september 2020 we need to talk september a message from
TRANSCRIPT
6310 LBJ Freeway Suite 213
Dallas, TX 75240(972) 620-7600 www.daps.us
SEPTEMBER 2020
INSIDEspeaker bios 2-3
introducing: jo klein 4crossword puzzle 4
memorials, honors, donations 5 gems 6
announcements 7
virtual classes & webinars 8upcoming events 9
upcoming meetings 10
We Need to TalkA Message from Executive Director Mike Miles
We need to talk... Most of us have probably heard those words from a loved one or a very close friend. For me, they tend to stop me in my tracks, cause me to take a deep breath, and prepare for what is probably going to be a difficult conversation. Relax, this is not one of those times leading to a difficult conversation.
If you look at a list of common causes of stress, you will notice that almost all, if not everything, on the list involves change. Even small changes can create some stress. Any major life change
is stressful, including happy events like the birth of a child, a wedding, or a new job. The more unpleasant things such as illness, financial setback, and a PANDEMIC are typically very significant sources of change and stress.
And so—we need to talk.
What are some things that we can do during the pandemic to stay healthy not just physically but also with our overall wellbeing? Here’s my list.
1. We need to talk. Yes, we really do need to talk. Connect with others as often as you can. Talk to the neighbors while safe distancing. Connect with phone calls and/or Zoom.
2. Write letters and cards. Handwriting a letter is something of a lost art. What a great time to start!
3. Start journaling. This is a great way to release stress and anxiety. It doesn’t matter if you or anyone can read it, journaling is good for our emotional and mental health. Research has shown that handwriting increases activity in the brain that is
TALK continues on Page 3
September educational
SerieS
Find webinar links and speaker bios on Pages 2-3
Thursday, September 311:00 a.m.
SPEAKER: Dr. Nirav PavasiaTOPIC:
PD and DyskinesiaMeeting sponsored by: Adamas
Thursday, September 1011:00 a.m.
SPEAKERS: Christina Burke and Jason Hamilton
TOPIC:Medical Cannabis and Parkinson’sMeeting sponsored by: Texas Original
Compassionate Cultivation
Tuesday, September 151:00 p.m.
SPEAKER: Kim Berry-BroomfieldTOPIC:
Moving Forward Discovering a Treatment Option for Advanced PD
Meeting sponsored by: Abbvie
Dedicated to impacting and improving the lives of those affected by
Parkinson’s disease
Executive DirectorMike Miles
Board of DirectorsBentley Foster, President Jo Klein, Vice President
Barbara Glass, Secretary Greg Wood, Treasurer
Advisory CouncilSarah Atwood Charlene Noe Ben Casey Sandi Pautler Carlie Dorshaw-Moe Joyce Susman Pat Goukler Barbara Taylor Shirley Hand
Medical Advisory BoardShilpa Chitnis, M.D., Ph.D. Richard B. Dewey, Jr., M.D.
Thomas D. Franklin, Jr., Ph.D. Richard L. Fulbright, Ph.D. Dwight C. German, Ph.D. Aashoo Mentreddi, M.D.
Padraig O’Suilleabhain, M.D. Nirav Pavasia, M.D.
Alexander Peralta, M.D. R. Malcolm Stewart, M.D.
Gary L. Tunell, M.D.
NewsletterJill Dominguez, Managing Editor Pam Michel, Production Editor
DAPS StaffLeisha Phipps, Program Director
Rebecca Reyes, Office Manager [email protected]
The DAPS newsletter is published monthly as an information guide only, and does not
serve as legal or medical advice.
Martha BonillaMike BraitschJared CaplanChris ClausenMartha FiddesStephen Holman
Harold KelloggJim LynchGreg RectorMarcie SalamoneChuck Stewart
PAGE 2 • DAPS • SEPTEMBER 2020
Christina Burke and Jason Hamilton
SEPTEMBER EDUCATIONAL SERIES SPEAKERS:Nirav Pavasia, MD
Dr. Nirav Pavasia is a frequent speaker for DAPS. This month, his presentation will provide a better understanding about dyskinesia to patients and care partners. It will also discuss how dyskinesia affects a patient’s life, how doctors can help manage dyskinesia, and a potential option available for managing dyskinesia.
Dr. Pavasia is a Certified Movement Disorders Specialist and a Board Certified General Neurologist currently practicing at Neurology Consultants of Dallas. He believes in a multidisciplinary approach to patient care and loves to connect with his patients.
Click here to register for this webinar taking place on Thursday, September 3, at 11 a.m. CDT.
A native Houstonian, Christina Burke joined Compassionate Cultivation in 2017 and leads in Community Outreach and Advocacy Efforts. Previously, she spent 17 years in Investor Relations and Communications roles in the oil and gas and consumer products industries. Christina received her BS in Health and Human Science with a focus on Biological Psychology from the University of Houston and serves on several boards including The Epilepsy Foundation of Central and South Texas.
Christina is joined by Jason Hamilton, PhD, Production Specialist. As Compassionate Cultivations Quality Assurance Analyst, Jason is skilled in Mass Spectrometry, High-Performance Liquid Chromatography (HPLC), Gas Chromatography, Lipid Extraction and Analysis, and Microbiology. Jason received a Bachelor of Science in Biology from Texas Tech and a Doctor of Philosophy (Ph.D.) in Analytical Chemistry focused on biological mass spectrometry
with an emphasis on lipid analysis of individual cells from the University of North Texas.
Click here to join the webinar on Thursday, September 10, at 11 a.m. CDT.
PAGE 3 • DAPS • SEPTEMBER 2020
TALK continued from front page
Sponsors for last month’s Educational Series were:
We appreciate their generosity!
Kimberly Berry-Broomfield, NPKimberly Berry-Broomfield is an AANP board certified Family Nurse Practitioner at Neurology Consultants of Dallas, where she specializes in Movement Disorders. She obtained her Bachelor of Science Degree in Nursing from the University of Wisconsin Madison in 2010, then her Master of Science in Nursing in 2017 from the
University of Texas at Arlington.
Kimberly has worked primarily in Neurology for the last six years. She has a particular interest in Parkinson’s disease, which spurred from the knowledge of her grandfather having this diagnosis. She is passionate about providing Parkinson’s disease education and overall support to her patients and their family members. She desires to be a true patient advocate who enables individuals to live full, productive lives despite their diagnosis.
In her spare time, Kim enjoys running, trying new restaurants, and traveling. She is also loves spending quality time with her family.
Click here to join the webinar on Tuesday, September 15, at 1 p.m. CDT.
similar to meditation, sharpens the brain, and helps us learn.
4. Stay physically active. This is always important and even though it may be more challenging, it is very important that we don’t become sedentary as we shelter in and spend more time at home.
5. Join an online exercise class. Of course, my favorites are the DAPS Zoom classes. The schedule for these classes are on the DAPS website and on Page 8 of this newsletter.
6. Watch your diet. I heard someone say the other day that thus far during COVID-19, they have gained 19 pounds. I hope that was an exaggeration, but stress and boredom can make it more difficult to eat healthy.
7. Improve or resurrect an old hobby. DAPS has some very talented artists. Not all artists express themselves on canvas—DAPS has photographers, sculptors, poets, other forms of artistic expression, and at least one who decorates cakes. I have a special appreciation for the cake decorator!
8. One way to stay connected with others is to join Monday’s with Mike on Zoom. This is available to anyone and is an open forum to learn a little about DAPS happenings. Most importantly, it’s a great way to see and visit with others. If you are an artist, it would be a great time to share some of your work. Not an artist? No need to worry—we always find things to talk about such as grandchildren, pets, and whatever comes up. More information is available on the DAPS Facebook page.
9. Finally, find something to be grateful for every day. Gratitude improves physical and emotional health. It doesn’t have to be big. It may a bowl of ice cream or a call from a friend or family member.
Okay, a bit of fun trivia to finish with. Who remembers Dale Evans and Roy Rogers? Let me say bye for now with:
“Happy trails to you, Until we meet again. Happy trails to you, Keep smiling until then.”
Jo Klein currently serves as Vice President for the DAPS Board of Directors. After earning bachelor’s and master’s degrees in immunology at the University of Nebraska,
Jo embarked upon a career at Vizient and Abbott Laboratories. While at Vizient, she conducted joint research with Arizona State University in healthcare supply chain management. Throughout her career, she continued to develop her leadership experience in change management.
After a very successful career, Jo retired in 2013. Jo was then diagnosed with Parkinson’s disease and soon discovered the importance of group exercise and social connections in helping people accept their condition. She joined DAPS and the Movement Disorder Program at Cooper Aerobics Center.
Jo is an active DAPS Board Member and has taken on the responsibility for coordinating Community Day in conjunction with Vizient as well as the annual Kenneth H. Cooper MD DAPS Lifetime Achievement Award. These events were designed to encourage people with Parkinson’s to take advantage of the DAPS programs and service offerings and to promote volunteerism.
Jo is very proud of her 38-year marriage to her husband, Bert. She enjoys helping people learn about Parkinson’s and created a crossword puzzle for you to test your knowledge. The answer key is on page 7, but try not to peek!
PAGE 4 • DAPS • SEPTEMBER 2020
Jo Klein
Down
1. A factor that worsens tremors
3. Change in handwriting where script becomes smaller
5. A non-motor symptom
Across
2. A neurodegenerative disease
4. Term reflecting slowness of movement
6. A medication used to treat motor symptoms
7. Involuntary shaking of a body part
8. A chemical in the brain that refulates movement & emotion
9. The international symbol for Parkinson’s disease
10. Improves posture and flexibility
Parkinson’sCrossword Puzzleby Jo Klein
Introducing:Introducing:
PAGE 5 • DAPS • SEPTEMBER 2020
Memorials • Honors • DonationsJuly 2020
In memory of Cynthia Bem
From: Kathie Brown
In memory of Darvis Calhoun
From: Billie Anderson
In memory of Rev. William F. Davidson
From: Donor Advised Fund - Recognition to Davidson’s, White’s, Miller’s
In memory of Brent Doll
From: Raymond Norbury, Jr.
In memory of James Gales
From: Denton County Alumnae-DST
In memory of William George
From: Barry & Pat Goukler
In memory of our mother, Irena Kinsinger
From: Kim Dague & Dee Hilyard
In memory of Jim Lawrence
From: Roderick & Elvera Wright
In memory of Bernard McDermott
From: Richard & Rita Doelling
Jill & James Leber
Emily Millier & Peter Scannell
Julie Sloan Watson
In memory of Kevin Miles
From: Mike & Donna Miles
In memory of Carl Peavy
From: Sandra Cookman
Richard & Rita Doelling
Bob & Jodi Parks
Jan & John Potts, Jill & Jackson Jobe
In memory of Ron Rock
From: Anonymous
Non-Event
From: Annabelle Catterall
CNC Home Care
Donation to DAPS
From: Ron Baldwin
Mark Florence
Robert Mitchell
Bergner-Steward Fund (Grant)
TXU Electric
PAGE 6 • DAPS • SEPTEMBER 2020
Anonymous Sarah Atwood Laura Boyle Shirley Brouillette Edna Buentipo Scott Buzzell John & Wanda Call Malinda Cannon Larry Christensen Mitzi Clark Christian Clausen Bruce & Janiece Crozier Kim Dague John Davis Christine Dobson Richard & Rita Doelling Raul & Jill Dominguez Betty Dorsey Katie & Manford Edgington Bentley & Iris Foster William & Karen George Barbara Glass
Barry & Pat Goukler Ann Heidger Steven Holman Margery Hunter Michael Jones Geri & Harold Kellogg Jo & Bert Klein Leon & Marilyn Levin Scott MacPherson Glen & Frances Main John Marty Chip & Ginny Melara Pam & Matt Michel Donna Miles Mike Miles Carlie Moe Bobbi & John Myers Rod Myers Coco Nix Susan Norvell Tom & Cecilia Pajda Sandi Pautler Leisha Phipps
Fred Ransdell John Rapier Greg Rector Marguerite Riccardi David & Beverly Rivers Salvatore & Marcie Salamone Adana & Samuel Sanford Nancy Scaramella Charles Schlinke Robyn & Bud Seitzler Shelby Smith Jim Struble Joyce Susman Dr. Chad Swank Linda & Mike Swanson Randy Visser John & Ruth Walker Carole Ann Watson Michele White Diana Winkelmann Sharon & Greg Wood
GEMs are donors who
Give Every Month.
Our GEMs are very valuable!
Click here to sign up on the DAPS website.
REMINDER:
If you’d like an easy way to donate to DAPS every time you shop, enroll.
in the Kroger Community Rewards program, the Tom Thumb Good Neighbor Program, AmazonSmile, and iGive.
So far in 2020, DAPS has received $168.71 from the Tom Thumb Good Neighbor Program, $416.25 from Kroger Community Rewards and $109.27 from AmazonSmile. These donations help fund the classes and programming provided by DAPS each week.
It is our hope that you will continue to participate in these donation programs, and that you will encourage your friends and family to do so as well. It costs you nothing, but means everything to DAPS and the people we serve!
Kroger Organization number: IQ308 Tom Thumb Charity number: 3071
Good NeiGhbor ProGram
®®
Bradley McDaniels, PhD, CRC, is one of our DAPS Medical Advisory Board members. He is conducting research about apathy in Parkinson’s disease and is asking for your assistance.
The research study is titled,“Apathy in Parkinson’s Disease:
A Complex, Multifactorial, and Unsolved Manifestation.” This is a collaborative project between the University of North Texas and the UT Southwestern Medical Center in Dallas. Your participation will help address treating apathy in people with Parkinson’s disease.
Thank you for your consideration.
You will find the survey at this link: https://unt.az1.qualtrics.com/jfe/form/
SV_eYieF3Z3pwVwbid
PAGE 7 • DAPS • SEPTEMBER 2020
Thank you to our friends at Parkinson Voice Project (PVP) for extending their speech certification program to DAPS speech instructors. We appreciate their support and generosity! If you miss any of the DAPS speech classes, you can always check out the additional speech classes offered by PVP
every Tuesday at 6:00 pm, via Facebook Live.
https://www.facebook.com/ParkinsonVoiceProject/
New Yoga Class with Amanda HunterYoga class DAPS instructor Amanda Hunter began teaching a 10-week yoga class on August 17 at 4pm via Zoom. Please feel free to join this gentle yoga class that will
begin with chair exercises and include some floor exercises. The class will focus on stretching, breathing, and guided meditations.
Care partners welcome!Email us at [email protected] or
call us for details: 972-620-7600
Parkinson’s research oPPortunity
imPortant announcements
Parkinson’s Crossword Puzzle Answer KeyAutumnwillsoonarrive!
PAGE 8 • DAPS • SEPTEMBER 2020
Virtual Classes & Webinars
Have you made room to Zoom? Research from the Parkinson’s Foundation Parkinson’s Outcomes
Project, the largest-ever clinical study of Parkinson’s, suggests that people with PD should do at least 2.5 hours of exercise a week for a better quality of life.
If boredom is getting the best of you, consider trying one of our Zoom classes that are offered 7 days a week. We understand that technology can be frustrating and intimidating, and we are here to help you stay active and connected. We can help you get set up and ready to Zoom!
Join us for recorded EXERCISE class any time at https://bit.ly/DAPSYouTubeChannel.
Below are the LIVE CLASSES DAPS is offering each week via Zoom.You can join our live exercise, speech, and support groups by contacting us at [email protected] for login details.
If you are interested in joining a DAPS class virtually for the first time, please be aware that response times to receive login information are generally during office hours: Monday – Thursday, 9:00 am–2:00 pm.
MONDAYS 9:45 am EXERCISE with Angie
10:45 am SUPPORT GROUP with Carol
1:00 pm SPEECH with Danielle
4:00 pm GENTLE YOGA with Amanda
TUESDAYS 9:00 am SPEECH with Pat
10:00 am EXERCISE with Diana
11:30 am SPEECH with Lynn
2:00 pm DANCE with Misty (For login details, contact Misty at
WEDNESDAYS 9:45 am EXERCISE with Barb
11:00 am SPEECH with Lynn
12:30 pm EXERCISE with Tammy
THURSDAYS
10:00 am EXERCISE with Amanda
2:00 pm SPEECH with Pat
2:00 pm DANCE with Misty (For login details, contact Misty at
FRIDAYS
9:45 am EXERCISE with Barb
12:30 pm EXERCISE with Tammy
SATURDAYS
1:00 pm EXERCISE with Tammy
SUNDAYS
11:00 am EXERCISE with Diana
2:30 pm EXERCISE with Tammy
All times are Central Daylight Time
Upcoming Events
2 0 2 0Compassion Fatigue
V I R T U A LS Y M P O S I U M
TRANSFORMING RESILIENCE
Building New Strengths
Friday, September 18, 2020
www.educaredallas.com/cfs
PAGE 9 • DAPS • SEPTEMBER 2020
V I R T U A L W A L KEvent Details
Date: Saturday, October 17, 2020
Walk Begins: 10:00 a.m.
Contact: Debbie Nathan ph: 214-328-4769 [email protected]
regiSter Your team todaYhttps://movingdaywalk.org/event/moving-day-dfw/
2020 Virtual SYmpoSium
Thursday, October 29 2:00 - 5:00 PM
Friday, October 30 2:00 - 5:00 PM
PAGE 10 • DAPS • SEPTEMBER 2020
ALL PROGRAMS ARE CURRENTLY ONLINE ONLY
Please check the DAPS website at https://daps.us for schedule changes.
For assistance, contact the DAPS office Monday–Thursday, 9am–2pm at 972-620-7600 or [email protected]
UPCOMINGMEETINGS
Disclaimer: The contents or opinions expressed in this newsletter are those of the individual writers or presenters and do not constitute an endorsement or approval by DAPS staff.
Please consult your personal physician regarding your individual medical problems.
Connect with DAPS!
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@dapsinfodaps.us
Websiteupdate
We are in the process of building a brand new website for DAPS!
Make sure you are connected to DAPS via one of our channels below and stay tuned
for more updates as we make progress towards a shiny new site!
Sign up for DAPS monthly e-news!
SEPTEMBER VIRTUAL EDUCATIONAL SERIES
thursday, sePtember 3, 2020, 11:00 a.m.https://hwpnj.zoom.us/j/91618802176?pwd=TVJTYzhGe
HZqd3JWNWNmVS9sczVsZz09Speaker: Nirav Pavasia, MDTopic: PD and Dyskinesia
Meeting sponsored by
thursday, sePtember 10, 2020, 11:00 a.m.https://us02web.zoom.us/j/82378976916
Speaker: Christina Burke and Jason Hamilton
Topic: Medical Cannabis and Parkinson’s
Meeting sponsored by
tuesday, sePtember 15, 2020, 1:00 P.m.
https://us02web.zoom.us/j/82145576377Speaker: Kim Berry-Broomfield, NP
Topic: Moving Forward: Discovering a Treatment Option for Advanced Parkinson’s Disease
Meeting sponsored by