implementing an early childhood developmental screening and surveillance program in primary care...

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Childhood Developmental Screening and Surveillance Program in Primary Care Settings in the State of Illinois: Lessons Learned Anita Berry MSN, CNP, APN, PMHS Director, Healthy Steps Program, Advocate Children’s Hospital Patty Mack MA, RN, LMFT, LPHA Healthy Steps Specialist, Consultant, Advocate Children’s Hospital

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Implementing an Early Childhood Developmental Screening and Surveillance

Program in Primary Care Settings in the State of Illinois: Lessons Learned

Anita Berry MSN, CNP, APN, PMHS

Director, Healthy Steps Program, Advocate Children’s Hospital

Patty Mack MA, RN, LMFT, LPHA

Healthy Steps Specialist, Consultant, Advocate Children’s Hospital

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Enhancing Developmentally Oriented Primary Care (EDOPC)Who - Advocate Children’s Hospital, the Illinois Chapter American Academy of Pediatrics, the Illinois Academy of Family Practice, the Ounce of Prevention Fund, and the Illinois Department of Health Care and Family Services

Goal – improve the financing, and delivery of preventive health and developmental services for children birth to age 3 years in the state of Illinois.

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Methods Professional education Ongoing technical assistance for practices Emphasis on referral and connection with community

resources Collection of policy-relevant information on barriers to

care Opportunity for collaboration with stakeholders Access to resources via EDOPC website

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Presentation Topics• Global development screening• Maternal depression screening• Social/emotional screening• Early autism detection and screening • Coordinating care between early intervention and the primary health care

home• Domestic violence screening*• Effects of domestic violence on children*• Early childhood obesity prevention*• Early childhood behavioral modification and limit setting*• Psychosocial issues for children ages 5 to 8 years*• Effects of trauma and violence on young children*• Bright Futures Guidelines for Health Supervision and Bright Futures Tool and

Resource Kit birth to 10 years • American Academy of Pediatrics Mental Health Tool Kit for Primary Care*

* Designates topics focused on Mental Health

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Why Screen and Refer• 12% to 16% of American children meet

diagnostic criteria for developmental or behavioral disorder

• Best long-term outcomes when they receive early intervention (EI) services designed

• Research confirms effectiveness of EI • Cost savings

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Surveillance, Screening, Checklists• What is happening in your practice now?

Define

– Surveillance

– Screening

– Checklist

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Screening Tools for Primary Care• Ages and Stages Questionnaire third edition (ASQ-3)• Ages and Stages Questionnaire: Social Emotional (ASQ:SE)• Infant Development Inventory (IDI)• Child Development Inventory• Parents’ Evaluation of Developmental Status (PEDS)• Edinburgh Postnatal Depression Scale (EPDS)• Patient Health Questionnaire -9 (PHQ-9)• Modified Checklist for Autism in Toddlers Revised/Follow UP

(M-CHAT R/F)• Hurts, Insults, Threatens, Screams at (HITS)*• Pediatric Symptom Checklist (PSC)

* Not currently billable in Illinois

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Detection Rates

• 20% of mental health problems identified

(Lavigne et al. Pediatr. 1993; 91:649-655)

• 30% of developmental disabilities identified

(Palfrey et al. JPEDS. 1994; 111:651-655

Without Screening Tools With Screening Tools• 80-90% with mental

health problems identified

(Sturner, JDBP 1991; 12:51-64)

• 70-80% with developmental disabilities correctly identified

(Squires et al., JDBP 1996; 17:420-427

copyright EDOPC 2007

What to Expect When Screening All Children in A Practice

11%: high risk of disabilities & need referrals for further evaluations

20%: low risk of disabilities & need behavioral guidance

26%: moderate risk of disabilities & need developmental promotion/vigilance

43%: low risk of disabilities & need routine monitoring

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Getting a Project Started• Need the “Perfect Storm”

– Interest from key groups– Key partners– Funders

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Data Regarding Developmental Screening • 90% of providers reported an increase in

skills and confidence after EDOPC intervention

• Prior to project 10% of children screened• Sites reported before intervention 33%

screened by one year visit; one year after intervention approximately 69%

Screening in Illinois Before and After EDOPC Training Intervention

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Screening in Illinois Before and After EDOPC Training Intervention

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CHIPRA Child Core Set Data Book: ODS Performance

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State’s Steps to Improve Reporting of Developmental Screening

• Prioritize reporting of the Developmental Screening measure within the Medicaid agency.

• Reimburse providers for the 96110 code. • “Unbundle” the 96110 code, for example from EPSDT payments. • Partner across payers, providers, and other systems to collaborate

on performance improvement. • Reinforce the importance of developmental screening • Engage with providers and office staff on the benefits of

developmental screening, the importance of recording the 96110 CPT code.

• Prioritize the Developmental Screening measure in the state’s Medicaid Performance Improvement Projects (PIP) and in any provider pay-for-performance (P4P) programs.

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Barrier and Solutionsto Screening

Barriers - Provider Expectations• perform physical examination,• administer appropriate

medical screenings• provide vaccinations and

laboratory testing• elicit parental concerns• educate caregivers • provide anticipatory guidance• conduct developmental and mental health

surveillance and/or screening• identify family risk factors and determine the need for referral(s) • lack of sufficient resources solutions• team approach

Communicating Results• Use language that encourages

follow-up• Be sensitive to cultural

meaning of words• Focus on positives first• Practice your language

– “Excellent gross motor skills”

– “He has a wonderful temperament, so adaptable”

– “Would like to help him learn and grow to his full potential”

– “Needs some extra attention and support”

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Incorporating a Change in Practice:Using Plan Do Study Act Model (PDSA Cycles)

• PLAN: Plan a change or test how something works

• DO: Carry out the plan• STUDY: Look at the

results. What did you find out?

• ACT: Decide what actions should be taken to improve

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Repeat as needed Until desired goal is achieved

Questions – Technical AssistanceAnita Berry

[email protected]

630-929-6663

Website: http://www.advocatechildrenshospital.com/ach/care-treatment/healthy-steps/

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