احمد عزيز بوصفيحة

33
رب مغ ل ا ي ف م ا ضPID in Morocco : When an NGO takes a country and a…continent ة ح ي ف ص و ب ز ي ر عمد ح اAhmed Aziz Bousfiha. [email protected] Clinical Immunology Unit. Department of Pediatric Infectious Diseases. CHU Ibn Rushd. Casablanca. Morocco. Association Hajar www.hajar-maroc.org Moroccan Society for Immunodeficiencies. www.pid-moroccansociety.org African Society for Immunodeficiencies ASID www.asid.ma

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ض م أ في المغرب PID in Morocco : When an NGO takes a country and a…continent. احمد عزيز بوصفيحة Ahmed Aziz Bousfiha. [email protected] Clinical Immunology Unit. - PowerPoint PPT Presentation

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Page 1: احمد عزيز بوصفيحة

المغرب في أ م ض

PID in Morocco : When an NGO takes a country and a…continent

بوصفيحة عزيز احمدAhmed Aziz Bousfiha.

[email protected] Clinical Immunology Unit.

Department of Pediatric Infectious Diseases.CHU Ibn Rushd. Casablanca. Morocco.

Association Hajar www.hajar-maroc.org

Moroccan Society for Immunodeficiencies. www.pid-moroccansociety.org

African Society for Immunodeficiencies ASID www.asid.ma

Page 2: احمد عزيز بوصفيحة

Objectives

• Particularities of PID in Morocco

• How to succeed a Center in a limited resources country ?

Page 3: احمد عزيز بوصفيحة

Epidemiology

• PID are unrecognized in Morocco : – PIDs expected in 10 years: 2000 patients

• 650,000 births per year• PID expected per year :

1 / 2000 Births

• 300 / year– But at 2010 : only 10% diagnosed = 290

• HIV infection is less common– 1997 - 2009:– PIDs: 225– HIV infections: 150

• Consanguinity: 20%

Page 4: احمد عزيز بوصفيحة

Ibtihal Benhsaein and Fatima Ailal

Page 5: احمد عزيز بوصفيحة

Particularities of PID in Morocco

Page 6: احمد عزيز بوصفيحة
Page 7: احمد عزيز بوصفيحة
Page 8: احمد عزيز بوصفيحة
Page 9: احمد عزيز بوصفيحة

The 752delG26 mutation in the RFXANK gene associated with major histocompatibility complex class II deficiency: evidence for a founder effect in the Moroccan population.

Naamane H, El Maataoui O, Ailal F, Barakat A, Bennani S, Najib J, Hassar M, Saile R, Bousfiha AA.

Eur J Pediatr. 2010 Apr 23.

Page 10: احمد عزيز بوصفيحة

Hajar, 15 mois, Consanguinité +, Cas similaires,

DICS T-B+ NK – : Déficit en Jak 3 ?

Page 11: احمد عزيز بوصفيحة
Page 12: احمد عزيز بوصفيحة

Khaoula,

13 mois, lymphopénie.

DICS T- B+ NK+

IL7Rα

BMT in Span, 2002

… et

celui qui l’a fait revivre,

c’est comme s’il avait

fait revivre l’humanité

entière.

Le Coran : Le festin, verset 32 

Page 13: احمد عزيز بوصفيحة

Ayoub, SCID T-B-NK + RAG1

1st Baby grafted in Morocco,2010

Thanks to the technical assistance of our Saudis brothers :

Saleh and Hamoud.

Thanks to Saudi Arabia.

Congratulation for Arab cooperation!

Page 14: احمد عزيز بوصفيحة

Saleh AL Muhsen Hamoud Al Moussa

SAOUDI EXPERTS AT CASABLANCA: 2008, 2009, 2010, ...

Page 15: احمد عزيز بوصفيحة

JL Casanova, Parrain and ASID Cofounder. Casablanca 2008

Page 16: احمد عزيز بوصفيحة
Page 17: احمد عزيز بوصفيحة
Page 18: احمد عزيز بوصفيحة

JMF, Dream Mackers New York, 2009

Page 19: احمد عزيز بوصفيحة

- Recommendations For :

- GPs

- Students

Page 20: احمد عزيز بوصفيحة
Page 21: احمد عزيز بوصفيحة

Functional Classification of the 2007 Update

Page 22: احمد عزيز بوصفيحة
Page 23: احمد عزيز بوصفيحة

How to succeed a PID Center in a limited resources

country ?

Page 24: احمد عزيز بوصفيحة

F and R : disponibles

Formation et Recherche : non

disponibles

Soins disponibles

Diagnostic et Traitement : non

disponibles

Page 25: احمد عزيز بوصفيحة

Diagnostic et Traitement : non

disponibles

F and R : disponibles

Morocco:

Country

with

Limited

Resources

Formation et Recherche : non

disponibles

Soins disponibles

Page 26: احمد عزيز بوصفيحة

Diagnostic et Traitement : non

disponibles

F and R : disponibles

Morocco:

Country

with

Limited

Resources

Hajar Association

Formation et Recherche : non

disponibles

Soins disponibles

Morocco : People with illimited Generosity

Page 27: احمد عزيز بوصفيحة

Diagnostic et Traitement : non

disponibles

F and R : disponibles

Morocco:

Country

with

Limited

Resources

JL Casanova

Formation et Recherche : non

disponibles

Soins disponibles

Parrain with illimited Generosity

Morocco : People with illimited Generosity

Hajar Association

Page 28: احمد عزيز بوصفيحة

Diagnostic et Traitement : non

disponibles

F and R : disponibles

Morocco:

Country

with

Limited

Resources

Hajar

JL Casanova

Formation et Recherche : non

disponibles

Soins disponibles

Royaume d’Arabie Saoudite Tunisie

Contribution in developping PID

in Africa

In Arab Region

In the World

JMFIPOPI

France

Parrain with illimited Generosity

Morocco : People with illimited Generosity

Page 29: احمد عزيز بوصفيحة
Page 30: احمد عزيز بوصفيحة

0

10

20

30

40

50

60

70

80

90

1990 1995 2000 2005 2010

SoinsSocial EtatFormation Recherche

1997 Necker

2000Hajar

Flux Cytometer

2007IgIV 100%

ClinImmunol

Unit

1st Allograft

2008 ASID

2009 Benhsaein

au KFH

1998Labo Immu

Page 31: احمد عزيز بوصفيحة
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Page 33: احمد عزيز بوصفيحة

Honestly, it is not only

the dynamism and the organization.

Allah helps sincere wishes.