PSORIASIS INTERNATIONAL NETWORK! 30 NOVEMBRE 2009

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Since 2003 October 29 is the World Psoriasis Day. Its primary purpose is to act as a focus for people " patients, doctors, nur"ses and the general public " to raise awareness of psoriasis and psoriatic arthritis and to give people with psoriasis and/or pso"riatic arthritis the attention and consideration they deserve. World Psoriasis Day is also a channel to encourage health au"

thorities to o#er better access to the most appropriate treat"ments. Read more at www.worldpsoriasisday.com

The International Federation of Psoriasis Associations $ IFPA% is a nonprofit organization made up of psoriasis associations from around the world, representing 125 million people who su#er with psoriasis and/or psoriatic arthritis.

World Psoriasis Day 2009

Psoriasis is one of the most serious chronic non"communicable dis"eases, due to the number of people a#ected, due to the significant im"pact in the quality of life and in the social relationships, due to a very active clinical and therapeutic re"search on this disease worldwide, and due to the arrival of innovative but highly costly therapeutic strategies.

Psoriasis is thus at the core of all medical, economic and social issues that chronic diseases bring along. It is therefore most important to raise public awareness on the severity of this disease, in order to better ad"dress these issues psoriasis patients are often confronted with, and to improve disease comprehension by health authorities, patients and the medical community.

Together with the International Federation of Psoriasis Associa"tions, we sincerely hope that Octo"ber 29 may become the cornerstone of a better social recognition for those su#ering from psoriasis.

Professor Louis Dubertre! Coordinator Psoriasis International Networ"

October 29 is World Psoriasis Day. Conceived by patients for patients, World Psoriasis Day is a truly global event focusing on the burden of living with psoriasis. There are more than 125 million people with psoriasis/psoriatic arthritis in the world. Psoriasis is a seve"re chronic inflammatory disease that e#ects all ages, genders, races and ethni"cities.

The recent progress in the understan"ding of the disease has been remarkable. Psoriasis is now considered as a poten"tially severe inflammatory disorder. It may impose major social, psychological, physical and health impairment on pa"tients, promote metabolic syndrome, inflammatory and cardiovascular co"morbidities and reduce life expectancy. According to the years of life lost due to disability and premature death, access to the appropriate treatment modalities is mandatory to improve the health pers"pectives of psoriasis patients. Psoriasis should be recognized as a disabling di"sease and treated accordingly. “A few years ago we didn’t talk about co"morbidities at all. Now, with this new information, we need a greater accep"tance of psoriasis as a severe and com"plex disease, which calls for new coordi"nated approaches in the health care sys"

tem”, says Professor Dr. Jörg C. Prinz, Department of Dermatology, University of Munich, Germany. On World Psoriasis Day October 29, the International Federation of Psoriasis Associations, IFPA, together with our member associations all over the world, is urging the World Health Organization and other o&cial health authorities to react upon these new insights and deve"lop means and measures to improve the health"associated impairments of the millions of psoriasis patients who are su#ering all over world. Psoriasis is a real disability that deserves attention!

For more information, please contact: Lars Ettarp, President of IFPA, Interna"tional Federation of Psoriasis Associa"tions Mobi le : +46 708 592 112 , E "mai l : lars@ettarp.se Annika Rastas, Director of the IFPA Secretariat Phone: +46 8 556 109 14, E "mail : annika.rastas@pso.se

Source: From Press Release of World Psoriasis Day, Octo 29, 2009, by IFPA

World Psoriasis Day is presented by International Federation of Psoriasis Associations,

supported by

Psoriasis is a real disability that deserves attention!

Awaiting the o#cial World Psoriasis Day 2009 Report by IFPA $ to be released in the beginning of 2010 $ please find

here below some examples of the very exciting activities carried on the occasion of World Psoriasis Day

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IFPA APPROACH OF WHO FOR PSORIASIS RECOGNITION

The IFPA World Psoriasis Day global political action to urge the World Health Organization $WHO% to recognize psoriasis as a serious disease on a central level has now begun.

On World Psoriasis Day, Oct 29, IFPA delivered an inclusive packet of information about psoriasis to the World Health Organization $WHO% Noncommunicable Diseases and Mental Health Cluster at WHO in Geneva, Switzerland.

The packet included the IFPA report entitled "Psoriasis is a Serious Disease Deserving Global Attention," written by Ka"thleen Gallant, Chairman of the WHO Strategic Planning Committee. The IFPA strategy seeks to inform and request the World Health Organization recognize that psoriasis is a serious chronic, noncommunicable, autoimmune disease that a#ects over 125 million people of all ages and races, and carries severe physical, mental and socioeconomic burdens, including the elevated risk for serious co"morbid conditions. To support this claim, IFPA included scientific reports on psoriasis that covered the entire scope of the disease: epide"miology, physical/psychosocial/socioeconomic impacts, and the relationship with comorbid conditions.

IFPA is greatly honoured to relate that the Presidents of the International League of Dermatological Societies, ILDS and the European Academy of Dermatology and Venereology, EADV gave supporting statements for the WHO initiative and for World Psoriasis Day.

In addition, the packet also included a case statement descri"bing the organization of IFPA, as well as IFPA member re"ports and summaries of IFPAs main programs, including World Psoriasis Day concept and activities, and the World Psoriasis and Psoriatic Arthritis Conferences.Also presented to WHO was an introductory DVD trailer of the new IFPA project Under the Spotlight $UTS% , with an invitation to "meet people living with psoriasis", revealing the real life impact of psoriasis over time, by viewing the short videos on the UTS website.

WHO acknowledgement of psoriasis and World Psoriasis Day will help psoriasis patients to recognize their own disease and seek treatment, will enable the public to realize psoriasis is not contagious and halt discriminating behavior, and will facilitate the medical community to diagnose and e#ectively treat the disease. In small but e#ective steps, this outcome will help lift the heavy burden of psoriasis worldwide and allow for a better quality of life.

It is our goal that IFPA and WHO can partner together and reach out to the 125 million people struggling with psoriasis worldwide, assisting them to live a better quality of life and furthering IFPAs vision of a world without human su#ering

from psoriasis.

For more information, please see:http://www.worldpsoriasisday.com/t2.aspx?p=107538&x=1&a=1105160

MESSAGE FROM THE PRESIDENT OF EADV, PROFESSOR ANDREAS KATSAMBAS

29 October ! World Psoriasis Day 2008

$Brussels, 22/10/2008% Psoriasis is a common chronic inflammatory skin disease a#ecting approximately 2"3' of the European population. Although most individuals with psoriasis have mild skin involvement, requiring only topical creams and ointments for its management, a significant proportion of patients have a more extensive disease leading to marked physical discomfort, severe psychosocial distress and a negative impact on quality of life. Dermatologists are the experts in the field of Psoriasis and can provide specific help for the patients acting as their advocates who o#er them a wide range of treatments. Over the past decade, extensive research at the clinical and basic science level has enhanced our understanding of the pathoge"nesis of Psoriasis and its genetic background. Previously considered a disease of the skin $and in some cases of the joints%, we have now come to appreciate psoriasis as a systemic inflammatory condition with important repercussions in other organs and systems. The most essential development, however, has been the introduction of targeted biologic therapy in the clinical mana"gement of patients with moderate to severe psoriasis. By blocking critical steps of the inflammatory process, anti"TNF and anti"T cell agents have revolutionized our therapeutic approaches and have provided an e#ective treatment for long"term control of the disease with an acceptable safety profile. Our expanding knowledge of the underlying mechanisms of psoriasis will undoub"tedly create new opportunities to treat and potentially cure the disease. Together with the endeavours of the International Fe"deration of Psoriasis Associations $IFPA%, which the European Academy of Dermtology & Venereology $EADV% fully supports, the future for our patients has never before looked as bright and promising as it does today!

THE PSORIASIS SUPPLEMENT IN THE GUARDIAN UK, OCTOBER 29, 2009

The Psoriasis Supplement in the Guardian is published on World Psoriasis Day. The Psoriasis Supplement 2009 is produced by Media Planet in partnership with IFPA.The Psoriasis Supplement in the Guardian

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UNDER THE SPOTLIGHT ! NEW IFPA PROJECT RELEASED

First of a kind documentary project follows people living with psoriasis to see the e"ects of the disease on their lives over time

Stockholm, Thursday October 29th, World Psoriasis Day, 2009: The International Federation of Psoriasis Associations $IFPA% today launches the Under the Spotligh! project, designed to illuminate the impact that psoriasis has on individual lives, over time. A number of people living with psoriasis have agreed to allow cameras into their lives, to create a unique documenta"ry project, to see how the disease a#ects them and impacts the course of their lives, socially, in relationships and particularly at work.

Today, the first of a series of documentary programmes is made available, featuring six people living in the Nordics region of Germany, Sweden and Denmark. This documentary, along with other shorter films about the contributors can be viewed on www.underthespotlight.com. The project is the first of its kind and is intended to create a community of people living with pso"riasis around the world, where support and reassurance can be gained through shared experience. IFPA intends to broaden the

reach of the project by World Psoriasis Day 2010, when other coun"tries will join the project, and to continue to extend its reach over the next five years.

Meanwhile, the biggest ever international survey of people living with psoriasis has shown that the disease can cause significant and permanent damage to lives, with more than a third $37'% of the respondents stating that they will never be same person again, even if their psoriasis symptoms are cleared1.

Professor Uwe Gieler, a Psycho"Dermatologist from the University Clinic for Psychosomatics and Psychotherapy, in Giessen, Germany has been involved in the development of the Under the Spotligh! project. ‘There has never been any doubt that psoriasis is a devasta"ting disease, but the recent survey results begin to paint a picture

of how psoriasis can damage somebody’s life potential, perhaps because of a profound psychological impact or because they have felt unable to follow their chosen path in life. This produces a 'gap' between somebody's natural life trajectory and the tra"jectory they ultimately follow, and that is a very sad situation, not rarely followed by depression and stigmatization feelings.’

22 year old Benjamin, from Aarhus, in Denmark, is one among several people featured in the documentary who has had to aban"don his first choice of career. He was unable to work as an electrician because of practical problems with his skin, and is now studying to be an engineer. He anticipates a time when he may also need to leave engineering because of the appearance of his disease. He says, ‘I’m worried because in my new career I will have to look representable, I can’t look like a monster. I don’t know how people will react. I’ll have to take a job which is more suitable for my illness. I also have to worry about stress at work, as my psoriasis is a#ected by that.’

Lars Ettarp is President of IFPA. ‘People still believe that psoriasis is simply a disease of the skin. But everybody who lives with this disease knows that there is a great deal going on under the surface that may be invisible to the world around them. It’s time we try to understand the full implications of living with psoriasis, and to provide comfort to people who may otherwise feel they are alone in struggling to cope. It’s appropriate that we are launching the Under the Spotlight project today, on World Psoriasis Day, to mark our determination to understand and support people living with psoriasis.’

1. Psoriasis Uncovered, patient survey, findings report, Abbott, October 2009.

The Under the Spotlight documentary and website

Under the Spotlight is an International IFPA project supported by Abbott, comprising a series of documentary films and a rela"ted website www.underthespotlight.com. The project is envisioned as a series of documentaries, where the same people are fol"lowed year after year, and each year additional IFPA member groups will join the project. The first documentary launched today, features people with psoriasis from Denmark, Sweden and Germany.

Source: From the Press Release of Under the Spotlight, Oct 29, 2009, by IFPA

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ARGENTINA

Argerich Hospital, Buenos Aires

On October 29, at 11 am, a presentation on psoriasis was organized for patients and the community.Contact: Dr. Neglia Vicenta

J. M. Ramos Mejía Hospital, Bue!nos AiresOur Rheumatology Department in “J. M. Ramos Mejía Hospital” functions as base of operations of “Osteoporosis and Osteoarticular Diseases Centre” and “Pharmacology and Clinical Research Centre”, both dependence of the School of Medicine, University of Buenos Aires.

With reference to the Word Psoriasis Day, we have organized a special con"ference on “Psoriasis: an interdisciplina"ry approach” for dermatologists, rheu"matologists and other healthcare profes"sionals. The conference was presided over by the Dean of the School of Medi"cine, University of Buenos Aires, and among the topics that were addressed during the meeting we could mention: “Current situation of Psoriasis in Argen"tina”, “Psoriasis as a systemic disease”, “Morbimortality in Psoriasis”, “The im"portance of dermatologists’ early consul"tation to rheumatologists”, “Psoriasis in Pediatrics”, “Systemic therapy in Psoria"sis”.

On November 29th an open meeting for patients was organized at our hospital. Our rheumatology and dermatology physicians o#ered lectures on di#erent aspects of the disease. The meeting at"tempted to create a space in which pa"tients could learn about their disease as well as share their experiences with other patients. Once concluded the

meeting, patients were encouraged to share a hug as a sign of support among each other.Moreover, we had the opportunity of

par t i c ipat ing in a spec ia l e vent organized by “Asociación Civil para el Enfermo de Psoriasis ( AEPSO” $Civil Association for the Psoriatic Diseased%, also on the occasion of the World Pso"riasis Day. The event took place in a downtown street of our city, Buenos Aires, and di#erent activities were held. The meeting was organized as a cam"paign to “donate a hug”, considering the act of “hugging” as a symbol of union and acceptance. The attendees were also

invited to dance “Tango” in the street.

Contact: Professor Eduardo Kerzberg M.D.Head of Rheumatology DepartmentRamos Mejía HospitalBuenos Aires, ArgentinaDirector Osteoporosis and Osteoarticular Diseases CenterPharmacology and Clinical Pharmacological Re"search CenterSchool of Medicine, University of Buenos AiresArgentina

BRAZIL

Almost 50 Hospita l and Medical Centers participated at the World Psoriasis Day in Brazil, attending over 50, 000 people. People were a ss i sted by doctors and medica l students and were given informative material and watched videos about the disease. Patient associations were also present and gave assistance during the activities.

The whole event was supported by the Brazilian Society of Dermatology $SBD% which sent folders, psoriasis t"shirts and banners to all centers.

This is the fourth year the event happens in Brazil and each more people participate.Contact: Dra. Maria Denise Takahashi and Dr. Ricardo Romiti, Coordinators of the World Psoriasi Day in Brazil.

Hospital do Servidor Publico, Sao Paulo

On World Psoriasis Day and during the month of November, the Hospital is distributing folders about the illness and carrying through enlightment lectures. But the main activity consists of medical attendance of the patients that need an one"hour inter view, because dermatologists have to explain all correlated problems; these interviews are being done twice a week. The hospital is doing, in about one year, a g reat protoco l that enc loses innumerable laboratory examinations and relationships with other specialties.Contact: Drs. José Alexandre Sittart and Luis Renato Medeiros

CANADA ! QUEBEC

Alliance Québécoise du Psoriasis

Last year the President of the Quebec association met with deputies and had a motion proposed in the parliament regarding the World Psoriasis Day. This year, the association had a press release on newswire and interviews.Contact: Paul"François Bourgault

WORLD PSORIASIS DAY ACTIVITIES AROUND THE WORLD

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WORLD PSORIASIS DAY IN CHILE

This was a very special WPD for Chile, since we could celebrate the foundation of our national patients corporation "Corporación de Psoriasis de Chile".

Board: Fabio González Castro " Nelson Román Miranda"Alejandro Strull Galarce"Jacqueline Linossier Cordero ( Paula Espina Rivera"Carlos Camus Luders" Juan Ugarte Mujica" Mitsuko González iitomi $Absent%

The activities we did were as follows:

1.Booths at very important malls in Santiago de Chile, where people received information about psoriasis and the patient's association from october 27 to 31.

2.Live interview to the president of the patient association Alejandro

Strull at CNN Chile

3.Press conference with the parti"cipation of the president of the pa"tient´s association, Alejandro Strull, the dermatologist coordinator of the Psoriasis Group of the Chilean Socie"ty of Dermatology Claudia de la Cruz MD and a children patient with pso"riasis and her mother.

4. Press articles, in the most impor"tant newspapers and radios, telling the news about psoriasis and the pa"tients association that has just been formed. $Diario el Mercurio, Diario La Nación, Diario La Cuarta, Diario La Tercera, Diario La Segunda, Pu"blimetro, Chilevisión, El Mercurio Emol, Radio Bio"Bio, Radio FM Digi"tal, Radio Cooperativa%

5. Dinner at Hyatt Hotel, celebrating the WPD and the launch of the patient´s association, where 130 people enjoyed a wonderful evening, with dermatologist, rheumatologists, nurses and psoriatic patients.

6. Elaboration of a webpage www.psoriasischile.cl

7. Recruited 441 new members for the patient´s association

Contact: Claudia de la Cruz MDCoordinatorPsoriasis Working GroupChilean Society of Dermatology

On World Psoriasis Day in Beijing, Oct 29, Chinese dermatologist association, Chinese society of Dermatology and Chi"nese Association of Integrative Medicine $dermatology division% together with LEO Pharma $China% convened a grand press conference, which was lively broadcasted by the Peop le ‘ s da i l y on l ine $http://medicine.people.com.cn/GB/135894/172280/index.html%, the most renowned website in China. This is the first"of"its"kind press conference in China focusing on the burden of living with psoriasis. There are more than 125 million people with psoriasis/psoriatic arthritis in the world. Psoriasis is a severe chronic in"

flammatory disease that e#ects all ages, genders, races and ethnicities. Great pro"gress in the understanding of the disease has been achieved during recent years. Psoriasis is now considered as a poten"tially severe inflammatory disorder. It may impose major social, psychological, physi"cal and health impairment on patients, promote metabolic syndrome, inflamma"tory and cardiovascular co"morbidities and reduce life expectancy. The press con"ference brought together Chinese leading dermatologists and journalists for urging the public and the health authorities to react upon these new insights and develop

means and measures against psoriasis. The main topic of World Psoriasis Day this year is to elevate the understanding of psoriasis and its appropriate treatment. Besides the patient education, experts also appeal for avoiding the two extremities known as abandoning treatment and over"treatment among psoriatic patients in China.

Three Chinese Dermatological organiza"tions appeal for the more close coopera"tion on the future programs which include the further studies on psoriasis epidemi"ology, the guideline implementation, stan"dardization therapy and individualized therapy, educational programme for psori"atic patients. The activity will arouse the public awareness of psoriasis and encour"age healthcare decision makers and whole

society to give psoriasis su#ers better access to the most appropriate therapies for their conditions.

There are also many other series of activi"ties inclouding newspapers articles, TV program and interview about psoriasis, Information as well as distribution of reading material about psoriasis in hospi"

tals will follow.

Dr. Min Zheng, Dermatology Dept., Second A&liated

Hospital, Zhejiang University, School of Medicine,

310009, Hangzhou, China

WORLD PSORIASIS DAY IN CHINA

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CROATIA

In Clinical hospital center Rijeka, Croatia where Re#eral center for pso"riasis of Ministry of health of Republic of Croatia is located, on that occasion we, as a Re#eral center along with Pa"tient society for psoriasis"branch Rije"ka, organize "Open days" for patients . We had also contact local press and an article about psoriasis, patient problem, new therapies shall be published in or"der to improve understanding of all the di&culties and burden of this chronic disease. We also sent a reccomendation to our colleagues that work in other parts of Croatia to make similar activi"ties on that occasion.

Contact: Marija Kastelan, MD PhDHead of the Re#eral center for psoriasisDepartment of dermatology, Clinical hospital centre Rijeka, University of Rijeka Medical facultyKresimirova 42 HR"51000 Rijeka

FINLAND

Networking at the stationThe main event of the WPD in Finland took place at the Helsinki railway sta"tion. Approximately 250)000 people walk through the main station every day. The idea was to contact as many of them as possible and make them think ( at least for a couple of seconds ( of a condition called psoriasis.

We had a stand in the middle of the station with the head board saying: “Don´t be alone with psoriasis”. From the stand people could get more infor"mation about the disease and the local psoriasis associations.

Near the stand there was more action particularly for the younger generation. During the day youngsters with psoria"

sis build up an installation called “Pso"riasis at the station”. Some additions to this work of art were sent to Helsinki by train. “Mr. B. Virtanen”, quite a well known and popular cartoon character su#ering from psoriasis, also had an important role in WPD. The cartoon character was successfully used in media contacts and press releases, and the creator of the character ( a psoriasis patient him"self ( also came to Helsinki to meet media and fans.

One of the popular evening papers $Il "talehti%, read by 15 ' of the Finns $c. 750)000 people%, wrote in advance an extensive story about B. Virtanen, pso"riasis and WPD. Also Apu, one of the biggest general weekly magazines $read

by some 600)000 Finns% wrote about the same themes. In addition to this there were several smaller media hits.

Contact: Anja SchoneCommunications managerThe Finnish Psoriasis Association

GERMANY

Central press conference that the Ger"man Society of Dermatology is organi"zing in cooperation with other societies in Hamburg.

Contact: Prof. Dr. Peter ElsnerDDG"Ö#entlichkeitsarbeitErfurter Str. 35, 07743 Jena

HUNGARY

Preparing for the World Psoriasis Day $WPD%, the Hungarian Dermatolo!gical Society $HDS% made a short film to present and draw attention to psoriasis disease and treatments. This film has been broadcasted in hungarian and international television channels. $www.derma.hu%

Professor Lajos KEMÉNY, MD, DSc, Chairman of the Department of Dermatology and Allergology, University of Szeged; President of Hungarian Der"matological Society $HDS%

On 19th September 2009, the 3rd National Psoriasis Convention and Open Day was organized in Harkány, where patients and the deputies of 5 active patient associations participated from all over Hungary: Pécs, Kaposvár, Budapest, Debrecen, Harkány, Szeged ( 65 persons in all. The convention was organized by the Zsigmondy Vilmos Medicinal Spa Hospital, Harkány by the help of the Psoriasis Club of Szeged and Kaposvár.After the opening ceremony, certified specialists $rheumatologist, dermatolo"gist % lectured on the fol lowings: Harkány c i ty, thermal waters of Harkány, hydrotherapy, psoriasis arthri"tis, modern treatments of psoriasis. After the presentations, the attendance could survey the medicinal spa, and try out the thermal water.The 4th National Psoriasis Conven!tion will be organized in 2010 by the Psoriasis Club Hajdúság in Debrecen.

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On the occasion of the World Day of Psoriasis 2009, the following Cli!nics, Medical Centers, Foundations organised activities:

1.% On 29th October 2009, Clinic of Dermatology, Centre of Health and Me"dical Sciences, University of Debrecen organised a conference.

The programme of this conference:11 AM: Press conference in the library of the Clinic of Dermatology4 PM: Opening ( by Prof. Dr. Éva Re"menyik and Dr. Andrea SzegediLectures:" Prof. Dr. Éva Remenyik: The therapic possibilities of psoriasis" Dr. Andrea Szegedi: Our experiences in applying biological therapies" Lászlóné Koszorús: Practical issues of applying biological therapies" Reports of patients on the experiences in biological therapic treatments" Dr. Emese Herédi: Other diseases asso"ciated with psoriasis ( survey involving the patients of the clinic" Péterné Vatler: Report on the yearly activities of the Psoriasis Club of Hajdúság Region" Closing remarks ( by Prof. Dr. Éva Re"menyik" Free communication, questions and answers section" Reception

Free communication with specialists and patients

The most important messages of the World Day of Psoriasis conveyed by our conference:

1. Psoriasis a#ects the whole body.2. Psoriasis is not a cosmetic di"

sorder, but a disease.3. Psoriasis is not infectious.4. Appropriate treatment have to

be provided for patients with psoriasis.

5. The words of the 125 million patients with psoriasis must be listened to.

2.% On 29th October 2009, Psoriasis Center of Clinic of Dermatology, Sem"melweis University, Budapest organised an open day.

3.% On 29th October 2009, Hunga!rian Psoriasis Foundation organized a meeting in Budapest: „Psoriasis thera"pies as how the patients see” $ reports of patients on the experiences in di#erent treatments, free communication, chan"ging experiences%.

4.% On 30th October 2009, the Pso!riasis Club of Szeged organized a meeting at the Clinic of Dermatology and Allergology, University of Szeged: „World Day of Psoriasis”.

5.% On 30th October 2009, Clinic of Dermatovenerology and Oncodermato"logy, University of Pécs organized an open day $presenting the clinic, examina"tion of patients, o&cial formation of the Psoriasis Patient Club of Pécs%.

6.% On 30th October 2009, the Pso!riasis Club of Kaposvár organized an open day $commemoration of the 3rd National Psoriasis Convention and Open Day, new treatments of psoriasis, patient associations in Hungary, „patients with other patients about themselves and their experiences”%.

Patient Associations in Hungary

Hungarian Psoriasis Patients Asso!ciation / Magyar Psoriasisos Bete!gek EgyesületeAddress: !1092 Budapest , Ráday utca 55. I. 9/A.Email: szendim@mail.datanet.hu

Web: http://psoriasis.huPresident: Miklós Szendi

Szegedi Pszoriázis Klub / Psoriasis Club of SzegedAddress: !6720 Szeged, Korányi fasor 6.Telephone: 0036"30"338"2023E"mail:szegedi.psoriasis.klub@gmail.comWeb:http://www.psoriasisklub"szeged.fw.huPresident:Katalin Kovács $kati.szeged@gmail.com%

Psoriasis Club of Hajdúság / Hajdúsági Psoriasis ClubAddress:! 4012 Debrecen, Nagyerdei krt 98.Telephone: 0036"52"432"282 0036"30"380"2224E"mail:psoriasis@freemail.huPresident: Judit Vatler Péterné $vatlerjudit@freemail.hu% Psoriasis Club of Kaposvár / Ka!posvári Pszoriázis KlubTelephone: 0036"30"9579"477E"mail: noviki1@t"online.huPresident: István Balogh

Psoriasis Club of Pécs / Pécsi Pso!riasis Klub Address:! 7624 Pécs, Kodály Z. u. 20.E"mail: hrita24@freemail.hu

Hungarian Psoriasis Foundation / Magyar Psoriasis Alapítvány Buda!pestAddress: !1092 Budapest, Ráday utca 55. I. 9/A.Telephone: $0036"1% 218"8110Telefax: ! $0036"1% 218"8120E"mail: alapitvany@psoriasis.huHonlap: http://www.psoriasis.huSecretary: Zsuzsanna Kiss $vkiss.zsuzsanna@gmail.com%

Psoriasis Club of Eger will be foun"ded soon. Contac:t Zsuzsanna Pap $idegenvezeto@ecity.agria.hu, 0036"30"981"23"84%.

For more information, please contact president@derma.hu, and visit www.derma.hu

Contact: Eszter Martinovits Department of Dermatology and Venerology,University of Szeged H"6720 Szeged, Korányi fasor 6.

Actions all over Hungary on World Psoriasis Day 2009

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WORLD PSORIASIS DAY IN INDIA

CME PROGRAMME ON PSORIASIS IN CHENNAI

Sree Balaji Medical College and Hospital, Chennai

The speakers and chairperson of the CME included professors from various reputed medical colleges from Chennai.

Prof. Jayakar Thomas, Professor and Head, Dept of Dermatology, Sree Balaji Medical College and Hospital, Chennai, started the scientific session with intro"duction and threw light on newer con"cepts in the etiopathogenesis of Psoria"

sis. He described the study on Psoriasis and Co" morbidities being done at Sree Balaji Medical College and Hospital, Chennai. It is first of its kind in India. Around 50' of the study population had one or more co"morbidities like, Diabe"tes Mellitus, Hypertension, Obesity and Ischemic Heart Disease. The study re"sults reveal di#erent views and dimen"sions in understanding psoriasis as a sys"temic disease and the need for multidis"ciplinary approach in the management of psoriasis to increase the life expectan"cy of the patients, Prof. Thomas added.

This presentation was followed by Prof.

S.Jayakumar, Professor of Dermatology, Madras Medical College, Chennai, who spoke on topical management which was simple and very comprehensible. Prof. K. Manoharan, Professor and Head, De"partment of Dermatology, Stanley Medi"cal College, Chennai spoke on systemic

management of psoriasis, which included all the newer and e#ective aspects of management. This was followed by a presentation from Dr. D.Manoharan, Department of Dermatology, Sree Balaji Medical College and Hospital, Chennai, who enlightened on the biologics, which are emerging as the ultimate therapy for psoriasis.

The scientific session was co"ordinated and chaired by Prof.D.Prabhavathy, Pro"fessor and Head, Department of Derma"tology, Madras Medical College, Chen"nai. She concluded the scientific session with her remarks and a healthy discus"sion.

Contact:Prof. Jayakar Thomas, Professor & Head, Department of Skin & STD,Sree Balaji Medical College, ChennaiPresident, Indian Society of Teledermatology&Vice President, International Society of Telederma"

tologyRes: 135, East Mada Church Road,Royapuram, Chennai 600013 INDIA

27!10!2009 ! WPD awareness meetings, conducted in Depart!ment of Dermatology, Sri Ra!machandra medical College and hospitals, Chennai

Patients" 130Doctors" 21Others ( 107Total No. of attendants=258

The meeting was conducted with following details:

1. PPt"shown about the history, pa"thophysiology of psoriasis and treat"ment options available in India also discussed.2. On behalf of PSI, I spoke about the psychosocial impact of psoriasis and the role of PSI & IFPA in creating the awareness about the disease in India and globally.!

3. Interactive session has been fol"lowed after my speech. All the pa"tients shared their feelings and emo"tions with each others. They also raised the question, about prevention and finding the cure for psoriasis.

4. Support Group leader gave vote of thanks. Snacks and tea has been given to all attendants. Duration of the session was 2hrs and 40mints.

29!10!2009 ! WPD awareness meetings Conducted in SIPS h o s p i t a l Lu c k n o w c i t y b y D r. A M I T M A DA N , Vi c e!President, Psoriasis Society of India.

Total Number of attendants = 228 $patients " 142, Doctors ( 18, Others ( 68%

The meeting was conducted with following details:

1. PPt.presentation of history, etiol"ogy, pathophysiology, prevention and management of psoriasis has been

explained to all the patients and pub"lic by our PSI vice" president.

2.Free psoriasis counselling & medi"cine has been given to all the patientsSnacks and tea has been provided to all the attendants. Duration of the session was 2hrs and 15mints.

Contact: Dr.C.UDAYAKUMAR Ph.DPresident, Psoriasis Society of India,Chennai"59www.psorind.com

WPD AWARENESS MEETINGS BY PSORIASIS SOCIETY OF INDIA

PSORIASIS INTERNATIONAL NETWORK! 30 NOVEMBRE 2009

! PAGE 9

IRAN ! PROGRAMME OF WORLD PSORIASIS DAY

Contact: Dr S.Zahra GhodsiAssociate Professor of DermatologyTehran University of Medical Sciences Razi HospitalVahdat Islami Sq, 1199663911 TehranIran

PSORIASIS INTERNATIONAL NETWORK! 30 NOVEMBRE 2009

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ISRAEL

Summary of activities for WPD 2009

1. A course ( The art of treating psoriasis was held in Herzlia. In this course, that covered various subjects of psoriasis treatment, including e&cacy and safety of biolo"gics, new biologics on the market, participated 200 der"matologists.

2. Photo exhibition in favor of WPD was opened in Tel Aviv Sourasky medical center.

3. The Israel Psoriasis Patients Association will organize patients meeting on WPD, during which a number of

lectures will be given by dermatologists.

Contact: Lev Pavlovsky, MD, PhDDermatology Dept. Rabin Medical CenterIsrael

MEXICO

OCTOBER ACTIVITIES

WORLD PSORIASIS DAY 2009

DATE ACTIVITY No. PEOPLE PARTICIPATION AND SUPPORTOctober 13 Interview in the radio “El Dictamen”, to promote

the creation of the psoriasis group of Veracruz State.

Many thousandsNot quantifiable

Laboratory LEO PHARMA

October 13 Interview in Televisión Azteca, on the start of Veracruz State psoriasis group Not quantifiable

Laboratory LEO PHARMA

October 17 Beginning of the Psoriasis Group for patients and families in Veracruz State

37 Laboratory Galderma

October 20 Press Conference with 20 meda, radio, press and internet health news

Many thousandsNot quantifiable

Laboratory SCHERING PLOUGH

October 21"24 Congreso Nacional de Psoriasis, Día Mundial de la psoriasis 3 Entrevistas de radio

Many thousandsNot quantifiable

Laboratory LEO PHARMA

October 22"24 9 radio spots in “El Fonógrafo”, “Radio Centro” and “Radio Red”

Many thousandsNot quantifiable

Laboratory LEO PHARMA

October 24 Meeting of Psoriasis Group for patients and fa"milies Reunión, “Sendero de Esperanza” $Path of Hope%, in Mexico City

42AMCPSO

October 25 National Psoriasis Congress, on the occasion of World Psoriasis Day

410 ABBOTT, SCHERING PLOUGH, WYETH GALDERMA, LEO PHARMA, JANSSEG ( CILAG, UNILEVER $VASENOL% AND AMCPSO.

October 25 Realisation of a survey on the quality of life for psoriasis patients and their families ( first of the 3 phases of the survey.

300 people were directly surveyed

AMCPSO AND LEO PHARMA

October 28 Photography prize “A flor de Piel” $Under the skin%

Many thousandsNot quantifiable

LABORATORY ABBOTT

October 29 Danish Ambassy: AMCPSO’s President was invi"ted as speaker to participate on the event of Leo Pharma’s arrival to Mexico

Audience: medical community, dermatolo"gists and main public health authorities of Me"xico.

LABORATORY LEO PHARMA

Contact: Ricardo Navarro MendozaAMCPSO President

PSORIASIS INTERNATIONAL NETWORK! 30 NOVEMBRE 2009

! PAGE 11

NETHERLANDS

On 31 of Oktober there is a National Psoriasis Day organized one of the two patientorganisations in the Netherlands, the PVN, Psor ia s i s Veren ig ing Nederland. Dermatologists are involved g iv ing l ec tures and workshops . Dermatologist supported projects $ I Am ahat I am project% and gave interviews in relation to this day for radio and newspapers.Contac: Phyllis I. Spuls MD PhDchairman workgroup psoriasis NVDVDepartment of Dermatology, room A0"227Academic Medical CenterMeibergdreef 9 P.O Box 226601100 DD Amsterdam, The Netherlands

PHILIPINNES

On October 25, we had the first part of our WPD celebrations this year's "" the FunWalk. It was one of the most suc"

cessful and highly attended walks that we had since we started doing this 5 years ago. We even had the City mayor of Ma"nila to welcome all psoriasis patients, their families and doctors. We turned the streets into one big party place as music

was provided by loud drums playing to our every step.

On October 29, at 2pm $ local time% we had a press conference for the Hug"Me"Campaign "" our final event in celebra"tions of the World Psoriasis Day.

The 2 national TV giants have told they would come. At least 6 national TV shows covered the event that was shown from the 29th trough the weekend. Seve"ral journalists from newpapers, tabloids and magazines were also invited along with famous local celebrities.

We are using IFPA's theme for the press

conference: "Psoriasis is a serious disease that deserves Attention!". All throughout the event, this message was repeated and in between, Famous local celebrities hugged our members before the media

Contact: Josef De GuzmanPresident/CEO " PsorphilMember: IFPA Executive CommitteeMember: WPD Steering Committee.

PORTUGAL

The World Psoriasis Day in Portugal was divided in 3 moments:

1.October 24th ! “Lunch with Psoriasis”Dalia Madruga and Helio Loureiro are two of the Psoriasis patients who joined the PSOPortugal " Portuguese Association of Psoriasis in the action, “Lunch with Psoriasis”.

In order to raise funds for the creation of a Phone Line Support to patients of psoriasis, several people pointed out in advance this initiative, the World Psoriasis Day, which is celebrated on the 29th October. The Line on Support for Psoriasis patients will serve to provide information, direct, advise and support those who su#er from the disease.

Hélio Loureiro $Chef%, Dália Madruga $Tv Presenter% e João Cunha $PSOPortugal President%

2.October 29th # World Psoriasis DayIn the World Psoriasis Day " October 29, PSOPortugal was present in some media such as radio, newspapers and televi"sion, in particular programs:Consultório $on TVI 24% " 10 a.m. to 11 a.m. ( in this program $direct tv% was a dermatologist who answered questions from tv viewersSociedade Civil $on RTP2% ( 2 p.m. to 3 p.m. " "Living with psoriasis" ( in this program $direct tv% were a dermatologist, rheumatologist, psychologist and the PSOPortugal President. They discussed the impact of physical and psychological illness and the need to be recognized as a chronic disease by the Por"tuguese Government.Some Radio, newspapers and Internet news:

PSORIASIS INTERNATIONAL NETWORK! 30 NOVEMBRE 2009

! PAGE 12

3. November 7th ! 5th Meeting of PSOPortugal "Living with Psoriasis and Psoriatic Arthritis»

On November 7th, we had the 5th Meet"ing of PSOPortugal "Living with psoria"sis and psoriatic arthritis” at the Hotel Marriott Praia d'El Rey $Peniche%.

In the morning, in addition to deal with a#airs of the Association, also elected new Executives for the biennium 2009"2011.

In the afternoon, we had the presence of two doctors, a dermatologist and a rheumatologist to enlighten us about the disease and inform us about many $new% treatments for psoriasis and psoriatic arthritis.

Contact: Gisélia Barreto " PSOPortugal

SLOVAKIA1. 29/30 october: Meeting of patients psoriatic association Spa Smrdaky2. Creation of new information booklet for psoriatics 3. 29.october .2009 Press conference, Bratislava4. 10. november 2009 Dermatology lec"

tures for patients , Martin

Contact: Slavomir Urbancek

Dept of Dermatology, F. D. Roosevelt Hospital

97517 Banska Bystrica, Slovakia

SWITZERLAND

In 2004, the 29 October was declared as the World Psoriasis Day. The Swiss So"ciety for Psoriasis and Vitiligo is very active every year in this context.

We made information booths in seven towns in Switzerland. We organized pu"blic lectures by dermatologists.

This year, we havealso organized a web chat with experts $ a dermatologist and a nutritionist% that turned out to be very successful. This Web chat was organized

in collaboration with the German and the Austrian Psoriasis Organisations.

Contact: Adelheid WitzelingSSPV/SPVG PresidentScheibenstrasse 20,Case postale 1, 3000 Berne 22

UKRAINE

During world psoriasis day following activities were held:

1. Satellite symposium of Ukrainian Pso"riasis Association during the conference of Ukrainian association of dermatolo"gists, venereologists and cosmetologists $27"29 October 2009%.

2. Ukrainian Psoriasis Association active members were distributing promo mate"rials and giftware $t"shirts, caps, pens, cups, calendars etc% during WPD

3. President of Ukrainian Psoriasis Asso"ciation Prof. Aleksandr Litus, vice"president Prof. Yuriy Andrashko and our members from regions took part in fol"lowing media activities:

TV shows

27.11.09: Round table dedicated WPD on RADA $Ukrainian parliament channel% http://www.rada.gov.ua/~dtrp/index.htm

28.11.2009: Press conference dedicated to WPD on UNIAN $Ukrainian biggest information agency% http://unian.net/

Radio shows

30.11.09: Radio Show dedicated to WPD in Ukraine on Radio ERA FM http://www.radioera.com.ua/

Publications in magazines

“Interview with Prof. Litus, about pso"riasis and WPD” in magazine Public Peo$pl% http://pl.com.ua/

Contact: Kuzma KhobzeySecretary of NGO Ukrainian Psoriasis Association

VENEZUELA

Since 2007, we celebrate World Psoriasis Day, selecting a di#erent hospital each year. This year, World Psoriasis Day was celebrated in Gaiparo Hospital in San Felix, state Bolívar Venezuela, where a conference was held with psoriasis pa"tients, family and friends with the aim of improving their quality of life. The con"ference was followed by a question"answer session. At the end of the con"ference refreshments were o#ered to the participants. 5 dermatologists of the Photodermotherapy Unit participated to this conference, which was held in colla"boration with the Hospital director and the Laboratories. On the next day, we gave a conference on “Knowing Psoria"sis” at VII Meeting of Family Medicine to the practitioners specialised in this discipline. Other activities that we carry continously all year long refer to the publication of educational articles for the community; this articles are pu"blished on the Sunday insert “Salud Acti"va” of the daily newspaper “El Lucha"dor”.

Contact: Ismery CabelloDermatologist " Dermatopathologist

FONDATION RENE TOURAINEPsoriasis International Network

For fur ther in format ion , p lea se contact our Webof f i ce a t webo&ce@psoriasis"international.org or by phone at +33 1 53 72 20 80

The o$cial WPD 2009 activities report shall be presented by IFPA in the beginning of 2010, when finalised.

Please check www.worldpsoriasisday.com for more information.