parkinsons western australia annual report 2010-2011
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Annual Report 2010-2011TRANSCRIPT
Parkinson’s Western Australia Annual Report 2010/2011
Parkinson’s
Western
Australia
Inc.
Annual Report
2010
2011
Parkinson’s Western Australia Annual Report 2010/2011
1,629
230 �
followers on
Social Networking
Sites.
59
5
number of
people who
have attended
our Seminars
in the past
year. current combined patient load for
our Parkinson’s Nurse Specialists.
18 support Groups
helping people
with Parkinson’s
and their families
across WA.
55
3
new
referrals to
the Nurse
Specialist
Service.
education
sessions
given by
our Nurse
Specialists.
15% increase in
donations to
Parkinson’s
Western Australia.
896 home visits made
by our Nurse
Specialist Service.
people took
part in our
inaugural
Unity Walk
2010. 65
0
2,361 Current active
members of
Parkinson’s
Western Australia.
3,000 delegates from around the
world networked with partners
at the Second World Parkinson’s
Congress, Glasgow 2010.
The year in numbers
64
5
4%
increase
in income
from grants
and
sponsorship
since 2009/10.
2,793 current active members
of Parkinson’s
Western Australia.
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Parkinson’s Western Australia Annual Report 2010/2011
Contents
Who we are
Our vision
Our mission
Our history
What we do
Board of management
Professional advisory panel
Parkinson’s Western Australia Staff
A word from our patron
President’s annual report
Parkinson’s nurse specialist report
The year in pictures
Support groups report
Research committee report
Seminar and education report
Sponsors and donors
Financial report
Educational resources
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Our Proud Major Sponsors
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Parkinson’s Western Australia Annual Report 2010/2011
Who we are
Our vision
A nation without Parkinson’s.
Our mission
To encourage, and where appropriate, develop and implement programs for the cure,
treatment and care of people with Parkinson's.
Our history
Incorporated in 1984, Parkinson’s Western Australia Inc. provides a Parkinson’s Nurse
Specialist Service; Support Networks for people with Parkinson’s and their family carers; and
educational resources and training. It is estimated that there are some 8,000 people living with
Parkinson’s in Western Australia.
What we do
Parkinson’s Western Australia provides a nurse specialist service covering the Western
Australian metropolitan area who make home visits and assist patients in the management of
the condition. This innovative free service is the first of its kind in Australia and is funded by
the Department of Health Western Australia.
The nurse specialist service also provides support
and education to allied health professionals, with
the aim of ensuring informed care.
Parkinson’s Western Australia provides regular
therapeutical activities for people with Parkinson’s
including singing, yoga and art therapy.
Parkinson’s Western Australia has 19 support groups
throughout Western Australia, all led by volunteers.
Parkinson’s Western Australia run several seminars
every year, tailored to suit people in all stages of
their journey with Parkinson’s, and we also hold
specific seminars just for carers.
Parkinson’s Western Australia provides a wide range
of Parkinson’s-specific educational resources.
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Parkinson’s Western Australia Annual Report 2010/2011
Board of Management
Back row: Ross Guyton; Geoff Pride (Treasurer); Peggy Habib; John McDonald
(President); Geoff Sansom (Secretary). Front Row: Roseanne Thomas; Peter Willmott;
Dr Natalie Gasson (Vice President) Absent: Steven Heath, Wendy Jacobsen
• Consultant Neurologist • Psychologist • Pharmaceutical Advisor
Professor Frank Mastaglia Dr Natalie Gasson Ms Oksana Burford
• Consultant Geriatrician • Optometrist • Dietician
Dr Barry Vieira Ms Liz Wason Ms Linley Boulden
• Speech Pathologist • Dentist • Clinical Nurse/Coordinator
Ms Caroline Silver Ms Marianne Pinto Ms Janice Guy
• Senior Physiotherapist and
Special Projects Coordinator
Ms Tracy Ticehurst
• Occupational Therapist
Vacant
• Consultant Neurosurgeon
Professor Chris Lind
Who we are 2
Professional Advisory Panel
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Parkinson’s Western Australia Annual Report 2010/2011
Who we are
Left to Right: Jenny Taylor (Parkinson's Nurse Specialist - East);
Janet McLeod (Parkinson's Nurse Specialist - North);
Jo Chadwick (Parkinson’s Nurse Specialist - South)
Left to Right: Brenda Matthews (Executive Officer); Lucy Reader (Client Services/
Community Engagement); Kathleen Yip (Fundraising & Marketing); Claudia Wells
(Finance & Administration); Angela Sideris (Office Manager); Kym Auret (Accountant)
Absent: Dawn Mathieson (PNS Secretarial Support)
Parkinson’s Western Australia Staff
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Parkinson’s Western Australia Annual Report 2010/2011
I am extremely proud to have once again been associated with the tremendous
commitment and achievement of all involved in Parkinson’s Western Australia. The
organisation operates through a positive and successful mix of staff and volunteers, all
with seemingly boundless energy to assist and support people with Parkinson’s, their
families and carers.
Volunteers offer their time and skills free of charge. The organisation can not operate without them, and I express my
personal thanks to each of them for keeping Parkinson’s Western Australia moving forward.
Parkinson’s Western Australia has welcomed a well-deserved and much needed funding increase. The State
Government has acknowledged the incredible work undertaken by all not-for-profit service providers such as
Parkinson’s Western Australia, and has granted an increase in funding. This increase will finally enable Parkinson’s
Western Australia to move towards a more equitable pay level for our hard-working staff.
This has been the first full year our three Parkinson’s Nurse Specialists have been funded by the Department of Health
Western Australia. The nurses’ services have been invaluable and I express my thanks to the State Government for
this commitment to the Parkinson’s community.
Demand cannot be met by our three existing specialist nurses, so Parkinson’s Western Australia will look to employ a
fourth nurse in the coming months. This additional nurse will help meet increased demand in the metropolitan area,
as well as support people with Parkinson’s and family carers in regional Western Australia.
Further acknowledgement of the great work of Parkinson’s Western Australia came this year through the recognition
of the Movement Disorders Parkinson’s Nurse Faculty by the Royal College of Nursing Australia. I am pleased and
proud that the dedication and work of our nurse specialists have been formally recognised in this manner.
I congratulate Parkinson’s Western Australia on being a major contributor to the development of Parkinson’s-specific
educational resources for the benefit of the Western Australia Parkinson’s community and Parkinson’s communities
throughout Australia.
Another positive step has been the expansion of therapy services to include singing and yoga, in addition to art.
I am proud to be involved with Parkinson’s Western Australia. It is a great pleasure to be involved in an organisation
where staff and volunteers work together with such commitment to their cause.
I look forward to continuing my relationship with you and wish each one of you the very best for the next financial
year.
Dr Janet Woollard MP
Patron Parkinson’s Western Australia
Dr Janet Woollard, MLA
A Word from our Patron 4
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Parkinson’s Western Australia Annual Report 2010/2011
President’s Annual Report
The nurse specialist service is one of Parkinson’s Western Australia’s principal activities. It
is a highly valued support resource for people with Parkinson’s, their families and carers,
and it is respected amongst all health professionals connected with the care of people
with Parkinson’s. The service we operate is regarded as the ideal model for community
based care and is the envy of our counterparts in other states.
2010-2011 was the first year the Department of Health Western Australia provided funds to support a third nurse.
Funding prior to this came from Parkinson’s Western Australia and although the level of funding in 2010-2011 still
did not meet the full cost of the service, this extra funding support, together with the generosity of our supporters,
certainly eased demands on our resources.
Importantly, the state government has recently recognised the important role non-government organisations
(NGO’s) such as ours play in the community, and with effect from 1 July 2011 have increased contract payments for
selected NGO’s by 15% with a further 10% to be added next year. This now means from 1 July 2011 the nursing
service is fully funded by the state government and their continued support is, I am sure, greatly appreciated by all.
As I have reported previously, our strategy has always been to have, as a minimum, four nurses serving the greater
metropolitan area. I foreshadowed last year the possibility that, in the absence of government funding, Parkinson’s
Western Australia may once more consider funding a fourth nurse for up to two years to again demonstrate this
obvious need to the government. The Board of Management is now actively considering this, although now with a
view to splitting the role between the metropolitan and rural areas, particularly those country areas not already
serviced by the neurological nurses.
Parkinson’s Western Australia has continued to facilitate a wide range of programs to enhance the wellbeing of
people with Parkinson’s. The yoga classes have continued, with teacher Barbara Bowra, as too have the Park Art
classes conducted by Jackie Lewis. Thanks to them both and to the Neurological Council of WA for their funding
support of Park Art. Two exhibitions were held in the Niche displaying the artistic talents of painters Yvonne Sinclair
and Andrew Trunkfield; and the patchwork quilting skills of Sonja Songhurst.
Singing classes were started early in 2011 enabled by a grant from the Marion Flack Trust. These have become very
popular and offer therapeutical benefits and enjoyment. The singing teacher, Jackie Ewers, is doing a marvellous job
developing the talents of the group.
A wide-ranging seminar program was again offered during the year. The Newly Diagnosed seminar was presented a
record three times and was widely promoted on radio and in the press. These seminars are very popular and many
thanks go to all the presenters. Two of the Parkinson’s nurses attended the World Parkinson’s Congress in Glasgow,
Scotland. This enabled them to keep abreast of new developments in treatment and care, and expand their
knowledge and understanding of the complexities of Parkinson’s.
The financial state of your organisation remains sound and a small operating surplus was achieved against a
budgeted deficit. Although our operating costs increased by about 11%, our income was up on last year by
approximately 40%. A surplus is budgeted for this current year, but this will change if we proceed with employment
of a fourth nurse.
Benefits from the appointment last year of a fundraising officer started to be seen during the year. Record
responses were achieved from the Mother’s Day raffle, and the annual Street Appeal. The inaugural
Parkinson’s Unity Walk raised a better than expected $65,000 and attracted over 600 walkers.
John McDonald President
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Parkinson’s Western Australia Annual Report 2010/2011
President’s Annual Report
A major refit of the Parkinson’s Western Australia office at the Niche was implemented thanks to support from
Lotterywest. This now offers an improved, albeit cosy, working environment.
A survey of members was mailed in February 2011 to obtain feedback on the work of Parkinson’s Western Australia
and to elicit thoughts on areas for improvement. A summary of these findings will be made available early 2012,
and will feature in future newsletters and on our website. These findings will be considered when doing our
strategic planning.
Volunteers play an important part in Parkinson’s Western Australia’s activities and two in particular were recognised
for their contributions. Dennis Ford, long-standing leader of the Albany Support Group, was made an Honorary Life
Member. Dennis played an important role in getting a neurological nurse based in Albany. Di Libby was selected as
Volunteer of the Year, recognising her important work with the Kingsley Support Group. Congratulations to them
both, and many thanks to all our volunteers for their valuable contributions during the year.
Support groups play an important role in improving the wellbeing of participants and the success of these groups is
very dependent on the enthusiasm and efforts of the group leaders. Peggy Habib, our Volunteer Support Group
Coordinator, expands on this in her Support Group Report on page 11. I must mention again the great work done
by Karen Rowland, leader of the Western Suburbs Support Group, last year’s Volunteer of the Year and who was
nominated Parkinson’s Western Australia’s Ambassador in January 2011. Karen regularly speaks, with great passion,
to a wide variety of audiences including university, medical and health professional students, service organisations,
and anyone else who will listen to her personal Parkinson’s journey.
Thank you again to both Lee Saunders for his continuing advice on fundraising strategies and to lawyer, Lee Rosetto
of Minter Ellison Lawyers, for their pro-bono support. Many thanks also to our Patron, Janet Woollard MLA, for her
continued input and support. Members of our Professional Advisory Panel, when called upon, give generously of
their time and expertise and this is greatly appreciated.
My thanks to my colleagues on the Board of Management for their valuable contributions during the year, and to
Peggy Habib, the Volunteer Support Group Coordinator and Vice President Dr Natalie Gasson who chairs the
Research Committee. Both have separate reports on pages 11 and 12 respectively. Thanks in particular to Stephen
Heath for his work on the constitution, Ross Guyton for his work on our strategic planning and Treasurer, Geoff
Pride for his work with the budget and accounting functions. A special word of thanks to Secretary Geoff Sansom
and long serving Board member Peter Willmott, both of whom are retiring.
The smooth operation of your association would not be possible without our dedicated, hard working staff who are
ably led by Executive Officer, Brenda Matthews. Their contribution is greatly appreciated by the Board and all who
come into contact with them. Again, the work done amongst people with Parkinson’s, their carers and health
professionals by the three nurse specialists: Janet McLeod; Jo Chadwick and Jenny Taylor deserves particular thanks.
The dedication, empathy and professionalism they display is valued by all.
Support has continued for the national body, Parkinson’s Australia. This peak body’s role is largely to lobby and
advocate at a national level on behalf of people affected with Parkinson’s, particularly to the Australian government.
It continues to financially support the successful online General Practitioner’s Guide to Parkinson’s Disease and has
recently commissioned a review and update of the 2006 Access Economics study on Parkinson’s. The budgeted cost
of this Canberra-based office is approximately $220,000 for 2011/2012. State member organisations contribute
about 50% of this cost proportionately, on a population basis.
John McDonald
President Parkinson’s Western Australia
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Parkinson’s Western Australia Annual Report 2010/2011
Parkinson’ s Nurse Specialist Report
Jenny Taylor R.N.
Janet McLeod R.N. Cert. Gerontology B.N. MNurs.
Jo Chadwick R.N. Dip PD
The Parkinson’s Nurse Specialist Service continues to provide
informed nursing support to people living with Parkinson’s
(those diagnosed with the condition, family members and
health professionals). For the year reported, the role was
funded by the Department of Health Western Australia. The catchment areas are defined geographically - Janet
McLeod is responsible for north of the river, Jo Chadwick for south of the river and Jenny Taylor for the eastern
suburbs.
The task of annual updating and reviewing of statistics continues and is now factored into our yearly calendar. This
has proved to be a beneficial exercise, which results in greater accuracy of numbers and provides a quantitative basis
for lobbying for additional funding.
The following is an overview of the activities of the nurse specialists during 2010-2011 over and above the routine
patient activity and education sessions quantified later in the report:
July 2010:
Jenny attended a national Parkinson’s nurses’ meeting hosted by Hospira in Sydney. Jenny conducted a two day visit to
Northam visiting patients and carrying out education for health professionals.
August 2010:
Janet and Jo attended the inaugural face- to-face meeting of Movement Disorder and Parkinson’s Nurses Faculty (MDPNF),
Royal College of Nursing, Canberra. The MDPNF was officially launched that evening in the presence of Governor General,
Quentin Bryce. Janet presented at a Post Graduate Physiotherapist Course at University of Western Australia and an
Australian Neuroscience Nurses Association meeting held at Sir Charles Gairdner Hospital. Jo presented to the Social Work
Department at Fremantle Hospital on PWA and the PNS role.
September 2010:
Janet and Jo attended the 2nd World Parkinson’s Congress in Glasgow, Scotland.
October 2010:
Jenny conducted a two day visit to Northam visiting patients and carrying out education for health professionals. Janet
conducted an education session for massage students at TAFE, Central. Janet and Jo presented Postcards from Glasgow to
a Perth nurses’ meeting funded by Novartis. Jo presented on Travel and Parkinson’s to the Young Onset Support Group.
November 2010:
Jenny and Jo attended a Novartis nurses’ meeting in Melbourne where Jo presented feedback from The World Congress
attended in Glasgow. Janet attended a workshop in Melbourne on Parkinson’s funded by Lundbeck Institute. Roger Barker
(United Kingdom) presented at several meetings in Perth, which were attended by all nurses. Janet presented at a
Parkinson’s seminar at Osborne Park Hospital.
December 2010:
Student placement continued. The six monthly report for the Department of Health Western Australia was
prepared. Edith Cowan University nursing students on placement.
January 2011:
As in previous years we dedicate the first two weeks to “housekeeping”- updating current patient status and
spring cleaning the office.
February 2011:
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Parkinson’s Western Australia Annual Report 2010/2011
Parkinson’s Nurse Specialist Report
Janet enrolled at Edith Cowan University – Post Graduate Certificate in Counselling Skills. This two semester part-time
course is funded and supported by PWA. Newly Diagnosed Seminar was facilitated by Janet. Jenny and Janet
addressed the Volunteer/Staff Training session. Jo attended the Bullcreek Support Group.
March 2011:
Jo presented to health professionals at Rockingham Hospital. Jenny observed Deep Brain Stimulation procedure at Sir
Charles Gairdner Hospital. Jo conducted a three day visit to Narrogin conducting education sessions for health
professionals and people with Parkinson’s, attending the support group there. Jo presented to Certificate III students at
Beaconsfield TAFE.
April 2011:
PNS on annual leave
May 2011:
University of Notre Dame nursing students on placement for three weeks. Jo presented to the Young Onset Support Group on
medication and diet. Jenny conducted a two day visit to Goomalling, Northam and York visiting patients and carrying out
education for health professionals. Jenny and Jo hosted first year medical students from University of Western Australia.
June 2011:
Jo spoke at the Booragoon Rotary Club on Parkinson’s Western Australia and the Parkinson’s Nurse Specialist role. Jenny
carried out a full day education session at Wanneroo Nursing home. Jo presented an education session at Royal Perth
Hospital, Neuroscience Nursing Course. Jo and Jenny presented at the Newly Diagnosed Seminar. Jo attended the Lundbeck
Institute, Parkinson’s Workshop for Health Professionals in Melbourne.
The above calendar outlines highlights of the year reported. It is vital to remember that these events are in addition to
the routine activities of our role. During this year we have continued to facilitate educational sessions at various aged
care facilities, hospitals and support groups.
Janet continues to be a member of the Research Committee (Parkinson's Western Australia Inc.) and attends ParkC
Scientific Steering Committee as a representative of Parkinson's Western Australia Inc.
All nurses continue to attend meetings at North Metropolitan Parkinson’s clinic, Osborne Park Hospital and South
Metropolitan Parkinson’s clinic, Moss Street, Fremantle – this adds to the linkages with our colleagues working in the
field of Parkinson’s. The ultimate benefit is to our patients as there is liaison between our community-based service
and the hospital-based teams.
The nurses continue to be members of the following associations:
ANNA – Australian Neuroscience Nurses Association
EPDA – European Parkinson's Disease Association
EPNN – European Parkinson’s Nurses Network
RCNA – Royal College of Nursing Australia
MDSA – Movement Disorder Society of Australia
MDPNF – Movement Disorders and Parkinson’s Nurses Faculty
CN3 – Community Neurological Nurses Network
Publications
Parkinson’s Information Sheets: - Incontinence and Parkinson’s. Glossary of Terms
Brochures:
Young Onset Parkinson’s, Parkinson’s and Communication, Parkinson’s Nurse Specialist Service: Information for Health
Professionals
The following statistics outline the activities of Parkinson's Nurse Specialist for 2010-2011:
Referrals: 553� Home visits: 896� Hospital visits: 23� Nursing home visits: 222� Office consultations: 10
Education sessions: 64� Current combined patient load: 1629
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Parkinson’s Western Australia Annual Report 2010/2011
The year in pictures 9
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Parkinson’s Western Australia Annual Report 2010/2011
The year in pictures 10
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Parkinson’s Western Australia Annual Report 2010/2011
Support Groups Report
In the last twelve months I have visited many of our support groups in person, which has
brought home how large an area Parkinson’s Western Australia covers. All our support
groups are led by a voluntary group leader; much time and effort is given by them to
ensure their group offers the social networking and emotional support needed for
members. I, on behalf of Parkinson’s Western Australia, wish to thank them for their
dedication and commitment to the role and to the members for their support.
The Annual Support Group Leaders luncheon in February went really well. This was an
opportunity for leaders to exchange ideas and to meet the nurses who updated us with
the latest information in Parkinson’s.
I travelled to Esperance in July to meet Marion Mitchell, who has set up a support group
there. I would like to express our thanks to Marion for taking on this role with real
enthusiasm. We wish the Esperance Support Group every success in the future.
After five and a half years Lorraine Flannegan has stepped down as leader of the
Bunbury Support Group. We would like to thank Lorraine for her dedication and wish her
every success in the future. Betty McCleary has taken over from Lorraine and is enjoying
leading the group.
Thanks also to Vivienne Baldwin for her leadership of the Rockingham Support Group
over many years. This group has now disbanded, but we are hoping to get it running
again in the near future.
Laurie Vicary has agreed to lead the Bullcreek Support Group, and meetings have been
well attended. I wish Laurie every success with the group.
We thoroughly appreciate the efforts of support groups in fundraising initiatives this
year. Key events to note include a fashion parade organised by Morley Support Group,
Lyn Navendorn, who donated money in lieu of 60th birthday presents, and the annual
street appeal.
The Carers Short Breaks have been well attended and we continue to receive positive
feedback from attendees.
Thanks to Brenda and the administration staff who are always very helpful and ready to
listen. I look forward to the next twelve months and to meeting more members.
Peggy Habib
Volunteer Support Group Coordinator
Support Groups
Albany
Armadale
Bridgetown
Bullcreek/Leeming
Bunbury
Collie
Esperance
Fremantle/Melville
Geraldton
Glen Forrest/
Mundaring
Kingsley
Lesmurdie/
Kalamunda
Mandurah
Morley
Narrogin
Northam
Western Suburbs
Young Onset
Peggy Habib Volunteer Support Group Coordinator
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Parkinson’s Western Australia Annual Report 2010/2011
This year has proved to be somewhat difficult for the research committee; we have lost
another member of the team. I would like to thank Gaye Hargreaves for her
contributions to the group. We are sad to see her go but understand that work must
take priority. We would like to ask once again for anyone who is interested in research
to come and join our group. We meet informally four times per year. The bulk of the
‘work’ we ask you to do is reading applications for assistance (either for recruiting
participants for studies, or for funding). You do not need any special skills – only an interest in research relating to
Parkinson’s.
We have also recruited a new academic to the research committee, however, as she has not formally accepted our
invitation yet, I will not reveal her name!
The Speech Pathology & Swallowing edition of our manuals in Best Practice has progressed this year. The group has
met a few times to look at the direction they will take with the manual. We will not be rushing however, as the
speech pathologists involved are donating their time for free and we are grateful for that. As a reminder, this
manual will add to our two previous Best Practice manuals (Nursing and Physiotherapy).
Ongoing projects we have continued to support during 2011 include:
• A randomised control trial of cognitive behavioural therapy for the treatment of anxiety and depression in
Parkinson’s (Treuong, Gasson & Egan; Curtin University). This trial commenced in the middle of 2010 and will be
continuing into 2012.
• Cognitive and motor homogeneity in idiopathic Parkinson’s (Meghan Thomas and the ParkC team; Edith Cowan
University, Vario Health Institute).
New projects we are supporting in 2011 and beyond include:
• The impact of sleep fragmentation and hypoxia on executive function, memory, and health-related quality of life
in Parkinson’s (Loftus, Bucks, Kroczek, and Thomas; University of WA & ParkC).
• Understanding the emotions of others: A study of emotion perception in Parkinson’s (Marneweck, Hammond, &
Loftus; University of WA).
• Expiratory muscle strength training in moderate to severe Parkinson’s: effects on swallow, cough, voice, and
speech function (Ng, Langdon, Cartwright, & Hennessey; SCGH & Curtin University).
I would like to take the opportunity to thank Parkinson’s Western Australia members who take the time to
participate in the research projects we advertise and fund. Each project that takes place advances knowledge in the
area of Parkinson’s. While not every project has direct benefits to the people who participate, I think participating
has the great advantage of encouraging researchers to look at Parkinson’s-related issues and in a general sense,
raises awareness of Parkinson’s in the community. If we can help researchers then we are ultimately helping
ourselves!
Dr Natalie Gasson
Vice President/Chair of Research Committee
Dr Natalie Gasson Vice President, Chair of Research Committee
Research Committee Report 12
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Parkinson’s Western Australia Annual Report 2010/2011
Newly Diagnosed
(2 September 2010)
Janet McLeod - Parkinson’s Nurse Specialist spoke
on Parkinson’s treatment options and coming to
terms with the diagnosis of Parkinson’s. This
Seminar was aimed at people diagnosed with
Parkinson’s within the past five years, as well as
their family and friends.
Cognitive Issues and Stress
(16 October 2010)
Dr Carmela Pestell, Clinical Psychologist and
Clinical Neuropsychologist discussed cognition
changes that may occur in Parkinson’s.
Postcards from Scotland - Report from
the World Parkinson’s Congress
(6 November 2010)
Janet McLeod - Parkinson’s Nurse Specialist
presented information from the Second World
Parkinson’s Congress, which she and Jo Chadwick
attended in September 2010.
Newly Diagnosed
(21 February 2011)
Parkinson’s Western Australia run several ‘Newly
Diagnosed’ Seminars throughout the year to meet
popular demand.
Mobility and Parkinson’s
(16 April 2011)
Tanya Larsen, Physiotherapist, spoke about
mobility issues in Parkinson’s. Jackie Ewers, leader
of our singing therapy class, gave a short
presentation on the benefits of singing therapy for
people with Parkinson’s, and an update on the
progress of the Parkinson’s Western Australia
Singing with Parkinson’s group.
Carer’s Workshop
(26 May 2011)
Jane McKinley from Carers WA spoke about the
services offered by Carers WA, and how they can
help carers of people with Parkinson’s. Janet
McLeod spoke on relationships, communication,
body image, apathy and amotivation. Volunteers
gave head, shoulder and hand massages to carers.
Newly Diagnosed
(23 June 2011)
Seminar DVDs
Parkinson’s Western Australia is committed to
filming all seminars throughout the year (only one
Newly Diagnosed seminar is filmed). These seminar
DVDs are distributed to our support groups and are
made available in our library for people to borrow.
A huge thank you to the Rotary Club of Booragoon
who fund the production of these DVDs.
Seminar and Education Report 13
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Parkinson’s Western Australia Annual Report 2010/2011
Sponsors and Donors
The provision of quality care to people with Parkinson’s and support for their family carers is provided because
of the generous support of individuals, businesses and community groups. A special thank you to all our donors
for their care and support throughout the year.
The following community groups, individuals and businesses have contributed by sponsoring the
production of a range of services offered by Parkinson’s Western Australia:
The following community groups and businesses have made generous donations to support the work
of the Association:
Thank you to all the Parkinson’s Support Groups and their leaders who have assisted tirelessly in raising funds for the
Association.
Grants to support specific projects were received from
Department of Health WA - Parkinson’s Nurse Specialist Service
Carers WA - Carers Short Break
Neurological Council of WA - Park Art
Lotterywest - Office Refit
Adinfern Wines Curtin FM Karri Springs Water Rotary Club of Matilda Bay
Aleph Moving Images Dorsogna Lee Saunders Sail and Anchor Fremantle
Andrew Trunkfield Dr Janet Woollard MLA Medtronic Snap Printing Subiaco
Atrium Hotel Mandurah Dynamic Condition Midleaf Pty Ltd South of Perth Yacht Club
Barbara Bowra Esplanade Hotel Fremantle Minter Ellison Lawyers St. John’s Ambulance
Boehringer Ingelheim Farm Weekly Moss Street Parkinson’s Clinic ICCWA Stay on your Feet
Brian Hunt Federal Department Health and Ageing Nicole Davis - Fizzy Red Supa IGA Wembley
Café 2 U Flying Edits - Jan Knight Notre Dame University System Pty Ltd
Cappuccino Xpress Fronteir Group Novartis Pharmaceuticals Tanya Larson
Carers WA Have a Go News Osborne Park Hospital - PD clinic Town of Cambridge
Coles Supermarket Subiaco IGA Broadway Nedlands ParkC Centre Trident Insurance Group
Community Newspaper Group Independent Living Centre Pinelli Wines
Country Women’s Association Jackie Ewers Post Newspapers
Crowne Plaza Hotel Adelaide Jackie Lewis Quality Resort Sorrento Beach
Albany Support Group KD Johns Swick Resources
All things Special Gift Shop Kingsley Support Group The Galvin Family Foundation
Blue Sky Health Care Morley Support Group The Marian & EH Flack Trust
Buckley Caring Centre Peach Trust Fund The McCusker Foundation
City of Joondalup - Workplace Giving Pickering Brook Ladies Bowls The Stan Perron Charitable Foundation
Compressed Air Repairs & Equipment Postie Fashions Pty Ltd United Way West - Workplace Giving
Department of the Premier & Cabinet - Staff Pub Jive & Rock ‘n’ Roll Wasarians Inc.
Dianella Rangers Square Dance Club Pumphrey’s CWA Wesfarmers
Fremantle Support Group Qantas Help Fund Westnet Pty Ltd
Geraldton Support Group Rotary Club of Booragoon Westpac Group - Matching Gifts
Inner Wheel Club of Gosnells S & M Henderson WJ & MS Hughes Foundation
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Parkinson’s Western Australia Annual Report 2010/2011
Financial Report
Parkinson’s Western Australia Inc.
Statement by Members of the Committee
The Committee has determined that the Association is not a reporting entity and that this special
purpose financial report should be prepared in accordance with the accounting policies outlined in Note
1 to the financial statements.
In the opinion of the Committee the financial report:
1. Presents fairly the financial position of Parkinson’s Western Australia Inc. as at 30 June 2011 and its
performance for the year ended on that date.
2. At the date of this statement, there are reasonable grounds to believe that Parkinson’s Western
Australia Inc. will be able to pay its debts as and when they fall due.
This statement is made in accordance with a resolution of the Committee and is signed for and on behalf
of the Committee by:
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Parkinson’s Western Australia Annual Report 2010/2011
Financial Report
Parkinson’s Western Australia Inc.
Statement of Financial Performance for the year ended 30 June 2011
Income Notes 2011 ($) Restated 2010 ($)
Books, videos and other merchandise 14,530 17,606
Donations and bequests 172,534 149,775
Educational and rural sessions 2,817 2,738
Fundraising and events 136,067 67,040
Grants and sponsorships 408,897 264,937
Interest 53,053 44,859
Membership income 26,502 27,099
Newsletter advertising - 300
Research donations - 4,280
Seminars 3,097 3,597
Total income 817,497 582,231
Expenditure
Parkinson’s Australia Secretariat 12,520 15,608
Accounting, auditing and bank charges 19,364 11,721
Awareness 160 253
Conferences 4,073 3,055
Depreciation 7,157 6,730
Employee entitlements 2 and 7 181,689 180,571
Fundraising expenses 38,049 21,042
Fundraising Officer 61,776 21,097
Insurance 2,870 2,971
Library resources 514 469
Membership levies 964 492
Merchandise for sale 15,303 17,844
Closing inventory - decrease 997 11,923
Newsletter 2,329 942
Nurse program 2 and 7 388,758 368,940
Advertising and promotion 10,053 13,720
Office expenses 5,644 801
Photocopying 4,718 2,641
Marketing consultants 219 -
Postage 11,023 9,753
Rent and parking 14,066 13,127
Research - 7,000
Seminars 6,274 17,972
Speakers and support groups 4,178 4,856
Staff recruitment 195 503
Stationery 10,283 8,393
Superannuation 15,903 14,137
Telephone, teleconference and website 1,462 5,475
Volunteer expenses 2,515 1,397
Workers’ compensation insurance 3,210 3,034
Total expenditure 2 and 7 826,266 766,467
Net profit/(loss) before abnormal item (8,769) (184,236)
Opening retained profits 1,008,555 1,192,791
Closing retained profits 2 and 7 999,786 1,008,555
The above statement of financial performance should be read in conjunction with the accompanying notes
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20
Parkinson’s Western Australia Annual Report 2010/2011
Financial Report
Parkinson’s Western Australia Inc.
Statement of Financial Position as at 30 June 2011
Current Assets Notes 2011 ($) Restated 2010 ($)
Cash assets 2 1,036,340 1,092,746
Inventories 4 14,343 15,340
Prepayments 11,589 8,434
Total current assets 1,062,272 1,116,520
Non-current assets
Property, plant and equipment 5 51,747 22,234
Total non-current assets 51,747 22,234
Total assets 1,114,019 1,138,754
Current liabilities
Payables 6 26,088 52,061
Provisions 2 and 7 88,145 78,138
Total current liabilities 114,233 130,199
Total liabilities 114,233 130,199
Net assets 999,786 1,008,555
Equity
Retained profits 2, 7 and 8 999,786 1,008,555
Total equity 999,786 1,008,555
The above statement of financial performance should be read in conjunction with the accompanying notes
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21
Parkinson’s Western Australia Annual Report 2010/2011
1,629
The year in numbers
190 �
followers on
Social Networking
Sites.
59
5
54
%
increase
in income
from grants
and
sponsorship
since 2009/10.
Number of
people who
have attended
our Seminars
in the past
year. Current combined patient load for
our Parkinson’s Nurse Specialists.
18 Support Groups
helping people
with Parkinson’s
and their families
across WA.
55
3
New
referrals to
the Nurse
Specialist
Service. 6
4 Education
sessions
given by
our Nurse
Specialists.
15% increase in
donations to
Parkinson’s
Western Australia.
896 Home visits made
by our Nurse
Specialist Service.
3,000 delegates from around the
world networked with partners
at the Second World Parkinson’s
Congress.
People took
part in our
inaugural
Unity Walk
2010. 65
0
2,361 Current active
members of
Parkinson’s
Western Australia.
18 18
“I discovered a passion for Art that I
didn’t know I had, and this gave me
great joy” John Yukich, Park Art attendee.
22
Parkinson’s Western Australia Annual Report 2010/2011
Educational Resources Educational Resources
Resource Description
DL Brochures
Parkinson’s Disease and Driving
(December 2008)
Outlines driving regulations for people with
Parkinson’s.
Parkinson’s Disease and Hospitalisation Guidelines
(January 2010)
Outlines planning and preparing for a hospital
visit for people with Parkinson’s.
Medications Used in the Treatment of
Parkinson’s Disease
(June 2010)
Outlines medications used in the treatment of
Parkinson’s.
Parkinson’s: The Condition and Services
(July 2010)
Explains what Parkinson’s is and what Parkinson’s
Western Australia does.
Young Onset Parkinson’s Disease
(January 2011)
A guide for people diagnosed with Parkinson’s
between the ages of 21-40.
Parkinson’s Nurse Specialist Service
(February 2011)
Explains the Nurse Specialist service and how it
works.
What is a Support Group?
(March 2011)
Explains the dynamic of our support groups and
outlines how to join.
Parkinson’s Disease and Communication
(May 2011)
Explains the affects of Parkinson’s on communication
and provides treatment options.
Parkinson’s Nurse Specialist Service:
Information for Health Professionals
(May 2011)
Outlines the Nurse Specialist service for health
professionals.
C5 Booklets
The Carer: Living with Parkinson’s
(June 2009)
Information for carers and family of people living
with Parkinson’s.
Medications to be used with caution for
People with Parkinson’s Disease
(July 2011)
Outlines drug interactions and medications that
can worsen the symptoms of Parkinson’s.
Medications to be given with caution to people
with Parkinson’s Disease
(July 2011)
For health professionals
The following lists educational resources produced
by Parkinson’s Western Australia
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23
Parkinson’s Western Australia Annual Report 2010/2011
Educational Resources
Resource Description
Manuals
Eat Well, Stay Well with Parkinson’s Disease
(2005)
A nutrition handbook for people with Parkinson’s.
Guidelines for Nursing Practice in Caring for People with
Parkinson’s Disease (2007)
A rapid reference for nurses caring for people with
Parkinson’s.
Guidelines for Physiotherapy Practice in Caring for
People with Parkinson’s Disease (2007)
A rapid reference for physiotherapists treating
people with Parkinson’s.
Parkinson’s Disease: A General Practice Approach
(2008)
A diagnostic and treatment resource for general
practitioners.
Parkinson’s Services, Strategies and Strengths
(June 2009)
A Practical guide for young people with Parkinson’s.
The following lists educational resources produced
by Parkinson’s Western Australia
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24
Parkinson’s Western Australia Annual Report 2010/2011
Parkinson’s Western Australia
Centre for Neurological Support
The Niche, Suite B
11 Aberdare Road, Nedlands
WA 6009
www.parkinsonswa.org.au
www.facebook.com/ParkinsonsWA
www.twitter.com/ParkinsonsWA
www.youtube.com/ParkinsonsWA