steve goldberg president and ceo inet international inc
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An Evolution Of Using Social Networks For Data Collection: A Healthcare Perspective. Steve Goldberg President and CEO iNET International Inc. about INET. Founded in 1998 as an Information and Communication Technology (ICT) Consulting firm. - PowerPoint PPT PresentationTRANSCRIPT
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
An Evolution Of Using SocialAn Evolution Of Using Social Networks For Data Collection: Networks For Data Collection: A Healthcare Perspective A Healthcare Perspective
Steve GoldbergPresident and CEOiNET International Inc
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
about INETabout INET Founded in 1998 as an Information and Communication Technology
(ICT) Consulting firm.
INET Online Data Collection Practice: programming and hosting, online sample, and translation services for international studies.
INET Wireless Diabetes Practice: supporting the implementation of chronic disease management.
Research collaboration with CMMT at IIT Chicago with a focus on ways to best apply ICT use in Healthcare
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
where INET fits?where INET fits?
Client’s Business Outcomes
Methodology
Study Design
Data Collection
Tabulation and Coding
Analysis
Presentation
Online Data Collection
program and host
online surveys&
provision online sample
solutions
Quantitative Market ResearchStudies
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Today’s TalkToday’s Talk
Using Social Networks For Data Collection
Need For Online Communities: A Healthcare Case Study
Moving Toward An Online Community To Support Diabetes Self-Care
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Evolution Of Social Networks For Evolution Of Social Networks For Online Data CollectionOnline Data Collection
Online CommunitiesOnline CommunitiesSocial NetworksSocial NetworksOnline PanelsOnline Panels
Fast and HighlyFast and Highly Responsive Responsive
Extremely Low CostExtremely Low Cost
Rigorous Data QualityRigorous Data Quality Measures Measures
Learning &Learning & Motivating Change Motivating Change
PassivePassiveParticipationParticipation
ActiveActiveParticipationParticipation
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
2006 - Dion Hincliffe : Web 1.0 vs Web 2.0
Two Way CommunicationTwo Way Communication
Social NetworksSocial Networks
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Social Network: FacebookSocial Network: Facebook
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Social NetworkingSocial Networking& Softwares& Softwares
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Unique Audience: Individuals who have visited a Web site (or network) at least once in a fixed time frame, typically a 30 day period.
Top 10 Social NetworksTop 10 Social Networks
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Age DemographicsAge Demographics
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Cultural IntegrationCultural Integration
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Fielding Studies Using Social NetworksFielding Studies Using Social Networks Consumer Studies:
Peanut Lab has:– Assess to Facebook which has 140 million users and 70% are outside the US. and 80 other social network
(web) sites,– 27 million visitors/month– Response rate of 29%.– Peanut Labs was created 14 months ago, has annualised turnover of $10m - Sept 29 2008
B2B Studies: LinkedIn new entry into B2B sample solution with over 150 industries and 30 million professionals (50% are IT and business decision makers.) October 2008
Healthcare Studies:
Sermo - over 60,000 physicians and is growing between 1,000 to 2,000 physicians per week. Physicians can post observations and questions through the use of internet connections, blogs, instant messaging and other Web 2.0 applications. April 2008
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Virtual Currency & Data Collection Virtual Currency & Data Collection Business ModelBusiness Model
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Mechanics Of A Virtual IncentiveMechanics Of A Virtual Incentive
Access Generation Y = facebook + virtual incentive = 29% Response Rate
Qualified fluff owners have an option to take a survey
for “munny”
Qualified fluff owners have an option to take a survey
for “munny”
An owner needs “munny” to care and feed their fluff, buy gifts and do lots of fun activities.
An owner needs “munny” to care and feed their fluff, buy gifts and do lots of fun activities.
2
3
A fluff owner community represents ~160,000 daily
active users (3% of the daily facebook users)
A fluff owner community represents ~160,000 daily
active users (3% of the daily facebook users)
1
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
A Framework for Data QualityA Framework for Data Quality
Social Network Sample = digital fingerprint + validation measures = quality data
Social Networks
OnlineCommunity
OnlineCommunity
OnlineCommunity
recruit fully opted-in respondents
Profile Database nProfile Database 1
pre-survey: digital fingerprint
one-off (i.e. cookies) ongoing (i.e. pattern)
post-survey: validation measuresspeeders, straight-liners, zig-zagers, knowledge / security question
failures, OE legibility, screen scrapers, and geo IP variances
identify duplicate, heavy or professional user
Online Community nOnline Community 1 ….....
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Online Surveys Employ Graphical User Online Surveys Employ Graphical User Interfaces (GUI) and MessagingInterfaces (GUI) and Messaging
A cluster analyses summary
report
Integrate Quant-Qual
Tools
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
US
INMX
BR
KREP IT
AU
CN JP
CA
INET sample suppliers = World Wide Online Access to > 400,000 physicians
Online Sample: Mix of Old And NewOnline Sample: Mix of Old And New
US
Opt-in Members
CountryRecruitment Method
60,000 +1000/wk
USSocial Network
BR
CN
AU
IN
IT
EPTelephone to web
MXCATI Back End Data Entry (BEDE)
9,500CA
Telephone to web & back end recruit
7,400FR
F2F BEDE
145,000US
Pseudo Online Community
121,000JP
60,500DE
57,000UK
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GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Evolution Of Social Networks For Evolution Of Social Networks For Online Data CollectionOnline Data Collection
Online CommunitiesOnline CommunitiesSocial NetworksSocial NetworksOnline PanelsOnline Panels
Fast and HighlyFast and Highly Responsive Responsive
Extremely Low CostExtremely Low Cost
Rigorous Data QualityRigorous Data Quality Measures Measures
Learning &Learning & Motivating Change Motivating Change
PassivePassiveParticipationParticipation
ActiveActiveParticipationParticipation
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Need For Online Communities:Need For Online Communities:A Healthcare Case StudyA Healthcare Case Study
To Become Motivated To Change: Extremely high dissatisfaction levels in healthcare –> survival anxiety.
What Needs To Be Changed: Focus on patients transition from passive participation to an active player in their own care.
To Make The Change Permanent: Improved healthcare outcomes for everyone at a fraction of today's costs.
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
The cost to the U.S. economy of treatment The cost to the U.S. economy of treatment and lost productivity caused by chronic and lost productivity caused by chronic illnesses among U.S. residents is more illnesses among U.S. residents is more than $1.3 trillion per year, and if current than $1.3 trillion per year, and if current
trends are not reversed, costs could reach trends are not reversed, costs could reach $6 trillion by 2050, according to a report $6 trillion by 2050, according to a report
released Tuesday by the released Tuesday by the Milken InstituteMilken Institute, , the the San Francisco ChronicleSan Francisco Chronicle reports [Oct reports [Oct
03, 2007] 03, 2007]
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Looking At Chronic DiseaseLooking At Chronic Disease
In Canada, chronic diseases account for 70% of all deaths, more than 60% of healthcare costs.
Diabetes, depression, congestive heart failure, hepatitis and asthma are examples of chronic diseases.
World wide between 2000 and 2030 the number of people with diabetes may increase from 171 million to 366 million, a 114% increase.
Of those with diabetes in 2030 it is expected that 298 million will be in developing countries.
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
The Worldwide Epidemic:The Worldwide Epidemic:Diabetes TrendsDiabetes Trends
www.who.intwww.idfZimmet P. et al Nature: 414, 13 Dec 2001
8th Annual INET Mini-Conference, "A Wireless Diabetes Program: A patient, hospital and primary care collaboration." June 20, 2006 - Keynote: "Diabetes in Canada: Issues and Challenges in Clinical Care" Dr. Stewart B. Harris MD, MPH, FCFP, FACPM
21.935.864%
6.915.2
210%
20.925.823%
1.32.2
69%
5.511.6
111%
World2000 = 159 million2025 = 280 million
Increase 76%
102.2189.485%
Number of Diabetics: 2000-2025
Numbers are millions
Hoy et al.
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Why the Epidemic? Why the Epidemic?
Physical Inactivity– 60% to 85% of adults are not active enough to
maintain their health
Diet– Calorie dense; high fat
Aging population Urbanization
– Shift from an agricultural to an urban lifestyle means a decrease in physical activity
8th Annual INET Mini-Conference, "A Wireless Diabetes Program: A patient, hospital and primary care collaboration." June 20, 2006 - Keynote: "Diabetes in Canada: Issues and Challenges in Clinical Care" Dr. Stewart B. Harris MD, MPH, FCFP, FACPM
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Portion Size: 1950s to 2000Portion Size: 1950s to 2000
8th Annual INET Mini-Conference, "A Wireless Diabetes Program: A patient, hospital and primary care collaboration." June 20, 2006 - Keynote: "Diabetes in Canada: Issues and Challenges in Clinical Care" Dr. Stewart B. Harris MD, MPH, FCFP, FACPM
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
““Each System is Perfectly Designed to get the Each System is Perfectly Designed to get the Results it Achieves.Results it Achieves.
We designed our health system to manage We designed our health system to manage acute illnesses, not manage (much less acute illnesses, not manage (much less
prevent) chronic ones.”prevent) chronic ones.”
Michael M. Rachlis MD MSc FRCPCMichael M. Rachlis MD MSc FRCPC
9th Annual INET Mini-Conference, "Telehealth: Support Diabetes Self-Care." June 20, 2007, Keynote: "How do we Re-tool Ontario’s Health Care System for Chronic Disease Management and Prevention?" Dr. Michael M. Rachlis, MD, MSc, FRCPC
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Transitioning to Self-CareTransitioning to Self-Care
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Empower and Prepare Patients to Empower and Prepare Patients to Manage Their Health and Healthcare Manage Their Health and Healthcare
Self Management Support
Programs emphasize the patient's role in managing the illness. Educational resources increase patient knowledge, confidence, and
skills. Patients are assisted in setting personal goals and are given a variety
of other aids to assist in changing behavior. Mechanisms for patient peer support are accessible and the patient
has access to behavior change programs. Measurement methods and feedback are provided to patients. Patients are assisted in improving communication with providers
about their health care.
http://www.doh.wa.gov/cfh/WSC/Model_Info/self_management_support/default.htmhttp://www.doh.wa.gov/cfh/WSC/Model_Info/self_management_support/default.htm
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Improved healthcare outcomes for everyone Improved healthcare outcomes for everyone at a fraction of today's costsat a fraction of today's costs
Enable people to achieve their self management support goals. Minimize risk by implementing new processes in small
manageable bite size pieces. Offer the lowest cost (ICT) solution by leverage existing
systems and use pervasive technologies:– Internet– Cell phones– Social Networks: Facebook, Linkedin
Keep it very simple
&
Knowledge-based Systems Development Model Center for the Management of Medical Technology (CMMT)
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Sheldon Silver MDFamily Practice
Staff Physician Credit Valley Hospital
Using Cell-Phones To Facilitate Using Cell-Phones To Facilitate Diabetes Self-CareDiabetes Self-Care
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
HHA1CA1C
Glycosylated hemoglobin
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Adapted from Stratton IM, et al. UKPDS 35. BMJ 2000; 321:405–412.
UKPDS: decreased risk of diabetes-related complications UKPDS: decreased risk of diabetes-related complications associated with a 1% decrease in A1Cassociated with a 1% decrease in A1C
UKPDS: decreased risk of diabetes-related complications UKPDS: decreased risk of diabetes-related complications associated with a 1% decrease in A1Cassociated with a 1% decrease in A1C
Per
cen
tag
e d
ecre
ase
in r
ela
tive
ris
k co
rres
po
nd
ing
to
a 1
% d
ecre
ase
in A
1C
**
Any diabetes-related endpoint
21%
**
Diabetes-related death
21% **
All cause
mortality
14%*
Stroke
12%
**
Peripheral vascular disease†
43%
**
Myocardial infarction
14%
**
Micro-vascular disease
37%
**
Cataract extraction
19%
Observational analysis from UKPDS study data
†Lower extremity amputation or fatal peripheral vascular disease*P = 0.035; **P < 0.0001
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Wireless Diabetes Wireless Diabetes Management ProtocolManagement Protocol
Patient’s phone is loaded with a program & ID# Enter blood sugar readings. The data is sent back electronically and wirelessly to their
MD; Data consists of only an ID# and blood sugar as well as
date and time of reading No identifying data; privacy is protected; Avoids hoarding of data. MDs/RNs monitor data on SmartPhone / PC Action plan sent back to patient. Excellent MD/RN – patient relationship Community team approach with DCC & CCAC
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Action Request i.e. ”Keep up the good work”
Diabetes Management System (Bayer WinGlucofacts & INET Sync)
Healthcare Team
Patient Privacy: No identifiable information is transmitted.
Peoplew/Diabetes
Supporting Diabetes Self Care
Receive Sugar Levels
Send Action Request
Enter Sugar Level
GlycemiCare Server
Prevent Diabetes Related Complications with Better
Control of Glycemic Levels, Measured by HA1C
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Pilot Project: Diabetes Care Centre, Pilot Project: Diabetes Care Centre, Credit Valley Hospital (CVH)Credit Valley Hospital (CVH)
Pilot was support with an Education Grant Funded by Bayer Diabetes Care Division
Pilot started in 2006 with approval from CVH Ethics Review Broad.
25 patients enrolled and 20 completed. 15 patients participated > 3 months, 7 patients => 5 months. 20 patients submitted both pre and post HA1C. 18 patients reduced HAIC and 1 patient maintained good control
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Patient FeedbackPatient Feedback
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Empower and Prepare Patients to Empower and Prepare Patients to Manage Their Health and HealthcareManage Their Health and Healthcare
Self Management Support
Programs emphasize the patient's role in managing the illness. Educational resources increase patient knowledge, confidence, and
skills. Patients are assisted in setting personal goals and are given a variety
of other aids to assist in changing behavior. Mechanisms for patient peer support are accessible and the patient
has access to behavior change programs. Measurement methods and feedback are provided to patients. Patients are assisted in improving communication with
providers about their health care.
http://www.doh.wa.gov/cfh/WSC/Model_Info/self_management_support/default.htmhttp://www.doh.wa.gov/cfh/WSC/Model_Info/self_management_support/default.htm
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Empower and Prepare Patients to Empower and Prepare Patients to Manage Their Health and Healthcare Manage Their Health and Healthcare
Self Management Support
Programs emphasize the patient's role in managing the illness. Educational resources increase patient knowledge, confidence,
and skills. Patients are assisted in setting personal goals and are given a
variety of other aids to assist in changing behavior. Mechanisms for patient peer support are accessible and the
patient has access to behavior change programs. Measurement methods and feedback are provided to patients. Patients are assisted in improving communication with providers
about their health care.
http://www.doh.wa.gov/cfh/WSC/Model_Info/self_management_support/default.htmhttp://www.doh.wa.gov/cfh/WSC/Model_Info/self_management_support/default.htm
NEXT Step
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People Looking To Educate People Looking To Educate Themselves For Self-Care Themselves For Self-Care
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Online CommunitiesOnline Communities::How groups are How groups are
remarkablyremarkablyintelligent showing how intelligent showing how shared observation and shared observation and their members collective their members collective
wisdom can produce some wisdom can produce some astonishingastonishing
clinical insights.clinical insights.
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
A culture of learning and motivating changeA culture of learning and motivating change
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Moving Toward An Online Community To Support Diabetes Self-Care
Action Request i.e. ”Keep up the good work”Diabetes Management System
(Bayer WinGlucofacts & INET Sync)
Healthcare Team
Patient Privacy: No identifiable information is transmitted.
Peoplew/Diabetes
Supporting Diabetes Self CareSupporting Diabetes Self Care
Receive Sugar Levels
Send Action Request
Enter Sugar Level
GlycemiCare Server
Prevent Diabetes Related Complications with Better
Control of Glycemic Levels, Measured by
HA1C
Virtual Currency & Online Data Collection Business Model
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
Evolution Of Social Networks For Evolution Of Social Networks For Online Data CollectionOnline Data Collection
Online CommunitiesOnline CommunitiesSocial NetworksSocial NetworksOnline PanelsOnline Panels
Fast and HighlyFast and Highly Responsive Responsive
Extremely Low CostExtremely Low Cost
Rigorous Data QualityRigorous Data Quality Measures Measures
Learning &Learning & Motivating Change Motivating Change
PassivePassiveParticipationParticipation
ActiveActiveParticipationParticipation
WIP: Transition WIP: Transition Research MethodsResearch Methods
Future: Build Online Future: Build Online CommunitiesCommunities
Today: Online Data Today: Online Data CollectionCollection
GLC - MRA Conference January 21-23 2009GLC - MRA Conference January 21-23 2009
THANK YOU!THANK YOU!