LEND Directors MeetingDay One

June 7, 2018

Overview

Goal: To promote program-level growth and

network-level capacity building through:

• Facilitated networking opportunities

• Sharing ideas/strategies/approaches

• Supported action planning

Day One

• MCHB update

• ITAC update

• Peer small group check-in

• Interactive Workshop A

• Summary of transition activities

• Choose your adventure!

– Transition interest meeting, Autism CARES reauthorization Q&A, or Director-generated “Open space” discussions

Day Two

• Overview of new AUCD strategic priorities and related business

• Peer small group check-in

• Developing leaders with ASD/DD

• Interactive Workshop B

• LEND Regional meetings

• Peer small group check-in (cont.)

• Conclusion and evaluation

Housekeeping

• Communication best practices

– Wait for the microphone

– State your name and program

• Attend the workshops you signed up for

(indicated on name badges)

• Write ideas for “Open space” discussions

on mural paper during breaks

MCHB Update

Lauren Raskin Ramos, MPH

Director, Division of MCH Workforce Development

Maternal and Child Health Bureau and Division of MCH Workforce Development UpdatesLEND Directors MeetingJune 7, 2018

Lauren Raskin Ramos, MPHMaternal and Child Health Bureau (MCHB)Health Resources and Services Administration (HRSA)

Presentation Outline

• HRSA/MCHB Updates

• DMCHWD Activities

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Priority Areas

• Behavioral/mental health

• Telehealth

• Opioid misuse

• Childhood obesity

• Dissemination of programs and impact

• Innovation

• Collaboration

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FY 2018 MCHB Appropriations

FY 2018 Total Budget - $1.29 Billion

Existing Programs With Funding Increases

• Title V

• Healthy Start - Autism, EMS-C, and Heritable Disorders

• Family-to-Family Health Information Centers

Newly Funded Programs

• Screening and Treatment for Maternal Depression Program

• Pediatric Mental Health Care Access Program

• Infant-Toddler Court Teams

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Anticipated DMCHWD and Autism Competitions

FY18• Developmental Behavioral Pediatrics Program• MCH Nutrition Training Program • Childhood Obesity Challenge • Pediatric Mental Health Care Access ProgramFY19• Healthy Tomorrows Partnership for Children Program • Autism Secondary Data Analysis Research Program• Autism State Systems Development Program

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Upcoming DMCHWD Activities

• MCH Leadership Competencies release

• Childhood obesity

• Behavioral and mental health

• Telehealth

• Program impact

• DGIS measures implementation

• Autism CARES virtual grantee meeting

• DMCHWD virtual grantee meeting

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MCH Training Programs: By the Numbers

In Fiscal Year 2015, DMCHWD awarded over 150 grants – a $47 million investment

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29,520

5,772 2,208

Short-term trainees

Medium-term trainees Long-term trainees

FY 2015 DGIS data

292,460 MCH professionals received continuing education

LEND Long-Term Trainees by Discipline

Audiology5%

Dentistry2%

Education/Special Education

4%Epidemiology

0%

Family/Parent/Youth Advocacy

6% Genetics/Genetic Counseling

3%Health Administration

1%Law0%

Medicine8%

Nursing3%Nutrition

2%

Occupational Therapy6%

Other8%

Physical Therapy6%

Psychiatry1%

Psychology29%

Public Health2%

Respiratory Therapy0%

Social Work7%

Speech-Language Pathology

9%

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Former LEND Trainees

81%

83%

87%

FY 2015 DGIS data

75%

Work in an Interdisciplinary Manner

Working with MCH Populations

Demonstrate Field Leadership

Working with Underserved or Vulnerable Populations

81%

83%

87%

75%

LEND NCCs

• The LEND programs recently completed their Non-Competing Continuations (NCCs) and we were able to gain network wide information on:

o Transition activities in the networko Opioid/Neonatal Abstinence Syndrome (NAS)- clinical, didactic, curricular enhancements in

programs.o Supplement activities around Zika and Audiologyo Emerging issues in the field of NDDo Technical assistance needs of programs for AUCD and MCHB to address

• Some of the information was summarized and shared with AUCD for this LEND Directors’ meeting to:

o Help get the conversations goingo See if any gaps exist that the network wants to tackleo Ascertain next steps in terms of new workgroups, products needed, and so forth

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Questions

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Contact Information

Lauren Raskin Ramos, MPH

Division of MCH Workforce Development

Maternal and Child Health Bureau (MCHB)

Health Resources and Services Administration (HRSA)

Email: lramos@hrsa.gov

Phone: (301) 443-6091

Web: mchb.hrsa.gov

Twitter: twitter.com/HRSAgov

Facebook: facebook.com/HHS.HRSA

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Connect with HRSA

To learn more about our agency, visit

www.HRSA.gov

FOLLOW US:

Sign up for the HRSA eNews

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ITAC Update

ITAC Update

• Key Staff

• ITAC Goals, revisited

• Activity Highlights

– Evaluation and Needs Assessment

– Trainee Engagement

– Data Management and Reporting

• Strategic TA Priorities for 2018-2019

• What’s Coming Next?

Ben Kaufman, MSW

Sr. Manager, MCH

Technical Assistance

Sarah DeMaio, MSW

Program Manager, MCH

Technical Assistance

Christine Liao, MSW

Sr. Program

Specialist, MCH

Technical

Assistance

Luis Valdez, MPH

Program

Specialist, MCH

Technical

Assistance

Natalie Martinez, BA

Data Support

Manager

Dawn Rudolph, MSEd

Sr. Director, Technical

Assistance and

Network Engagement

Joined February 2018!Joined March 2018!

Key Staff

Key Staff

Sylvia DeMaio

Jr. Giggle Specialist

Caroline Martinez

Manager, Fun

Goals

• Provide comprehensive technical assistance (TA) to LEND and DBP programs, audiology supplement recipients, and other CARES/MCH Training partners.

• Collaborate with and coordinate efforts among key public and private stakeholders who seek to improve the health and well-being of people with ASD/DD and create optimal systems of care.

• Perform data management and analysis to support the ongoing development and achievement of training program goals.

• Engage in program coordination.

• Respond to emerging issues in interdisciplinary training and public health, particularly as it relates to ASD/DD.

Activity Highlights

• This year, we broke from tradition and did a separate ITAC Evaluation (October-November 2017) and LEND/DBP Needs Assessment (February-April 2018)

• Comprehensive process that involved input from the Project Advisory Committee (PAC) and coordination with MCHB

• The key ITAC Evaluation takeaway was that the most positively rated TA (“very useful”) were:– Facilitating information sharing (e.g. webinars, newsletters,

meetings)

– Opportunities for collaborative problem-solving (e.g. SIGs, workgroups)

– Development of specific resources to meet program needs (e.g. Genetics competencies, NDD Curriculum Resources)

Needs Assessment Overview

LEND respondents (n=40) and DBP Respondents (n=5)

Part 1: Overview of network programmatic trends

Part 2: Strengths/ challenges / TA needs

1. Funding (33.3%)

2. Opioids and Substance Abuse (31.1%)

3. Geographically Isolated Populations (31.1%)

4. Recruitment of Diverse Clinicians and Trainees

(24.4%)

5. Transition Care / Services (22.2%)

What do you see as critical and/or emerging

issues for the LEND and/or DBP networks over

the next five years?

What needs are your stakeholders prioritizing?

1. Quality Behavioral/Mental Health Services (40%)

2. Transition Services (33.3%)

3. Early Detection/Intervention (26.7%)

4. Access to Resources and Education in Rural Settings

(22.2%)

5. Lack of Specialists for Racial/Ethnic Groups (17.8%)

What are the barriers that your program experiences

in meeting those needs?

1. Funding Limitations (37.8%)

2. Time Restrictions (22.2%)

3. Balancing Addressing Community Needs with Program

Requirements/Regulations (20%)

4. Lack of Diverse Workforce (15.6%)

5. Limited Workforce to Meet the Needs of the

Population (11.1%)

TA Example Requests

Creative ways to keep alumni engaged and responsive

to survey requests

Learning opportunities for all trainees (clinical and

non-clinical) to develop knowledge and skills about

interdisciplinary clinical practice

Increasing cultural accessiblity

Instructional tools for providing distance training

How to best capture and disseminate the impact and

importance of LEND work

Incorporation of self-advocacy and family trainees into

program cohorts

Expanding policy and advocacy education experiences

for trainees

Establishing and sustaining an interdisciplinary

research agenda

Trainee Engagement

• Leadership Opportunities for Trainees– AUCD Emerging Leaders Interns (formerly Virtual

Trainees) – applications due June 22

– Trainee Liaison recruitment begins in August

– AUCD Trainee Scholarships available for 2018 AUCD Conference

• Resources (new and forthcoming)– AUCD Trainee Orientation Modules

– AUCD Emerging Leaders Map

– AUCD Emerging Leaders Community: separate website specifically designed for current/former trainees and early career professionals

Data Management

• The current fiscal year ends on June 30. All data

(including trainee follow up surveys) should be

entered by this time.

• In early July, all MCH programs will receive Excel

files with their specific data to be exported from

NIRS to EHB for your Performance Reports (due

in October).

• Data cleaning for the current fiscal year will be

allowed in NIRS through July 31 at 5:00pm ET.

Data Management

• AUCD is making updates in the back end of NIRS so that data is exported to EHB in a way that works for MCHB and their data contractor (these changes are minor and will not impact your data entry in any way).

• AUCD will work with MCHB to run test exports in July and send your final cleaned data in August.

• Exported data will show up in your Performance Report (in EHB) in September; NIRS standard reports for FY18 can help with other required pieces of the report.

Strategic TA Priorities

• Developing medium- and short-term training experiences

• Expanding access to (and strengthening existing) interdisciplinary clinical and community-based opportunities for trainees

• Addressing university-level barriers to trainee and faculty engagement

• Including and supporting self-advocacy trainees across program components

• Leveraging technology

What’s Coming Next?

• Follow up from Needs Assessment regarding

individualized TA needs (one-on-one calls for those

that did not submit information)

• RFA release for the 2018-2019 cycle of Focused

Assistance to Support Training (FAST) projects

• “Directors Corner” portion of the ITAC website with

resources from MCHB and AUCD, plus useful

materials and templates from other programs

• Autism CARES Act educational module (collaborative

effort with AMCHP)

• New mechanisms for disseminating network research

What’s Coming Next?

• Autism CARES Grantee Webinar Series

– “Autism in the Context of Ableism”

– Dates TBD (September – November)

• MCH Workforce Development Meeting

– Topic TBD

– September 26, 12:30pm – 3:30pm ET

• AUCD Annual Conference

– “We All Belong Here: Achieving Inclusive Communities”

– November 11-14 (includes LEND Directors Meeting)

Peer Small Groups

• Participants grouped based on a variety of factors:

experience, geography, program strengths and

needs identified, etc.

• Meet once today and twice tomorrow

• Check name badge and agenda (pg. 4) for your

specific assignment

Peer Small Groups

• Which aspect of your LEND program are you most

proud of?

• In what ways would you like to see your program

change and/or grow?

• How would you like to grow as a LEND leader?

• What are you hoping to take away from this

meeting?

Please select a Day Two meeting location before

wrapping up at 2:25pm.

Please return to Cabinet / Judiciary promptly at

2:45pm to start the next activity.

Interactive Workshop A

• How can Directors learn from each other

to more effectively work toward their

program-level objectives?– Review action planning template, break into groups

– Primary challenges and existing efforts (20 min.)

– Individual brainstorming and action planning (15 min.)

– Sharing ideas, strategies, and approaches (45 min.)

Interactive Workshop A

Group Topic Location AUCD Staff

1Creating policy/education/advocacy training

opportunitiesCabinet/Judiciary Denise Rozell

2Infusing diversity, cultural and linguistic competency, and

multiple perspectives across training componentsCabinet/Judiciary Ben Kaufman

3Promoting effective mentorship and mentoring

relationshipsCabinet/Judiciary Sarah DeMaio

4Establishing and maintaining interdisciplinary clinical

experiences for “non-clinical” traineesExecutive Boardroom Jalyn Marks

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Balancing interdisciplinary practice with the pressure to

see more patients through reimbursement and funding

innovation

Diplomat Dawn Rudolph

6Making training meaningful for individuals with different

interdisciplinary backgrounds, skills, and career interestsCongressional Luis Valdez

7Expanding program reach to rural or otherwise

underserved areasAmbassador Natalie Martinez

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Marketing LEND as an institutional, community, and

statewide resource for workforce development, topical

expertise, etc.

Congressional Christine Liao

Please return to Cabinet / Judiciary promptly at

4:40pm to start the next activity.

Summary of Network

Transition Activities

LEND Directors Meeting

June 7, 2018

Outline

Summary of collective network

activities addressing transition from

the past ten years

Examples (program function) of how

LEND programs are currently

engaged in transition-focused

efforts

2004: Joint Interdisciplinary

Training Meeting

LEND, LEAH, PPC, Schools of Public Health presented their

inventory of activities

Input from 35 LEND programs:

LENDs know and teach that medical homes and transition plans

are keys to successful transitions.

LEND programs train future practitioners around these and other

key transition areas.

Most LENDs include both didactic content and clinical

experiences related to transition.

Some were partnering with high schools around IEP development,

and others were developing curricula for medical students.

Identified a need for additional training and collaborative efforts

on transition.

2010-2011: Interdisciplinary

Transition Work Group

Representatives from LEND, LEAH, and PPC training programs

Goal: Address gaps in MCH trainee preparation to facilitate successful transitions for individuals with ASD/DD

Objectives: Identify and disseminate transition-related resources, as well as promising practices and transition-related competencies

2011: Surveyed all DMCHWD training programs regarding the extent to which transition content was incorporated into curricula

Poster Presentation Carl Cooley and Patience White from Got Transition were

invited to participate in the in-person meeting at AMCHP

Percentage of Programs with Training Activities Addressing Specific Transition Topics

2011-present: Live Broadcast of

Baylor Transition Conference

Baylor College of Medicine’s Annual Chronic

Illness and Disability: Transition from Pediatric

to Adult-Based Care Conference

AUCD, through its cooperative agreement with MCHB,

enables a webcast of the Conference; staff serve on the

planning committee, connect Conference organizers to

network leaders that can speak on priority topics,

encourage LENDs and UCEDDs to host broadcast sites with

Title V and other community partners, and reports

evaluation data related to this activity.

Increased from 15 broadcast sites in 2011 to more than 40 per

year in 2016 and 2017

2013-2014: Continued

Collaboration with Got Transition

Worked with Got Transition / National

Alliance to Advance Adolescent Health on

a transition program assessment

Examined LEND programs’ implementation of the Six

Core Elements of Health Care Transition

2013-2016: Jamie Perry, AUCD’s former

MCH Technical Assistance Director, served

as an advisory group member for the

Center for Health Care Transition

Improvement.

Key Assessment Findings

Does the didactic course work focus mostly on health care

transition or on transition broadly?

Does your transition curriculum include the “Six Core Elements

of Health Care Transition?”

Key Assessment Findings (cont.)

2016: Autism CARES Virtual

Meeting

ITAC (in collaboration with MCHB and

AMCHP) hosted a virtual meeting for all

CARES grantees entitled, “Integrated,

Person-Centered Approaches to

Transition” in July 2016.

This involved a keynote speaker from the

A.J. Drexel Autism Institute, brief

recorded presentations from grantees

doing work in this area, and breakout

discussions.

2017: HHS Report to Congress

In September 2017, HHS released a report

to Congress focusing on young adults and

transition-age youth with ASD. The report

summarizes existing federal initiatives

(across agencies) focused on transition

and identifies gaps in research, programs,

and services.

AUCD developed an abbreviated summary

of key findings as a resource for the LEND

and DBP networks.

Examples of Current LEND

Program Activities

Transition Topics Covered

Education

Employment

Independent Living

Health Care

Family and Professional Support

LEND Program Functions

Didactic Sessions

Clinical Services and Support

Collaboration

Resource Development and Dissemination

Research

Didactic Sessions

Parent and self-advocate panels (Delaware)

Three-session module covering health care,

education, and parent perspectives (Colorado)

Joint didactic with HRSA-funded social work

training grant program at University (Pittsburgh)

Transition-focus during spring semester, with

trainee-led book club (New Mexico)

Seminars led by faculty with first-hand transition

experience, with related practicum

opportunities (Oklahoma)

Clinical Services and Support

Rotation with Gillette Lifetime Specialty

Clinic (Minnesota)

Launch of an Interdisciplinary Transition

Training Clinic (Ohio – Nisonger)

Special Needs Dentistry Program (New York –

Rose F. Kennedy)

Trainee-provided evaluation and short-term

behavioral supports based on referrals from

local Title V-funded program (Indiana)

Transition in Action Clinic (South Dakota)

Collaboration

Co-host Baylor conference broadcast site with

state Title V (Arkansas)

Transition rotation with local high school,

facilitated by school staff (Hawaii)

Discussion with Title V Youth Health Care

Transition Initiative coordinator regarding

field experience (Louisiana)

Close work with state DD Council and Title V

agency to implement systematic training

approach (Miami)

Resource Development and

Dissemination

Think College / Think Work (Massachusetts –

Boston Children’s Hospital)

Center for Autism Resource Dissemination: Parent

Information Packet for Newly Diagnosed Children,

Transition Guide for Teens with Autism, and the

CCSN Essential Autism Resource Guide for

Families (Massachusetts – Shriver Center)

Health transition customizable NDD curriculum

resource module (Washington)

Trainee leadership project providing resources to

providers and families regarding sexual,

reproductive, and healthy relationship issues

(Utah)

Research

Survey of primary care providers to identify

barriers to support patients (Colorado)

Trainee participation in projects such as

“Transitioning Together” and “Working

Together” (Wisconsin)

Trainee participation in the Volunteer

Advocacy Program-Transition (Tennessee -

Vanderbilt)

Trainee/faculty leadership research proposals

to the Organization for Autism Research (New

Jersey)

For More Information

Luis Valdez, MPH

Program Specialist, MCH Technical Assistance

E-mail: lvaldez@AUCD.org

Choose Your Adventure!

Transition work group / task force interest meeting

Autism CARES reauthorization Q&A

Director-generated “open space” discussions

Congressional

Cabinet / Judiciary

Executive Boardroom