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Do  you  sympathise  with  this  provoca2ve  statement  from  St  Bart’s  MS  Blog?      

Where  are  the  MS  ac+vists?  Why  are  you  not  camped  outside  the  EMA  with  banners  sta+ng  

'enough  is  enough'?    

1.  Yes  2.  No  

0 10 20 30 40 50 60 70%

69%

31%

1. Yes.

2. No.

stating "enough is enough"?Why are you not camped outside the EMA with banners

Where are the MS activists?statement from St. Bart's MS blog?

Do you sympathise with this provocative

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Is  the  voice  of  people  with  MS  loud  enough?    1.  Our  voice  is  loud  enough  and  we  just  need  to  keep  

doing  what  we  do.  2.  Our  voice  and  ac&vism  needs  to  significantly  increase  

now  and  our  ac&vi&es  should  be  coordinated.  3.  We  could  do  more  over  &me  to  make  our  voice  heard.  4.  We  definitely  need  to  make  our  voice  louder  and  it  

needs  to  be  done  within  a  year  or  two.  

0 10 20 30 40 50 60%

6%

52%

13%

29%

1. Our voice is loud enough .....

2. Our voice and activism needs to significantly increase now....

3. We could do more over time to make our voice heard.

4. We definitely need to make our voice louder within a year or two.

Is the voice of people with MS loud enough?

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Is  the  voice  of  people  with  MS  loud  enough?    

From  this  morning…  

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Friday, May 22nd, 2015 Summit Moderator: Kaz Aston (UK)  08:30  

 

08:40  

09:20  

10:00  

10.40  

Welcome & Introduction - Antonella Moretti (AISM, It) & Anna Chiara Rossi (Novartis, It)  

Plenary session  

•  Patient rights in research and treatment - Dr Vittorio Martinelli (It), Aliki Vrienniou (Gr)  

•  Influencing the direction of healthcare decision-making - Mary Baker (UK)  

•  The ‘Expert’ Patient - Jean Hardiman-Smith (UK)  

Panel discussion  

11.15   Break  11.30   Breakout sessions  

•  Patient rights in research and treatment (co-facilitator - Michele Messmer (It))  

•  Influencing the direction of healthcare decision-making (co-facilitator - Silvia Traversa (It))  

•  The ‘Expert’ Patient (co-facilitator - Federica Balzani (It))  

12.30   MS World Café  

Best Practice Sharing Fair for Patient Advocates  

13.00   Buffet Lunch  14:00   Breakout sessions (continued)  15:00   Breakout group feedback to plenary  15:55   Closing Remarks – Antonella Moretti (AISM, It) & Anna Chiara Rossi (Novartis, It)  16.00   Meeting Close  

Raising  standards;  The  voice  of    people  with  MS