80

Dead S

ea

Balneo

phototh

erap

y

Balneo

-PUVA

other

sPer

cen

tag

e re

spo

nse

(%

)Psoriasis treatment: Ever tried

Others: all patients

Vlaanderen

Psoriasis Treatment:

Satisfaction:

45

63

50

3331

2529

36

17

6

17

22

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

Acitretin: satisfaction

(n = 98 ) Vlaanderen

1519

32

27

49

55

44 44

21 21 21 22

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

Calcipotriene: satisfaction

(n = 374) Vlaanderen

37 3640

24

4947 47

63

9 9 9 10

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

Coal tar: satisfaction

(n = 216) Vlaanderen

34

13

47

35

24

38

16

25

3638 37

35

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

Ciclosporine: satisfaction

(n = 50) Vlaanderen

35

27

46

40

22

36

21 20

3336

21

30

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

Fumarates: satisfaction

(n = 51) Vlaanderen

64 71 69

14

29

8

3 2

100

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

Gold: satisfaction

(n = 22) Vlaanderen

3538

30

50

35

23

30

42

29

3840

8

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

Methotrexate: satisfaction

(n = 49) Vlaanderen

2022

2024

53

48

5559

22 23 22

14

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

Topical steroids: satisfaction

(n = 351) Vlaanderen

1719

12

2324

29

3840

4648 48

33

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

PUVA: satisfaction

(n = 324) Vlaanderen

15

6

15

20

47

39

5153

32

42

30

23

0

10

20

30

40

50

60

Overall Mild Moderate Severe

Pe

rce

nta

ge

re

sp

on

se

(%

)

Low Moderate High

UVB: satisfaction

(n = 131) Vlaanderen

Psoriasis Treatment:

Patient satisfaction

12

40 43

0

20

40

60

80

100

Low Moderate High

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction

How satisfied are you with how your doctor listens to your needs and concerns?

(n=529) Vlaanderen

18

4233

0

20

40

60

80

100

Low Moderate High

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction

How satisfied are you with the information your doctor gives you on the disease?

(n=522) Vlaanderen

9

36

47

0

20

40

60

80

100

Low Moderate High

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction

How satisfied are you with your doctor overall?

(n=516) Vlaanderen

18

51

23

0

20

40

60

80

100

Low Moderate High

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction

How satisfied have you been concerning the treatment for your psoriasis?

(n=507) Vlaanderen

15

49

25

0

20

40

60

80

100

Low Moderate High

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction: mild

How satisfied have you been concerning the treatment for your psoriasis?

(n=191) Vlaanderen

20

54

21

0

20

40

60

80

100

Low Moderate High

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction: moderate

How satisfied have you been concerning the treatment for your psoriasis?

(n=228) Vlaanderen

23

53

17

0

20

40

60

80

100

Low Moderate High

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction: severe

How satisfied have you been concerning the treatment for your psoriasis?

(n=78) Vlaanderen

29

46

25

0

20

40

60

80

100

Low Moderate High

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction

How satisfied have you been concerning the treatment for your psoriatic arthritis?

(n=157) Vlaanderen

28 2719 16

0

20

40

60

80

100

Timeconsuming

Ineffective Side effects Expensive

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction

What bothers you most about psoriasis treatment?

(n=497) Vlaanderen

3223

18 14

0

20

40

60

80

100

Timeconsuming

Ineffective Side effects Expensive

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction: mild

What bothers you most about psoriasis treatment?

(n=167) Vlaanderen

30 29

14 17

0

20

40

60

80

100

Timeconsuming

Ineffective Side effects Expensive

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction: moderate

What bothers you most about psoriasis treatment?

(n=207) Vlaanderen

15

32 28

17

0

20

40

60

80

100

Timeconsuming

Ineffective Side effects Expensive

Per

cen

tag

e re

spo

nse

(%

)Patient satisfaction: severe

What bothers you most about psoriasis treatment?

(n=72) Vlaanderen

Patient Associations

12

40

18

611 14

0

20

40

60

80

Doctor

Med

ia

Friends

/rela

tives

Inte

rnet

Oth

er

Don't re

mem

ber

Per

cen

tag

e re

spo

nse

(%

)Patient associations

How did you become aware of your patient association?

(n=572) Vlaanderen

13

27

40

23

15

24

14

0

10

20

30

40

50

60

B Cz Fi D I NL F

Per

cen

tag

e re

spo

nse

(%

)

How did you become aware of your patient association?

Doctor

43

14 15

3025 23

34

0

10

20

30

40

50

60

B Cz Fi D I NL F

Per

cen

tag

e re

spo

nse

(%

)

How did you become aware of your patient association?

Media

18

32

22

15

24

13 12

0

10

20

30

40

50

60

B Cz Fi D I NL F

Per

cen

tag

e re

spo

nse

(%

)

How did you become aware of your patient association?

Friends/relatives

52 2 3

23

7 7

0

10

20

30

40

50

60

B Cz Fi D I NL F

Per

cen

tag

e re

spo

nse

(%

)

How did you become aware of your patient association?

Internet

59

14 12 11

0

20

40

60

80

Educate andoffer programs

Provide apolitical voice

Raise moneyfor research

Educate thegeneral public

Per

cen

tag

e re

spo

nse

(%

)Patient associations

Which of the following is most important?

(n=551) Vlaanderen

43 44

4 1

9

0

20

40

60

80

Very Somewhat Not toomuch

Not at all Don't know

Per

cen

tag

e re

spo

nse

(%

)How important are the following services?

Newsletters

(n=572) Vlaanderen

18

33

115

32

0

20

40

60

80

Very Somewhat Not toomuch

Not at all Don't know

Per

cen

tag

e re

spo

nse

(%

)

Website

(n=572)

How important are the following services?

Vlaanderen

19

41

18

4

19

0

20

40

60

80

Very Somewhat Not toomuch

Not at all Don't know

Per

cen

tag

e re

spo

nse

(%

)

Local/regional meetings

(n=572)

How important are the following services?

Vlaanderen

38

46

71

9

0

20

40

60

80

Very Somewhat Not toomuch

Not at all Don't know

Per

cen

tag

e re

spo

nse

(%

)

Booklets

(n=572)

How important are the following services?

Vlaanderen

27

35

15

4

19

0

20

40

60

80

Very Somewhat Not toomuch

Not at all Don't know

Per

cen

tag

e re

spo

nse

(%

)

Support groups

(n=572)

How important are the following services?

Vlaanderen

34 36

93

19

0

20

40

60

80

Very Somewhat Not toomuch

Not at all Don't know

Per

cen

tag

e re

spo

nse

(%

)

Support of psoriasis research towards a cure

(n=572)

How important are the following services?

Vlaanderen

76

15

18

0

20

40

60

80

Very Somewhat Not toomuch

Not at all Don't know

Per

cen

tag

e re

spo

nse

(%

)

Availability of national staff to assist with issues

(n=572)

How important are the following services?

Vlaanderen

67

20

2 1

11

0

20

40

60

80

Very Somewhat Not toomuch

Not at all Don't know

Per

cen

tag

e re

spo

nse

(%

)

Advocacy with govt, health authorities, insurance co, pharmaceutical industry

(n=572)

How important are the following services?

Vlaanderen

50

33

81

8

0

20

40

60

80

Very Somewhat Not toomuch

Not at all Don't know

Per

cen

tag

e re

spo

nse

(%

)

Increasing general public awareness of the disease

(n=572)

How important are the following services?

Vlaanderen

3826 30

9

2416

0

20

40

60

80E

du

cati

on

alp

rog

ram

s ab

ou

tp

sori

asis

Pu

bli

caw

aren

ess

acti

viti

es

Reg

ion

al s

elf-

hel

p g

rou

ps

Fu

nd

-rai

sin

gev

ents

Tel

eph

on

eco

nta

cts

wit

ho

ther

su

ffer

ers

Tel

eco

nfe

ren

cesPer

cen

tag

e re

spo

nse

(%

)Patient associations

If offered, which of the following would you be most likely to participate in or attend?

(n=424)