kate swaffer cv september 2019 - wordpress.comthe power of language, australian journal of dementia...

Kate Swaffer

Curriculum Vitae

August, 2019

Kate Swaffer: Curriculum Vitae PO Box 202 Burnside 5066 |http://kateswaffer.com | http://www.infodai.org | [email protected]

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About Kate Swaffer: Kate Swaffer is a humanitarian, and a disability rights activist, author and international speaker. She has won many awards (listed below), including the 2018 winner of the Global Leader, 100 Women of Influence Australian Financial Review, and the 2017 Australian Of The Year, SA. Kate is the Chair, CEO and a co-founder of the Dementia Alliance International, a global advocacy and support group for people living with dementia. She is the only Australian to be have been a full member of the World Dementia Council, and is an elected board member of Alzheimer’s Disease International. Kate is a current PhD student at the University of South Australia, an Honorary Associate Fellow with the Faculty of Science, Medicine and Health, University of Wollongong, a Fellow of the RSA, and an International Fellow at Canterbury Christ Church University. She completed a Masters of Science in Dementia Care with a Distinction in 2014. She is also a retired chef having run her own hospitality businesses for ten years, and before that worked as nurse in dementia and aged care and then operating theatres. Notably, in her human rights work, she is the first person living with a diagnosis of dementia to give an invited keynote speech at an agency of the United Nations, the World Health Organisation (WHO) at the First Ministerial Conference on Dementia in March 2015, where she demanded human rights, access to the Convention on the Rights of Persons with Disabilities (CRPD) for all people with dementia, and a balance in research between care and cure on the global stage. These demands were included in the WHO Final Call To Action, and human rights were included in the Global Action Plan for Dementia adopted at the World Health Assembly in May 2017. Kate is an influential activist for human rights in aged and dementia care, for dementia as a disability. She has always stood up for social justice as an advocate or in volunteering roles, and still volunteers for the homeless in South Australia, and the Bereaved Through Suicide Support Group (SA) Incorporated. She is also a widely published academic, author and poet. Her first book on dementia, What The Hell Happened to My Brain?: Living Beyond Dementia, and her second dementia book Diagnosed with Alzheimer’s or another dementia, co-authored with Associate Professor Lee-Fay Low were both released in 2016, the latter currently being updated for an international audience. Her first two volumes of poetry were published in 2012 and 2016. Kate has played a vital role in creating the new narrative of dementia globally, as well as empowering new dementia advocates, also inspiring the development of numerous new national or local Dementia Advisory Groups. She is passionate about the power of research having become a researcher herself, but strongly believes in common sense, which may not always have evidence-based research to support it. Kate has also been instrumental in bringing human rights to the fore in dementia and aged care, including recognition in practice for dementia being recognised as a disability through published articles and books, presentations and global campaigning. Since 2010, Kate has given more than 1000 invited key note presentations on a number of topics, not only in the field of dementia and human rights, but on disAbility, discrimination, stigma, dementia-enabling design principles, language, Inclusive Communities, Prescribed Disengagement®, Models of care, Information Technology, Advocacy and Activism, dementia policy (local, national and global) and loss and grief.

“Life is short. Make sure you’re not living as if you’re already dead.” (Kate Swaffer © 2019)


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CURRENT PROFESSIONAL ACTIVITIES → Dementia Alliance International (DAI), Co-founder, Chair and CEO → Alzheimer’s Disease International, Board member and SE Asia Mentor, (2015-current) → Saxtons, International speaker and Consultant → United Nations High Level Meeting Steering Committee, Member → United Nations Civil Society Working Group, Member → 2020 Dementia Innovation Readiness Index, Advisory Board Member → Global Brain Health Institute, Fellow Mentor to Dr Laura Booi → Global Rehabilitation Alliance, Founding Committee Member → World Health Organisation (WHO) Risk reduction guidelines for cognitive decline and

dementia, External Review Group (ERG) Steering Group Member → Community of Practice for the Meaningful Involvement of People Living with NCDs, Steering

Committee Member → The Worldwide Hospice Palliative Care Alliance (WHPCA), Stakeholder Committee Member → International Disability Alliance, Observer member, representing DAI → Researcher, University of Wollongong, University of Sydney, University of SA and University of

NSW → Board Member, DignityDisability SA → Humanitarian and activist for disability, aged and dementia care → Published author, academic and poet → Dementia Australia, Consumer Advocate, DFC Dementia Advisory Group → Centacare, Dementia Strategy Reference Group → Honorary Associate Fellow with the Faculty of Science, Medicine and Health, University of

Wollongong → Fellow, Royal Society for the encouragement of Arts, Manufactures and Commerce (RSA) → International Fellow, Canterbury Christ Church University → Southern Dementia Advisory Group, Honorary member (Kiama, NSW) → Professional Advisory Board, The Bereaved Through Suicide Support Group (SA) Inc.

EDUCATION 2018 PhD Candidate, University of South Australia (PT, transferred from UOW) 2016 PhD Candidate, University of Wollongong (FT, then LoA, 2017- July 18) 2014 Masters of Science, Dementia, (Distinction), University of Wollongong 2010 Bachelor of Psychology, UniSA 2009 Bachelor of Arts, Writing and Creative Communication, UniSA 2005 Certificate of Small Business Management, Business SA 1989 Graduate Diploma in Grief Counseling, University of Ballarat 1987 Chef diploma: “Australian Cuisine with Cheong Liew”, Regency Park TAFE 1977 Nurses training, Whyalla and Cleve Hospitals, SA


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HONORS AND AWARDS 2020 Ambassador, StepUp4DementiaResearch, Australia 2018 Winner, Global Leader, AFR/Qantas 100 Women of Influence, 2018 2017 Winner, Australian of The Year Award, South Australia, 2017 2017 SA Parliamentary Motion (60) by the Hon Kelly Vincent MLC, unanimously

accepted recognising my local, national and global work in dementia 2017 The Sir Keith Wilson Oration , Australian Gerontology Association (AAG) SA 2016 Winner, Alumni Award Social Impact Award University of Wollongong 2016 Finalist, Social Impact, Westpac/AFR 100 Women of Influence 2016 Finalist, Australian of The Year Award, South Australian 2015 Joint winner, National Disability Awards: Emerging Leader in Disability

Awareness 2015 Inaugural Winner, Dementia Leader, University of Stirling International

Dementia Awards, 2015 Inaugural winner, Dignity in Care Achievement Award, Outstanding

Individual Contribution to Dignity in Care, 2015 Winner, Bethanie Education Medallion Award 2015 Winner, University of Wollongong, AAG Community Engagement Award 2015 University of Wollongong, Alumni Award Social Impact, Runner up 2014 University of Wollongong, Master’s of Science (Dementia Care), Distinction 2012 Creating life with words: Love, Inspiration and Truth was archived in the

PANDORA Collection of the State (SA) and National Library of Australia 2015 International Dementia Awards: Dementia and the Arts Also A Mirror, ECH

Inc. and Urban Myth Theatre of Youth and Kate Swaffer, South Australia 2012-13 Patron for The Visitors, a play about Younger Onset Dementia, Urban Myth

Theatre Group and ECH Residential Aged Care 2008 Bachelor of Psychology University Merit Award, UniSA; Lifetime Golden Key Membership, UniSA TRADEMARKS 2014 Theory of Prescribed Disengagement® received Registered Trademark

status after meeting the stringent Trademark status criteria in two medical categories.


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SELECTED PUBLICATIONS Steele, L, Swaffer, K, Fleming, R & Phillipson, L (2019) Questioning Segregation of People Living with Dementia in Australia: An International Human Rights Approach to Care Homes, Laws, 8(3), 18; https://doi.org/10.3390/laws8030018 Ratcliffe J, Cameron, I, Lancsar, E, Walker, R, Milte, R, Hutchinson, CL, Swaffer, K & Parker, S. (2019) Developing a new quality of life instrument with older people for economic evaluation in aged care: study protocol, BMJ Open 2019;9: e028647, doi:10.1136/bmjopen-2018-028647 Phillipson, L, Fleming, R, Swaffer, K, Steele, L, Sheridan, L, Burns, S, Cappetta, A & Cridland, E. (2019). Creating a dementia enabling university using a Knowledge Translation approach: Innovative practice, Dementia, Research Online, https://doi.org/10.1177/1471301219868624 Swaffer, K (2019) Witness Statement of Kate Swaffer, Royal Commission into Aged Care and Quality Safety, https://agedcare.royalcommission.gov.au/hearings/Documents/exhibits-2019/17-may/WIT.0127.0001.0001.pdf Cations, M, May, N, Crotty, M, Low, L.-F, Clemson, L, Whitehead, C, McLoughlin, J, Swaffer, K, Laver, K (2019). Health Professional Perspectives on Rehabilitation for People With Dementia, The Gerontologist. https://doi.org/10.1093/geront/gnz007 Goeman D, Corlis M, Swaffer K, Jenner V, Thompson J, Renehan E, Koch S. (2019) Partnering with people with dementia and their care partners, aged care service experts, policy makers and academics: a co-design process. Australasian Journal on Ageing 2019 Swaffer K. (2018/2019). The reliability and meaning of a dementia diagnosis, Australian Journal of Dementia Care, Vol. 7 (6), 21-24) Swaffer, K. (2018). Human rights, disability and dementia, Australian Journal of Dementia Care, Vol 7, (1), 25-28 Low, L, McGrath, M, Swaffer, K, & Brodaty, H. (2018). Communicating a diagnosis of dementia: A systematic mixed studies review of attitudes and practices of health practitioners. Dementia, Online First 1-50 Low LF, Swaffer K, McGrath M, Brodaty H. (2017) Do people with early stage dementia experience Prescribed Disengagement®? Int Psychogeriatry, 30(6): 807-83. doi: 10.1017/S1041610217001545

Rahman, S. & Swaffer, K. (2018). Assets based approached and dementia friendly communities, Dementia, Vol 17(2), 131-137. DOI: 10.1177/1471301217751533


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Swaffer, K. (2017). Se saisir de la question des droits de l’Homme dans la démence. Gérontologie et société, vol. 39 / 154,(3), 21-29. doi:10.3917/gs1.154.0019 Swaffer, K. (2016). Co-production and engagement of people with dementia: The issue of ethics and creative or intellectual copyright, Dementia, Vol. 15(6) 1319–1325

Swaffer, K. & Mittler. P, (2016). The human rights of people with dementia: from rhetoric to reality, Graphic Print: Richmond SA. (Position paper produced for Dementia Alliance International)

Swaffer, K. (2016). What people with dementia want from residential care homes, Australian Journal of Dementia Care, vol. 5, no 3, 21-23 Phillipson, L. Cridland, E, Swaffer, K. and Brennan-Horley, C. (2016). Qualitative Research Involving People with Dementia: Recommendations for Conducting Semi-Structured Interviews, Qualitative Health Research, Vol 26, Issue 13, 1774 – 1786, doi.org/10.1177/1049732316637065 Fleming, R. Phillipson, L & Swaffer, K. (2016). DTSC’s aim to create Australia’s first dementia enabling university, Australian Journal of Dementia Care, 5-7

Swaffer, K. (2015). Prescribed Disengagement™, Dementia, Vol. 14, 3-6. DOI: 10.1177/1471301214548136

Swaffer, K. (2014). Dementia: Stigma, Language and Dementia-friendly, Dementia, Vol. 13(6) 709–716, DOI: 10.1177/1471301214548143 Swaffer, K. (2015). Not just a “Challenging behaviour”, Australian Journal of Dementia Care, vol. 4, no 3, 21-23 Swaffer, K. (2015). The power of language, Australian Journal of Dementia Care, vol. 4, no 1, 21-24 Swaffer, K. (2014/2015), Reinvesting in a life is the best prescription, Australian Journal of Dementia Care, vol. 3, no 6, 31-32 Swaffer, K 2014. Human rights in residential aged care: A consumer’s perspective, Australian Journal of Dementia Care, vol. 3, no 1, 9-10 Swaffer, K. (2013/14). Introducing the Australian Dementia Advisory Committee, Australian Journal of Dementia Care, vol. 2, no 6, pp. 13-14 Swaffer, K. (2013). Driving and dementia, Australian Journal of Dementia Care, vol. 2, no 4, pp. 17-18 Fleming, R, Phillipson, L, Swaffer, K, & Steele, L. (2016). Submission19: Inquiry into the


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'Indefinite detention of people with cognitive and psychiatric impairment in Australia'

Swaffer, K. (2012). Dementia: the reality, Inquiry into Dementia Early diagnosis and Intervention, Submission no 71

Swaffer, K. (2011). My Unseen Disappearing World, The Big Issue, no 389, pp. 16-19 Swaffer, K. (2008). Dementia: My New World, LINK Disability Magazine, vol. 17, no 4, pp. 12-13 BOOKS Swaffer, K, Le Blanc, B & Mittler, P (2019) Dementia as a DisABILITY, In Routledge Handbook of Disability Activism., Berghs, M., Chataika, T., El-Lahib, Y. & Dube, A.K. (eds.), London: Routledge.(In Press). Swaffer, K. (2018) “What the hell happened to my brain?: Living Beyond Dementia”, Chapter 34, in Alzheimer's and Dementia Caregiving Stories: 58 Authors Share Their Inspiring Personal Experiences (An AlzAuthors Anthology (Volume1), Edited and published by AlzAuthors, Kindle Edition. Swaffer, K & Low, LF. (2016). "Diagnosed with Alzheimer’s or another dementia: A practical guide for what's next for people with dementia, their families and care partners", New Holland Publishers: Sydney. Swaffer, K. (2016) “What the hell happened to my brain?: Living Beyond Dementia”, Jessica Kingsley Publishers, London. Swaffer, K. (2016). "Love Life Loss, A roller coaster of poetry volume 3: Haiku Mania", Ginninderra Press, [In Press]. Swaffer, K. (2016). "What the hell happened to my brain?: Living beyond dementia", Jessica Kingsley Publishers: London. Swaffer, K. 2012, Chpt 7, ‘You Live Until You Die’ in Willis, P & Leeson, K (eds), Learning Life from Illness Stories, Post Pressed, Mt Gravatt, Qld, pp. 90-101. Swaffer, K. (2016). "Love Life Loss, A roller coaster of poetry volume 2: Days of dementia", Ginninderra Press. Swaffer, K. 2012, Love Life Loss, A roller-coaster of poetry, Graphic Print Group, Richmond, SA. Swaffer, K. 2010, ‘ Kate’ in Words That Shine, Poetry and Poetics Centre, University of SA, Magill, pp. 11-16.


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Swaffer, K. 2009, ‘Slipping Away’ in Short, C et al (eds), Stratosphere, Piping Shrike, University of SA, Magill, p 85. RECENT CONFERENCE PRESENTATIONS (Full list available on request) → EC-HCCH Joint Conference on the Cross-border Protection of Vulnerable Adults,

Brussels, 5-7 December, 2018, representing ADI and DAI: The Need to an International and regional legal framework for the Cross Border Protection of Vulnerable Adults Point of View from Organisations providing services and/or protection.

→ 5th World Congress on Adult Guardianship: Meeting the Global Challenge – Cognitive Impairment and Human Rights, Seoul, October 2018

→ Lausanne V: Taking Transformative Action to Change the Course of Alzheimer’s Disease, Lausanne, October 2018

→ World Health Organisation mhGAP Forum: Dementia Care Pathways, Geneva, October 2018

→ Federation Alzheimer’s Italia, Responding to the WHO Global Dementia Action Plan, Milan, October 2018

→ Taiwan Ministry of Justice: Dementia & Human Rights: 2018 -2025 Taiwan Dementia Plan, September 2018

→ TADA: People Living with Dementia and Human Rights in Taiwan, September 2018 → University of Wollongong, iAccelerate: Impact4Change through Social Enterprise: Is it

possible?, August 2018 → Alzheimer’s Disease International: Auto ethnography: an intervention for dementia,

July 2018 PAST AND CURRENT PROFESSIONAL AND VOLUNTEER ACTIVITIES (2007-2018) → World Dementia Council, Member → Department of Health, Australia, SDCU Expert Advisory Group, 2017/18, Member → Alzheimer’s Disease International, Scientific Panel Committee for ADI Chicago 2018 → Member, Department of Health SA, Oakden Working Group, 2017 → Australian Aged Care Quality Agency (2016-2017)

o Steering Committee → Dignity in Care Australia: Action group, Member and Champion (2013-2017)

o Conference sub committee o Education sub committee

→ Cognitive Decline Partnership Centre, Steering Committee member, 2014-2016 → Paid Consultant, Alzheimer’s Australia, Dementia Friendly Communities, 2014-15 → International Consortium for Health Outcomes Measurement (ICHOM) Dementia

Working Group, core member, 2014-15 → Supporting GP’s and Practice Nurses in the timely diagnosis of dementia Project,

Steering Committee member, 2015-2017 → National Dementia in Hospitals program, Advisory committee member, 2015-2017


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→ Global Action on Personhood GAP in Dementia, core member of the Global group, and Chair of the Australian chapter, 2015 -2017

→ Consumer advocate with Alzheimer’s Australia (National office) 2010-2017 o Inaugural Chair, Dementia Advisory Committee (AADAC) 2013-2017 o Member, National Consumers Advisory Committee (NCAC), 2010-2015 o Co-chair, Consumer Dementia Research Network (CDRN) 2010-2016

CDRN subgroups and projects: § Children of YOD § Assisted technologies project, Associate Investigator § TRACS project, consumer representative § Hydration project § The key worker role of people with dementia and their carers § Systematic review and scoping study for the implementation of a

national approach to dementia specific Advance Care Planning § Review international dementia guidelines and synthesise to

develop national Australian guidelines → Consumer advocate with Alzheimer’s Australia South Australia (AASA)

o AASA Consumers Reference Group (2010-2017) o YOD reference group (2014-2016) o Dementia Friendly Communities Working Group (2014-2016)

→ Consumer Representative with Health Consumers Alliance SA o Older Persons Clinical Network (2012-15, SA) o Dementia Framework steering group o Advanced Care Directives committee

→ Author and Owner or Manager of Creating Life with Words: Inspiration, Love and truth and the Dementia Alliance International website.

Kate Swaffers personal website Creating Life with Words: Inspiration, Love and truth is an online space committed to meaningful dialogue with a wide range of stakeholders about the critical issues impacting a person living with a diagnosis of dementia and their loved ones. Currently with more than 110,000 subscribers, it was archived in 2012 in the PANDORA Collection of the State (SA) and National Library of Australia. This website is listed in the following educational institutions and organisations as a resource:

o University of Wollongong, Master’s of Science in Dementia Care o Queen Margaret University, Edinburgh, Masters of Nursing o Edinburgh University, MSc Dementia: International Experience, Scotland o Murray Alzheimer Research and Education Program, Ontario Canada o NSW Department of Health Dementia Care Resource and Training

Network o Flinders University, Bachelor Applied Science (Physiotherapy):

Rehabilitation of Degenerative Neurological Disorders o University of Tasmania, Wicking’s Understanding Dementia Massive Open

Online Course and Bachelor of Dementia Care o YoungDementiaUK


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REFEREES Dr Michelle Funk, Coordinator, Mental Health Policy and Service Development (MHP), Department of Mental Health and Substance Abuse, World Health Organization, [email protected] Ms. Ita Buttrose, AO OBE, Chair, ABC; Journalist; Businesswoman; Television personality and Author; Patron, Dementia Australia, [email protected] Professor Henry Brodarty, Scientia Professor of Ageing and Mental Health, Montefiore Chair of Healthy Brain Ageing Director, Dementia Centre for Research Collaboration Co-Director, CHeBA (Centre for Healthy Brain Ageing) University of New South Wales, [email protected]


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SUMMARY OF PROFESSIONAL AND VOLUNTEERING EXPERIENCE Co-founder, Chair, and CEO, Dementia Alliance International (DAI): DAI is a global advocacy and support group, of, by and for people with dementia of which I am a co founder. DAI is the voice of people with dementia globally, and the peak body for people with dementia. DAI now represents members from 47countries, is a member of the Council Of State Parties (COSP) of the CRPD, has Observer Member status with International Disability Alliance (IDA) and is working towards being in official relations with the World Health Organisation (WHO) and the United Nations (UN). As current Chair and CEO of this international charity, an advocacy, support and very active lobbying group, Kate manages the global network, the collaboration with the other peak bodies such as Alzheimer’s Disease International, as well as being on many of the sub committees and supporting numerous national and regional Dementia Working Groups. Kate frequently engages with the media, advocating for human rights, and other issues such as respectful dementia language both in the media, and within the wider community. The Global Rehabilitation Alliance: Due to Kate’s advocacy and work, Dementia Alliance International is one of the founding members of a new global Association, the Global Rehabilitation Alliance, who held their founding meeting during the World health Assembly in May 2018, as one of 14 founding organisation members. This is significant, as it will help ensure rehabilitation eventually becomes part of the suite of services and support all people with dementia are provided with and whom are currently denied. World Dementia Council: The World Dementia Council (WDC) is an international charity. It consists of 24 senior experts and leaders drawn from research, academia, industry and NGOs in both high income and low and middle-income countries and includes two leaders with a personal dementia diagnosis. WDC stimulates innovation and identifies and pursues priority opportunities for global collaboration against dementia. All of WDC’s meetings are attended by a number of its associate members, including from national governments, the WHO and OECD. Kate Swaffer is the only Australian to be a full member, and advocated for many months to ensure people with dementia were included as members, through her role as Chair of Dementia Alliance International. There are two members living with dementia, and Kate is also a member of two of the Global Teams, one on Care, the other on Risk Reduction. ICHOM Standard Set for Dementia: The International Consortium on Health Outcome Measures (ICHOM) approach is built on a solid framework developed at Harvard Business School by Professors Michael E. Porter and Elizabeth O. Teisberg. In 2006, Porter and Teisberg wrote the well-known book, Redefining Health Care, which outlines the argument for using health outcomes data to redefine the nature of competition in health care. The ICHOM Standard Set for Dementia is the result of hard work by a group of leading physicians, measurement experts and patients. As a full member of this team, Kate provided both intellectual advice, and perspectives from the experience of living with dementia and caring for three people with dementia, as well as her background in


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nursing. It was the recommendation of the outcomes that matter most to persons with Dementia that influenced this set of standards. ICHOM urges all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients with dementia.

Alzheimer’s Disease International, Board member and SE Asia Regional Mentor: Alzheimer's Disease International (ADI) believes that the key to winning the fight against dementia lies in a unique combination of Global Solutions and local knowledge. As such, it works locally, by empowering Alzheimer associations to promote and offer care and support for people with dementia and their carers, while working globally to focus attention on dementia. Our board is composed of people from around the world, and our staff team is based in London. ADI is the international federation of Alzheimer associations around the world, in official relations with the World Health Organization. Each member is the Alzheimer association in their country who support people with dementia and their families. ADI's vision is prevention, care and inclusion today, and cure tomorrow. Kate has been an active advocate for people with dementia with ADI since 2012, and has been on the board as a full member since 2014, and the SE Asia Regional Ambassador for ADI since November 2016. She has been a member of the ADI Scientific Panel for the last four international conferences.

Alzheimer’s Australia (now Dementia Australia) Dementia Advisory Committee: Kate was the inaugural Chair of this group, and advocated for two years for it to be set up and supported by Alzheimer’s Australia. The broad purpose of the Committee is to build on consumer focus within Dementia Australia, and includes providing advice and guidance to Alzheimer’s Australia and the Federal and state governments regarding the issues of importance or concern specifically to people with dementia. Membership is made up of twelve people with dementia from across Australia, originally from the ages of 43 and 72. It is the third of its kind in the world, and there are now many other countries supporting Dementia Working Groups. Kate is also very actively supporting Low and Middle Income Countries to set up Dementia Working Groups through her global work with DAI and ADI. Alzheimer’s Australia (now Dementia Australia) Consumer Dementia Research Network (CDRN): Members worked together to set priorities for dementia research and research translation, and have responsibility for driving the direction, assessment and funding decisions of Alzheimer’s Australia’s $3.3m National Quality Dementia Care Initiative. We have developed substantial expertise and a sophisticated understanding of the complexities of changing healthcare practice to reflect new research findings, and of evidence-based approaches to doing so. This involvement includes a number of sub groups and projects as they arise. This group is no longer operational. Alzheimer’s Australia (now Dementia Australia) National Consumer Advisory Committee (NCAC): The broad purpose of that Committee is to build on consumer focus within Alzheimer’s Australia and its State and Territory member organisations, and includes providing advice and guidance to Alzheimer’s Australia regarding the issues of importance or concern to consumers; being available for consultation on issues as they


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arise; Identifying emerging issues of interest to consumers; presenting a consumer perspective in public forums or to the media; participating on behalf of Alzheimer’s Australia on external committees; contributing to advocacy documents including Election Manifestos and Budget and other submissions; providing a consumer perspective on dementia research priorities; and monitoring the work of Alzheimer’s Australia in relation to consumer issues. This involvement included a number of sub groups and projects as they arose. This group is no longer operational. Dementia Australia SA: Consumers Alliance Committee, Dementia Friendly Communities Working Group and Younger Onset Dementia (YOD) Reference group. Consultant providing aged and dementia care staff education and a consumer voice: a growing number of Aged Care providers, including Group Homes Australia, ACH, Eldercare, ECH, Lorne Health Services, Lyndoch Living (Warnambool), Uniting Communities, RACF’s and Chaplains, Masonic Homes, ECH, ACH, Eldercare, Resthaven, Uniting Communities, SA & NT Dementia Training Study Centre, Domiciliary Care SA, Caring Choice, SA Health, Domiciliary Care, Caring Choice, who specifically request support from Kate for their work in improving the service provision of dementia care, and improving dementia environments. Kate also guest lectures at various universities, for example, RMIT and the University of Wollongong. Urban Myth Theatre Group and ECH: Collaborating on a play The Visitors about Younger Onset Dementia, and major contributor to accompanying Online SACE Education Pack to support Radio National play about older onset Alzheimer’s disease, Also A Mirror Purple Orange and Disability SA: Member National Disability Services SA: Consumer advocate, various projects including NDIS Health Consumers Alliance SA (HCA): The principal goal of the Steering Committee is to further develop the recommendations outlined in the South Australian Health Service Framework for Older People 2009-2016 and to monitor implementation of the recommendations from the Network and Service Plan. This includes advising on the development of patient centred, sustainable and effective clinical services across the continuum of care using models of care based on best practice and population need. The models shall be readily accessible, efficiently provided and evidence based. Consideration will be given to a range of approaches to ensure services are equitable for rural and remote consumers, Aboriginal and Torres Strait Islander and special population groups.

Adelaide Fringe My Unseen Disappearing World, with accompanying Youth Engagement Program Education Pack supporting Years 11 & 12 through SACE. Domiciliary Care SA training DVD, Kate’s story: a production funded and produced in 2012 by the state government of SA for training of staff within the department and Domiciliary Care SA


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Resthaven Inc and Uniting Communities: ‘Insider’s view of dementia and an enabler’s perspective’ a presentation; Training and projects related to: ‘Understanding the vulnerabilities of older people’ - Resthaven’s HACC Innovative Projects; ‘Stronger Communities Brighter Futures’; ‘Consumers Directing Consumer Directed Care’ and ‘Headstart to Independence’; ‘Asset Based Community Development’, ‘Valued Social Roles’, ‘Importance of Relationships and Social Connection’ - related to ‘Stronger Communities Brighter Futures’. ‘Consumer Directed Care- Understanding Control’: relates to ‘Consumers Directing Consumer Directed Care’; Steering Committee for ‘Stronger Communities Brighter Futures’ and a participant for the booklet The Good The Bad and The Brilliant: Lessons from the journey of living with dementia, published in 2012 Submission to Australian Government House of Representatives Committees: Inquiry into Dementia: Early diagnosis and Intervention, resulting in an invitation to present at a public meeting in Adelaide

Graham Wright and Associates, Success Motivation Institute (now Leadership Management Australia): motivational speaker from 1992-1996 and facilitator of motivation and time management workshops. Graham Wright was operating as a franchise for Success Motivation Institute, now Leadership Management Institute. Kate worked for this organisation in a casual capacity, teaching motivation through the SMI programs, and as a motivational speaker for four years. During this time, she was an active member of Rostrum Australia, an organisation to support finding your voice in public speaking.

The Bereaved Through Suicide Support Group Inc. (SA): Currently Professional Advisory Committee Member; Kate was an active volunteer for over nine years, as the Inaugural Chair, a grief support worker, working with the media and liaising on community awareness. She also worked as a grief educator and grief support worker, facilitating two peer-to-peer grief support groups per month for nine years, also hosting a 24/7 Helpline for that whole term for all people bereaved through suicide. This work included individual and family counseling, supporting families at the Coroners office and education of the community on the impact of suicide grief. During this time, Kate also was an inaugural member of a group no longer in existence, People Against Teenage Suicide (PATS), working with Professor Graham Martin, facilitated a monthly support group for young people under 18 living in the Adelaide Hills, bereaved from any type of loss and grief. Indigenous Tutor, Psychology, Law and Journalism: University of SA, working as a contract tutor for 8-10 hours per week with1st and 2nd year Indigenous psychology, law and journalism students, Regional Sales Manager roles: Mölnlycke Health Care; Medical Concepts, Bunzl Pty Ltd; Reliance Medical. Kate provided education and active sales into operating theatres in her position with Mölnlycke Health Care, acting as the regional manager in SA. In the next three positions, she worked as a Regional Manager in four states (SA, NT, TAS & NSW), and provided sales support to internal staff, and education to staff in hospitals and aged care facilities on wound care and continence management.


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Owner, Managing Director and head Chef: Babette’s Feasts Pty Ltd operating as three separate full time businesses, Kate Swaffer’s Katering, Café Cake and Beaumont House Events. She owned and operated these businesses through Beaumont House in Beaumont South Australia for almost ten years. Naval Military & Airforce Club SA Inc: Past Board member, membership committee member and active member from 1987 - 2005. Flinders University, School of Medicine: grief lecturer specifically lecturing in suicide grief to medical and nursing students Glenside Psychiatric Hospital: Past Board member Qualified nurse: Kate’s first career was in nursing spanning almost 25 years, specialising in Aged and Dementia care, then Operating Theatres. She worked at various public and private hospitals and aged care facilities in Adelaide. She continues to volunteer occasionally in aged and dementia care.