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THE MARY CAMPBELL CENTER

FAMILY HANDBOOK

A source of information about The Mary Campbell Center developed by the Family Resource Group

for resident families and friends.

4641 Weldin Road Wilmington, DE 19803 Telephone: (302) 762-6025

Fax: (302) 762-4206 www.marycampbellcenter.org

Revised September 2014

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FAMILY RESOURCE GROUP

HANDBOOK

Revised September 2014

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At The Mary Campbell Center We focus on the individuals we are able to serve, each having special needs, and with the goal that each will live a happy and productive life within a homelike setting. We recognize the importance of community and we cultivate relationships that benefit all. We perform our work with the highest quality through the efforts of committed, compassionate, and competent people.

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TABLE OF CONTENTS

HISTORY…………………………………………………………………………………………………………………………… 5

GENERAL SERVICES…………………………………………………………………………………………………………… 6

BOARD OF DIRECTORS …………………………………………………………………………………………………… 7

ADMINISTRATION……………………………………………………………………………………………………………… 7

BUSINESS OFFICE……………………………………………………………………………………………………………… 7

ADMISSIONS………………………………………………………………………………………………………………………… 8

NURSING/ RESIDENT CARE………………………………………………………………………………………………… 8

CASE MANAGEMENT……………………………………………………………………………………………………………… 11

FACILITIES…………………………………………………………………………………………………………………………… 12

HOSPITALITY SERVICES………………………………………………………………………………………………………… 12

ACTIVITIES………………………………………………………………………………………………………………………… 14

ASSISTIVE TECHNOLOGY…………………………………………………………………………………………………… 15

INFORMATION TECHNOLOGY ……………………………………………………………………………………………… 15

THE LEARNING CENTER…………………………………………………………………………………………………… 17

OCCUPATIONAL THERAPY……………………………………………………………………………………………… 17

PHYSICAL THERAPY………………………………………………………………………………………………………… 18

SPEECH THERAPY……………………………………………………………………………………………………………… 18

MASSAGE THERAPY…………………………………………………………………………………………………………… 19

HOLIDAYS………………………………………………………………………………………………………………………… 20

RESIDENTS PROTECTION…………………………………………………………………………………………………… 20

OMBUDSMAN…………………………………………………………………………………………………………………… 21

MISCELLANEOUS………………………………………………………………………………………………………………… 21

VOLUNTEERS………………………………………………………………………………………………………………………………………… 23

CHILDREN AND YOUTH PROGRAM……………………………………………………………………………………………… 24

GUIDING PRINCIPLES…………………………………………………………………………………………………………………………… 25

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HISTORY OF THE MARY CAMPBELL CENTER

In 1969 a group of parents and friends met to explore the possibility of establishing a residential facility for young adults with multiple disabilities. Their intent was to create a facility unlike any traditional institutional facility, and to create one that encouraged a sense of barrier-free living while maintaining a home-like atmosphere for its residents. After forming a non-profit corporation, the group led by Chuck and Charm Welch, Joe Picciotti and Dick DiSabatino, began to visit existing facilities for people with disabilities in order to develop their vision and plans. During the planning stage, this group was introduced to Amos Campbell, who lived and farmed the land on Weldin Road. Amos and his wife Mary had a daughter, Evelyn, who was born with Down Syndrome. Amos entered into an agreement with the corporation to donate his land for the building of the facility, and in return, his daughter would reside in and be cared for by The Center. Named after Amos' wife, The Mary Campbell Center was constructed in 1976. Evelyn Campbell resided at The Center until she passed away January 27, 1988. In the early days The Center encountered financial hardships but with the support of the Board Members, the difficulties were overcome. With success, growth and expansion of our programs came the need for more space. On June 16, 1985, The Charmie Welch Memorial Wing was dedicated, housing the aquatic and physical therapy facilities, massage therapy and The Learning Center. On April 6, 1997, a new wing was dedicated and named for one of the founders, Barbara Z. Holmes. The upper level, now called EZee Street is comprised of a Skilled Nursing Unit, resident rooms, and a lounge. In the lower level there is a large atrium with a two story glass wall which is used for many resident activities and by the Children and Youth program. The All Star Room was doubled in size in 2007 and a Snoezelen Room for sensory stimulation was added through the generosity of ADK Sorority. The Mary Campbell Center is a dream built by a small group of people bound together by fate and compassion. It is a home, a sanctuary, a blessing, and so much more. The Center is a place for people with physical and cognitive challenges to live and grow. It is a place for people to improve themselves, and to realize that they can contribute a part of themselves to this world.

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GENERAL SERVICES Services Offered:

Residential long term care for individuals with physical and intellectual disabilities.

Respite Care

Programs for children and youth ages 3-21 with disabilities and their siblings are offered year-round after school and 5 two-week sessions of summer camps.

Aquatics program for residents as well as members of the community with physical and intellectual disabilities.

Center facilities are available and utilized by organizations which serve individuals with physical and intellectual disabilities.

Programs offered:

Aquatics/Pool/Hot Tub

Assistive Technology

Case Management

Children and Youth Programs

Computer Education and Training

Education

Fitness and Sports Training/Special Olympics

Living Skills

Massage Therapy

Occupational Therapy

Physical Therapy

Quality Health Care

Recreation

Social Services/ Counseling

Speech/Language Therapies

Special Olympics Program

Vocational Training The Residents: The residents require care and support due to diagnoses of developmental disabilities acquired prior to the age of 21 including cerebral palsy, muscular dystrophy, spina bifida, multiple sclerosis, intellectual disability, brain injury, and other conditions. The residents are recognized as individuals and respected for their capabilities and unique gifts. We are here to assist them in achieving greater independence and more meaningful lives. At The Mary Campbell Center, our challenge is to help people with disabilities to develop to their full physical and intellectual potential.

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BOARD OF DIRECTORS The volunteer Board of Directors, many of whom have freely given their time and talent for many years, are chiefly responsible for the quality of The Center and oversee the leadership of the Executive Director and all financial and physical operations. The Board of Directors has raised all the capital that has allowed The Center to expand over the years to its present capacity as a state of the art facility. The Center is debt-free. The members of the board serve on sub-committees which cover various operations of The Center.

ADMINISTRATION There is an Administrator in the facility or on call 24 hours a day. Regina Coffiey- Executive Director, Anna Marie Hoover- Assistant Executive Director for Operations, Anne Studd – Assistant Executive Director for Resident and Community Services and Tom Shea - Director of External Affairs, all serve in this capacity. In addition, certain staff and department managers participate in the Manager on Duty rotation to provide 24 hour weekend and holiday on call coverage. These individuals are identified on The Organizational Chart in the front pocket of this binder. The name of the Manager on Duty is posted in the front lobby. The Family Satisfaction Survey is periodically sent out to every family. This is an opportunity for the family to express their views, ideas, needs, and concerns. This is a vehicle for growth and improvement. We encourage and appreciate your feedback when surveys are undertaken. The Executive Director, Regina Coffiey, wants all family members to know she has an open door policy to answer any questions or concerns. Feel free to call Gina at 302-762-6025 x 104 or email rcoffiey@marycampbellcenter.org. The office of The Executive Director is located on Charmie Lane next to the office of the receptionist.

THE BUSINESS OFFICE The Mary Campbell Center business office assists residents and families with managing of personal funds. Residents have the opportunity to access banking Monday through Friday to deposit or withdraw funds from their personal escrow account. For the convenience of the residents, the staff from the Business Office comes to the All Star Room from 3:30 to 4:00 p.m. Monday through Friday. The residents are encouraged to take care of their banking needs at that time. We ask residents to work with their case manager if they need funds in excess of $50.00 at any one time. More detailed paperwork is needed to process these requests, and receipts are requested for larger items purchased to assist in background in the event of an audit. Statements are provided on a quarterly (monthly if requested) basis to residents and to their representatives (at the residents’ request), which detail all transaction activity. With the

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THE BUSINESS OFFICE (Continued) help of the case manager, requests can be made to write checks directly out of the resident's account if needed. This is especially helpful in mail-ordering products, paying telephone bills and other expenses. The business office is also responsible for all of the billing for services provided. Many residents receive Social Security benefits, and it is possible for the checks to come directly to The Center to offset a resident's bill and/or deposit into their escrow account. The Business Office is located in the lower level of EZee Street.

ADMISSIONS

The Admissions Director is the first person to be contacted at The Center for admission or respite care and develops relationships between The Center and families seeking placement. After initial contact, an admission packet is sent to the family. When the completed application is returned and reviewed by the Director of Nursing, an interview is scheduled with the Admissions Committee. If, after the interview, the Admissions Committee determines that The Center can meet the needs of the applicant and family, a trial respite stay (usually three days and two nights) is scheduled. If the trial respite stay is successful, the applicant is approved for respite care and future respites can then be scheduled by family, pending availability of a respite bed. If, at a future date, the family requests placement on our residential care waiting list, a written request is sent to the Admissions Committee. The applicant then schedules a week-long respite stay. During this stay, The Center’s Interdisciplinary Team completes an evaluation and sends their recommendations to the Admissions Committee, who is responsible for the final determination as to placement on the waiting list. The office of the Admissions Director is located in the lower level of EZee Street.

NURSING / RESIDENT CARE

Nursing and resident care services are provided to the residents of The Mary Campbell Center 24 hours a day, 7 days a week. The staffing ratios are always above the minimum numbers required for both Nurses and the Resident Care Technicians (RCTs) in the State of Delaware. At The Center there are four neighborhoods under the supervision of The Director of Nursing and The Assistant Director of Nursing. The Farmhouse Lane and Comfort Zone neighborhoods offer intermediate care services. The Charmie Lane and E-Zee Street neighborhoods offer skilled services. Each neighborhood is staffed with a nurse and three RCTs. On E-Zee Street and Charmie Lane there are two nurses scheduled due to increased resident acuity. There is a

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NURSING/RESIDENT CARE (Continued) supervising nurse assigned to each shift and a nurse on call 24 hours a day to provide support to the staff. RCTs assist residents with their activities of daily living. The RCTs are assigned to their neighborhood and they are supervised by the Neighborhood Nurse on duty each shift. The RCT is familiarized with the resident’s plan of care through their automated voice assistant and they receive a shift report at the beginning of their shift each day. Each RCT is assigned to a group of residents (approximately 6 or 7) in their neighborhood. Care of residents is individualized and directed by their care plan. Among their duties and responsibilities are: personal care (bathing, shaving, dressing, hygiene positioning, transfers),cleaning of wheelchairs, assisting at meals, clothing care including change over Winter/Summer clothes and reporting any clothing needs to the assigned Case Manger. RCTs complete room standards which consist of straightening up rooms, drawers, and closets. They also are responsible for getting residents ready for appointments and programs, weighing residents each month or as ordered, assisting at Special Olympics, and assisting in evacuation procedures or fire drills. RCTs participate in all activities: parties, dances, picnics, and buffets. The RCTs also do many special requests for individual residents. If a resident needs an RCT, they can request assistance or can they activate any call device. All RCTs are certified as Nursing Assistants by the State of Delaware. Nursing Restorative is a program conducted by RCT’s with oversight from Nursing, PT and OT, to sustain or improve a resident’s physical functioning. Objectives include performing joint range of motion for upper and lower extremities, standing exercise for those who are weight bearing, walking for ambulation tolerance and endurance, also for those who are weight bearing. This strengthening program is a key component of health and wellness for those residents who are able to participate. Additionally the following health care professionals are also available for the residents: The Medical Director; a Psychiatrist; a Psychologist; Dietician and a Dental Consultant. A number of necessary services are provided through the use of outside contracted vendors. These include pharmacy, portable X-ray, dental, medical laboratory, podiatry, hearing and vision. When a resident leaves the building for any purpose (walk, outing with family/friends), the nursing department should be notified; also indicate the expected time of return. When a resident is leaving for an extended period of time and requires medications to accompany them, please give the neighborhood nurse adequate notice so that medications can be packed ahead of time. Copies of all health insurance cards should be given to the Health Care Clerk. If there is any change in coverage, this information should be promptly updated. In cases where the parents provide transportation to an off-site medical appointment, the Health Care Clerk should be advised in advance so that the necessary paperwork and forms will be available for the doctor, dentist, etc. All paperwork should be returned to the Neighborhood Nurse upon the resident’s return to The Center for appropriate follow-up. When transportation is to be provided by The Center, it is very helpful if a family member is

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NURSING/RESIDENT CARE (Continued) available to accompany the resident in the van to assist and answer questions during the appointment. It is also acceptable for the family member to meet the resident at the appointment destination if it is more convenient. We also request that family try to be available in the event that a resident requires emergency services at the hospital. The Mary Campbell Center makes every effort to have someone accompany the resident to the emergency room but cannot guarantee a staff member can stay over two hours. Please do not bring food and/or drinks to store in the resident rooms. After the resident’s name is put on the food item, it can either be properly stored in the neighborhood kitchen area or neighborhood refrigerator and distributed as suggested. Personal items (shampoo, deodorant, tissues, toothpaste, etc) are made available through the Nursing Department. Bar soaps are not permitted in resident’s rooms unless ordered by a physician. Residents have the opportunity to purchase preferred brands on shopping trips planned by the Activity Department. Specialized needs, such as allergies to soap, toothpaste, etc., are listed with Case Management and the Nursing Departments. The offices of the Director of Nursing, the Assistant Director of Nursing and the Health Care Clerk are located in The Charmie Welch Wing.

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CASE MANAGEMENT AND SOCIAL SERVICES Each resident and respite visitor is assigned a case manager upon admission who monitors the overall progress of the resident and assists with coordinating a program schedule. The case manager serves as a family contact person and advocate. They are available to assist with any non-medical and non-financial matter. The case manager is responsible for scheduling and conducting the Individual Program Plan meeting. This meeting is held one month after the admission of the resident and then yearly. In addition to the case manager, various department heads and family members meet with the resident to discuss goals, plans, and needs. The case manager should be notified about scheduled outings, appointments, and vacations as early as possible (a week is desirable) so that Nursing, Programs, and Dietary can be notified of the planned absence of the resident. Residents who are Medicaid-funded receive 18 paid overnights away from the center per calendar year. If additional overnights are desired, a request for a waiver from the 18 days leave of absence may be submitted to The Medicaid Long Term Care Coordinator at the Delaware Division of Health and Social Services. The Assistant Executive Director for Resident & Community Services can assist with this process. It is recommended that a request for this waiver be done at least one month in advance. Applying does not guarantee approval. This does not include hospitalizations. In case of hospitalization, Medicaid covers the bed hold for the first seven days away from The Center. Any additional days are the responsibility of the resident or family. The case management staff coordinates all mental health services at The Center. A staff psychiatrist and psychologist are available for consults as needed. Individual counseling and grief counseling including spiritual support is readily available. It is important for staff to have current records on every resident (family addresses, phone numbers, email addresses, etc.) in the event of an emergency. Any changes or updates should be given to the case manager. The Social Worker is available to provide counseling services to all residents and family members. Assistance will be provided upon admission to assist with adjustment as well as throughout the duration of the stay to ensure ongoing wellness, empowerment, independence and socialization. Along with the consulting Psychiatrist and Psychologist the Social Worker will coordinate mental and behavioral health services for residents with identified needs. Treatment, behavioral, and social support plans will be developed and implemented in coordination with the Mental Health Team to ensure the residents overall mental/behavioral health and safety. The Social Worker provides direct supervision to the Case Managers who are assigned to each neighborhood, and serves as an advocate, mediator and liaison to staff residents and family members as needed. This department will provide positive encouragement to residents, families, staff, and volunteers and maintain professional collaboration with all other departments. The home-like feel of the neighborhood concept will be promoted in enhancing the overall life of The Mary Campbell Center.

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CASE MANAGEMENT (Continued) The offices of the case managers and the social worker are located on Charmie Lane. The office of the Assistant Executive Director for Resident and Community Services is on the lower level of EZee Street.

FACILITIES DEPARTMENT

SAFETY AND SECURITY

Please observe the 5 miles per hour speed limit on the property. Because of trees and

parked cars, it is not always possible to view residents in wheelchairs on the driveway ahead. Use special care when backing out of a parking space. ENTRY DOORS Families are always welcome to visit at any time. Entry is made through the main lobby door after signing in. If a staff member is not readily available to open the door, activate the buzzer on your left to be admitted. All the doors at The Center can be used for exiting but only the main lobby door is used for entry into the facility. If a resident or family member wishes to leave The All Star Room through the back door opening onto the patio, activate the pushbutton on the wall on inside right of door. To enter, activate the pushbutton on brick wall outside on the right. There are eight external video cameras that monitor door activity - viewing screens are available at security and the nurses’ station. These are in operation 24 hours/day; 7 days/week. SAFES Each resident has a programmable, four digit, combination safe in their room wall unit. This gives the resident a secure place to store wallet, money, jewelry, etc. If a resident forgets their combination, the Facilities Manager can open the safe. SAFETY TRAINING/ SAFETY COMMITTEE Safety training is ongoing and includes workplace safety, blood-borne pathogens, proper handling of chemicals, etc. The Safety Committee meets quarterly. Topics include resident incidents, staff incidents, injuries, missing and damaged property, safety guidelines, tripping hazards, etc. Incidents are examined for patterns; solutions/ preventions are discussed and implemented.

FIRE DRILLS The following is intended as information for families only; the residents will be assisted by staff trained thoroughly in evacuation procedures.

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FACILITIES (Continued) Fire drills are held monthly, covering all three shifts and are always unannounced. The alarm is shrill, intermittent, and very loud. This is accompanied by flashing strobe lights for the hearing impaired. Listen for the speaker announcement as to the location of the fire. If it is located in the wing where you are, immediately start evacuation procedures. If the fire is located in another wing, go immediately to the nearest "safe zone" (outside or an unaffected wing). Occupants of the unaffected wings should go to the Main Office area where the charge nurse or manager will give directions. There are three sets of fire doors creating four safe zones in The Center. The following events occur yearly:

Three full building evacuations (one for each shift) with everyone reporting to the garage area

Inspection by the Delaware State Fire Marshall

Staff training on the use of fire extinguishers

Staff training on evacuation procedures

Selected staff attends Dover Fire School to learn the mechanics of a fire, escape procedures, etc.

An excellent fire/smoke detection system is in place with direct communication to the Fire Board and the monitoring company.

OTHER REPAIR If any repairs are needed in the resident's room, please ask Nursing to complete a work order sheet which is picked up daily by maintenance. ENERGY CONSERVATION To help in the conservation of energy, please encourage residents to turn off lights and television when not in use. HEATING AND AIR CONDITIONING The room units in Charmie Lane, Comfort Zone, and Farmhouse Lane are individually controlled and can be easily adjusted for comfort. However, too frequent changing of settings will lead to shut down of the unit. Once a comfort level is found, they should be left alone with adjustment only as needed. The office of The Facilities Manager is located below the All Star Room.

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HOSPITALITY SERVICES

DINING Dining Services is associated with Hospitality Services provided by The Morrison Group and prepares all meals for the residents of The Center. The menu is developed by the staff with input from the residents; it is reviewed and approved by the consulting dietitian, taking into consideration nutritional content and variety. Meals are served in the neighborhood dining rooms: Charmie Lane, Comfort Zone, EZ Street and Farmhouse Lane. Breakfast is served from 7 to 9:30 am; lunch from 12 noon to 12:45 pm; dinner from 4:15 to 5:15 pm. The times for meals allow for staff assistance with meals in all dining rooms and for the dispensing of medications. The menus follow a four week cycle (repeating every four weeks) and change according to the seasons. Listed are all the foods and beverages required by the diet, serving size, and textures for the 7 different diets served at The Center. For the Fall/Winter months, the menu will have more stews, roasts, macaroni & cheese. In Spring/Summer, the menu will feature more salads, fresh fruits and vegetables. If an item proves to be unpopular with the residents, the food will change for the next cycle. Menu development is always ongoing for both the standard and alternative menu. All residents at the monthly Resident Advisory Committee meeting are invited to discuss food concerns, menu ideas and suggestions. Every six months, resident surveys and feedback help in updating the menu. The Hospitality Manager has an open door policy and encourages feedback from the residents and family members at anytime. If a resident is to be absent for one or more meals, we ask that this information be relayed to the Dietary Department Staff at an earlier meal or by notifying the kitchen. Thanksgiving Day, Memorial Day, Mardi Gras, Valentine’s Day, July 4, etc. Many times the meal will be served buffet style in the All Star Room. Otherwise it is served in the regular dining rooms but with special foods. During the All Star Room meals, families are invited to have a meal with their loved one. There is no charge for up to 2 family members to attend. We ask that family members not bring in snacks or foods that are not part of the resident’s diet. The office of the Morrison Company Hospitality Manager is located in the hallway connecting Comfort Zone and Farmhouse Lane, across from The Staff Lounge.

ENVIRONMENTAL SERVICES

The Environmental Services Department (housekeeping and laundry) is associated with Hospitality Services provided by The Morrison Group. The resident's rooms and bathrooms are cleaned daily. The bed linens are changed weekly or more frequently if needed. Spring cleaning involves the total room including bed frame, mattresses, baseboards, etc.

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HOSPITALITY SERVICES (Continued) There are two laundry rooms: one in the lower level of EZee Street and the other in the hall connecting Comfort Zone and Farmhouse Lane. Laundry service is provided to the residents without charge. It is imperative that all clothing items be marked with the name label of the resident before sending to the laundry. Clothing labels are provided by The Center and are stored in the Case Management Offices. These labels are available for family use, or volunteers are available for sewing on name labels. If volunteer sewing is desired, the clothing items are given to the Case Manager. After the appropriate name label is pinned to the garment by the Case Manager, the item is then given to volunteers to be sewn on. Garments requiring special care should not be cleaned in the laundry. There is a washer and dryer available for resident use in Charmie Lane. The use of these machines and training (if necessary) is monitored by Occupational Therapy. A schedule of use is posted.

ACTIVITIES The Activities Department at The Mary Campbell Center is comprised of the Recreation/Leisure and the Aquatics/Physical Development programs. Both programs serve to meet the social, emotional, physical and spiritual needs of the residents. Residents attend programs for leisure time enjoyment as well as for prescribed activities that support their Individual Program Plan goals for the year. Community groups and volunteers provide creative energy that supports both programs. A wide diversity of activities is offered within the Recreation/Leisure program. Residents can choose from monthly calendars that include book/sports/poetry groups, music and performance, happy hours, trips, holidays and special events, arts and crafts, visiting pets, office skills and exercise. We also schedule outside entertainers to come to The Center and showcase their skills - from musical performers to Boy and Girl Scout Clubs. Trips are planned regularly to cultural events (plays and museums), luncheons and dinners, sporting events (Blue Rocks and Phillies), amusement parks, movies, mall shopping, bowling, picnics at local parks, and beach trips. When there is a cost associated with a trip or activity, the resident should get the necessary funds from their account in the Business Office. Through the monthly Resident Advisory Committee meeting, individuals are asked for input in planning and evaluating programs. Activities are limited only by our creative imagination. The Nature Trail is located behind The Center. This wheelchair accessible walk through the woods is noted for a fish pond, gazebo, many birdhouses, and examples of various trees and flowers. It is a peaceful, quiet path to enjoy solitude and nature. The Snoezelen Room is located within the All Star Room. It is a unique multi-sensory environment that calms or stimulates through light, sound, smell, and texture, according to individual needs. There is an overhead lift system to assist in moving individuals from activity to activity with minimal physical lifting or transferring. The Snoezelen Room was donated by the ADK Sorority.

ACTIVITIES (Continued)

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The Aquatics/Physical Development program offers a full range of aquatic exercise, stretching, relaxation and strengthening activities in our heated pool, hot tub and on land. Our state-of- the- art pool, which has a movable floor, is unique to the northeast. Mary Campbell athletes practice year round for the Delaware Special Olympics. Residents participate in bocce, bowling, swimming, track and field, and power weight lifting events for sociability and competition. A monthly calendar of all activities is posted in the All Star Room and Neighborhood bulletin boards. This calendar is available to all parents on The Mary Campbell Center web site: http://www.marycampbellcenter.org/ All programs and trips are subject to change; family should call The Center before coming to an activity.

The Center offers several avenues for residents to grow spiritually if desired. Periodically on a Sunday afternoon, an interdenominational worship service is available to residents, families and friends in The All Star Room. A Catholic Mass service is also available at The Center once a month in The Learning Center. A Bible Study is provided each week in the All Star Room as another tool to learn more about the Bible. Many residents who are able to be in the community independently attend the church services of their choice and The Center provides transportation to these area churches each Sunday morning. If you have any additional questions regarding these services, please contact your Case Manager. The office of the activities and recreation specialists is located in lower level EZee Street. The office of the Aquatics/Physical Development program is located next to the pool.

ASSISTIVE TECHNOLOGY Assistive technologies enable people with disabilities to access their environment more successfully, and enables the residents to open doors to a whole new world. These technologies can provide:

access to computers

increase independence with mobility

experience independent living while utilizing low and/or high tech devices

This department helps to identify, implement, adapt, and educate Mary Campbell residents and staff on these different devices.

INFORMATION TECHNOLOGY

This department provides support for the staff in The Mary Campbell Center computer network, monitors their needs and makes recommendations for future purchases. Assistive and Information Technology staff is located in the lower level of EZee Street and in The Learning Center.

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THE LEARNING CENTER The Learning Center offers residents and community day program participants with special needs opportunities to improve basic skills, obtain a GED, succeed with college-level coursework, or simply participate in life-long learning. The Center is equipped with numerous Assistive Technology items that enable residents’ independence with learning. These include the roller-ball mouse, Intellikeys and adapted keyboards, smart-view text enlarger as well as others. We use a variety of switch activated software provided by Judy Lynn Company. When a keyboard is not an option, we offer voice-to-text software with microphone as well as the logi-tech web camera used with head movement for alternatives to traditional computer access. It is our goal to provide residents and community residents the opportunity to enjoy learning despite physical limitations.

Residents receive individualized instruction. Residents develop their own goals and work at a comfortable pace in an adult education setting. Group programs are offered daily (Mon-Fri) and are adapted to resident interest a few times/year. Offerings include “Current Events” and “Music Appreciation.” Residents are routinely assessed for cognitive status and computer access options. Residents with speech-generating devices are able to connect to the PC and the internet via infra-red or blue tooth connection. All residents and day program participants are welcome. The Learning Center staff includes a teacher, an instructor, and two Para-educator professionals as well as several volunteers. The Learning Center is located in the Charmie Welch Wing.

OCCUPATIONAL THERAPY (O.T.) The occupational therapists at The Mary Campbell Center assist residents to be as independent as possible throughout the MCC environment. Therapy is provided to maximize residents’ skills with activities of daily living (ADLs), including self-feeding, dressing, hygiene, and grooming activities. Residents may also work on home management skills, such as laundry, bed-making, or cooking. Specialized adapted equipment is provided to residents as needed to enhance their independence with ADLs. The occupational therapists also work with residents to maximize independence in their rooms. Rooms are individually set up for each resident for greatest accessibility. The OT staff can help residents learn to use their call bells, safes, room lights, telephones, televisions, computers, etc. A remote control elevator system is also available for use by residents who cannot access a traditional elevator button. In addition to teaching ADL skills, OT staff provides programming in a variety of other areas, including range of motion, strengthening, fine motor skills, sensory stimulation, and adapted

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THERAPY (Continued) leisure activities. Residents who work outside of MCC may be evaluated to assist them in maximizing their independent work skills. And, if a resident chooses to live outside of MCC, the OT staff will evaluate the new living arrangements to ensure that the resident will be successful with their transition out of The Center. The office of the Occupational Therapists is located in the lower level of EZee Street.

PHYSICAL THERAPY (P.T.)

The physical therapy department is involved in many aspects of life at The Mary Campbell Center. We develop programs to enhance the resident's flexibility, transfers, standing balance, walking, and wheelchair driving skills. The department is also responsible for wheelchair evaluations, repairs, and application to insurance companies for coverage. We instruct on the use of various therapy equipment, which include braces and ambulation devices to enhance a resident’s safety and independence, as well transfer and repositioning equipment for care. With nursing, P.T. problem solves and resolves issues creating skin breakdown and takes a proactive approach to prevent skin breakdown. The P.T. department is involved with training in-services for employees to maintain safe and healthy work habits relating to transfers and handling of Residents. P.T. trains the restorative aides to carry out the restorative nursing program which is specific and tailored to meet the needs and/or desires of the resident. They currently include walking with appropriate devices, use of various standers, range of motion and other specific exercise. The P.T. department treats residents who require skilled physical therapy care. We provide mobility and stretching exercises to the residents with the most challenging orthopedic and neuromuscular presentations. We provide gait and balance training. We carry out doctor’s orders related to changes in medical status. We have implemented a floor positioning program where residents can get out of their wheelchair weekly on a mat to stretch out. The P.T. office and treatment area is located in The Charmie Welch Wing.

SPEECH THERAPY

The speech/language therapy department offers a variety of therapy services to the residents.They provide evaluation and treatment for speech/language and swallowing impairment. The individual needs of each resident are addressed. Residents receive traditional speech therapy to improve their speech intelligibility and expressive/receptive language skills. These residents often learn techniques to make their speech better understood, to help them organize their thoughts into words or to help them think of the words they want to say. In addition to traditional speech and language therapy, the speech/language therapists have expertise in augmentative and alternative communication devices and assistive technology options. Services include maintenance of devices, device programming,

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THERAPY (Continued) assessment for appropriate devices, securing funding, and teaching residents, staff and family members how to use the equipment. Creation and maintenance of low tech communication options, such as communication boards and single message switches is another responsibility of the speech therapy department. Families are encouraged to provide vocabulary suggestions. The speech therapists are part of the Interdisciplinary Team that works closely with the residents to meet their individual goals. As part of this role, our therapists provide group therapy in conjunction with other team members. A memory/orientation group and a reading group are offered for those residents in need of this stimulation and these are facilitated by the speech therapist and education specialist. The speech therapists play an integral role in the development and implementation of meal guidelines. These guidelines are custom developed for each resident to ensure their safety and enjoyment at meals. Residents with identified swallowing impairments are closely monitored by the speech therapy department. Family members wishing to help feed residents are required to learn the most effective and safe techniques from the department. The office of the Speech Therapy Department is located in the lower level of EZee Street.

MASSAGE THERAPY

Should a need be identified by the Interdisciplinary Team of The Center, a resident may be referred for massage therapy. Each massage is structured for the needs of the individual; relaxation is promoted by the quiet environment, aroma therapy, subdued lighting, and soft music. Healing Touch or Reiki energy balancing is included for those who will accept it. The therapist may use the Snoezelen Room, where the residents can experience the multi-sensory environment while lying on the heated waterbed for their massage. The benefits of massage:

helps to ease tension, stiffness, and pain in joints and muscles

improves circulation

induces comfort and relaxation

provides one on one attention and social interactions

provides sensory stimulation for residents; comfort, caring and non-verbal

communication

enhances general well being Healing Touch and Reiki help support physical, emotional, mental and spiritual self-healing and well-being. Side effects can include decreased pain, increased wound healing, decreased anxiety and mood stabilization. Healing Touch and Reiki use gentle light or near-body touch to clear, balance, energize and support the human energy system in an effort to promote healing for the whole person: mind, body and spirit. The Massage Therapy office and treatment area is located at the end of The Charmie Welch Wing near the pool.

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HOLIDAYS HOLIDAY GIVING: The Mary Campbell Center discourages staff from accepting gifts from families and residents. Families are encouraged to give a donation to the Staff Appreciation Fund anytime, and especially during the year-end holiday season. All funds collected are used for several appreciation events for all the staff throughout the year. This is an equitable way for families to express their appreciation to all members of the staff. SECRET SANTA: At holiday time, the name of each resident is posted in the Volunteer Coordinator's office. Staff and volunteers may select one or more names, purchase and wrap the gift(s) and designate it for the resident(s) from Secret Santa. POLLYANNA: Several weeks before holiday time, residents in each neighborhood draw names and buy a present for the name of the fellow resident they draw. Gifts are exchanged at a neighborhood Holiday Party. WORSHIP SERVICES: Interdenominational services are held during the year to celebrate a number of religious holidays.

RESIDENTS’ PROTECTION The mission of the Division of Long Term Care Residents Protection is to promote the quality of care, safety and security of residents living in long term care facilities and to ensure facilities compliance with applicable state and federal laws and regulations designed to protect these residents. The Division focuses on five principal areas: investigation, employment screening, survey inspection of facilities, licensing, and Resident Care Technician (RCT) training and licensing. The Division has full responsibility for training and oversight of RCTs. They review and approve the curriculum of all training programs to ensure compliance with federal regulations, monitor the testing process and manage bi-annual renewals and the certification of persons trained out of state. In addition, the Division monitors continuing education for RCTs. To report abuse, neglect, mistreatment or financial exploitation 24 hour, toll free:

Phone: 1-877-453-0012

Web site: http://dhss.delaware.gov/dhss/dltcrp/

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OMBUDSMAN

The Long Term Care Ombudsman Program, comprised of the Long Term Care Ombudsman staff and community based Volunteer Ombudsman, helps assure dignity, respect and quality of life for older and disabled persons in Delaware's long term care facilities. Ombudsmen are advocates for residents of nursing homes, assisted living facilities, group homes and similar adult care facilities. They work to resolve problems of individual residents and their families and provide a voice for those unable to speak for themselves. The Ombudsman will also witness Advanced Directives (formerly known as Living Wills) for Residents of Long Term Care Facilities. The Ombudsman Program exists in all states under the authorization of the Older Americans Act. Each state has a full time Ombudsman. For more information about the Ombudsman program please call: 1-800-223-9074 or e-mail the Division of Services for Aging and Adults with Physical Disabilities at: DSAAPDinfo@state.de.us or contact http://dhss.delaware.gov/dsaapd/ltcop.html.

MISCELLANEOUS

ALL LIFT FACILITY All resident transfers at The Mary Campbell Center are facilitated with mechanical lifts. The Center is fortunate to have a state of the art ceiling mounted lift system in place, as well as conventional portable lifting equipment. Staff has been trained in the use of this equipment to ensure resident safety and comfort, and staff safety. Equipment is also available to assist transfers into and out of family vehicles. We ask that family members request assistance from staff for any resident transfers here at The Center.

FAMILY RESOURCE GROUP The Family Resource Group is a uniting of all family members of residents of The Center. The chair of the group is Carol Bancroft Morley. Meetings are held on a regular basis. The gatherings for The Pizza Party, Memorial Day, Fourth of July, and Labor Day are often picnic style. There are occasions in which a fee is requested to defray the cost. We do ask that each resident limit their guests to two people. Additional meetings are held at The Center with a speaker, usually a staff member. These events are publicized through mailings to the families.

HAIR SALON “Generations Hair Salon Services” provides a hair stylist who comes to The Center on a regular basis to provide a variety of hair salon services. The prices are quite reasonable and the fee can be withdrawn directly from the resident’s escrow account. If you are interested in learning more about this service, please contact a Case Manager.

SEASONAL CLOTHING CHANGE-OVER Seasonal change-over of all clothing occurs in May and October. Family involvement and help at this time is greatly appreciated by the staff and the resident. The family can also help

MISCELLANEOUS (Continued)

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keep the clothing situation in the wardrobe manageable by taking out old clothing items that no longer fit or are no longer wearable when new clothing is brought in. The family can also be helpful in encouraging the resident to reduce clutter in the room, to facilitate the appearance as well as the cleaning of the room.

LOUNGE AREAS

THE ALL STAR ROOM This room is the hub of many activities. It is a place where residents and families can meet and visit; play games, watch television, and listen to music. The room has large windows which overlook a patio area, a stone fireplace, and a salt water aquarium. There is a bulletin board listing current and future activities. Family picnics are held here periodically. EZEE STREET LOUNGE This attractive room is also used as a gathering place for residents and family, with a television, fireplace, and comfortable chairs. It overlooks the Atrium area.

TELEPHONES Telephones with speakers, iPad and Skype for resident use are located:

in the Comfort Zone hallway opposite Nurses Station—302-764-9920

in the Charmie Welch Wing hallway—302-764-9642

lower level EZee Street, in the Speech Therapy room—a private speaker phone used primarily for the resident to make outgoing private calls.

Residents may have a personal telephone in their room or a cell phone, with monthly charges paid by the resident or family. To contact a resident by phone when there is no room phone call the hallway phone and ask to have the resident paged. In case of a family emergency, notify the Nurse Supervisor (302-762-6025) so staff is prepared to assist resident and family.

TELEVISION Television sets are available in The All Star Room and in the neighborhood lounges. Basic cable hook up, without charge, is available in each resident's room for personal TVs. Any premium channels are at an additional cost and the responsibility of the resident or family.

TRANSPORTATION Several accessible vans are owned and operated by The Mary Campbell Center. They are used for transportation to activities planned by The Center and medical appointments (see Page 10). Requesting transportation for special events can occasionally be accommodated. DART transportation is used by many of the residents; see Case Manager for the assessment process.

VISITING HOURS The Mary Campbell Center promotes an open, home like atmosphere for both resident and family members. There are no "visiting hours" for family members at The Center. Family members are welcome to visit at any time. Access the building by the main front lobby after signing in. (See Entry Doors, page 12.) Visitors should always be mindful of the privacy of residents.

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VOLUNTEERS The volunteer coordinator is responsible for obtaining and training all adult and youth volunteers for The Mary Campbell Center. Among these volunteers are family and staff members, church, school and business groups, and individuals from our community. The volunteer coordinator works with external volunteer groups such as RSVP and Single Volunteers. We also have a partnership with the University of Delaware’s Best Buddy Program which sets up one-on-one relationships and group activities throughout the year. Volunteers must be at least 14 years of age, complete a volunteer application, participate in a tour of The Center, and attend one orientation session. The following are examples of volunteer opportunities. If your talent or interest is not specifically listed, we still NEED YOU!!! Thanks for your help! FRIENDLY VISITOR: to visit with residents, assist with letter writing, play a game, take a walk, or read a book. EDUCATION VOLUNTEER: to assist with classes, Internet, or email in the Learning Center. ARTS & CRAFTS VOLUNTEER: to assist residents with various arts and crafts projects. POOL VOLUNTEER: to assist residents in the indoor pool and hot tub. Volunteers should be available to give time on a regular schedule. Aquatic skills are not necessary. SEWING: to sew name tags on resident's clothing. The need is for year round but especially in November, early December, and January. Sewing machine helpful but not required GARDENING VOLUNTEER: seasonal help is needed to maintain the Nature Trail and the flower and vegetable beds on the grounds of The Center. RECREATION VOLUNTEER: to play board games or cards with residents, assist with trips (movies, sports events, shopping, etc.), play a musical instrument or sing at Music Group and Happy Hour. PARTY AND HOLIDAY EVENTS: adopt a resident for their birthday; adopt a resident for Christmas or Hanukkah; help wrap holiday gifts and write cards. Assistance is needed at a holiday functions. Volunteers decorate for holidays throughout the year. CHILDREN AND YOUTH: to assist special needs children (age 3 - 21) and their siblings with games, arts and crafts, clubs, Special Olympics, swimming, Preschool, and summer camp. GROUP SPONSORED ACTIVITIES: volunteer groups are needed to provide musical performances, drama skits, magic shows, game/activity nights, holiday religious services, outside maintenance of grounds, flower beds, and The Nature Trail. The office of the volunteer coordinator is located in the lower level of EZee Street.

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CHILDREN AND YOUTH PROGRAM

The Mary Campbell Center’s Children and Youth Program provides recreational and social experiences to children and youth with special needs and their families ages 3-21. Individual goals are nurtured in a fun filled environment where all feel accepted. Each participant is involved in needs-based activities that focus on anchoring current capabilities and encourage emerging skills and interests. The integrated programs include: after school, swim lessons, summer camp, teens activities, Special Olympics, and family events. The staff offers programs throughout the year. The hours vary according to the program. Various intergenerational clubs and activities are offered during the year to promote interaction between the residents of The Center and participants in the Children and Youth programs. The Outdoor Learning Play Space was completed in the Spring of 2002. It is located on the back side of The Center between the pool area and EZee Street. This area is designed for both children and adults with special needs. It offers various levels of recreational opportunities including structural play, game tables, a swinging bench, and an accessible sandbox. The most outstanding structure of this area is the 24 foot pavilion which provides shade and shelter while enjoying the outdoors and encloses the interactive activity panels underneath. The Outdoor Learning Play Space, as well as the children's area in the lower level of EZee Street are available to residents and their families. However, remember that the Children and Youth Program and the recreation programs (in house programs) have priority of use. We ask that all children be supervised at all times when using these areas and you clean up after yourselves. The Children and Youth Program is made possible through State of Delaware General Assembly Grant-in Aid funds. The staff offices for the Children & Youth Program are located in the lower level EZee Street.

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THE MARY CAMPBELL CENTER

Guiding Principles for Employees

We respect and are grateful for the rich history of the MCC, the efforts of the Board of Directors from the conception of The Center to the present time, and are proud to have a hand in its future. We approach each person every day with a cheerful and respectful manner— in a way that we would want to be addressed. We demonstrate our priority of helping those we serve when they need our help. We begin each day with the responsibility of learning what is new and/or necessary about the residents for whom we provide care and services. We deliver care and services adhering to the best known practice and to our Standards. We take ownership for the care and services provided to residents. We recognize the critical nature of timely and accurate communication of important resident and community information to those who need it. We recognize the importance of concise and timely documentation. We value and respect the physical environment of the Mary Campbell Center. We respect the interdependence of all staff and recognize the importance of respecting each other and helping one another so that success is universal. We believe that the success of each work day depends on sound leadership and respect for this leadership. If we are leaders, we lead. If we are part of the team, we follow to the best of our ability. We recognize and value the importance of family and volunteers as partners in providing quality care and services, yet respect the boundaries between us.

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