february 11, 2015 new england pans/pandas association · 2020-01-23 · new england pans/pandas...

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February 11, 2015

New England PANS/PANDAS Association

In This Issue~In The News

~Brown Conference-Clinician Track

~Brown Conference-Parent Track

~North East Meet UpGroups

In the News

N.H. Families Fight ForRare Diagnosis Linking

Strep To Kids' OCDNew Hampshire Public

Radio features two localPANDAS families

including NEPANS/PANDAS Assoc'sBoard Member, Robin

Warren Alpert Medical School of Brown UniversityCME Conferences on PANS, PANDAS, Acute-OnsetNeuropsychiatric Syndromes - Clinician Track

Physician & Healthcare Provider CME Track March 14, 20157:00-4:30 - Registration to Close

Program Description:There is increasing evidence for the role of infectious as a trigger forillness e.g. helicobacter pylori and ulcers. Since the late 1980's,researches have identified infectious triggers they believe lead to rapid

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McCune.

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Contact Us

NE PANS/PANDAS AssocPO Box 1315

Duxbury, MA 02231

WebsiteNE PANS/PANDAS Assoc.

Email [email protected]

Join OurMailing List

Conference Videos

CT Conference - 11/14Dr. O'Hara, Dr. Leventhal, Dr.Trifiletti, Q&A Panel

NH Conference - 10/14Peggy Chapman, Dr. Trifiletti, Dr.Thompson, Dr. Hardy, A Story of

onset cases of OCD and tic disorders-now a widely accepted consensus.Through his Director's Post in August 2010, the Director of the NationalInstitutes of Mental Health, Thomas Insel, MD supported these conceptsin "Microbes and Mental Illness". He also pointed to the history andadded research in a 2012 post "From Paresis to PANDAS and PANS".These neuropsychiatric disorders have been widely under-recognized.The role of this conference is to increase provider awareness,understanding and recognition of appropriate cases"

Speakers: Michael Cooperstock, MD Madeleine Cunningham, PhD Jenny Frankovich, MD Christine J. Harling-Berg, PhD Mady Hornig, MD Louise S. Kiessling, MD, FAAP Paul Knopf, PhD James Leckman, MD Tanya Murphy, MD Susan E. Swedo, MD Kyle Williams, MD Xiangping Zhou, MD

Topics Will Include:- Is PANS Controversial?- How to Recognize PANS- Anti-neuronal Antibodies and Animal Models- Clinical Laboratory and Physical Findings- T-Cells and IVIG- Chemokines and Cytokines- Blood/Brain Barrier- Diagnostic Dilemma- Psychiatric Management- Role of Antibiotics- Immune Modulary Treatment- Co-morbid Abnormalities: EEG and Polysomnographic Target Audience:~Physicians~Physician Assistants~Psychologists~NursePractitioners~Social Workers~Researchers Specializing in pediatrics,psychiatry, immunology, infectious diseases, neurobiology, neurology,and family medicine Educational Objectives:At the conclusion of this activity, participants should be able to:1. Analyze the evidence for and against the diagnostic entities of


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Recovery, Q&A Panel

Doctor Breakfast - 4/14Dr. Swedo, Dr. Latimer, Dr.Cunningham, Dr. O'Hara, Dr.Pasternak

Parents Q&A - 4/14Dr. Cunningham,Dr. Nancy O'Hara,Specialists from Coram CVS Infusion Services

RI Conference - 11/13 Dr. Swedo, Dr. Latimer, Dr. Trifiletti,Dr. Bock, Dr. Walter, PeggyChapman, Dr. Hubbuch, Dr. Micco

NE PANS/PANDAS

Association

The New EnglandPANS/PANDAS Association isa group of parent volunteersfrom various states acrossthe New England focused onraising awareness ofPediatric AutoimmuneNeuropsychiatric DisorderAssociated withStreptococcal Infections(PANDAS), also known asPediatric Acute-onsetNeuropsychiatric Syndrome(P.A.N.S.). Our mission is simple:* To raise awareness ofPANS/PANDAS in ourcommunity and beyond* To support the medicalcommunity in their missionto heal our children sufferingfrom PANS/PANDAS* To look for ways toexpand the medical careavailable

Pediatric Autoimmune Neuropsychiatric Syndrome (PANS), PediatricAutoimmune Neuropsychiatric Disorder Associated with theStreptococcus (PANDAS) and Acute-0nset Neuropsychiatric Disorders.2. Identify the symptoms associated with PANS, PANDAS andAcute-Onset Neuropsychiatric Disorders.3. Identify the laboratory measures that are consistent with thesediagnoses.4. Discuss the basic science evidence for these diagnoses as distinctentities.5. Describe the various treatment modalities and their appropriatenessfor the individual patient. Clinician Conference Flier Clinician Conference Program/Schedule Register Online for Clinician CME Track Registration Fees: $155.00 Physicians$95.00 Other Healthcare Providers & Interested Community Members For More Information:Contact the Brown CME OfficeBrown Alpert Medical School-Office of CME Ph: 401-863-3337Email Cancellation Policy: Cancellations/substitutions must be made in writing to the Brown CMEOffice at least two weeks prior to the conference, no later than February27, 2015. A $50.00 administrative fee will be charged for all refunds (norefunds for "no shows"). There will be no additional charge forsubstitutions. This conference is subject to change or cancellation.

Conference Location:The Providence Marriott 1 Orms Street, Providence, RI 02903401-272-2400 |Marriott Providence Hotel Accommodations:Make hotel reservations at The Providence Marriott Hotel with our roomblock rate of $115.00/night plus taxes, available Friday and Saturdaynight. Deadline for booking is February 20, 2015.


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* To create opportunities toassist families searching forsolutions Board Members:Peter Capraro, MargaretChapman, Michele Danubio,Melissa Glynn-Hyman, LisaGrisolia, Lisa Hart, EmilyKlein, Tiffany Maxwell, RobinMcCune, Kim Panton, BeataTakahashi, Laura Tedeschi,Gabriella True, JenniferVitelli, Jennifer Whelan

Join OurMailing List

What isPANS/PANDAS?

P.A.N.D.A.S (PediatricAutoimmune NeuropsychiatricDisorders Associated with

Streptococcal Infections) andP.A.N.S. (Pediatric Acute-onset

Neuropsychiatric Syndrome) areterms used to describe asubset of children andadolescents who experiencean encephalitic-like onset ofneuropsychiatric symptomsfollowing an infection suchas Strep, Pneumonia, andMononucleosis. In simple terms, antibodiescreated to fight the infectionbecome misdirected andattack a small area of the

New England PANDAS/PANS Assoc. Conference Page

Warren Alpert Medical School of Brown UniversityConferences on PANS, PANDAS, Acute-OnsetNeuropsychiatric Syndromes - Parent Track

Parent Update TrackMarch 15, 20157:30-12:00 - Registration/Breakfast to Close

Program Description: On March 15th, expert faculty from the March 14th PANS, PANDAS, andAcute-Onset Neuropsychiatric Syndromes Warren Alpert Medical Schoolof Brown University CME Conference will be hosting this parentsmeeting. The goal of this event is to provide information onneuropsychiatric disorders. New research results, potential therapies andtreatment recommendations will be discussed. Diagnosis, assessment, and co-morbid conditions will also be reviewed. Anextensive question and answer panel session will round out the program.

Expert Faculty: Michael Cooperstock, MD MPH Madeleine W. Cunningham, PhD Jenny Frankovich Sargent, MD, MS Christine J. Harling-Berg, PhD Mady Hornig, MA, MD Louise S. Kiessling, MD, FAAP Tanya K. Murphy, MD, MS Susan E. Swedo, MD Kyle A. Williams, MD Xiangping Zhou, MD

Parent Update Conference Flier Register Online for Parent Update Registration Fees$50.00 One Family Member Individual$25.00 Additional Family Members Cancellation Policy:


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brain known as the basalganglia. This autoimmunereaction results in an acuteonset of neuropsychiatricsymptoms that can include:separation anxiety, OCD,tics, age regression, sleepdifficulties, personalitychanges, urinary frequency,irritability, rage, sensorysensitivities, deterioration inlearning abilities andanorexia.

Cancellations/substitutions must be made in writing to the Brown CMEOffice at least two weeks prior to the conference, no later than February27, 2015. A $15.00 administrative fee will be charged for all refunds (norefunds for "no shows"). There will be no additional charge forsubstitutions. This conference is subject to change or cancellation.

Conference Location:The Providence Marriott 1 Orms Street, Providence, RI 02903401-272-2400 | Marriott Providence Hotel Accommodations:Make hotel reservations at The Providence Marriott Hotel with our roomblock rate of $115.00/night plus taxes, available Friday and Saturdaynight. Deadline for booking is February 20, 2015.

NE PANDAS/PANS Assoc Conference Page

North East Meet Up Groups

North East Meet Up Groups Could you use a little more support? PANS/PANDAS is hard road and meeting up withfellow parents can be essential. There are many local groups that get together in theNortheast. These groups are independent of NE PANS/PANDAS Association. If you have agroup to add to the list, please email Gabriella True

ConnnecticutFairfieldContact: Lisa Williams Contact: Joan McCullough Meetings: First Tuesday of the month - 9:00amLocation: Coffee Barn, Wilton, CT

MassachusettsWhitmanContact: Lisa Grisolia Meetings: Second Sunday of the Month - 6:00-8:00pmLocation: Whitman, MA Public Library

New Hampshire


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NH PANDAS Families Meet-UpContact:NH PANDAS FB Group

New JerseyEdisonContact: Audray Riva Meetings: Second Monday of the Month - 7:15 - 8:15 pmLocation: JFK Neuroscience Institute (NSI), Conference Room, 65 James St., Edison, NJ 08817 Northern New Jersey PANDAS Support GroupContact: Barbara Sisco Meetings: February 17, 2015 / March 17, 2015 / April 14, 2015 / May 19, 2015 / June 16, 2015Location: St. Francis Residential Home, Red Room,122 Diamond Spring Rd, Denville, NJ

New YorkLong IslandContact: Nancy GoldsteinMeetings: Info posted on FB: NY/NJ/CT P.A.N.D.A.S./P.A.N.S. Parents Closed Group WestchesterContact: Lisa Kilion Meetings: Info posted on FB: NY/NJ/CT P.A.N.D.A.S./P.A.N.S. Parents Closed Group

Rhode IslandEast GreenwichContact: Moira, Marni, & EmilyMeetings: Third Thursday of the Month - 6:30 pmLocation: East Greenwich

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february 11, 2015 new england pans/pandas association · 2020-01-23 · new england pans/pandas...

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