7/31/2019 Kathleen Scott

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USPostage

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Jacquelyn s story

For Congress

Compassionate Leadership - Proven Results

Tony Strickland

POBox1371

ThousandOaks,CA91358

Senatepanelapprovesnewborn-testing

billsoughtbyCamarillomotherByTimmHerdt~April18

th,2012

SACRAMENTOInJuly2002,RodandKathleenScott

ofCamarillobroughthometheirdaughter,Jacquelyn,from

thehospitalachildtheyandtheirdoctorsbelievedtobe

abeautiful,healthybaby.

Withintwoweeks,Jacquelynbegantosufferseizures

andcriedalmostincessantly.Ittookuntilnearlyherfirst

birthdayforadiagnosistobemade:Krabbedisease,a

nervoussystemdisorderthatoccursinaboutoneofevery

100,000babies.

Weweretoldthattherewasnothingwecoulddoforher,

KathleenScottsaid.

Jacquelynlivedtobe4,sufferingallthewhilefromwhat

hermotherdescribesasahorrible,hideousdiseasethat

causedhertolosehersight,hearingandabilitytoswallow

andtosufferfull-bodyspasms.

OnWednesday,Scotttoldherstorytomembersofthe

SenateHealthCommitteeandurgedthemtoapproveabill

thatwouldmandatethescreeningofnewbornsinCalifornia

fortwolysosomalstoragediseases,includingKrabbedisease.

PaidforbyStricklandforCongress2012

7/31/2019 Kathleen Scott

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Dear Friend,

My name is Kathleen Scott and I am a middle

class parent. My husband and I have beenblessed with 3 beautiful children and a dog for

them to play with. Even if our circumstances are

not the same, we probably have a lot in common.

The one fact that might set us apart is the 2007

passing of our daughter Jacque from a genetic

disease that was not detected through Californias

required newborn screening program. Had Jacques

disease been caught at birth she could have had a life saving

procedure and she would be with us today.

As you can imagine, Jacques passing was tragic on so many levels for our family and shes missed daily.

To honor her passing, we have made it our priority to inform every parent of their rights when it comes

to newborn disease screening. To that end, we began to educate our local legislators on the importance of

newborn screening and why Jacques passing didnt have to happen.

One year ago, I called Senator Tony Stricklands office to tell them Jacques story and to ask for a meeting

with Tony. The first time I met Tony, he greeted me warmly and listened closely as I told him about

the process of newborn disease screening and that Jacques disease wasnt screened. After he asked a few

questions, Tony agreed that the disease Jacque passed from needed to be added to the California Newborn

Screening Panel and graciously agreed to author the bill to do so. And to make it even more special heoffered to name it after my Jacquelyn.

Just as he promised, Jacquelyns Bill was heard in the State Senate and passed out of the Senate Health

Committee on a bi-partisan vote. Though the final outcome of this bill is yet to be seen, Tonys ability to

work with his Democrat colleagues gives me hope that Jacquelyns Bill will become Jacquelyns Law and the

lives of countless newborns will be saved.

Although Im not politically savvy, Im smart enough to recognize a leader who keeps his word. Not only

did Tony keep his promise, he supports our mission of expanding newborn disease screening.

Now its my turn to support Tony. I asked Tony if I could write to tell you Jacques story and to give you a

sense of this fine mans heart. Tony didnt have to take on this cause and I can assure you that he didnt do

it for the headlines. He did it because he cares about improving the lives of those he serves. Thats why I

support Tony Strickland for Congress.

So when your mailbox becomes flooded with mailers sent by groups who care more about partisan election

results, I want you to remember this letter. My intent is to help elect Tony to Congress to fight for us. You

see, Tony didnt ask if I was a Republican or a Democrat, he asked how he could help.

We need men and women who will stand up for what is right and we especially need representatives we can

trust. It is my first-hand personal experience that we can trust Tony Strickland to simply do what is right

for California. We need leaders like Tony in Washington and Im asking you to join me in electing this very

fine man our Congressman.

Kathleen Scott

Mom and proud supporter of Tony Strickland for Congress