understanding pain management practice in patient...

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4/8/18 1 Understanding Pain Management Practice in Patient Experience Presenter: Susan E. Mazer, PhD Susan E. Mazer, Ph.D. Understanding Pain Management Practice in The Patient Experience Beryl Institute PX Conference 2018 1. What is pain to the patient? 2. History of pain: the many myths 3. Pain relief: from opium to opioids 4. Pain Theory: relevance today 5. Handing the power of relief back to the patient What I’ll Cover Today

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4/8/18

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UnderstandingPainManagementPracticeinPatientExperience

Presenter:SusanE.Mazer,PhD

SusanE.Mazer,Ph.D.

UnderstandingPainManagementPracticeinThePatientExperience

BerylInstitutePXConference2018

1. Whatispaintothepatient?2. Historyofpain:themanymyths3. Painrelief:fromopiumtoopioids4. PainTheory:relevancetoday5. Handingthepowerofreliefbacktothepatient

WhatI’llCoverToday

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WhatEveryoneKnowsAboutPain

ThisisPain

MostCommonResponse

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ResponsetothePainofOthers

WhatisPaintothePatient?

2018:WhatisPain?

Whatever thepatientsaysitis!

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2018:WhatisPain?

Noticeable

2018:WhatisPain?

“…canbeoverwhelming,demandsimmediateattention,anddisruptsongoingbehaviorandthought…”

Melzac,R.1968

Painis#1motivator…• “TodoorNottodo,”thatisthedilemma• “TotellornottoTell”• “Totakemoreortakeless(ortakenothing)”• “Totry,tonottry,andtotrystillmore”

Pain:TheBig“P”

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Painreliefdemotivatesalltheabove.

PainRelief:TheLittle“p”

OpioidEpidemic:HowDidWeGetHere?

Opioids:• Prescribedasneeded• Ondemand• TosecureHCAHPSrating• Easiest/mosteffective*?

Hint:*Thedefinitionofanaddiction.

• Homer:“ArrowshotfromGod”

• Aristotle:“Painisapassionofthesoul”

• Plato:“Painisanemotion,notasensation”

TheMythologyofPain?

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Thestimulationgoesstraighttothebrain(“PainCenter”).Isfullyofthebody,notthemind.

Breakthrough:ReneDescartes

TheCartesianDivide:“Ithink,thereforeIam.”

• Acutevschronic• Knownvsunknown• Expectedvsunexpected• Mildvsdebilitating• Other?

NotAllPainsAreAlike

Thecausemaybeobjective,buttheexperienceisalwayssubjective.

NotAllPainsAreAlike

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HistoryofPainRelief

Mandragora:• Hallucinogenic,hypnotic,

poisonous,etc• Analgesicforrheumaticpain• 2ndcenturyBCto7thAD:

Mainlyusedwithopium.

Andinthebeginning…

Dodoens,Rembert,1583.Stirpium historiae pemptades sexsivelibri XXX.Antverpiæ,exofficina Christophori Plantini.(scannedfromReprint1979,Uitgeverij deForel,Nieuwendijk(Netherlands).,PublicDomain,https://commons.wikimedia.org/w/index.php?curid=21709570

• Opium• NitrousOxide• Laudenum• Ether• Cannabis• Morphine• Codeine• Opioids

FromOpiumtoOpioids

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FirstuseoffullanesthesiainBoston*,1846

PainRelief:Anesthesia

*CrawfordW.Long,Columbus, GA

• Bayer!!• AcetylsalicylicAcid,

1899

PainRelief:Potions

Tylenol,1955• Children’s• Adult

PainRelief:Acetaminophen

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PainManagementTheories

• Patientcanmodulatepain• Pathwayfromcentralnervoussystemtothebrain• Non-painfulstimulicaninhibitpainfulstimuli• Mayindicatetissuedamage,butmaynot

Melzack/Wall:GateControlTheory(1965)

Melzack/Casey:ExperienceofPain(1968)

• Somatic, orsensationofpain• Perception ofpleasantnessorunpleasantness(whichcanleadtothefightorflightresponse)

• Evaluation or“appraisal,culturalvalues,context,andcognitivestate”

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Melzack/Casey:MechanismforSelf-Management(1968)• Meaningmaking• DirectedAttention• ActiveDistraction

“Thereignofpainliesmostlyinthebrain.”

Melzack/Casey:MechanismforSelf-Management(1968)

--Cathryn Jakobson Ramin

Whatinfluencestheexperienceofpainandwhetheritisrelieved?

• PainExpectancy:Isitavoidableornot• PainAcceptance:Ifunavoidable,preparationforit• PainApprehension:Anticipatorysuffering• PainAnxiety: Thegreaterthefear,thegreaterthe

pain

MarkZborowski (1908– 1990)MedicalAnthropology

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Involvestheimmediacyoftheexperienceanditsexpressionconstrainedbysocialcontextandenvironmentalsetting.

Craig,K.D.:SocialCommunicationModelofPain(2015)

• Distinguishesintrapersonalandinterpersonalsourcesofinfluenceonbothsufferingpersonsandobservers

• Emphasizes(Intrapersonal)whattheindividualbringstothepainfulexperience

SocialCommunicationModelofPain

SocialCommunicationModelofPain

KennethD.Craig,2015

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Timeline:ChronologyofPain

AntecedentPain

ExperiencePain

Expression

Timeline:ChronologyofPain

Decoding/Response

Action-DeliveryofCare

Antecedent

PainDenial:BeingMetWithDisbelief

• Illness/Pain:deviantbehavior• Judgement:abarriertorelief• Cultural/socialnorms:informself-report/

medicationuse• Under-reporting:under-treatment

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Autonomousresponsebasedon:• Beliefs

• Anticipation

• Expectancy

ThePlacebo-NoceboResponse

“… themeaningresponse[isthe]physiologicorpsychologicaleffectsofmeaningintheoriginsortreatmentofillness;meaningresponseselicitedaftertheuseofinertorshamtreatmentcanbecalledthe“placeboeffect”whentheyaredesirableandthe“noceboeffect”whentheyareundesirable.”

MeaningResponse

Moerman,D.D.,Jonas,W.B.(2002)

Pain’sImpactonthePatientExperience

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Thesumofapatient’spriorexperienceswithpain,shapedbyapatient'sbeliefs,expectations,andtheirsocial/culturalcontextthatinformthepatient’sresponsetopainanditsmeaning.

ThePatientExperienceofPain

Painbeliefsfullyinfluencepatients’painthreshold,participationintheircare,andinformtheirsuccessinself-regulation.

• Agitation• Anxiety• Stress• Suffering

HowPainisthePatientExperience

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• Environmentalstressors

• Expectancy• Placebo/nocebo effects• Social/culturalvalues

HowPainBecomesthePatientExperience

• Minimizeenvironmentalstressors• Provideaccesstobeauty,nature,including

mediatednature• Minimizeclutter• Assessandadjusttheenvironmentwithevery

patientinteraction

CreateaHealingEnvironment

• Asenseofpleasantness• Makestimemovefaster• Musicpacestime,providesanemotionalcontext

Whatdoestalktelevisionprovide?

PositiveValence

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APositiveDistraction“…anenvironmentalfeaturethatelicitspositivefeelingsandholdsattentionwithouttaxingorstressingtheindividual,therebyblockingworrisomethoughts.”

Isthisscary?Isthistheendorthebeginning?Isithotorcold?Isthisgoodorbad?Whatdoesthismeannow?Arewesafe?AmIsafe?Howlongwillthislast?

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• Notoneelementworksforeveryone• Notoneelementworks24/7foranyone• Habituation• Variety• Stimulating

PositiveDistraction

• Nature(variousforms)• Music(bothpatientpreferenceandnew)• Conversation(hopeful,personal)• Media

PositiveDistraction

VirtualReality• Cedars-Sinai:24%drop

inpainscores• Universityof

Washington:76-22%dropinamountoftimethinkingaboutpain

VirtualReality/ImmersiveInterventions

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• 29%reductioninpainmeds

• Fewersideeffects• 1.5dayaverage

reducedlengthofstay

Non-PharmaceuticalInterventions

Theidentificationandmanagementofpainisanimportantcomponentof[patient]-centeredcare.[Patients]canexpectthattheirhealthcareproviderswillinvolvethemintheirassessmentandmanagementofpain.Bothpharmacologicandnonpharmacologic strategieshavearoleinthemanagementofpain.

• Engagesmindandbodytoreduceanxiety,increasecopingskills

• Providespositivedistraction• Providesrespitefrommental/emotionalfatigue• Providestooltousebeyondthehospital

GuidedImagery

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NightsareDifficult

• Elusiverest

• Unfamiliarenvironment(includingnoises)

• Limitedresources• Isolation

• Loneliness• Ruminations

PainIsWorseatNight

• Isolating• Influencedbythemeaningattributedtoit• Ismitigatedbypositivedistractions,evenatnight

NightsDoNotHavetoBeasDifficult

• Planinadvancew/patient-family• Optionsforpatient• Restfulnessshouldbeofferedthroughtheday• Patientandfamilyshouldcoordinate• Whatworksforthispatient?

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• Acupuncture• Chiropractictherapy• Osteopathicmanipulativetreatment• Massagetherapy• Physicaltherapy• Relaxationtherapy• Immersiveexperiences• Cognitivebehavioraltherapy

Non-pharmacologicInterventions

HandingthePowerofHealingBacktothePatient

• Attheleast,Unpleasant• Notalwaysavoidable,notalwaysbad• Influencedbyphysicalandnon-physicalfactors• Informedbymood,attitude,beliefs,values,

social/familialcontext,andthemeaningattributedtothepainbythepatient.

PainIs…

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Patientsneedmorethantheblurofactivity.

Painbeliefsinformpatients’painthreshold,participationintheircare,andinformtheirsuccessinself-regulation.

• Aninformedcaregiver/bedsidestaff

• Involvementofthebedsideteamwiththepatient

• Anenvironmentthatminimizesstressors

• Positivedistractions,includingaccesstonature,variety

• Supportofthefamily/closesocialcircle

WhatdoesManagingPainRequire?

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• Equanimitybetweenpatient/caregiver

• Alignmentbetweensocialvaluesandtreatment

• Acknowledgementandsupportbetweenpatient/caregiver

• Altruisticpracticesembeddedinclinicalexcellence

WhatdoesManagingPainRequire?

Summary

• Communicatesupportandempathy• Createahealingenvironment• Providepositivedistractions• Offerguidedimagery• Offerimmersivetechnologies• Beawareofpositive/negativemedia• Planfornights

• Gate-ControlTheory:Positivedistractionisprimarytoself-managementandincreasingpaintolerance

• SocialCommunicationTheory:Painmanagementusesthesymbiosisbetweenpatient/others

• Painreliefissubjectiveandobjective• Painisephemeral:livesandchangesovertime• Combinationofbiomedicalandpsychosocial

strategiesisrequisiteCaution:Addictionisalwaysariskwhenthegoalisself-medication/management

Summary

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Howfaryougoinlifedependsonyourbeingtenderwiththeyoung,compassionatewiththeaged,sympatheticwiththestrivingandtolerantoftheweakandstrong.Becausesomedayinlifeyouwillhavebeenallofthese.

GeorgeWashingtonCarver

Theonlydifferencebetweenthepatientandthecaregiverisacuity.

PatLinton

SusanE.Mazer,Ph.D.President&CEO,HealingHealthCareSystems

Email: [email protected]:www.healinghealth.com/susan-mazer-blogLinkedIn:www.linkedin.com/in/susanmazer

QuestionsandThankYOU!

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BreakoutSession5:00PM

WinachanceforaComplimentary2019ConferenceRegistrationbycompletingtheevaluationforeachsessionyouattend. JustaneasyclickontheFeedbackIconfoundonyourmobileappandafew

momentsofyourtimetocompletetheevaluation.Yourfeedbackisveryimportanttous.

70

Next…

www.theberylinstitute.org

PainManagementandthePatientExperience2018References

SusanE.Mazer,[email protected]

Keywords:Pain,Painmanagement,paintheory,historyofpain,Gate-ControlTheory,SocialCommunicationsModelofPain,Placebo,Meaning-response,psychologyofpain,ReneDescartes

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