keeping service user involvement in research honest
DESCRIPTION
Keeping Service User Involvement in Research Honest . Professor Hugh McLaughlin [email protected] 10 th July 2012. Dame Sally Davies Director General of Research and Development, Department of Health. - PowerPoint PPT PresentationTRANSCRIPT
![Page 1: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/1.jpg)
1
Keeping Service User Involvement in Research Honest
Professor Hugh McLaughlin
[email protected] July 2012
![Page 2: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/2.jpg)
Dame Sally DaviesDirector General of Research and Development, Department of Health
• I have always taken the view that public involvement in research should be the rule not the exception. It is fundamental to ensure high quality research that brings real benefits for patients, the public and the NHS p.4 Staley (2009)
![Page 3: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/3.jpg)
Service User Researchers
• Direct –current or recent service users
• Indirect –similar services elsewhere
• Alternative –service users of other types of services
![Page 4: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/4.jpg)
Which service users? Limitations• Some groups more
‘acceptable’ than others
• Convicted paedophiles
• Communication difficulties
• Sexually transmitted diseases
• Illegal immigrants
![Page 5: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/5.jpg)
Levels of Involvement
• Tokenism• Consultation• Collaboration• Service User
Controlled
![Page 6: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/6.jpg)
User–controlled Research• the empowerment of service users and the
improvement of their lives (through both the process and the purpose of research);
• being part of a broader process of making social and political change;
• more equal relations of research production (where the people who carry out the research and are the subject of the research relate to each other on much more equal terms);
• being based on social models of understanding and interpretation (like the social model of disability).
• But no agreement re who should do it• (Turner and Beresford, 2005, p vi)
![Page 7: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/7.jpg)
Benefits of Service User Research• Focusing and prioritising the
research• Accessibility of research tools• Enhancing range and quality of
data• Analytical meanings and
connections are not misunderstood
• Recommendations include perspective of service users likely to lead to greater ownership
• Dissemination
![Page 8: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/8.jpg)
Why researchers don’t involve service users in research
• Lack of representativeness• The usual suspects• Recruitment and training• Too expensive• Research not objective• SU and carer expectations
unrealistic• Ethical approval• Research selectivity
exercise
![Page 9: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/9.jpg)
Comment
• It is as absurd to believe that service user (co-) researchers will inevitably improve the research, this is as misguided as believing only academic researchers can undertake ‘real’ research.
![Page 10: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/10.jpg)
Knowledge Claims• Qualitative research
preferred• Same or different
standard• Standpoint theory• Mature enough to be
evaluated on the same standards as other research
![Page 11: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/11.jpg)
Knowledge claims
• One key quality distinguishes such knowledge from all others involved in social care and social policy provision. They alone are based on direct experience of such policy and provision from the receiving end. Service users’ knowledges grow out of their personal and collective experience of policy, practice and services (Beresford, 2000, p. 493).
![Page 12: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/12.jpg)
Critique• While we must recognize that people in
different social locations may have divergent perspectives giving them distinctive insights, it is not clear why we should believe the implausible claim that some category of people has privileged access to knowledge while others are blinded by ideology(Hammersley, 1995, p. 71).
![Page 13: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/13.jpg)
Conclusions• Moreover, if we accept that differing types
of knowledge and experience contribute to a full understanding then no one has privileged ‘insider’ knowledge, but everyone has differing knowledge from which everybody can learn. Herein lies the nub of the issue.
• (Nolan et al., 2007a, p. 190).
![Page 14: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/14.jpg)
Conclusions• Neither panacea
nor fad• Research
approach in own right
• Complementarity and additionality
• Not to be entered into lightly
![Page 15: Keeping Service User Involvement in Research Honest](https://reader035.vdocuments.site/reader035/viewer/2022081515/5681655a550346895dd7da2a/html5/thumbnails/15.jpg)
Useful publicationswww.invo.org.ukLowes, L. and Hulatt, I.(2005) (eds), Involving Service Users in Health and
Social Care Research, London: Routledge Nolan, M. Hanson, E. Grant, G. and Keady, J. (2008) (eds) User Participation in
Health and Social Care Research, Maidenhead: Open University Press McLaughlin, H. (2010) Keeping service user involvement in research honest,
British Journal of Social Work, 40, 1591-1608McLaughlin, H (2009) Service User Research in Health and Social Care, London: Sage.McLaughlin, H. (2012) Understanding Social Work Research (2nd edn.) , London: SageMcLaughlin, H. (2006) Involving Young Service Users as Co-researchers: Possibilities, benefits and costs, British Journal of Social Work, 36 (8) 1395-1410.McLaughlin, H. (2005) Young service users as co-researchers: methodological problems and possibilities; Qualitative Social Work, 4: (2) 211-228.Staley, K. (2009) Exploring Impact: Public involvement in NHS, public health and social care research, Eastleigh: Involve