hxrefactored 2015: madeleine rothberg "improving health it by learning from users with...
TRANSCRIPT
Improving Health IT by Learning from Users with Disabilities
Madeleine RothbergNational Center for Accessible Media at WGBH
April 1, 2015
WGBH is the producer of many popular PBS shows, including American Experience, NOVA, Downton Abbey, and kids shows including Arthur, Curious George, and Between the Lions.
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WGBH
The Caption Center(est. 1972)
And the Descriptive Video Service (est.
1990)
Media Access at WGBH
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Descriptive Video Service(est. 1990)
IF YOU HOLD THE BIRD LIKE THIS, IT CAN’T FLY OUT OF THE KITCHEN.
The National Center for Accessible Media
NCAM works to make technology accessible to people with disabilities, including projects in digital TV, theme parks, online multimedia, online assessments, web meetings, and museums.
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Theme parks Museums
Web meetingsDigital TV
OnlineMultimedia
OnlineAssessments
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Health it images: a variety of PHRs with complex interfaces.
Health IT: Access to PHRs 5
AT images: braille keyboard, large print keyboard, single swtich, eyegaze interface, and microphone headset.
Barriers to Accessible Health IT 6
© 2015 WGBH Photo credits: Yahoo! Accessibility Lab, cobalt123, Glenda Sims, ingoism, Robert Murphy.
Accessible Designs for Personal Health Records
Carl and Ruth Shapiro Family National Center for Accessible Media at WGBH (NCAM): Madeleine Rothberg; Geoff Freed
The Department of Biomedical and Health Informatics, The Children's Hospital of Philadelphia: Dean Karavite
Inglis, Philadelphia, PA: Lea Frontino
US Dept of Ed NIDRR Field Initiated Project H133G110095
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Accessibility review of current PHRs
PHRs for outpatient clinic, hospital, and consumer
•Demonstrate disparity and variability in achieving accessibility, usability and functionality•Can be easy to use, but inaccessible — or difficult to use, yet fully accessible•Have accessibility issues that can be readily addressed•Are only beginning to provide the information, resources and tools required to help consumers manage their own health and healthcare
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Talk to users
Semi-structured interviews (16 consumers)— Most important goal: independence— What health IT tools would support your goals?— Resulted in 22 requirements
Web-based survey (150 consumers)— Confirmed importance of requirements
Extensive user testing of a prototype PHR (26 consumers)
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Importance/ Satisfaction
Consumers told us that a wide range of health care tasks are important, and current options are unsatisfactory.
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What did you like least about the system? “Nothing, except I wish it was mine.” More user testing feedback on the Web site: http://healthitaccess.wgbh.org
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Feedback 11
What did you like LEAST about the system?
More user testing feedback on the Web site:http://healthitaccess.wgbh.org
“Nothing, except I wish it was mine.”
Usability testing with people with disabilities
Create relationships with local service organizations Set up at conferences Read up on etiquette Ask what users prefer
— Hire an interpreter or CART if needed for deaf users— Users may need to use their own computers and AT
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In the prototype, the equipment inventory allows users to store information about their medical equipment, including receipts, manuals, serial numbers, and other important details. Users can add notes to an editable field to track repair history or other information.
Features: Equipment inventory 13
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In the prototype, medical providers can add resources to the user’s care plan to provide accurate educational sources aligned to the user’s health care needs.
Features: Relevant resources 14
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Steps to Accessible Health IT
Talk to users Create valuable features Use accessible coding techniques Provide accessible multimedia Test – test – test!
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