juvenile diabetes research
TRANSCRIPT
Mid-Ohio Chapter
Resource Guide
Produced by the Family Connections (outreach) Committee. We make every effort to keep this document as up to date if possible. If you find any information is incorrect or outdated, please notify JDRF at [email protected] or (614) 464-2873.
As you read through this document, please understand that the volunteers coordinating this manual, and JDRF, are not healthcare professionals and are unable to provide medical advice, for which you should consult your doctor or other healthcare professionals. The information, nor the way it is listed, is meant to be biased toward any medical professional, service, etc.
Thank you!As of June 21, 2006
JDRF Mid-Ohio ChapterResource Guide
Table of Contents
Page1 Introduction 3
2 About JDRF 3
3 When Your Child is Diagnosed 4
4 Ask a Volunteer 4
5 Medical Services in Mid-Ohio 4
6 Endocrinologists in Mid-Ohio 6
7 Diabetes Educators, Programs and Organizations 9
8 Other Specialists (child care, counseling, ophthalmology)
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9 Support Groups 14
10 Websites 15
11 Diabetes Camps 18
12 Travel Tips 20
13 Health Insurance/Government websites 24
14 Medical Supply & Prescription Assistance 25
15 School Issues 26
16 Athletics 32
17 Publications 32
18 Research Update 34
19 Mid-Ohio Chapter Information 35
20 Membership Information 37
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1. INTRODUCTION
The mission of the Juvenile Diabetes Research Foundation (JDRF) is to find a cure for diabetes and its complications through the support of research.
The Mid-Ohio Chapter of JDRF is providing this information to inform you of resources available, research initiatives and its activities to raise funds for research toward a cure for diabetes. For the most up to date information in any of the following sections, you are advised to consult the JDRF Mid-Ohio Chapter website (http://www.jdrf.org/midohio) or contact the chapter at 614-464-2873 or [email protected]. In individual sections of this guide, specific web pages relevant to the subject of interest are listed at the beginning of the section.
2. ABOUT JDRF
Please see section 19 or visit http://www.jdrf.org/midohio for specific information about the Mid-Ohio Chapter.
JDRF began in 1970, when parents of children with type 1 (juvenile) diabetes founded the organization to raise money and awareness for diabetes research. JDRF has a clear mission: to find a cure for diabetes and its complications through the support of research. In a typical year, more than 80 percent of JDRF’s expenditures directly support research and research-related education, making it the leading charitable funder and advocate of type 1 (juvenile) diabetes research worldwide. JDRF continually receives top rankings from the American Institute of Philanthropy and other independent sources that rate charitable giving.
Since inception, JDRF has awarded more than $900 million to diabetes research, including more than $98 million in FY2005. In FY2005, the Foundation funded 500 centers, grants and fellowships in 19 countries. JDRF’s business like approach for funding research includes taking requests for funding year round, a unique lay review combined with scientific peer review system, and accountability through reporting milestones.
Embedded in JDRF's mission are its three cure goals: Restoring normal blood sugar levels Preventing and reversing complications Preventing type 1 diabetes
JDRF leverages research funds by partnering with government agencies around the world. Its focus is obtaining the best research, anywhere in the world in the quickest timetable. Approximately 1/3 of the research is now outside the United States. JDRF helps scientists to collaborate, communicate, and share information across research disciplines and across traditional research lines. For more information on JDRF, please visit http://www.jdrf.org.
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3. WHEN YOUR CHILD IS DIAGNOSEDhttp://www.jdrf.org/index.cfm?page_id=103432
This section is especially for parents of children with diabetes. A new diagnosis of type 1 (juvenile) diabetes can spark a range of reactions, including anger, sadness and guilt. Whatever your feelings, they are normal and you are not alone. Life with diabetes poses challenges for every member of the family. Whether you have diabetes yourself, or are the parent or loved one of a person with diabetes, it takes time to adapt to the day-to-day demands of the disease. But treatment options are improving all the time, and diabetes will not prevent you or your child or loved one from living a full and active life. With medical and emotional support, children with diabetes and their families will learn to cope with the demands that the disease imposes. A child with diabetes, depending on age, will learn to take over much of his or her care. As time goes by, everyone will gain knowledge and confidence, and be able to celebrate successes, learn from mistakes, and move away from the intense feelings common after diagnosis.
Until there is a cure, we want to provide information that will help you cope with the burdens diabetes imposes, take advantage of help that is available right now, and keep you and your loved ones as strong and healthy as possible. The sections below contain some basic information about diabetes and its management that is based, first and foremost, on input from parents and children who have “been there” as well as from physicians and diabetes educators.
4. ASK A VOLUNTEER
The Mid-Ohio Chapter keeps a list of JDRF volunteers (parents, siblings, spouse, adults and teens who have diabetes) who are available to talk with you about their experience in dealing with diabetes. Please contact the Mid-Ohio Chapter at 614-464-2873 or [email protected] to be put in contact with one of the volunteers. We will do our best to match you with a volunteer who matches your specifications (age, area of town, etc.).
JDRF also offers an Online Diabetes Support team made up of JDRF volunteers from around the country: adults and teens who have diabetes; parents, siblings, spouses, grandparents, and others. To contact a member of the team, visit http://www.jdrf.org/index.cfm?page_id=103451 and submit your request.One of the team members will personally respond by e-mail within 48 hours. If you are UNDER 13, our team is unfortunately not able to respond to you directly, but you may have a parent contact us with questions
5. DIABETES MEDICAL SERVICES IN MID-OHIO
This information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers.
Appalachian Rural Health Institute Diabetes Center @ The Ohio University College of Osteopathic MedicineParks Hall (West Green)Athens, OH 56701(740) 593-2424http://www.oucom.ohiou.edu/arhi/dec.htm
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Central Ohio Pediatric Endocrinology and Diabetes Services (COPEDS)6353 Presidential Gateway, Suite 120Columbus, OH 43231(614) 839-3040http://www.copeds.com
Children’s Hospital700 Children’s DriveColumbus, Ohio 43205-2696 (614) 722-2000http://www.childrenscolumbus.org/gd/templates/pages/Home/home.aspx?page=1
Doctors Hospital 5100 West Broad StreetColumbus, Ohio 43228(614) 544-1000http://www.ohiohealth.com/facilities/doctors/
Grant Medical Center111 South Grant Avenue Columbus, Ohio 43215 (614) 566-9000; scheduling (614) 566-1111 http://www.ohiohealth.com/facilities/grant/
McConnell Heart Health Center3773 Olentangy River Road Columbus, Ohio 43214 (614) 566-5356http://www.ohiohealth.com/facilities/mcconnell/about/maps.htm
Mount Carmel West Hospital793 West State StreetColumbus, Ohio 43222-1560 (614) 234-5000http://www.mountcarmelhealth.com/index.cfm
Mount Carmel East6001 East Broad StreetColumbus, Ohio 43213 614-234-6000 http://www.mountcarmelhealth.com/index.cfm
Mount Carmel St. Ann’s500 South Cleveland Avenue Westerville, Ohio 43081 614-898-4000 http://www.mountcarmelhealth.com/index.cfm
The Ohio State University Medical CenterUniversity Hospital410 West 10th AvenueColumbus, Ohio 43210-1240
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(614) 293-8000http://medicalcenter.osu.edu/patientcare/hospitalsandservices/hospitals/university/
Riverside Methodist Hospital3535 Olentangy River RoadColumbus, Ohio 43214-3998(614) 566-5000; scheduling (614) 566-1111http://www.ohiohealth.com/facilities/maps/riverside/index.htm
6. ENDOCRINOLOGISTS IN MID-OHIOThis information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers. Please visit http://www.aace.com/index.php to find a complete up to date listing of endocrinologists in your area.
Juan F. Sotos, MD700 Children's Dr.Columbus, Ohio 43205
(614) 722-5125 Endocrinology/MetabolismPediatric Endocrinology
Monika Chaudhari, MD700 Children's Dr.Columbus, Ohio 43205
(614) 722-4425 Endocrinology/MetabolismPediatric Endocrinology
Robert P. Hoffman, MD700 Children's Dr.Columbus, Ohio 43205
(614) 722-4425 Endocrinology/MetabolismPediatric Endocrinology
Lawrence A. Wetterau, MD700 Children's Dr.Columbus, Ohio 43205
(614) 722-4425 Endocrinology/MetabolismPediatric Endocrinology
Sasigarn A. Bowden, MD700 Children's Dr.Columbus, Ohio 43205
(614) 722-4425 Endocrinology/MetabolismPediatric Endocrinology
William B. Zipf, MD6353 Presidential Gateway, Suite 120 Columbus, Ohio 43231
(614) 839-3040 Endocrinology/MetabolismPediatric EndocrinologyDiabetes
Rebecca Dorothy Jackson, MD 1581 Dodd Drive485 McCampbell HallColumbus, Ohio 43210-1257
(614) 292-3800 Metabolic Bone DisordersParathyroid DisordersOsteoporosis
William B. Farrar, MDN924 Doan Hall410 West 10th AvenueColumbus, OH 43210-1240
(614) 293-8890 Adrenal DisordersCancerParathyroid DisordersThyroid Dysfunction
James M. Falko, MD, FACC, McConnell Heart (614) 566-4248 Diabetes Mellitus
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FACE Health Center3773 Olentangy River RoadColumbus, Ohio 43214-3908
General Endocrinology and MetabolismLipid DisordersThyroid Dysfunction
Elizabeth Anne Diakoff, MD 1581 Dodd Drive491 McCampbell HallColumbus, OH 43210
(614) 292-3800 Diabetes Mellitus
Ravi Dhawale, MD
1581 Dodd Drive McCampbell HallColumbus, Ohio 43210
(614) 292-3800 Diabetes MellitusObesityNutrition
Daryl A. Cottrell, MD, FACECommunity Medicine500 Thomas Lane, Suite 2CColumbus, Ohio 43214-1419
(614) 566-5605 Diabetes MellitusGeneral Endocrinology and Metabolism
Elena A. Christofides, MD 72 West 3rd AvenueColumbus, Ohio 43201
(614) 453-9999 Adrenal DisordersDiabetes MellitusGeneral Endo/Metab.Lipid DisordersNutritionParathyroid DisordersPituitary DisordersThyroid Dysfunction
Samuel Cataland, MD441 McCampbell Hall1581 Dodd DriveColumbus, Ohio 43210-1257
(614) 292-5208 Diabetes MellitusGeneral Endocrinology and Metabolism
Angela Christine Bucci, DO 500 Thomas Lane, Suite 36Columbus, Ohio 43214-1419
(614) 457-7732 Adrenal DisordersDiabetes MellitusMetabolic Bone DisordersThyroid DysfunctionOsteoporosis
John D. Blackman, MD, FACE500 East Main Street, Suite 100Columbus, Ohio 43215-5369
(614) 233-9925 Diabetes MellitusGeneral Endocrinology and MetabolismMetabolic Bone DisordersPituitary DisordersThyroid Dysfunction
Romi Bhasin, MD, PhD Central Ohio Endo. LLC5969 East Broad Street, Suite 302Columbus, Ohio 43213
(614) 684-9581 Diabetes MellitusGeneral Endocrinology and MetabolismThyroid Dysfunction
Samuel R. Anderson, MD 500 Thomas Lane, Suite 3G
(614) 457-7732 Adrenal DisordersDiabetes Mellitus
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Columbus, Ohio 43214
General Endocrinology and MetabolismThyroid Dysfunction
Rebecca D. Jackson, MD University HospitalsJames Cancer HospitalUniversity Hospitals East
(614) 292-3800 General Endocrinology OsteoporosisMetabolic bone disease
Jennifer Taeko Rittenberry, MD 485 McCampbell Hall1581 Dodd DriveColumbus, Ohio 43210-1257
(614) 292-3800 Diabetes MellitusThyroid Dysfunction
Charles M. Katz, MD, FACE
941 Chatham Lane, Suite 206Columbus, Ohio 43221-2416
(614) 457-7746 Diabetes MellitusGeneral Endocrinology and Metabolism
Raheela Ajmal Khawaja, MDOhio State University
Ohio State University 491 McCampbell Hall1581 Dodd DriveColumbus, Ohio 43210-1257
(614) 688-5878 Diabetes MellitusPituitary DisordersThyroid Dysfunction
John N. Larrimer, MD 6020 Cranberry CourtColumbus, Ohio 43213
(614) 868-9129 CancerDiabetes MellitusThyroid DysfunctionOsteoporosis
William Blair Malarkey, MD Davis Medical Research Building 2111-EColumbus, Ohio 43210
(614) 293-8775 General Endocrinology and MetabolismPituitary Disorders
Manuel Tzagournis, MD 4335 Sawmill RoadColumbus, Ohio 43220
(614) 442-1980 Diabetes MellitusLipid Disorders
Raheela A. Khawaja, MD University HospitalsJames Cancer Hospital
(614) 292-3800 General Endocrinology
Lawrence S. Kirschner, MD, PhD
University HospitalsJames Cancer Hospital
(614) 292-3800 Endocrine Tumors Pituitary Tumors Thyroid Tumors Adrenal Tumors
Dara P. Schuster, MD University HospitalsJames Cancer Hospital
(614) 292-3800 Diabetes and Glucose Metabolism
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Mortimer Dolman, MD University Hospitals East
(614) 471-9788 Diabetes and MetabolismGeriatric Medicine
Steven H. Lichtblau, MD University Hospitals (614) 527-2562 Endocrinology General Internal MedicineGeriatrics
7. DIABETES EDUCATORS, PROGRAMS & ORGANISATIONS IN MID-OHIOThis information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers. A list of up-to-date Diabetes Educators can be found via http://members.aadenet.org/Scriptcontent/AADE_Educator_Search_Action.cfm.
Diabetes Educators
Name Company/Employer City Zip Phone
Brenda Ames Medical And Surgical Assoc
Newark 43055 (740) 344-6901
Marti Andrews, PhD, RD, LD
The Ohio State University
Columbus 43210 (614) 688-8656
Glenna J. Bell, RD, LD Memorial Hospital Of Union County/Food & Nutrition
Marysville 43040 (937) 578-2442
Cherrie A Cherrington, RN CDE
Mc Connel Heart Health Center/clinic
Columbus 43214 (614) 566-5143
Valerie J Christensen, RN CDE
Va Opc Columbus Ohio Columbus 43203 (614) 257-5684
Jane E. Collins, RN BSN CDE
Mount Carmel West Hospital
Columbus 43222 (614) 234-3823
Denise Cooper, BSN MSN CDE
Marietta Memorial Hosp/Diabetes Education
Marietta 45750 (740) 568-5433
Mary Dye, RN CDE Washington Court House
43160 (740) 333-2954
Jennifer L Dzwonczyk, BSN
Riverside Methodist Hospital
Columbus 43214 (614) 566-5551
Patricia S. Graves, RN CPNP CDE
Central OH Pediatric Endo & DM Services
Columbus 43231 (614) 839-3040
Cara Harris, CNP The Ohio State University
Columbus 43210 (614) 688-3818
Julia A Hitch, RN BSN CDE
Mt Carmel Health Systems
Columbus 43222 (614) 234-7114
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Teresa H Knicely, RN CCM CDE
Licking Memorial Hospital/comm Case Mgmt
Newark 43055 (740) 348-1834
Tracey Kubik, RD LD Central Ohio Primary Care Physician's Inc.
Columbus 43214 (614) 459-0216 ext 204
Jan E Martin, RD LD CDE
Endocrinology Assoc Inc
Columbus 43201 (614) 453-9999
Gail M. Meddles, RN Memorial Hospital Of Union Co/Diabetes Ed
Marysville 43040 (937) 578-2280
Stacey L Newpoff, MS RD CDE
Mc Connell Heart Health Center/DM Self-Mgmt
Columbus 43214 (614) 566-3801
Allen Nichol, PharmD Grandview Family Practice
Columbus 43212 (614) 488-5996
LyndaPeel
Children’s Hospital Columbus 43205 (614) 722-6550
Beverly L. Pinkston, RN BSN CDE
Central Ohio Diabetes Association
Columbus 43201 (614) 884-4400
Audrey Scott, RD LD CDE
Central Ohio Primary Care Physicians Inc/DM Education
Columbus 43214 (614) 459-0216 ext 202
Suzanna H Theodoras, RN CDE
Ohio University / A R H I Diabetes Center
Athens 45701 (740) 593-2453
Wynola N Wayne, RN BSN CDE
Childrens Hospital Clinical Svcs &cc
Columbus 43205 (614) 722-6217
Keirsten M. Welch, RD LD
Paramount Nutrition Therapy, Llc
Columbus (800) 631-3766
Education Programs
Children’s HospitalDiabetes Medical Services in Mid Ohio(614) 722-4949Community Education Institute for Pediatric Education700 Children’s DriveColumbus, Ohio [email protected]
OSU Division of Endocrinology and Metabolism (614) 293-8000420 West 10th AveColumbus, Ohio 43210Classes to people with (or family of) type 1 or type 2 diabetesFor general information and newly diagnosed patients. Classes are also offered for: those using insulin with an intensive schedule (three or more injections daily) and carbohydrate counting;
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those beginning to use insulin or using an insulin delivery device; and those beginning to use an insulin pump or needing review sessions. http://medicalcenter.osu.edu/patientcare/healthinformation/support/?ID=1323&GID=76
Central Ohio Diabetes Association (614) 884-44001100 Dennison Ave.Columbus, Ohio 43201Diabetes classes offer a comprehensive look at self-management techniques. A registered nurse and dietitian, who are both certified diabetes educators, teach a series of four two-hour classes. Classes include meal planning, medications, stress management and other diabetes-related topics. Many insurance companies cover the fee. For persons on a limited income, reduced fees are available on a sliding scale. No one will be denied services because of inability to pay. Day and evening sessions are offered. To register for the class series and inquire about fees, call Central Ohio Diabetes Association at (614) 884-4400 or 1-800-422-7946. Registration is required and class size is limited.http://www.diabetesohio.org/cms/content/view/11/34/
Diabetes Services at the McConnell Heart Health Center(614) 566-53563773 Olentangy River Road Columbus, Ohio 43214
Classes covering diabetes, ketone testing, insulin and oral medications, home blood sugar testing, meal planning, grocery shopping, eating out, hyper-hypoglycemia, exercise, foot care and travel.
Setting personal behavior change goals with assistance from an educator; follow-up through individual appointment by phone and/or mail.
Individual instruction on diet, home blood sugar monitoring and insulin administration. On-going continuing education and follow-up visits available. Up-to-date education materials, resources, films and visual aids. Education during pregnancy.
Classes are offered both daytime and evenings. Family members or significant others are encouraged to attend classes at no additional charge. Classes are offered at the McConnell Center. http://www.ohiohealth.com/services/conditionsanddiseases/diabetes/index.htm
Diabetes Self-Management Program at Mount CarmelSeveral locations available. Please call: (614) 234-2628A collection of classes, consultations and support groups about the demands of your disease and put you in touch with the people who can help you manage it. The program gives you the tools to control your diabetes - so it doesn't control you. In addition to offering education, the Diabetes Self-Management Program introduces you to others who are dealing with the disease and living well. Taking part in the program left them more in control of their illness and better prepared to cope with the disease. The American Diabetes Association has recognized the Diabetes Self-Management Program at Mount Carmel for Quality Self-Management Education. http://www.mountcarmelhealth.com/520.cfm
Applachian Rural Health Institute Diabetes Center Ohio University College of Osteopathic Medicine
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011 Grosvenor Hall (West Green)Athens, OH 45701(740) 593-2453
National Kidney Foundation Central Ohio Chapter (614) 481-4030 1373 Grandview Avenue Columbus, Ohio 43212
Printed materials Medical ID bracelets Summer camp
Life Care Alliance (614) 278-3130 1699 West Mound Street Columbus, Ohio 43223
Call for location of individual centers Wellness centers to assess blood glucose, blood pressure and some nursing services Housekeeping services Home care, diabetes teaching
Bureau of Services for Visually Impaired (614) 466-7730 3333 Indianola Avenue, Suite 402 Columbus, Ohio 43214-4192
Vocational rehabilitation Adoptive training Restoration Vocational development for school age youth
Ohio Society to Prevent Blindness (614) 464-2020 1500 W. Third Avenue, Suite 20 Columbus, Ohio 43212
Free glaucoma and visual acuity screening Information and referral services
Vision Center (614) 294-5571 1393 North High Street Columbus, Ohio 43201
Personal and work adjustment in activities of daily living with a vision deficit
Diabetes Organizations
Juvenile Diabetes Research Foundation (614) 464-2873 134 A2 Northwoods Boulevard Columbus, Ohio 43235
Literature about research efforts, diabetes, care-giving, self-management, etc.
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Education Support groups and resources for children and parents
Central Ohio Diabetes Association (614) 884-4400 1100 Dennison Avenue Columbus, Ohio 43201
Public education programs Adult support groups
One month free supply of strips and lancet once a year (for people in need)
American Diabetes Association (614) 436-1917 937 High Street Worthington, Ohio 43085
Membership programs Equipment loans Emergency patient assistance
8. OTHER SPECIALISTS/SERVICES
This information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers.
ChildcareSitters Unlimited – have sitters identified who have experience with type 1 diabetesContact: Julie O’Donnell at 614-799-9116
CounselingAnthony Alioto, PhDChildren’s Hospital Psychology Department614-722-4700
Jolie Brams, PhDChildren’s Hospital Guidance Centers Intake614-222-1999
Dan Davis, PhD614-451-6157
Marcia Huhn, MS, LPCCGerlach, Lear & Assoc., Inc.614-451-9401
Sawmill Family Counseling614-766-1061
Erin K. Torson, Ph.D.Children's Hospital Behavioral Health614-355-8330
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Susan Welner-Brunton, PhD614-841-9686
OphthamologyMary McGregorPediatric Ophthalmology Assoc. Inc.614-224-6222
9. SUPPORT/NETWORKING GROUPS FOR PARENTS & CHILDREN WITH DIABETES IN MID-OHIO
Columbus Area
1. POLO (Parents of Little Ones) – bimonthly support/networking group with guest speakers. Parents, family and friends are encouraged to attend. POLO is not designed just for parents of young children; those with older children are encouraged to attend. Children are welcome. Contact: announcements are posted on JDRF chapter website (http://www.jdrf.org/midohio) Calendar of Events, or contact the JDRF office at 614-464-2873 or [email protected] to be added to the mailing list (email or hard copy).
2. Mom’s Night Out – an opportunity for mom’s to get together. Meets monthly at Columbus area restaurants. Contact: Kathy Feeley at [email protected]; announcements posted on chapter website.
3. Playgroups - North Columbus area coordinated by Megan Jaycox [email protected], also posted on the chapter website calendar of events.
4. “Insulin Pumpers' Support Group” – meets monthly at Columbus area restaurants. This is an un-structured, friendly, stress free group of men and woman ages 20-50, who are using the pump, but everyone is welcome. It is a chance for people to swap ideas, new techniques or products, ask for suggestions or contacts, etc. Contact: If you have any questions or would like to be included in the email notification/reminder list, please email Kristen McMahon at [email protected] or Cheryl Manbeck at [email protected].
Mansfield Area
1. MedCentral Mansfield Juvenile Diabetes Support Group – meets 3rd Monday of the months throughout the school year (Sept. – Nov. and Jan. – May) at 335 Glessner Ave. (Mansfield) in the Patient Education Suite. Contact: Donna Dillinger, 419-526-8923.
Knox County Area
1. Support Group – meets every other month during the school year at the Knox County Health Department, first Thursday of the month, 6:30 p.m. Contact: Lindsay Davis at [email protected].
10. DIABETES WEBSITES TO EXPLORE
http://www.jdrf.org
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JDRF website. Includes the latest news and breakthroughs in diabetes research, the activities of JDRF and “Kids Online” http://kids.jdrf.org/, a special site devoted to children with diabetes.
http://kids.jdrf.org/index.cfmJDRF Kids Online. The website for kids with diabetes and their friends and family.
http://www.medhelp.org/perl6/Diabetes/Med Help - Juvenile Diabetes Forum. This extensive resource for consumer health information on the Web features a Juvenile Diabetes forum staffed by JDRF volunteers.
http://diabetes.niddk.nih.gov/index.htmThe National Diabetes Information Clearinghouse (NDIC). A service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). Established in 1978, the clearinghouse provides information about diabetes to people with diabetes and to their families, health care professionals, and the public.
http://diabetes.niddk.nih.gov/dm/pubs/dictionary/This dictionary from the NIDDK defines words that are often used when people talk or write about diabetes. It is designed for people who have diabetes and for their families and friends.
http://ndep.nih.gov/The National Diabetes Education Program is a federally-sponsored initiative that involves public and private partners to improve the treatment and outcomes for people with diabetes, to promote early diagnosis, and to prevent the onset of diabetes.
http://www.cdc.gov/diabetes/faq/index.htmThe Centers for Disease Control and Prevention (CDC), an agency of the Department of Health and Human Services, provides answers to frequently asked questions about Diabetes, along with information about prevention and treatment.
http://www.dlife.com/dLife.com serves as a total diabetes hub, featuring the latest information and exclusive content about both types 1 and 2 from many of the top experts in the world. Topics include diagnosis, research, lifestyle, and diabetes treatment and management information.
http:// www.childrenwithdiabetes.com An "online community" for kids, families, and adults with diabetes. Includes sample 504 and IEP plans.
http://www.fda.gov/diabetes/ - U.S. Food and Drug Administration website. The FDA regulates the medical products used to treat diabetes, including glucose meters, insulin pumps, diabetes medicines, and insulin. Its Web site is an excellent source for new products that have received FDA approval and other current information about diabetes care.
http://www.diabetesmonitor.com/"Monitoring diabetes happenings everywhere in cyberspace."
http://www.diabeteswellness.net/
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Diabetes Research Wellness Foundation/Diabetes Wellness Letter website. Articles on treatment, diet and exercise, and lifestyle.
http://www.newtecumseth.library.on.ca/banting/Banting Digital Library website. History of discovery of insulin; links to U.S./international diabetes organizations.
http://www.insulin-pumpers.org/Insulin Pumpers. Provides information and support for adults and children with diabetes and their families interested in insulin pump therapy.
http://www.aadenet.org/American Association of Diabetes Educators (AADE) website. General diabetes information; find a diabetes educator.
http://www.diabetes-exercise.org/index.aspDiabetes Exercise and Sports Association (DESA) website. DESA exists to enhance the quality of life for people with diabetes through exercise and physical fitness.
http://www.aace.com/index.phpAmerican Association of Clinical Endocrinologists (AACE) website. A professional medical organization devoted to the enhancement of the practice of clinical endocrinology.
http://www.diabetescamps.org/Diabetes Camping Association. Lists diabetes camps worldwide.
http://medicalcenter.osu.edu/patientcare/healthinformation/The Ohio State University Medical Center has information on diabetes classes that are offered through the OSU Division of Endocrinology and Metabolism.
http://www.diabetesohio.orgCentral Ohio Diabetes Association.
http://www.Diabetes.org/American Diabetes Association website.
http://www.themedicineprogram.com/Provides prescription medication for people who do not have adequate insurance coverage or are experiencing financial hardship- no toll free number but can be reached at (573) 966-7300.
www.thorfoundation.orgT.H.O.R. Foundation has a good up to date news section.
www.jewishdiabetes.orgFor people who are interested in a Jewish diet and lifestyle while coping with diabetes.
www.healthMBA.comCommercial website for diabetes medical help.
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www.diabetes123.comAn online support website with a good teen chat room.
http://www.eatright.org American Dietetic Association
http://eatrightohio.org The Ohio Dietetic Association’s site provides food and nutrition information in Ohio.
http://www.nutrition.gov/This site includes a variety of nutrition information and features specific nutrition information on a variety of foods.
http://www.diabetes.ca Canadian Diabetes Association
http://www.diabetesworld.com Diabetes Interview
http://www.diabeteslife.net Diabetes Life Network
http://www.healthlinkusa.com Health-related search engine.
http://www.americanheart.org American Heart Association website has information on ways you can reduce your chance of heart disease and other complications of diabetes.
http://www.healthfinder.gov Health Finder: English and Spanish health information.
http://www.4woman.govNational Women’s Health Information Center.
http://www.noah-health.org The New York Online Access to Health features information in English and Spanish. The site has extensive diabetes information with links to many other diabetes related sites.
http://www.type1tools.comType1Tools offers educational tools designed to simplify everyday tasks and build knowledge and confidence in children with type 1 and type 2 diabetes.
http://www.diabetes.com/This site specializes in type 2 diabetes.
http://www.celiac.org/connections.phpCDF's mission is dedicated to providing services and support regarding Celiac Disease and Dermititis Herpetiformis through programs of awareness, education, advocacy and research.
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11. DIABETES CAMPS Below is a listing of camps for children with diabetes in Ohio. Please visit http://www.diabetescamps.org/ for a full listing of camps for children with diabetes worldwide.
Stepping Stones Camp Central Ohio Diabetes Association1100 Dennison AvenueColumbus, Ohio 432011-800-422-7946 (in Ohio)(614) 884-4400(614) 884-4484 [email protected] program designed for first-time campers and those recently diagnosed to assist in learning more about themselves and diabetes. Stepping Stones is a three-day day camp with an overnight campout. Located at Hoover Y-Park, 1570 Rohr Road, Lockbourne, Ohio, just south of Columbus; 9:00 a.m. to 4:00 p.m.
Camp Hamwi ProgramsCentral Ohio Diabetes Association1100 Denison AvenueColumbus, Ohio 432011-800-422-7946 (in Ohio)(614) 884-4400(614) 884-4484 [email protected] beginners to more practiced individuals, Camp Hamwi offers a diverse program for any skill level. The camp environment promotes a sense of team spirit and good sportsmanship in individual and group activities, and competitive and non-competitive challenges. Campers are encouraged to try new skills and explore their unique individual potentials. Activity options include horseback riding, archery, volleyball, soccer, canoeing, swimming, arts and crafts, drama, dance, outdoor living skills, nature crafts, and outdoor adventure. Incorporated into the daily schedule are diabetes education sessions to increase campers' understanding of diabetes. The program is specially designed to address the interests of a particular age group.
Trailblazers Week (ages 7 - 10)Activities and programs are geared to entertain and encourage the youngest resident campers. Hayrides, water games, a talent show and a treasure hunt are a few of the activities that make this program full of wholesome fun and delight. Special programs highlighting the Trailblazer week include a spectacular carnival celebration where everyone comes dressed in their zaniest attire. Explorers Program (ages 11 - 13)A week of adventure created to inspire this energetic group of campers. Rafting along the Mohican River or spending a day swimming, boating and tubing at the lake. Explorers are busy with an exciting array of activities. Evenings find campers dressing up for a variety show or preparing for a day of Olympic competition. Senior Challenge (ages 14 - 17)A more advanced program structured to challenge our oldest campers. Seniors are exposed to rappelling, river canoeing, overnight camping, initiative games and much more. Senior campers are privileged to invite a friend to attend Hamwi with them. Friends can use the application form,
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checking the appropriate "Friend" box. Counselors-In-Training (ages 17 - 18)For individuals entering their senior year of high school and looking for an opportunity to develop their leadership potential. No longer campers and not yet staff, C.I.T.s undergo a comprehensive counselor training program designed to increase their awareness of counselor responsibilities and leadership roles. To apply for this program, please contact the camp director.
Camp Ho Mita KodaCamp Ho Mita Koda Administrative Offices 3601 S. Green Road, Suite 100Cleveland, Ohio 44122(216) 591-0800email: [email protected] website: www.CampHoMitaKoda.orgCamp Ho Mita Koda's mission is to enable children to live well with diabetes through an enjoyable camp experience.
Camp Ko-Man-SheDiabetes Association / Dayton Area - DADAWest Medical Plaza1 Elizabeth Place, Suite 180Dayton, Ohio 45408Phone: (937) 220-6611Fax: (937) 224-0240E-mail: [email protected]: www.diabetesdayton.orgCamp Ko-Man-She provides a safe, healthy and natural environment for your child's camping adventure. Programs offered at camp have been well thought out and planned for maximum stimulation and enjoyment. A goal of camp is to teach skills to your child that will help them manage their own diabetes.
Diabetes Resident CampThe Diabetes Youth Program3100 W. Central Avenue, Suite 158Toledo, Ohio 43606(419) 578-1796Robin Condon BSN, RN, CDEwebsite: www.dys4kids.org/The Diabetes Resident Camp is the only camp of its kind in northwest Ohio to offer a weeklong outdoor adventure for pre-teen and teenage children with diabetes. Campers with diabetes are welcome to share the week with friends or family members who may not have diabetes and care about someone who does.
Summer Day Camp The Diabetes Youth Program3100 W. Central Avenue, Suite 158Toledo, Ohio 43606(419) 578-1796Robin Condon BSN, RN, CDEWebsite: www.dys4kids.org/
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The Diabetes Educational Summer Day Camp provides specialized learning programs designed for elementary school students with diabetes. In a fun-filled recreational setting, the camp offers these children practical solutions to problems they confront daily because of their diabetes.
2005 Kids Day CampHoover Y-Park, 1570 Rohr Road, Lockbourne, Ohio just south of Columbus; 9 a.m. to 3 p.m. This three-day program, June 20-22, is for young children with diabetes, ages 3 to 7, to participate in three days of outdoor fun, group games and diabetes education. Parents and siblings are welcome. Cost is $85 per camper. Call the Central Ohio Diabetes Association at 614-884-4400 or 1-800-422-7946 to register.
12. DIABETES TRAVEL TIPS
Diabetes care needs continue, even if you are traveling. However, with a few simple precautions and a little planning, you should be able to travel without any difficulty. When traveling, follow the tips listed below:
Carry a first aid kit with bandages, gauze pads and antibacterial soap. Wear diabetes identification. Travel with someone, if possible. Carry the telephone
number of your doctor. Request a diabetic meal if you are flying. Most airlines do provide special meals with 24-
hour notice. Follow your meal plan and try to eat on time. Carry a supply of food in case of delayed meals. Try small cans of juice, dried fruit,
cheese, crackers, peanut butter, and glucose tablets. Maintain fluid intake (diet sodas, decaffeinated tea/coffee, water, etc.).
Drink bottled water in countries where drinking water may be unsafe. Carry your medications and glucose meter with you if you are flying. Baggage can be
lost during travel and temperatures not controlled in airline baggage compartments may affect your insulin.
Bring extra medications in case you are delayed in returning home. You may need a prescription or letter from your doctor stating that you are on insulin if you are going through customs. Bring extra monitoring supplies.
If changing time zones, you may need to change your medication schedule. Discuss this with your doctor.
If traveling by car, do not store insulin in the car overnight or where it will freeze or become overheated.
Carry a list of your medications in your wallet at all times. Include your drug allergies. Take medications to control vomiting or diarrhea, and bring antacids to counteract new
foods. If you have type 1 diabetes, carry urine ketone strips to monitor your urine as needed.
http://jdrf.org/index.cfm?page_id=103441
Travel TipsWhether you’re planning short day trips or a voyage of several weeks, thinking ahead will alleviate many problems, not to mention a lot of stress. Although diabetes requires extra work, you will find that virtually any trip or event you have planned is do-able. So read on and prepare to have a fabulous family vacation.
Put together a support teamDiscuss vacation plans with your doctor and other diabetes care providers to work out a tailored
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plan. Any change in activity can affect blood sugar levels. For big trips, added excitement may cause lows, so you may want to consult your doctor for help with changing insulin dosages at such times. Also, ask your doctor for a letter explaining your medical condition and treatment needs, and get a prescription for insulin in case of an emergency. Make any special accommodations for your child with diabetes well in advance of camp trips and other events. Speak to camp counselors, coaches, relatives, friends, etc. ahead of time to be sure you and your child will have enough support wherever you go. If you’re not comfortable with the level of support, change your plans. Pack extra supplies of everything you use to treat diabetes, and pack them in more than one bag, including a carry-on or purse. Make sure you wear your medical ID bracelet, or other medical identification, and let friends or family members know your itinerary. You may also want to make reservations at restaurants to avoid long waits, and ask if they can provide you with nutritional information on their menu items.
Check blood sugar levels more oftenIn general, people with type 1 diabetes should check blood sugars at least six times a day as part of their regular routine, and more whenever their schedule changes. Heat and excitement are two factors that can significantly affect blood sugar levels. The more often you check blood sugars, the more easily you’ll be able to anticipate and avoid problems.
The insulin pump is becoming more and more popular, as it provides quite a bit of flexibility in your routine while also eliminating the need for insulin injections. Kids are becoming “pumpers” at very young ages and immediately after diagnosis as the technology improves and word spreads. If you have a child with diabetes, ask your doctor if the pump is right for him or her and, if possible, speak to other parents about their experiences with their children or teens on the pump.
Beat the heatPeople with diabetes may experience more low blood sugars in the heat, so take extra precautions. Dehydration can be a serious problem, whether or not you have diabetes, so make sure you carry water with you at all times, even when going to the beach or pool for the day. Most experts recommend drinking at least eight 8-oz. glasses of water a day in order to avoid problems, and even more if you’re going to be very active.Keep meters, test strips, and insulin out of direct sunlight and use insulated containers or ice packs, but be sure insulin does not freeze. Special considerations for amusement parksIf you are taking a child with diabetes to a major amusement park like Disney World, the first thing you should do when you arrive is go to the guest relations office. Explain to the staff that your child has diabetes and must eat, check blood sugars, and take insulin at specific times. Some of them will give you a pass that will get your family in the handicapped line for most rides, which will drastically cut the amount of time you will have to wait in lines. Bring a backpack with snacks, juices, water, and all your diabetes supplies. You may also want to pack meters and insulin pumps in waterproof bags so they don’t get wet on water rides. If your child is relatively young, you can also rent a stroller for the day and stash supplies in there—and when he/she gets tired, he/she can rest in it, too. Many parents also suggest making reservations for sit-down meals at amusement park restaurants before leaving for your trip.
Tips for Flying with Diabetes SuppliesIf you are traveling by air, be sure you have the latest information about flying with diabetes supplies. The information below is an excerpt from the guidelines for travelers with diabetes
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provided by the Transportation Security Administration of the Department of Homeland Security. Please note that JDRF is not responsible for the accuracy of this information. You may want to print this page to take with you to the airport, as well as call your airline for additional information.
http://www.tsa.gov/public/interapp/editorial/editorial 1375.xml
Persons with Diabetes Notify the screener that you have diabetes and are carrying your supplies with you. The
following diabetes-related supplies and equipment are allowed through the checkpoint once they have been screened:
insulin and insulin loaded dispensing products (vials or box of individual vials, jet injectors, pens, infusers, and preloaded syringes);
unlimited number of unused syringes when accompanied by insulin or other injectable medication;
lancets, blood glucose meters, blood glucose meter test strips, alcohol swabs, meter-testing solutions;
insulin pump and insulin pump supplies (cleaning agents, batteries, plastic tubing, infusion kits, catheters, and needles);
Glucagon emergency kit; Urine ketone test strips; Unlimited number of used syringes when transported in sharps disposal
container or other similar hard-surface container; Sharps disposal containers or similar hard-surface disposal container for storing
used syringes and test strips. Insulin in any form or dispenser must be clearly identified. If you are concerned or uncomfortable about going through the walk-through metal
detector with your insulin pump, notify the screener that you are wearing an insulin pump and would like a full-body pat-down and a visual inspection of your pump instead.
Advise the screener that the insulin pump cannot be removed because it is inserted with a catheter (needle) under the skin.
Insulin pumps and supplies must be accompanied by insulin. Advise screeners if you are experiencing low blood sugar and are in need of medical
assistance. You have the option of requesting a visual inspection of your insulin and diabetes
associated supplies.
If you encounter problems with the screening process, ask to speak with the TSA security supervisor. You can report problems encountered while traveling by calling the TSA Consumer Response Center toll free at 1-866-289-9673.
http://kids.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=2248E773-5004-D739-A58A6CE0F7727A12
Below are some checklists to help you prepare for your trip:
What to pack for a:
One-Night Sleepover Pajamas Clean underwear
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Toothbrush and toothpaste Glucose tablets or other emergency sugar source Snack for low blood sugar Glucose meter and strips (check the supply before you go!) Insulin and syringes (again, check before you go!) A Glucagon emergency kit Emergency phone number easily accessible to your friends Your diabetes ID bracelet or card, with a note explaining what to do if you start acting
strange
What to add for a:
Several-Day Camp Away Enough nonperishable snacks (granola bars, crackers) for each day Glucose meter and enough strips, insulin and syringes for each day A few bottles of water to help you stay hydrated Information about where to find medical care in the area
What to add for a:
Vacation of a Week or More A note from your doctor explaining how to contact him or her A copy of your prescriptions (including nondiabetes medications) Enough insulin and strips for the whole trip, plus extra for unforeseen situations Enough snacks to make up for a lost meal (fruit, crackers, string cheese, peanut butter
and jelly, bread)
What to add for a:
Trip to a Foreign Country A prescription from your doctor in case of stomach upset or diarrhea A card that says "I have diabetes" in the language of your destination Enough phrases in the language to be able to order meals and get medical help
Traveling? Here's how to pack your insulin:
Cushioned, such as between layers of clothing In an insulated container (like a thermos) that has been cooled first At a comfortable, cool temperature: not too hot or too cold In bags that you will carry with you (do not check at the airline counter or stick in a hot
trunk) In more than one bag, in case you lose one.
Put your insulin in a refrigerator as soon as you have arrived at your destination. It may be helpful to call ahead to arrange for refrigeration.
13. HEALTH INSURANCE/ GOVERNMENT WEBSITES
From the JDRF Life with Diabetes E-Newsletter (November 2005)Ask a medical professional - Insurance Answers & QuestionsBy Kathy Spain, R.N., C.D.E., Mother of Will, age 10, diagnosed age 2
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If you or a family member has recently been diagnosed with diabetes, chances are that meeting the cost of diabetes medications and supplies such as insulin, meters, and test strips, and finding good health coverage are significant concerns for you. You may wonder how your family can afford health coverage or how you would go about finding health insurance for your child with diabetes. Are large-ticket items such as pumps covered? What are the rights of a person with diabetes when it comes to medical insurance? There are many resources to help you answer your questions and to assist you in finding satisfactory coverage. If you have trouble obtaining or keeping your insurance, there are resources to help you explore options.Covering the Cost of Your CoverageIf you are concerned that you cannot cover the costs of diabetes care, a publication titled “Financial Help for Diabetes Care” can help you learn about your options. Published by the NIH’s National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), this easy-to-read guide offers an overview, with contact information, about resources such as Medicare, Medicaid, and health insurance programs that cover diabetes-related medical expenses or low or no-cost health care for people with diabetes. You can view this publication on the NIDDK website at http://diabetes.niddk.nih.gov/dm/pubs/financialhelp or order copies from the National Diabetes Information Clearinghouse at 1-800-860-8747.
Laws to Protect YouAn important insurance issue a person with diabetes may face is when a new insurer defines diabetes as a ‘pre-existing condition’ and excludes or limits diabetes-related care coverage. There are laws that protect people with diabetes who encounter pre-existing condition exclusions. For people with individual (as opposed to employer-sponsored or group) health insurance coverage, 46 states now have laws requiring health insurance coverage to include treatment for diabetes. (The exceptions are Alabama, Idaho, North Dakota and Ohio.) Laws governing health coverage vary from state to state, and you will want to start with the healthcare regulations and laws for your state. “A Consumer Guide for Getting and Keeping Health Insurance,” a resource published by the Institute for Health Care Research & Policy at Georgetown University is available for each of the 50 states. It can be accessed online at www.healthinsuranceinfo.net. For those insured through an employer-sponsored group health plan, protection from coverage being denied to a person with diabetes is offered by the Health Insurance Portability and Accountability Act of 1996 (HIPAA). The Act also helps workers who change or lose jobs to maintain their health insurance. (The HIPAA provision, however, only refers to group plans, such as employee health plans, and not individual health plans.) You can read detailed information about HIPAA on the US Department of Health and Human Services website at www.hhs.gov/ocr/hipaa.
Insurance Programs for ChildrenFor children of families with limited financial resources, there are multiple programs available at the state level. Medicaid is a state-administered program and each state sets its own guidelines regarding eligibility and services. You can find information for your state at the Medicaid site for consumer information at http://www.cms.hhs.gov/medicaid/consumer.asp. For families who earn too much to qualify for Medicaid yet still find their resources too modest to cover their children’s diabetes care, the states operate a lowcost private insurance program called the State Children’s Health Insurance Program, or SCHIP. To find out more about this program covering eligible children until the age of 19, go to the Insure Kids Now! Web site offered by the US Health & Human Services Department: www.insurekidsnow.gov, or call 877-KIDS-NOW.
14. MEDICAL SUPPLY & PRESCRIPTION ASSISTANCE
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From the JDRF Life with Diabetes E-Newsletter (November 2005)Ask a medical professional - Insurance Answers & QuestionsBy Kathy Spain, R.N., C.D.E., Mother of Will, age 10, diagnosed age 2
Help with Supplies and PrescriptionsMany drug companies offer pharmaceutical assistance programs to help offset the cost of supplies or prescription medications for people with diabetes who have little or no insurance. Enrollment in the programs requires a letter or application from your doctor. Listed below are some of the companies offering patient assistance:
Aventis: 800-221-4025Bayer Corporation: 800-998-9180Bristol-Myers Squibb: 800-437-0994Eli Lilly & Company: 800-545-6962Novo Nordisk: 800-727-6500
In addition, the Partnership for Prescription Assistance offers a point of access to 275 assistance programs, including 150 programs through pharmaceutical companies that have joined together to provide savings to the uninsured. To see if you qualify for any of these programs, visit www.pparx.org or call 1-888-477-2669. The Children with Diabetes Foundation also offers diabetes supplies on a short-term basis for children with diabetes who are in emergency situations in which their families are unable to obtain basic supplies for diabetes care. You can find information on this program at:www.cwdfoundation.org/supplies.htm.
Are Pumps and Pump Supplies Covered?Last, but certainly not least, pumps can present a financial burden for families, with the devices themselves costing on average $5,000 and basic supplies more than $100 a month. Insurance companies vary in their coverage of pumps, but most insurance plans cover costs associated with pump use. Pumps and supplies are usually included in the Durable Medical Equipment (DME) component of major medical plans. Some plans have a deductible or co-pay, so ask your health insurance carrier or check your benefits summary to find your level of coverage. The major pump manufacturing companies have insurance experts who can verify your benefits and out-of-pocket expenses when you consider the purchase of a pump. These manufacturers are aware that their products are costly, and they often are able to work with potential customers and/or their insurance companies to make them more affordable. Here is contact information for several leading pump manufacturers:
Accu-Chek (Disetronic): www.disetronic-usa.com 800-280-7801Animas: www.animas.com 877-767-7373CozMore (Deltec Cozmo): www.cozmore.com 800-826-9703Medtronic MiniMed: www.minimed.com 800-646-4633
As one further option, the Diabetes Trust Foundation (in partnership with Animas) provides financial assistance through its Insulin Pump Program for Children, as well as assistance for medications and testing supplies for individuals who qualify. For more information, visit their web site at www.diabetestrustfoundation.org.
15. SCHOOL ISSUES
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http://jdrf.org/index.cfm?page_id=103439
Back to School BasicsBack to school season is an exciting time of year… especially for parents! But before you can celebrate, chances are you have a lot of preparation and planning to get out of the way—especially if you are the parent of a child with type 1 diabetes. Wondering where to begin? In the links below (visit http://jdrf.org/index.cfm?page_id=103439 to access if you are using a hard copy of the resource manual), you will find topics and strategies that parents of kids with Type 1 diabetes across the country consider important in making the school year a success. While every child and school is unique, these guidelines should help you get started. In addition, JDRF has a school information packet, available upon request (email [email protected]), with further information on managing diabetes in school.
#1: Do your homeworkBefore meeting with staff at your child’s school — ideally, before the beginning of the school year, although it’s never too late—you’ll need to get organized, and perhaps do some research on your child’s rights and Section 504 plans (see below for more information or click on the links). Look through the new publication from the National Diabetes Education Program (NDEP): Helping the Student with Diabetes Succeed: A Guide for School Personnel and download or order copies for your child’s school.
You should not assume that the school will know how to provide the best care for your child, even if there are other students with diabetes in the school. As the parent, take the initiative to educate your child’s teachers, principal, school nurse, coaches, etc. about your child’s specific needs. Create and gather informational materials about your child and diabetes for school personnel.
#2: Meet with school staffThe most important thing to do is contact the school before classes start. Speak to the principal, any teacher the child will have, the gym, P.E. or coaching staff, school nurse, and cafeteria manager. This meeting is usually the best time to go over your proposed 504 plan or other health plan, and distribute informational materials about your child and type 1 diabetes, including warning signs for hypo- and hyperglycemia. The child may also be a part of this meeting.
#3: Develop your strategyAfter you’ve spoken with the school, you should have a clearer idea of what you need to do to prepare your child for their day-to-day activities. Many parents prepare snack and supply “kits” for the classroom teachers, school nurse, coaches, etc. Nancy Gaynor supplies syringes, pump insertion sets, a glucose monitor, lancet needles, and snacks. “I provide baggies of high carb snacks already counted out. For example, 10 to 20 baggies with 15 Skittles per baggie, which equals a 1 carb snack,” she says. “And don't forget to include a glucagon kit.”
Michelle Alswager, whose son Jesse, 6, has diabetes adds, “Make sure the classroom teacher also has a sheet with your child’s picture on it with instructions for a substitute teacher. A sub may not have a clue what diabetes is.”
Your child may also want to prepare a presentation for the class in order to help the other students understand what diabetes is. Stephanie Vasi, mom of Tyler, 11, says, “We have found that letting Tyler tell his story has been the best way for him to feel like he is in control. At the beginning of the year we set a time with the teacher to come into the classroom and do—in
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essence—a ‘show and tell.’ We take everything that Tyler uses on a daily basis. The children can ask Tyler questions and we have found that it lessens the resentment in the classroom when Tyler gets more bathroom breaks and more trips to the water fountain. It has also helped with the kids’ awareness, so if Tyler starts acting weird they can go get help.”
Other children with diabetes may not be comfortable with such attention from classmates. Michelle Alswager explains, “My son wants diabetes to be like brushing your teeth…just one more thing that has to be done during the day, nothing more. He does not like attention drawn to his pump and he appreciates the respect the kids give him in not talking about it.”
Develop a communication plan with the school, particularly for emergencies, but also for daily issues and concerns. Make sure that all those responsible for your child know who to call, and when, and that they have the appropriate contact numbers.
#4: Stay involvedAn ongoing, open relationship between you, your child, and the school is vital to your child’s well being throughout the year. Do everything you can to create the best possible environment.
More Back to School AdviceBack to school time can be very stressful, particularly for families with children with diabetes. Will your child be properly cared for? Who is prepared to respond in emergencies? Will your child be able (and willing) to check blood sugar levels frequently enough? How will students, teachers, and coaches view your child? The list of questions goes on and on. The best thing to do to alleviate fears and ensure a successful school year is to get educated about diabetes in school, and form a plan. No matter how alone you may feel in your plight, you're not—parents across the country, if not in your very own school or district, are dealing with the same issues you are, and can be a vital resource. In the links below, you'll find wisdom and advice from some experts—parents and kids who have been dealing with diabetes in school for years. If you still have questions after reading their suggestions, contact the Mid-Ohio Chapter Family Connections Committee (via 614-464-2873 or [email protected]) or our Online Diabetes Support Team with your specific concerns.
Make it a Team Effort: Building good relationships with your child's school personnel right from the start, if possible, is important in making sure your child is well cared for. If you begin with a positive, team-oriented approach, teachers and other school personnel will be more willing to listen to your needs and work with you as the year goes on.
Educate the Educators: While your child's teachers probably know a great deal, they may not necessarily know anything about diabetes. It's important to provide teachers and staff with at least the basics of the disease, along with information about your child's regimen and needs.
Supplies, Supplies, Supplies: Many parents suggested providing snacks and extra supplies for every classroom, as well as the nurse's office, to ensure that your child is safe and prepared, especially for lows, while at school.
Know Your Rights: JDRF believes that all children with diabetes should be allowed to manage their diabetes to the maximum extent possible in school—including being able to test blood sugars and treat highs and lows wherever they are in the school. However, different schools have different rules regarding diabetes care, so it is important that parents be aware of their rights. A helpful resource can be found through http://www.diabetes.org/advocacy-and-
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legalresources/attorneymaterials/legalrights.jsp.
Taking Academic Tests: RN and diabetes educator Kathy Spain teaches the teachers at her son's school how high and low blood sugars can affect cognitive function. "This is especially important for the older kids," she says. "I encourage having kids check their blood sugars an hour or so before a big test, since stress (i.e., test anxiety) can affect blood sugars."
Keep Learning: In addition to these great tips and advice from our experts, JDRF has a special school packet—with brochures, a Warning Signs card, a Low Blood Sugar Emergencies card for schools, a book list, and more. This kit is available upon request, by sending your name and mailing address to [email protected].
Your Child’s Rights Relationships between schools, teachers, and the parents of children with Type 1 diabetes are often as unique as the individuals themselves. While there are federal and, in some cases, state laws protecting the rights of children with diabetes in school, such laws only provide general guidelines and are enforced differently in different areas. At the beginning of each school year, you will need to communicate with your child’s principal, teacher, nurse, and any other adults who will share responsibility for your child during the day, to come up with a plan to make sure your child is well cared for throughout the year.
504 plansBy far the most important legal document you can have to protect your child’s rights is a 504 plan. 504 plans are relatively easy to create (see examples by visiting http://www.childrenwithdiabetes.com/504/ or contacting the chapter office if you do not have internet access), and are an invaluable tool for allowing your child the same access to educational opportunities as their peers. 504 plans can be particularly useful in allowing special accommodations for your child during standardized testing. 504 plans may be as detailed as you like, and should clearly specify roles and instructions for the school personnel, as well as for the parent/guardian, and the child.
Even with a 504 plan, however, problems may arise between you and the school. Should you have a conflict, there are a number of things you can do to improve the situation. But first, determine where the problem lies. Unfortunately, lack of awareness about diabetes is still a big problem in some areas. Schools may not be well informed about Section 504, or what’s covered under it. Be sure to give them all the information they need to understand your child’s special needs and rights. Take the initiative, and be careful not to assume the school is being uncooperative when the issue may be just a misunderstanding. Consider bringing a Certified Diabetes Educator (CDE) or other diabetes expert to the school, if possible, to train the staff and help them understand your child’s needs.
JDRF volunteer and mom Julie Costakis strongly advocates a proactive approach after her own experience with son Grant’s kindergarten and first grade teachers. “It is amazing what some schools, nurses, and teachers will do to help their students with diabetes,” she says. Julie approached Grant’s kindergarten teacher last year at the beginning of the summer to explain her son’s case. The teacher agreed to meet with Grant privately during the summer in the Costakis’s home to learn about his diabetes care regimen and how his high and low blood sugars affect his behavior. The first grade teacher did the same this year. Julie is very grateful for such support and says, “We shower these teachers with thanks for giving their time and effort.”
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Handling Conflicts On the other hand, there are a number of documented cases where the school will not cooperate. One such case involved William Cross, whose daughter Katelyn has type 1 diabetes. In 1996, Katelyn’s school refused to agree with Katelyn’s 504 plan request to check her blood sugars and have snacks in the classroom, despite the fact that the plan was proposed by her doctor at Yale University School of Medicine. As a result, Katelyn had to go to the nurse’s office and miss valuable class time every time she needed to check her blood sugar. After repeated attempts at negotiation with the school for a better arrangement, William Cross finally filed a lawsuit. In 1999, an acceptable agreement was reached, and today Katelyn (now at a different school) has no difficulties with her diabetes plan at school.
Since most parents don’t have the resources or desire to engage schools in long legal battles, JDRF encourages using legal action only as a last resort. At the same time, however, it is important that you don’t allow yourself to be pressured into an agreement that compromises your child’s safety and well-being in any way. In other words, don’t be afraid to “make waves” if necessary. The way a school “has always done it” may not be the best way for your child. Whenever possible, document things in writing—this offers protection for both you and the school. You may also file a complaint with the U.S. Department of Education’s Office for Civil Rights in case of disputes.
Another option is to pursue state legislation to protect your child. A number of JDRF volunteers, who are also parents of children with diabetes, have had success with this approach, and JDRF fully supports such efforts on the local level. Currently, six states have their own laws addressing diabetes management in schools: Montana, North Carolina, Tennessee, Virginia, Washington State, and Wisconsin.
The Family Connections Outreach Committee can also be a resource for coming up with a strategy for dealing with a school. Perhaps there are other parents in your area who share your frustrations, or who have overcome similar ones, and can help you improve your situation. Please contact the office at 614-464-2873 or [email protected] for more information.
Remember that your goal is to establish a good long-term relationship with your child’s school, so try to be positive and communicate frequently with teachers, nurses, or other relevant staff.
Laws Protecting Children with Diabetes
The educational rights and interests of children with diabetes are protected by several federal laws, and sometimes state laws as well:
• Section 504 of the Rehabilitation Act of 1973 states that no "otherwise qualified handicapped individual" can be excluded from programs or activities receiving federal financial assistance simply because of his or her disability. The handicap is defined as an impairment that substantially limits one or more of such persons major life activities. "Programs or activities" include all kinds of schools as well as social services like day care centers. The Act gives parents of children with diabetes the right to develop, with the school's agreement, a plan to accommodate any special needs as a result of the condition.
• The Americans with Disabilities Act (ADA), enacted in 1990, sets forth laws that essentially mirror many of the requirements of the Rehabilitation Act of 1973.
• The Individuals with Disabilities Education Act (IDEA), a federal law passed in 1975, mandates
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that all children "receive a free, appropriate public education regardless of the level or severity of their disability." IDEA also provides funds to assist states in the education of students with disabilities and requires that states make sure that these students receive an individualized education program (IEP)—a written statement of the educational program designed to meet a child’s unique needs. A fundamental principle of the IEP is the right of parents to participate in the educational decision-making process. You should be involved in the development of your child's IEP, and the school is required to accommodate you regarding meeting times when you may discuss and formulate the program. In developing an IEP, you should work with your child's school toward the common objective of fulfilling the student’s educational goals, related services needed and the placement decision. Do your best to educate school personnel about how diabetes affects your child and the steps he or she must take to properly manage it. For a child with diabetes, particular needs might include (1) permission to check blood glucose levels at any point during the day; (2) freedom to immediately treat high or low glucose levels; (3) advance permission for extra trips to the bathroom or water fountain; and (4) ensuring that staff members are present who are trained in testing blood glucose levels, recognizing symptoms of high or low blood glucose and giving immediate treatment for the conditions.
If you are dissatisfied with any aspect of the IEP and are unable to resolve the problem, you can refuse to sign the IEP and, if necessary, pursue due process options guaranteed by the law.
Understanding 504 PlansIf you have a child with diabetes attending elementary through high school, JDRF highly recommends that you set up a Section 504 plan. A 504 plan (named for Section 504 of the Rehabilitation Act of 1973) is an agreement between the parent and the school, which gives guidelines for your child's diabetes management in school. 504 plans are a legal right only in schools that receive federal funding, however, students attending schools that do not take federal monies are covered under the Americans with Disabilities Act or the Individuals with Disabilities Education Act (IDEA), and can set up similar plans. 504 (and similar) plans can and should be tailored to the individual child's age, abilities, and needs, making all aspects of your child's life in school easier to handle.
How do I set up a 504 plan?Parents should first identify their child to the school as qualifying for protection under the Americans with Disabilities Act and Section 504, if the school has not done so already. That identification requires the school to give special consideration to accommodate the student's needs (diabetes is legally considered to be a disability).
What if my child's school is already cooperating without a 504?Even if the school is cooperative without a 504, it is advisable to put one in place, to be prepared should problems arise in the future.
Is there anything I need to do besides set up a 504 plan?Yes. While 504 plans are very helpful, they are not foolproof. As the relationships among you, your child, and school personnel develop, you will get a sense of how much you need to be involved in your child's diabetes care at school.
What happens when my child goes off to college?It is important for parents to be aware that things change a bit at the college level. At the elementary and secondary levels, the school district is responsible for identifying, evaluating,
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and providing the appropriate services. At the postsecondary level, on the other hand, colleges have no responsibility to identify disabilities. It is the student's responsibility to make his or her disability known and to request special accommodations. Once the student or parents have done that, the college should be willing to fulfill the requirements of Section 504.
As parents, you may want to inquire about special accommodations while exploring colleges with your teen in order to help guide their decision based on their specific needs. Once your teen is accepted to the college and you begin the enrollment process, housing applications, etc., you can work with a disabilities coordinator to complete the necessary paperwork. If your teen is living on campus, put in writing in your accommodation plan the need for nutritional data from food services.
Regarding confidentiality: Most colleges will request that parents indicate on a special signed form who needs to know about the student's disability. In most cases, the Dean of Students, the accommodations coordinator, food services, the RA, and professors need to know. That form does not give them consent to discuss your student's health issues with other parents, students, or outside personnel who have no need to know why certain accommodations are being made.
JDRF Position Statement Regarding Diabetes Management in Schools (October 15, 2001) The Juvenile Diabetes Research Foundation International (JDRF) believes that it is essential that children with diabetes be able to monitor their blood glucose levels, eat food and administer insulin when necessary, in order to manage — to the maximum extent possible — their diabetes. Failure to do so could lead to life- threatening insulin shock and coma caused by low glucose levels and long-term complications such as kidney failure, blindness, amputation, heart disease and stroke exacerbated by high blood glucose levels.
Children with diabetes need to be able to test their blood glucose at school and apply whatever means necessary to bring these levels to near normal quickly and with as few encumbrances as possible. For some students this can be done independently; other students — who are younger or who have less experience with the disease — need assistance from trained school personnel. All students with diabetes need assistance from trained school personnel in the case of medical emergencies. These trained personnel need not be medical professionals.
Accordingly, JDRF fully supports efforts to enact state legislation to ensure that students with diabetes are medically safe at school and have the same access to educational opportunities as do other children. This includes making sure that there are trained adults available to assist students with diabetes as needed during school hours, extracurricular activities and field trips; that students have access to blood glucose testing; that medications, including insulin and glucagon, are available at school; and that students who are able to do so are allowed to test their blood glucose levels in the classroom or anywhere else that the student happens to be, and to administer corrective measures immediately.
16. ATHLETICS
The issue of diabetes and athletics is an important one, as children with diabetes are encouraged to pursue the same activities as other kids in spite of their diabetes. JDRF has focused on this issue a number of times in Countdown for Kids Magazine. The profile of a number of athletes with type 1 diabetes can be found on the JDRF Kids Website: http://kids.jdrf.org/athletes. These profiles include tips about training and the special needs of
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athletes with diabetes. The JDRF Kids Website also contains a section on exercise: http://kids.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=268E68B3-5004-D739-A54A1D41F61C5F61
For information to give to coaches or gym instructors, the packet that is given to teachers and school staff is appropriate. You can also receive information form the Diabetes Exercise and Sports Association: http://www.diabetes-exercise.org/. You might also consult The Diabetes Sports & Exercise Book, by Claudia Graham, June Bierman and Barbara Toohey (see publications below).
17. PUBLICATIONS
http://jdrf.org/index.cfm?page_id=100688
Mid-Ohio Chapter E-Newsletterhttp://www.jdrf.org/index.cfm?page_id=101294The Mid-Ohio Chapter provides a monthly e-newsletter with local information, family highlights, research updates, legislative information and more. To be added to the monthly E-Newsletter mailing list or to make suggestions for future issues, please email [email protected].
Discoverieshttp://www.newsletternet.com/newsletter.asp?c=VFJOVFMXRGA quarterly 4 page publication that includes local and international JDRF information. To be added to the mailing list, please contact Jean Jones at [email protected].
Life With Diabetes E-Newsletterhttps://www.jdrf.org/index.cfm?page_id=103443JDRF's Life with Diabetes e-mail newsletter is published eight times a year to provide information and support for families with a recent diagnosis of type 1 diabetes. The newsletter is available in HTML format, with links to additional information and a printer-friendly Adobe Acrobat version. Subscribe by sending an e-mail to [email protected]. Please include "Subscribe Life with Diabetes e-mail newsletter" in the subject line.
Countdown Magazinehttp://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=29462568-6F00-42FB-B2168F60D7AD511FIn-depth analysis of cutting-edge diabetes research and treatments, profiles and more.
Countdown for Kidshttp://kids.jdrf.org/index.cfm?fuseaction=home.viewpage&page_id=8EFB2293-5004-D739-A589D8D98BCA0BBFThe first magazine especially for kids with diabetes; information, fun, role models, pen pals.
Research E-Newsletterhttp://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=8D3A7AED-2A5E-7B6E-1373836D63ABDBA6Published monthly to provide all those interested with the latest information about research on type 1 diabetes and its complications.
Books:
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Even Little Kids Get DiabetesAges: 2–6By Connie White PirnerIllustrated by Nadine Bernard Westcott
Rufus Comes Home Rufus, The Bear with DiabetesAges: 3-10By Kim Gosselin
The Best Year of My Life Book 1: Getting DiabetesAges 4–10By Jed Block
Matthew Takes His ShotAges: 4–10By Owen ColemanIllustrated by Judy Bullock
Taking Diabetes to SchoolAges: 6–11By Kim Gosselin
Everyone Likes to Eat: How Children Can Eat Most of the Foods They Enjoy and Still Take Care of Their DiabetesAges: 6–14By Hugo J. Holleroth, Ed.D. and Debra Kaplan, R.D., M.S. with Anna Maria Bertorelli, M.B.A., R.D., C.D.E.
It’s Time to Learn about DiabetesAges: 7–11By Jean Betschart, M.S.N., R.N., C.D.E.
Sugar Was My Best Food: Diabetes and MeAges: 8–13By Carol Antoinette Peacock, Adair Gregory and Kyle Carney Gregory;Illustrated by Mary Jones
Diabetes at 14: Choosing Tighter Control for an Active LifeAges: 12–17By Bill MelluishIllustrated by Paul Bourgeois
In Control: A Guide for Teens with DiabetesAges: 12–18By Jean Betschart, M.S.N., R.N., C.D.E. and Susan Thom, R.D., L.D., C.D.E.
Sarah and Puffle: A Story for Children About DiabetesBy Linnea MulderIllustrated by Joanne H. Friar
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The Diabetic AthleteBy Sheri Colberg, Ph.D.
Parenting a Child with Diabetes, Second EditionBy Gloria Loring
Diabetic Low-Fat & No-Fat Meals in Minutes!By M.J. Smith, R.D.Real Life Parenting of Kids with DiabetesBy Virginia Nasmyth Loy
Living with Juvenile Diabetes: A Practical Guide for Parents and CaregiversBy Victoria Peurrung
Guide to Raising a Child with Diabetes, Second EditionBy Linda M. Siminerio, R.N., Ph.D., C.D.E. and Jean Betschart, M.N., M.S.N., C.P.N.P., C.D.E.
The Ten Keys to Helping Your Child Grow Up with Diabetes, Second EditionBy Tim Wysocki, Ph.D.
Growing Up With DiabetesBy Alicia McAuliffe
Diabetes Care for Babies, Toddlers, and PreschoolersBy Jean Betschart, C.R.N.P., C.D.E.
Everyday Law for Individuals with DisabilitiesBy Ruth Colker and Adam Milani
18. RESEARCH UPDATE
Since diabetes research is such a rapidly changing area, please refer to: http://www.jdrf.org/index.cfm?page_id=100686. A sampling of articles recently posted follows:
Islet Transplants Found to Improve Cardiovascular FunctionType 1 diabetic patients with end-stage renal disease receiving a kidney transplant showed improved cardiovascular function when they received a subsequent islet transplant, Italian researchers found. JUL 20 05
Researchers Prompt Human Adult Liver Cells to Produce InsulinResults of a recent study by JDRF-funded researchers in Israel offer patients new hope of regaining control of blood sugar levels by having their liver cells reprogrammed to secrete insulin.JUN 8 05
Drug Preserves Beta Cell Function in Type 1 Diabetes PatientsIn a major finding, a JDRF-funded human clinical trial in Europe has shown that treating newly diagnosed type 1 diabetes patients with a drug called an anti-CD3 antibody can preserve residual beta cell function for up to 18 months.
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JUNE 22 05
Tight Glucose Control Reduces Heart and Kidney DiseaseRecent studies have found further evidence that intensive insulin therapy, or tight glucose control, can significantly lower the risk of two life-threatening diabetes complications — heart disease and kidney disease. JUL 13 05
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19. MID-OHIO CHAPTER INFORMATION (see http://www.jdrf.org/midohio )
134 A-2 Northwoods Blvd.Columbus, OH 43235Phone: 614-464-2873Fax: 614-464-2877http://www.jdrf.org/midohio
GEOGRAPHIC DISTRICT
The Mid-Ohio Chapter serves 27 Ohio counties around Columbus. They are: Athens, Coshocton, Crawford, Delaware, Fairfield, Fayette, Franklin, Guernsey, Hardin, Hocking, Knox, Licking, Madison, Marion, Meigs, Morgan, Morrow, Muskingum, Noble, Perry, Pickaway, Pike, Richland, Ross, Union, Vinton and Washington.
CHAPTER ORGANIZATION
The Mid-Ohio Chapter is staffed by an Executive Director, Staci Perkins ([email protected]), Special Events Coordinators, Pat Alcorn ([email protected] and Melissa Salamony-Fulling ([email protected]) and an Administrative Assistant, Jean Jones ([email protected]). Support for activities comes from volunteers dedicated to finding a cure for diabetes. Additional volunteers are recruited as needed for special events. A Board of Directors elected by the Mid-Ohio JDRF membership makes policy and oversees strategic development, financial matters and fundraising activities for our chapter.
Besides the outreach efforts provided by the Family Connections Outreach Committee, the Mid-Ohio Chapter focuses on the following fundraising events and activities:
Walk to Cure Diabetes The Mid-Ohio Chapter took its first fundraising steps at a Walk in September 1994. Contributions made through our first Walk totaled over $25,000. Thanks to the increasing generosity and commitment of corporate sponsors, family teams and volunteers, gifts made through Mid-Ohio's fall 2005 Walk raised $720,000. Nationally, JDRF received more than $81 million in contributions through Walks last fiscal year.
Fund a Cure Gala Our annual Fund a Cure Gala began in 1998 and is held every spring. The Gala is a wonderful evening of silent auctions, live auctions, entertainment and excellent cuisine. Through corporate table sponsorships, individual ticket sales and generous bidding on must-have auction items, Gala revenues have grown from $85,000 in 1999 to almost $500,000 in 2006. Next year’s Fund a Cure Gala is scheduled for Saturday, April 2`, 2007.
Other Fundraising Activities Major Gifts, Planned Giving (e.g. wills, estate planning), Combined Appeal Campaigns (employees giving through Community Health Charities, United Way, etc.), Memorials and Tributes, Third Party Fundraisers (gifts received from non-JDRF hosted events), Miscellaneous (e.g. contributions from individuals and organizations, grants, sale of merchandise, etc.).
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Calender of EventsBelow is a listing of events occurring throughout the year. Please call 614-464-2873 or email [email protected] for more information on any of these events. A complete calendar can be found on the Mid-Ohio Chapter website, www.jdrf.org/midohio.
POLO (Parents of Little Ones) – Meets bi-monthly. Please note this is not designed just for parents of young children.
Mom’s Night Out – Meets monthly and various locations throughout Columbus.
Fund a Cure Gala – April 21, 2007 at Hyatt Regency, downtown Columbus. Please contact the JDRF office at 614- 464-2873 for more information regarding sponsoring, attending and volunteering for the event.
Walk to Cure Diabetes – October 1, 2006 at The Ohio State University. Please contact the JDRF office at (614) 464-2873 regarding this event including sponsorship opportunities and volunteer participation.
Ride to Cure Diabetes – various dates and locations throughout the yearFor more information about participating or sponsoring a rider, please contact Pat Alcorn at [email protected]
Holiday Parties and other Youth Events co-hosted by CODA and JDRF.
Diabetes Awareness Month (November)
Volunteer Opportunities:At the Mid-Ohio Chapter, we have a host of volunteer opportunities available for many ages, abilities and time allowances. Below are several upcoming volunteer needs. Please contact us at 614-464-2873 or by email at [email protected] for more information and to discuss your specific volunteer interests. .
Walk to Cure Diabetes, October 1, 2006 - We are in need of volunteers to serve in both long (planning committee and family and corporate committees; office help prior to and after the Walk) and short-term capacities (day of volunteer needs including registration volunteers, set-up, food and beverage distribution, etc.).
9th Annual Fund a Cure Gala, April 21, 2007 – Please contact the office for more information about volunteering in advance of the event (committee involvement and office help) and the night of (registration, auction, set-up, clean-up, etc.).
Youth Ambassador - JDRF Youth Ambassadors are children with juvenile diabetes who are matched with Corporate Walk Teams, Ride to Cure Diabetes Riders, etc. to put a face on juvenile diabetes that is close to home and help them understand the everyday challenges of living with diabetes. Their stories of living with diabetes will move anyone to fundraise, complete a 100 mile bike ride, etc. A Youth Ambassador may be asked to participate in an internal kickoff and other Walk related events, write an article for a company newsletter about juvenile diabetes, display their picture on internal recruitment materials, serve as a spokesperson, cheer on a Ride participant through letters and email, send a Rider decorated equipment to remember the child during the Ride. etc.
Government Relations - JDRF partners with the federal government to implement research funding increases, policy changes, and research freedom to find a cure for juvenile diabetes and its complications. By focusing efforts on a core plan of legislative
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goals, JDRF Government Relations staff, volunteers, and grassroots advocates work to accelerate research toward a cure. Two signature campaigns are Children's Congress and the Promise to Remember Me Campaign. Lori Payne, Board Government Relations Chair, heads up the Mid-Ohio Chapter's efforts.
General Office Work - We periodically have general office work needs that may be done at our office or at home. This is a great opportunity for students needing to fulfill community service hours.
Committee Involvement - Contact the office for current committee needs. Third Party Events - Contact the office to discuss hosting a third party event to help
raise money to advance our mission.
20. JDRF MEMBERSHIP INFORMATION
Your support of JDRF is greatly appreciated. By becoming a Member of JDRF you are helping to find a cure for diabetes and its complications. We hope you'll take the time to find out more about JDRF-funded diabetes research by visiting the research portion of our web site, www.jdrf.org.
JDRF is an accredited 501(c)(3) nonprofit agency; all donations (including membership donations) are tax deductible. You can become a member by visiting https://www.jdrf.org/index.cfm?page_id=100902 or by calling 1-800-223-1138. A receipt will be provided. Additionally, donations of $250 or more will receive a letter of acknowledgment.
Benefits of Membership A JDRF Membership is accompanied by a one-year subscription to Countdown Magazine and its accompanying Countdown For Kids.
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