#SoMe and @Twitter in Oncology #supportivecare

Disclosures•  Honorariaforadvisoryboards–

– Merck,MSD,Janssen•  Speakersfees

– MSD,Roche•  Consultancyinaresearchproject-MSD•  MostfundingcomesfromtheAustralianFederalGovernmentviaMedicare

@drcbsteer

Acknowledgements

@drdonsdizon

@minasedrakmd@subatomicdoc@drmarkham

Acknowledgements.

@ASCOSocialMediaWorkingGroup

What exactly is social media?

EvolvingtechnologiesaimingtofacilitatecommunicaJon• Onetoone• Onetomany

Mechanismbywhichvirtual

communiJesformaround

sharedinterests

@drdonsdizon

Connec5ons

#ASCO17@mdigitalLife

hQp://mdlpublish.herokuapp.com/0c40e99f-0a91-44cb-a951-4df89d38b0e0

hQp://mdlpublish.herokuapp.com/0c40e99f-0a91-44cb-a951-4df89d38b0e0

Major Social Media Companies Company Incep5on Userbase Content Usercommuni5es

Facebook

2004 Almost2B Photos,videos,Memes,ArJcles

SupportgroupsInsJtuJonsOrganizaJonsFamiles

TwiQer 2006 336macJveusers Tweets(280characters)

Hashtagsmarkinterests(#bcsm,#gyncsm,#some,#lcsm,#pallonc)

LinkedIn 2003 Almost500m Photos,videos,arJcles,informaJon,resumes

Professionalnetworkingopportunity

@drdonsdizon

Socialmedialandscape2018

Not all platforms

are equally used

hQps://www.smarJnsights.com/social-media-markeJng/social-media-strategy/new-global-social-media-research/@drdonsdizon

Slide 3

Presented By Mina Sedrak at 2018 ASCO Annual Meeting

Slide 4

Presented By Mina Sedrak at 2018 ASCO Annual Meeting

Social media and medicine: Why you

should care?

@drdonsdizon

Why should you pay attention?

• Publicisturningtotheinternetfirst

Adaptedfrom:hQps://hints.cancer.gov/_images/infographics/HINTS-TRUST-Infographic-Cancer-Sources_Facebook-

OpJmized.jpgAccessedMarch2017.

@drdonsdizon

BUT, they trust us more

Adaptedfrom:hQps://hints.cancer.gov/_images/infographics/HINTS-TRUST-Infographic-Cancer-Sources_Facebook-OpJmized.jpgAccessedMarch2017.

@drdonsdizon

Like it or not, you may already have a presence online…

Traditional Communication

Presented By Merry Markham at 2018 ASCO Annual Meeting

Modern Communication

Presented By Merry Markham at 2018 ASCO Annual Meeting

Pros & Cons of Physician-Patient Communication Online: Pros

Presented By Merry Markham at 2018 ASCO Annual Meeting

Pros & Cons of Physician-Patient Communication Online: Cons

Presented By Merry Markham at 2018 ASCO Annual Meeting

Risks of Opting Out

Presented By Matthew Katz at 2018 ASCO Annual Meeting

Dangers of Misinformation

Presented By Matthew Katz at 2018 ASCO Annual Meeting

What do we know about the oncologists who are

online?

SocialOncologyReport2017

GregMaQhews@chimoose@MDigitalLife

@drcbsteer

#MASCC18

SocialOncologyReport20171522oncologistson@TwiQerChallengingthestereotypesoftheonlinecommunity.•  Young•  Male•  Centredaroundurbantechnologyhubs

Fastinternetandsmartphonesarenowsoubiquitous…. ….everyoneisonline.

@chimoose

@chimoose

*USdata

*

#MASCC18@drcbsteer

@chimoose

@drcbsteer#MASCC18

@chimoose

@drcbsteer#MASCC18

*USdata

Onlineoncologistsjustaslikelytoreceivepaymentsfromindustrybutthequantumisx3higher*

@chimoose

@drcbsteer#MASCC18

*USdata

Journalpublica5ons?

@chimoose

@ASCO_JCO@ASCO_JCOP

@drcbsteer#MASCC18

SocialOncologyProject2017-Conclusions

Surveyof1522oftechsavvyUSoncologists(7%)Followingthisgroup“maynotrevealtheheartofmedicine…butitgivespowerfulhintsaboutthefutureofpaJentcare” @chimoose

@drcbsteer#MASCC18

SocialOncologyReport2018

@chimoose@MDigitalLife

#MASCC18

hPp://www.w2ogroup.com/the-social-oncology-report-2018/

@chimoose

*USdata

#MASCC18hQp://www.w2ogroup.com/the-social-oncology-report-2018

@chimoose

#MASCC18

HigherpercentageofphysiciansontwiQerassociatedwithhigherhospitalranking*

*USdata

hQp://www.w2ogroup.com/the-social-oncology-report-2018

@chimoose

#MASCC18hQp://www.w2ogroup.com/the-social-oncology-report-2018

@chimooseSocialOncologyReport2018

#MASCC18

Thehigherthegenderparityinthehospital,thehigherthereputaJonscore.Closesttogenderparity-UniversityofNorthCarolinaat54%Farthest-Cedars-Sinai76%

hQp://www.w2ogroup.com/the-social-oncology-report-2018

What kind of conversations are

happening on Twitter?

#SoMeconnectsOncologycommuni5es

@chimoose

@drcbsteer#MASCC18

#ASCO17

#SoMeconnectsOncologycommuni5es

@chimoose

#MASCC18

#ASCO17

@drcbsteer

DiseaseSpecificHashtagsinOncologyCancerTagOntology

Facilitatetargeted,streamlinedcommunicaJon#supponc,#pallonc,#gerionc,

#supporJvecare

Healthcarehashtags-#supponcLast28days

Healthcarehashtags-#supponcLast28days

Healthcarehashtags-#palloncand#gerioncLast28days

#ASCO18tweetac5vity

hQps://www.symplur.com/healthcare-hashtags/ASCO18/analyJcs

#ASCO18FeaturedVoices

@ASCO#ASCO18

Social media and the researcher

ApartfromprofessionalcommunicaJon…howcanweusesocialmediainsupporJvecare?

The largest focus group in the world is

found on-line

@drdonsdizon

Needs Assessment Using Twitter

Hagan(2018):Whatarethesurvivorshipneedsforwomentreatedforovariancancer?

Method:Tweetchatinpartnershipwith#gyncsm:Re-envisioningovariancancersurvivorship

Recruitment:CollaboraJonwithpartners:OCRFA,SGO,FWC,NOCC

@drdonsdizon

Tweetchat Focus Group

(Hagan, 2018)

HaganTL,etal.JPaJentCenteredResandRev2018.InPress.@drdonsdizon

Survivorship in Ovarian Cancer

377UniqueTweets

43parJcipantsinthe1hourduringtweetchat(ave8.6tweets/person)

60addedthoughtsinthefollowing24hours

HaganTL,etal.JPaJentCenteredResandRev2018.InPress.@drdonsdizon

Word Frequency

HaganTL,etal.JPaJentCenteredResandRev2018.InPress.@drdonsdizon

Word sentiment

HaganTL,etal.JPaJentCenteredResandRev2018.InPress.@drdonsdizon

What did we learn?

ThereisalackofsupportduringtransiJons

PhysicalandemoJonalneedswereunmetbyclinicians

PaJentsnavigatedindependently

SurvivorswantustobeproacJve

• Provideresources• Careplansnotappropriateforwomenwhofaceahighrecurrencerisk

• Careplansshouldaddressneedsofwomenanerrecurrence

HaganTL,etal.JPaJentCenteredResandRev2018.InPress@drdonsdizon

ConfirmsthefeasibilityofgrowingandmaintainingatwiQercommunityforrarecancers

PaJentsaretweeJngabouttheirsymptoms

Analysisof>146,000tweetsin2014

PaJentsbroadcasttheirfeelings.TwiQercanbeusedtogaugesaJsfacJonanddiscoverunmetneeds.

Analysisof>146,000tweetsin2014

Yes

PaJentswithcancerusetwiQerasatooltosharemedicalinformaJon

TwiPeranddiseasedetec5on?

InvesJgatorshavedevelopedatooltodetectinfluenzaoutbreaksinrealJmeviaanalysisoftwiQerdata

Slide 5

Presented By Mina Sedrak at 2018 ASCO Annual Meeting

However, there remains a paucity of literature examining the value and direct application of social media in oncology

Presented By Mina Sedrak at 2018 ASCO Annual Meeting

Examples of gaps in knowledge

Presented By Mina Sedrak at 2018 ASCO Annual Meeting

Slide 16

Presented By Mina Sedrak at 2018 ASCO Annual Meeting

Should I start engaging in social media?

Social media isn’t worth your time unless

Presented By Matthew Katz at 2018 ASCO Annual Meeting

David Rowe, Australia @roweafr

Inaneraofglobal“Twiplomacy”…….“….healthliteracy,inparJcular,“HealthTwiPeracy”andeHealthliteracy…..…….definedastheabilitytoseek,find,understandandappraisehealthinformaJonfromelectronicsourcesandapplytheknowledgegainedtoaddressingorsolvingahealthproblem…..

……willberequiredsoonerratherthanlater.