paul shattuck - health care transitions research network (hct-rn) for youth and young adults with...
DESCRIPTION
This poster will describe findings from key informant interviews with stakeholders on the current gaps and needs of youth on the autism spectrum as they transition into adulthood.TRANSCRIPT
-
Health Care Transitions Research Network (HCT-RN) for Youth and
Young Adults with Autism Spectrum Disorder http://www.autismtransition.net/
Alice Kuo, MD, PhD, Paul Shattuck, PhD, Tara Crapnell, OTD, OTR/L, Kristy Anderson, MSW
What are the goals of the HCT-RN?
1. Develop a national research agenda designed to improve health care transitions and promote an optimal
transition to adulthood.
2. Improve the nations research capacity by guiding the networks implementation of research studies through both MCHB and external funding sources.
3. Create clear practice guidelines related to
transition and ASD and develop quality improvement methods to improve transition support.
4. Promote evidence-based practice and policy
making through the dissemination of information that can inform decision making.
5. Increase community and organizational capacity by identify replicable strategies for increasing the capacity
of communities and organizations.
What is the HCT-RN?
The HCT-RN is the first collaborative research network aimed to address the health, family, and social needs of individuals on the autism spectrum during the transition into adulthood.
The network is a forum for key stakeholders in the field to connect, collaborate, promote research, and develop innovative projects.
The network consists of researchers, service providers and
individuals with autism and their families.
What is the vision for the HCT-RN?
Contact Information
10990 Wilshire Boulevard, Suite 900, Los Angeles, CA 90024 Phone: (310) 312-9208
Email: [email protected]
What are the HCT-RNs guiding principles?
Why is the HCT-RN important?
Source: MCH Health Care Transitions Research Network (HCT-RN) for Autism Spectrum Disorders 2015 Network Design Meeting
Source: MCH Health Care Transitions Research Network (HCT-RN) for Autism Spectrum Disorders 2015 Network Design Meeting
How is the HCT-RN implemented?
How is the HCT-RN implemented?
The HCT-RN organized two large committees to achieve the five primary goals.
The Research Committee will develop a national research agenda, which will in turn inform an
agenda for Community Building and Capacity
Building that is consistent with the networks guiding principles.
The Practice Guidelines and Quality Improvement Committee aims to bridge the gap
between research and practice through rapid cycle
improvement methods a method to evaluate programs in communities over a short period of
time.
Ecological Individuals with ASD live in family, social and community contexts which all impact the
individuals life course trajectory and adult outcomes.
Life Course DevelopmentThe ability of individuals with ASD to reach their full potential in adulthood is influenced by
resilience and risk factors throughout life.
Social DeterminantsAdult outcomes for individuals with ASD are dependent on the social and economic
environments in addition to individuals characteristics.
Systems perspective To optimize adult outcomes for individuals with ASD, research should focus on optimizing
service delivery for the entire population of adults with ASD,
in addition to addressing individual challenges and
impairments.
What has the HCT-RN done so far?
Completed an analysis of existing transition literature and gaps in current research.
Interviewed key informants and stakeholders about research priorities and needs.
Hosted the 2015 Network Design Meeting to establish research priorities and next steps for the HCT-RN.
This project is supported by the Health Resources and Services Administration
(HRSA) of the U.S. Department of Health and Human Services (HHS) under grant
number, UA6MC27364, and title, Health Care Transitions Research Network for
Youth and Young Adults with Autism Spectrum Disorders