york dementia york will be a local dementia action action …€¦ · 24 june 2013 9.15 - 12.15...

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Spring 2013 Find out how to get involved – contact Dementia Forward T 01765 645904 E [email protected] Spring 2013 Find out how to get involved – contact Dementia Forward T 01765 645904 E [email protected] York will be a local Dementia Action Alliance (DAA) and those organisations who are working towards the Dementia Friendly Community challenge will be asked to place their plans onto the local page of the DAA website. The process will be explained at the network event in June but if you are unable to be at the networking event you can find out more – see below Read on to find out about all the exciting things going on in York. York Dementia Action Alliance is on its way Following the Joseph Rowntree Dementia Without Walls report, City of York Council have commissioned a Dementia Community Development Project. Dementia Forward, a dementia charity is providing the project workers and are tasked with bringing the findings of the JRF report to life. Netty Newell, project worker says “When we started out we had plans big and small and had scoped out a timeline and systematic approach – but actually we quickly discovered a real enthusiasm amongst many York initiatives that needed immediate support to get their dementia plans underway. As a result it is fair to say that we are letting the project develop organically and are tapping into the many opportunities that were here already. In addition we have contacted many York businesses and have begun our awareness and education for the retail sector.” Some of the most successful parts of the project will be showcased at the networking event advertised in this newsletter. Following the last network event a steering group was formed and York is now ready to make its commitment to the Dementia Action Alliance. York Dementia Without Walls Networking Event 24 June 2013 9.15 - 12.15 West offices, Station Rise YO1 6HT A chance to hear up dates and to become part of the York Local Dementia Action Alliance

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Page 1: York Dementia York will be a local Dementia Action Action …€¦ · 24 June 2013 9.15 - 12.15 West offices, Station Rise YO1 6HT A chance to hear up dates and to become part of

Spring 2013

Find out how to get involved – contact Dementia Forward T 01765 645904 E [email protected]

Spring 2013

Find out how to get involved – contact Dementia Forward T 01765 645904 E [email protected]

York will be a local Dementia Action Alliance (DAA) and those organisations who are working towards the Dementia Friendly Community challenge will be asked to place their plans onto the local page of the DAA website. The process will be explained at the network event in June but if you are unable to be at the networking event you can find out more – see below Read on to find out about all the exciting things going on in York.

York Dementia Action Alliance is on its way

Following the Joseph Rowntree Dementia Without Walls report, City of York Council have commissioned a Dementia Community Development Project. Dementia Forward, a dementia charity is providing the project workers and are tasked with bringing the findings of the JRF report to life.

Netty Newell, project worker says “When we started out we had plans big and small and had scoped out a timeline and systematic approach – but actually we quickly discovered a real enthusiasm amongst many York initiatives that needed immediate support to get their dementia plans underway. As a result it is fair to say that we are letting the project develop organically and are tapping into the many opportunities that were here already. In addition we have contacted many York businesses and have begun our awareness and education for the retail sector.” Some of the most successful parts of the project will be showcased at the networking event advertised in this newsletter. Following the last network event a steering group was formed and York is now ready to make its commitment to the Dementia Action Alliance.

York Dementia Without Walls Networking Event

24 June 2013 9.15 - 12.15

West offices, Station Rise YO1 6HT

A chance to hear up dates and to become part of the York

Local Dementia Action Alliance

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A Tale of Two Cities

By Phillipa Hare As a city, Bruges (in Belgium) has much in common with York – both have similar populations, prestigious Universities, a rich historical and cultural heritage and a thriving tourism industry. Bruges is also one of the leading European cities in the dementia- friendly movement. Following Janet Dean and Janet Crampton’s visit to Bruges last year (as part of their scoping work on York Dementia without Walls), JRF’s Philly Hare also got an opportunity to visit this March. Here she gives a brief report. Bruges’ great strength is Foton (meaning quantum of light). Foton has 400 specialist home cares, volunteers and family counsellors. It also runs ‘The Cup of Comfort’, an ‘open house’ in the middle of Bruges, where many people drop in for support, or peace, or to join in the choir and other activities. Its calm, white space with candles, fresh flowers, poems on the walls, modern comfy furniture, and a sheltered courtyard with a beautiful tiled maze – all express real respect for families affected by dementia. Foton’s charismatic leader, Bart Deltour, has done much to encourage his city to become dementia-friendly. Bart arranged a tour for us which included:

• A visit to the theatre, which has used drama to tell stories and overcome fear

• A meeting with the owner of a carpet shop, who is encouraging his street committee to become dementia-friendly.

• A presentation by a group of art school students who have drawn and filmed people with dementia

• A special service for those with early onset dementia.

I was lucky enough to spend some time with two local ‘ambassadors’, Nico (who has dementia) and his wife Elena (see picture). Elena explained: “The biggest barrier is taboo and embarrassment. Open your house, open your mind”. Elena and Nico are great fans of the Foton centre, which they call ‘an open home’ – and highly recommend something similar for cities like York. Bruges also has a missing person’s initiative, which brings together local emergency services to create a coordinated response if a person with dementia is lost. There is a strong support from the local Council, who, last World Alzheimer’s Day raised a huge banner with a poem on the central square belfry. A flash mob was also organised to raise awareness. I came away convinced that York and Bruges have much to learn from and share with each other. Over the coming months I hope to develop, with our York DWW partners this relationship, as I believe it has great potential.

Philly Hare

Joseph Rowntree Foundation Programme Manager with Nico and Elena

2 York might be hosting people from Bruges later this year – a chance to share ideas

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They added, ‘If it is always so welcoming as today, I’d love to go again.’ Suggestions for the future included greater support for people using wheelchairs and addressing the difficulty in helping someone in or out of an airline-style seat. More generalised outcomes include a reduction in social isolation, keeping healthy, and promoting choice and self-determination. Another rail company, Transpennine Express, have donated a rail pass for a similar trip, this time to Scarborough, on 15 May, when it is hoped a different group can take part.

By Gill Myers

Support Services Manager Alzheimer’s Society

For more information, please ring the York Alzheimer’s society office on

01904-68106 or

email: [email protected]

Back on the rails!

The British Transport Police and York Alzheimer’s Society teamed up on a project to help people with dementia build their confidence in using the rail service. As part of the Joseph Rowntree Foundation’s Dementia Without Walls project in York, twenty two people with dementia and their carers took a return trip to Harrogate in October accompanied by British Transport Police and Society staff and volunteers. The aim was to make it easier for people with dementia to use local trains and demonstrate the assistance that is now available at stations to support them. The group was welcomed by York station rail personnel and the passengers who took part were given a special rail pass from Northern Rail, which they will be able to use for a year. Several members of the group took the opportunity to have lunch at a local café in Harrogate before returning to the station for their journey home. Feedback from the passengers at the end of the trip was generally positive. One couple, who had not travelled by train since the 1960s, said that the journey was far easier than they had imagined and that they had ‘thoroughly enjoyed it’. Another couple who had got lost in the station in the past commented on improvements such as there being ‘people to show how to get tickets, the use of lifts to platforms and where to get help for travel in the future’.

3 Transport is so vital to a person’s independence

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Dementia and Me While the Real People Theatre Company was down in London presenting a PAPER BAG PEOPLE life story on homophobia (see: www.realpeopletheatre.co.uk under current productions) for the National Council of Palliative Care last summer, we were asked to do something on dementia for the NCPC 7th Annual Conference on Dementia & End of Life in December 2012 We felt this was a timely issue and that we could help bring it to public consciousness through drama. We worked with the Alzheimer’s’ Society, the Joseph Rowntree Foundation, the Council, Dementia without Walls, care homes, people with dementia and their carers…and created DEMENTIA & ME. The show consists of 3 statues of a mother and daughter at 3 stages of the dementia journey – On Diagnosis, Reality Slippage, Out of Touch. At each stage we hear the inner thoughts and feelings of the two women and then engage the audience in discussion as to how they would cope and invite them to share experiences. We presented it to 140 delegates from around the country in December and made a powerful impression! Unwilling to let the show end there, we built on it for York International Women’s Week in March 2013. Our aim was to involve song, music, personal experiences, poetry, dialogue and of course our 3 statues. We rehearsed at the Bar Convent on Saturday mornings in February and gradually brought together a cast of 9 for the two shows at York St John (4 & 5 March) and the final show on 8 March at the Bar Convent.

The show was hugely successful with excellent audience feedback such as: “Very powerful and informative, dealing with challenges very well. Go on tour! Fantastic statues. Great to share with others.” “Sensitive reflections on a meaty theme – you made me laugh, cry, contemplate how life is for living in the now. Thank you ☺ I was really moved. I also loved the choice of songs especially Que Sera by Jonie Mitchell.” “This performance will be memorable – I’ll never forget it! Excellent evening! Relaxed and not contrived.” We would like to continue to offer our 3 statues as a springboard for discussion and we welcome interest from any group or organisation dealing with dementia. Phone Sue Lister, Artistic Director of the Real People Theatre, on 01904 488870 to discuss possibilities.

Real People Theatre Company

By Sue Lister

4 Any opportunity to get people thinking and talking is a great thing

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All sessions will be at Burnholme School (while the Gallery is closed for refurbishment. Wednesdays 1 –3 pm free of charge Also in the pipeline (and funded by York Museums Trust) are plans to run a pilot group for people with dementia at York Castle Museum later in the year. The National Railway Museum is also dipping it’s toe in these waters, with a new group for people living with dementia. Meeting on Thursday mornings, we will be making use of the NRM’s extensive handling collection (it’s not just about trains!), as well as looking at some of the exhibits on display. Sessions will be held on the following dates, 10.30am to 12pm, free of charge: 18th April, 2nd, 9th, 16th and 23rd May To book places on any of the above, contact Emily Abbott: [email protected] 07905 117108 or 01904 426180 House of Memories training days can be attended by anyone in the UK and are free to attend (including lunch). Further details at www.liverpoolmuseums.org.uk

Museum for the Mind Over the last decade, a growing movement has promoted museums and galleries as having a valuable part to play in helping people live well with dementia. From the Museum of Modern Art in New York to the Louvre in Paris, programmes have been designed to welcome in people with dementia and their carers. These schemes can involve looking at (and talking about) art or artifacts in a group or practical hands-on art and craft sessions. Some aim to help people understand what it means to live with dementia. The UK’s biggest programme, called the House of Memories, is run by the Museum of Liverpool. Since it started in early 2012, over 1500 people have attended their training days, designed to increase awareness and understanding of dementia. Participants also learn how to use objects and memorabilia from the museum, helping them feel confident using the Museum as a resource for all, family members and paid carers alike. Closer to home, plans are underway to develop a dementia friendly network of York’s own museums and galleries. In autumn 2012 York Museums Trust funded an 8-week pilot art project at York Art Gallery for people with dementia and their carers. Working with community artist Kirstie Briggs Bateman, each week featured a different art or craft, from portrait painting to felt making. Such was the success that York Museums Trust are funding two more blocks of art workshops for people living with dementia. Block 1: 17th April to 22nd May Block 2: 5th June to 10th July

5 Another innovative medium for engaging with people and raising awareness

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British Transport Police and Dementia

Without Walls By Fiona Andrews I am the Station Liaison Officer with the British Transport Police based at York railway station, I have been a police officer for 22 years and over the last 3 years or so I was asked to perform the Community Engagement / Diversity role on behalf of BTP York. My role also encourages me to interact with the Train Operating Companies at York and to engage with the staff to promote efficient working practices. At one of these briefing sessions in 2011 a member of East Coast platform staff made a comment which led to BTP being involved with the DWW project I was asked, when talking about issues staff were having on the station, ‘Why does everyone with Alzheimers come onto York Railway Station…?’ A brief discussion with the platform staff about what they should do when they came across someone who had dementia and what Polices responsibilities were made it quite evident that there was no systematic approach on the station, Some staff did not know what Dementia was exactly. When I went back to my office and spoke to my colleagues there were differing ways in which persons with dementia were being supported, and again some lack of knowledge as to what the disease actually was. I decided to do find out a little bit more about Dementia so I would be better prepared for my next briefing days and to be able to pass some factual info back to my colleagues to allow us all to understand this condition. I made an appointment with a lady from the York Alzheimers Society, where I was told that a project ‘Dementia Without Walls’ had just been launched, so I decided to see if I could be involved…. My first meeting with Janet Crampton was enlightening and it was obvious that this was going to be a huge project with the potential for BTP to gain a real insight into the world of dementia.

I knew that we could be instrumental in playing our part in making a difference as Police Officers but also as part of the railway environment. At whirlwind speed we became involved in the project, at first I wondered just how we could ‘do’ as much as the other agencies involved. We weren’t part of the National Health team, so what could we do?? But the message that came through the meetings and steering groups I attended was that all that was needed was a change of attitude and for little steps to be taken when the opportunity arises…so, we began to take little steps… It started when I invited a group from the York Alzheimers society to come to the station to see how the station operates. How do you feel if you come to the station and you have dementia, what is your first impression? This was filmed by the Innovations in Dementia crew and the video was used at the DWW event at the Mansion House in York the following year. First impressions were good, and this information was fed back to the Station Manager. You can read about the next steps on page 3 of this newsletter. The Dementia Regional Alliance was set up around this time and I decided to see if not just my police station, but my police Area would be interested in joining up. Our Area Commander, responsible for BTP said Yes!! This was endorsed by our Area Senior Management Team, so we are now in the process of setting up dementia champions at each police station to promote our commitment to making our work place dementia aware and promoting dementia awareness. I will be the champion of champions! (wow)!!! So hopefully we will be pushing our involvement with dementia groups and bettering procedures over the next 12 months We are looking at training all officers in North East Area BTP and linking in with other agencies to work together to promote best practise. We’re hoping that by taking our ‘little steps’ we will be making our own small differences in our own ways, continuing to learn and share our experiences.

.

6 Sometimes all it takes is one enthusiastic member of an organisation!

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Sport and leisure for all The Sport and Active Leisure Team at City of York Council have partnered up with sports coach UK to develop a workshop for the local Sport, Leisure and Fitness sector to help towards increasing awareness of dementia. The workshop entitled ‘How to Deliver Engaging Sessions to Adults with Dementia’ will help educate coaches, clubs, leisure facilities and sports development teams in how to adapt their services and sessions for those who with dementia and help keep them engaged in sport and physical activity for as long as possible. The programme was inspired by the work carried out through the Dementia Without Walls project which identified in it’s report released in October 2012 that resources to help improve understanding around the growing issue of dementia in society were not widely available. The Sport and Active Leisure Team identified this as an area of interest, with a number of clubs and sports in York been predominantly run by older people. This can mean that this industry may be one that encounters a growing number of people with the condition. Common issues to tackle include coaches, instructors and other members attitudes towards dementia, their ability to empathise with those who may be diagnosed, and a lack of understanding about the condition e.g. people may not remember session to session or forget the rules.

In March 2013 Sport and Active Leisure and sports coach UK led a Dementia Development Day which brought together key local individuals from health, sport, leisure and dementia charities to contribute their knowledge and experience into this educational resource.

The day also involved some consultation with those who have been diagnosed with or care for those with dementia. The sports coach UK workshop primarily looks at how to develop the personal and social skills of participants through coaches creating a fun, engaging and welcoming environment. The workshop also looks at how coaches and instructors can build confidence, make connections, and create a positive rapport in a caring environment. The day was a great success combining knowledge and understanding from sports coach UK with those who have first hand experience of working with adults with dementia. North Yorkshire Sport, Dementia Forward and Joseph Rowntree Foundation and others contributed valuable insight, experiences and knowledge that will be used to make the ‘How to Deliver Engaging Session to Adults with Dementia’ workshop relevant and useful for clubs and coaches in York ‘The City of York Council Sport and Active leisure team are one of the first organisations to work with sports coach UK to enhance and use the ‘How to Deliver Engaging Sessions’ workshop to meet local needs and priorities. It has been such a great experience having so many local partners involved in the development of this dementia specific workshop. I’m sure that the workshop will be well received by local clubs and leisure providers who want to attract and retain adults with dementia to their sessions.’ Liz Burkinshaw, Development Lead Officer, sports coach UK. Looking to the future, it is hoped that the workshop will be piloted with a number of bowls clubs around York and at one of the local authority leisure facilities. The plan is to create Dementia Friendly clubs which people with the condition and their carers will then be able to easily identify and be confident knowing those involved are confident in and aware of dementia. By Catriona Sudlow Older people’s physical activity advisor - CYC

7 Well being is so important & a Dementia Friendly Club is good for everyone

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Innovations in dementia The Joseph Rowntree Foundation (JRF) is a York-based charity that funds UK-wide research and development programmes. They are particularly interested in issues around older age. Recently, they started a large programme all about dementia. JRF’s long term aim is that the UK is a good place for those of us who have dementia to live, and live well. To achieve this, they believe we need to challenge attitudes, understanding and behaviours around dementia, which reinforce stigma, isolation and exclusion. We need to inspire local communities, organisations and businesses to become more aware and understanding of dementia, and more inclusive. And we need to support the collective engagement of people with dementia, inspiring local communities, organisations and businesses to become more aware and understanding of dementia, and more inclusive as their voices are central in this debate. They are very committed to making sure that they listen to the voices of people with dementia in al their work. And would like to work closely with Dementia Forward in any way they can. JRF Sounding Board of people with dementia Joseph Rowntree Foundation is keen to get the opinions and advice of people with dementia about their programme of work. In order to do this JRF a social enterprise called Innovations in Dementia to co-ordinate a “sounding board” of people with dementia. They want to be able to ask people with dementia what they think about specific issues as they arise throughout the course of the programme (2012 – 2015).

JRF want to be able to call on a wide range of expertise on different subjects and at different times. Therefore the “sounding board” doesn’t hold regular formula meetings. Instead we work with different members of the sounding board and the appropriate members of JRF staff so that JRF get the advice they need. How the sounding board works: JRF have recently recruited a company to make films about their work around dementia. This is an example of how the sounding board works. A small group of people with dementia met with JRF communications and publishing staff. They discussed some of the issues around filming with people with dementia: From getting meaningful consent to making people comfortable with the filming process. JRF staff used what they had learnt to recruit the film making company and included people with dementia in the short-listiing and interviewing process. DEEP One part of the JRF work is called Dementia Engagement and Empowerment Project (DEEP). DEEP brings together groups of people with dementia from across the UK. Staff from Innovations in Dementia with help from staff in the Mental Health Foundation support groups of people with dementia to influence services and policies affecting the lives of people with dementia. The project aims to be led by the aspirations of people with dementia themselves. DEEP groups are involving activities such as giving talks to professionals about their experiences of dementia, writing articles for the media and creating films which portray life as it really is. DEEP will support groups to learn from each other and get together to share experiences. More information at the DEEP website – www.dementiavoices.org.uk Dementia Forward will be supporting these initiatives where it can. For more information contact Nada at Innovations in Dementia Email: [email protected] Telephone: 07549 921901

8 We must listen and learn from those who are living with dementia

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Plymouth explained how the mayor had been particularly instrumental in driving their work, and they gave various examples of work they are doing, such as some funding they have got from the Arts Council for artists to work with people with dementia. They are also keen to develop more peer support opportunities in Plymouth. It was interesting that this was again something which we, in York, have also recognised as an issue, hence last year commissioning the Alzheimer's Society to develop more peer support activities, such as Singing for the Brain. JRF are also developing more peer support and user involvement in York. The York Dementia Without Walls (Dementia Friendly Communities) Steering Group, will keep in touch with colleagues in Devon to share ideas and good practice.

There was also a very interesting workshop about the Intergenerational Schools Dementia pilot that has been taking place, raising awareness of dementia in 21 schools across the country. School children involved spoke passionately at the event about how much they had benefitted from the dementia awareness sessions at school.

I am also proud to say that 5 local pupils from Joseph Rowntree School (pictured here) performed their excellent and thought-provoking drama about dementia on the bandstand on the 'village green' at the event. Well done!

Dementia Event at the NHS Healthcare Expo By Catherine McGovern City of York Council

On the 13th and 14th March the NHS Healthcare Innovation Expo took place at the Excel in London. This year a dedicated area of the exhibition hall was devoted to a ‘Dementia Village’ to showcase good practice and innovation in dementia care, dementia friendly communities and research. The village contained a main stage for speakers, a village green and bandstand with leisure and entertainment activities, plus a house demonstrating ways that we can support people with dementia and their carers to live well. There was a 'school' hosting workshops and sessions enabling people to become Dementia Friends, and a cinema showed dementia-related films (including JRF's York Dementia Without Walls research). Trevor’s Garden provided a quiet space for delegates and information on the potential benefits of dementia friendly gardens. I went to the event to learn about how other towns and cities are working towards becoming more dementia friendly, and to share York's experience of starting to work towards the aspiration of becoming a dementia friendly city. One particularly interesting workshop I joined compared the development of dementia friendly approaches in a rural location (in parts of Devon) to a larger city (Plymouth). In the rural example, five small parish councils had joined together to look at the issue, and had pooled some funding and fundraising activities to recruit a part time Dementia Community Development Worker. The role the worker will be doing sounded similar to the project we have commissioned in York, run by Dementia Forward - to work with shops, businesses and local organisations on how they can be more dementia friendly and aware of the needs of people with dementia and their carers.

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9 Learning and sharing with others will help to speed up this mission

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Our first Dementia Awareness session was held in the library in York. Invitations were to anyone interested but they also went out to the voluntary sector and City of York Council. On the day there was a good cross section of people; some people were there because they cared for someone with dementia, others worked in the mental health sector, others just wanted to find out more about dementia. Sam works for ‘Visit York’ and simply volunteered to attend as a representative from her team. Sam says – “I didn’t know anything at all about dementia and I thought I hadn’t ever met anyone affected by dementia – I realise now that I probably had but didn’t understand enough to realise! I was so un clear I ‘googled’ dementia before the session..” On the day of the session we asked everyone to introduce themselves and tell us why they were there. When we realised that Sam was the only person with no dementia knowledge at all we asked her if we could use her experience of the session as a marker. We asked her at the end how she had found it and she said she felt she had learnt a lot and felt a real urge to go back and share her new awareness with her team at Visit York. Following this the manager at Visit York asked us to go to their staff training to do a dementia awareness session with more of the staff. Sam was there enthusing to all her colleagues about how much she had learnt and she then told us about an experience she had the weekend before. Sam says –

“The visit York team attended the Lord Mayor’s charity ball. We were sitting on a table with a husband and wife. I noticed that the husband did almost everything for his wife and after a while I guessed that the lady might have dementia. From the awareness session I knew that the most constructive thing I could do was simply talk to the couple, I surprised myself that I felt confident enough to engage with them. I had lovely conversations throughout the evening and I felt that I was communicating with both the husband and wife. I told them that they were inspiring and how lovely it was to see how much they cared for each other ( to which the husband replied ‘why wouldn’t we after 40 years of marriage’?) I said to both of them that I didn’t expect to find anyone who loved me that much! Our conversation covered all sorts, the couple had been coming to the Mayor’s ball for years and still enjoyed the black tie affair and the dancing. We talked about dementia quite openly, I even asked how they managed to communicate and they told me it was by squeezing hands and by subtle changes in facial expression. I was so moved and felt privileged to be in their company. After a while I sat with the lady while her husband went off somewhere and I realised we were communicating, her smile told me we were enjoying each other’s company – not just in a ‘top surface’ way but in a meaningful way. My understanding of dementia has increased to a point where I am comfortable, I know that talking about dementia is not insensitive and not talking about it potentially isolates people. I talk about my experience all the time now, with friends, family and colleagues. I am so pleased that I attended the session in the library.” After every awareness session we facilitate we ask people to not only carry their learning around in their work but also to do just what Sam did, to talk about it in the pub or at the W.I. All these conversations will help with the huge challenge of raising Dementia awareness. By Jill Quinn – Dementia Forward

Sam’s Story

10 Not one giant leap but lots of small steps will get us to where we want to be

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Hats off to Haxby & Wiggington By Corinne Brown

Haxby & Wigginton are pretty villages just north of York with great facilities and lots to do. It is no surprise that many have lived here all their lives, or choose to retire here – it is a great place to live! Some years ago the local Methodist Church opened Aroma Coffee Shop in the centre of Haxby village. As we welcomed new customers we noticed that some were struggling as they cared for loved ones with dementia. Sometimes we would be asked to look after someone while their carer popped out to buy groceries. Others came exhausted, to recharge their batteries. Several church members were also struggling with similar issues at home, yet as we chatted it seemed that few understood dementia or the anxiety it could cause families and sufferers. Wanting to offer care as well as coffee, Aroma tentatively ran several information sessions to help residents understand more about dementia - and were surprised when so many applied we had to create a waiting list! As a result, with the support of the local GP practice we set up a Carers’ support group that meets every other month – inviting in ‘expert’ guests to offer help (such as York Carers, Dementia Forward, the local doctor). Many have come: some regularly, others when they can; some who have been carers for a long time, and others starting out on the long journey with many questions to answer. All appreciate the chance to chat with those who understand what it is to care for someone they love with dementia. Always there is much laughter!

With the help of the Joseph Rowntree Foundation we began to imagine how our villages might become more dementia-friendly. What if school pupils could learn more, or if shop staff could be trained to know how to best help customers with dementia? What if local information for newly diagnosed sufferers was easily available, or if we could improve the village signs to help those with dementia find their way around more easily? The ideas were endless! The Joseph Rowntree Foundation put us in touch with Dementia Forward – tasked with helping York become a dementia-friendly city. Imagine our excitement when realised that here were people with the knowledge and expertise to help us make things happen! Working together we invited local groups, town councilors, care agencies, businesses to find out more about becoming a dementia friendly community. We were overwhelmed by their response. As a result we hope to offer training to community businesses and groups, and create a working party to look at other practical initiatives. Already we have been offered funds to make some of our hopes and dreams come to life. We know that it won’t happen overnight – there is much work to do. Yet we hope that what we achieve will be good for all the community, especially for those we love and care for with dementia.

11 The stuff that real communities are made of

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University of York to look at attitudes to ageing and dementia

During June 2013 researchers at the University of York will be carrying out a study into attitudes to ageing and dementia. York University are interested to recruit individuals of ALL ages, and those with and without prior knowledge of dementia or related issues to take part in a small group discussion. If you would like to participate in the project or would like more information about the study please contact: Dr. Friederike Ziegler, Alcuin C, Department

of Health Sciences, University of York, YO10 5DD. Telephone 01904 321651 E mail [email protected]

The York Dementia Action Alliance will launch a Facebook site during June. The site will hold information about events, case studies and up dates and will provide a place for conversation on making York dementia friendly. In addition the York local alliance will have a page on the Regional Dementia Action Alliance Website and this is where the formal pledges of local businesses and organisations will be held.

Don’t forget the networking event

Find out how to get involved

Dementia Forward

T 01765 645904

E [email protected]

York Dementia Without Walls

Networking Event 24 June 2013

9.15 - 12.15 West offices, Station Rise

A chance to hear up dates and to become part of the York Local

Dementia Action Alliance