the voice of plc oct - nov 2011

8/3/2019 The Voice of PLC Oct - Nov 2011

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The Plymouth Laryngectomy Club (PLC) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC)

In Association with Macmillan Cancer Support

Registered Charity Number: 273635

Our Funder: Macmillan Cancer Support

A Member ofThe Plymouth Third Sector Consortium (PTSC)

Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS - Consultant ENT Surgeon,

Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.

The Plymouth Laryngectomy Club (PLC)A Charitable Support Group for Plymouth Cancer Laryngectomees

The Voice of PLCOctober- November 2011

Address: c/o 80 Warleigh Avenue, PLYMOUTH, PL2 1DH, Devon, UK

Mobile: 07745819828 (text only) Email: [email protected] Website: http://plymouthlc.webs.com

FOREWORD BY THE CHAIRWritten by Geoffrey N. READ

Dear Friends & Supporters,

The Plymouth Laryngectomy Club is now one-year-old and

has just held its first Annual General Meeting. The results

are reported later in this newsletter.

I should like to offer my thanks on

behalf of all Club Members to Ted

BURNETT, a founder Member and our

Chair for our first year. And behind

every good man there is always good

woman! So our thanks also go to Liz

for her support in our first year... not

least for her photographic efforts!

Now we have a new Committee which hopefully will carry

on the good work. I should particularly like to thank Fiona

MARTIN for volunteering for the post of Entertainments

Member. This should spread the work load considerably.Thanks Fiona!

Our first year was spent getting the Club organised, writing

constitutions, rules and regulations, etc.

Now we have that fairly well organised we intend that the

Committee should handle the day-to-day management of

the Club and then report its actions to Members via the

Clubs Newsletters.

This will then mean that our monthly Club Meetings will

become less cluttered with Club business. We still intend

to have a meeting one month at the Mustard Tree and the

next away from Derriford but we really hope to makethem just that much more sociable.. giving our Members

more time together.

We do hope you will give us your support!GeoffChair, PLC

EDITORIAL COMMENT

NTERNET Links. If youre reading this on-line and come

across words with blue lettering that are underlined, then

you can click on these links and be taken directly to another

site for more information on that particular topic.

If you read this on Microsoft Word, you can put your cursor

over the link, hold down the Control (Ctrl) Key and click! Ed.

LAUGH AT LIFE!

HE BAD AND THE WORSE NEWS. A man visits the

doctor for a check-up and after some tests, the doctor

comes in with a grave look on his face.

Doctor: Well, I have some bad news and some really bad news.

Man: Well, give me the really bad news first.

Doctor: You have cancer, and only six months to live.Man: And the bad news?

Doctor: You have Alzheimer's disease.Man: That's great! I was afraid I had cancer!

PERSONAL ANNOUNCEMENTS

APPY BIRTHDAY TO Jean READ for Saturday, 1st

October

2011. Jean is currently serving on our Committee as

Treasurer. Thanks for all your hard work Jean!

ONGRATULATIONS TO Ted & Liz BURNETT for Friday,

21st

October 2011 on the occasion of their anniversary.

Ted was the Chair of PLC for 2010 11. And we all know

that behind any good man is a good woman! Well done Liz!

OVEMBER 2011. No celebrations in November?

Have we missed anyone?

OSEMARIE STEVENS. Although Rosemarie was not

feeling well enough to attend the Clubs first AGM she

sent word to wish all those in attendance her very best wishes!

Thanks Rosemarie! We hope you continue to improve.

USAN STEPHENSON. Susan is being admitted to hospital

on Wednesday, 19th

October 2011 for a further operation

and shes expected to be in for a couple of days. The Club will

be making sure that Susan has everything she needs!

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Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)

or email: [email protected], or go to PLC website at http://plymouthlc.webs.com2

THE FIRST PLC

ANNUAL GENERAL MEETING

UR OCTOBER 2011 Meeting took place at the Mustard

Tree Cancer Support Center at Derriford Hospital on

Friday, 7th

October 2011 at 11 a.m. There were 13 members

in attendance...probably our best attendance yet! The salient

points of the meeting, including the results of the election of

a new Committee are given below.

EW COMMITTEE. A new Committee was elected as

follows:

Chair.

As no volunteer was forthcoming, Geoff READ was elected to

sit in as Acting Chair until such time as another volunteer

stepped forward.

Treasurer.

Jean READ was re-elected to continue in this post for a second

tenure.

Entertainments Member.

Fiona MARTIN was elected.Secretary.

Geoff READ was re-elected to continue in this post for a

second tenure.

AFFLE.

September 2011.

8 was raised at the raffle we held on our Coach Trip to

Dartmeeton Saturday, 10th

September 2011 and this was

passed to our Coach Driver as his tip.

October 2011

Fiona MARTIN won the September 2011 Raffle so she

provided the prize for todays Raffle! Todays raffle took

place during the lunch break of the Laryngectomy

Information Study Day and was therefore open to

everyone attending. A sum of 23 was raised! Pam WALLS

(non-Club Member) won the First Prize of a National

Lottery Ticket! Percy FURNEAUX won the Second Prize of

an Electric Knife and one of the attending Professional

Staff won the Ornamental Candles.

November 2011.

Percy will therefore be providing the Raffle Prize for the

November 2011 Raffle! The Club has been charging 50pence for a strip of five raffle tickets. Members agreed

that in future, the Club should charge 1 for a single ticket.

However theres no limit to the number of tickets that

each person can buy!

UBSCRIPTIONS.

Our subscriptions rules previously read:

A mandatory fee of 5 per Friend or Member on joining and a

voluntary contribution of 1 per month.

The members agreed that the Club should change its

Subscription Rules to read:

A mandatory fee of 5 per Friend or Member payable at theNovember 2011 Club Meeting and thereafter at each AGM.

Payment. Members are kindly requested to pay their 5

Subscription at the November 2011 Meeting. If you do

not expect to attend that meeting then it would be

appreciated if you could pay the Treasurer as soon as you

can. Her Contact Address details are at the top of the

front page.

HANKS FROM THE Outgoing Chair. Ted BURNETT

thanked everyone for attending this meeting and for the

support that the Members had given him during his tour of

office. Ted also thanked Geoff and Jean READ for their

support on our Committee for the Clubs first year.

OTES OF THANKS.

Professional Staff. During our recent

difficulties with running the Club,

Maggie JARVIS (Clinical Nurse

Specialist), and Julia POCKETT

(Speech & Language Therapist) very kindly jumped in to run

the Club for us. Club Members agreed to formally record a

vote of thanks to them both.

The Mustard Tree. Club Members also agreed to formally

record a vote of thanks to the Supervisor, the Staff and the

Volunteers of the Mustard Tree. They allowed our Club to use

their facilities for our meetings over the past year and have

been the perfect hosts!

THE PLC TREASURERS ANNUAL REPORTEAN READ GAVE a review of the Clubs accounts for the

first year. This was summarised as follows:

The Club started off with zero funds. The Club had nearly

800 awarded to it and the rest was chipped in by the Club

Members themselves. With over 700 in the bank the Club is

in quite a healthy state. It was the hope of Club Members that

the new Committee would start to think of ways in which our

Club could help Macmillan Cancer Support.

CREMATE ME

A businessman on his deathbed called his friendand said, "Bill, I want you to promise me thatwhen I die you will have my remains cremated."

"And what," his friend asked, "do you want me todo with your ashes?"

The businessman said, "Just put them in anenvelope and mail them to the Inland RevenueService and write on the envelope, "Now you haveeverything."

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THE PLC SECRETARYS ANNUAL REPORT

EOFF READ GAVE an overview of what the Club had

achieved in its first year. He pointed out that the Club

had agreed a Constitution, built a website, issued a

Newsletter and held Monthly Meetings. But there was still a

lot of work being done in the background and this included:

Affiliations:

Our Club has been successful in forming affiliations with

other clubs and organisations. These included: National Association of Laryngectomee Club (NALC) Speak Easy Club in Cornwall Exeter Head & Neck Cancer Club The Recovery Club in Cornwall The Torbay Laryngectomy ClubMembers agreed that such affiliations are to be encouraged.

Club Business:

No-one likes bureaucracy but some bits are essential...

especially when public and donated money is concerned.

Our Constitution is essential and legally

mandatory. Our Club would not have received

the funding it has without it!

The Clubs current Constitution needs updating

and Members agreed that that the newly-elected Committee

should take this on board. The Minutes of our Club Meetings

are also essential for a similar reason. The Committee does

record minutes and stores them but the Club does not

formally issue them to Club Members.

Instead the Committee publishes the salient points in our

Newsletters (similar to what you are reading now!). That

said, the Clubs Business Papers and its Accounts are open

to view by any Club Member at any time... subject to the

appropriate request being submitted to the Chair.

Emergency Devices:

The Club was recently investigating

whether it could get a grant to purchase

Press-Dont-Panic audio devices for

laryngectomees in times of emergencies.

This will be up to the newly-elected Committee to progress.

Entertainments:

Now the Club had funds, perhaps its Members could get out

a bit more! But first our Club Members have our Christmas

Dinner to look forward to!

Forecast of Events:

A copy is always available on ourwebsite. However notices

are also placed in our Newsletters.

Funding:

Our Club may be able to obtain monetary grants from other

charitable trusts such as thePlymouth Drake Foundation. The

newly-elected Committee will need to decide precisely what

they need the funds for prior to any application being made.

But the Committee will need to be guided by its Members!

Goodybags:

All members should now be aware of what this project is

about. Its to provide some useful information and

gizzits to new laryngectomees. It will be up to the

newly-elected Committee to decide if it should goahead. The Committee will need some volunteers

from to help out on this.

Head & Neck:

Theres a question hanging over the Club at

the moment as to whether our Club should

remain as a Laryngectomy Club or whether it

should become a Head & Neck Cancer Club. This will be for

the newly-elected Committee to progress.

Macmillan:

The newly-elected Committee should

think of ways of how our Club can

helpMacmillan Cancer Support.After all, they have helped all of us! Our Club should also

be thinking of looking at the Macmillan Training Programme

so as to ascertain which courses our Members might like to

take part in the coming year.

Membership:

Our membership is fairly healthy. Julia POCKETT (Speech &

Language Therapist) and Maggie JARVIS (Clinical Nurse

Specialist) conducted a survey this year to ascertain the views

of all laryngectomees in the Derriford catchment area.

Members agreed that a similar exercise should be undertaken

this year but that this time it should have some involvement

by the Clubs Committee.

NALC:

Our Club is affiliated to NALC which is as our umbrella

organisation. Our Club is able to use their

Registered Charity Number. More of our

Club Members should try to make an

attempt to attend NALC events including

their Quarterly Meetings and its Annual Dinners.

Newsletter:

This is available to everyone on ourwebsite

and a copy is mailed to those Members not

on-line.

Peninsula Cancer Network:

For the past six months or more Geoff had been participating

in some training and attending very informative

meetings and panels regarding Cancer Support,

Cancer Rehabilitation and the National Cancer

Peer Review.This is just Geoffs way of trying to

give something back. If any Member wishes to know more

Geoff would be happy to discuss this with them.

Website:

The Members expressed their thanks to Kanda (our

webmaster) who had built our website from

scratch and maintained it for us! Kanda is saving

us a fortune! For those Members who can go

on-line, please note that our Club is onFacebook

as well. Please remember to click on the LIKE button when

you visit!

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THE PLC TRIP TO DEVORAN

EVEN INTREPID CLUB MEMBERS travelled from

Plymouth to Devoran on Wednesday, 14th

September

2011. It was well worth the three-hour round trip by car.

The weather was absolutely beautiful and our Club

Members, along with some from The Recovery Club in

Cornwall, were treated to a lovely Soup & Sandwich lunch.

Afterwards we had a round-table discussion and a general

exchange of ideas.

One message that came through loudly and clearly from all

three clubs was that we must all make a concerted effort

to attract more members to our respective club meetings

and functions. It was generally agreed that joint meetings

such as todays should be one way ahead for us. At least

its a chance to see new faces.

But how do we get to meet new laryngectomeeswith the constraints that Confidentiality place upon

us? The fifty-nine thousand dollar question!

The suggestion of changing our clubs fromLaryngectomy Clubs to Head & Neck Cancer Clubs

was briefly mentioned but there wasnt immediateenthusiasm for such an idea. However, it was

generally accepted that this would open up the

membership rate of our three clubs.

We should like to thank both the Speak Easy and the

Recovery Clubs for making our Plymouth Club Members so

welcome! You were excellent hosts and we look forward to

meeting up again sometime soon!

Photographs courtesy of Ron and Rose WILLS

See the slideshow atPhotobucketand atPLC Facebook Page.

THE PLC TRIP TO

LANGAGE ENERGY PARK

EVERAL OF OUR Club Members took part in a trip to

Langage Energy Parkon Monday, 3rd

October 2011 where

we were joined by some members of the

Devon & Cornwall Food Association

(DCFA). We were given a guided tour of

the plant and an extremely interesting

presentation by Mr. Roy BAILEY, theOperations Manager of Centrica Energy.

Roy made it a really fun time... even though what they

produce is a very serious business. That was obvious when

we had to get dressed up in hard hats and fluorescent jackets.

We thought Eileen FURNEAUX looked particularly fetching!

THE PLC FORECAST OF EVENTSALENDAR of EVENTS. A copy of the Clubs Calendar of

Events, including Future Entertainments for the next 12

months or so, is available on our Clubs website. Please keep

yourselves up-to-date by taking an occasional peek!

OVEMBER 2011.

Monday, 7th

November 2011: Monthly Club Meeting

The next Monthly Club Meeting is scheduled for Monday,

7th

November 2011 at the Mustard Tree at

11 a.m. Members should try to arrive by

10.30 a.m. for a cup of tea before the start.

John MCKENNA of Colebrooke Housing

Carers has kindly accepted our invitation to be our Guest

Speaker.

ECEMBER 2011.

Monday, 5th

December 2011: Monthly Club Meeting.

Members agreed to use this meeting to discuss items that

they had not had time to discuss at previous meetings. There

will be no guest speakers. As usual, please arrive at 10.30

a.m. for refreshments.

Monday, 12th

December 2011: The PLC Christmas Dinner will

be held atLeandras Restaurantin Plymouth City Centre at 7

p.m. The cost of this event will be offset

by Club Funds. However, we must ask that

Friends of PLC pay the full price! Those

wishing to attend should first notify GeoffREAD who will then send a copy of the

menu choices. These must be completed

and returned to Geoff by no later than Monday, 7th

November

2011... the date of our November 2011 Meeting.

Please book now to avoid disappointment. Those members

who would like to can bring a pressie along on the evening to

the value of not more than 5. These will then be placed into

our Grand Christmas Draw.

GM FOR 2012. Geoff READ will propose at the

November 2011 Meeting that the 2012 AGM be

scheduled for Monday, 1st

October 2012.

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THE PLYMOUTH LARYNGECTOMY

INFORMATION DAY

N INFORMATION DAY was held on Friday, 7th

October

2011 at The Mustard Tree Cancer Support Centre, at

Derriford Hospital. The day started with the Clubs first AGM

and thats reported on at Page 1 of this newsletter. That was

followed by a buffet luncheon kindly provided by our product

representatives. The afternoon session included a very well-

received presentation by Trevor PHILLIPS, our ClinicalSpecialist Physiotherapist who talked about Managing Your

Chest and Breathing after Laryngectomy Surgery. The

audience were then divided into two groups to discuss:

The Carers Perspective

and

The Patients Perspective

All in all, a highly informative and sociable day! So much so

that the general consensus was that we should make this an

annual event!

The Day was well attended by professional medical staffs,

medical suppliers and of course laryngectomees.

Our especial thanks go to the Maggie JARVIS (Clinical Nurse

Specialist), and to Julia POCKETT (Speech & Language

Therapist), for organising the day.

And we would also like to thank the Mustard Tree and its

volunteers who were wonderful hosts as always and kept us

supplied with never-ending cups of tea and coffee throughout

the day!

Photographs courtesy of Liz BURNETTSee the slideshow atPhotobucketand atPLC Facebook Page.

PENINSULA CANCER NETWORK

EOFF ATTENDED THREE Internal Validation Panels for the

Peer Review Processin September:

Head & Neck at Dartington on Thursday, 15thSeptember 2011.

Gynaecology at Lifton on Monday, 26th September2011.

Urology at Dartington on Tuesday, 27th September2011.

Geoff was a Panel Member as a User (patient) Representative.

Should anyone wish to have further information, please dont

hesitate to contact Geoff.

THE AIMS OF THE

PLYMOUTH LARYNGECTOMY CLUB

THE PURPOSES & AIMS OF OUR CLUB ARE:

Purpose:

The Club is formed to promote the rehabilitation of

Laryngectomees in the Plymouth area.

Aims:

To collect and coordinate all information relevant to the

rehabilitation of the Club Members and disseminate it so as

to encourage a bond between the Club and its Members.

To raise funds to enhance the rehabilitation process of

Club Members.

To promote public understanding and appreciation of the

needs of Club Members who have undergone laryngectomy;

their carers and their families.

To promote proper access to Social Services and other

agencies that can cater for the needs of Club Members.

To assist in research and other projects that would be

beneficial to the Club Members.

THE SOUTH WESTERNAMBULANCE SERVICE: A REMINDER

EOFF RECENTLY VISITED theSouth Western Ambulance

ServicesTraining College recently where he met up with

Lizzie RYAN, the Education Business

Manager. It was agreed that the

Ambulance Service Emergency Control

Room for our region could flag-up the

names and details of our Club Members

so, in the event of a medical emergency, the Service could

ensure that their paramedics could be properly briefed that

the patient was a Laryngectomee so they would know what

to do, and more importantly, what not to do! The Service

could also ensure their ambulances would be kitted out with

any special neck-breathing equipment that may be necessary.

The Data Protection Act forbids me passing anyones

personal details to anyone else without that individuals

authority. So if you wish to take part in this scheme, would

you please ask Geoff to send or email you an Application

Form? He will then ensure that your details are passed on

AG

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to our local Ambulance Service.

This authorisation will need to be renewed every six months

but dont worry... the Club will send out reminders. One last

point: Laryngectomees do not have to be Club Members to

participate in this Scheme and we have passed blank forms to

Julia and Maggie to dish out to their patients as required.

NEWS & CURRENT EVENTS

DISCLAIMERPlease note that the views and opinions expressed in this section are

not necessarily those held by the PLC Committee nor its Members.

ACMILLAN CANCER SUPPORT Newsletter.

Change is in the air this autumn in the Mac News

Autumn 2011. Leaf through the autumn

edition of Mac News to find stories about

supporters like you, as well as information on

our services, events and more. If you are

unable to obtain a copy by clicking on the link

above then just contact Geoff for a hard copy.

ENINSULA HEAD & NECK Cancer Support Group.(PHANCS). Are you interested in a Support group for

head and neck cancer patients and carers? This could take

the form of:

Group meetings, One-to-One meetings, Information / advice by post or E mail An on-line web site, Telephone help line, Or a combination of the above.We have established that there is a need for such a group and

are in the early planning stage. If you would be Interested inhelping with setting-up the group please contact Mac MERRETT

[email protected] or telephone: (01392) 8412490.

Click on this link to see more.

LYMOUTH ONLINE DIRECTORY. The Plymouth City

Councilrecently launched thePlymouth Online Directory

of social care and health services. Our Clubs details have

since been included.

TRIKERS WILL CRIPPLE the country from November right

through the year apparently. Union

barons have insisted that a one-day walk-

out would take place on 30th

November

2011with others in the pipeline. UNISON

has 14 million members which includes

NHS staff such as nurses, paramedics,

cooks and cleaners. Try to avoid any medical appointments onthis day!

HE RECOVERY CLUB Newsletter. A copy of the

September 2011 Newsletter has been sent

out to those on-line. If anyone not on-line

wishes to have a hard copy then do please

contact Geoff.

Click on this link to see the Newsletter.

HE SPEAK EASY CLUB Newsletter. A copy of the

September 2011 Newsletter has been sent out to those

on-line. If anyone not on-line wishes to have a hard copy

then do please contact Geoff.

Click to view it online.

The Plymouth Laryngectomy Club

(PLC)

Come join us!Our Members and Friends meet

on the first Monday of every month.

ACKNOWLEDGMENT

Our grateful thanks to :

THE PLYMOUTH DIOCESEhttp://www.plymouth-diocese.org.uk/

for their assistance in reproducing

copies of this newsletter

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http://macmillan-email.org.uk/FY7-JR7G-3DDZW8-7MXY0-1/c.aspxhttp://macmillan-email.org.uk/FY7-JR7G-3DDZW8-7MXY0-1/c.aspxmailto:[email protected]:[email protected]:[email protected]://www.slideshare.net/slideshow/embed_code/9242770http://www.slideshare.net/slideshow/embed_code/9242770http://www.plymouth.gov.uk/http://www.plymouth.gov.uk/http://www.plymouth.gov.uk/http://plymouthonlinedirectory.com/kb5/plymouth/pod/home.pagehttp://plymouthonlinedirectory.com/kb5/plymouth/pod/home.pagehttp://plymouthonlinedirectory.com/kb5/plymouth/pod/home.pagehttp://unison.org.uk/http://unison.org.uk/http://www.slideshare.net/slideshow/embed_code/9390876http://www.slideshare.net/slideshow/embed_code/9390876http://www.slideshare.net/slideshow/embed_code/9500748http://www.slideshare.net/slideshow/embed_code/9500748http://www.plymouth-diocese.org.uk/http://www.plymouth-diocese.org.uk/http://www.plymouth.gov.uk/http://www.plymouth-diocese.org.uk/http://www.slideshare.net/slideshow/embed_code/9500748http://www.slideshare.net/slideshow/embed_code/9390876http://unison.org.uk/http://plymouthonlinedirectory.com/kb5/plymouth/pod/home.pagehttp://www.plymouth.gov.uk/http://www.plymouth.gov.uk/http://www.slideshare.net/slideshow/embed_code/9242770mailto:[email protected]://macmillan-email.org.uk/FY7-JR7G-3DDZW8-7MXY0-1/c.aspx

the voice of plc oct - nov 2011

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