6370 LBJ Freeway Suite 170

Dallas, TX 75240(972) 620-7600 www.daps.us

JANUARY 2020

INSIDEspeaker bio 2

weather notice 2holiday luncheon followup 4

volunteer profile 4memorials, honors, donations 5

group schedule 6-7

pd and cycling 8upcoming events 9

upcoming meetings 10

January 13, 2020 1:00 p.m.

Location:University Park

United Methodist Church Activity Center

4024 Caruth Blvd (at Preston) Dallas, TX 75225

Local Student's Science Fair Project Puts DAPS in the News

SPEAKER:Aanchal Taneja, MD

JANUARY Dallas

Educational Series RSVP: bit.ly/Jan2020Dal-RSVP

NEWS continues on pg 3

To better reflect the quality of programs

provided, our General Meetings

now have a new name: Educational Series.

TOPIC:Taking ON Parkinson's

It is inspiring when today’s youth recognize a need in our society and set out to create, develop, and execute a method to help those who are suffering. Anushka Sridhar, an 8th-grade student in Plano ISD, has participated in many science fairs and was a national finalist at the middle school computer science girls competition in the field of technology and computer science last year.

This year, Anushka contacted DAPS, seeking volunteers with Parkinson's disease (PD) to consider trying her safe and non-invasive prototype to help alleviate tremors in PD patients. After presenting her project to the Hunters Glen Baptist Church exercise class, several members of the class volunteered to participate in the experiment.

While Anushka was born in Texas, her parents were born and raised in India, where their families still reside. Traveling regularly to India has enriched her experiences culturally while also building valuable relationships with family members, like her late great aunt who had PD. Recognizing the struggles that tremors created for her aunt sparked an idea that Anushka pursued for a science project.

The science fair in Plano ISD was held on November 12. The title for Anushka's project was SPARKS—Smart PARKinsons Strap to mitigate hand tremors in Parkinson's patients. Anushka explains her project in more detail:

Sponsored by Amneal Pharmaceuticals

Dedicated to impacting and improving the lives of those affected by

Parkinson’s disease

Executive DirectorMike Miles

Board of DirectorsBentley Foster, President Jo Klein, Vice President

Barbara Glass, Secretary Greg Wood, Treasurer

Advisory CouncilSarah Atwood Charlene Noe Ben Casey Sandi Pautler Carlie Dorshaw-Moe Joyce Susman Pat Goukler Barbara Taylor Shirley Hand

Medical Advisory BoardShilpa Chitnis, M.D., Ph.D. Richard B. Dewey, Jr., M.D.

Thomas D. Franklin, Jr., Ph.D. Richard L. Fulbright, Ph.D. Dwight C. German, Ph.D. Aashoo Mentreddi, M.D.

Padraig O’Suilleabhain, M.D. Nirav Pavasia, M.D.

Alexander Peralta, M.D. R. Malcolm Stewart, M.D.

Gary L. Tunell, M.D.

NewsletterJill Dominguez, Managing Editor Pam Michel, Production Editor

DAPS StaffCarrie Marquis, Administrative Assistant

carrie@daps.org Leisha Phipps, Program Director

leisha@daps.org

The DAPS newsletter is published monthly as an information guide only, and does not

serve as legal or medical advice.

Martha BonillaMike BraitschScott BuzzellJared CaplanChris ClausenMartha Fiddes

Stephen HolmanHarold KelloggJim LynchGreg RectorMarcie SalamoneChuck Stewart

Dr. Taneja did her Neurology residency at UT Southwestern. She is fellowship trained in Movement Disorders and Parkinson's Disease from the University of Texas Southwestern Medical Center at Dallas. She is also fellowship trained in Clinical Neurophysiology and Neuromuscular Disorders, which gives her an edge in botulinum toxin injections as a treatment for various movement disorders. Her clinical research interests

include cognitive decline in patients with Parkinson's disease and DBS as effective management for some movement disorders.

Dr. Taneja has delivered presentations at national and international conferences for which she has received awards and travel grants. She is a member of the American Academy of Neurology and Movement Disorders Society.

Dr. Taneja is the director of Texas Parkinson and Movement Disorders. She is dedicated to providing compassionate, patient-centered care for individuals with movement disorders and believes in building a long-term relationship of caring and trust.

PAGE 2 • DAPS • JANUARY 2020

JANUARY SPEAKER:Aanchal Taneja, MD

REMINDER: The DAPS office will reopen with regular business hours on

Monday, January 6, 2020

Weather NoticeIn the event of bad weather on the day of a

DAPS meeting, group, or class, we will follow decisions determined by the

Dallas Independent School District.More info: dallasisd.org/Page/150

PAGE 3 • DAPS • JANUARY 2020

For this year's science project, I've been researching possible solutions for months to see various therapies and technology used to alleviate tremors caused by Parkinson's—especially to improve dexterity. I've seen and read that vibration therapy could help, but none are available in the market. The few readily available [types of] technology that could aid in mitigating tremors are expensive and not easily portable.

I learned, through my research, that vibration therapy can help to mitigate tremors as it tricks the brain into thinking that the hand is already tremoring. My goal is to put that to the test and see if vibrations can be used to mitigate tremors enough to be at ease when writing, drawing, and performing daily activities.

My prototype is similar to an adjustable bracelet, built with a Velcro strap and coin motors. The coin motors of my prototype will emit a light vibration that will act as white noise in the brain to block that feedback loop the brain has in the first place, therefore stopping the hand from tremoring as such. The bracelet is easily customizable for anyone’s wrist and coin motors will feel almost like the vibration of a ringtone. This is completely safe and non-invasive.

My hope is to provide a low-cost, fairly affordable device that could improve the quality of life of Parkinson's patients. I am so grateful to DAPS for supporting me and encouraging me to work with their members to help gather data for my prototype.

On December 3, Anushka was awarded first place in the science fair project at her school, Otto Middle School. She will advance to the regional competition in January. Her project caught the attention of local news station NBC 5, which ran a terrific story about Anushka, her project, and the hope it brought to local DAPS members at the Hunters Glen Baptist Church location in Plano. You can watch the entire piece on our website at www.daps.us.

DAPS and the Parkinson’s community are fortunate to have a generation of young people like Anushka who will be on the forefront of research and treatment in the years to come. We are excited and grateful that Anushka contacted us with her innovative science project proposal. And a big "Thank you!" goes to the DAPS members at Hunters Glen for volunteering and working with Anushka.

NEWS continued from front page

NBC 5 works on the interview at DAPS Hunters Glen location

Women often face different symptoms than men when it comes to Parkinson's disease (PD). If you

are interested in a women’s support group to address and share specific

concerns and issues unique to women with PD, please contact

Leisha at: leisha@daps.org

Womenwith

Parkinson's

PAGE 4 • DAPS • JANUARY 2020

Marcie was diagnosed with Parkinson’s disease in 2017 at the age of 53. When she relocated to Richardson from Fort Smith, AR, she immediately contacted DAPS

about volunteering. Her volunteer duties originally entailed creating spreadsheets to track participants’ attendance at group classes. She is still tracking attendance but is also facilitating two exercise classes at Arapaho UMC. January begins her first month as a DAPS board member.

Marcie graduated from Fairfield University in Fairfield, CT, with a BS in Accounting and Finance. She worked for Arthur Andersen in New York City where she earned her CPA license. She graduated from Fordham University School of Law in NYC. Fordham holds a special place in her heart as she met her husband there. He held the door open for her the first day of law school! Later, Marcie was admitted to the Florida Bar.

As a lifelong community volunteer, Marcie eventually left the corporate world to pursue a career in nonprofits. She was the Vice President of Finance for the United Way Suncoast in Tampa, FL. She also served as the Vice President Finance and Administration and Chief Financial Officer for the Greater Tampa Chamber of Commerce.

After the birth of her daughter, she became a stay- at-home mom. Marcie held numerous leadership positions on nonprofit boards, at church, and with the PTA. Although she is proud of her professional accomplishments, she is most proud of the awards she has won for her service to the community.

Marcie and her husband, Salvatore, enjoy traveling, reading and attending concerts, theater productions, and sporting events. Their daughter, Alexandra, is a junior in college. She plans to attend law school, and despite being a “Fordham baby”, she has no plans to attend Fordham Law School! They currently share their home with a dachshund and three cats.

IntroducIng:IntroducIng:Marcie

Salamone

Fun at the Holiday Luncheon

The DAPS annual holiday luncheon was held December 3, 2019. The talented group of students from the Woodrow Wilson High School Variations Show Choir performed a delightful show including selections from their upcoming musical, "Walking on Sunshine," plus several holiday favorites. The food catered by Maggiano's was delicious as well.

In addition to the Variations Show Choir, we would like to thank DAPS volunteers and Vizient friends for helping make it a special day for everyone

PAGE 5 • DAPS • JANUARY 2020

Memorials • Honors • DonationsNovember 2019

In memory of Joanne BrownFrom: Jack Brown

In memory of Todd HardingFrom: Robyn & Biff Sivils Marty Sivils David & Tisha Sivils Jo Anna Evans

In memory of my husband, Chuck YoungFrom: Ranie Young

In honor of Stephen CravenFrom: Mick & Nan Sweetman

Peak Performers 2019 Turner Falls HikeFrom: Pam Michel

Donation to DAPSFrom: Lieselotte Beene Diane Daniel Betty Dorsey Kent Hanneman Margaret Jones Bob Solomon Sam Tinsley Lindsley Waters AmazonSmile Foundation Communities Foundation of Texas Pepsico Employee Giving Program Vizient DAPS @ Hunters Glen (Plano) DAPS @ Trinity (Duncanville)

Anonymous Sarah Atwood Laura Boyle Carol Brandle Shirley Brouillette Edna Buentipo John & Wanda Call Malinda Cannon Larry Christensen Mitzi Clark Christian Clausen Patty Cook Debbie Cox Bruce & Janiece Crozier Kim Dague John Davis Randy & Rita Doelling Betty Dorsey Raul & Jill Dominguez Katie & Manford Edgington Bentley & Iris Foster William & Karen George

Barbara Glass Barry & Pat Goukler Steven Holman Michael Jones Geri & Harold Kellogg Jo & Bert Klein Leon & Marilyn Levin Scott MacPherson John Marty Glen & Frances Main Chip & Ginny Melara Pam & Matt Michel Donna Miles Mike Miles Carlie Moe Bobbi & John Myers Rod Myers Susan Norvell Tom & Cecilia Pajda Sandi Pautler Leisha Phipps Fred Ransdell

John Rapier Greg Rector Marguerite Riccardi David & Beverly Rivers Marcie Salamone Adana & Samuel Sanford Charles Schlinke Robyn & Bud Seitzler Shelby Smith Jim Struble Joyce Susman Dr. Chad Swank Linda & Mike Swanson Leslie & Brad Tarkington Randy Visser John & Ruth Walker Carole Ann Watson Michele White Diana Winkelmann Sharon & Greg Wood

GEMs are donors who

Give Every Month.

Our GEMs are very valuable!

Sign up on the DAPS website:

http://bit.ly/DAPSGEM

PAGE 6 • DAPS • JANUARY 2020

DALLAS

Preston Hollow UMC6315 Walnut Hill Ln, Dallas (214-363-4393)Group Exercise:Tue/Thu...10:30–11:30 amSpeech Group:Tuesday...11:30 am–12:30 pm*†South Paws Boxing:Mon/Wed...1:30–2:30 pm* Call 214-702-6559 or TribeWellnessLLC@gmail.com for info

Finley Ewing Cardiovascular & Fitness Center, Studio 35721 Phoenix Dr, Dallas (214-345-4625)Dance for Movement Disorders:Tue/Thu…2:00–3:15 pm

Edgemere: The Plaza in the Atrium8502 Edgemere Rd., Dallas (214-615-7045)Chair Class:2nd & 4th Tuesday...2:00–3:00 pm

Belmont Village Turtle Creek3535 N. Hall Street, Dallas (214-559-7015)Move.Laugh.Connect.Friday…1:15–2:15 pm

Semones Family YMCA (Town North) 4332 Northaven Rd, Dallas, Rm MP2 (214-357-8431)Move.Laugh.Connect.Tue/Thu…1:00–2:00 pm

Lake Pointe Church at White Rock9150 Garland Rd, Dallas (214-324-1425)Group Exercise: Wednesday…9:30–10:30 amSpeech Group:Wednesday...10:30–11:15 amPartners-in-Care Group:Wednesday...10:15–11:15 am

The Preston of the Park Cities5917 Sherry Lane, Dallas (469-904-1394)Move.Laugh.Connect.Wednesday…10:15–11:15 am

NORTHEAST‡St. Gabriel the Archangel Church110 St. Gabriel Way, McKinney (214-548-4357)Group Exercise:Tue/Fri...10:15–11:15 am‡In the Community Room.

Title Boxing Club of Allen:503 W McDermott Dr #100, Allen (214-644-2640)†Boxing for PD:Tue/Thu...10:30–11:30 amSat…10:15–11:15 amInfo: 214-644-2640

Hunters Glen Baptist Church4001 Custer Rd, Plano (972-867-1610)Group Exercise:Mon/Thu...9:45–10:45 amSpeech Group:Thursday...11:00–11:45 amPartners-in-Care Group:Monday...9:45–10:45 am

Arapaho United Methodist Church1400 W Arapaho Rd, Richardson (972-231-1005)Group Exercise:Tuesday...10:00–11:00 amFriday...9:45–10:45 am

Tribe Wellness Gym100 N Cottonwood Dr #108, Richardson (214-702-6559)†South Paws Boxing:Monday...9:30–10:30 amMon/Thurs...6:30–7:30 pmTues/Fri…1:30–2:30 pm†Tai Chi:Mon/Fri…10:45–11:45 am Tues…3:00–4:00 pm Wed…9:00–10:00 am

All groups and classes are free of charge to participants unless noted with an asterisk. To order the activity book ($25 each) for the Move.Laugh.Connect. classes, call 972-620-7600.

Dates/times subject to change. See daps.us/groups or call 972-620-7600 for more information.†DAPS members receive discount.

Dallas Area Parkinsonism Society exercise • speech • support groups

6370 LBJ Fwy Ste 170Dallas, TX 75240-6400

972-620-7600 New email: daps@daps.org

New!

PAGE 7 • DAPS • JANUARY 2020

EAST

South Garland Baptist Church1330 E Centerville Rd, Garland (972-271-5428)Group Exercise:Mon/Thu...10:30–11:30 amSpeech Group: Mon/Thu… 9:30–10:15 amPartners-in-Care Group:Thursday...10:30–11:30 am

Mesquite Rehabilitation Institute1023 North Belt Line Rd, Mesquite (972-216-2400)Group Exercise:Tuesday...10:00–11:00 amSpeech Group: Tuesday...9:30–10:00 am

SOUTHWEST

Trinity United Methodist Church1302 S Clark Rd, Duncanville (972-296-2155)Group Exercise:Monday...2:00–3:00 pmNo class last Monday of the monthThursday...2:00–3:00 pmSpeech Group:Monday...1:00–1:45 pmPartners-in-Care Group: 2nd Monday...1:00–2:00 pm

Cyclone Indoor Cycling1724 Broad St, Suite 100, MansfieldWWAP Spin ClassTue/Thu…10:30–11:15 am†Cyclone membership required Small class sizes. Please call in advance to RSVP: 817-769-2723 www.cycloneindoorcycling.com

NORTHWEST

Landing at Watermere Frisco4300 Cotton Gin Rd, Frisco (972-798-7000)

Move.Laugh.Connect.Tuesday...10:00–11:00 amThursday…1:00–2:00 pm

Lakeview at Josey Ranch2105 N Josey Ln, Carrollton (972-466-4433)

Move.Laugh.Connect.Monday...12:30–1:30 pm

Grace Lutheran Church1200 E Hebron Pkwy, Carrollton (972-492-4474)Group Exercise:Wednesday...10:00–11:00 amSpeech Group:Wednesday…11:00 am–12:00 pm

MacArthur Hills Sr. Living1295 Kinwest Pkwy, Las Colinas (469-251-4349)Group Exercise:Tue/Fri...10:00–11:00 am

MONTHLY SUPPORT GROUPS

St. Gabriel the Archangel Church110 St. Gabriel Way, McKinney (214-548-4357)3rd Tuesday…10:00–11:00 am

Trinity United Methodist Church1302 S Clark Rd, Duncanville (972-296-2155)Last Monday...6:00–8:00 pm

Home Instead Senior Care New!580 S Denton Tap Rd Suite 280, Coppell (972-600-2309)1st Tuesday...11:00 am and 5:30 pm

NEW CLASS COMING SOON!NEW CLASS COMING SOON!HarborChase of Plano will be adding a Move.Laugh.Connect. class. Stay tuned for schedule information.

Dallas Area Parkinsonism Society exercise • speech • support groups

6370 LBJ Fwy Ste 170Dallas, TX 75240-6400

972-620-7600 New email: daps@daps.org

PAGE 8 • DAPS • JANUARY 2020

New Study on Forced Cycling's Potential to Slow Progression of Parkinson's Disease

In May 2019, a press release announced that the National Institutes of Health awarded Cleveland Clinic researcher and founder of Pedaling for Parkinson's Jay Alberts, PhD, a 5-year, $3 million grant to conduct a multi-site clinical trial studying the long-term effects of aerobic exercise on slowing the progression of Parkinson's disease.

Dr. Alberts was also the lead researcher for a clinical trial called CYCLE ("CYClical Lower Extremity Exercise for Parkinson's trial"), aimed at determining the effects of forced cycling on motor and non-motor performance, compared with voluntary cycling and a non-exercise control group. The randomized study, begun in 2012, included 100 participants, and also assessed whether exercise improves brain activity. Recently completed, the study showed that an eight-week high-intensity aerobic exercise program markedly enhances overall motor function, certain aspects of walking, and cognitive function in Parkinson’s patients.

The new study, using the CYCLE protocol, aims to determine if long-term, high-intensity aerobic exercise can slow the advancement of Parkinson's disease. This project is touted as the first of its kind. In addition, evaluation of the effectiveness of a long-term CYCLE protocol in a home-based setting has potential to impact a greater number of people with Parkinson's disease.

"Our previous work clearly indicates that aerobic exercise, such as cycling, in a controlled laboratory environment improves motor function over the course of eight weeks," said Alberts. "This project is important in understanding how exercise can slow disease progression and the translation of a laboratory-based protocol to the home of the patient. To bring an effective intervention from the Cleveland Clinic to the home of a patient outside of our zip code is an exciting next step in the treatment of Parkinson's."

Cleveland Clinic and University of Utah will recruit 250 Parkinson's patients who will be randomized to either a high-intensity home CYCLE Trial exercise group or a usual and customary care (UCC) group that will be instructed to engage in their normal

activities. Overall activity levels will be monitored for both groups via a wearable device. Exercise performance data will be used to determine if there is an optimal exercise dose necessary to slow disease progression. Identifying a specific dose will provide clinicians with the ability to make better recommendations for Parkinson's disease patients and also provide patients an opportunity to play a more active role in the treatment of this disease.

Cycling and Parkinson's: What We Know (And Are Learning) So Far

One of the questions we are asked often is this:

“Does cycling really help people with Parkinson’s?”

While we’d never say it helps everyone with Parkinson’s, or that it is an exercise you must do if you want to live well with Parkinson’s, research studies have shown that many people have experienced significant benefits from pushing pedals on a regular basis.

Depending upon pace and intensity, cycling has been shown to:

• Improve overall motor function

• Reduce tremor

• Reduce bradykinesia

• Reduce rigidity

• Improve aerobic capacity

• Improve mood

• Improve cognitive function

• Increase joy and social connections

• Decrease UPDRS scores (Unified Parkinson’s Disease Rating Scale)

Plus, it’s a great way to have fun with your friends.

Printed with permission from the April 2019 Davis Phinney Foundation for Parkinson's Blog:bit.ly/DPCycling

PAGE 9 • DAPS • JANUARY 2020

Upcoming Events

In November 2019, The Parkinson’s Foundation announced Parkinson’s Revolution, an indoor cycling experience that aims to generate awareness and funds to advance research towards a cure for Parkinson’s disease (PD). The first-ever Parkinson’s Revolution cycle event will take place February 8, 2020, at seven locations across the United States, including Dallas, TX.

Riders of all abilities are invited to attend and can choose between a 90- or 45-minute high-energy ride with a motivating instructor and inspiring music. This high-energy ride will make you perspire while being inspired! If you can’t participate in person, register for a virtual ride and cycle in your hometown or in your own home!

When: Saturday, February 8, 2020 1:00-4:00 p.m.

Where: The Ride House 5600 W Lovers Ln, #100 Dallas, TX 75209

For more information and to register, visit:

bit.ly/PRD2020

DAPS Lifetime Achievement Award

honoring

Roger Staubach

Tuesday, April 21, 2020

atFrontiers of Flight Museum

THE MOVEMENT BEGINS WITH YOU

EF GH EF GH EF

The DAPS 4th AnnualKeep Moving! Symposium

Saturday, September 26, 2020

THIS NEWSLETTER

SPONSORED BY…

Disclaimer: The contents or opinions expressed in this newsletter are those of the individual writers or presenters and do not constitute an endorsement or

approval by DAPS staff. Please consult your personal physician

regarding your individual medical problems.

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PAGE 10 • DAPS • JANUARY 2020

DALLASbit.ly/Feb2020Dal-RSVP

When: Monday, February 10, 2020, 1:00 p.m.Where: University Park United Methodist Church 4024 Caruth Blvd, Dallas, TX 75225Speaker: Valerie Johnson, PT, DPTTopic: The Essential Exercise Guide for Parkinson's Disease

MCKINNEYbit.ly/Jan2020McK-RSVP

When: Tuesday, January 21, 2020, 10 a.m.Where: St Gabriel the Archangel Church 110 St Gabriel Way, McKinney, TX 75071Speaker: Michael Braitsch, PT, DPTTopic: Movement Matters: Exercise for Parkinsonism

DUNCANVILLEbit.ly/Jan2020Dun-RSVP

When: Monday, January 27, 2020, 6 p.m.Where: Trinity United Methodist Church 1302 S Clark Rd, Duncanville, TX 75137

Speaker: Belyne Bland-Xochihua

Topic: Hospice & Advanced PlacementCall 972-298-4556 for more information.

JANUARY EDUCATIONAL SERIES

FEBRUARY EDUCATIONAL SERIES

EAST DALLASbit.ly/Feb2020EastDal-RSVP

When: Wednesday, February 5, 2020, 11:45 a.m.

Where: Lake Pointe Church at White Rock 9150 Garland Rd, Dallas, TX 75218

Speaker: Dr. Aanchal Taneja

Topic: Taking ON Parkinson's

Sponsored by Amneal Pharmaceuticals

NEW LOCATION!