AUCD AUCD T.A. MeetingT.A. Meeting

Bethesda, MDBethesda, MD

May/June 2007May/June 2007

Outcome MeasuresOutcome Measures

Over a 30 Year SpanOver a 30 Year Span

Carl F. Calkins Carl F. Calkins

University of Missouri Kansas CityUniversity of Missouri Kansas City Institute for Human Development, UCEDDInstitute for Human Development, UCEDD

A.A. Closed St. Louis UAFClosed St. Louis UAF

B.B. Transferred UAF from Columbia to Kansas CityTransferred UAF from Columbia to Kansas City

C.C. MPC - PartnershipMPC - Partnership

1. Community Imperative1. Community Imperative

A.A. Core ratio to extramural dollarsCore ratio to extramural dollars

B.B. University dollars and resourcesUniversity dollars and resources

2. Leveraging Resources2. Leveraging Resources

A.A. Where person with DD and their families are Where person with DD and their families are better off because of work of UCE.better off because of work of UCE.

3. Quality of Life3. Quality of Life

A.A. Defined changes in growth and development.Defined changes in growth and development.

B.B. Movement to least restrictive alternatives.Movement to least restrictive alternatives.

4. Growth and Development4. Growth and Development

A.A. People FirstPeople First

B.B. Training for AdvocatesTraining for AdvocatesIndividual with DD and family membersIndividual with DD and family members

5. Support of Advocacy Function5. Support of Advocacy Function

A.A. Number of leaders trainedNumber of leaders trained

B.B. Reports on quality of training experienceReports on quality of training experience

C.C. Numbers by disciplineNumbers by discipline

6. Number of Trainees6. Number of Trainees

A.A. Impact on field of DDImpact on field of DD

B.B. Recognition of ADDRecognition of ADD

7. Publications7. Publications

A.A. Number with DD networkNumber with DD network

B.B. Key stakeholdersKey stakeholders

8. Partnerships8. Partnerships

A.A. Contribution to field related to inclusionContribution to field related to inclusion

B.B. At risk populationsAt risk populations

9. Inclusion9. Inclusion

10. Effects on Individuals/ Families/ 10. Effects on Individuals/ Families/ SystemsSystems

Project: Sharing our StrengthsFUNCTIONS Individuals     FAMILIES    SYSTEMS CHANGE    

ACSS IPT ID AR

            Capacity Personnel Resource

Independence Productivity Full Inclusion Competency Well Being Empowerment Building Development Leveraging

                           

X X X X X 25 Individuals with disabilities will receive support and mentorship to increase advocacy skills, knowledge of disability resources and self-determination skills.

25 Individuals with disabilities will have the resources and planning assistance in place to maximize their education and employment opportunities in the future.

25 Individuals with disabilities will receive resources and support based on values of empowerment and full inclusion in education, homes and employment in the community.

125 New parents learn quickly from experienced parent mentors how to navigate the disability services and education systems.

125 Families receive support and information provided by SOS and the matched parent mentor to improve the ability of a family to plan for changing needs across the lifespan.

125 Families will have the information and support they need to plan for the future, advocate, and instill self-determination skills in their child.

Partnerships will support families in transitioning their children out of institutions and increase the capacity of Latino-serving agencies to serve Spanish-speaking families.

15 Professionals will be matched with professionals from other disciplines to increase their capacity to address disability issues from multiple perspectives.

Department of Mental Health- Division of MR/DD $20,000

         

         

         

          Mo Planning Council on DD $130,000         

         

           

         

             

             

             

A = Administration CSS = Community Services and SupportsIPT = Interdisciplinary Preservice TrainingID = Information Dissemination

AR = Applied Research

A.A. Diversity / DisabilityDiversity / Disability

B.B. Social JusticeSocial Justice

C.C. Partnership for Effective Social ChangePartnership for Effective Social Change

11. Shift to Universal Accessibility and11. Shift to Universal Accessibility and

Larger Issues of Full InclusionLarger Issues of Full Inclusion

UAP Program Criteria / Site ReviewUAP Program Criteria / Site Review

PAR – DD NetworkPAR – DD Network

Technical Assistance as tool for EnhancementTechnical Assistance as tool for Enhancement

Supportive Functions for Outcome Supportive Functions for Outcome MeasuresMeasures

Shift from regional ADD Network to Central officeShift from regional ADD Network to Central office

Shift from service to services and supports ~ Shift from service to services and supports ~ paradigm shiftparadigm shift

ADD status in U.S. Department of Health and Human ADD status in U.S. Department of Health and Human Services & Administration for Children and FamiliesServices & Administration for Children and Families

Trends that Call for Outcomes in FieldTrends that Call for Outcomes in Field

We have all been working on this for a long time!We have all been working on this for a long time!

Move us forwardMove us forward

ProjectProject

1 page to great detail on projects1 page to great detail on projects

Core FunctionsCore Functions

Annual Report TemplateAnnual Report Template

Project Profile OutlineProject Profile OutlineCore FunctionsCore FunctionsProgram Need and Historical ContextProgram Need and Historical ContextConsumer & Community InvolvementConsumer & Community InvolvementSignificant Project Activities and OutcomesSignificant Project Activities and OutcomesInstitute RoleInstitute RoleProductsProductsImpactImpact

Systems ChangeSystems ChangePersonnelPersonnelLeveragingLeveraging

One Example of One Example of

Individual Program OutcomesIndividual Program Outcomes

Vision con Esperanza (Visions with Hope) 360Vision con Esperanza (Visions with Hope) 360°° ImplementationImplementation

IHD Priority Area: Individual Advocacy and Family IHD Priority Area: Individual Advocacy and Family SupportsSupports

Description: The purpose of this demonstration project is to enhance the capacity of an existing Description: The purpose of this demonstration project is to enhance the capacity of an existing community based one-stop center for Latino families with children with developmental disabilities in community based one-stop center for Latino families with children with developmental disabilities in Northeast Kansas City to provide family-centered and family-directed supports that preserve, strengthen, Northeast Kansas City to provide family-centered and family-directed supports that preserve, strengthen, and maintain the family.and maintain the family.

Project Contact: Michelle Reynolds Annual Funding:$250,000

Funding Source: Administration on Developmental Project Period: 07/02-06/07 Disabilities - Project of National Significance

Core FunctionsCore Functions Applied Research: IHD faculty are researching needs in the Latino community and identifying potential partners.Community Services and Supports: Visions with Hope sponsors a Latino Family Support Groupthat provides peer support between Latino families with children with disabilities.

Program Need and Historical ContextProgram Need and Historical ContextKansas City is home to the oldest Latino-settled community in the Midwest. The needs of Latino families of children with disabilities are not being met; there are barriers to the access of supports and services, disability service systems have not addressed the unique barriers of Latino families accessing services, and Latino organizations and service systems need to collaborate to provide services and supports that are family-centered and family-directed.

Consumer and Community InvolvementConsumer and Community Involvement The monthly family support group serves as the advisory board to the implementation of materials for the center. This chapter is made up of Latino families of children with developmental disabilities. Parents of Latino children with developmental disabilities have assisted the IHD with training for professionals on cultural competency. Parents have assisted with the development of products for the MODDRC, such as Fast Facts and SOS training in Spanish.

Core Functions

75%

0%0%

25%

Applied Research(25%)

Community Services& Supports (75%)

InformationDissemination (0%)

InterdisciplinaryPersonnelPreparation (0%)

~ continued ~~ continued ~

Significant Project Activities and OutcomesSignificant Project Activities and Outcomes▪ Served over 90 Latino families who have children with developmental disabilities.▪ Formed a monthly Latino Parent Support group where 38 families have attended at least 2 meetings in FY, 2006.▪ In FY06, established support groups for Latino Youth with Disabilities, Parents with Autism and a Father Support Group.▪ Enhanced the capacity of Sharing Our Strengths: Missouri’s Parent-to-Parent Network to provide training and peer support matches for Spanish speaking families.▪ Hosts an AmeriCorps Member through the Community Support Navigator program.

Institute’s RoleInstitute’s RoleIHD staff wrote the original proposal. IHD staff oversees all activities of the project.IHD staff provides technical assistance to Mattie Rhodes Center.

ProductsProducts▪ A comprehensive family planning tool has been developed.▪ Training curriculum to build cultural competency of service system staff and also administrators.▪ Provided disability specific training to Mattie Rhodes staff. ▪ Analyzed the barriers and laws that Latino families may encounter when accessing services.▪ Semi-annual and Annual reports submitted to ADD.▪ Center brochure and Visions with Hope Website▪ Spanish Fast Facts▪ SOS Mentor Training Curriculum and supplemental products

ImpactImpactSystems Change:Systems Change: The system will be better equipped to address the barriers and the The system will be better equipped to address the barriers and the issues of Latino families.issues of Latino families.Personnel: Personnel: Staff will be better prepared to work with Latino families.Staff will be better prepared to work with Latino families.Leveraging: Leveraging: Collaborators include Mattie Rhodes Center, Department of Mental Health Collaborators include Mattie Rhodes Center, Department of Mental Health Division of MR/DD, and Missouri Planning Council on DD. Mattie Rhodes received Division of MR/DD, and Missouri Planning Council on DD. Mattie Rhodes received Supplemental funding received from Jackson County Board of Services and Down Supplemental funding received from Jackson County Board of Services and Down Syndrome Guild.Syndrome Guild.

AmeriCorps Community Support AmeriCorps Community Support NavigatorNavigator

IHD Priority Area: Individual Advocacy and Family SupportsDescription: The AmeriCorps members main role is to provide “mentoring” to individuals with Description: The AmeriCorps members main role is to provide “mentoring” to individuals with

disabilities and their families. Examples of mentoring activities include disseminating information disabilities and their families. Examples of mentoring activities include disseminating information about services and support, providing one-on-one training around self-determination, and also about services and support, providing one-on-one training around self-determination, and also creating parent support groups. creating parent support groups.

Project Contact: Michelle Reynolds Annual Funding: $159,296Funding Source: Missouri Planning Council, UMKC-IHD, Project Period: 09/06-

08/07 Missouri Community Service CommissionCore FunctionsCore Functions Applied Research: The Institute evaluates effectiveness of mentoring services through a direct

service form, monthly member self-evaluation, monthly supervision feedback, and responses from individuals mentored by AmeriCorps Community Support Navigators.

Community Services and Supports: AmeriCorps Community Support Navigators work within nine different communities in Missouri and provide mentoring to individuals with developmental disabilities and their families. AmeriCorps Community Support Navigators serve in Columbia, Kansas City, Camdenton, Fayette, St. Louis, and Jefferson City communities. As Community Support Navigators, AmeriCorps Members they provide peer mentoring support to individuals with developmental disabilities and their families to access and navigate needed resources, support access to existing generic community programs, and support the development of self-advocacy and leadership opportunities.

Information Dissemination: AmeriCorps Community Support Navigators disseminate information & resources to individuals and families that they mentor within their community.

Interdisciplinary Personnel Preparation: AmeriCorps Community Support Navigators receive 120 hours of training from the Institute and 6o hours of training from their community host sites.

Core Functions

45%

40%

5%

10%

Applied Research(10%)

Community Services& Supports (45%)

InformationDissemination (40%)

InterdisciplinaryPersonnelPreparation (5%)

~ continued ~

Program Need and Historical ContextProgram Need and Historical ContextPeople with developmental disabilities and their families need access to information and peer support People with developmental disabilities and their families need access to information and peer support

to assist them to make informed decisions regarding the services and supports available in their to assist them to make informed decisions regarding the services and supports available in their community. It is challenging for individuals to understand and navigate the maze of services and community. It is challenging for individuals to understand and navigate the maze of services and resources and to make choices that meet their unique support needs. Access to information resources and to make choices that meet their unique support needs. Access to information resources has consistently been identified as a leading need of consumers and their families. In resources has consistently been identified as a leading need of consumers and their families. In fact, in 2003 the Missouri Division of Mental Retardation and Developmental Disabilities (MRDD) fact, in 2003 the Missouri Division of Mental Retardation and Developmental Disabilities (MRDD) initiated a system wide strategic planning initiative to design a system to meet the needs of initiated a system wide strategic planning initiative to design a system to meet the needs of people with developmental disabilities now and in the future. The results of this planning initiative people with developmental disabilities now and in the future. The results of this planning initiative were 62 recommendations produced by eight consumer–specific work groups. The top three were 62 recommendations produced by eight consumer–specific work groups. The top three “system-wide” issues identified were: “system-wide” issues identified were:

Improve access to service through collaborationImprove access to service through collaboration Increase Consumer Choice and Control; andIncrease Consumer Choice and Control; and Enhance competence and information.Enhance competence and information.Each of these issues speaks to the need to provide information that is easy to understand and access, Each of these issues speaks to the need to provide information that is easy to understand and access,

information that enhances choice and control of services, and information and supports that information that enhances choice and control of services, and information and supports that improves access to services through enhanced community collaborations. AmeriCorps members improves access to services through enhanced community collaborations. AmeriCorps members will work to address these information needs in communities across the state. will work to address these information needs in communities across the state.

Consumer and Community InvolvementConsumer and Community InvolvementThe AmeriCorps members connect with each individual that they mentor on what they want to pursue The AmeriCorps members connect with each individual that they mentor on what they want to pursue

for their own lives. The AmeriCorps member then assists the individual to interface with their for their own lives. The AmeriCorps member then assists the individual to interface with their community through volunteer opportunities, community resources to become part of their chosen community through volunteer opportunities, community resources to become part of their chosen community.community.

Significant Project Activities and OutcomesSignificant Project Activities and OutcomesThe goal of the project is to provide information and support to 300 individuals with developmental The goal of the project is to provide information and support to 300 individuals with developmental

disabilities and / or their families. disabilities and / or their families. Institute’s RoleInstitute’s RoleThe Institute provides administrative support to AmeriCorps host sites, and AmeriCorps Community The Institute provides administrative support to AmeriCorps host sites, and AmeriCorps Community

Support Navigators. Collaborate with the Missouri Community Service Commission to ensure that Support Navigators. Collaborate with the Missouri Community Service Commission to ensure that AmeriCorps paperwork meets the federal standards. Maintain information about the direct service AmeriCorps paperwork meets the federal standards. Maintain information about the direct service that each AmeriCorps Community Support Navigators through their paperwork, to report to the that each AmeriCorps Community Support Navigators through their paperwork, to report to the Missouri Community Service Commission office. Missouri Community Service Commission office.

ProductsProductsThe project will provide mentoring services to 300 individual and / or families with developmental The project will provide mentoring services to 300 individual and / or families with developmental

disabilities in Missouri.disabilities in Missouri.

Thank you for attending.Thank you for attending.