united nations economic commission for europe statistical division measuring disability...
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United Nations Economic Commission for EuropeStatistical DivisionUnited Nations Economic Commission for EuropeStatistical Division
Measuring Disability Statistically
A Challenging Task!
Angela Me, Chief Social and Demographic Statistics Section
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 2
Disability in Central Asia (1999)
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Kazakhstan Kyrkyzstan Uzbekistan Azerbaijan
New registered cases of disability per 100,000 population Source: Highlights on Health, WHO-Europe
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 3
Disability in Central Asia (Tajikistan)
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 4
Disability in Central Asia (Uzbekistan)
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 5
Disability in SEE and CIS countries
Source: Children and disability in transition in CEE/CIS and Baltic States, UNICEF 2005
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 6
Disability in SEE and CIS countries
Statistician in Georgia:
“Formerly families tried to hide cases of disability, while at the present time they hope to gain help by registering their children”
Source: Children and disability in transition in CEE/CIS and Baltic States, UNICEF 2005
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 7
Disability in SEE and CIS countries
Disability statistics focus on people who are registered:
• in social security records• Disability registers • Medical records
The Soviet concept of disability relied upon a set list of medical conditions for defining
disability
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 8
Disability in SEE and CIS countries
Institutions that deal with disability are mostly:• Ministries of health • Ministries that manage Social Security
System
Why should National Statistical Office be concerned about disability statistics?
What role can National Statistical Offices have to improve disability statistics?
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 9
Disability rates in the world
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101520253035
Singapore (1985)
Pakistan (1981)
Brazil (1991)
Philippines (1995)
Thailand
Colom
bia (1993)
Kyrgyzstan (2002)
Sri Lanka (1986)
Gaza Strip (1996)
India (2001)
Uzbekistan (2001)
Turkey (2002)
Egypt (1996)
Korea (Republic of) 2005
Malta (1995)
Italy (1994)
China (1987)
Japan (2002)
Poland (1988)
Netherlands (1986)
Sweden (1988)
Spain (1986)
Australia (2003)
Norw
ay (1991)
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 10
Concept of disability in CIS countries
Countries around the world use a different definition of disability
Who is a person with disability?
Tajikistan: a person is defined as a person with physical, intellectual or mental abnormality
Uzbekistan: a person who is in need of aid because he/she has physical or mental problems. Daily activities such as moving, orientation, speech, behavioural control, and/or work on one’s own are completely or partially limited.
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 11
Concept of disability in the world
Who is a person with disability?
Netherlands: a person who is limited in his or her functioning as a result of a physical or mental impairment. Such limitation is of a lasting or permanent nature, which means that people with disability are threatened in their personal development
Sweden: a person with a permanent physical, mental or intellectual limitation of a person’s functional capacity that is a consequence of an injury or illness that existed at birth, arose thereafter or may be expected to arise.
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 12
Concept of disability in the world
Who is a person with disability?
United Kingdom: a person who has a physical or mental impairment which has a substantial and long-term adverse effect on his ability to carry out normal day-to day activities.
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 13
Concept of disability in the world
Who is a person with disability?
UN Convention (2006): Persons with disabilities include those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others.
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 14
Concept of disability in the world
There are no right or wrong definitions of disability (they depend on the purpose)
What a society define as “disability” reflects its conception of a normal and socially
functional human being
Since social values and norms change overtime, the notion of disability has changed overtime and in different countries
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 15
Concept of disability in the world
From
a Medical Definition of disability – based on the medical condition as an
individual pathology
To
A concept of disability based on the consequences of diseases (functioning) and/or social
participation
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 16
Concept of disability in the world
• The workshop focuses on the new concepts of disability
• It aims at helping to broaden the view related only to medical conditions/social security benefits
• National Statistical Offices have a major role in measuring this new concept of disability
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 17
Concept of disability in the world
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- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 18
Concept of disability in the world
A broader concept of disability can be measured only through population-based data collection because the focus is on the individual’s experience
However – in order to be able to work with COMPARABLE statistical information, methodological aspects are of great
importance
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 19
Concept of disability in the world
The role of National Statistical Offices in measuring disability in:
• Health Interview surveys
• Living Standard Measurement Surveys
• Population Census
• Other on-going surveys
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 20
Content of the workshop
• Different purposes, different definitions/approaches to disability
• International definitions and classification
• Measurement of disability based on international standards: Sources Methods
• Information needed on persons with disabilities
• Washington Group and the role of Central Asian countries in this international work
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 21
Together we will deal with…
• Problems connected with the sensitivity of the concept “Disability”In defining WHAT should be measuredIn developing the content of questionnairesIn developing the techniques of interviewingIn training interviewersIn participating to work out good
methodology internationally