resilience · dementia beyond drugs: changing the culture of care and dementia beyond disease:...

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Friday, March 8, 2019 • Seattle, WAWashington State Convention CenterAlzheimer’s Association Washington State Chapter

It’s not just a conference, it’s an experience!

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Resilience

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University Bookstore

Discovery 2019 Expo Hall

Our Expo Hall is an extension of the educational opportunities at Discovery. We are excited to present a diverse group of 50+ exhibitors who offer a wide range of goods and services. Be sure to plan time to explore the Expo Hall, learn valuable information, win prizes, visit the bookstore and experience our new Geriatric Research Poster Presentations by University of Washington School of Nursing Students.

Conference sponsor, exhibitor and advertising opportunities available.Contact Ashley Studerus: [email protected] | 206.529.3874

A special Thank You to our Discovery 2019 Sponsors

Emerald Heights

2019 DISCOVERY CONFERENCEPAGE 1

Your Invitation to Discovery 2019

All of us at the Alzheimer’s Association Washington State Chapter – Board, staff and volunteers – as well as Discovery 2019 sponsors, exhibitors and presenters, are proud to present a day of enriching, evidence-based education, relevant resources and networking opportunities.

Please join us for Discovery 2019, our 34th Annual Alzheimer’s Regional Conference. As the Discovery Conference Advisory Council, we chose the theme of resilience around which to build the program for this year’s conference. Resilience is a process through which individuals demonstrate positive adaptation despite challenges and changes, such as a diagnosis of Alzheimer’s or other dementia.

Discovery Conference is your full-day opportunity to immerse yourself in learning, connecting, growing and Discovery.

Come share a day of Discovery with us!

Michael A. Bower, BA, ACC, RetiredVolunteer, Auburn

Jennifer Herrmann, BASW, CHCAdministratorProvidence Heritage House at the Market Assisted Living, Seattle

Mollia Jensen, BACreative Engagement ManagerElderwise, Seattle

Elisabeth Lindley, MN, ARNPNurse PractitionerUW Medicine Memory and Brain Wellness Center, Seattle

Keri K. Pollock, BSDirector of Marketing and CommunicationsAging Wisdom, Seattle

Jenika Richard-Webber, LICSWInnovative Social WorkerKaiser Permanente Northgate, Seattle

Anita Souza, PhDClinical Associate ProfessorUW School of Nursing, Department of Psychosocial and Community Health, Seattle

Debbie Williams, CMMConference ManagerAlzheimer’s Association, Lynnwood

Linda Woodall, BSExecutive DirectorEastside Friends of Seniors, Seattle

Discovery 2019 Conference Advisory Council

REGISTER ONLINE AT ALZWA.ORG/CONFERENCES PAGE 2

PRE-CONFERENCE EVENT Dementia & Aging in the 21st Century — G. Allen Power, MDThursday, March 7, 2019 | 7:00 – 8:15 P.M. | Please check our conference website for location: ALZWA.ORG/CONFERENCESOpen to general public, no charge.

In this presentation, Dr. Power will talk about the larger issues of dementia and aging in the 21st century. He will begin with a few comments about the nature of dementia (including drawbacks of our current medical approach), then discuss demographic trends and our need to shift societal views, systems and accommodations. He will describe the emerging movement around human rights for people living with dementia and share a vision for a more inclusive society.

CONFERENCE WORKSHOPS • Our speakers have created innovative evidence-based workshops that

provide new tools and skills for healthcare professionals and family caregivers.

• During registration, we ask you to indicate your preferred workshops so we can assign workshops to the right size room.

• The day of Discovery, workshop seating will be available on a first-come, first-serve basis starting 10 minutes prior to each workshop. You may self-select any workshop on the day of the conference.

CONFERENCE SCHEDULE 7:30 A.M. Registration – Snacks, Coffee, Tea in the Expo Hall

7:30 A.M.-2:45 P.M. Exhibit Hall & University Bookstore

8:30-10:00 A.M. Welcome and Keynote

10:00-10:15 A.M. Honoring Alzheimer’s Champions

10:15-10:30 A.M. Break – Explore the Exhibit Hall & Poet’s Corner

10:30-11:45 A.M. SESSION A

11:45 A.M.-12:30 P.M. Lunch

11:45 A.M.-1:00 P.M. Explore the Exhibit Hall & Poet’s Corner

1:00-2:15 P.M. SESSION B

2:15-2:30 P.M. Break – Explore the Exhibit Hall & Poet’s Corner

2:30-2:45 P.M. Expo Hall Drawing – Exhibit Hall

2:45-4:00 P.M. SESSION C


KEYNOTE SPEAKER G. Allen Power, MD Geriatrician, Author, Educator and MusicianDr. Power is a board-certified internist, geriatrician and newly-appointed Schlegel Chair in Aging and Dementia Innovation at the Schlegel-U Waterloo Research Institute for Aging in Ontario, Canada. He is also clinical associate professor of medicine at the University of Rochester, New York, a Fellow of the American College of Physicians-American Society for

Internal Medicine and an internationally-recognized educator and expert on transformational models of care for older adults, particularly those living with changing cognitive abilities.

He is the author of two books: Dementia Beyond Drugs: Changing the Culture of Care and Dementia Beyond Disease: Enhancing Well-Being.

KEYNOTE ADDRESS A New Definition of Dementia:

A shift in the way a person experiences the world.Friday, March 8, 2019 | 8:45 – 10:00 A.M. | Main Ballroom

In his keynote address, Dr. Power will outline the drawbacks of a narrow biomedical view of dementia, both for people with a diagnosis and their care partners. He will explain how an experiential model creates new pathways for success, using one framework for supporting a sense of well-being. This new model challenges many of our current practices and outlines a path for better care and support, while eliminating potentially harmful psychoactive medications.


Conference Workshop Information

This workshop will include a review of the tools and resources created by the Dementia Action Collaborative (DAC), a voluntary public-private partnership working to implement recommendations in the Washington State Plan to Address Alzheimer’s Disease and Other Dementias. Panelists will also discuss future plans for the DAC and a proposed funding request to the state legislature.

A1Meeting Dementia Head On: The Dementia Action Collaborative (Panel)

Facilitator: Bill MossPanelists: Lynne Korte, MPHBob LeRoyKristoffer Rhoads, PhD Cheryl Townsend Winter, DDS, MSD, MBA

Alzheimer’s represents 60%-80% of dementia diagnoses. The balance is represented in part by Frontotemporal, Lewy Body and Vascular Dementias. Learn symptoms of each of these dementias and how they are different from each other.

A2 If It’s Not Alzheimer’s, What Is It?

Michael J. Persenaire, MD

As they age, those affected by Down syndrome have a greatly increased risk of developing Alzheimer’s disease. Dr. Bishop will discuss sensory issues and the latest research on Down syndrome as it relates to Alzheimer’s disease.

A3 Dementia and Down Syndrome

Kathleen Bishop, PhD

Come explore the importance of creating a listening space that not only allows us to hear others, but also to hear ourselves. You will learn Three Centered Listening so we’re able to hear with our minds, feelings, and bodies and you will gain an understanding of how deep listening can improve patient assessment and inter-team communication.

A4 The Art of Listening

Jonathan Prescott

Come hear firsthand what it is like to live with Younger-Onset dementia and the impact it has on families, communities and businesses. The biggest challenge is getting a diagnosis. Learn how healthcare professionals can help to identify Younger-Onset and support those diagnosed.

A5Shining a Light on Younger-Onset Dementia (Panel)

Facilitator: Joanne Maher, MSWWendy Nathan, BSc, CMC

SESSION

A10:30 - 11:45 A.M.


This session will address the often thorny issues around choice and risk for people living with dementia. Using a well-being framework, attendees will be shown how stigma and operational practices can limit choice, and how an overemphasis on safety can actually be more harmful to the person. Practical examples and case stories will be used to illustrate how a relational approach can be employed, negotiating risk to optimize choice and well-being.

B1Negotiating Choice and Risk: A Relational Approach

G. Allen Power, MD

Hear the latest in Alzheimer’s research. This presentation will provide an overview of current research and trends, discuss recent findings and identify future directions.

B2 What’s Happening in Alzheimer’s Research

Thomas Grabowski, MD

Caring for a family member with dementia can often lead to conflicts. Siblings might not agree how to assist their parents and childhood wounds can resurface. Families are often not performing at their best as they seek to find solutions. You will learn: common reasons families feud, tips for navigating your work with conflicted families and resources available to you to help calm the troubled waters.

B3 Conflict Resolution in Families — How Do We Calm the Troubled Waters for Professionals?

Janet L. Smith, JDLisa Mayfield, MA, LMHC, CMHS, CMC

Adults with IDD are living longer due to better health care and quality of life including community living. The increased longevity has resulted in increasing numbers of adults with IDD exhibiting symptoms of dementia. Dr. Bishop will explore specific risk factors for dementia based on the type of Intellectual and Developmental Disability and how to address these challenges.

B4Understanding How Dementia Presents Differently in Adults with Intellectual and Developmental Disabilities

Kathleen Bishop, PhD

What is it like to be diagnosed and live with early stage dementia? Hear a first-person perspective. Learn how to reinforce a person’s strengths and demonstrate they are more than their diagnosis. Explore what is available in the community to support those newly diagnosed and help them find purpose and encouragement in their daily lives.

B5Early Stage Memory Loss: Empowerment, Encouragement and Support

Marigrace Becker, MSW

SESSION

B1:00 - 2:15 P.M.


Conference Workshop Information

In this presentation, Dr. Power will describe the challenges people living with dementia experience in all aspects of life. He will demonstrate how the alternate model discussed in the keynote address can help combat stigma and offer encouragement, hope and direction for people living with a diagnosis and their care partners. He will also offer guidelines for how healthcare professionals can best support those living with dementia and their care partners.

C1 Dementia Stigma: Public and Personal

G. Allen Power, MD

This workshop will explore creating sustainable dementia-friendly communities and the engagement of people with dementia in planning community initiatives. It will also cover the use of art as a way for someone to express their desires and discuss what “dementia friendly” means to the person with memory loss.

C2A New Vision of Social Citizenship for Communities and People Living with Memory Loss

Lee D. Burnside, MD, MBAAlison Phinney, PhD, RNGloria Puurveen, BA, BMT, MA, PhD

Learn about non-pharmacological interventions in various care settings and how they can improve communication and significantly lower the severity and frequency of behavioral and psychological symptoms in patients with dementia.

C3 More than Medications: Non-Pharmacological Treatment of Memory Loss

Kristoffer Rhoads, PhD

This session explores how to find balance within dynamically changing situations by focusing on five paradoxes. Come and learn: a boundary-setting model that encourages simultaneous respect for self and others; to balance hard professional skills with soft open-hearted skills; how providers give naturally and can also receive; when to yield and when to stand your ground; and how to value your measurable and unmeasurable contributions.

C4Finding Balance and Boundaries for the Professional

Jonathan Prescott

SESSION

C2:45 - 4:00 P.M.


Conference Speakers

Dr. Burnside has devoted his career to improving community support and palliative care for persons living with dementia and their families. He has a research interest in evaluating the intersection of arts and dementia, particularly in advanced dementia and at the end of life.

Marigrace Becker, MSWProgram Manager of Community Education & Impact UW Memory and Brain Wellness Center Study Coordinator, HABIT

Ms. Becker develops and facilitates education, support and engagement programs that promote living well with dementia. She produces resources like the MBWC’s patient and family handbook, Living with Memory Loss, and works closely with community partners to spearhead local initiatives that challenge stigma and build understanding. Ms. Becker is a member of the Momentia Seattle Stewardship Team, and leads the Dementia-Friendly Communities project team for the Dementia Action Collaborative.

Kathleen Bishop, PhDConsultant

Dr. Bishop has over 40 years of experience in the developmental disabilities field and over 20 as a Gerontologist with a specialty in aging with developmental disabilities. She has a Bachelors and Master’s Degree in Special Education and a PhD from Syracuse University in aging with disabilities. Dr. Bishop works as a consultant for many organizations in the aging and Intellectually and Developmental Disabilities (IDD) networks to assist with program and support planning. Her areas of expertise include environmental modifications and developmental disabilities, caregiving for adults with dementia and IDD and women with disabilities.

Lee D. Burnside, MD, MBAGeriatrician, UW Harborview Medical CenterMedical Director, Providence Hospice of Seattle

SPEAKERS


Ms. Maher has more than 20 years of professional experience working with diverse adult populations in a variety of settings. In addition to her work at the Alzheimer’s Association Washington State Chapter, Ms. Maher serves on a review committee for King County Adult Protective Services and on the King County Elder Abuse Council. She gives presentations locally, regionally and nationally to caregiver and professional groups on a wide variety of dementia-related topics.

Joanne Maher, MSW Director, Programs and ServicesAlzheimer’s AssociationWashington State Chapter

Lynne Korte, MPHProgram ManagerAging and Long Term Support AdministrationDepartment of Social and Health Services, State of WADAC Plan Coordinator

Bob LeRoyExecutive DirectorAlzheimer’s Association, Washington State ChapterDAC Subcommittee: Chair: Advocacy and Co-Chair: Long Term Services and SupportsMr. LeRoy joined the Alzheimer’s Association in 2008. He is a member of the Dementia Action Collaborative, chairing its Advocacy Subcommittee and co-chairing its Long-Term Services & Supports Subcommittee. His nonprofit career includes 14 years with the American Red Cross in a variety of staff and volunteer leadership positions. He has also served as board member or consultant on volunteer leadership, fund development, and strategic planning for a variety of community, health and human services, and environmental organizations.

Ms. Korte has been involved in the field of aging and dementia care for 30 years, as a dementia care family caregiver consultant, program manager for adult day services and specialized dementia residential care. For the past 25 years, she has worked for Washington State’s Aging and Long Term Support Administration in the planning and development of services for people with dementia and their family caregivers. She most recently coordinated the effort to develop and now implement the Washington State Plan to Address Alzheimer’s and Other Dementias.

SPEA

KERS

Thomas Grabowski, MDMedical Director and NeurologistUW Medicine Memory and Brain Wellness Center & UW Integrated Brain Imaging CenterADRC, Director P1/Project 3 LeaderProfessor, UW Departments of Radiology & Neurology

Dr. Grabowski is an expert on the diagnosis and treatment of conditions affecting memory, language and cognition. His clinical interests include Alzheimer’s disease, vascular dementia, frontotemporal dementia and other related neurodegenerative diseases causing cognitive impairment. His research interests include the organization of language and semantic memory in the brain, use of MRI for functional brain imaging and use of functional MRI to understand the systems organization of the brain and to detect early signs of degenerative disease.


Mr. Moss is the Assistant Secretary for the Aging and Long-Term Support Administration (ALTSA) a post to which he was appointed to in February 2013. As part of delivery of long-term services and supports, the Assistant Secretary has the responsibility for oversight of the Washington State Council on Aging (SCOA), the state’s Area Agencies on Aging and all publicly-funded long-term services and supports in Washington State.

Ms. Mayfield brings over two decades of experience in mental health and vast expertise working with clients and families affected by Alzheimer’s disease and other dementias. She is a Licensed Mental Health Counselor, Geriatric Mental Health Specialist, Certified Aging Life Care Professional and trained mediator who has worked for many years supporting families in conflict. Ms. Mayfield holds the distinction of being one of two Fellow Certified Care Managers in Washington State. She founded Aging Wisdom® in 2003.

Lisa Mayfield, MA, LMHC, GMHS, CMCPrincipal, Fellow Certified Care Manager

Bill MossAssistant Secretary, Aging and Long-Term Support Administration Washington State Department of Social & Health ServicesDementia Action Collaborative, DAC Chair of Alzheimer’s Disease Working Group

SPEAKERS

Wendy Nathan, BSc, CMCCare ManagerAging Wisdom

Ms. Nathan has two decades of experience in healthcare working in a variety of roles. She has worked with older adults providing home care services and as a licensed massage practitioner. This provided her the opportunity to see how people age, and what influences them to age well or poorly. She earned a certificate in gerontology and became a certified care manager. She relishes the opportunity to work with seniors. Ms. Nathan serves as a Younger-Onset Support Group Facilitator for the Alzheimer’s Association.

Michael Persenaire, MDNeurologistUW Medicine Memory & Brain Wellness CenterThe UW Medicine Multiple Sclerosis Center at Northwest Hospital

Dr. Persenaire is a board-certified neurologist with subspecialty training in neuro-immunology and cognitive/behavioral neurology. He is an acting clinical instructor in neurology at the University of Washington. He has been one of the neurologists at the Memory and Brain Wellness Center at Harborview Hospital since he moved to Seattle in 2017.


Dr. Purrveen recently completed a PhD in the Interdisciplinary Studies Graduate Program at UBC. Using qualitative methods, her doctoral research focused on the experiences of people with advanced dementia who are nearing the end of life and how care staff and family understood and responded to their social, emotional, spiritual and physical needs.

Jonathan Prescott is the founder of Wise Caregiving, a nonprofit dedicated to helping people become effective, sustainable and empathetic caregivers. Jonathan’s career as a hospice, cancer-care and hospital Chaplain, along with his spiritual practice as an ordained student of Zen Master Thich Nhat Hanh, gives him a unique perspective on how to thrive within the helping professions. His trainings help people learn the arts of listening, balance, boundaries and presence as a therapeutic tool.

Jonathan PrescottBoard Certified Chaplain, Clinical Chaplain and Pastoral CounselorWise Caregiving

Gloria Puurveen, BA, BMT, MA, PhDPostdoctoral Research Fellow at Centre for Applied EthicsSchool of NursingUniversity of British ColumbiaSP

EAKE

RS

Kristoffer Rhoads, PhDNeuropsychologist Associate Professor, UW Department of Neurology ADRC, Clinical CoreDAC Subcommittee Chair: Health-Medical Care

Dr. Rhoads specializes in the evaluation and treatment of dementia and neurodegenerative disorders, evaluating and treating people living with memory loss and dementia and considering the unique needs of each individual he sees. He serves on the Board of Directors for the Washington State Chapter of the Alzheimer’s Association, and as Chair of the Health and Medical Subcommittee for the Dementia Action Collaborative. He also served as the Chair of the Bree Collaborative Alzheimer’s Disease and Other Dementias Workgroup.

Alison Phinney, PhD, RNProfessor, Associate Director, Graduate ProgramsUniversity of British Columbia, School of Nursing

Dr. Phinney teaches in areas related to older adult health within nursing and from an interdisciplinary perspective, helping build confidence and capacity to provide skilled and compassionate care, and to think critically about how to promote healthy aging at the individual, community and population levels. Her work focuses on people living with cognitive impairment due to a dementing illness and taking a community-engaged, participatory approach to the study of creative and physical activity in the context of aging and dementia.


SPEAKERSJanet L. Smith, JDPartnerNorthwest Elder Law Group

Ms. Smith brings patience, caring and compassion to every case. Her goal is to help resolve family conflict and create the best quality of life for elders. She has practiced law as a litigator and served as an Industrial Appeals Judge. Among her various volunteer roles, Ms. Smith has served as a trained facilitator for a memory loss support group. She is a member of various legal groups in King County and Washington State.

Cheryl Townsend Winter, DDS, MSD, MBA PeriodontistDAC Subcommittee Chair: Public Awareness - Community Readiness

Dr. Townsend Winter holds a doctorate in dentistry, an MS in dentistry, a certificate in periodontics and an MBA. She is also a diplomat and fellow of the American Academy of Periodontology. Her book, The Aging Gracefully Pathway, reveals her discoveries about patterns leading to poor aging through her own research and personal experience. Dr. Townsend Winter serves on the Dementia Action Collaborative as Chair of the Public Awareness - Community Readiness Subcommittee.

Round-the-clock dementia information and support

24/7 HELPLINE800.272.3900


Professional

Support Group Facilitator for the Alzheimer’s Association

Family Caregiver – unpaid caregiver for loved one

Student with current student ID

REGISTRATION FEES AND DEADLINES:

Registration InformationUpdated conference details and online registration are available on our Discovery 2019 website at www.alzwa.org/conferences.

ONLINE

PHONE

PAPERREGISTRATIONFORM

REGISTER QUICKLY AND EASILY ONLINE AT ALZWA.ORG/CONFERENCES

206.363.5500 ext. 8170 or 1.800.848.7097 ext. 8170

Please call 206.363.5500 ext. 8170 or email [email protected] and one will be mailed to you

3 WAYS TO REGISTER:

$220 Early Bird Registration if registered by Wednesday, January 16, 2019$240 Standard Registration after Wednesday, January 16, 2019$25 Continuing Education Credits / Contact Hours - Professional & Support Group Facilitator for select organizations, please see CEU section.

$95 Early Bird Registration if registered by Wednesday, January 16, 2019$115 Standard Registration after Wednesday, January 16, 2019$25 Continuing Education Credits / Contact Hours - Professional & Support Group Facilitator for select organizations, please see CEU section.

$95 Early Bird Registration if registered by Wednesday, January 16, 2019$115 Standard Registration after Wednesday, January 16, 2019

$95 Early Bird Registration if registered by Wednesday, January 16, 2019$115 Standard Registration after Wednesday, January 16, 2019


Continuing Education Credit

Professional and Alzheimer’s Association Support Group Facilitator registrations are eligible for continuing education credits. Five (5) CE or CEU credits are available for the full day: 1.25 credits for the keynote and 1.25 credits for each of the three (3) workshops attended.

CE (Continuing Education) credits

DSHS Long Term Caregiver CEs

CEU (Continuing Education Units)*

There is no charge for CE credits.

CE credits are what the majority of attendees, including nursing professionals in Washington, need to meet educational requirements.

There is no charge for Long Term Caregiver CEs approved by Washington State DSHS.

5 hours, 1.25 hours per session.

We charge a fee of $25 for five or fewer CEUs.

CEUs require payment and a pre-approval process as they are granted by specific organizations* to meet the needs of their certified members.

* We secure authorization from the following organizations in order to grant continuing education credits/contact hours to their members:

1. Commission for Case Manager Certification

2. National Association of Social Workers, Washington Chapter

3. National Certification Council for Activity Professionals

4. Professional Guardian Certification Board of Washington State

5. Washington State Department of Social and Health Services Long Term Caregivers


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