national ms society...2015 focused strategies building powerful lifetime relationships with...

NATIONAL MS SOCIETYKENTUCKY-SOUTHEAST INDIANA CHAPTER

2015 ANNUAL REPORTMOVING TOWARD A WORLD FREE OF MS

2015 FOCUSED STRATEGIES

Expand the Impact of the MS Movement by Fully Engaging Volunteers:

Sherry Anderson once said “Volunteers don’t get paid, not because they’re worthless, but because

they’re priceless.” Success is only possible because of our amazing volunteers.

Here at the National MS Society, Kentucky-Southeast Indiana Chapter, we are expanding the idea of

Skilled-Based Volunteering. Using personal talents or professional competences is a way for volun-

teers to give back to the community while developing new talents or leadership skills. It’s a strategic

type of volunteerism that exponentially expands our impact by incorporating a wide range of skills

that strengthen us internally.

The strategic goal of “expanding the MS movement by fully engaging volunteers” is implemented by

connecting the volunteer with the right skills to the right project at the right time. It means inceasing

our volunteer interest with ongoing and potential projects.

Tina McClellan Greg Fischer (Mayor of Louisville), and Lexi McClellan

Walter Smith, Joanna Smith, Mary Carabella, and Dawne Gee.

2 | JOIN THE MOVEMENT: nationalMSsociety.org/kyw


Building Powerful Lifetime Relationships With Constituents by Knowing, Learning, and Predicting the Very Best Ways to Fully Engage Each Person in the MS Movement:

Ramsey Carpenter, Nicole Everman MD, Stacy FunkDiana Quesada, and Nancy Heckler.

Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, inter-

rupts the flow of information within the brain, and between the brain and body. MS affects more

than 2.3 million people worldwide.

The Society mobilizes people and resources to drive research for a cure and to address the chal-

lenges of everyone affected by MS. Since its inception, the Society has invested $870 million in

MS research and has recruited more than 800 new researchers to the field. Each year, through its

comprehensive nationwide network of programs and services, the Society also helps more than one

million people affected by MS connect to the people, information and resources needed to move

their lives forward.

Jennifer and Dan Digmann (authors of Despite MS, to Spite MS).

KENTUCKY-SOUTHEAST INDIANA CHAPTER | 3


FINANCIAL ASSISTANCE

In many cases we can provide financial support for those with MS. We assist with such items and services as home and car modifications, mobility equipment, transportation, and more. In Fiscal

Year 2015, we were able to assist 89 clients with over $30,438 in Financial Assistance and leveraged over $7,000 to provide three college

scholarships.

We encourage our clients to take advantage of our Wellness Incentive Program, with benefits

of exercise and recreation as a vital part of controlling their health. This program benefited

15 clients totaling $3,320.

WE SUPPORT THE MS NAVIGATOR PROGRAMMS Navigators have the resources to provide you with the latest information about MS including:• Newly diagnosed information• Treatment and symptom management

strategies• Accessing optimal health care• Meeting workplace challenges

• Financial challenges and planning for the future

• Facing caregiver challenges• Finding help in the home• Managing life changes

We are here to help you navigate the challenges of MS with a personalized response to your unique needs. Call 1-800-344-4867 for personalized service, up-to-date information, and practical resources and referrals.

Did You Know?A blood based MS diagnostic test is in development by researchers funded through Fast Forward, the Society’s commercial research mechanism. Test results showed an 84% accuracy rate in identifying people who had, or would develop, relapsing-remitting MS.

Did You Know? A new study on smoking provides evidence that MS progresses faster in those who continue to smoke, compared with those who quit after diagnosis. Past studies supported by the Society found that smoking is related to disease progression, and MS disability progresses more quickly in smokers.

Big Shot Cyclist Dean Brooks and Chapter President Stacy Funk.

Greg Foresman, DiAnne and Bob Montgomery and Aaron Montgomery at Jam For A Cure 2015.

Lead Global Collaborative MS Research:

Connect People Affected by MS to Information, Resources, and Others to Ensure They Have What They Need to Live Their Best Lives:

2015 FOCUSED STRATEGIES CONTINUED


Bob Montgomery, 2015 Sylvie Award WinnerBob joined the Board of Trustees in 2010 after becoming acquainted with the Society through his son’s fundraiser, “Jam for a Cure”. Beginning in 2013, Bob began serving as Treasurer for the Board of Trustees, as he is a CPA with Dean Dorton Allen Ford, it was a natural progression. Bob has been married for 49 years to his wife, DiAnne, whom he met on a blind date when he was 15 years old. They have two sons, Chris (Angela and son Luke) and Aaron (Brandy).

Brad Kruer, 2015 Junior Sylvie Award Winner Brad has volunteered with the Society since he was a child. He’s been involved behind the scenes for many years and held several leadership positions including Walk MS Louisville Chair and most recently was key-note speaker at the Crystal Boots & Silver Spurs event. Brad is also an avid cyclist and has ridden in Bike MS for 13 years. Brad is a graduate of Our Lady of Providence High School in Southern Indiana and the University of Evansville. He’s been married to his wife Kim for 16 years and together they have three boys, Landon, Lincoln and Luke.

MARTHA MONTGOMERY AWARD WINNERS:

•Bowling Green: Lilly Wheet •Middlesboro: Blake Bowling •Paducah: Alicia Ray •Somerset: Bettie Woolridge •Columbia: Lynda McKinley •Lexington: Karen Hastings •Louisville: Tammy Bishop•Southern Indiana: Beth Badger

•Michael Griffin •Melissa Wilson•Kenny White •Robin Todd•Pamela Raglin •Joanna Smith•Josh LaRoche •Alesia LaRoche•LYPA •Anita Miller•Dana Lykins

OUTSTANDING VOLUNTEER AWARDS:

2015 AWARD WINNERS


LEXINGTONGoing the Extra ‘Myelin’

AIN NeuroBlockersHoops for Hope

The B TeamKory’s Team

LOUISVILLECathie's Crue

MAC CONSTRUCTIONThe Trailblazers

Roo’s Crewwalkn4acure

PADUCAHShake It Off

Belinda’s BunchShake Your DUF6

MS Pit CrewKim’s Kapables

BOWLING GREENLandshark Shredding

Walking for HopeTeam Amanda Defevers

The Three MS-Keteers & FriendsTeam Nellie Shobe

CENTRAL KENTUCKYHunting for a Cure

Fort Knox FCU#Michelle’s Support

Walking for BevFord’s Fighters

WALK MSCONGRATULATIONS TO THE TOP WALK MS

TEAMS OF 2015!

COLUMBIAMS Dreamwalkers

Walk WrightGrann’s FansMS Warriors

The Cure Crew

PULASKI COUNTYTeam Monica Jones

Keep S’myelinKentucky Alpha Delta Kappa

Family FootprintsTeam John

BELL COUNTYMyelin Warriors

Team CourageousTeam Jamie

Wal-Mart #739

Walk MS Paducah 2015

Walk MS Lexington 2015

Walk MS Bowling Green 2015

HIGHLIGHTS FROM THE YEAR


Team DOT Louisville ($20,383.35) JudeMar Juggernaut ($19,490.00) YUM! Brands ($9,482.00) Slow and Steady ($9,288.00) Chino Hills ReCyclers ($8,706.00)

BIKE MS 2015: BLUGRASS, BIKES, BOURBON & BBQ

TOP FUNDRAISING TEAMS: BIG SHOTS:

Jeff Hamilton ($10,010.00)Phillip Patterson ($10,010.00)Dean Brooks ($7,762.00)Andrew Miller ($7,710.00)Byron Bell ($5,005.00)

At Bike MS: Bluegrass, Bikes, Bourbon & BBQ, cyclists wound through the rolling hills of Kentucky and Southern Indiana, experiencing historic landmarks, the banks of the Ohio River and the beauty of our Olmsted Park System. With our new staggered start this year, many cyclists finished around the same time- even if you did the Century or the 25 mile route, making Saturday evening a celebration everyone enjoyed.

Save the date for next year’s Bike MS event-Saturday and Sunday June 25 and 26, 2016 at the Louisville Water Tower Park. Registration is OPEN now! Go to www.bikemsky.org.

This event could not happen without the extraordinary vision and help from some of our very special friends. We want to say thank you to Dub Newell (Bike MS Chair), John McCafferty (Graphic Designer), Upper Crust Catering, SmokeHawgs BBQ, Clarksville Schwinn, Glenn Todd (SAG Support Lead), Drew Fos-ter (HAM Operator Lead), and the illustrious Andy Murphy with the Louisville Bicycle Club. These leaders made Bike MS safe, fun, and successful.

We want to extend a very big thank you to our Lead Volunteers who worked unbelievably long and hot hours all weekend; Andrew Bankston PhD, Clay Mathis, Josh and Alesia LaRoche, Michael Griffin and Eric Kemple. Also to all the volunteers who worked rest stops, drove SAG vehicles, ran errands, and so much more, we thank you.

THANK YOU!

Mary Anne and Richard Heckler


Paul Plevyak

Brad and Norman Kruer


WOMEN ON THE MOVE LUNCHEON

Mayor Greg Fischer and WAVE 3 Anchor Dawn Gee.

Ramsey Carpenter, Miss Kentucky 2014 and NAWBO Executive Director Stephanie Gedde.

Asia Ford - Marathon Runner, Dub Newell - Board Member and Zoe Koplowitz - Keynote Speaker and

Marathon Runner.

The Woman of Courage Award is presented to one woman each year who demonstrates dignity, grace, strength, compassion and creativity. The 2015 Award was presented in March to WAVE 3 Anchor, Dawne Gee. Dawne donates her time and resources to the National MS Society because her sister Pam was diagnosed with MS in 1994. She also donates her time to many other charities and most recently wrote a cook book, “A Recipe to End Hunger.” Dawne works tirelessly for the National MS Society and the Louisville community at-large. She is A Woman of Courage.



The sixth annual Crystal Boots and Silver Spurs raised over $360,000, making

it our biggest year ever. The event was a great opportunity to mingle, enjoy

specialty cocktails, and food stations, all while supporting the National MS

Society. A heartfelt thank you to the Unruh family for another successful

event.

CRYSTAL BOOTS & SILVER SPURS

Standing: David and Joyce Hatfield and Janet and Jerry Solomon. Seated: Bill and Juanita Beach and Wilma and

David Evanczik.

Brad and Kim Kruer

Maria Unruh Wheatley and Jeannie Unruh.

Erin Haynes Reed, Angie Morrison and Denise and Kenny Jewell.




MOVING MOUNTAINS FOR MS FAMILY WEEKEND RETREAT 2015

Over 160 people, including nearly 80 children, enjoyed a great weekend participating in educational workshops, team building programs, dinners and fellowship. The kids had a blast creating art projects, learning, per-forming music, and discovering how MS affects their family,

Thank you to Dr. Stephen Kirzinger, Family Retreat Committee Chair, and to ALL our incredible volunteers- Olga Johns, Mary Virginia Brooks, Elke Fisher, Darcy Taggert, Julie McDearman, Emma Jackson, Chandra Black, Michelle Lewis, Vicki Harris, Julie Naville, Becky Young, Jenifer Patterson, Dody Carlisle, Tami Combs, Kelsee Lee, Nancy Heckler, John Sheller, Deb-bie Nelson, and Dan and Jennifer Digmann.

Chapter president Stacy Funk Kentucky-Southeast Indiana Chapter

OffiCers Board Chairman, Diana Quesada Fifth Third Bank

Vice Chairman & Governance Chair John Scheller Stoll Keenon Ogden, PLLC

Treasurer, Bob Montgomery Dean Dorton Allen Ford PLLC

Secretary, Emily Witt Trilogy Health Services

Audit Chair, Keith Johnson Robbins Enterprise

Governance Chair, Pete Kalmey Kindred Healthcare

Regional Volunteer Leadership Council, Chair, Jeff Hamilton Reed Weitkamp Schell & Vice PLLC

MeMbers Michelle M. (Husted) Baugh USI

Ramsey Carpenter The Providence School, Jessamine County Brett Corbin Raymond James and Associates

Todd DeYoung Humana

Tami Hatfield-Kennedy Ford Motor Company

Kenny Jewell Heritage Electric

Stephen Kirzinger, M.D. Quintiles Clinical Research Organization

Karen Krinock Brown-Forman

Debbie Nelson Baptist Health Louisville

Walter “Dub” Newell FirstLight HomeCare

Nick Papachristou Hilliard Lyons

Dan Rattner Rattner Bloodstock

Sam Rock Rock Law Group PLC

Rick Sexton New Life Industries

Tracy Shelby Harper Industries Inc.

James W. Shircliff Raymond James & Associates

Dr. Cary Twyman KentuckyOne Health

Mary Van de Kamp Rehab Care/Kindred Healthcare

Jason Waters ARGI Financial Group

Julie Garrison Baptist Health Louisville

National MS Society Kentucky-Southeast Indiana

Chapter 1201 Story Avenue, Suite 200

Louisville, KY 40206

Telephone: 502-451-0014 Fax: 502-581-1010

CONTACT US CHAPTER STAFF

Stacy Funk Jinny Cornett Chapter President Programs & Services Manager

Shelby Jett Maci Baurle Operations Manager Development Coordinator

Mary Carabella Cathy Kemple Director of Development Office Manager

2014-2015 BOARD OF TRUSTEES


FINANCIAL REPORT

NATIONAL MULTIPLE SCLEROSIS SOCIETY KENTUCKY-SOUTHEAST INDIANA CHAPTER

FOR YEAR-END SEPTEMBER 30, 2015

Support and RevenueSpecial Events, net $843,237Contributions $389,092Legacies $34,532Investment Income, net ($10,367)Miscellaneous Income $97Total Revenue $1,256,591

ExpensesResearch $421,607Client Programs $175,216Professional Education & Training $45,777Public Education $161,572Community Programs $76,022Total Program Services $880,194

Management & General $143,754Fundraising $299,520Total Expenses $1,323,468

Change in Net Assets ($66,877)

Net Assets, Beginning of the Year $560,074

Net Assets, End of the Year $493,197

The National Multiple Sclerosis Society, Kentucky-Southeast Indiana Chapter is one of a 50-state network of chapters of the National Multiple Sclerosis Society. The financial statements of the National Multiple Sclerosis Society, Kentucky-Southeast Indiana Chapter present only a portion of the National Multiple Sclerosis Society’s operations, and they include material intercompany income, expenses, assets and liabilities. Accordingly, the financials do not individually present a complete picture of the National Multiple Sclerosis Society’s financial transactions as a whole.

RESEARCHThe Chapter is proud to announce that thanks to the generosity of our supporters and dedicated staff we supported over $421,000 to the Home Office of the National MS Society to fund MS Research.

About Multiple Sclerosis Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Every hour in the United States, someone is newly diagnosed with the disease. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 400,000 people in the U.S. and over 2.1 million worldwide.

About the National Multiple Sclerosis Society MS stops people from moving. The National MS Society exists to make sure it doesn’t. The Society addresses the challenges of each person affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, collaborating with MS organizations around the world, and providing programs and services designed to help people with MS and their families move forward with their lives.

About Multiple Sclerosis Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Every hour in the United States, someone is newly diagnosed with the disease. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 400,000 people in the U.S. and over 2.1 million worldwide.

About the National Multiple Sclerosis Society MS stops people from moving. The National MS Society exists to make sure it doesn’t. The Society addresses the challenges of each person affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, collaborating with MS organizations around the world, and providing programs and services designed to help people with MS and their families move forward with their lives.

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