2011 03 30 hpm tweetchat transcript

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#hpm Healthcare Hashtag Twitter Transcript From: Wed Mar 30 17:55:00 PDT 2011 To: Wed Mar 30 19:05:00 PDT 2011 Customize transcript dates and layout Learn more about #hpm at The Healthcare Hashtag Project healthpolicygrp RT @PracticalWisdom: Doing some reading getting ready for #HPM tonight. Future looking bright for my #HPM Folks. Important validation. h ... Wed Mar 30 17:55:18 PDT 2011 Kaviraj2 RT @renee_berry : Demand Grows for #Palliative Care http://ow.ly/4pZ1W via @DianeEMeier #hpm Wed Mar 30 17:56:17 PDT 2011 BuddhishMD Given that we will die is the ONLY thing we can all count on for sure, how could we not make it a #1 priority in medicine? #hpm #palliative Wed Mar 30 17:56:36 PDT 2011 KathyKastner Gr8 news abt Joint Commission and #hpm . http://tinyurl.com/4cfaql4 hope Canada follows suit. Wed Mar 30 17:59:17 PDT 2011 aliciabloom a few minutes away from the best hour on Twitter-- it's the #hospice & #palliative medicine tweetchat! #hpm Wed Mar 30 17:59:48 PDT 2011 ctsinclair Sending out last minute Tweetchat invites to @BuddishMD @Kaviraj2 @DianeEMeier @Ewidera @FischMD @Rabob @Dweissma #hpm Wed Mar 30 18:00:51 PDT 2011 KathyKastner 2 true! RT @aliciabloom : a few minutes away from the best hour on Twitter-- it's the #hospice & #palliative medicine tweetchat! #hpm Wed Mar 30 18:00:59 PDT 2011 ctsinclair RT @aliciabloom : a few minutes away from the best hour on Twitter-- its the #hospice & #palliative medicine tweetchat! "follow #hpm Wed Mar 30 18:01:17 PDT 2011 Intlphysicians RT @fischmd: Another new peer-reviewed journal: Journal of Adolescent and Young Adult Oncology, launches in April, http://ow.ly/4ntJi, #hpm #oncology

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Page 1: 2011 03 30 hpm tweetchat transcript

#hpm

Healthcare Hashtag Twitter Transcript

From: Wed Mar 30 17:55:00 PDT 2011

To: Wed Mar 30 19:05:00 PDT 2011

Customize transcript dates and layout

Learn more about #hpm at The Healthcare Hashtag Project

healthpolicygrp RT @PracticalWisdom: Doing some reading getting ready for #HPM tonight. Future

looking bright for my #HPM Folks. Important validation. h ...Wed Mar 30 17:55:18 PDT 2011

Kaviraj2 RT @renee_berry: Demand Grows for #Palliative Care http://ow.ly/4pZ1W via

@DianeEMeier #hpmWed Mar 30 17:56:17 PDT 2011

BuddhishMD Given that we will die is the ONLY thing we can all count on for sure, how could we

not make it a #1 priority in medicine? #hpm #palliativeWed Mar 30 17:56:36 PDT 2011

KathyKastner Gr8 news abt Joint Commission and #hpm. http://tinyurl.com/4cfaql4 hope Canada

follows suit.Wed Mar 30 17:59:17 PDT 2011

aliciabloom a few minutes away from the best hour on Twitter-- it's the #hospice & #palliative

medicine tweetchat! #hpmWed Mar 30 17:59:48 PDT 2011

ctsinclair Sending out last minute Tweetchat invites to @BuddishMD @Kaviraj2

@DianeEMeier @Ewidera @FischMD @Rabob @Dweissma #hpmWed Mar 30 18:00:51 PDT 2011

KathyKastner 2 true! RT @aliciabloom: a few minutes away from the best hour on Twitter-- it's the

#hospice & #palliative medicine tweetchat! #hpmWed Mar 30 18:00:59 PDT 2011

ctsinclair RT @aliciabloom: a few minutes away from the best hour on Twitter-- its the

#hospice & #palliative medicine tweetchat! "follow #hpmWed Mar 30 18:01:17 PDT 2011

Intlphysicians RT @fischmd: Another new peer-reviewed journal: Journal of Adolescent and Young

Adult Oncology, launches in April, http://ow.ly/4ntJi, #hpm #oncology

Page 2: 2011 03 30 hpm tweetchat transcript

Wed Mar 30 18:01:25 PDT 2011

renee_berry --> passionate about early palliative care & advance care planning, love this group! hi

everyone! #hpmWed Mar 30 18:01:55 PDT 2011

renee_berry :) RT @EldrcareConsult: We interrupt this program for a specail program.....its the

#hospice & #palliative medicine tweetchat! #hpmWed Mar 30 18:02:05 PDT 2011

EldrcareConsult We interrupt this program for a special announcement.....it's the #hospice &

#palliative medicine tweetchat! #hpmWed Mar 30 18:02:41 PDT 2011

RossJeanette For the next hour, Im tweeting from #hpm tweetchat. Feel free to lurk or join. Learn

how http://bit.ly/dcA3ic #hpmWed Mar 30 18:02:46 PDT 2011

DrSnit RT @EldrcareConsult: We interrupt this program for a special announcement.....it's

the #hospice & #palliative medicine tweetchat! #hpmWed Mar 30 18:03:11 PDT 2011

renee_berry RT @RossJeanette: For the next hour, Im tweeting from #hpm tweetchat. Feel free to

lurk or join. Learn how http://bit.ly/dcA3ic #hpmWed Mar 30 18:03:15 PDT 2011

DrSnit @EldrcareConsult LOL - nice. #hpmWed Mar 30 18:03:21 PDT 2011

ctsinclair Hey @KUKidsHP @HaslingerPPC and @BuddishMD check out tweet from

@FischMD *New* Journal of Adolescent/YA Oncology http://ow.ly/4ntJi #hpmWed Mar 30 18:03:31 PDT 2011

RossJeanette Welcome to the Hospice and Palliative Medicine Tweetchat. I am your host Jeanette

Ross Let’s start with some introductions #hpmWed Mar 30 18:03:31 PDT 2011

ctsinclair RT @RossJeanette: For the next hour, Im tweeting from #hpm tweetchat. Feel free to

lurk or join. Learn how http://bit.ly/dcA3ic #hpmWed Mar 30 18:03:41 PDT 2011

PracticalWisdom Remember Romber Room. Sounds like Christian is looking for our Friends! I see

@KathyKastner @EldrcareConsult @renee_berry @DrSnit, etc #HPMWed Mar 30 18:03:41 PDT 2011

EldrcareConsult There I finally got my announcement right! #hpmWed Mar 30 18:03:51 PDT 2011

ctsinclair Tweets are my Own (TAMO) #hpmWed Mar 30 18:03:59 PDT 2011

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ctsinclair And I see @PracticalWisdom being a smarty pants! #hpmWed Mar 30 18:04:17 PDT 2011

revdoc RT @ctsinclair: For the next hour, Im tweeting from #hpm tweetchat. Feel free to lurk

or join. Learn how http://bit.ly/dcA3ic #hpmWed Mar 30 18:04:17 PDT 2011

DrSnit *Steals your tweets* *runs away* RT @ctsinclair: Tweets are my Own (TAMO) #hpmWed Mar 30 18:04:22 PDT 2011

PracticalWisdom We are not picky it was great. Lisa The Rascal RT @EldrcareConsult: There I finally

got my announcement right! #HPMWed Mar 30 18:04:26 PDT 2011

Kaviraj2 RT @renee_berry: :) RT @EldrcareConsult: We interrupt this program for a specail

program.....its the #hospice & #palliative medicine tweetchat! #hpmWed Mar 30 18:04:37 PDT 2011

Kaviraj2 RT @renee_berry: --> passionate about early palliative care & advance care

planning, love this group! hi everyone! #hpmWed Mar 30 18:04:44 PDT 2011

EldrcareConsult Hi everyone! This is Shon from Knoxville, TN and I am a GCM and aspiring author!

#hpmWed Mar 30 18:04:44 PDT 2011

inhousehospice Hello, again! I'm Ash, marketing coordinator @inhousehospice & palliative care of MI

& OH. :) #hpmWed Mar 30 18:04:52 PDT 2011

equijada @RossJeanette Hi Jeanette. Earl here. Thanks for hosting. #hpmWed Mar 30 18:05:09 PDT 2011

PracticalWisdom Lisa Curious Adult Education Scholar who morphs the ho-hum into compelling.

Speaker, Trainer, Presentation Designer, #HPMWed Mar 30 18:05:19 PDT 2011

RossJeanette I'm Jeanette Ross I'm HPM doctor in San Antonio TX, Associate HPM fellowship

director @uthscsa passionate about teaching #hpmWed Mar 30 18:05:21 PDT 2011

PracticalWisdom yes, thanks RT @equijada: @RossJeanette Hi Jeanette. Earl here. Thanks for

hosting. #HPMWed Mar 30 18:05:38 PDT 2011

renee_berry @Kaviraj2 great to see you here, are you joining our chat tonight? (group he's a great

supporter of my live tweeting!!) #hpmWed Mar 30 18:05:40 PDT 2011

MeriLizzie @DrSnit are you causing trouble again? #hpmWed Mar 30 18:05:43 PDT 2011

Page 4: 2011 03 30 hpm tweetchat transcript

ElusiveEm RT @ctsinclair: RT @RossJeanette: For the next hour, Im tweeting from #hpm

tweetchat. Feel free to lurk or join. Learn how http://bit.ly ...Wed Mar 30 18:06:36 PDT 2011

renee_berry Hey Earl!!! Are you non-lurking tonight?! RT @equijada: @RossJeanette Hi Jeanette.

Earl here. Thanks for hosting. #hpmWed Mar 30 18:06:40 PDT 2011

ctsinclair I just posted a link to http://tweetchat.com/room/hpm and invited my FB friends to

come. Don't know ROI, but something to try #hpmWed Mar 30 18:06:44 PDT 2011

revdoc @equijada Hi, Earl--Pam Harris from KC here #hpmWed Mar 30 18:06:46 PDT 2011

KathyKastner Hello to all wonderful #hpm-ers. Health blogger and working on app to help facilitate

completing AD. (possibly also Looking for trouble :)Wed Mar 30 18:06:55 PDT 2011

MatthewsMichele Hi everyone! Michele here: a #socialmedia junkie, #pr , #healthpolicy

communications, and #hpm enthusiast now working for @klxmedia #hpmWed Mar 30 18:06:58 PDT 2011

EldrcareConsult <-----the aspiring author sits back in from of the fire and smokes his pipe..... :) #hpmWed Mar 30 18:07:13 PDT 2011

ctsinclair Hi all, Christian Sinclair, palliative care MD @KCHospice, editor @Pallimed,

founder/CEO @KLXmedia, advocate for @NHDD, dancer #hpmWed Mar 30 18:07:45 PDT 2011

jsequoia RT @BuddhishMD: Given that we will die is the ONLY thing we can all count on for

sure, how could we not make it a #1 priority in medicine? #hpm #palliativeWed Mar 30 18:07:52 PDT 2011

koehlerjo Hello everyone! Jo from kc here #hpmWed Mar 30 18:07:53 PDT 2011

KathyKastner Trust you have smoking jacket RT @EldrcareConsult: <-----the aspiring author sits

back in from of the fire and smokes his pipe..... :) #hpmWed Mar 30 18:07:54 PDT 2011

EldrcareConsult err FRONT....cant type tonight #hpmWed Mar 30 18:07:56 PDT 2011

RossJeanette Welcome @equijada @ctsinclair @renee_berry @drsnit @practical Wisdom

@kajviraj2 @matthewsMichele @eldrcareconsult @kathykastner! #hpmWed Mar 30 18:08:14 PDT 2011

PracticalWisdom @MatthewsMichele: Congrats on your new Job. Heard you have a great boss and

team. #HPM

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team. #HPMWed Mar 30 18:08:18 PDT 2011

emilybarryPR Hi all! Emily Barry with Transcend Hospice Marketing Group, @hospice_mktg #hpmWed Mar 30 18:08:24 PDT 2011

EldrcareConsult @KathyKastner of course! #hpmWed Mar 30 18:08:30 PDT 2011

ctsinclair @MatthewsMichele I'll have my story done tonight for @NHDD http://hpm.md/hVaENa

#hpmWed Mar 30 18:08:46 PDT 2011

equijada @renee_berry Non-lurking tonight. I'm on vacation! @sanaquijadamd at spa. Kids

getting to bed! #hpmWed Mar 30 18:08:58 PDT 2011

RossJeanette Let’s start T1: what are some unique issues in caring for patients with dementia?

#hpmWed Mar 30 18:09:00 PDT 2011

KathyKastner hehehe bet you look dashing RT @EldrcareConsult: @KathyKastner of course!

#hpmWed Mar 30 18:09:18 PDT 2011

aliciabloom <-- social worker & ommunity liaison with @VITASHospice & Palliative Care in

Philadelphia #hpmWed Mar 30 18:09:19 PDT 2011

ctsinclair @emilybarryPR Hi Emily! #hpmWed Mar 30 18:09:34 PDT 2011

equijada @revdoc nice to tweet you again. #hpmWed Mar 30 18:09:42 PDT 2011

renee_berry LOVE that Earl's joining the chat -->because he's on vacation!! RT @equijada:

@renee_berry Non-lurking tonight. Im on vacation! #hpmWed Mar 30 18:09:53 PDT 2011

revdoc T1: Difficulty in explaining decline of function given "floor effects" of typical scales

#hpmWed Mar 30 18:09:58 PDT 2011

KathyKastner #hpm T1 Is it hard to determine pain/discomfort w dementia pts?Wed Mar 30 18:10:03 PDT 2011

ctsinclair RT @RossJeanette: Let’s start T1: what are some unique issues in caring for

patients with dementia? "in hospice settings?" #hpmWed Mar 30 18:10:17 PDT 2011

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EldrcareConsult @RossJeanette The kids left wondering what happend to mom and dad! #hpmWed Mar 30 18:10:22 PDT 2011

aliciabloom <--- social worker & community liaison/clinical educator with @VITASHospice &

Palliative Care in Philadelphia. #hpmWed Mar 30 18:10:25 PDT 2011

emilybarryPR Hi there @ctsinclair! #hpmWed Mar 30 18:10:27 PDT 2011

ctsinclair @revdoc Tell us more about your theory on floor effect of scales #hpmWed Mar 30 18:10:45 PDT 2011

revdoc @KathyKastner You can use a PAIN AD scale that looks for nonverbal s/s of pain

#hpmWed Mar 30 18:10:49 PDT 2011

renee_berry RT @RossJeanette: Let’s start T1: what are some unique issues in caring for

patients with dementia? #hpmWed Mar 30 18:11:07 PDT 2011

KathyKastner Thnx good 2 know RT @revdoc: @KathyKastner You can use a PAIN AD scale that

looks for nonverbal s/s of pain #hpmWed Mar 30 18:11:17 PDT 2011

inhousehospice RT @RossJeanette: Let’s start T1: what are some unique issues in caring for

patients with dementia? #hpmWed Mar 30 18:11:38 PDT 2011

revdoc @ctsinclair have to get really bad to jump down to the next level. At some point, we

have nothing left to measure (except weight loss) #hpmWed Mar 30 18:11:56 PDT 2011

aliciabloom challenge: helping families understand that dementia is a chronic, yet ultimately

terminal illness #hpmWed Mar 30 18:12:04 PDT 2011

renee_berry T1 I think many psychosocial issues are overlooked as patients loose their ability to

communicate, people still feel presence #hpmWed Mar 30 18:12:11 PDT 2011

equijada @RossJeanette t1 Misunderstood cause of death. Many families believe/hope pt will

just "go in their sleep" #hpmWed Mar 30 18:12:26 PDT 2011

EldrcareConsult @aliciabloom exactly #hpmWed Mar 30 18:12:28 PDT 2011

inhousehospice We give those to all docs we work w/ & meet. RT @revdoc: @KathyKastner You can

use a PAIN AD scale that looks for nonverbal s/s of pain #hpmWed Mar 30 18:12:48 PDT 2011

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PracticalWisdom RT @renee_berry: T1 I think many psychosocial issues R overlooked as pt's loose

ability 2 communicate, people still feel presence #HPMWed Mar 30 18:12:56 PDT 2011

KathyKastner RT @aliciabloom: challenge: helping families understand that dementia is a chronic,

yet ultimately terminal illness #hpm #eldercarechatWed Mar 30 18:13:09 PDT 2011

EldrcareConsult @renee_berry good point renee....communication is a big issue. what some may

see as "acting out" may be pain an suffering underneath #hpmWed Mar 30 18:13:16 PDT 2011

ctsinclair T1: challenges occur when patient has cancer or other sig disease as main illness

but dementia (mild to mod) impairs decision making #hpmWed Mar 30 18:13:31 PDT 2011

MatthewsMichele RT @EldrcareConsult: good point renee....commu is a big issue. what some may

see as "acting out" may be pain an suffering underneath #hpmWed Mar 30 18:14:02 PDT 2011

SheyontheBay RT @RossJeanette: Let’s start T1: what are some unique issues in caring for

patients with dementia? #hpmWed Mar 30 18:14:12 PDT 2011

renee_berry T1 I also think families grieve the loss of the person as dementia progresses &

sometimes don't 'see the point' in continuing to visit #hpmWed Mar 30 18:14:14 PDT 2011

PracticalWisdom ConfusionRT@EldrcareConsult:@renee_berry good pt. renee.com. is a big

issue.some may C as "acting out" may B pain suffering underneath #HPMWed Mar 30 18:14:42 PDT 2011

koehlerjo RT @ctsinclair: T1: challenges occur when pt has ca or other sig disease as main

illness but dementia (mild to mod) impairs dec makin #hpmWed Mar 30 18:14:53 PDT 2011

ctsinclair [OT My wife saw the laptop & said, "Oh I see you are talking to yr Twitter friends, I can

read the kids a book tonight." Thanks Kelly!] #hpmWed Mar 30 18:15:26 PDT 2011

MatthewsMichele @EldrcareConsult @renee_berry: agree when worked @ nursing home, even some

staff didnt get the psychosocial effect of dementia on pts #hpmWed Mar 30 18:15:30 PDT 2011

EldrcareConsult @renee_berry yeah avoidance is a huge issue i see with my GCM clients #hpmWed Mar 30 18:15:32 PDT 2011

aliciabloom @renee_berry agree! dementia is a disease of multiple losses along its trajectory

#hpmWed Mar 30 18:15:47 PDT 2011

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controversiesSW Hi all -- bit late, sorry. LCSW and certified case manager from Louisiana. #hpmWed Mar 30 18:15:47 PDT 2011

PracticalWisdom T1: Loss issues continue to come over and over again. So hard on Friends and

Family. Loss of dignity. #HPMWed Mar 30 18:15:51 PDT 2011

RossJeanette T1 good points.. communication/decision making challenges, accepting dementia

as terminal, families grieving twice! #hpmWed Mar 30 18:15:55 PDT 2011

ctsinclair Does anyone know if #dementia or #alzheimers or #alz are freq used hashtags?

#hpmWed Mar 30 18:15:57 PDT 2011

ctsinclair @controversiesSW Welcome! First time here? #hpmWed Mar 30 18:16:09 PDT 2011

EldrcareConsult @MatthewsMichele Your right! I saw that all the time when i was a NH admin #hpmWed Mar 30 18:16:18 PDT 2011

DrSnit We need more respite & education for caretakers because dementia is not simply a

"put them in a home" *dust off hands* issue #hpmWed Mar 30 18:16:26 PDT 2011

ctsinclair RT @EldrcareConsult: communication is a big issue. what some may see as "acting

out" may be pain an suffering underneath #hpmWed Mar 30 18:16:27 PDT 2011

emilybarryPR RT @RossJeanette: T1 good points.. communication/decision making challenges,

accepting dementia as terminal, families grieving twice! #hpmWed Mar 30 18:16:35 PDT 2011

michaelbmoore RT @DrSnit: We need more respite & education for caretakers because dementia is

not simply a "put them in a home" *dust off hands* issue #hpmWed Mar 30 18:16:41 PDT 2011

equijada @RossJeanette My mom to me in ICU re: my demented grandma "I didn't know she

was this sick...I thought she would make it to 100" #hpmWed Mar 30 18:16:50 PDT 2011

PracticalWisdom RT @DrSnit: We need # respite & education for caretakers because dementia is not

simply a "put them in a home" *dust off hands* issue #HPMWed Mar 30 18:16:58 PDT 2011

controversiesSW @ctsinclair Thanks -- yes, a newbee. #hpmWed Mar 30 18:17:01 PDT 2011

KathyKastner I tweeted from an #alzheimers conference (w real alz patients!) RT @ctsinclair: Does

anyone know if #dementia or #alzheimers ? #hpmWed Mar 30 18:17:03 PDT 2011

Page 9: 2011 03 30 hpm tweetchat transcript

Wed Mar 30 18:17:03 PDT 2011

ctsinclair RT @DrSnit: We need more respite & education for caretakers b/c dementia is not

simply a "put them in a home" *dust off hands* issue #hpmWed Mar 30 18:17:09 PDT 2011

renee_berry T1 As a Vol manager I heard people say, this patient doesnt need a volunteer

because they can't talk, I disagreed & trained vols for it #hpmWed Mar 30 18:17:28 PDT 2011

aliciabloom in the case of dementia: caregiver education is essential, and advance care planning

is critically important #hpmWed Mar 30 18:17:31 PDT 2011

revdoc RT @revdoc: have to get really bad to jump down to the next level. At some point, we

have nothing left to measure (except weight loss) #hpmWed Mar 30 18:17:34 PDT 2011

JoshGriffin @ctsinclair They appear to be Christian. #hpmWed Mar 30 18:17:40 PDT 2011

PracticalWisdom RT @equijada: @RossJeanette Mom 2 me in ICU re: my demented g/ma "I didnt

know she was this sick...I thought she would make it to 100" #HPMWed Mar 30 18:17:42 PDT 2011

revdoc Sorry--am on call and was on the phone with the ICU #hpmWed Mar 30 18:17:51 PDT 2011

joshgriffin RT @DrSnit: We need more respite & education for caretakers because dementia is

not simply a "put them in a home" *dust off hands* issue #hpmWed Mar 30 18:17:52 PDT 2011

joshgriffin RT @ctsinclair: RT @EldrcareConsult: communication is a big issue. what some

may see as "acting out" may be pain an suffering underneath #hpmWed Mar 30 18:18:00 PDT 2011

MatthewsMichele Yes! RT @aliciabloom: in the case of dementia: caregiver education is essential, and

advance care planning is critically important #hpmWed Mar 30 18:18:05 PDT 2011

renee_berry RT @aliciabloom: in the case of dementia: caregiver education is essential, and

advance care planning is critically important #hpmWed Mar 30 18:18:07 PDT 2011

PracticalWisdom RT @aliciabloom: in the case of dementia: caregiver education is essential, and

advance care planning is critically important #HPMWed Mar 30 18:18:09 PDT 2011

KathyKastner RT @MatthewsMichele: Yes! RT @aliciabloom: in the case of dementia: caregiver

education is essential, and advance care planning is critically important #hpmWed Mar 30 18:18:15 PDT 2011

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ctsinclair @KathyKastner That is great to see patients at a conference regarding the issues

they are facing. #hpmWed Mar 30 18:18:43 PDT 2011

koehlerjo CG's need much support. Was just talking to a spouse today to make sure he

continues to participate in "his" life #hpmWed Mar 30 18:18:57 PDT 2011

JoshGriffin RT @ctsinclair: @KathyKastner That is great to see patients at a conference

regarding the issues they are facing. #hpmWed Mar 30 18:19:24 PDT 2011

inhousehospice RT @renee_berry: seen family be very confused about early signs of dementia on a

persons personality #publichealht education is so impt #hpmWed Mar 30 18:20:23 PDT 2011

ctsinclair T1: big topic as many have noted here, is including the caregivers early and often in

planning process especially as autonomy shifts #hpmWed Mar 30 18:20:26 PDT 2011

EldrcareConsult I tell my folks all the time, they have to take care of themselves before they can take

care of their elderly loved ones #hpmWed Mar 30 18:20:36 PDT 2011

renee_berry T1 I've seen family members be very confused about early signs of dementia on a

person's personality #publichealth education is so impt #hpmWed Mar 30 18:20:39 PDT 2011

renee_berry RT @EldrcareConsult: I tell my folks all the time, they have to take care of themselves

before they can take care of their elderly loved ones #hpmWed Mar 30 18:21:02 PDT 2011

RossJeanette T1 yes caregiver support and involvement, education very important. #hpmWed Mar 30 18:21:04 PDT 2011

PracticalWisdom @renee_berry: Denial on both sides would be challenging too. Who really wants to

admit this? Double Loss. #HPMWed Mar 30 18:21:23 PDT 2011

revdoc I saw my 65 yo grandmother go from prude matron to pulling off clothes and

swearing like a sailor over the stupid dx #hpmWed Mar 30 18:21:29 PDT 2011

ctsinclair I have seen more patients with #dementia getting involved in advocacy early in the

disease process. very #epatient empowered #hpmWed Mar 30 18:21:45 PDT 2011

MatthewsMichele RT @ctsinclair: T1: big topic as many have noted here, including caregivers early and

often in planning process esp as autonomy shifts #hpmWed Mar 30 18:21:49 PDT 2011

mpf2011 @ctsinclair Click on any hashtag and you can see if and how it is being used and by

Page 11: 2011 03 30 hpm tweetchat transcript

mpf2011

what audience. #hpmWed Mar 30 18:21:54 PDT 2011

emilybarryPR Agree x3! RT @RossJeanette: T1 yes caregiver support and involvement, education

very important. #hpmWed Mar 30 18:22:03 PDT 2011

KathyKastner RT @RossJeanette: T1 yes caregiver support and involvement, education very

important. #hpmWed Mar 30 18:22:03 PDT 2011

renee_berry @EldrcareConsult caregiver support sooooo important! I used to refer people to the

Family Caregiver Alliance constantly! #hpmWed Mar 30 18:22:18 PDT 2011

erinrbreedlove Is it too late to join #hpm?!Wed Mar 30 18:22:22 PDT 2011

PracticalWisdom So Hard RT @revdoc: I saw my 65 yo grandmother go from prude matron to pulling

off clothes & swearing like a sailor over the stupid dx #HPMWed Mar 30 18:22:29 PDT 2011

healthpolicygrp RT @ctsinclair: T1: big topic as many have noted here, is including the caregivers

early and often in planning process especially as autonomy shifts #hpmWed Mar 30 18:22:29 PDT 2011

ctsinclair @revdoc That is always hard to see, and the shock of family. I often ask about the

patients normal attitude/behavior pre-dementia #hpmWed Mar 30 18:22:32 PDT 2011

revdoc @erinrbreedlove Never--nice to tweet you again #hpmWed Mar 30 18:22:48 PDT 2011

MatthewsMichele @EldrcareConsult my mom is a caregiver for her mom and I'll tell you that's the

hardest thing for them to grasp #hpmWed Mar 30 18:22:50 PDT 2011

renee_berry (have to go for a minute) be back in a few #hpmWed Mar 30 18:22:51 PDT 2011

ctsinclair RT @erinrbreedlove: Is it too late to join #hpm?! "never, we are open 24/7" #hpmWed Mar 30 18:22:55 PDT 2011

renee_berry RT @ctsinclair: @revdoc That is always hard to see, and the shock of family. I often

ask about the patients normal attitude/behavior pre-dementia #hpmWed Mar 30 18:23:09 PDT 2011

renee_berry RT @ctsinclair: RT @erinrbreedlove: Is it too late to join #hpm?! "never, we are open

24/7" #hpmWed Mar 30 18:23:14 PDT 2011

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KathyKastner RT @ctsinclair: @revdoc That is always hard to see, and the shock of family. I often

ask about the patients normal attitude/behavior pre-dementia #hpmWed Mar 30 18:23:14 PDT 2011

ctsinclair @mpf2011 Just was wondering if there was any unification under a certain hashtag

by the community. #hpmWed Mar 30 18:23:25 PDT 2011

elderpages What are people doing to attract caregivers earlier in the process? #hpmWed Mar 30 18:23:26 PDT 2011

DrSnit @renee_berry we'll keep your space for you. #hpmWed Mar 30 18:23:26 PDT 2011

PracticalWisdom T1: Don't stats show us that care givers become so stressed they too have greater

chance of significant health decline? #HPMWed Mar 30 18:23:28 PDT 2011

renee_berry @DrSnit ;) great #hpmWed Mar 30 18:23:49 PDT 2011

RossJeanette Moving on to T2 soon #hpmWed Mar 30 18:23:50 PDT 2011

revdoc @PracticalWisdom Yes, it is not uncommon for caregivers to die before recipients

#hpmWed Mar 30 18:24:06 PDT 2011

elderpages Sorry, I signed in late. Glad to see a family caregiver topic, near and dear to my heart

(I'm a family caregiver researcher) #hpmWed Mar 30 18:24:15 PDT 2011

DrSnit @ctsinclair I used to follow a beautiful blogger who was taking care of her father but

she dropped off. #hpmWed Mar 30 18:24:20 PDT 2011

ctsinclair @MatthewsMichele @EldrcareConsult we need to somehow use the online

resources to return the sense of family participation in eldercare #hpmWed Mar 30 18:24:33 PDT 2011

EldrcareConsult @elderpages That has been one of my goals. Here in east TN, GCM's are not well

known so it been a learning curve. #hpmWed Mar 30 18:24:41 PDT 2011

PracticalWisdom Maybe too stressed. RT @DrSnit: @ctsinclair I used to follow a beautiful blogger who

was taking care of her father but she dropped off. #HPMWed Mar 30 18:24:59 PDT 2011

aliciabloom early intervention palliative care would offer education, additional support & care

planning assistance for dementia patients/families #hpmWed Mar 30 18:25:03 PDT 2011

Page 13: 2011 03 30 hpm tweetchat transcript

MatthewsMichele @PracticalWisdom That's what I've been reading and have seen it in my own family :

(...working on showing my mom the light. :) #hpmWed Mar 30 18:25:04 PDT 2011

elderpages @PracticalWisdom Yes, significantly higher mortality of family caregivers that are

stressed than those not stressed #hpmWed Mar 30 18:25:14 PDT 2011

ctsinclair @DrSnit really powerful caregiver blogs out there #hpmWed Mar 30 18:25:36 PDT 2011

elderpages I'd love to see more interactive tools so families are part of the care team. Think

myremcare.com, for example #hpmWed Mar 30 18:25:40 PDT 2011

inhousehospice RT @aliciabloom: early intervention pall care would offer education, additional

support & care planning for dementia patients/families #hpmWed Mar 30 18:25:46 PDT 2011

DrSnit @PracticalWisdom There is body of work right now on both caregiver stress & the

struggle for OUTSIDERS to keep identity of the patient #hpmWed Mar 30 18:25:47 PDT 2011

ctsinclair If there is an unheard voice in America providing billions of hours of labor for the price

of love and obligation it is the caregiver #hpmWed Mar 30 18:26:03 PDT 2011

RossJeanette T2: The Joint Commission Accredits Hospital Based Palliative Care Programs

http://t.co/ui3YORK what will it mean? #hpmWed Mar 30 18:26:04 PDT 2011

PracticalWisdom @DrSnit: You are the supportive Twitter Fairy Godmother. Amazing~ #HPMWed Mar 30 18:26:05 PDT 2011

DrSnit RT @ctsinclair: If there is an unheard voice in America providing billions of hours of

labor for the price of love and obligation it is the caregiver #hpmWed Mar 30 18:26:25 PDT 2011

equijada Caring For A Spouse With Dementia Leaves Caregiver At Risk - Science News

http://bit.ly/gDv9lM #hpmWed Mar 30 18:26:35 PDT 2011

ctsinclair RT @revdoc: @PracticalWisdom Yes, it is not uncommon for caregivers to die before

recipients "seen it dramatically twice recently" #hpmWed Mar 30 18:26:39 PDT 2011

elderpages @DrSnit @PracticalWisdom Can you say more about what you mean by

"OUTSIDERS". Who are they? #hpmWed Mar 30 18:27:00 PDT 2011

renee_berry RT @equijada: Caring For A Spouse With Dementia Leaves Caregiver At Risk -

Page 14: 2011 03 30 hpm tweetchat transcript

renee_berry RT @equijada: Caring For A Spouse With Dementia Leaves Caregiver At Risk -

Science News http://bit.ly/gDv9lM #hpmWed Mar 30 18:27:23 PDT 2011

ctsinclair RT @RossJeanette: T2: The Joint Commission Accredits Hospital Based Palliative

Care Programs http://t.co/ui3YORK what will it mean? #hpmWed Mar 30 18:27:30 PDT 2011

MatthewsMichele RT @ctsinclair: If there are unheard voices in US providing billions of hrs of labor for

price of love and obligation its caregivers #hpmWed Mar 30 18:27:32 PDT 2011

renee_berry RT @equijada: @RossJeanette My mom to me in ICU re: my demented grandma "I

didn't know she was this sick...I thought she would make it to 100" #hpmWed Mar 30 18:27:34 PDT 2011

inhousehospice RT @RossJeanette: T2: The Joint Commission Accredits Hospital Based Palliative

Care Programs http://t.co/ui3YORK what will it mean? #hpmWed Mar 30 18:27:40 PDT 2011

elderpages AARP estimates family caregivers provide $375 billion in unpaid care (that's at min.

wage & is more than is spent on Medicare) #hpmWed Mar 30 18:27:46 PDT 2011

ctsinclair As we talk about T2 and the Joint commission make sure to use @TJCommission

so they hear our wise words. #hpmWed Mar 30 18:27:56 PDT 2011

DrSnit @elderpages Label used to describe the people who remember the patient for who

they were, not who they are becoming. #hpmWed Mar 30 18:28:01 PDT 2011

PracticalWisdom So many lose their jobs RT @equijada: Caring For A Spouse With Dementia Leaves

Caregiver At Risk - Science News http://bit.ly/gDv9lM #HPMWed Mar 30 18:28:15 PDT 2011

renee_berry @equijada wow, I find it really challenging to be balanced in discussing these

issues with family #hpmWed Mar 30 18:28:15 PDT 2011

equijada @ctsinclair @CAPC has nice data on this. Wish I had it off the top of my head #hpmWed Mar 30 18:28:20 PDT 2011

DrSnit RT @elderpages: AARP estimates family caregivers provide $375 billion in unpaid

care (that's at min. wage & is more than is spent on Medicare) #hpmWed Mar 30 18:28:21 PDT 2011

revdoc RT @elderpages: AARP est family caregivers provide $375 billion in unpaid care

(thats at min. wage & is more than is spent on Medicare) #hpmWed Mar 30 18:28:23 PDT 2011

emilybarryPR RT @ctsinclair: As we talk about T2 and the Joint commission make sure to use

@TJCommission so they hear our wise words. #hpm

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Wed Mar 30 18:28:33 PDT 2011

MeredithGould Hey #HPM folks, sorry to be late for the chat. Great explanation: spending time with

my friend and colleague @EdBennettWed Mar 30 18:28:40 PDT 2011

ctsinclair T2: in the short term @TJCommission focusing on palliative care will mean more

work for potentially understaffed PC teams #hpmWed Mar 30 18:28:48 PDT 2011

TheRealLisaBain RT @DrSnit: We need more respite & education for caretakers because dementia is

not simply a "put them in a home" *dust off hands* issue #hpmWed Mar 30 18:28:50 PDT 2011

elderpages @DrSnit @elderpages Ah, I get it. "OUTSIDERS" are the ones who have the true

continuity of care across all settings. #hpmWed Mar 30 18:28:54 PDT 2011

ctsinclair RT @equijada: @ctsinclair @CAPC has nice data on this. Wish I had it off the top of

my head "instead of your beautiful hair?" #hpmWed Mar 30 18:29:11 PDT 2011

DrSnit @elderpages There are some estimates that "welfare/disabled mothers" provide

similar services for their working kids at a similar rate. #hpmWed Mar 30 18:29:20 PDT 2011

renee_berry I wish I had all of their data in my head! RT @equijada @CAPCpalliative has nice

data on this. Wish I had it off the top of my head #hpmWed Mar 30 18:29:27 PDT 2011

equijada RT @elderpages: AARP estimates family caregivers provide $375 billion in unpaid

care (that's at min. wage & is more than is spent on Medicare) #hpmWed Mar 30 18:29:34 PDT 2011

PracticalWisdom @MeredithGould Lucky Duck Re: Friend/colleague @EdBennett classy man. #HPMWed Mar 30 18:29:52 PDT 2011

ctsinclair T2: excited that @TJCommission as a major non-palliative org (i.e not @AAHPM

@NHPCO_News @CAPCpallaitive) is paying attention. #hpmWed Mar 30 18:30:18 PDT 2011

DrSnit @MeredithGould YAY! YOU WERE MISSED! #hpmWed Mar 30 18:30:25 PDT 2011

KathyKastner RT @ctsinclair: T2: excited that @TJCommission as a major non-palliative org (i.e

not @AAHPM @NHPCO_News @CAPCpallaitive) is paying attention. #hpmWed Mar 30 18:30:35 PDT 2011

elderpages T2: I would hope @TJCommission accreditation means there is accountability for

quality. Anyone care to talk about the criteria? #hpmWed Mar 30 18:30:41 PDT 2011

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renee_berry agree!! RT @elderpages @DrSnit Ah, I get it. "OUTSIDERS" are the ones who have

the true continuity of care across all settings. #hpmWed Mar 30 18:30:54 PDT 2011

ctsinclair T2: I know the @TJCommission can make the C-Suite jump into action in most

hospitals across the US. Palliative care = #Winning #hpmWed Mar 30 18:31:04 PDT 2011

MeredithGould @DrSnit Yeah, yeah...hahah. Indian food was involved, too! Yum. #hpmWed Mar 30 18:31:09 PDT 2011

revdoc T2 I hope new JCAHO process isn't just hospitals reassembling their procedure

manuals to show how good they do PC on paper #hpmWed Mar 30 18:31:18 PDT 2011

renee_berry RT @RossJeanette: T2: The Joint Commission Accredits Hospital Based Palliative

Care Programs http://t.co/ui3YORK what will it mean? #hpmWed Mar 30 18:31:23 PDT 2011

RossJeanette @MeredithGould welcome we are talking about @TJCommission accrediting

Hospitals in Palliative care and what it will mean #hpmWed Mar 30 18:31:28 PDT 2011

healthpolicygrp RT @ctsinclair: T2: excited that @TJCommission as a major non-palliative org (i.e

not @AAHPM @NHPCO_News @CAPCpallaitive) is paying attention. #hpmWed Mar 30 18:32:04 PDT 2011

ctsinclair RT@Revdoc RT @elderpages: @AARP est family caregivers provide $375B in

unpaid care (thats at min. wage/more than is spent on Medicare) #hpmWed Mar 30 18:32:06 PDT 2011

joshgriffin RT @revdoc: RT @elderpages: AARP est family caregivers provide $375 billion in

unpaid care (thats at min. wage & is more than is spent on Medicare) #hpmWed Mar 30 18:32:07 PDT 2011

ctsinclair RT @revdoc: T2 I hope @TJCommission process isnt just hospitals reassembling

procedure manuals to show how good they do PC on paper #hpmWed Mar 30 18:32:33 PDT 2011

EldrcareConsult @TJCommission if its just all paperwork it wont mean a whole lot...policies dont

change care.....people do #hpmWed Mar 30 18:32:34 PDT 2011

PracticalWisdom T2: @stsinclair: @TJCommission brings public credibility to the Hospitals. This has

to add more visibility. #HPMWed Mar 30 18:32:47 PDT 2011

elderpages @TJCommission I am hoping this is so PC programs aren't like "Birthing Rooms"

used to be: same practice just in a pretty room. #hpmWed Mar 30 18:32:59 PDT 2011

renee_berry T2 HOPE @TJComission accreditation will help integrate earlier #palliative care

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renee_berry T2 HOPE @TJComission accreditation will help integrate earlier #palliative care

across specialties & settings! #hpmWed Mar 30 18:33:05 PDT 2011

ctsinclair @elderpages I know @TJCommission is looking at palliative care across continuum

of hospital care, not sure about outpatient #hpmWed Mar 30 18:33:16 PDT 2011

ctsinclair RT @elderpages: @TJCommission I am hoping PC programs arent like "Birthing

Rooms" used to be: same practice just in a pretty room. #hpmWed Mar 30 18:33:46 PDT 2011

renee_berry @ctsinclair thanks for hopping into the chat!!! You are welcome to stay in the

conversation!! #hpmWed Mar 30 18:33:53 PDT 2011

emilybarryPR Agree! RT @renee_berry: T2 HOPE @TJComission accreditation will help integrate

earlier #palliative care across specialties & settings! #hpmWed Mar 30 18:33:57 PDT 2011

PracticalWisdom T2: Liked the idea the this @TJCommission will include the whole Hospital not just

the team I think @ctsinclair wrote. #HPMWed Mar 30 18:34:05 PDT 2011

ctsinclair @elderpages Yes it has to be about the program and human capital used to make a

pallaitive program work not just the infrastructure #hpmWed Mar 30 18:34:14 PDT 2011

equijada @ctsinclair @TJCommission @AAHPM @NHPCO_News @CAPCpallaitive While it's

nice, I'd rather a bottom up push rather than top down pull #hpmWed Mar 30 18:34:15 PDT 2011

MatthewsMichele Agree. RT @renee_berry: T2 HOPE @TJComission accreditation will help integrate

earlier #palliative care across specialties & settings! #hpmWed Mar 30 18:34:32 PDT 2011

aliciabloom hope @TJCommission certification for #palliative care will raise awareness about

the many benefits of this interdisciplinary speciality #hpmWed Mar 30 18:34:38 PDT 2011

renee_berry (so that was supposed to go to @healthpolicygroup ) sorry brb again @ grandma's

...family pic time #hpmWed Mar 30 18:34:39 PDT 2011

elderpages @pallimed notes @TJCommission is looking at whole hospital, not just PC team.

Perhaps we can achieve integration across ICU, ED, etc. #hpmWed Mar 30 18:34:43 PDT 2011

ctsinclair @ElusiveEm Where are you at? Love to hear your input! #hpmWed Mar 30 18:34:50 PDT 2011

PracticalWisdom RT @equijada: @ctsinclair@TJCommission @AAHPM @NHPCO_News

@CAPCpallaitive its nice, rather a bottom up push rather than top down pull #HPMWed Mar 30 18:35:10 PDT 2011

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ctsinclair @renee_berry Go take pics with the family, we will be here next week! #hpmWed Mar 30 18:35:10 PDT 2011

ctsinclair RT @elderpages: @TJCommission is looking at whole hospital, not just PC team.

Perhaps we can achieve integration across ICU, ED, etc. #hpmWed Mar 30 18:35:30 PDT 2011

elderpages @ctsinclair @ElusiveEm Perhaps he/she is hiding? (Elusive?) :-) #hpmWed Mar 30 18:35:34 PDT 2011

undercovernun RT @revdoc: RT @elderpages: AARP est family caregivers provide $375 billion in

unpaid care (thats at min. wage & is more than is spent on Medicare) #hpmWed Mar 30 18:35:41 PDT 2011

ctsinclair RT @EldrcareConsult: @TJCommission if its just all paperwork it wont mean a

whole lot...policies dont change care.....people do #hpmWed Mar 30 18:36:29 PDT 2011

ctsinclair @elderpages Good one! #hpmWed Mar 30 18:36:42 PDT 2011

KathyKastner LOL RT @elderpages: @ctsinclair @ElusiveEm Perhaps he/she is hiding?

(Elusive?) :-) #hpmWed Mar 30 18:36:46 PDT 2011

PracticalWisdom T2: How does @TJCommission Impact funding/bring more MD's and other HCP into

the field? #HPMWed Mar 30 18:36:48 PDT 2011

EldrcareConsult @ctsinclair @EldrcareConsult @TJCommission do mean to sound snotty, but it

comes from personal experience #hpmWed Mar 30 18:37:31 PDT 2011

equijada @renee_berry yes. I had the talk with my grandmother years before she died (though

didn't fill out forms). Glad we did. Helpful #hpmWed Mar 30 18:37:39 PDT 2011

ctsinclair @PracticalWisdom no direct funding but it might get administration of a hospital to

direct funds towards building/reinforcing a program #hpmWed Mar 30 18:37:44 PDT 2011

elderpages @PracticalWisdom Perhaps @TJCommission allows PC programs to serve as

"extra credit" giving the entire hospital score a boost? #hpmWed Mar 30 18:37:51 PDT 2011

ctsinclair @EldrcareConsult I presume you meant 'do not mean to sound snotty' ? ;-) #hpmWed Mar 30 18:38:12 PDT 2011

DoctorFisher Hi everyone T2 bottom up has been happening for a while, some top down would be

nice- need both to cement #hpm

Page 19: 2011 03 30 hpm tweetchat transcript

DoctorFishernice- need both to cement #hpm

Wed Mar 30 18:38:13 PDT 2011

equijada @PracticalWisdom It's the age where people can let their voices be heard #hpmWed Mar 30 18:38:14 PDT 2011

PracticalWisdom RT @elderpages: @PracticalWisdom Perhaps @TJCommission allows PC

programs 2 serve "extra credit" giving entire hospital score a boost? #HPMWed Mar 30 18:38:32 PDT 2011

elderpages RT @doctorfisher: Hi everyone T2 bottom up has been happening for a while, some

top down would be nice- need both to cement #hpmWed Mar 30 18:38:40 PDT 2011

ctsinclair RT @doctorfisher: T2 bottom up has been happening for a while, some top down

would be nice- need both to cement "dont get smashed!" #hpmWed Mar 30 18:38:51 PDT 2011

ctsinclair @doctorfisher HULK SMASH! #hpmWed Mar 30 18:38:58 PDT 2011

MatthewsMichele RT @doctorfisher: Hi everyone T2 bottom up has been happening for a while, some

top down would be nice- need both to cement #hpmWed Mar 30 18:39:13 PDT 2011

EldrcareConsult @ctsinclair @EldrcareConsult sigh....yes #hpmWed Mar 30 18:39:20 PDT 2011

aliciabloom interesting piece from @HuffingtonPost about dementia as a public health issue

(http://huff.to/dNBdty) #hpm is a solutionWed Mar 30 18:39:28 PDT 2011

revdoc RT @doctorfisher: Hi everyone T2 bottom up has been happening for a while, some

top down would be nice- need both to cement #hpmWed Mar 30 18:39:57 PDT 2011

elderpages @ctsinclair "Don't get smashed" We should have such a problem of too much energy

moving toward the middle! I'd love it! #hpmWed Mar 30 18:40:15 PDT 2011

DoctorFisher @ctsinclair was that for being late? #hpmWed Mar 30 18:40:25 PDT 2011

koehlerjo RT @aliciabloom: interesting piece from @HuffingtonPost about dementia as a pub

health issue (http://huff.to/dNBdty) #hpm is a solution #hpmWed Mar 30 18:40:33 PDT 2011

PracticalWisdom T2: Since this goal has been achieved what comes next? #HPMWed Mar 30 18:41:02 PDT 2011

MatthewsMichele RT @aliciabloom: interesting piece from @HuffingtonPost abt dementia as a public

Page 20: 2011 03 30 hpm tweetchat transcript

MatthewsMichele RT @aliciabloom: interesting piece from @HuffingtonPost abt dementia as a public

health issue (http://huff.to/dNBdty) #hpm is solution #hpmWed Mar 30 18:41:22 PDT 2011

RossJeanette T3:@PalliativeMed_j seeks applicants 4 editorial panel 4 their #hcsm portal.

http://bit.ly/g7JY8t What content would u like to see? #hpmWed Mar 30 18:41:48 PDT 2011

elderpages @aliciabloom @HuffingtonPost Dementia as public health. Indeed NIA funding many

family caregiver interventions as they recognize need. #hpmWed Mar 30 18:41:56 PDT 2011

PracticalWisdom @RossJeanette: Sorry you are the Question Lady tonight! #HPMWed Mar 30 18:42:06 PDT 2011

elderpages 2011 is Year of Caregiver honoring 10 yrs of Family CG Support Program

http://www.celebratingfamilycaregivers.org #hpmWed Mar 30 18:43:06 PDT 2011

ctsinclair @doctorfisher no it was for my warning about getting smashed between top down

and bottom up #hpmWed Mar 30 18:43:45 PDT 2011

ctsinclair RT @RossJeanette: T3:@PalliativeMed_j seeks editorial panel 4 their #hcsm portal.

http://bit.ly/g7JY8t What would u like to see? #hpmWed Mar 30 18:44:10 PDT 2011

renee_berry (I'm back are we on T3?) #hpmWed Mar 30 18:44:21 PDT 2011

ctsinclair T3: I am just impressed a journal is taking on something like a social media editorial

board - embracing the community = good #hpmWed Mar 30 18:44:46 PDT 2011

elderpages t3: This is a panel of professionals. I would like to see family caregivers engaged so

they AREN'T outsiders & become part of team. #hpmWed Mar 30 18:44:55 PDT 2011

PracticalWisdom T3: I continue to remain passionate about more Public Education re: Palliative Med.

So # just don't know. #HPMWed Mar 30 18:45:06 PDT 2011

DoctorFisher @ctsinclair I know I know- to avoid we must get many bottom up people seated at the

top down table #hpmWed Mar 30 18:45:33 PDT 2011

GeroAmericano late to T1 for #hpm chat, but see great new free curricula out today for direct

caregivers funded by Scan http://bit.ly/dICi0B @PHInationalWed Mar 30 18:45:43 PDT 2011

ctsinclair T3: Looks like @PalliativeMed_J social media portal is aiming to be quite ambitious

with lots of virtual events -> good outreach #hpmWed Mar 30 18:45:52 PDT 2011

Page 21: 2011 03 30 hpm tweetchat transcript

Wed Mar 30 18:45:52 PDT 2011

PracticalWisdom YesRT @elderpages: t3: This is a panel of prof. I'd like 2 see family caregivers

engaged so they ARENT outsiders & become part of team. #HPMWed Mar 30 18:45:56 PDT 2011

elderpages T3 More on collaboration across the continuum #hpmWed Mar 30 18:45:58 PDT 2011

ctsinclair @doctorfisher Hopefully not upside down! #hpmWed Mar 30 18:46:05 PDT 2011

MeredithGould T3 How are they defining their hcsm portal? #HPMWed Mar 30 18:46:25 PDT 2011

renee_berry RT @RossJeanette: T3:@PalliativeMed_j seeks applicants 4 editorial panel 4 their

#hcsm portal. http://bit.ly/g7JY8t What content would u like to see? #hpmWed Mar 30 18:46:42 PDT 2011

PracticalWisdom Just like we do every Wed Night 9:00PM. So much Respect both ways RT

@elderpages: T3 More on collaboration across the continuum #HPMWed Mar 30 18:46:47 PDT 2011

elderpages RT @MeredithGould: T3 How are they defining their hcsm portal?...I have same

question #hpmWed Mar 30 18:46:57 PDT 2011

inhousehospice RT @ctsinclair: T3: just impressed a journal is taking on something like a social

media editorial board - embracing the community=good #hpmWed Mar 30 18:47:01 PDT 2011

ctsinclair @GeroAmericano The @SCAN_foundation does some great work. Met some of their

leadership. Nice people! #hpmWed Mar 30 18:47:02 PDT 2011

PracticalWisdom RT @elderpages: T3 More on collaboration across the continuum #HPMWed Mar 30 18:47:04 PDT 2011

ctsinclair RT @MeredithGould: T3 How are they defining their hcsm portal? "Here is the link:

http://hpm.md/h9987u blogs, tweets, virtual webinars #hpmWed Mar 30 18:47:54 PDT 2011

RossJeanette @MeredithGould I understand @PalliativeMed_j intends to use facebook, twittwer,

linked in and blogs @palliator could tell us more. #hpmWed Mar 30 18:47:57 PDT 2011

elderpages RT @inhousehospice: RT @ctsinclair: T3: impressed a journal is taking on a social

media editorial board...YES! #hpmWed Mar 30 18:48:00 PDT 2011

renee_berry T3 (I applied even though not a doc) on app said I'd LOVE to see professionals tell

Page 22: 2011 03 30 hpm tweetchat transcript

renee_berry T3 (I applied even though not a doc) on app said I'd LOVE to see professionals tell

their story: Why do you work in #palliative care #hpmWed Mar 30 18:48:14 PDT 2011

ctsinclair @MeredithGould Also I think they are getting the board together first and then

probably going to determine/refine scope of coverage #hpmWed Mar 30 18:48:38 PDT 2011

DoctorFisher T3 where can I find this magical portal? Or does it yet exist #hpmWed Mar 30 18:48:57 PDT 2011

PracticalWisdom T3: @SCAN_Foundation; No Tweets yet though. @ctsinclair need U to teach? #HPMWed Mar 30 18:49:00 PDT 2011

ctsinclair @renee_berry I think it would be great to have some non-medical people on the

board. Why not!? #hpmWed Mar 30 18:49:03 PDT 2011

ctsinclair @renee_berry I think it would be great to have some non-medical people on the

board. Why not!? #hpmWed Mar 30 18:49:03 PDT 2011

ctsinclair @renee_berry I think it would be great to have some non-medical people on the

board. Why not!? #hpmWed Mar 30 18:49:03 PDT 2011

MatthewsMichele @MeredithGould Seems like they are looking to the participants to define what it will

be: http://bit.ly/gJDCFN #hpmWed Mar 30 18:49:09 PDT 2011

RossJeanette @PalliativeMed_j wants all professions To apply to be @PalliativeMed_j editorial

panel member go to http://bit.ly/gJDCFN #hpmWed Mar 30 18:49:29 PDT 2011

elderpages T3: WIll their portal be like private Facebook or LinkedIn community? How different

from CAPC Connect or My.NHCPO? #hpmWed Mar 30 18:49:34 PDT 2011

ctsinclair @RossJeanette If @Palliatior would use Twitter more...she might ;-) I need to talk to

VJ #hpmWed Mar 30 18:49:42 PDT 2011

equijada @renee_berry I love that you do that. #jfdi #hpmWed Mar 30 18:49:47 PDT 2011

MeredithGould @RossJeanette @ctsinclair It looks to me like they want people to provide or curate

content for their blog, Twitter & FB accts? #hpmWed Mar 30 18:49:53 PDT 2011

renee_berry :) #hopeful RT @ctsinclair @renee_berry I think it would be great to have some non-

medical people on the board. Why not!? #hpmWed Mar 30 18:50:20 PDT 2011

Page 23: 2011 03 30 hpm tweetchat transcript

Wed Mar 30 18:50:20 PDT 2011

ctsinclair @doctorfisher Portal doesn't exist as I know yet, (if i showed it to you it would blow

your mind) #hpmWed Mar 30 18:50:21 PDT 2011

PracticalWisdom Me too! RT @equijada: @renee_berry I love that you do that. #jfdi #HPMWed Mar 30 18:50:23 PDT 2011

ctsinclair By the way i am not applying to be on the social media board but I am encouraging

anyone else who particiaptes in this chat to do so #hpmWed Mar 30 18:50:59 PDT 2011

KathyKastner O good. I want to apply 2RT @ctsinclair: @renee_berry I think it would be great to

have some non-medical people on the board. Why not!? #hpmWed Mar 30 18:51:08 PDT 2011

renee_berry T3 I think interdisciplinary perspectives drive innovation & progress, we need to

collaborate & listen to each other to improve #hpmWed Mar 30 18:51:33 PDT 2011

EldrcareConsult sorry guys i am here...trying to decide if i need a tablet pc #hpmWed Mar 30 18:51:35 PDT 2011

KathyKastner RT @renee_berry: T3 I think interdisciplinary perspectives drive innovation &

progress, we need to collaborate & listen to each other to improve #hpmWed Mar 30 18:51:44 PDT 2011

ctsinclair @doctorfisher Sorry I am being goofy with you tonight, you are just setting me up well!

#hpmWed Mar 30 18:51:49 PDT 2011

elderpages I applied but I have not heard back, even about when I would hear back. #hpmWed Mar 30 18:51:54 PDT 2011

PracticalWisdom @KathyKastner: Great news! #HPMWed Mar 30 18:51:59 PDT 2011

healthpolicygrp RT @MatthewsMichele: @MeredithGould Seems like they are looking to the

participants to define what it will be: http://bit.ly/gJDCFN #hpmWed Mar 30 18:52:00 PDT 2011

MeredithGould @ctsinclair NEVER apologize for being goofy!!! #hpmWed Mar 30 18:52:05 PDT 2011

KathyKastner @PracticalWisdom Hi Lisa! Loved yr tweet abt Romper room #HPMWed Mar 30 18:52:27 PDT 2011

ctsinclair RT @MeredithGould: @ctsinclair NEVER apologize for being goofy!!! "I just didnt want

@DoctorFisher to think I was pickin on him!" #hpmWed Mar 30 18:52:45 PDT 2011

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Wed Mar 30 18:52:45 PDT 2011

elderpages I do have something of a concern about fragmenting into different conversations.

AAHPM, NHPCO, CAPC. Is this the umbrella over all? #hpmWed Mar 30 18:53:01 PDT 2011

DianeEMeier Foundation’s Path to Expanding #Palliative Care in CA’s Public Hospitals

http://bit.ly/ff3rRP Thank you, private sector philanthropy! #hpmWed Mar 30 18:53:02 PDT 2011

PracticalWisdom Guess I"m Goofy? Thanks~RT @KathyKastner: @PracticalWisdom Hi Lisa! Loved yr

tweet abt Romper room #HPMWed Mar 30 18:53:09 PDT 2011

MeredithGould @ctsinclair Ok, I amend it to: NEVER apologize for picking on colleagues. Wait....that

doesn't sound right. #hpmWed Mar 30 18:53:19 PDT 2011

healthpolicygrp RT @ctsinclair: RT @MeredithGould: T3 How are they defining their hcsm portal?

"Here is the link: http://hpm.md/h9987u blogs, tweets, virtual webinars #hpmWed Mar 30 18:53:20 PDT 2011

renee_berry I need to work on that, I'm super quirky & apologize 4it too often RT @MeredithGould:

@ctsinclair NEVER apologize for being goofy!!! #hpmWed Mar 30 18:53:29 PDT 2011

ctsinclair @DianeEMeier Hey you can join the end of Tweetchat (unless you are using your

phone then it is kind of hard!) #hpmWed Mar 30 18:53:34 PDT 2011

healthpolicygrp RT @RossJeanette: @MeredithGould I understand @PalliativeMed_j intends to use

facebook, twittwer, linked in and blogs @palliator could tell us more. #hpmWed Mar 30 18:53:36 PDT 2011

GeroAmericano @ctsinclair great to see @Scan_foundation on twitter - 3 modules on End of Life are

for 20 minute stand-ups in LTC http://bit.ly/ie1pes #hpmWed Mar 30 18:53:42 PDT 2011

PracticalWisdom @DoctorFisher My NC Neighbor. #HPMWed Mar 30 18:53:45 PDT 2011

renee_berry RT @DianeEMeier: Foundation’s Path to Expanding #Palliative Care in CA’s Public

Hospitals http://bit.ly/ff3rRP Thank you, private sector philanthropy! #hpmWed Mar 30 18:54:03 PDT 2011

mpf2011 @ctsinclair #hpm Whoever claims the hashtag first uses it. But others may use it too

and the stream is mixed w/ several conversations.Wed Mar 30 18:54:04 PDT 2011

DoctorFisher T3 do "needs assessment" with the lesser #hcsm engaged (both clinicians and

patients)- must avoid becoming echo chamber #hpmWed Mar 30 18:54:11 PDT 2011

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elderpages @DianeEMeier Hi Diane! Can you speak to CAPC Connect and how it relates to this

new social media portal? #hpmWed Mar 30 18:54:12 PDT 2011

revdoc Oh, c'mon, guys--don't encourage Christian. YOU don't have to work with him every

day! #hpmWed Mar 30 18:54:25 PDT 2011

PracticalWisdom Yes, comeRT @ctsinclair: @DianeEMeier Hey you can join the end of Tweetchat

(unless you are using your phone then it is kind of hard!) #HPMWed Mar 30 18:54:27 PDT 2011

KathyKastner #hpm silly joke: Micky Mouse's shrink asks: You're want 2 divorce minnie cuz she's

crazy? "No" says Micky. "Cuz she's f'n Goofy."Wed Mar 30 18:54:41 PDT 2011

MatthewsMichele RT @doctorfisher: T3 do "needs assessment" w/ the lesser #hcsm engaged (both

clinicians and patients)- must avoid becoming echo chamber #hpmWed Mar 30 18:54:45 PDT 2011

ctsinclair RT @doctorfisher: T3 do "needs assessment" with the lesser #hcsm engaged (both

clinicians and patients)-avoid becoming echo chamber #hpmWed Mar 30 18:54:59 PDT 2011

MeredithGould Seriously, am I the only one who thinks this looks like the Journal editors are looking

for content providers? #HPMWed Mar 30 18:55:06 PDT 2011

DoctorFisher @ctsinclair every comedian needs a good straight man #hpmWed Mar 30 18:55:13 PDT 2011

ctsinclair T3: Would love for them to do some teaching to the offline folks and incorporate it into

paper journal. #hpmWed Mar 30 18:55:28 PDT 2011

PracticalWisdom G8 RT @KathyKastner: #hpm Micky Mouses shrink asks: Youre want 2 divorce

minnie cuz shes crazy? "No" says Micky. "Cuz shes fn Goofy." #HPMWed Mar 30 18:55:40 PDT 2011

MatthewsMichele @doctorfisher I agree wholeheartedly...w/ ppl like me and @renee_berry on the

board (fingers crossed) that won't happen :) #hpmWed Mar 30 18:55:49 PDT 2011

KathyKastner My thot 2RT @MeredithGould: Seriously, am I only one who thinks this looks like the

Journal editors are looking 4 content providers? #HPMWed Mar 30 18:55:53 PDT 2011

ctsinclair RT @MeredithGould: am I the only one who thinks Journal editors are looking for

content providers? 'isnt that their job?' #hpmWed Mar 30 18:56:10 PDT 2011

RossJeanette @MeredithGould agree they are looking for content providers #hpm

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RossJeanette @MeredithGould agree they are looking for content providers #hpmWed Mar 30 18:56:19 PDT 2011

elderpages @MeredithGould Content & perhaps facilitators of the conversation? Application

looked like they were interested in #hcsm experience #hpmWed Mar 30 18:56:28 PDT 2011

healthpolicygrp RT @DianeEMeier: Foundation’s Path to Expanding #Palliative Care in CA’s Public

Hospitals http://bit.ly/ff3rRP Thank you, private sector philanthropy! #hpmWed Mar 30 18:56:31 PDT 2011

MeredithGould @KathyKastner Whew, thanks for the reality check. #HPMWed Mar 30 18:56:32 PDT 2011

ctsinclair T3: would love to see highlights from Twitter/Blogs as an official column in a journal

#hpmWed Mar 30 18:56:46 PDT 2011

EldrcareConsult ok i am back...what are we talking about? #hpmWed Mar 30 18:56:49 PDT 2011

MatthewsMichele RT @elderpages: @MeredithGould Content & perhaps facilitators of the

conversation? App looked like they were interested in #hcsm exp #hpmWed Mar 30 18:57:21 PDT 2011

elderpages RT @ctsinclair: T3: Would love ... incorporate it into paper journal...I LOVE paper.li.

Wondering again about echo chamber/repetition #hpmWed Mar 30 18:57:27 PDT 2011

PracticalWisdom @MeredithGould @KathyKastner And others. Seems like a trend in many other SoMe

Areas too. #HPMWed Mar 30 18:57:29 PDT 2011

MeredithGould @elderpages @RossJeanette If that's the case, then as a working writer, I have a

real problem with that. #hpmWed Mar 30 18:57:31 PDT 2011

DoctorFisher RT @ctsinclair: T3: would love to see highlights from Twitter/Blogs as an official

column in a journal #hpmWed Mar 30 18:57:32 PDT 2011

ctsinclair @EldrcareConsult @PalliativeMed_J has a call out for a social media editorial board

#hpmWed Mar 30 18:57:37 PDT 2011

aliciabloom @ctsinclair especially from the #hpm twitterchat!Wed Mar 30 18:57:53 PDT 2011

KathyKastner ANd all for free :)RT @PracticalWisdom: @MeredithGould @KathyKastner And

others. Seems like a trend in many other SoMe Areas too. #HPMWed Mar 30 18:57:57 PDT 2011

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PracticalWisdom You. We've elected you~You'll be great! :<) RT @EldrcareConsult: ok i am back...what

are we talking about? #HPMWed Mar 30 18:58:00 PDT 2011

RossJeanette @EldrcareConsult talking about @PalliativeMed_j seeks applicants for editorial

panel 4 their #hcsm portal. http://bit.ly/g7JY8t #hpmWed Mar 30 18:58:03 PDT 2011

MatthewsMichele @MatthewsMichele @elderpages @MeredithGould think it might be both #hpmWed Mar 30 18:58:04 PDT 2011

EldrcareConsult @ctsinclair @EldrcareConsult @PalliativeMed_J gotcha #hpmWed Mar 30 18:58:19 PDT 2011

ctsinclair @MeredithGould The value of writing is a great topic for debate! #hpmWed Mar 30 18:58:21 PDT 2011

MeredithGould @PracticalWisdom A trend? Hopefully not. #HPMWed Mar 30 18:58:31 PDT 2011

equijada @ctsinclair One of my patients re: my hair "You look like you were left on the trail"

#dementia or #needahaircut #hpmWed Mar 30 18:58:38 PDT 2011

ctsinclair @PracticalWisdom Funny! #hpmWed Mar 30 18:58:48 PDT 2011

MatthewsMichele oops, didnt mean to reply to myself! yikes. too excited about tweeting you guys...got

carried away! #hpmWed Mar 30 18:58:53 PDT 2011

EldrcareConsult @PracticalWisdom @EldrcareConsult Id like to thank all the little people our there

that voted for me #hpmWed Mar 30 18:59:04 PDT 2011

ctsinclair RT @equijada: One of my patients re: my hair "You look like you were left on the trail"

#dementia or #needahaircut "poor Earl!" #hpmWed Mar 30 18:59:22 PDT 2011

MeredithGould @ctsinclair Oh make me go crazy(er) on Twitter!!! Some of us are professional

writers & editors; it's our livelihood. #hpmWed Mar 30 18:59:22 PDT 2011

elderpages As a content curator, I have to balance what I give for free & what I charge for. Tough

in a social media world. Thought ldrship. #hpmWed Mar 30 18:59:29 PDT 2011

renee_berry agree RT @doctorfisher RT @ctsinclair T3 would love to see highlights from

Twitter/Blogs as an official column in a journal #hpmWed Mar 30 18:59:32 PDT 2011

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Wed Mar 30 18:59:32 PDT 2011

revdoc Oh, c'mon, guys...don't ELECT Christian--you don't have to cover for him if he can't be

at work! #hpmWed Mar 30 19:00:00 PDT 2011

ctsinclair @MeredithGould I would love to have a tipjar for good blogs that I read. I am all for a

microcurrency system #hpmWed Mar 30 19:00:02 PDT 2011

RossJeanette thanks for participating in #HPM tweetchat.. got to go know.. feel free to continue

chatting #hpmWed Mar 30 19:00:04 PDT 2011

KathyKastner RT @MeredithGould: @ctsinclair Oh make me go crazy(er) on Twitter!!! Some of us

are professional writers & editors; it's our livelihood. #hpmWed Mar 30 19:00:06 PDT 2011

MeredithGould @elderpages Yep, I do a lot of "pro bono" work, too but there's a limit -- especially if

there's NO reciprocity. #hpmWed Mar 30 19:00:25 PDT 2011

elderpages RT @renee_berry: agree T3 would love 2 see highlights of Twitter/Blogs as an official

column in a journal...#hpm paper.li is doing this #hpmWed Mar 30 19:00:40 PDT 2011

PracticalWisdom @EldrcareConsult: http://www.youtube.com/watch?v=y8Qqgx-Pq3s #HPMWed Mar 30 19:00:55 PDT 2011

MatthewsMichele @RossJeanette Thanks for being a great host! #hpmWed Mar 30 19:01:01 PDT 2011

ctsinclair Thanks to our host tonight @RossJeanette #hpmWed Mar 30 19:01:07 PDT 2011

KathyKastner RT @MatthewsMichele: @RossJeanette Thanks for being a great host! #hpmWed Mar 30 19:01:15 PDT 2011

PracticalWisdom @RossJeanette: Thank you so much for hosting. #HPMWed Mar 30 19:01:33 PDT 2011

elderpages RT @ctsinclair: Thanks to our host tonight @RossJeanette. YES! #hpmWed Mar 30 19:01:40 PDT 2011

ctsinclair We have no host for next week, any volunteers as I get the schedule ready for the next

few months? #hpmWed Mar 30 19:01:40 PDT 2011

revdoc RT @ctsinclair: Thanks to our host tonight @RossJeanette Thank you! #hpmWed Mar 30 19:01:51 PDT 2011

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equijada @RossJeanette thanks Jeanette! thanks everyone. Great chat #hpmWed Mar 30 19:01:56 PDT 2011

MeredithGould @RossJeanette Thanks for moderating! You sure got me into the convo quickly!!

#hpmWed Mar 30 19:02:10 PDT 2011

DrSnit @RossJeanette great job!! Thanks!! xo #hpmWed Mar 30 19:02:11 PDT 2011

PracticalWisdom @ctsinclair; Sure, I owe you one. #HPMWed Mar 30 19:02:22 PDT 2011

aliciabloom *claps* for #hpm twitterchat host @RossJeanetteWed Mar 30 19:02:34 PDT 2011

doctorfisher Well that was fun you're a great crowd. Don't forget to tip your bloggers and tweet-

hostesses @RossJeanette #hpmWed Mar 30 19:02:48 PDT 2011

renee_berry !!! great to chat with everyone tonight! RT @PracticalWisdom @RossJeanette Thank

you so much for hosting #hpmWed Mar 30 19:03:05 PDT 2011

emilybarryPR Great chat - sorry I was in and out! RT @aliciabloom: *claps* for #hpm twitterchat

host @RossJeanette #hpmWed Mar 30 19:03:34 PDT 2011

RossJeanette thank you guys! I'll participate next week. #hpmWed Mar 30 19:03:38 PDT 2011

PracticalWisdom @aliciabloom http://www.youtube.com/watch?v=y8Qqgx-Pq3s #HPM #HPMWed Mar 30 19:03:40 PDT 2011

DrSnit Great job cats! Wonderful #hpm chat!Wed Mar 30 19:03:58 PDT 2011

revdoc Have a great rest of the week, everyone! #hpmWed Mar 30 19:04:20 PDT 2011

EldrcareConsult i have to go too guys....here's the newest copy of our newsletter. feel free to read,

pass on and join! http://conta.cc/i9aOor #hpmWed Mar 30 19:04:33 PDT 2011

PracticalWisdom @ctsinclair: So you will send out list. Could you remind of the link later. #HPMWed Mar 30 19:04:49 PDT 2011

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