Inclusion North needs to send reports to the Transforming Care Assurance Board. These reports will collect together what you are finding out around the country.

Please use this template to give us the information you have collected. We need to know what you’ve been doing and what you’ve found.

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Support to the Transforming Care Programme Reporting template

Who has completed this template?

Name:

Organisation:

Date:

If you need any support filling this in, then please get in touch with Lucy at Inclusion North:

Phone:07944 185 771

lucyvirgo@inclusionnorth.org

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Two important things to remember….

1. We need to know about people with learning disabilities and their families affected by Transforming Care - this is people with learning disabilities or autism who also need support with their mental health or have the label of challenging behaviour. All through this template, when we talk about people with learning disabilities and family carers, we mean those people affected by Transforming Care, NOT all local people with learning disabilities and family carers

2. You NEVER need to collect information about or know the names of individual people affected by Transforming Care. This work is about thinking generally about how things are going

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What have you done to collect the information?

Please tell us what you have done to collect the information you have collected? Have you sent out questionnaires, held meetings or interviewed people?

How many people and families have you heard from or spoken to?

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Good information

Local people with learning disabilities and family carers should know about Transforming Care and the responsibilities that Local Authorities and Clinical Commissioning Groups have.

Across your region you need to find out whether this is happening. You will need to find out:

Do local self advocates and family carers know about Transforming Care and what should be happening locally?

Do local groups know who the people leading Transforming Care work locally are?

Do local groups know how many local people are in assessment and treatments and secure units -

What have you found?Please tell us numbers of people whenever you can.

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If you think that people don’t know about Transforming Care, then why might that be?

Can you give some examples of what is happening, both things that are working and things that are not?

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Local people working together

Local self advocacy and family carer groups should be linked into their Transforming Care work-plan. They should be working in partnership to plan what needs to be done locally to make sure Transforming Care really happens.

Across your region you need to find out whether this is happening. You will need to find out:

Are local self advocacy and family carer groups really partners in planning what local services and support should look like?

Does this include people who have a learning disability or autism and a mental health problem or the label of challenging behaviour? Does it include their family carers?

What have you found?Please tell us numbers of people whenever you can.

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If you think that people are not being properly involved, then why might that be?

Can you give some examples of what is happening, both things that are working and things that are not?

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Local groups self advocates and family carer groups should know about the plans for people who are living in assessment and treatment or secure units to leave. These are called discharge plans.

Across your region you need to find out whether this is happening. You will need to find out:

Do local groups know about whether or not people who are in assessment and treatment or secure units have discharge plans, including a discharge date?

Do local groups know whether everyone living in an assessment and treatment or secure units has a care coordinator to make sure this happens?

Do local groups know about who is having Care and Treatment Reviews? Do they know whether Experts by Experience are part of Care and Treatment Reviews?

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Good care in hospital

What have you found?Please tell us numbers of people whenever you can.

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If you think that people don’t know about people’s discharge plans, then why might that be?

Can you give some examples of what is happening, both things that are working

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Local self advocacy and family carer groups should be working with the Transforming Care Partnership and local Health and Wellbeing Boards. Their job is to make sure that services are being planned to stop people needing to go into hospital. That means really good support in the community.

Across your region you need to find out whether this is happening. You will need to find out:

Are local self advocacy and family carer groups really partners in planning what local services and support should look like?

Does this include people who have a learning disability or autism and a mental health problem or the label of challenging behaviour? Does it include their family carers?

Do local self advocacy and family carer groups know about the risk of admission register and how it is working locally?

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Stopping people going into hospital if they don’t need to

What have you found?Please tell us numbers of people whenever you can.

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If you think that people are not involved properly in planning local services, then why might that be?

Can you give some examples of what is happening, both things that are working and

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Local self advocacy and family carer groups should be working with theirSafeguarding Board to make sure that they are thinking about how to keep people safe.

Across your region you need to find out whether this is happening. You will need to find out:

Are local self advocacy and family carer groups really working with their local Safeguarding Board as equal partners?

Does this include people who have a learning disability or autism and a mental health problem or the label of challenging behaviour? Does it include their family carers?

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Keeping people safe

What have you found?Please tell us numbers of people whenever you can.

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If you think that people are not involved properly with their local Safeguarding Board, then why might that be?

Can you give some examples of what is happening, both things that are working and

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Local self advocacy and family carer groups should be able to see a real change in how services are being designed and delivered.

They should be able to see how care and support is getting more person centred, so that people really can get the support they want.

Across your region you need to find out whether this is happening. You will need to find out:

Do local self advocacy and family carer groups have evidence that care and support is getting more person centred?

Are more people getting personal budgets so they can really plan the support they want?

Are people’s care and support plans more person centred and show the outcomes that people want from their lives?

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Changing how care and support happens

What have you found?Please tell us numbers of people whenever you can.

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If you think that care and support is not getting more person centred then why might that be?

Can you give some examples of what is happening, both things that are working

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Thank your for all you hard work in making this important work happen!