siblings of people with disabilities: the next generation of supporters
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Siblings of People with Disabilities: The Next Generation of Supporters. Pat Carver. TODAY. - PowerPoint PPT PresentationTRANSCRIPT
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Siblings of People with Disabilities:
The Next Generation of SupportersPat Carver
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TODAYAt this session, we will share current
sibling research and national Sibling Leadership Network (SLN) efforts underway that advance self-determination with and for our brothers and sisters. We will also examine how to organize siblings in Virginia.
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BackgroundSiblings have longest
relationshipAs parents age,
siblings provide more support
The sibling experience is varied and important
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The Sibling Movement
Siblings have insights
Club sandwich generation
Support to families – “Family support”
Siblings need information
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Research: What do we know about Sibling Relationships?
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Research: What do we know about Future Planning?
Siblings Rule PSAs: Supporting the Employment
of Your Brother or Sister with a disability
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Future Planning Resources
www.rrtcadd.org www.lookiris.com
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Resource: Adult Sibling Experience
Essay collection, thirty-nine adult siblings (ages 20 to 70) reflect on how their lives have been indelibly shaped by their relationship with a brother or sister with special needs
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www.siblingleadership.org Mission: To provide siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.
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http://www.youtube.com/watch?feature=player_embedded&v=Pc1CUf2DgOQ
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State Chapters
also… New Hampshire and Utah
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Background: Self-Advocates Becoming Empowered (SABE)
Founded in 1990SABE BOD Member on
SLN Board of DirectorsModel for SLN Eric McVay SABE
Representative SLN
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2012 Elections and VotingNational Forum on
Disability IssuesSABE and SLN
◦Voter Registration◦SABE 2012 Elections
Educated network about how siblings can support their brothers/sisters to vote
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Key Legislative PoliciesThe Family Medical Inclusion Leave Act
(FMILA)The Lifespan Respite Care Act The Achieving a Better Life Experience
(ABLE) Act The Convention on the Rights of Persons
with Disabilities (CRPD)
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Key Collaborations of the SLNPartnerships:
Grants
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MI SIBS activities
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www.siblingsupport.orgSibshops: gatherings for sibs to obtain peer
support and education within a recreational setting
SibKids: young siblings connect over the internetSibParent: a listserv where parents of kids with
disabilities can talk about their “other” kidsSibNet: Listserv for adult siblings
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website: www.misibs.org www.Facebook.com/MISIBS
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Sibling Story
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Why SIBS in VIRGINIA?Connect siblingsProvide information &
resources Promote advocacyDevelop sibling leadershipHonor & celebrate the
sibling relationship
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Engage adult siblingsLearn about the sibling relationshipEngage siblings early in the conversationSeek out sibling inputIdentify sibling support programsFocus on the family as whole in service
planning
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Why should siblings get involved?Siblings as
advocatesSiblings enhancing
self-determinationSiblings as
professionals
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SIGN-IN SHEEThttp://
www.youtube.com/watch?v=PyOixKJJeXY&f
TRUE COLORS