Structured Data Capture (SDC) Public Health Tiger Team

June 18th, 2013

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Overview Items

• Public Health Tiger Team• Use Cases– Criteria for Prioritization

• Question and Answers• Next Week

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Public Health Tiger Team wiki

• http://wiki.siframework.org/Public+Health+Tiger+Team

• Every Tuesday 2-3 pm– Dial In: +1-650-479-3208– Access code: 665 131 907– URL:

https://siframework1.webex.com/siframework1/onstage/g.php?t=a&d=665131907• **This info will not change. 3

EHR PHForm

Sample Types of

Reporting

Quality

Research

Public Health

Case Reporting (Pilot CDA)

EHR and SDC Model

ELR 2.5.1Immunization 2.5.1

Cancer CDA

Forms Repository

Request Form

(CDISC RFDC)Deliver Form

Deliver data from form{Format Type, TBD}

Example Types of Reporting

CDEsMeta DataBusiness

Logic

Define Forms

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EHR

FormSample Types of

Reporting

Quality

Research

Public Health

Forms Repository

Request Form

(CDISC RFDC)Deliver Form

CDEsMetadata

Business LogicVocab, order, skip

patterns

Define Forms

Form Repository

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Case Notification (Pilot CDA)

Immunization 2.5.1

Cancer CDA

Deliver data from form{Format Type, TBD}

Public Health Agency

Public Health

IIS

Cancer Registries

ELR/Disease Surveillance Systems

ELR 2.5.1

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Applicable SDC Public Health User Story

Reportable Condition User StoryA Provider has identified a patient with a reportable condition. Using an existing EHR system, the Provider requests the reportable condition form electronically from the jurisdictional public health organization or entity. In the background, the EHR system sends information already collected about the patient to a forms manager. The Provider now sees the jurisdictional public health reportable condition form inside his or her own EHR/EMR system. Conveniently, most of the data are already pre-populated in this form. The Provider verifies the pre-populated data, adds any missing data, and then submits the form. The Provider receives a response that confirms that the report was submitted to Public Health electronically and received by the public health information system.

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Building Upon PHRI Efforts

• Some user stories need to be consolidated into more generic use cases

• Common data elements great start, but may need some more work to consolidate and add metadata

• Consolidation important because of the concept of pre-population

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Activities for Public Health Domain

1. Criteria for prioritization2. Actual prioritization3. Review of Common Data Elements from PHRI4. Identification of future CDE tasks

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NIH Definition for ‘Common Data Element’

NIH CDE Resource Portal defines ‘common data element’ CDE as:A data element that is common to multiple data sets across

different studies•Emphasis is on the intentional use of CDEs to improve data quality and promote data sharing•Types of CDEs include:

– Universal: CDEs that may be used in studies, regardless of the specific disease or condition

– Domain-specific: CDEs that are designed and intended for use in studies of a particular topic, disease or condition, body system or classification

– Required: CDEs that are required or expected, as a mater of institutional policy

– Core: CDEs that are required or expected to be collected in particular classes of studies

22Source: http://www.nlm.nih.gov/cde/glossary.html#cdedefinition 22

NIH Common Data Element (CDE) Resource Portal

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http://cde.nih.gov

• Provides single point-of-entry for information about NIH-supported CDE initiatives and CDE tools & resources

• Enables browsing of descriptive summaries of the CDE initiatives and of the subject areas to which they apply

• Links out to repositories containing the data elements themselves.

• Version 1.0 launched in January 2013• Contains information on 16 NIH-supported initiatives• Future enhancements: additional NIH and HHS initiatives,

improved navigation23

Other PHRI Use Cases TBD

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User Story

Adverse Events

Immunization Information Systems (AIRA)

Chronic Disease

Cancer Genetics – BRCA

National Health Care Surveys

Child Heal

th

Birth Defects Reporting

Birth Event Reporting

Early Hearing Detection and Intervention (EHDI)

Health Information Exchanges (HIEs) and Immunizations

Immunization

Immunization Information Systems (AIRA)

Maine CDC - Data Research and Vital Statistics

User Story

Communicable

Diseases

Florida Dept of Health - Enteric Disease ReportingHealthcare-Associated Infections

Michigan Disease Surveillance System - Public Health Communicable Disease Surveillance SystemMinnesota Dept of Health - Communicable Diseases (ASTHO)South Dakota Communicable Disease Reporting

User Story

Infrastructure,

Quality, Researc

h

Admin Use of Health Data

National Health Care Surveys

PH Reporting User Story Model

Public Health Data Quality Assurance

Quality Reporting

Registration for Public Health Reporting

Healthcare-Associated Infections

Public Health Work PlanPhase Activity Timeline

1 Pre-Planning Initiate April 22nd

2 CDE and Form/Template Identification

Initiate June 18th

3 Pilot Concept/ Engagement

Initiate July 22

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Step 3: PilotTBD TBD

Step 2: CDE Define Develop Incorporate

Step 1: Use CasePrioritization and Select

Work plans

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CDE and Form Template Identification

• Identify PHRi user stories to incorporate with SDC

• Conduct CDE Overview session• Facilitate WG identification of CDE’s for PH

reporting• Facilitate WG identification of

forms/templates for PH Reporting

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Pilot Engagement

• Develop pilot engagement plan• Develop Pilot Summary Document• Monitor Pilot Progress

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Overall SDC Engagement

• Participate in SDC All-Hands meetings• Participate in SDC Technical SWG Meetings• Present PH CDE to SDC Community

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Thoughts, Comments, Questions?Contact:

Jim (James) Daniel, ONCjames.daniel@hhs.gov

John M. Saindon, CDCuzn0@cdc.gov

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• Vital Statistics (NCHS)• Hospital care survey (NCHS)• Vaccine Adverse Event Reporting (VAERS) (HLN)• School/camp/day care physical form (HLN)

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