september 27, 2015 new england pans/pandas association*pandas awareness day *awareness posters...
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September 27, 2015
New England PANS/PANDAS Association
In This Issue*PANDAS Awareness Day
*Awareness Posters
*Locall Meet Up Groups
PANS Information
New, easy to sharePANS/PANDAS Informationsheets available now! Theyare convenient to email,print, and/or share withanyone who needs to knowthe basic facts aboutPANS/PANDAS. Available viawebpage and downloadablepdf file.Read More
PANDAS Awareness Day - October 9, 2015
Awareness Day Proclamation Updates
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COMING SOON!
PANS/PANDAS Family StoriesVideo coming soon! NEPANSis excited to share a newAwareness Video with you intime for PANDAS AwarenessDay. We will also soon launcha section of PANS/PANDASStories written by membersof our community.
Stay Tuned!
Contact Us
NEPANSPO Box 1315
Duxbury, MA 02231
WebsiteNE PANS/PANDAS Assoc.
Proclamations GrantedProclamations granted in CT & NH.
Proclamations RequestedProclamations in MA, RI, VT have been requested.
Awareness CampaignsNE PANS/PANDAS has a couple fantastic PANS/PANDAS Awarenesscampaigns! Six new Awareness Posters are available to share. A newPANS/PANDAS Family Stories Video will launch soon! We are excited toshare it with you.
For More Information
Awareness Posters
Six New Awareness Posters
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Join OurMailing List
NEPANSThe New EnglandPANS/PANDAS Association isa group of parent volunteersfrom various states acrossthe New England focused onraising awareness ofPediatric AutoimmuneNeuropsychiatric DisorderAssociated with StreptococcalInfections (PANDAS), alsoknown as PediatricAcute-onset NeuropsychiatricSyndrome (P.A.N.S.).
Our mission is simple:* To raise awareness ofPANS/PANDAS in ourcommunity and beyond* To support the medicalcommunity in their missionto heal our children sufferingfrom PANS/PANDAS* To look for ways to expandthe medical care available* To create opportunities toassist families searching forsolutions
Board Members:Margaret Chapman, MicheleDanubio, Melissa Glynn-Hyman, Lisa Grisolia, LisaHart, Emily Klein, ElizabethLaForest, Tiffani Maxwell,Robin McCune, Kim Panton,Beata Takahashi, LauraTedeschi, Gabriella True,Jennifer Whelan
NEPANS is excited to share 6 new Awareness Posters for you to use andshare!Help raise awareness on October 9-PANDAS AWARENESS DAY!
Printing Poster Size - 16x20 - You can download full size PDFs ofeach image by clicking on the images. Then you upload the PDFsto various printing companies .Printing Letter Size - We know many people won't have theopportunity to display full size posters so we have reformatted theimages to fit on letter size paper. PDF file available on website.
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Local Meet Up/Support Groups
Upcoming Meetings
Do you need a little in personsupport? Below is a list of localmeetings hosted by members of thePANS/PANDAS community. Pleasecontact the individual groups if youhave questions regarding a specificgroup.
Do you organize a local MeetUp/Support group in the North East and would like us to help spread theword? Please email our Meet Up Group Coordinator.
New Hampshire Meet UpNext Meeting: Wednesday, September 30 @12:00pm-2:00pmLocation: See NH PANDAS FB Group for information
Connecticut Meet UpNext Meeting: Tuesday, October 6 @9:00amLocation: Coffee Barn, Wilton, CT
Massachusetts Meet UpNext Meeting: Monday, October 12 @6:00pmLocation: Whitman, MA Public Library
Rhode Island Meet UpNext Meeting: Thursday, October 15 @6:45pmLocation: East Greenwich
For More Information
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What is PANS/PANDAS?
P.A.N.D.A.S (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) and P.A.N.S. (Pediatric
Acute-onset Neuropsychiatric Syndrome) are terms used to describe a subset of children and adolescents whoexperience an encephalitic-like onset of neuropsychiatric symptoms following an infection such as Strep,Pneumonia, and Mononucleosis.
In simple terms, antibodies created to fight the infection become misdirected and attack a small area of thebrain known as the basal ganglia. This autoimmune reaction results in an acute onset of neuropsychiatricsymptoms that can include: separation anxiety, OCD, tics, age regression, sleep difficulties, personalitychanges, urinary frequency, irritability, rage, sensory sensitivities, deterioration in learning abilities andanorexia.
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NE PANS/PANDAS Association | PO Box 1315 | Duxbury | MA | 02331
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